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[Clinical characteristics of patients with ALS hospitalised at home].
Soins; la Revue de Référence Infirmière 2018 April
A study was carried out in 2013 in order to describe, using data from the programme for a medicalised information system, the population of patients with amyotrophic lateral sclerosis (ALS) cared for through the hospital at home service of the AP-HP Paris hospital group. This study highlights the highly technical nature of the care, in a context of palliative care and patient dependency. Patient care needs to be coordinated, preferably within a network.
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