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End of life care

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https://www.readbyqxmd.com/read/29907553/development-and-evaluation-of-an-ethical-guideline-for-decisions-to-limit-life-prolonging-treatment-in-advanced-cancer-protocol-for-a-monocentric-mixed-method-interventional-study
#1
Katsiaryna Laryionava, Katja Mehlis, Elena Bierwirth, Friederike Mumm, Wolfgang Hiddemann, Pia Heußner, Eva C Winkler
BACKGROUND: Many patients with advanced cancer receive chemotherapy close to death and are referred too late to palliative or hospice care, and therefore die under therapy or in intensive care units. Oncologists still have difficulties in involving patients appropriately in decisions about limiting tumor-specific or life-prolonging treatment. OBJECTIVE: The aim of this Ethics Policy for Advanced Care Planning and Limiting Treatment Study is to develop an ethical guideline for end-of-life decisions and to evaluate the impact of this guideline on clinical practice regarding the following target goals: reduction of decisional conflicts, improvement of documentation transparency and traceability, reduction of distress of the caregiver team, and better knowledge and consideration of patients' preferences...
June 15, 2018: JMIR Research Protocols
https://www.readbyqxmd.com/read/29903540/the-role-of-the-nurse-at-the-end-of-the-life-of-a-critically-ill-patient
#2
M González-Rincón, P Díaz de Herrera-Marchal, M L Martínez-Martín
OBJECTIVE: Analyze the role of the nurse at the end of the life of a critically ill patient. METHOD: Bibliographic review from a search of the health science databases such as PubMed, CINAHL, Cuiden, Scopus, Cochrane, as well as specialized platforms, general and thematic browsers. The limits were language (English or Spanish) and publication date (2005-2015). RESULTS: 180 articles met the inclusion criteria, and 16 of them were selected for analysis...
June 11, 2018: Enfermería Intensiva
https://www.readbyqxmd.com/read/29902554/resource-use-during-the-last-6-months-of-life-among-copd-patients-a-population-level-study
#3
Kristof Faes, Joachim Cohen, Lieven Annemans
CONTEXT: Chronic obstructive pulmonary disease (COPD) patients often have several comorbidities, such as cardiovascular diseases (CVD) or lung cancer (LC), which might influence resource use in the final months of life. However, no previous studies documented resource use in end-of-life COPD patients at a population level, thereby differentiating whether COPD patients die of their COPD, CVD or LC. AIM: To describe end-of-life resource use in people diagnosed with COPD and compare this resource use between those dying of COPD, CVD and LC...
June 11, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29901589/quality-of-life-and-care-burden-in-primary-caregivers-of-liver-transplantation-recipients-in-china
#4
Linbo Wei, Juan Li, Yanpei Cao, Jianming Xu, Wei Qin, Huijuan Lu
So far, liver transplantation (LT) has become the most effective way to treat end-stage liver-related diseases. As we all know, a stable caregiver is crucial to LT recovery. However, compared with LT patients, few studies were focused on LT caregivers.This study aimed to describe the quality of life (QoL), care burden, and their related factors in caregivers of LT patients in Shanghai, China.We collected 225 liver transplanted patients and their corresponding caregivers' social demographic and medical information; meanwhile, we assessed 225 LT recipients' caregivers' life quality; by using Caregiver Quality of Life Index-Liver Transplantation in Chinese version (CQOLC-LT), Zarit caregiver burden inventory in Chinese version (ZBI) was used to access the care burden...
June 2018: Medicine (Baltimore)
https://www.readbyqxmd.com/read/29900906/knowledge-and-awareness-of-dental-implants-as-a-treatment-choice-in-adult-population-in-south-india-a-hospital-based-study
#5
Anoop Mayya, Joana D'Souza, Ann Mary George, Kamalakanth Shenoy, Praveen Jodalli, Shreemathi S Mayya
Context: Implant-supported prosthesis improves the self-confidence and quality of life of the patient by giving them masticatory comfort and a high level of satisfaction. For any professional community, it is essential to know whether patients feel well informed and whether what they know reflects on the current advances in dental health care. The aim of this study was to assess the knowledge and awareness of dental implants as a treatment choice in patients visiting a dental college situated in Mangalore, Karnataka, India...
May 2018: Indian Journal of Dental Research: Official Publication of Indian Society for Dental Research
https://www.readbyqxmd.com/read/29900665/end-of-life-care-of-oncology-inpatients-are-we-getting-it-right
#6
Monique Batten, Bella Nguyen, Brandon Burke, Hilman Harryanto, Imogen Mitchell, Alison Davis
AIM: To examine the current patterns of end-of-life care of medical oncology patients dying in an Australian tertiary acute hospital setting in order to determine potential areas for improvement. METHODS: A retrospective observational study was undertaken of 295 consecutive adult medical oncology inpatients dying between 2010 and 2015. Charts were reviewed for evidence of (1) resuscitation plans, (2) acute interventions in the 48-h period prior to death, (3) palliative care involvement and (4) recognition of the dying patient and comfort care plans...
June 13, 2018: Asia-Pacific Journal of Clinical Oncology
https://www.readbyqxmd.com/read/29898848/oral-anti-xa-anticoagulation-after-trans-aortic-valve-implantation-for-aortic-stenosis-the-randomized-atlantis-trial
#7
Jean-Philippe Collet, Sergio Berti, Angel Cequier, Eric Van Belle, Thierry Lefevre, Pascal Leprince, Franz-Josef Neumann, Eric Vicaut, Gilles Montalescot
BACKGROUND: Antithrombotic treatment regimen following transcatheter aortic valve replacement (TAVR) is not evidence-based. Apixaban, a non-vitamin K direct anticoagulant (NOAC) was shown to be superior to VKA and superior to aspirin to prevent cardioembolic stroke in non-valvular atrial fibrillation. It may have the potential to reduce TAVR-related thrombotic complications including subclinical valve thrombosis along with a better safety than the standard of care. DESIGN: ATLANTIS is a multicenter, randomized, phase IIIb, prospective, open-label, superiority study comparing standard of care (SOC Group) versus an apixaban-based strategy (Anti-Xa Group) after successful TAVR (ClinicalTrials...
June 2018: American Heart Journal
https://www.readbyqxmd.com/read/29898635/effect-of-the-contents-in-advance-directives-on-individuals-decision-making
#8
Jae Yoon Park, Chi-Yeon Lim, Gloria Puurveen, Do Yeun Kim, Jae Hang Lee, Han Ho Do, Kyung Soo Kim, Kyung Don Yoo, Hyo Jin Kim, Yunmi Kim, Sung Joon Shin
Completing an advance directive offers individuals the opportunity to make informed choices about end-of-life care. However, these decisions could be influenced in different ways depending on how the information is presented. We randomly presented 185 participants with four distinct types of advance directive: neutrally framed (as reference), negatively framed, religiously framed, and a combination. Participants were asked which interventions they would like to receive at the end of life. Between 60% and 70% of participants responded "accept the special interventions" on the reference form...
January 1, 2018: Omega
https://www.readbyqxmd.com/read/29897848/substitute-decision-making-in-end-of-life-care
#9
Lisa Caulley, Muriel R Gillick, Lisa S Lehmann
New England Journal of Medicine, Volume 378, Issue 24, Page 2339-2341, June 2018.
June 14, 2018: New England Journal of Medicine
https://www.readbyqxmd.com/read/29897838/psychological-distress-and-compassion-fatigue-among-hospice-nurses-the-mediating-role-of-self-esteem-and-negative-affect
#10
Michael D Barnett, Itzel A Ruiz
BACKGROUND: Compassion fatigue among health care professionals has negative effects on patient care. Providing end-of-life care, hospice nurses may be particularly at risk for compassion fatigue. OBJECTIVE: The purpose of this study was to investigate self-esteem and affect as mediators between psychological distress and compassion fatigue among hospice nurses (N = 90). DESIGN AND MEASUREMENTS: Hospice nurses working in a health care setting were recruited to complete a survey...
June 13, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29895515/an-ehealth-program-for-patients-undergoing-a-total-hip-arthroplasty-protocol-for-a-randomized-controlled-trial
#11
Rosemary Saunders, Karla Seaman, Catherine Ashford, Trudy Sullivan, Judith McDowall, Lisa Whitehead, Beverley Ewens, Kathryn Pedler, Karen Gullick
BACKGROUND: Total hip arthroplasty is an effective surgical procedure commonly used worldwide for patients suffering the disabling effects of osteoarthritis when medical therapy is unsuccessful. Traditionally pre- and postoperative information for patients undergoing a hip arthroplasty has been provided by paper-based methods. Electronic health (eHealth) programs to support individualized patient education on preoperative preparation, in-patient care, and home rehabilitation have the potential to increase patient engagement, enhance patient recovery, and reduce potential postoperative complications...
June 12, 2018: JMIR Research Protocols
https://www.readbyqxmd.com/read/29895297/improving-pathways-to-primary-health-care-among-lgbtq-populations-and-health-care-providers-key-findings-from-nova-scotia-canada
#12
Jacqueline Gahagan, Montse Subirana-Malaret
BACKGROUND: This study explores the perceived barriers to primary health care as identified among a sample of Lesbian, Gay, Bisexual, Transgender, and Queer (LGBTQ) identified individuals and health care providers in Nova Scotia, Canada. These findings, based on a province-wide anonymous online survey, suggest that additional efforts are needed to improve pathways to primary health among LGBTQ populations and in deepening our understanding of how to advance the unique primary health needs of these populations...
June 13, 2018: International Journal for Equity in Health
https://www.readbyqxmd.com/read/29895229/advance-care-planning-for-frail-older-people-in-china-a-discussion-paper
#13
Ren-Li Deng, Jia-Zhong Duan, Jiang-Hui Zhang, Jia-Rui Miao, Liu-Liu Chen, Diana T F Lee
As the aging population, including frail older people, continues to grow in Mainland China, quality of life and end-of-life care for frail older people has attracted much attention. Advance care planning is an effective way to improve end-of-life care for people with advanced diseases, and it is widely used in developed countries; however, it is a new concept in Mainland China. The effects of advance care planning and its acceptability in Mainland China are uncertain because of its culture-sensitive characteristics...
January 1, 2018: Nursing Ethics
https://www.readbyqxmd.com/read/29893618/race-ethnicity-socioeconomic-status-and-healthcare-intensity-at-the-end-of-life
#14
Crystal E Brown, Ruth A Engelberg, Rashmi Sharma, Lois Downey, James A Fausto, James Sibley, William Lober, Nita Khandelwal, Elizabeth T Loggers, J Randall Curtis
BACKGROUND: Although racial/ethnic minorities receive more intense, nonbeneficial healthcare at the end of life, the role of race/ethnicity independent of other social determinants of health is not well understood. OBJECTIVES: Examine the association between race/ethnicity, other key social determinants of health, and healthcare intensity in the last 30 days of life for those with chronic, life-limiting illness. SUBJECTS: We identified 22,068 decedents with chronic illness cared for at a single healthcare system in Washington State who died between 2010 and 2015 and linked electronic health records to death certificate data...
June 12, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29890974/using-co-design-to-develop-an-intervention-to-improve-communication-about-the-heart-failure-trajectory-and-end-of-life-care
#15
Lisa Hjelmfors, Anna Strömberg, Maria Friedrichsen, Anna Sandgren, Jan Mårtensson, Tiny Jaarsma
BACKGROUND: The aim of this paper was to describe the development of an intervention that is developed to improve communication about the heart failure (HF) trajectory and end-of-life care. We also present data that provides a first insight in specific areas of feasibility of the intervention. METHODS: Co-design was used and patients, family members and health care professionals were constructive participants in the design process of the intervention. Feasibility of the intervention was tested in two areas; acceptability and limited efficacy...
June 11, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29890215/prior-trauma-exposure-and-serious-illness-at-end-of-life-a-national-study-of-children-in-the-us-foster-care-system-from-2005-to-2015
#16
Lisa C Lindley, Elspeth M Slayter
CONTEXT: Children in foster care suffer with serious illness at end of life. However, the relationship between prior trauma exposure and serious illness has received little empirical attention. OBJECTIVES: The objectives were to examine the prevalence and type of trauma exposure, and investigate the relationship between prior trauma and serious illness among foster children at end of life. METHODS: We used national longitudinal foster care data...
June 8, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29889591/rituximab-ivig-in-pemphigus-a-10-year-study-with-a-long-follow-up
#17
Issam Hamadah, Muzamil A Chisti, Mansoor Haider, Yousef Binamer, Saad Alajlan, Yousif Aleyouni, Abdullah Alfadley
BACKGROUND: Pemphigus is a chronic potentially life threatening autoimmune blistering disease affecting the skin and/or mucous membranes. Rituximab is being increasingly used and found efficacious in the treatment of pemphigus. OBJECTIVE: To present the Middle-Eastern experience with the use of rituximab in pemphigus. METHODS: A retrospective analysis of patient files was conducted which revealed twenty-three patients of pemphigus who were treated with rituximab(either alone or with IVIG) in the dermatology department of a tertiary care hospital from July-2004 to Dec-2014...
June 11, 2018: Journal of Dermatological Treatment
https://www.readbyqxmd.com/read/29889548/end-of-life-strategies-among-patients-with-advanced-chronic-obstructive-pulmonary-disease-copd
#18
Andrea S Gershon, Laura C Maclagan, Jin Luo, Teresa To, Tetyana Kendzerska, Matthew B Stanbrook, Jean Bourbeau, Jacob Etches, Shawn D Aaron
RATIONALE: The burden of advanced COPD is high globally; however, little is known about how often end of life strategies are used by this population. OBJECTIVES: To describe trends in the use of end of life care strategies by people with advanced COPD in Ontario, Canada. METHODS: A population-based repeated cross-sectional study examining end of life care strategies in individuals with advanced COPD was conducted. Annual proportions of individuals who received formal palliative care, long-term oxygen therapy or opioids from 2004 to 2014 were determined...
June 11, 2018: American Journal of Respiratory and Critical Care Medicine
https://www.readbyqxmd.com/read/29889184/my-patient-died-a-national-study-of-nursing-students-perceptions-after-experiencing-a-patient-death
#19
Barbara A Heise, Debra K Wing, Amy H R Hullinger
AIM: The purpose of this study was to examine, on a national level, nursing students' perceptions after experiencing a patient death. BACKGROUND: Death is a highly stressful experience for nursing students. Debriefing, which routinely occurs with a patient's demise in the simulation setting, typically does not happen in actual death situations. METHOD: A mixed-methods design using quantitative and qualitative questions as part of an anonymous survey was sent to the membership of the National Student Nurses' Association...
June 7, 2018: Nursing Education Perspectives
https://www.readbyqxmd.com/read/29889016/community-economic-distress-and-changes-in-medicare-patients-end-of-life-care-costs
#20
William B Weeks, Mariétou H L Ouayogodé, Bruno Ventelou, Todd Mackenzie, James N Weinstein
No abstract text is available yet for this article.
June 2018: Journal of Palliative Medicine
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