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https://www.readbyqxmd.com/read/29157221/the-failure-of-suicide-prevention-in-primary-care-family-and-gp-perspectives-a-qualitative-study
#1
Gerard Leavey, Sharon Mallon, Janeet Rondon-Sulbaran, Karen Galway, Michael Rosato, Lynette Hughes
BACKGROUND: Although Primary care is crucial for suicide prevention, clinicians tend to report completed suicides in their care as non-preventable. We aimed to examine systemic inadequacies in suicide prevention from the perspectives of bereaved family members and GPs. METHODS: Qualitative study of 72 relatives or close friends bereaved by suicide and 19 General Practitioners who have experienced the suicide of patients. RESULTS: Relatives highlight failures in detecting symptoms and behavioral changes and the inability of GPs to understand the needs of patients and their social contexts...
November 21, 2017: BMC Psychiatry
https://www.readbyqxmd.com/read/29156901/patient-centered-family-meetings-in-palliative-care-a-quality-improvement-project-to-explore-a-new-model-of-family-meetings-with-patients-and-families-at-the-end-of-life
#2
Christine R Sanderson, Philippa J Cahill, Jane L Phillips, Anne Johnson, Elizabeth A Lobb
BACKGROUND: Family meetings in palliative care can enhance communication with family members and identify unmet needs. However, the patient's voice may not be heard. METHODS: This pre and post-test quality improvement project was conducted from 2013-2014 and investigated a patient-centered family meeting, which is a different approach to palliative care family meetings, to determine its feasibility and acceptability for patients, family and the palliative care team...
September 29, 2017: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29154690/-what-i-did-for-my-loved-one-is-more-important-than-whether-we-talked-about-death-a-nationwide-survey-of-bereaved-family-members
#3
Masanori Mori, Saran Yoshida, Mariko Shiozaki, Tatsuya Morita, Mika Baba, Maho Aoyama, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita
BACKGROUND: Actions in preparation for death and talks about death between advanced cancer patients and their families are considered essential to achieve a good death. However, little is known about the prevalence of such actions compared with talks and their association with bereaved families' psychological morbidity. OBJECTIVE: To clarify the prevalence of bereaved families having acted in preparation for death and talked about death with their loved one, and to explore their associations with bereaved families' depression and complicated grief (CG)...
November 20, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29153961/welcoming-expertise-bereaved-parents-perceptions-of-the-parent-healthcare-provider-relationship-when-a-critically-ill-child-is-admitted-to-the-paediatric-intensive-care-unit
#4
Ashleigh E Butler, Beverley Copnell, Helen Hall
BACKGROUND: Entering the paediatric intensive care unit with a critically ill child is a stressful experience for parents. In addition to fearing for their child's well-being, parents must navigate both a challenging environment and numerous new relationships with healthcare staff. How parents form relationships with staff and how they perceive both their own and the healthcare providers' roles in this early stage of their paediatric intensive care journey is currently unknown. PURPOSE: This paper explores bereaved parents' perceptions of their role and their relationships with healthcare providers when their child is admitted to the intensive care unit, as part of a larger study exploring their experiences when their child dies in intensive care...
November 15, 2017: Australian Critical Care: Official Journal of the Confederation of Australian Critical Care Nurses
https://www.readbyqxmd.com/read/29150180/family-centre-bereavement-practices-in-danish-intensive-care-units-a-cross-sectional-national-survey
#5
Ingrid Egerod, Gudrun Kaldan, Maureen Coombs, Marion Mitchell
BACKGROUND: Mortality in Danish intensive care units (ICUs) continues at 27%, resulting in a large number of bereaved family members being cared for in the ICU. OBJECTIVES: To investigate the provision of bereavement care and follow-up services for bereaved families in Danish ICUs. METHODOLOGY: Self-administered computerized cross-sectional nation-wide survey of Danish ICUs. RESULTS: Nurses at 46 of 48 (96%) ICUs in Denmark responded...
November 14, 2017: Intensive & Critical Care Nursing: the Official Journal of the British Association of Critical Care Nurses
https://www.readbyqxmd.com/read/29148073/adaptation-and-validation-of-the-voices-sf-questionnaire-for-evaluation-of-end-of-life-care-in-sweden
#6
Anna O'Sullivan, Joakim Öhlen, Anette Alvariza, Cecilia Håkanson
OBJECTIVES: Instruments for evaluating end-of-life care by voicing experiences of family members have previously been lacking in Sweden. The objective of this study was therefore to adapt and validate the VOICES (SF) questionnaire to evaluate quality of end-of-life care in Sweden. The VOICES (SF) [Views of Informal Carers - Evaluation of Services (Short form)] is a questionnaire about bereaved relatives' experiences of care in the last three months of life of a deceased family member...
November 17, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/29145772/do-primary-care-physicians-help-the-bereaved-with-their-suicide-losses-loss-survivor-perceptions-of-helpfulness-from-physicians
#7
William Feigelman, Rebecca L Sanford, Julie Cerel
Several previous studies suggested that primary care physicians can provide important bereavement assistance to survivors of suicide, yet no study has investigated whether suicide-bereaved patients perceive their physicians as helpful. Contacting bereavement communities on social media, we collected online survey data from 146 bereaved respondents reporting suicides causing them severe emotional distress. Data analysis suggested that nearly half (48%) of the respondents encountered positive, help-offering responses from physicians, compared to 10% whose responses were deemed as negative...
January 1, 2017: Omega
https://www.readbyqxmd.com/read/29136682/exploring-the-cancer-caregiver-s-journey-through-web-based-meaning-centered-psychotherapy
#8
A J Applebaum, K L Buda, E Schofield, M Farberov, N D Teitelbaum, K Evans, R Cowens-Alvarado, R S Cannady
PURPOSE: Psychosocial interventions are historically underutilized by cancer caregivers, but support programs delivered flexibly over the Internet address multiple barriers to care. We adapted Meaning-Centered Psychotherapy for Cancer Caregivers, an in-person psychotherapeutic intervention intended to augment caregivers' sense of meaning and purpose and ameliorate burden, for delivery in a self-administered web-based program, the Care for the Cancer Caregiver (CCC) Workshop. The present study evaluated the feasibility, acceptability, and preliminary effects of this program...
November 14, 2017: Psycho-oncology
https://www.readbyqxmd.com/read/29136603/prolonged-grief-reactions-after-old-age-spousal-loss-and-centrality-of-the-loss-in-post-loss-identity
#9
Lena Eckholdt, Lynn Watson, Maja O'Connor
BACKGROUND: The loss of a spouse is a major life event. Previous research found that centrality of the loss to one's identity using Centrality of Event Scale (CES) is related to complicated bereavement reactions, such as depression, posttraumatic stress symptoms (PTS), and prolonged grief symptoms (PGS). This study aims to examine loss-centrality in elderly bereaved people up to 4 years post loss, to determine the relation of loss-centrality to complicated bereavement reactions, such as PGS, depression, and PTS, and to identify early predictors of loss-centrality...
November 8, 2017: Journal of Affective Disorders
https://www.readbyqxmd.com/read/29130405/what-is-the-role-of-community-at-the-end-of-life-for-people-dying-in-advanced-age-a-qualitative-study-with-bereaved-family-carers
#10
Merryn Gott, Janine Wiles, Tess Moeke-Maxwell, Stella Black, Lisa Williams, Ngaire Kerse, Gabriella Trussardi
BACKGROUND: New public health approaches to palliative care prioritise the role of community at end of life. However, little is known about community support for the increasing numbers of people dying in advanced age. AIM: To explore the role of community at end of life for people dying in advanced age from the perspective of their bereaved family caregivers. DESIGN: A constructionist framework underpinned a qualitative research design. Data were analysed using critical thematic analysis...
October 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/29130380/measuring-the-quality-of-end-of-life-care-development-testing-and-cultural-validation-of-the-danish-version-of-views-of-informal-carers-evaluation-of-services-short-form
#11
Lone Ross, Mette Asbjoern Neergaard, Morten Aagaard Petersen, Mogens Groenvold
BACKGROUND: The perspectives of patients and relatives are important in the improvement of the quality of health care. However, the quality of end-of-life care has not been systematically evaluated in Scandinavia. AIM: To develop or adapt and subsequently validate a questionnaire assessing the quality of end-of-life care in Denmark. The questionnaire was intended for bereaved relatives in order to assess the quality of care in the last 3 months of the patient's life and the circumstances surrounding death...
November 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/29126783/two-case-reports-using-simulated-reattachment-to-treat-persistent-complex-bereavement-disorder-and-ptsd
#12
Mark Rider
These case reports focus on a rapid treatment for persistent complex bereavement disorder and posttraumatic stress disorder (PTSD), which appears to activate the mirror neuron network. Simulated reattachment is a technique which has been found to repair phantom limb pain in just a few sessions. The same neuroplasticity that accomplishes phantom pain relief has been found to occur in the treatment of complicated grief and PTSD using similar methods. The simulated reattachment for the client in Case one was found to significantly reduce the symptoms of both complicated grief and obsessive-compulsive disorder (OCD) within one session...
October 6, 2017: Explore: the Journal of Science and Healing
https://www.readbyqxmd.com/read/29125714/prognostic-awareness-and-communication-preferences-among-caregivers-of-patients-with-malignant-glioma
#13
A J Applebaum, K Buda, M Kryza-Lacombe, J B Buthorn, R Walker, K M Shaffer, T A D'Agostino, E L Diamond
OBJECTIVE: Malignant glioma is a devastating neuro-oncologic disease with almost invariably poor prognosis, yet many families facing malignant glioma have poor prognostic awareness (PA), or the awareness of the patient's incurable disease and shortened life-expectancy. Accurate PA is associated with favorable medical outcomes at the end-of-life for patients and psychosocial outcomes for informal caregivers (ICs) through bereavement. To date, however, no study has specifically examined PA among MG ICs and the information they receive that shapes their awareness...
November 10, 2017: Psycho-oncology
https://www.readbyqxmd.com/read/29120367/risk-and-resilience-factors-related-to-parental-bereavement-following-the-death-of-a-child-with-a-life-limiting-condition
#14
REVIEW
Tiina Jaaniste, Sandra Coombs, Theresa J Donnelly, Norm Kelk, Danielle Beston
This paper reviews the theoretical and empirical literature on risk and resilience factors impacting on parental bereavement outcomes following the death of a child with a life-limiting condition. Over the past few decades, bereavement research has focussed primarily on a risk-based approach. In light of advances in the literature on resilience, the authors propose a Risk and Resilience Model of Parental Bereavement, thus endeavouring to give more holistic consideration to a range of potential influences on parental bereavement outcomes...
November 9, 2017: Children
https://www.readbyqxmd.com/read/29117766/mothers-coping-with-bereavement-in-the-2008-china-earthquake-a-dual-process-model-analysis
#15
Lin Chen, Fang Fu, Wei Sha, Cecilia L W Chan, Amy Y M Chow
The purpose of this study is to explore the grief experiences of mothers after they lost their children in the 2008 China earthquake. Informed by the Dual Process Model, this study conducted in-depth interviews to explore how six bereaved mothers coped with such grief over a 2-year period. Right after the earthquake, these mothers suffered from intensive grief. They primarily coped with loss-oriented stressors. As time passed, these mothers began to focus on restoration-oriented stressors to face changes in life...
January 1, 2017: Omega
https://www.readbyqxmd.com/read/29116817/perceptions-of-a-psychoeducation-program-for-caregivers-of-persons-with-dementia-at-end-of-life-a-qualitative-study
#16
Pamela Durepos, Sharon Kaasalainen, Sandra Carroll, Alexandra Papaioannou
OBJECTIVES: Caregivers (CG) of persons with dementia have described positive and challenging experiences related to caring for a person with a neurological disease. This study explored perceived benefits and challenges of a unique psychoeducation program provided at end of life (EOL) jointly attended by current and bereaved CGs of persons with dementia, residing in a hospital Specialized Care Unit. METHOD: Semi-structured interviews were held with sixteen participants and analyzed with content analysis...
November 8, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/29108148/grief-bereavement-and-traumatic-stress-as-natural-results-of-reproductive-losses
#17
Naji Abi-Hashem
No abstract text is available yet for this article.
2017: Issues in Law & Medicine
https://www.readbyqxmd.com/read/29103407/musical-interests-and-talent-twin-jazz-musicians-and-twin-studies-twin-research-loss-of-a-preterm-multiple-conjoined-twin-conception-depression-in-fathers-of-twins-twin-to-twin-transfusion-syndrome-twin-news-high-achieving-twins-twin-children-of-a-tennis-star
#18
Nancy L Segal
Findings from twin studies of musical interests and talent are reviewed as a backdrop to the lives and careers of twin jazz musicians, Peter and Will Anderson. The Anderson twins exemplify many aspects of twin research, namely their matched musical abilities, shared musical interests, and common career. This overview is followed by reviews of studies and case reports of bereavement in families who have lost a preterm multiple birth infant, the conception of conjoined twins following in vitro fertilization (IVF), depression in fathers of twins, and twin-to-twin transfusion incidence in monochorionic-diamniotic IVF twin pairs...
November 6, 2017: Twin Research and Human Genetics: the Official Journal of the International Society for Twin Studies
https://www.readbyqxmd.com/read/29103363/the-experience-of-persons-with-hematological-malignancy-when-communicating-with-health-care-professionals
#19
Fumika Horinuki, Maiko Noguchi-Watanabe, Yukari Takai, Reiko Yamahana, Nobuhiro Ohno, Sadamu Okada, Shin-Ichiro Mori, Noriko Yamamoto-Mitani
This study aimed to elucidate the experiences of Japanese persons with hematological malignancy (PHMs) in communicating with health care professionals (HCPs), from diagnosis to the end of life, as recalled by their families. We interviewed 14 bereaved families and analyzed the data using the basic techniques of grounded theory. We found that PHMs lived to the fullest possible when they experienced ownership of their illness process despite their disease. The ownership was made possible by active communication from HCPs: first, acknowledging the PHM's way of life, including reaching out from the HCPs and appreciating sincerely PHMs' hopes and will; and second, paving the way ahead, including giving prospects and offering choices...
November 1, 2017: Qualitative Health Research
https://www.readbyqxmd.com/read/29101120/developing-the-methods-and-questionnaire-voices-sf-for-a-national-retrospective-mortality-follow-back-survey-of-palliative-and-end-of-life-care-in-england
#20
Katherine J Hunt, Alison Richardson, Anne-Sophie E Darlington, Julia M Addington-Hall
The National Survey of Bereaved People was conducted by the Office for National Statistics on behalf of NHS England for the first time in 2011, and repeated annually thereafter. It is thought to be the first time that nationally representative data have been collected annually on the experiences of all people who have died, regardless of cause and setting, and made publicly available informing palliative and end-of-life policy, service provision and development, and practice. This paper describes the development of the questionnaire used in the survey, VOICES-SF, a short-form of the VOICES (Views Of Informal Carers-Evaluation of Services) questionnaire, adapted specifically to address the aims of the national survey...
November 3, 2017: BMJ Supportive & Palliative Care
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