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Suzanne Bakken

Fernanda C G Polubriaginof, Rami Vanguri, Kayla Quinnies, Gillian M Belbin, Alexandre Yahi, Hojjat Salmasian, Tal Lorberbaum, Victor Nwankwo, Li Li, Mark M Shervey, Patricia Glowe, Iuliana Ionita-Laza, Mary Simmerling, George Hripcsak, Suzanne Bakken, David Goldstein, Krzysztof Kiryluk, Eimear E Kenny, Joel Dudley, David K Vawdrey, Nicholas P Tatonetti
Heritability is essential for understanding the biological causes of disease but requires laborious patient recruitment and phenotype ascertainment. Electronic health records (EHRs) passively capture a wide range of clinically relevant data and provide a resource for studying the heritability of traits that are not typically accessible. EHRs contain next-of-kin information collected via patient emergency contact forms, but until now, these data have gone unused in research. We mined emergency contact data at three academic medical centers and identified 7...
May 15, 2018: Cell
Gayle G Page, Elizabeth J Corwin, Susan G Dorsey, Nancy S Redeker, Donna Jo McCloskey, Joan K Austin, Barbara J Guthrie, Shirley M Moore, Debra Barton, Miyong T Kim, Sharron L Docherty, Drenna Waldrop-Valverde, Donald E Bailey, Rachel F Schiffman, Angela Starkweather, Teresa M Ward, Suzanne Bakken, Kathleen T Hickey, Cynthia L Renn, Patricia Grady
PURPOSE: Biomarkers as common data elements (CDEs) are important for the characterization of biobehavioral symptoms given that once a biologic moderator or mediator is identified, biologically based strategies can be investigated for treatment efforts. Just as a symptom inventory reflects a symptom experience, a biomarker is an indicator of the symptom, though not the symptom per se. The purposes of this position paper are to (a) identify a "minimum set" of biomarkers for consideration as CDEs in symptom and self-management science, specifically biochemical biomarkers; (b) evaluate the benefits and limitations of such a limited array of biomarkers with implications for symptom science; (c) propose a strategy for the collection of the endorsed minimum set of biologic samples to be employed as CDEs for symptom science; and (d) conceptualize this minimum set of biomarkers consistent with National Institute of Nursing Research (NINR) symptoms of fatigue, depression, cognition, pain, and sleep disturbance...
May 2018: Journal of Nursing Scholarship
Sarah Iribarren, Samantha Stonbraker, Niurka Suero-Tejeda, Maribel Granja, José A Luchsinger, Mary Mittelman, Suzanne Bakken, Robert J Lucero
PURPOSE: To identify the information and communication needs of Hispanic family caregivers for individuals with Alzheimer's Disease and Related Dementias (ADRD) and the manner in which online tools may meet those needs. METHODS: We conducted 11 participatory design sessions with 10 English- and 14 Spanish-speaking urban-dwelling Hispanic family caregivers and gathered data using a survey, collage assemblage, and audio and video recordings. Four investigators analyzed transcripts of audio recordings with a coding framework informed by several conceptual models...
March 5, 2018: Informatics for Health & Social Care
Ann-Margaret Dunn Navarra, Marya Viorst Gwadz, Robin Whittemore, Suzanne R Bakken, Charles M Cleland, Winslow Burleson, Susan Kaplan Jacobs, Gail D'Eramo Melkus
The objective of this integrative review was to describe current US trends for health technology-enabled adherence interventions among behaviorally HIV-infected youth (ages 13-29 years), and present the feasibility and efficacy of identified interventions. A comprehensive search was executed across five electronic databases (January 2005-March 2016). Of the 1911 identified studies, nine met the inclusion criteria of quantitative or mixed methods design, technology-enabled adherence and or retention intervention for US HIV-infected youth...
November 2017: AIDS and Behavior
Reinhold Haux, Casimir A Kulikowski, Suzanne Bakken, Simon de Lusignan, Michio Kimura, Sabine Koch, John Mantas, Victor Maojo, Michael Marschollek, Fernando Martin-Sanchez, Anne Moen, Hyeoun-Ae Park, Indra N Sarkar, Tze Yun Leong, Alexa T McCray
BACKGROUND: Medical informatics, or biomedical and health informatics (BMHI), has become an established scientific discipline. In all such disciplines there is a certain inertia to persist in focusing on well-established research areas and to hold on to well-known research methodologies rather than adopting new ones, which may be more appropriate. OBJECTIVES: To search for answers to the following questions: What are research fields in informatics, which are not being currently adequately addressed, and which methodological approaches might be insufficiently used? Do we know about reasons? What could be consequences of change for research and for education? METHODS: Outstanding informatics scientists were invited to three panel sessions on this topic in leading international conferences (MIE 2015, Medinfo 2015, HEC 2016) in order to get their answers to these questions...
January 25, 2017: Methods of Information in Medicine
Alsacia L Sepulveda-Pacsi, Suzanne Bakken
There is a paucity of studies centering on the correlates of cancer worry among Hispanics from the Dominican Republic and the potential informatics strategies to address such worries. Data were analyzed using descriptive and correlational statistics, and logistic regression with the dependent variable of cancer worry. Independent variables for the regression were: age, gender, marital status, education, socioeconomic status, previous diagnosis of cancer, anxiety, depression, sleep disturbance, and chronic burden...
October 2017: Journal of Immigrant and Minority Health
Nara Jang, Suzanne Bakken
Internalized HIV stigma (IHS) threatens people living with HIV (PLWH) and the public. Our purpose was to identify relationships between PLWH perceptions of IHS and demographic, clinical, overall health, health-related quality of life, and perceived health care provider (HCP) social support. Using survey data from PLWH (n = 292) in an urban HIV clinic, we first examined the reliability and validity of an existing IHS measure. Exploratory factor analysis revealed that the IHS score was composed of three factors: (a) Perception of Negative Societal Beliefs, (b) Fear of Disclosure, and (c) Perception of Negative HCP Beliefs, which were used as dependent variables in the multivariate analysis...
January 2017: Journal of the Association of Nurses in AIDS Care: JANAC
S Raquel Ramos, Peter Gordon, Suzanne Bakken, Rebecca Schnall
Federal regulations have encouraged the electronic sharing of protected health information (PHI). As an opt-in state, New York abides by an affirmative consent model where PHI is electronically shared only after written consent is obtained. The purpose of our study was to describe sociotechnical factors that influence health information exchange (HIE) consent for persons living with HIV (PLWH) at one clinic in New York City. We employed mixed methods to gather perceptions of facilitators and barriers to HIE consent...
November 2016: Journal of the Association of Nurses in AIDS Care: JANAC
Janet Woollen, Jennifer Prey, Lauren Wilcox, Alexander Sackeim, Susan Restaino, Syed T Raza, Suzanne Bakken, Steven Feiner, George Hripcsak, David Vawdrey
OBJECTIVE: To investigate patients' experience using an inpatient personal health record (PHR) on a tablet computer to increase engagement in their hospital care. METHODS: We performed observations and conducted semi-structured interviews with 14 post-operative cardiac surgical patients and their family members who received an inpatient PHR. Themes were identified using an inductive coding scheme. RESULTS: All participants responded favorably to having access to view their clinical information...
2016: Applied Clinical Informatics
Jennifer E Prey, Min Qian, Susan Restaino, Judith Hibbard, Suzanne Bakken, Rebecca Schnall, Gloria Rothenberg, David K Vawdrey, Ruth Masterson Creber
OBJECTIVE: The purposes of this paper are to describe the internal consistency reliability and construct validity of the PAM-13 for hospitalized cardiology and oncology patients and to examine the predictors of low patient activation in the same population. METHODS: We evaluated the internal consistency reliability of the PAM-13 in the inpatient setting. Construct validity of the PAM-13 was then assessed using two approaches: expected known-groups differences between patients with planned and unplanned admissions PAM-13 levels and convergence of PAM-13 levels with other measures...
December 2016: Patient Education and Counseling
Shaodian Zhang, Erin O'Carroll Bantum, Jason Owen, Suzanne Bakken, Noémie Elhadad
Objectives: The Internet and social media are revolutionizing how social support is exchanged and perceived, making online health communities (OHCs) one of the most exciting research areas in health informatics. This paper aims to provide a framework for organizing research of OHCs and help identify questions to explore for future informatics research. Based on the framework, we conceptualize OHCs from a social support standpoint and identify variables of interest in characterizing community members...
March 1, 2017: Journal of the American Medical Informatics Association: JAMIA
Sunmoo Yoon, Manuel C Co, Suzanne Bakken
We applied topic modeling techniques to 123,229 Tweets to gain insights about dementia caregiving as the foundation for future interventions. Network visualization elucidated the cultural similarities and differences of topics.
2016: Studies in Health Technology and Informatics
Sunmoo Yoon, Manuel C Co, Niurka Suero-Tejeda, Suzanne Bakken
We applied data mining techniques to a community-based behavioral dataset to build prediction models to gain insights about physical activity levels as the foundation for future interventions for urban Latinos. Our application of data mining strategies identified environment factors including having a convenient location for physical activity and psychological factors including depression as the strongest correlates of self-reported comparative physical activity among hundreds of variables. The data mining methods were useful to build prediction models to gain insights about perceptions of physical activity behavior as compared to peers...
2016: Studies in Health Technology and Informatics
Rebecca Schnall, Suzanne Bakken, William Brown Iii, Alex Carballo-Dieguez, Sarah Iribarren
Mobile health (mHealth) applications (apps) have the potential to support self-management and improve health outcomes in persons living with HIV (PLWH). In this paper, we report on the final step in a three-stage user-centered design process for the development of a mHealth app for PLWH. We conducted a usability evaluation with 10 targeted end-users and a heuristic evaluation with 5 persons with informatics expertise to assess the usability of a prototype mHealth app for PLWH to manage their health. At the end of our usability evaluation, we finalized a Design Document that included the user interface design and functional specifications of the mHealth app...
2016: Studies in Health Technology and Informatics
Arlene Smaldone, Sally Findley, Suzanne Bakken, L Adriana Matiz, Susan L Rosenthal, Haomiao Jia, Sergio Matos, Deepa Manwani, Nancy S Green
BACKGROUND: Community health workers (CHW) are increasingly recognized as a strategy to improve health outcomes for the underserved with chronic diseases but has not been formally explored in adolescents with sickle cell disease (SCD). SCD primarily affects African American, Hispanic and other traditionally underserved populations. Hydroxyurea (HU), an oral, once-daily medication, is the only approved therapeutic drug for sickle cell disease and markedly reduces symptoms, morbidity and mortality and improves quality of life largely by increasing hemoglobin F blood levels...
July 2016: Contemporary Clinical Trials
Ruth M Masterson Creber, Elaine Fleck, Jianfang Liu, Gloria Rothenberg, Beatriz Ryan, Suzanne Bakken
The prevalence of obesity is rising rapidly among Hispanics/Latinas. We evaluated the prevalence of being obese or overweight and associated risk factors among 630 low-income, Latina women from ambulatory care clinics in Upper Manhattan. Overall, 37 % of the sample was overweight and 41 % of the sample was obese, and yet, almost half of women who are overweight considered their weight "just about right." After adjusting for socio-demographic, behavioral, and biological risk factors, being obese was strongly associated with having hypertension [relative risk ratio (RRR) 3...
April 2017: Journal of Immigrant and Minority Health
Yalini Senathirajah, David Kaufman, Suzanne Bakken
BACKGROUND: Challenges in the design of electronic health records (EHRs) include designing usable systems that must meet the complex, rapidly changing, and high-stakes information needs of clinicians. The ability to move and assemble elements together on the same page has significant human-computer interaction (HCI) and efficiency advantages, and can mitigate the problems of negotiating multiple fixed screens and the associated cognitive burdens. OBJECTIVE: We compare MedWISE-a novel EHR that supports user-composable displays-with a conventional EHR in terms of the number of repeat views of data elements for patient case appraisal...
2016: EGEMS
Rebecca Schnall, Marlene Rojas, Suzanne Bakken, William Brown, Alex Carballo-Dieguez, Monique Carry, Deborah Gelaude, Jocelyn Patterson Mosley, Jasmine Travers
BACKGROUND: Mobile technologies are a useful platform for the delivery of health behavior interventions. Yet little work has been done to create a rigorous and standardized process for the design of mobile health (mHealth) apps. This project sought to explore the use of the Information Systems Research (ISR) framework as guide for the design of mHealth apps. METHODS: Our work was guided by the ISR framework which is comprised of 3 cycles: Relevance, Rigor and Design...
April 2016: Journal of Biomedical Informatics
Ruth Masterson Creber, Jennifer Prey, Beatriz Ryan, Irma Alarcon, Min Qian, Suzanne Bakken, Steven Feiner, George Hripcsak, Fernanda Polubriaginof, Susan Restaino, Rebecca Schnall, Philip Strong, David Vawdrey
BACKGROUND: Patients who are better informed and more engaged in their health care have higher satisfaction with health care and better health outcomes. While patient engagement has been a focus in the outpatient setting, strategies to engage inpatients in their care have not been well studied. We are undertaking a study to assess how patients' information needs during hospitalization can be addressed with health information technologies. To achieve this aim, we developed a personalized inpatient portal that allows patients to see who is on their care team, monitor their vital signs, review medications being administered, review current and historical lab and test results, confirm allergies, document pain scores and send questions and comments to inpatient care providers...
March 2016: Contemporary Clinical Trials
Lauren Wilcox, Janet Woollen, Jennifer Prey, Susan Restaino, Suzanne Bakken, Steven Feiner, Alexander Sackeim, David K Vawdrey
OBJECTIVE: Prior studies of computing applications that support patients' medication knowledge and self-management offer valuable insights into effective application design, but do not address inpatient settings. This study is the first to explore the design and usefulness of patient-facing tools supporting inpatient medication management and tracking. MATERIALS AND METHODS: We designed myNYP Inpatient, a custom personal health record application, through an iterative, user-centered approach...
January 2016: Journal of the American Medical Informatics Association: JAMIA
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