We have located links that may give you full text access.
Breast cancer survivors' experiences of dealing with information during-and after adjuvant treatment: A qualitative study.
Journal of Clinical Nursing 2018 October 25
AIMS AND OBJECTIVES: To describe breast cancer (BC) survivors' experiences of participating in a 2-day educational program (Breast Cancer School, BCS) and their critical reflection on information received during and after adjuvant treatment. The following research questions guided the study. How do BC survivors experience their participation in an educational program? How do BC survivors experience the information trajectory during and after adjuvant treatment?.
BACKGROUND: BC is the most prevalent cancer among women in Norway. BC survivors have a substantial need for information about the disease, treatment and recovery. During the past few years, BC treatment in Norway has changed from inpatient- to outpatient-based treatment. Oncology nurses and oncologists are obliged to provide patients and their families with information, which has necessitated reorganization of the procedures for providing information. New arenas such as the Breast Cancer School (BCS) offer the opportunity to learn from experts and fellow patients.
DESIGN: Qualitative, descriptive design.
METHODS: Focus groups with 20 BC survivors after having participated in the BCS, were used to enable critical reflection. The COREQ checklist was followed to ensure rigour in the study.
RESULTS: Two themes emerged from qualitative analysis: Balancing between the need for and the fear of information and Moving from a safe structure to lonely recovery. We identified differences between BC survivors in diversity, uniqueness and need for information. Continuity and expert knowledge provided by a primary oncology nurse and oncologists was highlighted as important.
CONCLUSION: The study reveals the need for information tailored to each BC survivor's unique needs. The BC survivors expressed both the need for and the fear of information. BCS takes both a systematic and individual approach to provide expert information, dialog and the opportunity to meet with fellow patients. The transition from the structure of the treatment to lonely recovery after the most intensive treatment was perceived as unsafe and challenging. BC patients' experiences must be continuously valued and used to improve educational programs, care and treatment. Oncology nurses play an important part in the information chain and continuity.
RELEVANCE TO CLINICAL PRACTICE: This study highlights the importance of including BC survivors in the design and evaluation of educational programs. The provision of information and supportive care with continuity between oncology nurses and oncologists through the trajectory of treatment and care is crucial. This article is protected by copyright. All rights reserved.
BACKGROUND: BC is the most prevalent cancer among women in Norway. BC survivors have a substantial need for information about the disease, treatment and recovery. During the past few years, BC treatment in Norway has changed from inpatient- to outpatient-based treatment. Oncology nurses and oncologists are obliged to provide patients and their families with information, which has necessitated reorganization of the procedures for providing information. New arenas such as the Breast Cancer School (BCS) offer the opportunity to learn from experts and fellow patients.
DESIGN: Qualitative, descriptive design.
METHODS: Focus groups with 20 BC survivors after having participated in the BCS, were used to enable critical reflection. The COREQ checklist was followed to ensure rigour in the study.
RESULTS: Two themes emerged from qualitative analysis: Balancing between the need for and the fear of information and Moving from a safe structure to lonely recovery. We identified differences between BC survivors in diversity, uniqueness and need for information. Continuity and expert knowledge provided by a primary oncology nurse and oncologists was highlighted as important.
CONCLUSION: The study reveals the need for information tailored to each BC survivor's unique needs. The BC survivors expressed both the need for and the fear of information. BCS takes both a systematic and individual approach to provide expert information, dialog and the opportunity to meet with fellow patients. The transition from the structure of the treatment to lonely recovery after the most intensive treatment was perceived as unsafe and challenging. BC patients' experiences must be continuously valued and used to improve educational programs, care and treatment. Oncology nurses play an important part in the information chain and continuity.
RELEVANCE TO CLINICAL PRACTICE: This study highlights the importance of including BC survivors in the design and evaluation of educational programs. The provision of information and supportive care with continuity between oncology nurses and oncologists through the trajectory of treatment and care is crucial. This article is protected by copyright. All rights reserved.
Full text links
Related Resources
Trending Papers
Challenges in Septic Shock: From New Hemodynamics to Blood Purification Therapies.Journal of Personalized Medicine 2024 Februrary 4
Molecular Targets of Novel Therapeutics for Diabetic Kidney Disease: A New Era of Nephroprotection.International Journal of Molecular Sciences 2024 April 4
The 'Ten Commandments' for the 2023 European Society of Cardiology guidelines for the management of endocarditis.European Heart Journal 2024 April 18
A Guide to the Use of Vasopressors and Inotropes for Patients in Shock.Journal of Intensive Care Medicine 2024 April 14
Diagnosis and Management of Cardiac Sarcoidosis: A Scientific Statement From the American Heart Association.Circulation 2024 April 19
Essential thrombocythaemia: A contemporary approach with new drugs on the horizon.British Journal of Haematology 2024 April 9
Get seemless 1-tap access through your institution/university
For the best experience, use the Read mobile app
All material on this website is protected by copyright, Copyright © 1994-2024 by WebMD LLC.
This website also contains material copyrighted by 3rd parties.
By using this service, you agree to our terms of use and privacy policy.
Your Privacy Choices
You can now claim free CME credits for this literature searchClaim now
Get seemless 1-tap access through your institution/university
For the best experience, use the Read mobile app