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Conceptual framework for establishing twins prevention and continuous health promotion programme: a qualitative study.
BMJ Open 2024 April 11
BACKGROUND: Twin registries and cohorts face numerous challenges, including significant resource allocation, twins' recruitment and retention. This study aimed to assess expert feedback on a proposed pragmatic idea for launching a continuous health promotion and prevention programme (HPPP) to establish and maintain twin cohorts.
DESIGN: A qualitative study incorporating an inductive thematic analysis.
SETTING: Tehran University of Medical Sciences.
PARTICIPANTS: Researchers with expertise in twin studies participated in our study.
ANALYSIS AND DESIGN: Expert opinions were gathered through focus group discussions (FGDs). Thematic analysis was employed to analyse the findings and develop a model for designing a comprehensive, long-term health promotion programme using ATLAS.ti software. Additionally, a standardised framework was developed to represent the conceptual model of the twin HPPP.
RESULTS: Eight FGDs were conducted, involving 16 experts. Thematic analysis identified eight themes and seven subthemes that encompassed the critical aspects of a continuous monitoring programme for twin health. Based on these identified themes, a conceptual framework was developed for the implementation of an HPPP tailored for twins.
CONCLUSION: This study presented the initial endeavour to establish a comprehensive and practical solution in the form of a continuous HPPP designed to tackle the obstacles of twins' cohorts.
DESIGN: A qualitative study incorporating an inductive thematic analysis.
SETTING: Tehran University of Medical Sciences.
PARTICIPANTS: Researchers with expertise in twin studies participated in our study.
ANALYSIS AND DESIGN: Expert opinions were gathered through focus group discussions (FGDs). Thematic analysis was employed to analyse the findings and develop a model for designing a comprehensive, long-term health promotion programme using ATLAS.ti software. Additionally, a standardised framework was developed to represent the conceptual model of the twin HPPP.
RESULTS: Eight FGDs were conducted, involving 16 experts. Thematic analysis identified eight themes and seven subthemes that encompassed the critical aspects of a continuous monitoring programme for twin health. Based on these identified themes, a conceptual framework was developed for the implementation of an HPPP tailored for twins.
CONCLUSION: This study presented the initial endeavour to establish a comprehensive and practical solution in the form of a continuous HPPP designed to tackle the obstacles of twins' cohorts.
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