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https://www.readbyqxmd.com/read/27932044/families-perception-of-end-of-life-care-for-patients-with-serious-illness
#1
EDITORIAL
Susan P Y Wong, Ann M O'Hare
No abstract text is available yet for this article.
December 5, 2016: American Journal of Kidney Diseases: the Official Journal of the National Kidney Foundation
https://www.readbyqxmd.com/read/27930945/a-phase-ii-study-of-panobinostat-in-patients-with-primary-myelofibrosis-pmf-and-post-polycythemia-vera-essential-thrombocythemia-myelofibrosis-post-pv-et-mf
#2
John Mascarenhas, Lonette Sandy, Min Lu, James Yoon, Bruce Petersen, David Zhang, Fei Ye, Carrie Newsom, Vesna Najfeld, Tsivia Hochman, Judith D Goldberg, Ronald Hoffman
Myelofibrosis is a chronic and progressive myeloproliferative neoplasm characterized by anemia, splenomegaly, debilitating symptoms and leukemic transformation. Ruxolitinib, an oral JAK1/2 inhibitor, is highly effective in ameliorating systemic symptoms and reducing splenomegaly. Current clinical research is focused on the evaluation of agents based on pre-clinical rationale that can result in disease course modification. Panobinostat is a pan-histone deacetylase inhibitor that has demonstrated clinical activity as a single agent in early phase trials of myelofibrosis...
November 30, 2016: Leukemia Research
https://www.readbyqxmd.com/read/27929451/the-self-regulation-model-of-illness-comparison-between-zika-and-dengue-and-its-application-to-predict-mosquito-prevention-behaviours-in-malaysia-a-dengue-endemic-country
#3
Li Ping Wong, Haridah Alias, Nasrin Aghamohammadi, I-Ching Sam, Sazaly AbuBakar
Perceptions about illnesses may influence self-care and preventive health behaviours. Illness perceptions of the Zika virus (ZIKV) infection were investigated under the framework of the Self-Regulation Model of Illness. Illness perception differences between ZIKV and dengue fever were also examined. Lastly, associations between illness perceptions of ZIKV with mosquito prevention practices were studied. Samples were drawn from landline telephone numbers using computer-assisted telephone interviewing in Malaysia...
December 6, 2016: International Journal of Environmental Research and Public Health
https://www.readbyqxmd.com/read/27928439/coping-behavior-and-risk-and-resilience-stress-factors-in-french-regional-emergency-medicine-unit-workers-a-cross-sectional-survey
#4
Lala Ai, Sturzu Lm, Picard Jp, Druot F, Grama F, Bobirnac G
The Emergency Department (ED) has the highest workload in a hospital, offering care to patients in their most acute state of illness, as well as comforting their families and tending to stressful situations of the physical and psychological areal. Method. A cross-sectional survey of 366 Emergency Unit staff members including medical doctors, medical residents, medical nurses and ward aids, was undergone. Study participants came from four periphery hospitals in the Moselle Department of Eastern France with similar workforce and daily patient loads statistics...
October 2016: Journal of Medicine and Life
https://www.readbyqxmd.com/read/27927608/pretravel-health-advice-among-australians-returning-from-bali-indonesia-a-randomized-controlled-trial-protocol
#5
Chloe A Thomson, Robyn A Gibbs, Jane S Heyworth, Carolien Giele, Martin J Firth, Paul V Effler
BACKGROUND: The effect of pretravel health advice (PTHA) on travel-related illness rates is poorly understood, and to date there are no published randomized controlled trials evaluating the impact of PTHA outcomes. OBJECTIVE: This study aims to determine the effect of an online PTHA intervention on travel-related illness rates in Western Australians visiting Bali, Indonesia. METHODS: Western Australian travelers to Bali will be recruited online before departure and will be randomly allocated to an intervention or control group by computer algorithm...
December 7, 2016: JMIR Research Protocols
https://www.readbyqxmd.com/read/27927243/traditional-mapuche-ecological-knowledge-in-patagonia-argentina-fishes-and-other-living-beings-inhabiting-continental-waters-as-a-reflection-of-processes-of-change
#6
Juana Aigo, Ana Ladio
BACKGROUND: Understanding how people interpret environmental change and develop practices in response to such change is essential to comprehend human resource use. In the cosmology of the American indigenous peoples, as among the Mapuche people, freshwater systems are considered a living entity, where animals have an enormous role to play in the universe of meaning. However, human adaptive responses to freshwater system dynamics are scarcely examined. In this work a survey is carried out in three Mapuche communities of Argentine Patagonia to assess their traditional knowledge of the fishes and other non-human living beings that inhabit lakes and rivers...
December 7, 2016: Journal of Ethnobiology and Ethnomedicine
https://www.readbyqxmd.com/read/27927059/illness-perceptions-and-burden-of-disease-in-fibromyalgia
#7
Tracy L Skaer, Winghan Jacqueline Kwong
Fibromyalgia (FM) is a chronic syndrome that usually develops midlife. It is associated with a high burden of illness that causes significant disability. Areas Covered: Diagnosis can be challenging, given the diverse clinical presentation among those with FM. Therefore, the typical health care journey for a patient with FM is lengthy and complex. There is no acknowledged treatment algorithm for FM, prescribing patterns vary markedly, and patients are likely to receive suboptimal or inappropriate pharmacotherapy...
December 7, 2016: Expert Review of Pharmacoeconomics & Outcomes Research
https://www.readbyqxmd.com/read/27926354/the-experience-of-women-carriers-of-brca-mutations-following-risk-reducing-surgery-a-cultural-perspective
#8
Chaya Possick, Michal Mahat-Shamir
In this qualitative study we examine the experience of 13 Jewish Israeli women carriers of BRCA mutations following risk-reducing surgery. Thematic analysis of in-depth, semi-structured interview texts yielded three themes: 1. dialectic of vulnerability and control, 2. presentation of self as a "normal" woman, and 3. genetic chain of negative life events and guilt. Aspects of Israeli culture impacting participants' experiences are: personal and collective responsibility, the shift towards consumerism and pro-natal ideology...
December 7, 2016: Health Care for Women International
https://www.readbyqxmd.com/read/27922917/adherence-to-oral-administration-of-endocrine-treatment-in-patients-with-breast-cancer-a-qualitative-study
#9
Laura Iacorossi, Francesca Gambalunga, Alessandra Fabi, Diana Giannarelli, Anna Marchetti, Michela Piredda, Maria Grazia De Marinis
BACKGROUND: Breast cancer is the most common cancer in women in the world, and it is also the leading cause of cancer deaths among women. Nevertheless, breast cancer survival has increased as a result of improvements in early diagnosis and therapy, for example, oral endocrine therapy. Despite the importance of adherence to endocrine therapy, its trend appears complex and multidimensional and therefore has many loopholes and missing information. OBJECTIVE: The study aims to explore the experiences of adherence to endocrine therapy in women with breast cancer and their perceptions of the challenges they face in adhering to their medication prescribed...
December 5, 2016: Cancer Nursing
https://www.readbyqxmd.com/read/27920550/using-drawings-to-explore-patients-perceptions-of-their-illness-a-scoping-review
#10
REVIEW
Melissa Mei Yin Cheung, Bandana Saini, Lorraine Smith
BACKGROUND: An emerging approach for investigating patient perspectives of their illness is the use of drawings. OBJECTIVE: This scoping review consolidates findings from current literature regarding the use of drawings to explore patients' perceptions and experiences of their illness and treatment. METHODS: Electronic databases (Medline, PubMed, Embase, PsychINFO, Cinahl, Art Index and Scopus) and reference lists were searched to identify published English language studies using participant-generated drawings to explore adults' perceptions and experiences of their illness and treatment...
2016: Journal of Multidisciplinary Healthcare
https://www.readbyqxmd.com/read/27920534/perceptions-and-impact-of-bipolar-disorder-in-japan-results-of-an-internet-survey
#11
Koichiro Watanabe, Eiji Harada, Takeshi Inoue, Yuka Tanji, Toshiaki Kikuchi
Bipolar disorder is a recurrent and episodic illness. This survey study assessed experiences and identified clinical insights of individuals with bipolar disorder. An Internet-based monitor system database was screened for patients with bipolar disorder in Japan (February and March 2013). Of 1,050 patients, 457 completed surveys, and results were analyzed with descriptive statistics. Approximately one-fourth of respondents were diagnosed with bipolar disorder on their first visit to medical institutions, although the most common initial diagnosis was depression/depressive state (65%)...
2016: Neuropsychiatric Disease and Treatment
https://www.readbyqxmd.com/read/27920505/illness-perceptions-and-stress-mediators-between-disease-severity-and-psychological-well-being-and-quality-of-life-among-patients-with-crohn-s-disease
#12
Maochen Zhang, Liwen Hong, Tianyu Zhang, Yun Lin, Sichang Zheng, Xiaolin Zhou, Rong Fan, Zhengting Wang, Chenli Zhang, Jie Zhong
BACKGROUND: Disease severity, illness perceptions, coping strategies, stress, psychological well-being, and quality of life were reported to have close relationships. According to the Common Sense Model, illness perceptions and coping strategies could mediate the relationship between illness stimuli and illness outcomes such as psychological health and quality of life. Stress was also associated with the individual's disease severity, anxiety, depression, and quality of life. OBJECTIVES: The study aimed to explore the influencing factors of illness outcomes, and to what extent illness perceptions, coping strategies, and stress mediate the relationship between disease severity and anxiety, and depression and quality of life...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/27919499/quality-of-life-and-its-correlates-in-adolescent-multiple-sclerosis-patients
#13
Slavica Ostojic, Dejan Stevanovic, Jasna Jancic
INTRODUCTION: Measures of health-related quality of life (HRQOL) are considered to be more comprehensive in health outcome assessments than scales assessing only the degree of neurological deficit. OBJECTIVE: The aim of the study was to evaluate HRQOL and its correlates among adolescents with multiple sclerosis (MS) in Serbia. METHODS: Demographic, clinical, and patient-reported outcome data were collected for 21 adolescents with MS, aged 14-18 years...
November 2016: Multiple Sclerosis and related Disorders
https://www.readbyqxmd.com/read/27917764/diabetic-cachectic-neuropathy-an-uncommon-neurological-complication-of-diabetes
#14
A Iyagba, A Onwuchekwa
A 40-year-old female patient with diabetes of 12 years' duration, with poor drug compliance, presented with a 4-month history of rapid progressive weight loss, burning sensations in the feet, abdominal swelling, and constipation with occasional episodes of epigastric pain. On examination, she was chronically ill-looking with a body mass index of 17.1 kg/m2, grossly distended abdomen (initially mistaken for gravid abdomen). Blood pressure measurements in the supine and standing positions were 200/130 mmHg and 180/100 mmHg, respectively...
December 1, 2016: South African Medical Journal, Suid-Afrikaanse Tydskrif Vir Geneeskunde
https://www.readbyqxmd.com/read/27917140/can-illness-perceptions-predict-lower-heart-rate-variability-following-acute-myocardial-infarction
#15
Mary Princip, Marco Scholz, Rebecca E Meister-Langraf, Jürgen Barth, Ulrich Schnyder, Hansjörg Znoj, Jean-Paul Schmid, Julian F Thayer, Roland von Känel
Objective: Decreased heart rate variability (HRV) has been reported to be a predictor of mortality after myocardial infarction (MI). Patients' beliefs and perceptions concerning their illness may play a role in decreased HRV. This study investigated if illness perceptions predict HRV at 3 months following acute MI. Methods: 130 patients referred to a tertiary cardiology center, were examined within 48 h and 3 months following acute MI. At admission, patients' cognitive representations of their MI were assessed using the German version of the self-rated Brief Illness Perception Questionnaire (Brief IPQ)...
2016: Frontiers in Psychology
https://www.readbyqxmd.com/read/27914470/symptom-profiles-and-inflammatory-markers-in-moderate-to-severe-copd
#16
Huong Q Nguyen, Jerald R Herting, Kenneth C Pike, Sina A Gharib, Gustavo Matute-Bello, Soo Borson, Ruth Kohen, Sandra G Adams, Vincent S Fan
BACKGROUND: Physical and psychological symptoms are the hallmark of patients' subjective perception of their illness. The purpose of this analysis was to determine if patients with COPD have distinctive symptom profiles and to examine the association of symptom profiles with systemic biomarkers of inflammation. METHODS: We conducted latent class analyses of three physical (dyspnea, fatigue, and pain) and two psychological symptoms (depression and anxiety) in 302 patients with moderate to severe COPD using baseline data from a longitudinal observational study of depression in COPD...
December 3, 2016: BMC Pulmonary Medicine
https://www.readbyqxmd.com/read/27914469/predicting-general-and-cancer-related-distress-in-women-with-newly-diagnosed-breast-cancer
#17
Andrea Gibbons, AnnMarie Groarke, Karl Sweeney
BACKGROUND: Psychological distress can impact medical outcomes such as recovery from surgery and experience of side effects during treatment. Identifying the factors that explain variability in distress would guide future interventions aimed at decreasing distress. Two factors that have been implicated in distress are illness perceptions and coping, and are part of the Self-Regulatory Model of Illness Behaviour (SRM). The model suggests that coping mediates the relationship between illness perceptions and distress...
December 3, 2016: BMC Cancer
https://www.readbyqxmd.com/read/27913691/exploring-the-chronic-illness-experience-of-rural-dwelling-latinos-of-mexican-origin
#18
Anissa Guzman
INTRODUCTION: Chronic illness is a complex and ever-growing phenomenon that is affecting millions of Americans every day, and it is disproportionately experienced by Latinos of Mexican origin. METHOD: In this quantitative study, the specific aims were to evaluate perceptions of chronic illness(es), locus of control (health and God), health status, and cultural orientation of rural-dwelling Latinos of Mexican origin in Colorado who have one or more chronic illnesses and to explore the relationships existing between these concepts...
December 2016: Hispanic Health Care International: the Official Journal of the National Association of Hispanic Nurses
https://www.readbyqxmd.com/read/27909364/physiotherapy-students-attitudes-toward-psychiatry-and-mental-health-a-cross-sectional-study
#19
Joanne Connaughton, William Gibson
Purpose: A cross-sectional exploration of Notre Dame Australia physiotherapy students' attitudes toward psychiatry and mental illness, students' perceptions regarding preparation in this area for general clinical practice, and a cross-sectional investigation of current mental health-and psychiatry-related content in physiotherapy curricula across Australia and New Zealand. Methods: A questionnaire including demographic details, level of exposure to mental illness, and the Attitudes Toward Psychiatry-30 items (ATP-30) was completed by pre-clinical and clinically experienced physiotherapy students from the University of Notre Dame Australia...
2016: Physiotherapy Canada. Physiothérapie Canada
https://www.readbyqxmd.com/read/27904237/do-physiotherapists-have-the-skill-to-engage-in-the-psychological-in-the-bio-psychosocial-approach
#20
Joanne Connaughton, William Gibson
Purpose: To describe a cross-sectional exploration of attitudes of physiotherapists in general practice in Western Australia toward psychiatry and mental illness, how often they treat people with mental illness, their perceptions of how well their undergraduate education prepared them to work with these people, and their opinions about what further education would enable them to provide best-practice care. Methods: A questionnaire that included questions about participants' demographic information, personal experiences with mental illness, the Attitudes to Psychiatry (ATP-30), and open-ended questions about participants' preparedness to work with people with mental illness was distributed through 110 email contacts to physiotherapy departments in Western Australia...
2016: Physiotherapy Canada. Physiothérapie Canada
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