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Fausto Meriggi, Federica Andreis, Veronica Premi, Nadia Liborio, Claudio Codignola, Maria Mazzocchi, Anna Rizzi, Tiziana Prochilo, Luigina Rota, Brunella Di Biasi, Paola Bertocchi, Chiara Abeni, Chiara Ogliosi, Francesca Aroldi, Alberto Zaniboni
OBJECTIVE: Caregivers play a key role in the management of patients with cancer. However, some studies have suggested that caregivers have even more unmet needs than the patients. METHOD: To better identify the needs and changes in the lifestyles of the caregivers in our practice and to plan a targeted support project to decrease caregiver burden, we administered the Caregiver's QoL Index-Cancer (CQoLC) to 200 consecutive caregivers. This questionnaire assesses psychological well-being, the relationship with healthcare professionals, administration of finances, lifestyle disruption, and positive adaptation...
August 2015: Palliative & Supportive Care
Colin G Pottie, Karen A Burch, Lori P Montross Thomas, Scott A Irwin
BACKGROUND: Informal caregivers play a critical role in the provision of care to hospice patients. The care they provide often impacts their physical and psychological well-being. OBJECTIVE: This study synthesized 58 articles pertaining to informal hospice caregiving, focusing on caregivers' satisfaction with hospice services, the physical and psychological well-being of caregivers, the predictors of caregivers' well-being, the direct impact of hospice services on caregivers, and the effectiveness of targeted interventions for hospice caregivers...
July 2014: Journal of Palliative Medicine
Melinda Kavanaugh, Betty J Kramer, Matthew Cunningham Walsh, Amy Trentham-Dietz
OBJECTIVE: The determinates of economic burden in lung cancer caregivers are poorly understood. Of particular interest is the role patient symptoms play in caregiver economic burden. Guided by a stress process conceptual framework, this study examined the predictors of economic burden reported by lung cancer spousal caregivers. Our study focused on the pathway of contextual and stressor variables leading to economic burden in lung cancer caregivers. METHOD: Relying on survey data from 138 spouses, structural equation modeling was employed to examine the determinants of economic burden measured using the Family Impact Survey...
June 2015: Palliative & Supportive Care
Jennifer Angelo, Richard Egan
OBJECTIVE: Caregivers often are unprepared for their role yet serve as the frontline in the provision of palliative care services. The aim of our study was to explore family caregivers' experiences from their perspective as they cared for dying relatives. METHOD: Using the Photovoice methodology, ten unpaid family caregivers took photographs depicting issues they experienced as informal caregivers of an ill family member who had less than a year to live. Each participant met with the first author individually four to six times and explained their role as caregiver through photographs and stories...
June 2015: Palliative & Supportive Care
Hanife Ozcelik, Deniz Ezgi Cakmak, Cicek Fadiloglu, Yasemin Yildirim, Ruchan Uslu
OBJECTIVE: The objective of our study was to determine the satisfaction levels of family members of patients with advanced-stage cancer. METHOD: This descriptive study was conducted in the palliative care and medical oncology clinics of a university hospital in the province of Izmir between April of 2011 and January of 2012. The study sample consisted of a total of 145 family members, who were selected from among the family members of patients with advanced-stage cancer receiving palliative treatment...
June 2015: Palliative & Supportive Care
Maja Holm, Anette Henriksson, Ida Carlander, Yvonne Wengström, Joakim Öhlen
OBJECTIVE: Family caregivers have been given increasing importance in palliative home care and face a great responsibility as caregivers for patients suffering from incurable illness. Preparedness for caregiving has been found to moderate negative effects and promote well-being in family caregivers. The aim of our study was to explore family caregivers' own experiences of preparing for caregiving in specialized palliative home care. METHOD: An interpretive descriptive design was chosen...
June 2015: Palliative & Supportive Care
Anna Ugalde, Meinir Krishnasamy, Penelope Schofield
BACKGROUND: Informal caregivers take on an important role in supporting people with advanced cancer but experience significant psychological distress. OBJECTIVE: This study aims to describe the prevalence of anxiety and distress in a sample of caregivers of people with advanced cancer and explore the relationship with self-efficacy. METHODS: A cross-sectional survey was used. Subjects were 94 caregivers of people with advanced cancer recruited from a specialist oncology setting...
August 2014: Journal of Palliative Medicine
Brian T Joyce, Rebecca Berman, Denys T Lau
BACKGROUND: Managing medications is a complex responsibility of family caregivers caring for end-of-life patients. This study characterizes caregivers with and without formal/informal support managing medications for patients who receive end-of-life care at home. AIM: To explore factors related to caregivers' support with managing medications for end-of-life home hospice patients. DESIGN: A convenience-sampled, cross-sectional telephone survey...
October 2014: Palliative Medicine
Maria C De Korte-Verhoef, H Roeline W Pasman, Bart Pm Schweitzer, Anneke L Francke, Bregje D Onwuteaka-Philipsen, Luc Deliens
BACKGROUND: Since many patients spend most of the time at home at the end of life, this may affect the burden for family carers and constitute a risk factor for the patients' hospitalisation. This study aimed to explore family carers' burden in the final three months of the patient's life, from the perspective of both carers and general practitioners (GPs), and to assess whether family burden, as defined by the GP, is associated with hospitalisation. METHODS: A cross-sectional nationwide survey among GPs and family carers was performed...
2014: BMC Palliative Care
Emily Harrop, Anthony Byrne, Annmarie Nelson
BACKGROUND: Family carers play an essential role in providing end-of-life care to their relatives but have been found to experience uncertainty and a lack of confidence in fulfilling their caregiving roles, prompting recent calls for educational or information based resources to be developed for carers. METHODS: We carried out four focus groups with Clinical Nurse Specialists, healthcare assistants, former and current carers at a hospice in the UK, to explore the information and support needs of family carers...
2014: BMC Palliative Care
Elizabeth A McKay, Ann E Taylor, Claire Armstrong
UNLABELLED: This paper explores the expectations and needs of current and bereaved carers whose relatives received care at home from a palliative care team. AIM: A hospice at home service was established in 2006 to provide patients with care in their own homes. We examined whether this model of care was helpful in mitigating carers' burden and in enabling terminally ill patients to be cared for and die at home. METHODS: This study utilized a survey and interviews...
2013: Journal of Palliative Care
Sophie Schur, Marie Neubauer, Michaela Amering, Alexandra Ebert-Vogel, Eva Katharina Masel, Ingrid Sibitz, Herbert Watzke, Beate Schrank
OBJECTIVE: Caregivers of cancer patients are faced with significant demands that can seriously impact their physical and mental health. It is important for healthcare professionals to be aware of caregivers' support needs in order for these to be adequately addressed. Our study develops a German version of the Family Inventory of Needs (FIN) and provides a comprehensive evaluation of its acceptability and psychometric properties. METHOD: Cross-sectional data from 308 participants were taken from the baseline assessment of an ongoing prospective study...
June 2015: Palliative & Supportive Care
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