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https://www.readbyqxmd.com/read/28937333/provider-prioritized-domains-of-quality-in-pediatric-home-based-hospice-and-palliative-care-a-study-of-the-ohio-pediatric-palliative-care-and-end-of-life-network
#1
Rachel Thienprayoon, Melissa San Julian Mark, Daniel Grossoehme
BACKGROUND: Children receiving hospice and palliative care (HPC) differ from adults in important ways. Children are more likely to have rare diagnoses, less likely to have cancer, have longer lengths of stay on hospice, and are more likely to be technology dependent than adults. The National Consensus Project (NCP) in Palliative Care established domains of quality for HPC, but these domains have not been evaluated for applicability in children. OBJECTIVES: This study aims to establish consensus stakeholder-prioritized domains of high-quality pediatric home-based hospice and palliative care (HBHPC)...
September 22, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28929901/the-dementia-friendly-emergency-department-an-innovation-to-reducing-incompatibilities-at-the-local-level
#2
Belinda Parke, Kathleen F Hunter
Emergency Departments (EDs) are an integral part of the Canadian healthcare system. Older people living with dementia challenge EDs. They have complex health profiles that pose multiple challenges for staff. The current one-size-fits-all approach that aids efficiency in a technologically dependent hospital setting may not always serve older people living with dementia, their caregivers, or staff well. The premise that older people living with dementia are a problem for Canadian EDs must be reconsidered. Understanding the complexity of the situation is aided by the dementia-friendly ED framework...
January 2017: Healthcare Management Forum
https://www.readbyqxmd.com/read/28924979/quantification-of-etoposide-hypersensitivity-a-sensitive-functional-method-for-assessing-pluripotent-stem-cell-quality
#3
Frank J Secreto, Xing Li, Alyson J Smith, Elizabeth S Bruinsma, Ester Perales-Clemente, Saji Oommen, Gresin Hawse, Sybil C L Hrstka, Bonnie K Arendt, Emma B Brandt, Dennis A Wigle, Timothy J Nelson
Human induced pluripotent stem cells (hiPSC) hold great promise in diagnostic and therapeutic applications. However, translation of hiPSC technology depends upon a means of assessing hiPSC quality that is quantitative, high-throughput, and can decipher malignant teratocarcinoma clones from normal cell lines. These attributes are lacking in current approaches such as detection of cell surface makers, RNA profiling, and/or teratoma formation assays. The latter remains the gold standard for assessing clone quality in hiPSCs, but is expensive, time-consuming, and incompatible with high-throughput platforms...
September 19, 2017: Stem Cells Translational Medicine
https://www.readbyqxmd.com/read/28888492/physio-psychological-burdens-and-social-restrictions-on-parents-of-children-with-technology-dependency-are-associated-with-care-coordination-by-nurses
#4
Seigo Suzuki, Iori Sato, Shun Emoto, Kiyoko Kamibeppu
PURPOSE: To determine the association between parental care burdens and care coordination provided by nurses for children with technology dependency, specifically regarding physio-psychological burdens and social restrictions. DESIGN AND METHODS: A cross-sectional study was conducted between October and November 2015. Participants were recruited via home-visit nursing stations, social worker offices, and special-needs schools. A total of 246 parents of children with technology dependency completed anonymous self-report questionnaires...
September 2017: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/28870494/health-related-quality-of-life-outcomes-of-a-telehealth-care-coordination-intervention-for-children-with-medical-complexity-a-randomized-controlled-trial
#5
Wendy S Looman, Robyn L Hullsiek, Lyndsay Pryor, Michelle A Mathiason, Stanley M Finkelstein
The purpose of this study was to explore health-related quality of life (HRQL) and family impact in the context of an advanced practice registered nurse-delivered telehealth care coordination intervention for children with medical complexity (CMC). This was a secondary outcomes analysis of a randomized controlled trial with 163 families of CMC in an existing medical home. HRQL and family impact were measured using the PedsQL measurement model. Bivariate and analysis of covariance analyses were conducted to explore associations at baseline and the intervention effect over 2 years...
September 1, 2017: Journal of Pediatric Health Care
https://www.readbyqxmd.com/read/28833740/valuing-metal-organic-frameworks-for-postcombustion-carbon-capture-a-benchmark-study-for-evaluating-physical-adsorbents
#6
Karim Adil, Prashant M Bhatt, Youssef Belmabkhout, Sk Md Towsif Abtab, Hao Jiang, Ayalew H Assen, Arijit Mallick, Amandine Cadiau, Jamal Aqil, Mohamed Eddaoudi
The development of practical solutions for the energy-efficient capture of carbon dioxide is of prime importance and continues to attract intensive research interest. Conceivably, the implementation of adsorption-based processes using different cycling modes, e.g., pressure-swing adsorption or temperature-swing adsorption, offers great prospects to address this challenge. Practically, the successful deployment of practical adsorption-based technologies depends on the development of made-to-order adsorbents expressing mutually two compulsory requisites: i) high selectivity/affinity for CO2 and ii) excellent chemical stability in the presence of impurities...
August 22, 2017: Advanced Materials
https://www.readbyqxmd.com/read/28797217/maternal-perspectives-of-well-siblings-adjustment-to-family-life-with-a-technology-dependent-child
#7
Valerie Boebel Toly, Julia E Blanchette, Shannon Sikorski, Carol M Musil, Arwa Al-Hamed
Technology-dependent (TD) children require complex care and are dependent on medical technology. Approximately 75% of families, in the United States, who are caring for a TD child, also care for a well child. Well siblings are likely to be affected by the experience of living with a TD sibling as the process of family normalization is described as a family affair. The experiences of well siblings are not well described. The purpose of this qualitative analysis was to describe the experiences of well siblings who are living in a family with a TD child...
August 2017: Journal of Family Nursing
https://www.readbyqxmd.com/read/28691071/nanoengineered-ultralight-and-robust-all-metal-cathode-for-high-capacity-stable-lithium-oxygen-batteries
#8
Ji-Jing Xu, Zhi-Wen Chang, Yan-Bin Yin, Xin-Bo Zhang
The successful development of Li-O2 battery technology depends on resolving the issue of cathode corrosion by the discharge product (Li2O2) and/or by the intermediates (LiO2) generated during cell cycling. As an important step toward this goal, we report for the first time the nanoporous Ni with a nanoengineered AuNi alloy surface directly attached to Ni foam as a new all-metal cathode system. Compared with other noncarbonaceous cathodes, the Li-O2 cell with an all-metal cathode is capable of operation with ultrahigh specific capacity (22,551 mAh g(-1) at a current density of 1...
June 28, 2017: ACS Central Science
https://www.readbyqxmd.com/read/28671037/the-experience-of-families-with-children-with-spinal-muscular-atrophy-type-i-across-health-care-systems
#9
Diane V Murrell, Timothy E Lotze, Harold J Farber, Claire A Crawford, Constance M Wiemann
Spinal muscular atrophy type I is a genetic disease characterized by degeneration of spinal cord motor neurons resulting in weakness, technology dependence and early demise. While the newly approved treatment nusinersen may alter the morbidity/mortality of this disease there continues to be complex treatment challenges to consider. The aim of this qualitative study was to understand from the parent's perspective, experiences of the family and child in the emergency center, hospital, and clinical care settings to identify gaps in care...
January 1, 2017: Journal of Child Neurology
https://www.readbyqxmd.com/read/28658513/the-role-of-hospice-in-the-transition-from-hospital-to-home-for-technology-dependent-children-a-qualitative-study
#10
Jayne Price, Sharon McCloskey, Kevin Brazil
AIM: This paper reports on parent and professional perspectives of step down care in assisting the transition from hospital to home, within one children's hospice in a constituent country of the United Kingdom. BACKGROUND: In recent years increasing numbers of children dependent on long term assisted ventilation have been noted. Meeting the complex physical, emotional and social needs of the child and family is challenging. Many of these children spend extended periods in hospital even when medically stable...
June 28, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/28632258/materials-and-microfluidics-enabling-the-efficient-isolation-and-analysis-of-circulating-tumour-cells
#11
REVIEW
Joshua M Jackson, Małgorzata A Witek, Joyce W Kamande, Steven A Soper
We present a critical review of microfluidic technologies and material effects on the analyses of circulating tumour cells (CTCs) selected from the peripheral blood of cancer patients. CTCs are a minimally invasive source of clinical information that can be used to prognose patient outcome, monitor minimal residual disease, assess tumour resistance to therapeutic agents, and potentially screen individuals for the early diagnosis of cancer. The performance of CTC isolation technologies depends on microfluidic architectures, the underlying principles of isolation, and the choice of materials...
July 17, 2017: Chemical Society Reviews
https://www.readbyqxmd.com/read/28557770/disaster-preparedness-in-neonatal-intensive-care-units
#12
Wanda D Barfield, Steven E Krug
Disasters disproportionally affect vulnerable, technology-dependent people, including preterm and critically ill newborn infants. It is important for health care providers to be aware of and prepared for the potential consequences of disasters for the NICU. Neonatal intensive care personnel can provide specialized expertise for their hospital, community, and regional emergency preparedness plans and can help develop institutional surge capacity for mass critical care, including equipment, medications, personnel, and facility resources...
May 2017: Pediatrics
https://www.readbyqxmd.com/read/28555550/-implementation-of-telemedicine-in-cape-verde-influencing-factors
#13
Artur Correia, Vanda Azevedo, Luís Velez Lapão
INTRODUCTION: Telemedicine is the provision of health services, where distance is a critical factor, using information and communication technologies. Cape Verde has bet on using this tool to increase access of the population of its islands to specialized care. MATERIAL AND METHODS: Qualitative study, covering the period between 2013 and 2014. It uses document analysis, semi-structured interviews and focus groups to collect data and analysis of content for their analysis...
April 28, 2017: Acta Médica Portuguesa
https://www.readbyqxmd.com/read/28530097/total-particle-number-emissions-from-modern-diesel-natural-gas-and-hybrid-heavy-duty-vehicles-during-on-road-operation
#14
Tianyang Wang, David C Quiros, Arvind Thiruvengadam, Saroj Pradhan, Shaohua Hu, Tao Huai, Eon S Lee, Yifang Zhu
Particle emissions from heavy-duty vehicles (HDVs) have significant environmental and public health impacts. This study measured total particle number emission factors (PNEFs) from six newly certified HDVs powered by diesel and compressed natural gas totaling over 6800 miles of on-road operation in California. Distance-, fuel- and work-based PNEFs were calculated for each vehicle. Distance-based PNEFs of vehicles equipped with original equipment manufacturer (OEM) diesel particulate filters (DPFs) in this study have decreased by 355-3200 times compared to a previous retrofit DPF dynamometer study...
June 2, 2017: Environmental Science & Technology
https://www.readbyqxmd.com/read/28514384/-innovative-endoscopic-technologies-in-multi-field-medical-facility
#15
O E Karpov, P S Vetshev, A S Maady, K I Alekseev, A S Osipov, I V Vasiliev
The modern clinical practice is characterized by intensive introduction of innovative technologies for improving treatment and diagnostic procedures, minimizing their impact on the patient, complications rate and economic reasons. One of the priorities in this area is both diagnostic and therapeutic endoscopy. The degree of practical use of innovative endoscopic technologies depends on not only the quality of care, but also their economic reasons. Endoscopic treatment has become the method of choice for gastrointestional bleeding, extraction of foreign bodies, obstructive jaundice, polyps of the gastrointestinal tract, achalasia, esophageal strictures, etc...
2017: Khirurgiia
https://www.readbyqxmd.com/read/28471754/ultrasonically-spray-coated-silver-layers-from-designed-precursor-inks-for-flexible-electronics
#16
W Marchal, G Vandevenne, J D'Haen, A Calmont de Andrade Almeida, M A Durand Sola, E J van den Ham, J Drijkoningen, K Elen, W Deferme, M K Van Bael, A Hardy
Integration of electronic circuit components onto flexible materials such as plastic foils, paper and textiles is a key challenge for the development of future smart applications. Therefore, conductive metal features need to be deposited on temperature sensitive substrates in a fast and straightforward way. The feasibility of these emerging (nano-) electronic technologies depends on the availability of well-designed deposition techniques and on novel functional metal inks. As ultrasonic spray coating (USSC) is one of the most promising techniques to meet the above requirements, innovative metal organic decomposition (MOD) inks are designed to deposit silver features on plastic foils...
May 26, 2017: Nanotechnology
https://www.readbyqxmd.com/read/28379726/recent-advances-in-diagnostic-colonoscopy-for-colorectal-cancer-screening-an-update-for-radiologists
#17
REVIEW
Cesare Hassan, Alessandro Repici
OBJECTIVE: Colonoscopy accuracy in detecting colorectal neoplasia is critical for colorectal cancer prevention but has been shown to be operator- and technology-dependent. This article will discuss several recent improvements in the technique and technology of colonoscopy. CONCLUSION: More rigorous training and retraining programs, active monitoring of endoscopist technique and outcomes, and exclusion of poorly performing endoscopists are urgently needed to improve the ultimate efficacy of colorectal cancer screening programs...
July 2017: AJR. American Journal of Roentgenology
https://www.readbyqxmd.com/read/28374307/medical-child-abuse-munchausen-syndrome-by-proxy-multidisciplinary-approach-from-a-pediatric-gastroenterology-perspective
#18
REVIEW
Andrea Z Ali-Panzarella, Tamika J Bryant, Hannah Marcovitch, Jeffery D Lewis
PURPOSE OF REVIEW: We highlight the need for a multidisciplinary approach to the diagnosis of medical child abuse, also known as factitious disorder imposed on another (FDIA) or Munchausen syndrome by proxy (MSP), and review our experience focusing on the variety of symptoms that often present to the pediatric gastroenterologist many months before the diagnosis is made. RECENT FINDINGS: Recent literature on medical child abuse, mostly case reports, is markedly limited, highlighting a need for increased research on this topic...
April 2017: Current Gastroenterology Reports
https://www.readbyqxmd.com/read/28342626/understanding-the-health-care-utilization-of-children-who-require-medical-technology-a-descriptive-study-of-children-who-require-tracheostomies
#19
Regena Spratling
Children who require medical technology have complex chronic illnesses. This medical technology, including ventilators, oximeters, tracheostomy tubes, and feeding tubes, allows children and their families to live at home; however, the management of the children's care by informal caregivers is complex with the need for intensive, specialized care. The purpose of this study was to examine the sociodemographic and clinical characteristics that affect health care utilization in a population of children who require medical technology...
April 2017: Applied Nursing Research: ANR
https://www.readbyqxmd.com/read/28341025/standardizing-care-and-parental-training-to-improve-training-duration-referral-frequency-and-length-of-stay-our-quality-improvement-project-experience
#20
Concettina Tina Tolomeo, Nili E Major, Mary V Szondy, Alia Bazzy-Asaad
OBJECTIVES: At our institution, there is a six bed Pediatric Respiratory Care Unit for technology dependent infants and children with a tracheostomy tube. A lack of consistency in patient care and parent/guardian education prompted our group to critically evaluate the services we provided by revisiting our teaching protocol and instituting a new model of care in the Unit. The aims of this quality improvement (QI) project were to standardize care and skills proficiency training to parents of infants with a tracheostomy tube in preparation for discharge to home...
January 2017: Journal of Pediatric Nursing
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