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https://www.readbyqxmd.com/read/24939206/understanding-the-views-of-those-who-care-for-patients-with-cancer-on-advance-care-planning-and-end-of-life-care
#1
Malcolm D Mattes, Kaity Tung, Rachel Baum, Kapila Parikh, Hani Ashamalla
An electronic survey was used to assess the views of a diverse nationwide cohort of health care professionals regarding advance care planning and end-of-life care. A total of 645 responses were received. If diagnosed with a serious incurable illness with limited life expectancy, 97% would want to discuss their prognosis, 74% would refuse cardiopulmonary resuscitation, and 72% favored supportive/comfort care to more aggressive life-prolonging treatments. However, prognosis was thought to be discussed with only 52% of such patients, and just 5% thought doctors were either very or extremely successful at explaining advanced life-sustaining treatments to patients...
December 2015: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/24892738/palliative-care-clients-and-caregivers-notion-of-fear-and-their-strategies-for-overcoming-it
#2
Joy Penman, Bronwyn Ellis
OBJECTIVE: This paper aims to clarify our understanding of fear and explore the strategies employed by people with life-limiting conditions and their caregivers in addressing the emotion of fear as they journey through the dying process. The role of fear is discussed: different kinds of fear, the tangible and intangible measures by which people manage their fear, and the ways of transcending fear. METHOD: The findings of a larger research project funded by the Australian Department of Health and Ageing are drawn upon...
June 2015: Palliative & Supportive Care
https://www.readbyqxmd.com/read/24885960/why-is-high-quality-research-on-palliative-care-so-hard-to-do-barriers-to-improved-research-from-a-survey-of-palliative-care-researchers
#3
Emily K Chen, Catherine Riffin, M Cary Reid, Ronald Adelman, Marcus Warmington, Sonal S Mehta, Karl Pillemer
BACKGROUND: Substantial agreement has been achieved on research priorities in palliative care over the past 15 years, as evidenced by consensus conferences and systematic reviews. Despite the presence of a widely endorsed research agenda, however, addressing the gaps in scientific knowledge has progressed slowly, suggesting that researchers face significant obstacles to conducting high-quality research on the most pressing topics in the field. OBJECTIVE: To systematically identify barriers to improved and expanded palliative care research as reported by researchers...
July 2014: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/24601075/the-institut-catal%C3%A3-d-oncologia-model-of-palliative-care-an-integrated-and-comprehensive-framework-to-address-the-essential-needs-of-patients-with-advanced-cancer
#4
Jorge Maté-Méndez, Jesús González-Barboteo, Agnès Calsina-Berna, Dolors Mateo-Ortega, Núria Codorniu-Zamora, Joaquín T Limonero-García, Jordi Trelis-Navarro, Gala Serrano-Bermúdez, Xavier Gómez-Batiste
No abstract text is available yet for this article.
2013: Journal of Palliative Care
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