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https://www.readbyqxmd.com/read/29344969/media-experiences-and-associations-with-mental-health-among-the-bereaved-of-the-mh17-disaster-a-latent-profile-analysis
#1
Peter G van der Velden, Erik van der Meulen, Lonneke I M Lenferink, Joris C Yzermans
Research has shown that the amount of media exposure is associated with post-event mental health problems. Whether bereaved individuals have negative experiences with media reports and whether they are associated with post-event mental health is unclear. This study evaluated these experiences and associations following the MH17-disaster. How media reports were experienced (nine topics, modified MAS), depression symptoms (QIDS-SR), functional problems (WSAS) and event-related coping-self-efficacy (CSE) were assessed about one year post-disaster (May-August 2015) among Dutch bereaved (N = 152)...
January 17, 2018: Scandinavian Journal of Psychology
https://www.readbyqxmd.com/read/29343195/caring-for-a-family-member-or-friend-with-dementia-at-the-end-of-life-a-scoping-review-and-implications-for-palliative-care-practice
#2
Timothy R Broady, Freya Saich, Tom Hinton
BACKGROUND: Although people with dementia receive substantial care from informal sources, there is limited research available that investigates how these carers experience end-of-life care. AIM: This review aimed to identify what is currently known about carers' experiences of providing end-of-life care to a family member or friend with dementia and draw implications for palliative care policy and service provision. DESIGN: A scoping literature review was conducted, first using a targeted key word search, followed by assessments of eligibility based on title and then abstract content...
January 1, 2018: Palliative Medicine
https://www.readbyqxmd.com/read/29343173/effects-of-two-feedback-interventions-on-end-of-life-outcomes-in-nursing-home-residents-with-dementia-a-cluster-randomized-controlled-three-armed-trial
#3
Jannie A Boogaard, Henrica Cw de Vet, Mirjam C van Soest-Poortvliet, Johannes R Anema, Wilco P Achterberg, Jenny T van der Steen
BACKGROUND: Despite increased attention for palliative care in dementia, recent studies found burdensome symptoms and unmet family caregiver needs in the last phase of life. Feedback is being used to improve the quality of palliative care, but we do not know how effective it is. AIM: To assess the effect of two feedback strategies on perceived quality of end-of-life care and comfort in dying nursing home residents with dementia. METHODS: In a cluster-randomized controlled trial, the End-of-Life in Dementia-Satisfaction With Care and the End-of-Life in Dementia-Comfort Assessment in Dying scales were completed by bereaved family caregivers of residents with dementia of 18 Dutch nursing homes...
January 1, 2018: Palliative Medicine
https://www.readbyqxmd.com/read/29338675/an-exploration-into-best-practices-in-peer-support-for-bereaved-survivors
#4
Paul T Bartone, Jocelyn V Bartone, Zaneta Gileno, John M Violanti
This exploratory, qualitative study addresses the question: what are the important elements in effective peer support programs for bereaved survivors? Interviews with ten highly experienced experts were analyzed to identify recurrent themes and elements. Findings indicate that effective peer support programs for the bereaved should be: easily accessible; confidential; provide a safe environment; employ peer supporters with similar shared experiences to clients; select peer supporters carefully; partner with professional mental health providers; train peer supporters thoroughly; and provide care and monitoring for peer supporters...
January 17, 2018: Death Studies
https://www.readbyqxmd.com/read/29338601/reflections-on-the-development-of-a-therapeutic-recreation-based-bereavement-camp-for-families-whose-child-has-died-from-serious-illness
#5
Peter Hanlon, Suzanne Guerin, Gemma Kiernan
While bereavement camps serve as a support for children, this study examines a therapeutic recreation-based camp for families who have lost a child. The study triangulated documents, researcher reflection and staff interviews to highlight the themes of Searching & Finding, Getting to Know, Finding the Balance and Joining. Developing opportunistically through internal and external factors, the camp's evolution represents a closing of the loop, from supporting families of living children to also supporting the families of children who have died...
January 17, 2018: Death Studies
https://www.readbyqxmd.com/read/29338328/avoidance-meaning-and-grief-psychosocial-factors-influencing-engagement-in-hiv-care
#6
Georgia J Michlig, Ryan P Westergaard, Yukyan Lam, Azal Ahmadi, Gregory D Kirk, Andrew Genz, Jeanne Keruly, Heidi Hutton, Pamela J Surkan
Although the introduction of antiretroviral therapy has rendered HIV a chronic illness, inconsistent engagement in HIV care by key populations limits its public health impact. Poor engagement in care is especially prevalent among vulnerable populations with mental health and substance use disorders. Beyond structural and health system considerations, psychosocial factors may present challenges to sustained engagement. We conducted a qualitative study using in-depth interviews with 31 primarily African American, urban-based individuals, many with past or current drug use and mental disorders, living with HIV...
January 17, 2018: AIDS Care
https://www.readbyqxmd.com/read/29333484/approaching-the-third-decade-of-paediatric-palliative-oncology-investigation-historical-progress-and-future-directions
#7
Abby R Rosenberg, Joanne Wolfe
Paediatric palliative care (PPC) endeavours to alleviate the suffering and improve the quality of life of children with serious illnesses and their families. In the past two decades since WHO defined PPC and called for its inclusion in paediatric oncology care, rigorous investigation has provided important insights. For example, the first decade of research focused on end-of-life experiences of the child and the family, underscoring the high prevalence of symptom burden, the barriers to parent-provider concordance with regards to prognosis, as well as the need for bereavement supports...
September 2017: Lancet Child & Adolescent Health
https://www.readbyqxmd.com/read/29331974/what-are-the-physical-and-psychological-health-effects-of-suicide-bereavement-on-family-members-an-observational-and-interview-mixed-methods-study-in-ireland
#8
Ailbhe Spillane, Karen Matvienko-Sikar, Celine Larkin, Paul Corcoran, Ella Arensman
OBJECTIVES: Research focussing on the impact of suicide bereavement on family members' physical and psychological health is scarce. The aim of this study was to examine how family members have been physically and psychologically affected following suicide bereavement. A secondary objective of the study was to describe the needs of family members bereaved by suicide. DESIGN: A mixed-methods study was conducted, using qualitative semistructured interviews and additional quantitative self-report measures of depression, anxiety and stress (DASS-21)...
January 13, 2018: BMJ Open
https://www.readbyqxmd.com/read/29331049/prenatal-maternal-psychosocial-stress-and-offspring-s-asthma-and-allergic-disease-a-systematic-review-and-meta-analysis
#9
Catherine Flanigan, Aziz Sheikh, Audrey DunnGalvin, Bronwyn K Brew, Catarina Almqvist, Bright I Nwaru
BACKGROUND: Prenatal maternal stress may influence offspring's atopic risk through sustained cortisol secretion resulting from activation of the hypothalamic-pituitary-axis (HPA), leading to Th2-biased cell differentiation in the fetus. We undertook a systematic review and meta-analysis investigating the relationship between prenatal maternal psychosocial stress and risk of asthma and allergy in the offspring. METHODS: We searched 11 electronic databases from 1960 to 2016, search the grey literature, and contacted experts in the field...
January 13, 2018: Clinical and Experimental Allergy: Journal of the British Society for Allergy and Clinical Immunology
https://www.readbyqxmd.com/read/29329723/prolonged-grief-and-cognitive-decline-a-prospective-population-based-study-in-middle-aged-and-older-persons
#10
Heidi C Saavedra Pérez, M Arfan Ikram, Nese Direk, Henning Tiemeier
OBJECTIVE: Bereavement can result in unresolved and prolonged grief, often termed prolonged grief disorder (PGD). The impact of PGD on cognitive functioning is poorly understood. The aim of the study was to compare the cognitive decline, assessed by repeated measures of different cognition domains, between persons with normal and PGD and a non-grieving reference population in a 7-year follow-up study. METHODS: The study sample comprised 3126 non-demented persons, mean age: 64 years, of the Rotterdam Study...
December 12, 2017: American Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/29329691/communication-disparity-between-bereaved-and-others-what-hurts-them-and-what-is-unhelpful-a-nationwide-study-of-the-cancer-bereaved
#11
EMayumi Ishida, Hideki Onishi, Tatsuya Morita, Yosuke Uchitomi, Megumi Shimizu, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita
CONTEXT: The importance of communication between the cancer bereaved and others has been emphasized, but little is known about the more problematic aspects of this communication such as "unhelpful communication". OBJECTIVES: The aim of this study was to establish which types of communication are perceived by the bereaved to be unhelpful. METHODS: We conducted a cross-sectional, anonymous, nationwide survey at 103 certified hospice facilities/palliative care units in Japan...
January 9, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29329064/user-acceptability-of-the-diagnosis-of-prolonged-grief-disorder-how-do-professionals-think-about-inclusion-in-icd-11
#12
Leonie Dietl, Birgit Wagner, Thomas Fydrich
BACKGROUND: For the next edition of the International Statistical Classification of Diseases (ICD-11) it is proposed to include prolonged grief disorder as a new diagnosis. The diagnosis describes persistent intensive and disabling grief reactions to bereavement (WHO, 2016b). The aim of the present survey was to determine the extent to which the diagnosis is accepted by practitioners in the healthcare and psychosocial field. METHODS: A total of 2088 German-speaking professionals in the fields of psychotherapy, psychology, counselling, medicine and palliative care completed the online survey...
January 3, 2018: Journal of Affective Disorders
https://www.readbyqxmd.com/read/29326197/parents-2-study-protocol-pilot-of-parents-active-role-and-engagement-in-the-review-of-their-stillbirth-perinatal-death
#13
Danya Bakhbakhi, Dimitrios Siassakos, Claire Storey, Alexander Heazell, Mary Lynch, Laura Timlin, Christy Burden
BACKGROUND: The perinatal mortality review meeting that takes place within the hospital following a stillbirth or neonatal death enables clinicians to learn vital lessons to improve care for women and their families for the future. Recent evidence suggests that parents are unaware that a formal review following the death of their baby takes place. Many would welcome the opportunity to feedback into the meeting itself. Parental involvement in the perinatal mortality review meeting has the potential to improve patient satisfaction, drive improvements in patient safety and promote an open culture within healthcare...
January 10, 2018: BMJ Open
https://www.readbyqxmd.com/read/29325440/case-mix-adjustment-of-the-bereaved-family-survey
#14
Ann Kutney-Lee, Joan Carpenter, Dawn Smith, Joshua Thorpe, Alina Tudose, Mary Ersek
Surveys of bereaved family members are increasingly being used to evaluate end-of-life (EOL) care and to measure organizational performance in EOL care quality. The Bereaved Family Survey (BFS) is used to monitor EOL care quality and benchmark performance in the Veterans Affairs (VA) health-care system. The objective of this study was to develop a case-mix adjustment model for the BFS and to examine changes in facility-level scores following adjustment, in order to provide fair comparisons across facilities...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29323525/embitterment-and-bereavement-the-sewol-ferry-accident-example
#15
Jeong-Ho Chae, Hyu Jung Huh, Won Joon Choi
OBJECTIVE: On Wednesday, April 16, 2014, 261 high school students on a field trip died in the sinking of the Sewol ferry. The bereaved family of the Sewol ferry accident experienced one of the most painful traumatic losses such as the sudden death of one's child through an accident. This article reviewed and discussed embitterment related to traumatic loss through the example of the Sewol ferry accident. METHOD: Embitterment-related issues and problems in coping with the accident that is caused by societal factors were described...
January 2018: Psychological Trauma: Theory, Research, Practice and Policy
https://www.readbyqxmd.com/read/29321079/the-enactment-stage-of-end-of-life-decision-making-for-children
#16
Jane Elizabeth Sullivan, Lynn Heather Gillam, Paul Terence Monagle
OBJECTIVES: Typically pediatric end-of-life decision-making studies have examined the decision-making process, factors, and doctors' and parents' roles. Less attention has focussed on what happens after an end-of-life decision is made; that is, decision enactment and its outcome. This study explored the views and experiences of bereaved parents in end-of-life decision-making for their child. Findings reported relate to parents' experiences of acting on their decision. It is argued that this is one significant stage of the decision-making process...
January 11, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29321000/care-quality-following-intrauterine-death-in-spanish-hospitals-results-from-an-online-survey
#17
Paul Richard Cassidy
BACKGROUND: The objective of the study was to evaluate practices in Spanish hospitals after intrauterine death in terms of medical/ technical care and bereavement support care. METHODS: A cross-sectional descriptive study using an online self-completion questionnaire. The population was defined as women who had experienced an intrauterine fetal death between sixteen weeks and birth, either through spontaneous late miscarriage/stillbirth or termination of pregnancy for medical reasons...
January 10, 2018: BMC Pregnancy and Childbirth
https://www.readbyqxmd.com/read/29316867/hoy-w-g-2016-bereavement-groups-and-the-role-of-social-support-hoy-w-g-2016-bereavement-groups-and-the-role-of-social-support-new-york-ny-routledge-224-pp-44-95-paperback-isbn-978-1-138-91689-0
#18
https://www.readbyqxmd.com/read/29316512/the-stigma-associated-with-bereavement-by-suicide-and-other-sudden-deaths-a-qualitative-interview-study
#19
Alexandra L Pitman, Fiona Stevenson, David P J Osborn, Michael B King
Quantitative studies have found that suicide bereavement is associated with suicide attempt, and is perceived as the most stigmatising of sudden losses. Their findings also suggest that perceived stigma may explain the excess suicidality. There is a need to understand the nature of this stigma and address suicide risk in this group. We aimed to describe and compare the nature of the experiences of stigma reported by people bereaved by suicide, sudden unnatural death, and sudden natural death, and identify any commonalities and unique experiences...
January 2, 2018: Social Science & Medicine
https://www.readbyqxmd.com/read/29314437/prolonged-grief-disorder-and-depression-are-distinct-for-caregivers-across-their-first-bereavement-year
#20
Wei-I Tsai, Su-Ching Kuo, Fur-Hsing Wen, Holly G Prigerson, Siew Tzuh Tang
BACKGROUND: Prolonged grief disorder (PGD) and depression are recognized as distinct emotional-distress disorders for bereaved family caregivers. However, this distinction has been mostly validated in cross-sectional studies, neglecting the dynamic characteristics of bereaved caregivers' emotional distress. OBJECTIVE: To validate the distinction between symptoms of PGD and depression across the first bereavement year for family caregivers of terminally ill cancer patients...
January 4, 2018: Psycho-oncology
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