Karen Uzark, Victor Zak, Peter Shrader, Brian W McCrindle, Elizabeth Radojewski, James W Varni, Kaitlyn Daniels, Jill Handisides, Kevin D Hill, Linda M Lambert, Renee Margossian, Victoria L Pemberton, Wyman W Lai, Andrew M Atz
OBJECTIVES: To assess self-reported quality of life (QOL) in a large multicenter cohort of adolescent and young adults surviving Fontan. STUDY DESIGN: Cross-sectional. The Pediatric Quality of Life Inventory (PedsQL) was administered to 408 survivors of Fontan ages 13-25 years enrolled in the Pediatric Heart Network Fontan Follow-up Study. Subjects also completed either the Child Health Questionnaire (age <19 years) or Short Form Health Survey (age ≥ 19 years)...
March 2016: Journal of Pediatrics