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Community based participatory research

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https://www.readbyqxmd.com/read/28231285/the-mother-s-autonomy-in-decision-making-madm-scale-patient-led-development-and-psychometric-testing-of-a-new-instrument-to-evaluate-experience-of-maternity-care
#1
Saraswathi Vedam, Kathrin Stoll, Kelsey Martin, Nicholas Rubashkin, Sarah Partridge, Dana Thordarson, Ganga Jolicoeur
OBJECTIVE: To develop and validate a new instrument that assesses women's autonomy and role in decision making during maternity care. DESIGN: Through a community-based participatory research process, service users designed, content validated, and administered a cross-sectional quantitative survey, including 31 items on the experience of decision-making. SETTING AND PARTICIPANTS: Pregnancy experiences (n = 2514) were reported by 1672 women who saw a single type of primary maternity care provider in British Columbia...
2017: PloS One
https://www.readbyqxmd.com/read/28226393/supporting-self-management-by-community-matrons-through-a-group-intervention-an-action-research-study
#2
Abigail M Barkham, Steven J Ersser
The aim of this study was to examine the feasibility and impact of a group intervention by Community Matrons to support those living with multiple long-terms conditions. Little evidence exists as to how the role of the Community Matron (CM) should be delivered to effectively enhance disease self-management and levels of self-efficacy for the service users. This qualitative participatory action research study explored the use of group work as a method of intervention by CMs. A purposive sample of 29 participants was recruited...
February 22, 2017: Health & Social Care in the Community
https://www.readbyqxmd.com/read/28224221/-reaching-elderly-migrants-where-they-live-experiences-from-the-swiss-vicino-project
#3
S Johner-Kobi, M Gehrig
BACKGROUND: Community involvement through formal and informal networks is an important resource of support for elderly people with or without a migrant background, particularly as they get older. In the research and development project "Vicino - reaching elderly migrants where they live" the factors for success and failure in the cooperation between public institutions (organizations which do not focus on a specific group of migrants but are accessible for everybody) and migrant organizations were identified by means of three participatory interventions...
February 21, 2017: Zeitschrift Für Gerontologie und Geriatrie
https://www.readbyqxmd.com/read/28220721/increasing-community-research-capacity-to-address-health-disparities
#4
Goldie Komaie, Christine C Ekenga, Vetta L Sanders Thompson, Melody S Goodman
The Community Research Fellows Training program is designed to enhance capacity for community-based participatory research; program participants completed a 15-week, Master of Public Health curriculum. We conducted qualitative, semistructured interviews with 81 participants from two cohorts to evaluate the learning environment and how the program improved participants' knowledge of public health research. Key areas that provided a conducive learning environment included the once-a-week schedule, faculty and participant diversity, and community-focused homework assignments...
February 2017: Journal of Empirical Research on Human Research Ethics: JERHRE
https://www.readbyqxmd.com/read/28219386/advancing-system-and-policy-changes-for-social-and-racial-justice-comparing-a-rural-and-urban-community-based-participatory-research-partnership-in-the-u-s
#5
Carlos Devia, Elizabeth A Baker, Shannon Sanchez-Youngman, Ellen Barnidge, Maxine Golub, Freda Motton, Michael Muhammad, Charmaine Ruddock, Belinda Vicuña, Nina Wallerstein
BACKGROUND: The paper examines the role of community-based participatory research (CBPR) within the context of social justice literature and practice. METHODS: Two CBPR case studies addressing health inequities related to Type 2 Diabetes and Cardiovascular disease were selected from a national cross-site study assessing effective academic-community research partnerships. One CBPR partnership works with African Americans in rural Pemiscot County, Missouri and the other CBPR partnership works with African American and Latinos in urban South Bronx, New York City...
February 21, 2017: International Journal for Equity in Health
https://www.readbyqxmd.com/read/28207679/using-community-based-participatory-research-and-human-centered-design-to-address-violence-related-health-disparities-among-latino-a-youth
#6
Maryam Kia-Keating, Diana E Santacrose, Sabrina R Liu, Jessica Adams
High rates of exposure to violence and other adversities among Latino/a youth contribute to health disparities. The current article addresses the ways in which community-based participatory research (CBPR) and human-centered design (HCD) can help engage communities in dialogue and action. We present a project exemplifying how community forums, with researchers, practitioners, and key stakeholders, including youths and parents, integrated HCD strategies with a CBPR approach. Given the potential for power inequities among these groups, CBPR + HCD acted as a catalyst for reciprocal dialogue and generated potential opportunity areas for health promotion and change...
April 2017: Family & Community Health
https://www.readbyqxmd.com/read/28191505/correlates-of-health-communication-preferences-in-a-multiethnic-population-of-pregnant-women-and-mothers-of-young-children
#7
Katrina Daoud, Audra Gollenberg, Kim Fendley
BACKGROUND: As posited in multiple health communication theories, it is vital to understand modern health communication preferences among communities in order to develop tailored interventions to reduce Infant Mortality (IM). Literature suggests that health communication inequalities play an important role in infant health knowledge gaps, thus contributing to the disparate IM rates. We sought to understand preferred methods of communication among expectant or mothers of young children of varying sociodemographics...
March 2016: J Health Educ Res Dev
https://www.readbyqxmd.com/read/28165418/participatory-democracy-community-organizing-and-the-community-assessment-of-freeway-exposure-and-health-cafeh-partnership
#8
Linda Sprague Martinez, Ellin Reisner, Maria Campbell, Doug Brugge
Background: Conflicting interests, power imbalance and relationships characterized by distrust are just a few of the many challenges community-academic research partnerships face. In addition, the time it takes to build relationships is often overlooked, which further complicates matters and can leave well-intentioned individuals re-creating oppressive conditions through inauthentic partnerships. This paper presents a novel approach of using meeting minutes to explore partnership dynamics. The Community Assessment of Freeway Exposure and Health (CAFEH) partnership is used as an illustrative case study to identify how community academic partnerships overcome the challenges associated with community-based participatory research (CBPR)...
February 4, 2017: International Journal of Environmental Research and Public Health
https://www.readbyqxmd.com/read/28156544/equity-in-patient-provider-communication-regarding-treatment-related-symptoms-and-health-related-quality-of-life-hrqol-among-breast-cancer-survivors
#9
Jennifer Schaal, Linda Robertson, Eugenia Eng, Jemeia G Kollie, Christina Yongue, Karen Foley, Beth Smith, Mellissa K Yee, Kristin Black, Katrina Ellis, Lucretia Hoffman, Alexandra Lightfoot, Claire Morse, Neda Padilla, Sam Cykert
: 127 Background: Compared with white breast cancer patients, black patients more often report inadequate symptom control and decrements in health-related quality of life (HRQOL). Racial differences in patient-provider communication (PPC) are well-documented and linked to worse health outcomes for minorities; however, less is known about inequities in symptom and HRQOL discussions among cancer patients and providers. As part of an NCI-funded systems change intervention to improve racial equity in treatment completion among Black and White cancer patients, we assessed racial differences in PPC regarding treatment-related symptoms, HRQOL issues (e...
October 9, 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28155322/an-assessment-of-implementation-of-communityoriented-primary-care-in-kenyan-family-medicine-postgraduate-medical-education-programmes
#10
Ian J Nelligan, Jacob Shabani, Stephanie Taché, Gulnaz Mohamoud, Megan Mahoney
BACKGROUND AND OBJECTIVES: Family medicine postgraduate programmes in Kenya are examining the benefits of Community-Oriented Primary Care (COPC) curriculum, as a method to train residents in population-based approaches to health care delivery. Whilst COPC is an established part of family medicine training in the United States, little is known about its application in Kenya. We sought to conduct a qualitative study to explore the development and implementation of COPC curriculum in the first two family medicine postgraduate programmes in Kenya...
December 2, 2016: African Journal of Primary Health Care & Family Medicine
https://www.readbyqxmd.com/read/28144833/implementation-and-dissemination-of-the-sikh-american-families-oral-health-promotion-program
#11
Mary E Northridge, Rucha Kavathe, Jennifer Zanowiak, Laura Wyatt, Hardayal Singh, Nadia Islam
The Sikh American Families Oral Health Promotion Program used a community-based participatory approach to develop, implement, evaluate, and disseminate a culturally tailored oral health/healthy living curriculum for the Sikh-South Asian community. Here, we examine the impact of community engagement throughout the process of program implementation in five Gurdwaras (places of worship) in New York and New Jersey and dissemination of the findings through targeted venues and the curriculum via e-Health resources...
January 31, 2017: Translational Behavioral Medicine
https://www.readbyqxmd.com/read/28135693/community-based-participatory-research-in-a-heavily-researched-inner-city-neighbourhood-perspectives-of-people-who-use-drugs-on-their-experiences-as-peer-researchers
#12
Will Damon, Cody Callon, Lee Wiebe, Will Small, Thomas Kerr, Ryan McNeil
Community-based participatory research (CBPR) has become an increasingly common approach to research involving people who use(d) drugs (PWUD), who are often employed as peer researchers on these projects. This paper seeks to understand the impact of CBPR on PWUD, particularly those living in heavily researched and stigmatized neighbourhoods where CBPR projects are often located. This study draws on 14 in-depth interviews with PWUD who had previous experience as both peer researchers and research participants in CBPR projects conducted between July 2010 and February 2011...
January 21, 2017: Social Science & Medicine
https://www.readbyqxmd.com/read/28125422/steps-toward-technology-design-to-beat-health-inequality-participatory-design-walks-in-a-neighbourhood-with-high-health-risks
#13
Pernille Bertelsen, Anne Marie Kanstrup, Jacob Madsen
This paper explores participatory design walks (PD walks) as a first step toward a participatory design of health information technology (HIT) aimed at tackling health inequality in a neighbourhood identified as a high-risk health area. Existing research shows that traditional methods for health promotion, such as campaigns and teaching, have little to no effect in high-risk health areas. Rather, initiatives must be locally anchored - integrated into the local culture, and based on social relationships and group activities...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28120286/adverse-perinatal-outcomes-and-postpartum-multi-systemic-dysregulation-adding-vitamin-d-deficiency-to-the-allostatic-load-index
#14
Eynav Elgavish Accortt, James Mirocha, Christine Dunkel Schetter, Calvin J Hobel
Background Allostatic load (AL) is an index of multi-system physiological "wear-and-tear," operationalizing emergent chronic disease risk and predicting morbidity and mortality. AL has been proposed as an organizing framework for studying pregnancy outcomes and additional AL biomarkers for the study of maternal health would be valuable. Objectives To test whether adverse perinatal outcomes are associated with postpartum AL and if including vitamin D deficiency (serum 25(OH)D < 20 ng/ml) as an additional marker of postpartum AL increases the association...
January 24, 2017: Maternal and Child Health Journal
https://www.readbyqxmd.com/read/28116587/preparing-for-disaster-a-cross-sectional-study-of-social-connection-and-gun-violence
#15
Carley Riley, Brita Roy, Nurit Harari, Anita Vashi, Pina Violano, Ann Greene, Georgina Lucas, Jerry Smart, Teresa Hines, Stacy Spell, Sharon Taylor, Barbara Tinney, Maurice Williams, Emily A Wang
Living in communities with persistent gun violence is associated with negative social, behavioral, and health outcomes, analogous to those of a natural disaster. Taking a disaster-preparedness approach may identify targets for community-based action to respond to on-going gun violence. We assessed the relevance of adapting a disaster-preparedness approach to gun violence and, specifically, the relationship between perceived collective efficacy, its subscales of social cohesion and informal social control, and exposure to gun violence...
January 23, 2017: Journal of Urban Health: Bulletin of the New York Academy of Medicine
https://www.readbyqxmd.com/read/28115818/the-development-of-health-for-hearts-united-a-longitudinal-church-based-intervention-to-reduce-cardiovascular-risk-in-mid-life-and-older-african-americans
#16
Penny A Ralston, Iris Young-Clark, Catherine Coccia
This article describes Health for Hearts United, a longitudinal church-based intervention to reduce cardiovascular disease (CVD) risk in mid-life and older African Americans. Using community-based participatory research (CBPR) approaches and undergirded by both the Socio-ecological Theory and the Transtheoretical Model of Behavior Change, the 18-month intervention was developed in six north Florida churches, randomly assigned as treatment or comparison. The intervention was framed around three conceptual components: awareness building (individual knowledge development); clinical learning (individual and small group educational sessions); and efficacy development (recognition and sustainability)...
January 19, 2017: Ethnicity & Disease
https://www.readbyqxmd.com/read/28101730/concepts-for-studying-urban-environmental-justice
#17
REVIEW
Jason Corburn
PURPOSE OF REVIEW: This paper offers research frameworks for understanding and acting to address urban environmental justice. Urban neighborhoods tend to concentrate and colocate vulnerable people and toxic environments. Cities are also where the poor and people of color tend to be disproportionately exposed to environmental hazards, such as air pollution, lead in paint and water, and polluting industries. RECENT FINDINGS: Researchers and government agencies are increasingly recognizing the need to document cumulative exposures that the urban poor and people of color experience in addition to environmental hazards...
January 18, 2017: Current Environmental Health Reports
https://www.readbyqxmd.com/read/28094587/applying-theories-to-better-understand-socio-political-challenges-in-implementing-evidence-based-work-disability-prevention-strategies
#18
Christian Ståhl, Katia Costa-Black, Patrick Loisel
PURPOSE: This article explores and applies theories for analyzing socio-political aspects of implementation of work disability prevention (WDP) strategies. METHOD: For the analysis, theories from political science are explained and discussed in relation to case examples from three jurisdictions (Sweden, Brazil and Québec). RESULTS: Implementation of WDP strategies may be studied through a conceptual framework that targets: (1) the institutional system in which policy-makers and other stakeholders reside; (2) the ambiguity and conflicts regarding what to do and how to do it; (3) the bounded rationality, path dependency and social systems of different stakeholders; and (4) coalitions formed by different stakeholders and power relations between them...
January 17, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28093056/using-peer-navigators-to-address-the-integrated-health-care-needs-of-homeless-african-americans-with-serious-mental-illness
#19
Patrick W Corrigan, Dana J Kraus, Susan A Pickett, Annie Schmidt, Ed Stellon, Erin Hantke, Juana Lorena Lara
OBJECTIVE: The study examined the impact of a peer navigator program (PNP) developed by a community-based participatory research team and used with a group of African Americans with serious mental illness who were homeless. METHODS: Sixty-seven research participants were randomly assigned to receive PNP or treatment as usual (control) for one year. Data on general health and mental health, recovery, and quality of life were collected at baseline and at four, eight, and 12 months...
January 17, 2017: Psychiatric Services: a Journal of the American Psychiatric Association
https://www.readbyqxmd.com/read/28074382/engaging-hmong-adults-in-genomic%C3%A2-and%C3%A2-pharmacogenomic-research-toward-reducing-health-disparities-in-genomic-knowledge-using-a-community-based-participatory-research-approach
#20
Kathleen A Culhane-Pera, Robert J Straka, MaiKia Moua, Youssef Roman, Pachia Vue, Kang Xiaaj, May Xia Lo, Mai Lor
Advancing precision medicine relies in part on examining populations that may exhibit unique genetic variants that impact clinical outcomes. Failure to include diverse populations in genomic-based research represents a health disparity. We implemented a community-based participatory research (CBPR) process with the Hmong community in Minnesota, who were refugees from Laos, in order to assess the feasibility of conducting genomic and pharmacogenomic-based research for genetic variants that are relevant to the Hmong community...
January 10, 2017: Journal of Community Genetics
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