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[Patient information before bladder wall injection of botulinum toxin A (Botox ® ): Which essential items? Results of Delphi consensus from GENULF experts].

Progrès en Urologie 2016 December
INTRODUCTION: Preoperative information before bladder wall injection of botulinum toxin A (Botox® ) holds several essential facts to understand and retain by the patients. The aim of this study was a review of essential preoperative information items according to GENULF medical experts.

METHOD: It was a prospective review from December 2015 to April 2016. Three Delphi rounds had been done from the Survey Monkey® software. The initial questionnaire was composed of items from the patient information sheet edited by the GENULF. Each item had been rated by the medical expert on a numeric scale of importance for patient information. The last round asked to experts to confirm items eventually selected.

RESULTS: A list of 27 items regarded as essentials for patient information had been checked by experts after three Delphi rounds, confirmed by 15/19 experts (75%). Best rated items were "learning self-catheterisation is essential" (mean interest 8,5/9 ; number of rate 8 or 9: 15), "kidney are protected over the long term" (mean interest 8,3/9 ; number of rate 8 or 9: 15), "efficiency is 6 to 9 months long" (mean interest 8,2/9 ; number of rate 8 or 9: 14). Discrepancies were mostly on lack of distinction between neurologic and non-neurologic patients.

CONCLUSION: We identified accurate items considered as essential for preoperative information to patients before bladder wall injection of botulinum toxin A (Botox® ) by a Delphi method recommended by HAS.

LEVEL OF EVIDENCE: 4.

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