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Bereavement

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https://www.readbyqxmd.com/read/29689746/bereaved-mothers-and-fathers-perceptions-of-a-legacy-intervention-for-parents-of-infants-in-the-nicu
#1
T F Akard, M Duffy, A Hord, A Randall, A Sanders, K Adelstein, U E Anani, M J Gilmer
BACKGROUND: Legacy-making, actions or behaviors aimed at being remembered, may be one strategy to enhance coping and improve grief outcomes for bereaved parents and siblings. While legacy interventions have been developed and tested in pediatric and adult populations, legacy activities specific to bereaved parents in the neonatal intensive care unit remain unexplored. This study explored bereaved parents' perceptions of a digital storytelling legacy-making intervention for parents after the death of an infant...
2018: Journal of Neonatal-perinatal Medicine
https://www.readbyqxmd.com/read/29689692/gender-similarities-in-somatic-depression-and-in-dsm-depression-secondary-symptom-profiles-within-the-context-of-severity-and-bereavement
#2
Angus H Thompson, Roger C Bland
BACKGROUND: Most population studies report higher rates of depression among women than men, and some researchers have observed gender differences in depression symptoms overall, or in sub-groupings (e.g. somatic depression). However, gender symptom differences have been inconsistent, prompting this investigation of gender differences in secondary DSM symptom profiles in the context of bereavement status, age, and depression severity. METHODS: Individuals with symptoms of core depression (flat affect or anhedonia) were selected from a large survey of adults in the Alberta, Canada workforce...
February 2018: Journal of Affective Disorders
https://www.readbyqxmd.com/read/29688843/cost-of-medical-care-of-patients-with-advanced-serious-illness-in-singapore-compass-prospective-cohort-study-protocol
#3
Irene Teo, Ratna Singh, Chetna Malhotra, Semra Ozdemir, Rebecca A Dent, Nesaretnam Barr Kumarakulasinghe, Wee Lee Yeo, Yin Bun Cheung, Rahul Malhotra, Ravindran Kanesvaran, Alethea Chung Pheng Yee, Noreen Chan, Huei Yaw Wu, Soh Mun Chin, Hum Yin Mei Allyn, Grace Meijuan Yang, Patricia Soek Hui Neo, Nivedita V Nadkarni, Richard Harding, Eric A Finkelstein
BACKGROUND: Advanced cancer significantly impacts quality of life of patients and families as they cope with symptom burden, treatment decision-making, uncertainty and costs of treatment. In Singapore, information about the experiences of advanced cancer patients and families and the financial cost they incur for end-of-life care is lacking. Understanding of this information is needed to inform practice and policy to ensure continuity and affordability of care at the end of life. The primary objectives of the Cost of Medical Care of Patients with Advanced Serious Illness in Singapore (COMPASS) cohort study are to describe changes in quality of life and to quantify healthcare utilization and costs of patients with advanced cancer at the end of life...
April 23, 2018: BMC Cancer
https://www.readbyqxmd.com/read/29684221/does-losing-a-parent-early-influence-the-education-you-obtain-a-nationwide-cohort-study-in-denmark
#4
B L Høeg, C Johansen, J Christensen, K Frederiksen, S Oksbjerg Dalton, P Bøge, A Dencker, A Dyregrov, P E Bidstrup
Background: Health inequalities are rooted in education and we investigate the association between early parental death and attainment across the educational spectrum. Methods: Using total population data on Danes born between 1982 and 2000 (n = 1 043 813), we assess incidence rate ratios (RRs) by gender for attainment of each educational level (basic school, high school or vocational training, bachelor degree or professional programme, and university graduate degree) according to loss of a parent before the age of 18 years...
April 19, 2018: Journal of Public Health
https://www.readbyqxmd.com/read/29683230/evaluating-the-characteristics-of-the-grieving-process-in-people-with-intellectual-disability
#5
M Ángeles Alcedo Rodríguez, Leticia Cristóbal Fernández, Laura E Gómez Sánchez, Víctor B Arias González
BACKGROUND: The aim of this study was to examine the characteristics associated with the grieving process among a population with intellectual disability and the influence of particular variables. MATERIALS AND METHODS: The sample was composed of 380 participants with intellectual disability, on whose behalf 149 professionals completed a 20-item questionnaire with four Likert-type answer options, developed to evaluate the grieving process: Inventory of Grief and Coping Strategies in Intellectual Disability (IGCS-ID)...
April 23, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29683227/risk-for-use-of-antidepressants-anxiolytics-and-hypnotics-in-partners-of-glioma-patients-a-nationwide-study-covering-19-years-of-prescriptions
#6
Maria R N Jansson, Annika B von Heymann-Horan, Birthe K Rasmussen, Vanna Albieri, Kirsten Frederiksen, Nis Suppli, Susanne O Dalton, Christoffer Johansen, Pernille E Bidstrup
OBJECTIVE: Suffering from malignant brain tumor is a stressful condition, for patients and their partners. In a retrospective cohort study using nationwide registries, we examined partners' risk for first use of antidepressants, anxiolytics, or hypnotics. METHODS: We followed all 4,373 partners of adults with glioma, diagnosed in 1998-2013 in Denmark and a cohort of 43,808 partners of glioma-free persons matched (1:10). In Cox proportional hazard models, we estimated hazard ratios (HRs) for a first prescription of psychotropic medications (antidepressants, anxiolytics, or hypnotics) according to the partner's glioma status...
April 23, 2018: Psycho-oncology
https://www.readbyqxmd.com/read/29683063/men-on-losing-a-male-to-suicide-a-gender-analysis
#7
John L Oliffe, Alex Broom, Mary T Kelly, Joan L Bottorff, Genevieve M Creighton, Olivier Ferlatte
Although male suicide has received research attention, the gendered experiences of men bereaved by male suicide are poorly understood. Addressing this knowledge gap, we share findings drawn from a photovoice study of Canadian-based men who had lost a male friend, partner, or family member to suicide. Two categories depicting the men's overall account of the suicide were inductively derived: (a) unforeseen suicide and (b) rationalized suicide. The "unforeseen suicides" referred to deaths that occurred without warning wherein participants spoke to tensions between having no idea that the deceased was at risk while reflecting on what they might have done to prevent the suicide...
April 1, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/29678173/the-japan-hospice-and-palliative-evaluation-study-4-a-cross-sectional-questionnaire-survey
#8
Kento Masukawa, Maho Aoyama, Tatsuya Morita, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita
BACKGROUND: Constant evaluation is important for maintaining and improving the quality of end-of-life care. We therefore conduct the fourth Japan Hospice and Palliative Evaluation Study (J-HOPE4) as a continuous evaluation study. In this present paper, we describe the design of J-HOPE4. The main purposes of J-HOPE4 are as follows:1) to evaluate the processes, structures, and outcomes of palliative care acute hospitals, palliative care units, and home hospice services; 2) to examine bereaved family members' self-reported psychosocial conditions, such as grief and depression as bereavement outcomes;3) to provide data to ensure and improve the quality of care provided by participating institutions via feedback based on the results from each institution; and 4) provide clinical and academic information concerning the implications of various issues in palliative care by conducting additional studies...
April 20, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29678168/self-competence-in-death-work-among-health-and-social-care-workers-a-region-wide-survey-in-hong-kong
#9
Johnny T K Cheung, Doreen W H Au, Wallace C H Chan, Jenny H Y Chan, Kenway Ng, Jean Woo
BACKGROUND: According to the Quality of Death Index, Hong Kong is lagging behind many other Western and Asian countries in the category of palliative and healthcare. To ensure the provision of high-quality palliative care, it is important to explore the self-competence of health and social care workers in coping with death work including palliative care. This region-wide study aims to assess the level of self-competence with a validated Self-Competence in Death Work Scale (SC-DWS) and examine its correlates...
April 20, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29676161/symptoms-of-prolonged-grief-and-posttraumatic-stress-following-loss-a-latent-class-analysis
#10
Fiona Maccallum, Richard A Bryant
OBJECTIVE: Individuals vary in how they respond to bereavement. Those who experience poor bereavement outcomes often report symptoms from more than one diagnostic category. This study sought to identify groups of individuals who share similar patterns of prolonged grief disorder and posttraumatic stress disorder symptoms to determine whether these profiles are differentially related to negative appraisals thought to contribute to prolonged grief disorder and posttraumatic stress disorder symptomatology...
April 1, 2018: Australian and New Zealand Journal of Psychiatry
https://www.readbyqxmd.com/read/29674599/development-and-a-pilot-application-process-of-the-korean-psychological-autopsy-checklist-for-adolescents
#11
Mina Jeon, Han Nah Cho, Soo Young Bhang, Jun Won Hwang, Eun Jin Park, Yeon Jung Lee
Objective: The aim of the study was to develop the Korean Psychological Autopsy Checklist for Adolescent (K-PAC-A) and conduct a pilot study. Methods: A number of steps were undertaken in the development of the K-PAC-A including literature reviews, consultations, and a pilot study. The Korean psychology autopsy checklist 2.0 (K-PAC 2.0) was carefully reviewed to adopt some domains and questions which can be applied to adolescents. Results: In addition to the adoption of some domains and questions from the K-PAC 2...
April 20, 2018: Psychiatry Investigation
https://www.readbyqxmd.com/read/29669466/-everything-changes-listening-to-homicidally-bereaved-individuals-practice-and-intervention-needs
#12
Filipa Alves-Costa, Catherine Hamilton-Giachritsis, Sarah Halligan
This study sought to understand how individuals bereaved through homicide (murder or manslaughter) describe their postevent experiences to inform clinical needs and promote mechanisms for change. A total of 21 participants (18 females) between the ages of 29 and 66 ( M age = 47.81 years, SD = 8.99) took part in this study. They were all participating in a residential program for homicidally bereaved individuals and were all residents in the United Kingdom. The sample comprised of 12 parents, five siblings, one partner, one daughter, one friend, and one grandmother of the deceased...
April 1, 2018: Journal of Interpersonal Violence
https://www.readbyqxmd.com/read/29669184/validation-of-the-persistent-complex-bereavement-disorder-pcbd-checklist-a-developmentally-informed-assessment-tool-for-bereaved-youth
#13
Julie B Kaplow, Christopher M Layne, Benjamin Oosterhoff, Hayley Goldenthal, Kathryn H Howell, Rachel Wamser-Nanney, Amanda Burnside, Karen Calhoun, Daphne Marbury, Laura Johnson-Hughes, Molly Kriesel, Mary Beth Staine, Marian Mankin, LaTanya Porter-Howard, Robert Pynoos
The inclusion of Persistent Complex Bereavement Disorder (PCBD) in the DSM-5 appendix signifies a call for research regarding the distinguishing features and clinical utility of proposed PCBD criteria. Rigorously constructed tools for assessing PCBD are lacking, especially for youth. This study evaluated the validity and clinical utility of the PCBD Checklist, a 39-item measure designed to assess PCBD criteria in youth aged 8 to18 years. Test construction procedures involved: (a) reviewing the literature regarding developmental manifestations of proposed criteria, (b) creating a developmentally informed item pool, (c) surveying an expert panel to evaluate the clarity and developmental appropriateness of candidate items, (d) conducting focus groups to evaluate the comprehensibility and acceptability of items, and (e) evaluating psychometric properties in 367 bereaved youth (Mage = 13...
April 2018: Journal of Traumatic Stress
https://www.readbyqxmd.com/read/29666139/last-year-of-life-study-cologne-lyol-c-protocol-for-a-cross-sectional-mixed-methods-study-to-examine-care-trajectories-and-transitions-in-the-last-year-of-life-until-death
#14
Julia Strupp, Gloria Hanke, Nicolas Schippel, Holger Pfaff, Ute Karbach, Christian Rietz, Raymond Voltz
INTRODUCTION: The last year of life constitutes a particularly vulnerable phase for patients, involving nearly all health and social care structures. Yet, little scientific evidence is available that provides insight into the trajectories including the number and types of care setting transitions, transitions into palliative care and the dying phase. Only few studies have focused on difficulties associated with having to move between health and social care settings in the last year of life, although patients face a significant risk of adverse events...
April 17, 2018: BMJ Open
https://www.readbyqxmd.com/read/29656703/the-ethics-of-concurrent-care-for-children-a-social-justice-perspective
#15
Kim Mooney-Doyle, Jessica Keim-Malpass, Lisa C Lindley
Recent estimates indicate that over 40,000 children die annually in the United States and a majority have life-limiting conditions. Children at end of life require extensive healthcare resources, including multiple hospital readmissions and emergency room visits. Yet, many children still suffer from symptoms at end of life-including fatigue, pain, dyspnea, and anxiety-with less than 10% of these children utilizing hospice care services. A critical barrier to pediatric hospice use was the original federal regulations associated with the hospice care that required a diagnosis of 6 months to live and the discontinuation of all curative treatments...
January 1, 2018: Nursing Ethics
https://www.readbyqxmd.com/read/29649074/parental-bereavement-in-young-children-living-in-south-africa-and-malawi-understanding-mental-health
#16
A Macedo, L Sherr, M Tomlinson, S Skeen, K J Roberts
BACKGROUND: Parental loss is a major stressful event found to increase risk of mental health problems in childhood. Yet, some children show resilient adaptation in the face of adversity across time. SETTING: This study explores predictors of mental health resilience among parentally bereaved children in South Africa and Malawi, and their cumulative effect. The study also explores whether predictors of resilience differed between orphaned and non-orphaned children...
April 10, 2018: Journal of Acquired Immune Deficiency Syndromes: JAIDS
https://www.readbyqxmd.com/read/29621556/from-fear-to-confidence-changing-providers-attitudes-about-pediatric-palliative-and-hospice-care
#17
Tamara Vesel, Christiana Beveridge
CONTEXT: Children have limited access to hospice care: few existing hospice programs have dedicated pediatric teams, and adult hospice providers feel inadequately trained to care for children. OBJECTIVES: The aim of this study is to increase access to pediatric hospice care by empowering adult hospice providers to care for children through a comprehensive education program. Education empowers providers by changing their attitudes from inadequacy to confidence. METHODS: The authors developed a two-day education program to train interdisciplinary teams of adult hospice providers in pediatric care...
April 2, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29620594/pediatric-liver-transplant-teams-coping-with-patient-death
#18
Sarah E Duncan, Ronen Arnon, Christie DiPietrantonio, Katie Ehrlich, Christopher S Knight, Jaime Chu, Rachel A Annunziato
OBJECTIVES: Coping with patient death among pediatric liver transplant teams has received little attention despite general recognition of the potentially negative emotional consequences associated with such loss. The purpose of this study was to investigate 1) the ways in which members of pediatric liver transplant teams cope with the death of patients on the waitlist and post-transplant and 2) the institutional resources available to facilitate this coping. METHODS: Participants included 120 physicians, nurses, and mental health professionals from multiple transplant centers across the United States...
April 3, 2018: Journal of Pediatric Gastroenterology and Nutrition
https://www.readbyqxmd.com/read/29618271/harmful-or-helpful-a-systematic-review-of-how-those-bereaved-through-suicide-experience-research-participation
#19
Karl Andriessen, Karolina Krysinska, Brian Draper, Michael Dudley, Philip B Mitchell
BACKGROUND: Many of the bereaved through suicide are interested in participating in postvention studies. However, there is a contradiction between the positive experiences of research participation and concerns raised by ethical boards. AIMS: To review studies on the experience of research participation by those bereaved through suicide, including initial contact with the study and its short- and long-term impacts. METHOD: Systematic searches in Embase, Medline, PsycINFO, as well as Google Scholar identified 12 papers reporting on 11 studies...
April 5, 2018: Crisis
https://www.readbyqxmd.com/read/29617305/the-cost-of-youth-suicide-in-australia
#20
Irina Kinchin, Christopher M Doran
Suicide is the leading cause of death among Australians between 15 and 24 years of age. This study seeks to estimate the economic cost of youth suicide (15–24 years old) for Australia using 2014 as a reference year. The main outcome measure is monetized burden of youth suicide. Costs, in 2014 AU$, are measured and valued as direct costs, such as coronial inquiry, police, ambulance, and funeral expenses; indirect costs, such as lost economic productivity; and intangible costs, such as bereavement. In 2014, 307 young Australians lost their lives to suicide (82 females and 225 males)...
April 4, 2018: International Journal of Environmental Research and Public Health
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