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Social Media and Health Informatics

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19 papers 0 to 25 followers A collection of articles on the subject of social media and health information use, both by consumers and medical professionals
Xinpei Ma, Hiroki Sayama
Recent research has established both a theoretical basis and strong empirical evidence that effective social behavior plays a beneficial role in the maintenance of physical and psychological well-being of people. To test whether social behavior and well-being are also associated in online communities, we studied the correlations between the recovery of patients with mental disorders and their behaviors in online social media. As the source of the data related to the social behavior and progress of mental recovery, we used PatientsLikeMe (PLM), the world's first open-participation research platform for the development of patient-centered health outcome measures...
2015: PeerJ
Shalini Lal, Jennifer Dell'Elce, Natasha Tucci, Rebecca Fuhrer, Robyn Tamblyn, Ashok Malla
BACKGROUND: Despite the potential and interest of using technology for delivering specialized psychiatric services to young adults, surprisingly limited attention has been paid to systematically assess their perspectives in this regard. For example, limited knowledge exists on the extent to which young people receiving specialized services for a first-episode psychosis (FEP) are receptive to using new technologies as part of mental health care, and to which types of technology-enabled mental health interventions they are amenable to...
April 2015: JMIR Mental Health
Tamara Taggart, Mary Elisabeth Grewe, Donaldson F Conserve, Catherine Gliwa, Malika Roman Isler
BACKGROUND: Social media, including mobile technologies and social networking sites, are being used increasingly as part of human immunodeficiency virus (HIV) prevention and treatment efforts. As an important avenue for communication about HIV, social media use may continue to increase and become more widespread. OBJECTIVE: The objective of this paper is to present a comprehensive systematic review of the current published literature on the design, users, benefits, and limitations of using social media to communicate about HIV prevention and treatment...
November 2, 2015: Journal of Medical Internet Research
Dan Svenstrup, Henrik L Jørgensen, Ole Winther
Physicians and the general public are increasingly using web-based tools to find answers to medical questions. The field of rare diseases is especially challenging and important as shown by the long delay and many mistakes associated with diagnoses. In this paper we review recent initiatives on the use of web search, social media and data mining in data repositories for medical diagnosis. We compare the retrieval accuracy on 56 rare disease cases with known diagnosis for the web search tools, pubmed...
2015: Rare Diseases
Megen Duffy
No abstract text is available yet for this article.
June 2013: American Journal of Nursing
Kevin A Padrez, Lyle Ungar, Hansen Andrew Schwartz, Robert J Smith, Shawndra Hill, Tadas Antanavicius, Dana M Brown, Patrick Crutchley, David A Asch, Raina M Merchant
BACKGROUND: Social media may offer insight into the relationship between an individual's health and their everyday life, as well as attitudes towards health and the perceived quality of healthcare services. OBJECTIVE: To determine the acceptability to patients and potential utility to researchers of a database linking patients' social media content with their electronic medical record (EMR) data. METHODS: Adult Facebook/Twitter users who presented to an emergency department were queried about their willingness to share their social media data and EMR data with health researchers for the purpose of building a databank for research purposes...
June 2016: BMJ Quality & Safety
Matthew E Peters, Elisabeth Uible, Margaret S Chisolm
Social media tools such as blogs, microblogs, social networking sites, podcasts, and video-sharing sites are now ubiquitous. These tools enable instantaneous interactions with a global community of individuals, including medical professionals, learners, and patients. An understanding of social media tools and how they can be used by psychiatrists is increasingly important. This review defines some relevant social media terms and addresses challenges specific to the use of social media in psychiatry. Focused primarily on Twitter, one of the most commonly used social media tools, the review describes how Twitter is being used in non-psychiatric medical fields and highlights four current and/or potential uses of Twitter in psychiatry: (1) patient care and advocacy, (2) lifelong learning, (3) research data collection and collaboration, and (4) scholarly recognition and impact...
December 2015: Current Psychiatry Reports
P Staccini, L Fernandez-Luque
OBJECTIVE: To summarize the 2014 state of the art in the areas related to consumer health informatics and social media. METHODS: We conducted a systematic review of articles published in 2014 in PubMed with a predefined set of queries. We identified 439 articles relevant for the review. The two section editors independently screened those papers taking into account their relevance to the topics covered by the section. In a second step, they jointly selected the 20 most representative papers as candidate best papers...
August 13, 2015: Yearbook of Medical Informatics
Lars Botin
Narration is central, even crucial, when it comes to embracing the whole individual, continuity of care, and responsible (ethical) handling of the technological construction of the self that takes place in health informatics. This paper will deal with the role of narratives in the construction of health informatics platforms and how different voices should have space for speech on these platforms. Theoretically the paper takes an outset in the actant model for narratives by the French-Lithuanian theorist of linguistics and literature A...
2015: Studies in Health Technology and Informatics
Xiaofang Zhou, An Zheng, Jiaheng Yin, Rudan Chen, Xianyang Zhao, Wei Xu, Wenqing Cheng, Tian Xia, Simon Lin
BACKGROUND: Consumer-generated content, such as postings on social media websites, can serve as an ideal source of information for studying health care from a consumer's perspective. However, consumer-generated content on health care topics often contains spelling errors, which, if not corrected, will be obstacles for downstream computer-based text analysis. OBJECTIVE: In this study, we proposed a framework with a spelling correction system designed for consumer-generated content and a novel ontology-based evaluation system which was used to efficiently assess the correction quality...
2015: JMIR Medical Informatics
Ryan J Shaw, Marc A Sperber, Traven Cunningham
This case study shows how students used online social media to disseminate curated knowledge to the public. This is a "redefined" way of having the students show that they have analyzed the existing knowledge on a topic, synthesized/reorganized it in a meaningful way, and created a new presentation of that knowledge in various ways. This case study demonstrates an effective teaching approach to ensure that students develop competencies in teamwork, collaboration, and informatics.
January 2016: Nurse Educator
Luis Fernández-Luque, Teresa Bau
OBJECTIVES: The use of Internet in the health domain is becoming a major worldwide trend. Millions of citizens are searching online health information and also publishing content about their health. Patients are engaging with other patients in online communities using different types of social media. The boundaries between mobile health, social media, wearable, games, and big data are becoming blurrier due the integration of all those technologies. In this paper we provide an overview of the major research challenges with the area of health social media...
April 2015: Healthcare Informatics Research
Charlene A Wong, Raina M Merchant, Megan A Moreno
We focus on the potential of social media related to the health of adolescent and young adults, who are nearly ubiquitous social media users but difficult to engage with their health and relatively low healthcare utilizers. Opportunities to better engage adolescents and young adults through social media exist in healthcare delivery, health education and health policy. However, challenges remain for harnessing social media, including making a clear value proposition and developing evidence-based frameworks for measuring the impact of social media on health...
December 2014: Healthcare
Gayle Prybutok, Sherry Ryan
This work examines where 18- to 30-year-old college students seek health information on the Internet and how they determine site and message credibility. Using a qualitative methodology, five focus groups were conducted with 18- to 30-year-old college students, and transcripts were analyzed with MaxQDA text analysis software. The study revealed that 18- to 30-year-old college students have Internet health information source preferences, reasons for seeking health information on the Internet, and message design factors that improve their perception of site and message credibility...
April 2015: Computers, Informatics, Nursing: CIN
Andrew Shepherd, Caroline Sanders, Michael Doyle, Jenny Shaw
BACKGROUND: Internet based social media websites represent a growing space for interpersonal interaction. Research has been conducted in relation to the potential role of social media in the support of individuals with physical health conditions. However, limited research exists exploring such utilisation by individuals with experience of mental health problems. It could be proposed that access to wider support networks and knowledge could be beneficial for all users, although this positive interpretation has been challenged...
2015: BMC Psychiatry
Abeed Sarker, Rachel Ginn, Azadeh Nikfarjam, Karen O'Connor, Karen Smith, Swetha Jayaraman, Tejaswi Upadhaya, Graciela Gonzalez
OBJECTIVE: Automatic monitoring of Adverse Drug Reactions (ADRs), defined as adverse patient outcomes caused by medications, is a challenging research problem that is currently receiving significant attention from the medical informatics community. In recent years, user-posted data on social media, primarily due to its sheer volume, has become a useful resource for ADR monitoring. Research using social media data has progressed using various data sources and techniques, making it difficult to compare distinct systems and their performances...
April 2015: Journal of Biomedical Informatics
Saeideh Bakhshi, Eric Gilbert
Many lab studies have shown that colors can evoke powerful emotions and impact human behavior. Might these phenomena drive how we act online? A key research challenge for image-sharing communities is uncovering the mechanisms by which content spreads through the community. In this paper, we investigate whether there is link between color and diffusion. Drawing on a corpus of one million images crawled from Pinterest, we find that color significantly impacts the diffusion of images and adoption of content on image sharing communities such as Pinterest, even after partially controlling for network structure and activity...
2015: PloS One
Mohammad Al Mamun, Hamza M Ibrahim, Tanvir Chowdhury Turin
INTRODUCTION: We studied Facebook groups related to hypertension to characterize their objectives, subject matter, member sizes, geographical boundaries, level of activity, and user-generated content. METHODS: We performed a systematic search among open Facebook groups using the keywords "hypertension," "high blood pressure," "raised blood pressure," and "blood pressure." We extracted relevant data from each group's content and developed a coding and categorizing scheme for the whole data set...
2015: Preventing Chronic Disease
Racheli Magnezi, Dafna Grosberg, Ilya Novikov, Arnona Ziv, Mordechai Shani, Laurence S Freedman
BACKGROUND:, a Hebrew-language social health network offers advice, consultation, and connection to others with chronic illness. This study compared characteristics and objectives of users and individuals seeking medical information through general Internet sites. METHODS: Similar questionnaires were sent to 1009 Internet and 900 Camoni users. Cluster analysis defined four modes of online social health network use: "acquiring information and support", "communicating", "networking" and "browsing"...
March 2015: Informatics for Health & Social Care
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