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Community based participatory research

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https://www.readbyqxmd.com/read/29781784/-being-connected-the-experience-of-african-american-women-with-breast-cancer-a-community-based-participatory-research-project-part-i
#1
M Tish Knobf, Diane Erdos
The objective was to understand the breast cancer experience of African American (AA) women using a community-based participatory research framework. Qualitative data were collected from five focus groups with 29 participants in four urban cities. "Being Connected" was the major theme that explained the importance of people in their lives as they coped with the diagnosis, treatment, and life after therapy. Faith, talking, information, support, and living with changes were important factors in the process...
May 21, 2018: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/29781398/group-medical-visits-as-participatory-care-in-community-health-centers
#2
Ariana Thompson-Lastad
In this article, I examine group medical visits, a clinic-based intervention that aims to improve patient health by combining clinical care, health education and peer support. Research shows that health care inequalities are reproduced through the interplay of interpersonal, institutional, and structural factors. I examine changing social relations made possible by group visits, including peer support and an expanded role for patient knowledge. The qualitative data presented here are part of a mixed-methods study of how group medical visits and integrative medicine are combined and implemented for low-income people with chronic conditions...
June 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/29764175/caring-communities-as-collective-learning-process-findings-and-lessons-learned-from-a-participatory-research-project-in-austria
#3
Klaus Wegleitner, Patrick Schuchter
BACKGROUND: By now, the public health end-of-life care approach is well established and has induced diverse initiatives-subsumed under the concept of compassionate or caring communities-to engage the community in supporting vulnerable, dying people and their beloved ones. In the light of a participatory research project our paper examines the question: what are the deeper ideas behind caring communities and what constitutes a caring community? METHODS: A multi-level analysis based on (I) qualitative research with focus groups and interviews with community members within the project; (II) the reflection of the role of participatory research in caring community initiatives, and (III) the meta-analysis of an international expert workshop, which allowed to discuss our experiences and insights in the light of international caring community models and expertise...
April 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29764173/developing-palliative-care-programs-in-indigenous-communities-using-participatory-action-research-a-canadian-application-of-the-public-health-approach-to-palliative-care
#4
Mary Lou Kelley, Holly Prince, Shevaun Nadin, Kevin Brazil, Maxine Crow, Gaye Hanson, Luanne Maki, Lori Monture, Christopher J Mushquash, Valerie O'Brien, Jeroline Smith
BACKGROUND: The Indigenous people of Canada include First Nations, Inuit and Metis. This research focused on four diverse First Nations communities located in Ontario and Manitoba. First Nations communities have well-established culturally-based social processes for supporting their community members experiencing dying, loss, grief and bereavement. However, communities do not have formalized local palliative care (PC) programs and have limited access to medical services, especially pain and symptom management...
April 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29755057/processes-and-outcomes-of-a-community-based-participatory-research-driven-health-needs-assessment-a-tool-for-moving-health-disparity-reporting-to-evidence-based-action
#5
Tabia Henry Akintobi, Elise Lockamy, Lisa Goodin, Natalie D Hernandez, Tanesha Slocumb, Daniel Blumenthal, Ronald Braithwaite, Larry Leeks, Micah Rowland, Thomas Cotton, LaShawn Hoffman
BACKGROUND: The community-based participatory research (CBPR)-driven health needs assessment was a tool used to inform community-led, -implemented, and -sustained research and prevention strategies. METHODS: The Morehouse School of Medicine Prevention Research Center (MSM PRC) research and prevention initiatives are implemented in direct response to priorities identified through this process and tool. Led by a community-majority coalition board, the assessment coupled state and city secondary data with primary survey data collected by and from community residents...
2018: Progress in Community Health Partnerships: Research, Education, and Action
https://www.readbyqxmd.com/read/29755055/a-multigenerational-strategy-to-transform-health-education-into-community-action
#6
Roma Stovall Hanks, Hattie Myles, Sarah Wraight, Mary C Williams, Candis Patterson, Barbara M Hodnett, Alexandria Broadnax, Shannon Shelley-Tremblay, Errol Crook
BACKGROUND: The National Institute for Minority Health and Health Disparities funded Centers of Excellence to address health disparities through research, education and professional training, and community engagement. This article summarizes a decade of multigenerational educational programing embedded in the Community Engagement Core (CEC) of the National Institute for Minority Health and Health Disparities-funded Center for Healthy Communities-Center of Excellence at the University of South Alabama...
2018: Progress in Community Health Partnerships: Research, Education, and Action
https://www.readbyqxmd.com/read/29755053/state-licensing-regulations-on-screen-time-in-childcare-centers-an-impetus-for-participatory-action-research
#7
Amanda E Staiano, Andrew T Allen, Whitney Fowler, Jeanette Gustat, Maura M Kepper, Leslie Lewis, Corby K Martin, Jessica St Romain, E Kipling Webster
BACKGROUND: New licensing regulations require Louisiana early care and education centers (ECEs) to limit children's screen time and increase physical activity. A community- academic partnership involving academic, community, government, and ECE stakeholders launched two initiatives: (1) an evaluation of the implementation of licensing regulations at the local level and (2) a statewide effort to develop technical assistance for ECE directors. OBJECTIVES: To describe the methods and lessons learned and to establish recommendations based on this ongoing participatory action research...
2018: Progress in Community Health Partnerships: Research, Education, and Action
https://www.readbyqxmd.com/read/29755047/domestic-violence-and-pregnancy-a-cbpr-coalition-approach-to-identifying-needs-and-informing-policy
#8
Candace Forbes Bright, Braden Bagley, Ivie Pulliam, Amy Swetha Newton
BACKGROUND: Community engagement-the collaborative process of addressing issues that impact the well-being of a community-is a strategic effort to address community issues. The Gulf States Health Policy Center (GS-HPC) formed the Hattiesburg Area Health Coalition (HAHC) in November 2014 for the purpose of addressing policies impacting the health of Forrest and Lamar counties in Mississippi. OBJECTIVES: To chronicle the community-based participatory research (CBPR) process used by HAHC's identification of infant and maternal health as a policy area, domestic violence in pregnancy as a priority area within infant and maternal health, and a community action plan (CAP) regarding this priority area...
2018: Progress in Community Health Partnerships: Research, Education, and Action
https://www.readbyqxmd.com/read/29755043/domestic-violence-and-pregnancy-a-community-based-participatory-research-coalition-approach-to-identifying-needs-and-informing-policy
#9
Candace Forbes Bright, Braden Bagley, Ivie Pulliam, Amy Swetha Newton
No abstract text is available yet for this article.
2018: Progress in Community Health Partnerships: Research, Education, and Action
https://www.readbyqxmd.com/read/29751752/a-community-based-qualitative-study-on-the-experience-and-understandings-of-intimate-partner-violence-and-hiv-vulnerability-from-the-perspectives-of-female-sex-workers-and-male-intimate-partners-in-north-karnataka-state-india
#10
Andrea K Blanchard, Sapna G Nair, Sharon G Bruce, Satyanarayana Ramanaik, Raghavendra Thalinja, Srikanta Murthy, Prakash Javalkar, Priya Pillai, Martine Collumbien, Lori Heise, Shajy Isac, Parinita Bhattacharjee
BACKGROUND: Research has increasingly documented the important role that violence by clients and the police play in exacerbating HIV vulnerability for women in sex work. However few studies have examined violence in the intimate relationships of women in sex work, or drawn on community partnerships to explore the social dynamics involved. A community-based participatory research study was undertaken by community and academic partners leading intimate partner violence (IPV) and HIV prevention programs in Bagalkot district, Karnataka state, India...
May 11, 2018: BMC Women's Health
https://www.readbyqxmd.com/read/29742712/design-of-a-comparative-effectiveness-randomized-controlled-trial-testing-a-faith-based-diabetes-prevention-program-word-dpp-vs-a-pacific-culturally-adapted-diabetes-prevention-program-pili-dpp-for-marshallese-in-the-united-states
#11
Pearl Anna McElfish, Christopher R Long, Joseph Keawe'aimoku Kaholokula, Nia Aitaoto, Zoran Bursac, Lucy Capelle, Melisa Laelan, Williamina Ioanna Bing, Sheldon Riklon, Brett Rowland, Britni L Ayers, Ralph O Wilmoth, Krista N Langston, Mario Schootman, James P Selig, Karen Hye-Cheon Kim Yeary
BACKGROUND: Pacific Islander populations, including Marshallese, face a disproportionately high burden of health disparities relative to the general population. OBJECTIVES: A community-based participatory research (CBPR) approach was utilized to engage Marshallese participants in a comparative effectiveness trial testing 2 Diabetes Prevention Program (DPP) interventions designed to reduce participant's weight, lower HbA1c, encourage healthy eating, and increase physical activity...
May 2018: Medicine (Baltimore)
https://www.readbyqxmd.com/read/29742285/building-evaluation-partnerships-with-tribal-communities-for-home-visiting
#12
Catherine C Ayoub, Erin Geary, Rucha Londhe, Vanessa Hiratsuka, Erica Roberts
The goal of this current descriptive study was to examine the roles and relationships of evaluators with the tribal communities in which they work. First, we describe a participatory community research model with a strong capacity-building component as the standard for assessing successful working partnerships between evaluators, programs, tribes, and tribal organizations. This model serves as a yardstick against which we examine the success and challenges of program-evaluation partnerships. Second, we report on a survey of tribal Maternal, Infant, and Early Childhood Home Visiting program leaders and outline their impressions of successes and challenges related to program-evaluation partnerships...
May 9, 2018: Infant Mental Health Journal
https://www.readbyqxmd.com/read/29725191/sistas-inspiring-sistas-through-activity-and-support-sistas-study-design-and-demographics-of-participants
#13
Malcolm Bevel, Oluwole A Babatunde, Sue P Heiney, Heather M Brandt, Michael D Wirth, Thomas G Hurley, Samira Khan, Hiluv Johnson, Cassandra M Wineglass, Tatiana Y Warren, E Angela Murphy, Erica Sercy, Amanda S Thomas, James R Hébert, Swann Arp Adams
Introduction: Recruiting racial, ethnic, and other underserved minorities into conventional clinic-based and other trials is known to be challenging. The Sistas Inspiring Sistas Through Activity and Support (SISTAS) Program was a one-year randomized controlled trial (RCT) to promote physical activity and healthy eating among AA women in SC to reduce inflammatory biomarkers, which are linked to increased breast cancer (BrCa) risk and mortality. This study describes the development, recruitment, and implementation of the SISTAS clinical trial and provides baseline characteristics of the study participants...
2018: Ethnicity & Disease
https://www.readbyqxmd.com/read/29724108/wiisokotaatiwin-development-and-evaluation-of-a-community-based-palliative-care-program-in-naotkamegwanning-first-nation
#14
Shevaun Nadin, Maxine Crow, Holly Prince, Mary Lou Kelley
INTRODUCTION: Approximately 474 000 Indigenous people live in 617 First Nations communities across Canada; 125 of those communities are located in Ontario, primarily in rural and remote areas. Common rural health challenges, including for palliative care, involve quality and access. The need for culturally relevant palliative care programs in First Nations communities is urgent because the population is aging with a high burden of chronic and terminal disease. Because local palliative care is lacking, most First Nations people now leave their culture, family and community to receive care in distant hospitals or long-term care homes...
April 2018: Rural and Remote Health
https://www.readbyqxmd.com/read/29703237/optimizing-a-community-engaged-multi-level-group-intervention-to-reduce-substance-use-an-application-of-the-multiphase-optimization-strategy
#15
Liliane Cambraia Windsor, Ellen Benoit, Douglas Smith, Rogério M Pinto, Kari C Kugler
BACKGROUND: Rates of alcohol and illicit drug use (AIDU) are consistently similar across racial groups (Windsor and Negi, J Addict Dis 28:258-68, 2009; Keyes et al. Soc Sci Med 124:132-41, 2015). Yet AIDU has significantly higher consequences for residents in distressed communities with concentrations of African Americans (DCAA - i.e., localities with high rates of poverty and crime) who also have considerably less access to effective treatment of substance use disorders (SUD). This project is optimizing Community Wise, an innovative multi-level behavioral-health intervention created in partnership with service providers and residents of distressed communities with histories of SUD and incarceration, to reduce health inequalities related to AIDU...
April 27, 2018: Trials
https://www.readbyqxmd.com/read/29703114/addressing-palliative-and-end-of-life-care-needs-with-native-american-elders
#16
Mary J Isaacson
BACKGROUND: Life-limiting illness plagues Native Americans, yet access to palliative and end-of-life care, including hospice care, is severely limited. AIM: This study aimed to explore palliative and hospice care with Native American elders and tribal health educators on a Northern Plains reservation in the US. METHODS: Using a community-based participatory approach, participants discussed the cultural acceptability of palliative and hospice care in their tribal community...
April 2, 2018: International Journal of Palliative Nursing
https://www.readbyqxmd.com/read/29699418/role-of-early-palliative-care-interventions-in-hematological-malignancies-and-bone-marrow-transplant-patients-barriers-and-potential-solutions
#17
Marco Ruiz, Patrick Reynolds, Regina Marranzini, Alina Khan, Jessica Ketterer, Amanda Brahim
INTRODUCTION: Despite advances in palliative care management of physical, psychological, and emotional symptoms along the spectrum of chronic conditions, early palliative care interventions are not used frequently and comprehensively in bone marrow transplant units. METHODS: The literature review of PubMed articles in English published until December 2017. RESULTS: Patients with hematologic malignancies and bone marrow transplant interventions are a heterogeneous group...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29696155/conducting-a-randomized-trial-in-rural-and-urban-safety-net-health-centers-added-value-of-community-based-participatory-research
#18
Meera Muthukrishnan, Siobhan Sutcliffe, Jean M Hunleth, Jean S Wang, Graham A Colditz, Aimee S James
Background: Colorectal cancer (CRC) is the second most common cancer in the US. Despite evidence that screening reduces CRC incidence and mortality, screening rates are sub-optimal with disparities by race/ethnicity, income, and geography. Rural-urban differences in CRC screening are understudied even though approximately one-fifth of the US population lives in rural areas. This focus on urban populations limits the generalizability and dissemination potential of screening interventions...
June 2018: Contemporary Clinical Trials Communications
https://www.readbyqxmd.com/read/29690570/mapping-the-hidden-hazards-community-led-spatial-data-collection-of-street-level-environmental-stressors-in-a-degraded-urban-watershed
#19
Na'Taki Osborne Jelks, Timothy L Hawthorne, Dajun Dai, Christina H Fuller, Christine Stauber
We utilized a participatory mapping approach to collect point locations, photographs, and descriptive data about select built environment stressors identified and prioritized by community residents living in the Proctor Creek Watershed, a degraded, urban watershed in Northwest Atlanta, Georgia. Residents (watershed researchers) used an indicator identification framework to select three watershed stressors that influence urban livability: standing water, illegal dumping on land and in surface water, and faulty stormwater infrastructure...
April 22, 2018: International Journal of Environmental Research and Public Health
https://www.readbyqxmd.com/read/29688855/critical-considerations-for-the-practical-utility-of-health-equity-tools-a-concept-mapping-study
#20
Bernadette Pauly, Wanda Martin, Kathleen Perkin, Thea van Roode, Albert Kwan, Tobie Patterson, Samantha Tong, Cheryl Prescott, Bruce Wallace, Trevor Hancock, Marjorie MacDonald
BACKGROUND: Promoting health equity within health systems is a priority and challenge worldwide. Health equity tools have been identified as one strategy for integrating health equity considerations into health systems. Although there has been a proliferation of health equity tools, there has been limited attention to evaluating these tools for their practicality and thus their likelihood for uptake. METHODS: Within the context of a large program of research, the Equity Lens in Public Health (ELPH), we conducted a concept mapping study to identify key elements and themes related to public health leaders and practitioners' views about what makes a health equity tool practical and useful...
April 23, 2018: International Journal for Equity in Health
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