Improving Clinical Care for Children With CKD: A Report From a National Kidney Foundation Scientific Workshop.

Development of clinical guidelines and recommendations to address the care of pediatric patients with chronic kidney disease (CKD) have rarely included the perspectives of providers from a variety of healthcare disciplines or the patients and parents themselves. Accordingly, the National Kidney Foundation hosted an in-person, one and one-half day workshop that convened a multidisciplinary group of physicians, allied healthcare professionals, and pediatric CKD patients and their parents, with the goal of developing key clinical recommendations regarding best practices for the clinical management of pediatric patients living with CKD. The key clinical recommendations pertained to five broad topics: Addressing the Needs of Patients and Parents/Caregivers; Modifying the Progression of CKD; Clinical Management of CKD-Mineral Bone Disorder and Growth Retardation; Clinical Management of Anemia, Cardiovascular Disease and Hypertension; and Transition and Transfer of Pediatric Patients to Adult Nephrology Care. This report describes the recommendations generated by the participants who attended the workshop.