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https://www.readbyqxmd.com/read/29127621/how-well-is-the-medical-home-working-for-latino-and-black-children
#1
Alma D Guerrero, Xinkai Zhou, Paul J Chung
Objective To examine the benefits of having a medical home among Latino and Black school-aged children, both with and without special health care needs (CSHCN). Methods Data from the 2011-2012 National Survey of Children's Health (NSCH) were analyzed to examine the associations of preventive dental and medical care, unmet dental or medical care, or missed school days with having a medical home among Latino and Black children compared to White children. Multivariate logistic regression with survey weights was used to adjust for child, parent, home, and geographic characteristics and an interaction term to estimate differences in outcomes among Black or Latino children receiving care in a medical home compared to White children with a medical home...
November 10, 2017: Maternal and Child Health Journal
https://www.readbyqxmd.com/read/29102046/shared-decision-making-among-children-with-medical-complexity-results-from-a-population-based-survey
#2
Jody L Lin, Eyal Cohen, Lee M Sanders
OBJECTIVE: To compare the rates of shared decision making (SDM) reported by parents of children with medical complexity (CMC) with the rates of SDM reported by parents of noncomplex children with special health care needs (CSHCN). STUDY DESIGN: We examined the 2009-2010 National Survey of Children with Special Health Care Needs, a representative survey of 40 242 parents of CSHCN. CMC was defined as needing or using more medical care than usual, seeing 2 or more subspecialists, and positive response on at least 3 other items on the CSHCN screener...
October 25, 2017: Journal of Pediatrics
https://www.readbyqxmd.com/read/28983551/association-of-enrollment-in-an-aerodigestive-clinic-with-reduced-hospital-stay-for-children-with-special-health-care-needs
#3
Swathi Appachi, Anne Banas, Lisa Feinberg, Douglas Henry, Diane Kenny, Nathan Kraynack, Amy Rosneck, John Carl, Paul Krakovitz
Importance: Children with special health care needs (CSHCN) have disproportionate health care utilization. Previous studies have demonstrated that a primary medical home improves health care outcomes for this population. Objective: To elucidate if enrollment in a multidisciplinary aerodigestive clinic improves outcomes and reduces health care costs by decreasing admissions and inpatient days. Design, Setting, and Participants: A retrospective medical record review of 113 patients with aerodigestive disorders enrolled in a pediatric multidisciplinary clinic from June 2009 to December 2013 was performed...
November 1, 2017: JAMA Otolaryngology—Head & Neck Surgery
https://www.readbyqxmd.com/read/28915817/cultural-adaptation-of-a-pediatric-functional-assessment-for-rehabilitation-outcomes-research
#4
Kristen E Arestad, David MacPhee, Chun Y Lim, Mary A Khetani
BACKGROUND: Significant racial and ethnic health care disparities experienced by Hispanic children with special health care needs (CSHCN) create barriers to enacting culturally competent rehabilitation services. One way to minimize the impact of disparities in rehabilitation is to equip practitioners with culturally relevant functional assessments to accurately determine service needs. Current approaches to culturally adapting assessments have three major limitations: use of inconsistent translation processes; current processes assess for some, but not all, elements of cultural equivalence; and limited evidence to guide decision making about whether to undertake cultural adaptation with and without language translation...
September 15, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28800789/indicators-of-poorly-controlled-asthma-and-health-related-quality-of-life-among-school-age-children-in-the-united-states
#5
Patrick W Sullivan, Vahram Ghushchyan, Prakash Navaratnam, Howard S Friedman, Abhishek Kavati, Benjamin Ortiz, Bob Lanier
BACKGROUND: Poorly controlled asthma has far-reaching effects on school-age children and their parents, but little is known about the national impact on health-related quality of life (HRQoL). OBJECTIVE: To examine HRQoL associated with asthma and indicators of poorly controlled asthma in the United States. METHODS: This was a cross-sectional analysis of HRQoL among school-age children (age range, 6-17 years) with asthma in the nationally representative 2007-2013 Medical Expenditure Panel Survey (MEPS)...
November 11, 2017: Allergy and Asthma Proceedings:
https://www.readbyqxmd.com/read/28751137/impact-of-non-medical-out-of-pocket-expenses-on-families-of-children-with-cerebral-palsy-following-orthopaedic-surgery
#6
Judith A Vessey, Rachel L DiFazio, Tania D Strout, Brian D Snyder
PURPOSE: Limited research has been conducted on the non-medical out-of-pocket expenses (NOOPEs) incurred by families of children with chronic health conditions. The study objectives were to: 1) calculate the estimated NOOPEs incurred by families during hospitalization of their child, 2) identify predictors of high NOOPEs, and 3) assess the impact of the child's chronic health condition on the family's finances. DESIGN AND METHODS: Prospective observational study...
July 24, 2017: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/28723824/a-national-profile-of-attention-deficit-hyperactivity-disorder-diagnosis-and-treatment-among-us-children-aged-2-to-5-years
#7
Melissa L Danielson, Susanna N Visser, Mary Margaret Gleason, Georgina Peacock, Angelika H Claussen, Stephen J Blumberg
OBJECTIVE: Clinical guidelines provide recommendations for diagnosis and treatment of attention-deficit hyperactivity disorder (ADHD), with specific guidance on caring for children younger than 6 years. This exploratory study describes ADHD diagnosis and treatment patterns among young children in the United States using 2 nationally representative parent surveys. METHODS: The National Survey of Children's Health (2007-2008, 2011-2012) was used to produce weighted prevalence estimates of current ADHD and ADHD medication treatment among US children aged 2 to 5 years...
September 2017: Journal of Developmental and Behavioral Pediatrics: JDBP
https://www.readbyqxmd.com/read/28546453/familial-caregiver-and-physician-perceptions-of-the-family-physician-interactions-during-interfacility-transfers
#8
Jennifer L Rosenthal, Su-Ting T Li, Lenore Hernandez, Michelle Alvarez, Roberta S Rehm, Megumi J Okumura
BACKGROUND AND OBJECTIVES: Children with special health care needs (CSHCN) have frequent hospitalizations and high specialty care utilization. If they initially present to a medical facility not capable of providing their definitive care, these children often experience an interfacility transfer. This transition has potential to impose hardships on familial caregivers. The goal of this study was to explore family-physician interactions during interfacility transfers from the perspectives of referring and accepting physicians and familial caregivers, and then develop a conceptual model for effective patient- and family-centered interfacility transfers that leverages the family-physician interaction...
June 2017: Hospital Pediatrics
https://www.readbyqxmd.com/read/28523852/preparing-adolescents-with-heart-problems-for-transition-to-adult-care-2009-2010-national-survey-of-children-with-special-health-care-needs
#9
MULTICENTER STUDY
Karrie F Downing, Matthew E Oster, Sherry L Farr
OBJECTIVE: A substantial percentage of children with congenital heart disease (CHD) fail to transfer to adult care, resulting in increased risk of morbidity and mortality. Transition planning discussions with a provider may increase rates of transfer, yet little is known about frequency and content of these discussions. We assessed prevalence and predictors of transition-related discussions between providers and parents of children with special healthcare needs (CSHCN) and heart problems, including CHD...
July 2017: Congenital Heart Disease
https://www.readbyqxmd.com/read/28340082/disparities-in-health-care-quality-among-asian-children-with-special-health-care-needs
#10
Esther Son, Susan L Parish, Leah Igdalsky
There is a dearth of information on the quality of health care for Asian American children and particularly Asian children with special health care needs (CSHCN). The goal of this article was to determine whether there were disparities in quality of health care for Asian CSHCN, whose experiences have not been studied. Data were derived from the 2009-2010 National Survey of Children with Special Health Care Needs (ns = 355 non-Hispanic Asian children and 4,343 non-Hispanic white CSHCN). Bivariate and multivariate logistic regression analyses were conducted to examine the relationship between racial identity (that is, non-Hispanic white and non-Hispanic Asian) and quality of health care...
May 1, 2017: Health & Social Work
https://www.readbyqxmd.com/read/28276628/traumatic-dental-injuries-in-children-with-special-health-care-needs
#11
Ola B Al-Batayneh, Arwa I Owais, Majd O Al-Saydali, H Barry Waldman
BACKGROUND/AIM: Children with special healthcare needs (CSHCN) are at an increased risk for traumatic dental injuries (TDI) due to unique predisposing factors; moreover, their access to dental care is compromised. In Jordan, there is a need to study TDI among CSHCN to highlight their dental care needs. The aim of this study was to identify the prevalence, types, possible risk factors associated with TDI, and treatment-seeking behavior in CSHCN in Jordan. MATERIAL AND METHODS: Children (n=959) were examined in schools/centers for CSHCN, and compared to a healthy age- and gender-matched control group...
March 9, 2017: Dental Traumatology: Official Publication of International Association for Dental Traumatology
https://www.readbyqxmd.com/read/28246025/pediatricians-comfort-level-in-caring-for-children-with-special-health-care-needs
#12
Megumi J Okumura, Heather A Knauer, Kris E Calvin, John I Takayama
BACKGROUND: Few studies have investigated pediatrician attitudes about providing primary medical care for children with special health care needs. The objective of this study was to determine pediatrician perspectives on their comfort level in providing care and on where the medical home should be for children with chronic medical and developmental conditions. METHODS: Survey of pediatricians in California in 2014. Pediatricians were randomized to receive surveys featuring either a case of a child with a chronic medical (neurofibromatosis) or a developmental condition (autism)...
August 2017: Academic Pediatrics
https://www.readbyqxmd.com/read/28140832/assistive-technology-needs-functional-difficulties-and-services-utilization-and-coordination-of-children-with-developmental-disabilities-in-the-united-states
#13
Sue C Lin, Robert S Gold
Assistive technology (AT) enhances the ability of individuals with disabilities to be fully engaged in activities at home, at school, and within their communities-especially for children with developmental disabilities (DD) with physical, sensory, learning, and/or communication impairments. The prevalence of children with DD in the United States has risen from 12.84% in 1997 to 15.04% in 2008. Thus, it is important to monitor the status of their AT needs, functional difficulties, services utilization, and coordination...
January 31, 2017: Assistive Technology: the Official Journal of RESNA
https://www.readbyqxmd.com/read/28028202/family-provided-health-care-for-children-with-special-health-care-needs
#14
John A Romley, Aakash K Shah, Paul J Chung, Marc N Elliott, Katherine D Vestal, Mark A Schuster
BACKGROUND AND OBJECTIVES: Many children with special health care needs (CSHCN) receive health care at home from family members, but the extent of this care is poorly quantified. This study's goals were to create a profile of CSHCN who receive family-provided health care and to quantify the extent of such care. METHODS: We analyzed data from the 2009-2010 National Survey of Children with Special Health Care Needs, a nationally representative sample of 40 242 parents/guardians of CSHCN...
January 2017: Pediatrics
https://www.readbyqxmd.com/read/28007689/the-role-of-online-social-support-in-supporting-and-educating-parents-of-young-children-with-special-health-care-needs-in-the-united-states-a-scoping-review
#15
REVIEW
Beth A DeHoff, Lisa K Staten, Rylin Christine Rodgers, Scott C Denne
BACKGROUND: When parents of young children with special health care needs (CSHCN) receive their child's diagnosis, they encounter information they may not understand, emotions they may not know how to cope with, and questions about their child's immediate and long-term future that frequently lack answers. The challenge of health care providers is how to prepare parents for caring for their CSHCN, for coping with any resulting challenges, and for accessing the systems and services that can assist them...
December 22, 2016: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/27875781/long-term-pediatrician-outcomes-of-a-parent-led-curriculum-in-developmental-disabilities
#16
Bruce L Keisling, Elizabeth A Bishop, David A Kube, Jenness M Roth, Frederick B Palmer
Previous research has demonstrated high satisfaction and perceived relevance of Project DOCC (Delivery of Chronic Care), a parent led curriculum in developmental disabilities, across a sample of medical residents. AIMS: The influence of such a training program on the clinical practices and professional activities of these residents once they are established in their careers as physicians, however, has not been studied; this was the aim of the present study. METHODS: An anonymous follow-up survey was designed and disseminated to physicians who participated in Project DOCC during their one-month developmental disabilities rotation as part of their pediatrics or medicine/pediatric residency between 2002 and 2010...
January 2017: Research in Developmental Disabilities
https://www.readbyqxmd.com/read/27870721/differences-in-health-care-needs-health-care-utilization-and-health-care-outcomes-among-children-with-special-health-care-needs-in-ohio-a-comparative-analysis-between-medicaid-and-private-insurance
#17
Madhurima Sarkar, Elizabeth R Earley, Lindsey Asti, Deena J Chisolm
OBJECTIVE: This study explores comparative differentials in health care needs, health care utilization, and health status between Medicaid and private/employer-sponsored insurance (ESI) among a statewide population of children with special health care needs (CSHCN) in Ohio. METHODS: We used data from the 2012 Ohio Medicaid Assessment Survey to examine CSHCN's health care needs, utilization, status, and health outcomes by insurance type. Adjusted multivariable logistic regression models were used to explore associations between public and private health insurance, as well as the utilization and health outcome variables...
January 2017: Journal of Public Health Management and Practice: JPHMP
https://www.readbyqxmd.com/read/27630005/disaster-preparedness-in-families-with-children-with-special-health-care-needs
#18
Holli B Bagwell, Rebecca Liggin, Tonya Thompson, Kristin Lyle, Allison Anthony, Matthew Baltz, Maria Melguizo-Castro, Todd Nick, Dennis Z Kuo
Children with special health care needs (CSHCN) may present unique challenges for disaster preparedness. This study's objective was to determine the impact of a disaster supply starter kit intervention on preparedness for families of CSHCN. The study was a 1-group pre-post cohort design with consecutive enrollment at the Arkansas Children's Hospital Medical Home Clinic. Pre- and postintervention survey findings were compared using McNemar's test. Of the 249 enrolled, 223 completed the postsurvey. At presurvey, 43% had an Emergency Information Form, compared with 79% at postsurvey (P < ...
October 2016: Clinical Pediatrics
https://www.readbyqxmd.com/read/27484601/assessment-of-oral-status-in-pediatric-patients-with-special-health-care-needs-receiving-dental-rehabilitation-procedures-under-general-anesthesia-a-retrospective-analysis
#19
Neeraj Solanki, Anuj Kumar, Neha Awasthi, Anjali Kundu, Suveet Mathur, Suresh Bidhumadhav
INTRODUCTION: Dental problems serve as additional burden on the children with special health care needs (CSHCN) because of additional hospitalization pressure, they face for the treatment of various serious medical problems. These patients have higher incidence of dental caries due to increased quantity of sugar involved in the drug therapies and lower salivary flow in the oral cavity. Such patients are difficult to treat with local anesthesia or inhaled sedatives. Single-sitting dental treatment is possible in these patients with general anesthesia...
June 1, 2016: Journal of Contemporary Dental Practice
https://www.readbyqxmd.com/read/27465058/caregiver-burdens-and-preventive-dental-care-for-children-with-autism-spectrum-disorder-developmental-disability-and-or-mental-health-conditions-national-survey-of-cshcn-2009-2010
#20
R Constance Wiener, Rini Vohra, Usha Sambamoorthi, S Suresh Madhavan
Objective The purpose of this study is to examine the burdens of caregivers on perception of the need and receipt of preventive dental care for a subset of children with special health care needs-children with Autism Spectrum disorder, developmental disability and/or mental health conditions (CASD/DD/MHC). Methods The authors used the 2009-2010 National Survey of CSHCN. The survey included questions addressing preventive dental care and caregivers' financial, employment, and time-related burdens. The associations of these burdens on perceptions and receipt of preventive dental care use were analyzed with bivariate Chi square analyses and multinomial logistic regressions for CASD/DD/MHC (N = 16,323)...
December 2016: Maternal and Child Health Journal
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