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Holli B Bagwell, Rebecca Liggin, Tonya Thompson, Kristin Lyle, Allison Anthony, Matthew Baltz, Maria Melguizo-Castro, Todd Nick, Dennis Z Kuo
Children with special health care needs (CSHCN) may present unique challenges for disaster preparedness. This study's objective was to determine the impact of a disaster supply starter kit intervention on preparedness for families of CSHCN. The study was a 1-group pre-post cohort design with consecutive enrollment at the Arkansas Children's Hospital Medical Home Clinic. Pre- and postintervention survey findings were compared using McNemar's test. Of the 249 enrolled, 223 completed the postsurvey. At presurvey, 43% had an Emergency Information Form, compared with 79% at postsurvey (P < ...
October 2016: Clinical Pediatrics
Neeraj Solanki, Anuj Kumar, Neha Awasthi, Anjali Kundu, Suveet Mathur, Suresh Bidhumadhav
INTRODUCTION: Dental problems serve as additional burden on the children with special health care needs (CSHCN) because of additional hospitalization pressure, they face for the treatment of various serious medical problems. These patients have higher incidence of dental caries due to increased quantity of sugar involved in the drug therapies and lower salivary flow in the oral cavity. Such patients are difficult to treat with local anesthesia or inhaled sedatives. Single-sitting dental treatment is possible in these patients with general anesthesia...
2016: Journal of Contemporary Dental Practice
R Constance Wiener, Rini Vohra, Usha Sambamoorthi, S Suresh Madhavan
Objective The purpose of this study is to examine the burdens of caregivers on perception of the need and receipt of preventive dental care for a subset of children with special health care needs-children with Autism Spectrum disorder, developmental disability and/or mental health conditions (CASD/DD/MHC). Methods The authors used the 2009-2010 National Survey of CSHCN. The survey included questions addressing preventive dental care and caregivers' financial, employment, and time-related burdens. The associations of these burdens on perceptions and receipt of preventive dental care use were analyzed with bivariate Chi square analyses and multinomial logistic regressions for CASD/DD/MHC (N = 16,323)...
July 27, 2016: Maternal and Child Health Journal
Nancy C Cheak-Zamora, Matthew Thullen
BACKGROUND: The Maternal Child Health Bureau identified six indicators of quality and accessibility essential in achieving coordinated, family-centered, community-based care for children with special healthcare needs (CSHCN). Previous research examined associations between children with single conditions and individual indicators. We sought to identify disparities in meeting quality and accessibility indicators for children with different condition types. METHODS: The 2009-2010 National Survey of CSHCN is a nationally representative cross-sectional study with caregiver's reports on 40,242 children (0-17 years)...
July 16, 2016: Maternal and Child Health Journal
Katrin Rothmaier, Katharina Bücher, Isabel Metz, Vinay Pitchika, Reinhard Hickel, Roswitha Heinrich-Weltzien, Jan Kühnisch
OBJECTIVES: Data on dental treatment of children with special healthcare needs (CSHCN) are sparse. Hence, this study provides information about the changes in the dental condition in a cohort of CSHCN treated in a university dental department in Germany. MATERIAL AND METHODS: Patient records of CSHCN treated from January 2004 to December 2012 were screened retrospectively for medical diagnoses (ICD-10) and the type of treatment performed with outpatient dental care (ODC) or general anesthesia (GA)...
July 8, 2016: Clinical Oral Investigations
Dawn M Magnusson, Kamila B Mistry
OBJECTIVE: To examine whether individual elements of family-centered care (FCC) mediate racial/ethnic disparities in parent-reported unmet therapy need. METHODS: We conducted a secondary data analysis using the 2009-2010 National Survey of Children With Special Health Care Needs. A total of 6478 black, Hispanic, and white children ages 0 to 5 years had complete data on parent-reported unmet need and FCC. Five measured indicators of FCC included whether the child's health care provider spent enough time with the child (time), listened carefully to the child's parents (listening), was sensitive to family culture and values (sensitivity), delivered information specific to the child's health (information), and helped parents feel like partners (partnership)...
June 29, 2016: Academic Pediatrics
Jane E Miller, Colleen N Nugent, Louise B Russell
INTRODUCTION: Family time caring for children with diabetes is an overlooked component of the overall burden of the condition. We document and analyze risk factors for time family members spend providing health care at home and arranging/coordinating health care for children with diabetes. METHODS: Data for 755 diabetic children and 16,161 non-diabetic children whose chronic conditions required only prescription (Rx) medication were from the 2009-2010 United States National Survey of Children with Special Health Care Needs (NS-CSHCN)...
September 2016: Diabetes Therapy: Research, Treatment and Education of Diabetes and related Disorders
Mary Hooshmand, Kristiana Yao
Telemedicine is an increasingly utilized mode of healthcare delivery, which improves access to care for vulnerable populations. Children with Special Healthcare Needs (CSHCN) and their families face significant challenges, such as geographic, financial, and sociocultural barriers, in accessing needed healthcare services. The literature supports telemedicine as an effective accepted bridge between CSHCN and their providers. A growing body of telemedicine projects also suggests cost-effectiveness when considering the direct and indirect costs the families of CSCHN incur in seeking healthcare services...
June 15, 2016: Telemedicine Journal and E-health: the Official Journal of the American Telemedicine Association
Ephrem A Aboneh, Michelle A Chui
BACKGROUND: Children with special health care needs (CSHCN) have multiple unmet health care needs including that of prescription medications. OBJECTIVES: The objectives of this study were twofold: 1) to quantify and compare unmet needs for prescription medications for subgroups of CSHCN without and with medical complexity (CMC)-those who have multiple, chronic, and complex medical conditions associated with severe functional limitations and high utilization of health care resources, and 2) to describe its association with receipt of effective care coordination services and level of medical complexity...
May 20, 2016: Research in Social & Administrative Pharmacy: RSAP
Mircea I Marcu, Caprice A Knapp, David Brown, Vanessa L Madden, Hua Wang
OBJECTIVES: The Children's Medical Services Network, a carved-out fee-for-service healthcare system for Florida's children with special healthcare needs (CSHCN), chose to develop an integrated care system (ICS) for its enrollees. The goals of this study were to analyze the effects of a managed care program on the Medicaid expenditures of CSHCN and to evaluate the performance of econometric models used to analyze healthcare expenditures. STUDY DESIGN: We used administrative data from 3947 CSHCN enrolled in Florida's Medicaid program between 2006 and 2008 for 2 treatment and 2 control counties...
April 2016: American Journal of Managed Care
Juan Carlos Flores Cano, Macarena Lizama Calvo, Natalie Rodríguez Zamora, María Eugenia Ávalos Anguita, Mónica Galanti De La Paz, Salesa Barja Yañez, Carlos Becerra Flores, Carolina Sanhueza Sepúlveda, Ana María Cabezas Tamayo, Jorge Orellana Welch, Gisela Zillmann Geerdts, Rosa María Antilef, Alfonso Cox Melane, Marcelo Valle Maluenda, Nelson Vargas Catalán
"Children with special health care needs" (CSHCN) is an emerging and heterogeneous group of paediatric patients, with a wide variety of medical conditions and with different uses of health care services. There is consensus on how to classify and assess these patients according to their needs, but not for their specific diagnosis. Needs are classified into 6 areas: a) specialised medical care; b) use or need of prescription medication; c) special nutrition; d) dependence on technology; e) rehabilitation therapy for functional limitation; and f) special education services...
May 2016: Revista Chilena de Pediatría
Stephanie Cruz, Donald L Chi, Colleen E Huebner
PURPOSE: To identify the types of oral health services offered by community-based organizations to young children with special health care needs (CSHCN) and the barriers and facilitators to the provision of these in a nonfluoridated community. METHODS: Thirteen key informant interviews with representatives from early intervention agencies, advocacy groups, and oral health programs who provide services to CSHCN in Spokane county, Washington. We used a content analysis to thematically identify oral health services as proactive or incidental and the barriers and facilitators to their provision...
September 2016: Special Care in Dentistry
Ruopeng An
OBJECTIVE: Children with special healthcare needs (CSHCN) are those who have or are at elevated risk for a chronic physical, developmental, behavioral or emotional condition and need healthcare services of a type or quantity beyond that required by children generally. Within CSHCN, a small group of children with medical complexity have medical vulnerability and intensive care needs that are not easily met by existing healthcare models. This study estimated the national prevalence of unmet mental healthcare needs among CSHCN with and without medical complexity...
March 2016: Journal of Psychosomatic Research
Michelle M Kelly
UNLABELLED: The specific aim of this study was to evaluate the health sequelae of preterm birth on children 8 to 11years of age as compared to same age children born at term; selected variables include special health care needs, chronic conditions, and caregiver perception of health. DESIGN/METHODS: A secondary data analysis was conducted to evaluate the health outcomes of children 8 to 11years of age who were born prematurely compared to a sample of children born at term...
July 2016: Journal of Pediatric Nursing
Angelia M Paschal, Jereme D Wilroy, Suzanne R Hawley
OBJECTIVE: The unmet need for dental care is one of the greatest public health problems facing U.S. children. This issue is particularly concerning for children with special health care needs (CSHCN), who experience higher prevalence of unmet dental care needs. The primary purpose of this study was to investigate regional differences in unmet dental care needs for CSHCN. Using the Social Ecological Model as a framework, additional variables were analyzed for regional differences. It was hypothesized that (H1) unmet dental care needs would be high in the CSHCN population, (H2) there would be regional differences in unmet dental care needs in CSHCN, and (H3) there would be differences in specific individual, interpersonal (family), community (state), and policy level factors by region...
June 2016: Preventive Medicine Reports
Neal A deJong, Christianna S Williams, Kathleen C Thomas
OBJECTIVES: (1) To describe parents' report of special needs for children with ADHD on the Children with Special Health Care Needs (CSHCN) Screener; and (2) to assess the association between responses to Screener items and annual mental health and total health expenditures per child. METHODS: In pooled 2002-2011 Medical Expenditure Panel Survey (MEPS) data, we identify children ages 4-17 years with ADHD. We use OLS and two-part regressions to model the relationship between CSHCN Screener items and mental health and total health expenditures...
April 2016: Maternal and Child Health Journal
Myra Rosen-Reynoso, Michelle V Porche, Ngai Kwan, Christina Bethell, Veronica Thomas, Julie Robertson, Eva Hawes, Susan Foley, Judith Palfrey
OBJECTIVES: Families, clinicians and policymakers desire improved delivery of health and related services for children with special health care needs (CSHCN). We analyzed factors associated with ease of use in obtaining such services. We also explored what were specific difficulties or delays in receiving services. By examining data from the National Survey of Children with Special Health Care Needs (NS-CSHCN 2009-2010) and using the revised criteria for "ease of use," we were able to assess the percentage of parents who reported that their experiences seeking services for their children met those criteria...
May 2016: Maternal and Child Health Journal
Dana M Petersen, Joseph Zickafoose, Mynti Hossain, Henry Ireys
OBJECTIVE: To examine child-serving physicians' perspectives on motivations for and support for practices in seeking patient-centered medical home (PCMH) recognition, changes in practice infrastructure, and care processes before and after recognition, and perceived benefits and challenges of functioning as a PCMH for the children they serve, especially children with special health care needs. METHODS: Semistructured interviews with 20 pediatricians and family physicians at practices that achieved National Committee for Quality Assurance level 3 PCMH recognition before 2011...
May 2016: Academic Pediatrics
Kristin Kan, Hwajung Choi, Matthew Davis
OBJECTIVE: Immigrant children in the United States historically experience lower-quality health care. Such disparities areconcerning for immigrant children with special health care needs (CSHCNs). Our study assesses the medical home presence for CSHCN by immigrant family type and evaluates which medical home components are associated with disparities. METHODS: We used the 2011 National Survey of Children's Health, comparing the prevalence and odds of a parent-reported medical home and 5 specific medical home components by immigrant family types using bivariate and multivariate logistic regression...
January 2016: Pediatrics
Omar El-Meligy, Manal Maashi, Abdullah Al-Mushayt, Abeer Al-Nowaiser, Sultan Al-Mubark
OBJECTIVES: Changes in oral health-related quality of life (OHRQoL) among 40 children with special health care needs (CSHCN) aged 5-14 years before and 12 months after full-mouth rehabilitation (FMR) under general anesthesia (GA) in two hospitals in Jeddah city were assessed. STUDY DESIGN: The questionnaire was delivered to the parents/caregivers at baseline (pre-operative) and at the 12-month post-operative follow-up visit. Medical and dental histories and clinical findings were correlated accordingly...
2016: Journal of Clinical Pediatric Dentistry
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