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https://www.readbyqxmd.com/read/28525294/the-cambia-sojourns-scholars-leadership-program-conversations-with-emerging-leaders-in-palliative-care
#1
Dulce M Cruz-Oliver, Rachelle Bernacki, Zara Cooper, Corita Grudzen, Seiko Izumi, Deborah Lafond, Daniel Lam, Thomas W LeBlanc, Jennifer Tjia, Jennifer Walter
BACKGROUND: There is a pressing workforce shortage and leadership scarcity in palliative care to adequately meet the demands of individuals with serious illness and their families. To address this gap, the Cambia Health Foundation launched its Sojourns Scholars Leadership Program in 2014, an initiative designed to identify, cultivate, and advance the next generation of palliative care leaders. This report intends to summarize the second cohort of Sojourns Scholars' projects and their reflection on their leadership needs...
May 19, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28524365/revision-of-the-competency-standards-for-occupational-therapy-driver-assessors-an-overview-of-the-evidence-for-the-inclusion-of-cognitive-and-perceptual-assessments-within-fitness-to-drive-evaluations
#2
REVIEW
Sally M Fields, Carolyn A Unsworth
BACKGROUND/AIM: Determination of fitness-to-drive after illness or injury is a complex process typically requiring a comprehensive driving assessment, including off-road and on-road assessment components. The competency standards for occupational therapy driver assessors (Victoria, Australia) define the requirements for performance of a comprehensive driving assessment, and we are currently revising these. Assessment of cognitive and perceptual skills forms an important part of the off-road assessment...
May 19, 2017: Australian Occupational Therapy Journal
https://www.readbyqxmd.com/read/28523990/why-do-patients-decline-participation-in-offered-pulmonary-rehabilitation-a-qualitative-study
#3
Helle Mathar, Pernille Fastholm, Peter Lange, Niels Sandholm Larsen
OBJECTIVE: The purpose of this study is to produce insight in the explanations for declining pulmonary rehabilitation given by patients with chronic obstructive pulmonary disease. SETTING: The participants were recruited from a hospital in Denmark, among patients hospitalized due to an exacerbation of chronic obstructive pulmonary disease and among stable patients attending an outpatient clinic. PARTICIPANTS: Patients who decline participation in offered pulmonary rehabilitation, who speak Danish, who are able to give informed consent and to participate in a 1-hour interview...
May 1, 2017: Clinical Rehabilitation
https://www.readbyqxmd.com/read/28520522/perceptions-of-statin-discontinuation-among-patients-with-life-limiting-illness
#4
Jennifer Tjia, Jean S Kutner, Christine S Ritchie, Patrick J Blatchford, Rachael E Bennett Kendrick, Maryjo Prince-Paul, Tamara J Somers, Mary Lynn McPherson, Jeff A Sloan, Amy P Abernethy, Jon P Furuno
BACKGROUND: Optimal management of chronic medications for patients with life-limiting illness is uncertain. Medication deprescribing may improve outcomes in this population, but patient concerns regarding deprescribing are unclear. OBJECTIVE: The aim of this study was to quantify the perceived benefits and concerns of statin discontinuation among patients with life-limiting illness. DESIGN: Baseline data from a multicenter, pragmatic clinical trial of statin discontinuation were used...
May 18, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28513995/inner-strength-and-its-relationship-to-health-threats-in-ageing-a-cross-sectional-study-among-community-dwelling-older-women
#5
Erika Boman, Berit Lundman, Björn Nygren, Kristofer Årestedt, Regina Santamäki Fischer
AIM: To explore the relationship between inner strength and health threats among community-dwelling older women. BACKGROUND: Inner strength is described as a resource that promotes experiences of health, despite adversities. Inner strength and its dimensions (i.e. connectedness, creativity, firmness and flexibility) can be assessed using the Inner Strength Scale (ISS). Exploring attributes of weaker inner strength may yield valuable information about areas to focus on in enhancing a person's inner strength and may ultimately lead to the perception of better health...
May 17, 2017: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/28511051/a-one-year-longitudinal-qualitative-study-of-peer-support-services-in-a-non-western-context-the-perspectives-of-peer-support-workers-service-users-and-co-workers
#6
Samson Tse, Winnie W S Mak, Iris W K Lo, Lucia L Liu, Winnie W Y Yuen, Sania Yau, Kimmy Ho, Sau-Kam Chan, Stephen Wong
This study explored the changing views of key stakeholders (peer support workers, their co-workers, and service users) about peer support services in a non-Western community, using a longitudinal qualitative approach. Five trainee peer support workers (PSWs), 15 service users, and 14 co-workers were interviewed over a 12-month period, under the auspices of the Peer Support Workers Project (also known as the Mindset project) in Hong Kong. A total of 77 interviews were transcribed and thematic analyses were conducted across the participant groups at three different time points (training, work placements, and employment)...
May 8, 2017: Psychiatry Research
https://www.readbyqxmd.com/read/28509706/length-of-stay-mortality-cost-and-perceptions-of-care-associated-with-transition-from-an-open-to-closed-staffing-model-in-the-cardiac-intensive-care-unit
#7
Jason N Katz, Anton Lishmanov, Sean van Diepen, Dongqing Yu, Haipeng Shen, Eric Pauley, Jatin Bhatia, Adam Buntaine, Arun Das, Cristie Dangerfield, Brooke McLaughlin, George A Stouffer, Prashant Kaul
BACKGROUND: Organizational models in the intensive care unit (ICU) have classically been described as either closed or open, depending on the presence or absence of a dedicated ICU team. Although a closed model has been shown to improve patient outcomes in medical and surgical ICUs, the merits of various care models have not been previously explored in the cardiac ICU (CICU) setting. METHODS: From November 2012 to March 2014, data were prospectively collected on all admissions before and after transition from an open to closed CICU at our institution...
June 2017: Critical Pathways in Cardiology
https://www.readbyqxmd.com/read/28506296/worlds-apart-a-scoping-review-addressing-different-stakeholder-perspectives-on-barriers-to-family-involvement-in-the-care-for-persons-with-severe-mental-illness
#8
Elleke Landeweer, Bert Molewijk, Marit Helene Hem, Reidar Pedersen
BACKGROUND: Empirical evidence shows that family involvement (FI) can play a pivotal role in the coping and recovery of persons with severe mental illness (SMI). Nevertheless, various studies demonstrate that FI in mental healthcare services is often not (sufficiently) realized. In order to develop more insights, this scoping review gives an overview of how various stakeholders conceptualize, perceive and experience barriers to FI. Central questions are: 1) What are the main barriers to FI reported by the different key stakeholders (i...
May 15, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28506145/areas-of-control-desired-by-patients-and-families-referred-to-hospice-care-perspectives-of-hospice-admissions-staff
#9
Hyunjin Noh
Sense of control in end-of-life (EOL) care plays a critical role in the patient's well-being. However, little is known about the areas of control essential to patients and families at a specific time point in the illness trajectory: when patients stop curative treatments and are referred to hospice. This study qualitatively explored such areas. Sixteen admissions staff members from four hospice agencies were interviewed about their perceptions of areas in which patients and families worried about losing control by accepting hospice...
May 1, 2017: Journal of Applied Gerontology: the Official Journal of the Southern Gerontological Society
https://www.readbyqxmd.com/read/28503041/pediatric-end-of-life-care-barriers-and-facilitators-perception-of-nursing-professionals-in-jordan
#10
Omar Mohammad Khraisat, Nemeh Ahmad Alakour, Teresa M O'Neill
INTRODUCTION: End-of-life care is a critical issue for pediatric population with terminal illness to ensure the best possible quality of care for them and their families. A survey was conducted to identify the barriers and facilitators to provide pediatric end-of-life care. METHODS: A descriptive cross-sectional study was conducted at three tertiary centers providing end-of-life care in Jordan. Two hundred critical care nurses were surveyed (response rate 93%). RESULTS: Nurses reported moderate level of experience in all areas of delivering pediatric end-of-life care...
April 2017: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/28501863/psychometric-properties-of-the-revised-illness-perception-questionnaire-for-oral-health
#11
Fredy H Villalobos-Galvis, Ana C Mafla, William F Burbano-Trujillo, Alexandra A Sanchez-Figueroa
AIMS: The aim of this study was to test the hypothesis that, for patients with dental caries, the Spanish version of the Revised Illness Perception Questionnaire for Oral Health (IPQ-R-OH) has 7 dimensions, including personal and treatment control, timeline-acute/chronic and timeline-cyclical, illness coherence, consequences, and emotional representations. METHODS: A Spanish adaptation of the IPQ-R, with a self-reported 38-item scale, was developed. Exploratory and confirmatory factor analyses were conducted using data from 520 patients with dental caries attending the Dental Clinic at Universidad Cooperativa de Colombia, Pasto, Colombia...
May 13, 2017: Caries Research
https://www.readbyqxmd.com/read/28501049/distrusting-doctors
#12
Ashley McAllister, Stephen R Leeder
Objective The aim of the present study was to describe how policy makers (bureaucrats and politicians) in Australia and Ontario (Canada) perceive evidence provided by doctors to substantiate applications for disability income support (DIS) by their patients with mental illnesses. Because many mental illnesses (e.g. depression) lack diagnostic tests, their existence and effects are more difficult to demonstrate than most somatic illnesses.Methods Semi-structured interviews were conducted with 45 informants, all influential in the design of the assessment of DIS programs...
May 15, 2017: Australian Health Review: a Publication of the Australian Hospital Association
https://www.readbyqxmd.com/read/28497852/patients-perception-of-disease-and-experience-with-type-2-diabetes-patient-education-in-denmark
#13
Ditte Hjorth Laursen, Anne Frølich, Ulla Christensen
BACKGROUND: Patient education programmes for a range of chronic conditions are widely implemented, but studies have shown that not all participants benefit equally from the patient education programmes. AIM: To explore differences in how persons with diabetes experience diabetes-related patient education programmes. METHODS: Qualitative in-depth interviews were conducted with eleven participants 6 months after participation in patient education...
May 12, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28493592/experiences-of-outcome-monitoring-in-service-users-with-psychosis-findings-from-an-improving-access-to-psychological-therapies-for-people-with-severe-mental-illness-iapt-smi-demonstration-site
#14
Miriam Fornells-Ambrojo, Louise Johns, Juliana Onwumere, Philippa Garety, Craig Milosh, Catherine Iredale, Emmanuelle Peters, Adrian Webster, Suzanne Jolley
OBJECTIVES: Psychological therapy services are increasingly required to instate routine outcome monitoring (ROM), to demonstrate the clinical and economic impact of interventions. Professionals' views of ROM are an acknowledged barrier to implementation. Service user perspectives have rarely been examined, but acceptability and perceptions of ROM are critical to successful implementation. We investigated service users' experiences of ROM in an Improving Access to Psychological Therapies for people with Severe Mental Illness psychosis demonstration site...
May 11, 2017: British Journal of Clinical Psychology
https://www.readbyqxmd.com/read/28490349/cognitive-behavioural-therapy-for-the-management-of-inflammatory-bowel-disease-fatigue-with-a-nested-qualitative-element-study-protocol-for-a-randomised-controlled-trial
#15
Micol Artom, Wladyslawa Czuber-Dochan, Jackie Sturt, Christine Norton
BACKGROUND: Fatigue is one of the most prevalent and burdensome symptoms for patients with inflammatory bowel disease (IBD). Although fatigue increases during periods of inflammation, for some patients it persists when disease is in remission. Compared to other long-term conditions where fatigue has been extensively researched, optimal management of fatigue in patients with IBD is unknown and fatigue has rarely been the primary outcome in intervention studies. To date, interventions for the management of IBD-fatigue are sparse, have short-term effects and have not been implemented within the existing health system...
May 11, 2017: Trials
https://www.readbyqxmd.com/read/28484383/when-playing-is-a-problem-an-atypical-case-of-alien-hand-syndrome-in-a-professional-pianist
#16
Arantxa Alfaro, Ángela Bernabeu, Francisco J Badesa, Nicolas García, Eduardo Fernández
Alien hand syndrome (AHS) is a neurological illness characterized by limb movements which are carried out without being aware of it. Many patients describe these movements as aggressive and some perceive a strong feeling of estrangement and go so far as to deny ownership. The sense of body ownership is the perception that parts of one's body pertain to oneself, despite it is moving or not and if movement is intentional or unintentional. These anomalous self-experiences may arise in patients with focal brain lesions and provide unique opportunities to disclose the neural components underlying self-body perception...
2017: Frontiers in Human Neuroscience
https://www.readbyqxmd.com/read/28483098/a-pilot-study-of-body-image-perceptions-and-attitudes-toward-obesity-in-hospitalized-psychotic-and-non-psychotic-patients
#17
Sameer Hassamal, Alexandru Trutia, Alican Dalkilic, Ananda K Pandurangi
OBJECTIVE: Body image perceptions, and attitudes toward obesity were examined and compared between psychotic and non-psychotic patients with a mood disorder. METHODS: 80 psychotic patients and 36 non-psychotic patients with a mood disorder admitted to an acute inpatient psychiatric unit participated in the study. On admission, each patient completed a visual silhouettes scale of actual self and ideal self, as well as the Attitudes Toward Obese Persons (ATOP) scale...
April 2017: Asian Journal of Psychiatry
https://www.readbyqxmd.com/read/28482841/staff-ratings-of-occupational-engagement-among-people-with-severe-mental-illness-psychometric-properties-of-a-screening-tool-in-the-day-center-context
#18
Mona Eklund, Ulrika Bejerholm
BACKGROUND: Staff who plan and organize day center activities may need to observe the attendees' performance and progression. This led us to develop a tool for that purpose, termed General Occupational Engagement in people with Severe mental illness (GOES). The aim was to investigate its psychometric properties in terms of factor structure, internal consistency, corrected item-total correlations (CITC), convergent and discriminant validity, and test-retest stability. METHODS: Ninety-three day center attendees were assessed by the GOES and instruments addressing constructs hypothesized to be either similar to (activity level, motivation for day center attendance, perceptions of the worker role, hours spent in the day center) or divergent from the GOES (attendees' ratings of engagement in specified occupations, self-rated health, psychosocial functioning, psychiatric symptoms)...
May 8, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28482828/health-beliefs-illness-perceptions-and-determinants-of-breast-screening-uptake-in-malta-a-cross-sectional-survey
#19
Danika Marmarà, Vincent Marmarà, Gill Hubbard
BACKGROUND: Women's beliefs and representations of breast cancer (BC) and breast screening (BS) are salient predictors for BS practices. This study utilized the health belief model (HBM) and common-sense model (CSM) of illness self-regulation to explore factors associated with BS uptake in Malta and subsequently, to identify the most important predictors to first screening uptake. METHODS: This cross-sectional survey enrolled Maltese women (n = 404) ages 50 to 60 at the time of their first screening invitation, invited to the National Breast Screening Programme by stratified random sampling, with no personal history of BC...
May 8, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28479878/pediatric-out-of-hospital-deaths-following-hospital-discharge-a-mixed-methods-study
#20
Lacey English, Elias Kumbakumba, Charles P Larson, Jerome Kabakyenga, Joel Singer, Niranjan Kissoon, J Mark Ansermino, Hubert Wong, Julius Kiwanuka, M O Wiens
BACKGROUND: Out-of-hospital death among children living in resource poor settings occurs frequently. Little is known about the location and circumstances of child death following a hospital discharge. OBJECTIVES: This study aimed to understand the context surrounding out-of-hospital deaths and the barriers to accessing timely care for Ugandan children recently discharged from the hospital. METHODS: This was a mixed-methods sub-study within a larger cohort study of post-discharge mortality conducted in the Southwestern region of Uganda...
December 2016: African Health Sciences
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