keyword
https://read.qxmd.com/read/38598274/palliative-and-end-of-life-family-caregiving-in-rural-areas-a-scoping-review-of-social-determinants-of-health-and-emotional-well-being
#1
REVIEW
Arienne Patano, Gwen Wyatt, Rebecca Lehto
Introduction: Due to their remote location, rural-dwelling family caregivers (FCGs) experience geographic and psychosocial challenges when providing home-based palliative and end-of-life (PEOL) care for their care recipient. Limited research has evaluated the social and environmental factors that may compound FCG burden and contribute to adverse emotional health outcomes among rural-dwelling PEOL FCGs. Objective: To characterize the social determinants of health (SDOH) that affect the provision of PEOL care among rural-dwelling FCGs, along with symptoms of anxiety and depression...
April 10, 2024: Journal of Palliative Medicine
https://read.qxmd.com/read/38492432/radical-hospitality-innovative-programming-to-build-community-and-meet-the-needs-of-people-who-use-drugs-at-a-government-sanctioned-overdose-prevention-site-in-san-francisco-california
#2
JOURNAL ARTICLE
Lynn D Wenger, Terry Morris, Kelly R Knight, Cariné E Megerian, Peter J Davidson, Leslie W Suen, Veronica Majano, Barrot H Lambdin, Alex H Kral
BACKGROUND: The Tenderloin Center (TLC), a multi-service center where people could receive or be connected to basic needs, behavioral health care, housing, and medical services, was open in San Francisco for 46 weeks in 2022. Within a week of operation, services expanded to include an overdose prevention site (OPS), also known as safe consumption site. OPSs have operated internationally for over three decades, but government-sanctioned OPSs have only recently been implemented in the United States...
March 15, 2024: International Journal on Drug Policy
https://read.qxmd.com/read/38468673/addressing-healthcare-disparities-in-homeless-neurosurgical-patients-a-comprehensive-literature-review-on-strategies-for-equitable-care-and-improved-outcomes
#3
REVIEW
Albert Alan, Michelle Ennabe, James Withers, Neil Joshi, Martin Weinand
BACKGROUND: Homelessness is a growing concern in the US, with 3.5 million people experiencing it annually and 600,000 on any given night. Homeless individuals face increased vulnerability to 30-day hospital readmissions and higher mortality rates, straining the healthcare system and exacerbating existing disparities. This study aims to inform neurosurgeons on evidence-based strategies to reduce readmission and mortality rates among homeless patients by reviewing the literature on the impact of medical respite on 30-day readmission rates...
2024: Surgical Neurology International
https://read.qxmd.com/read/38346882/overall-survival-of-homebound-patients-without-cancer-receiving-inpatient-respite-care-in-a-hospital-ward-in-japan-a-retrospective-observational-study
#4
JOURNAL ARTICLE
Hisayuki Miura, Yuko Goto
OBJECTIVES: This study aimed to investigate the relationship between the use of inpatient respite care and the overall survival of homebound patients without cancer admitted to a hospital ward in order to assess the potential impact of inpatient respite care on the duration of home care. DESIGN: This was a single-centre, hospital ward-based retrospective observational study. SETTING AND PARTICIPANTS: From March 2011 to September 2018, 393 cancer-free older patients (median age, 84...
February 12, 2024: BMJ Open
https://read.qxmd.com/read/38315930/homelessness-and-health-factors-evidence-innovations-that-work-and-policy-recommendations
#5
JOURNAL ARTICLE
Cheyenne Garcia, Kelly Doran, Margot Kushel
On a single night in 2023, more than 653,000 people experienced homelessness in the United States. In this overview, we highlight structural and individual risk factors that can lead to homelessness, explore evidence on the relationship between homelessness and health, discuss programmatic and policy innovations, and provide policy recommendations. Health system efforts to address homelessness and improve the health of homeless populations have included interventions such as screening for social needs and medical respite programs...
February 2024: Health Affairs
https://read.qxmd.com/read/38306603/trend-in-respite-use-by-race-among-caregivers-for-people-living-with-dementia
#6
JOURNAL ARTICLE
Yeunkyung Kim, Jihye Kim, Hyunjee Kim, Sungchul Park, Yue Li
BACKGROUND: Respite care provides short-term relief for caregivers. Despite efforts to promote respite use among Black caregivers, little is known if disparities in respite use between Black and White dementia caregivers have decreased over time. We examined a trend nationally to see if more recent efforts may have helped reduce disparities in respite use. METHODS: We used a repeated cross-sectional design, with the data from 2015, 2017, and 2021 of the National Health and Aging Trends Study and National Study of Caregiving...
February 2, 2024: Journals of Gerontology. Series A, Biological Sciences and Medical Sciences
https://read.qxmd.com/read/38272584/opportunities-for-nurses-to-decrease-the-stigma-associated-with-housing-instability-and-homelessness
#7
REVIEW
Donna J Biederman, Heather O'Donohue, Julia Gamble
The number of people experiencing homelessness (PEH) in the United States has increased in the past 5 years. PEH have a higher disease burden and early mortality compared to people who are housed. Stigma adds to the burden of disease and disease management for PEH. In this article the authors review stigma, define housing and homelessness, describe the health and health care disparities PEH experience, and using the socio-ecological model as a framework, offer opportunities for nurses to intervene in efforts to decrease the stigma that PEH and housing instability encounter to improve health outcomes...
March 2024: Nursing Clinics of North America
https://read.qxmd.com/read/38255639/traditional-therapeutics-and-potential-epidrugs-for-cvd-why-not-both
#8
REVIEW
Lauren Rae Gladwell, Chidinma Ahiarah, Shireen Rasheed, Shaikh Mizanoor Rahman, Mahua Choudhury
Cardiovascular disease (CVD) is the leading cause of death worldwide. In addition to the high mortality rate, people suffering from CVD often endure difficulties with physical activities and productivity that significantly affect their quality of life. The high prevalence of debilitating risk factors such as obesity, type 2 diabetes mellitus, smoking, hypertension, and hyperlipidemia only predicts a bleak future. Current traditional CVD interventions offer temporary respite; however, they compound the severe economic strain of health-related expenditures...
December 22, 2023: Life
https://read.qxmd.com/read/38212707/family-caregivers-preferences-for-support-when-caring-for-a-family-member-with-cancer-in-late-palliative-phase-who-wish-to-die-at-home-a-grounded-theory-study
#9
JOURNAL ARTICLE
Toril Merete Nysaeter, Cecilia Olsson, Tuva Sandsdalen, Reidun Hov, Maria Larsson
BACKGROUND: Family caregivers are essential in end-of-life care for cancer patients who wish to die at home. The knowledge is still limited regarding family caregivers needs and preferences for support and whether the preferences change during the patient's illness trajectory. Therefore, the aim was to explore family caregivers' preferences for support from home care services over time when caring for a family member with cancer at the end of life who wished to die at home. METHODS: A qualitative method was applied according to Grounded Theory...
January 11, 2024: BMC Palliative Care
https://read.qxmd.com/read/38206961/protocol-of-a-mixed-method-research-design-to-study-medical-respite-programs-for-persons-experiencing-homelessness
#10
JOURNAL ARTICLE
Timothy P Daaleman, Joanne Johnson, Lillian Gelberg, Robert Agans, Donna J Biederman
Medical Respite Programs (MRPs) characterize a care model that has been developed to address the health care and social needs of persons experiencing homelessness by providing post-acute hospital care in a safe environment. Although this model has been shown to reduce hospitalizations, improve health outcomes and increase access to health services, prior studies of MRP programs and outcomes have been limited to individual sites and may not generalize to the population of individuals receiving MRP care. This study protocol describes a mixed method design to collect organizational, provider, and patient-level data from a sample of MRPs...
2024: PloS One
https://read.qxmd.com/read/38159087/a-panel-vector-autoregression-analysis-for-the-dynamics-of-medical-and-long-term-care-expenditures
#11
JOURNAL ARTICLE
Shinya Sugawara, Tsunehiro Ishihara, Susumu Kunisawa, Etsu Goto, Yuichi Imanaka
Although medical and long-term care expenditures for older adults are closely related, providing rigorous statistical analysis for their dynamic relationship is challenging. In this research, we propose a novel approach using the panel vector autoregression model to reveal the realized patterns of the interdependence. As an empirical application, we analyze monthly panel data on individuals in a city of Japan, where social insurance covers many formal services for long-term care. Our estimation results indicate the existence of intertemporal transition from expensive acute medical care to reasonable at-home medical care, then to at-home long-term care...
December 30, 2023: Health Economics
https://read.qxmd.com/read/38142144/provider-perceptions-of-challenges-and-facilitators-to-surgical-care-in-unhoused-patients-a-qualitative-analysis
#12
JOURNAL ARTICLE
Hannah Decker, Mukund Raguram, Hemal K Kanzaria, Michael Duke, Elizabeth Wick
BACKGROUND: Unhoused patients have worse surgical outcomes than the general population. However, the drivers of this inequity have not been studied. METHODS: We conducted 26 semi-structured interviews of clinicians who care for patients with surgical disease, using a purposive sampling strategy to intentionally recruit participants with significant experience caring for unhoused patients across different roles. We used thematic analysis to analyze the resulting data...
December 22, 2023: Surgery
https://read.qxmd.com/read/38134954/from-illness-management-to-quality-of-life-rethinking-consumer-health-informatics-opportunities-for-progressive-potentially-fatal-illnesses
#13
JOURNAL ARTICLE
Marcy G Antonio, Tiffany C Veinot
OBJECTIVES: Investigate how people with chronic obstructive pulmonary disease (COPD)-an example of a progressive, potentially fatal illness-are using digital technologies (DTs) to address illness experiences, outcomes and social connectedness. MATERIALS AND METHODS: A transformative mixed methods study was conducted in Canada with people with COPD (n = 77) or with a progressive lung condition (n = 6). Stage-1 interviews (n = 7) informed the stage-2 survey...
December 22, 2023: Journal of the American Medical Informatics Association: JAMIA
https://read.qxmd.com/read/38107084/lifetime-experience-of-childhood-abuse-and-neglect-among-high-school-students-at-debre-tabor-town-south-gondar-zone-northwest-ethiopia-an-institution-based-cross-sectional-study
#14
JOURNAL ARTICLE
Demewoz Kefale, Mastewal Endalew, Worku Necho Asferie, Solomon Demis, Tigabu Munye, Yohannes Tesfahun, Amare Simegn, Mahilet Wondim, Amare Kassaw, Gashaw Kerebeh, Demeke Mesfin Belay, Binyam Minuye, Shegaw Zeleke
BACKGROUND: Childhood abuse and neglect is defined as any intentional harm or mistreatment of a child that results in actual or potential harm to the child's health, survival and development. It has been linked to an increased risk of a wide range of serious short- and long-term medical and mental health problems. Although it is a complex societal issue, it receives limited research attention in the area. OBJECTIVE: To assess lifetime prevalence of childhood abuse and neglect among high school students in Debre Tabor town, south Gondar Zone, Northwest Ethiopia, 2022...
2023: Journal of Multidisciplinary Healthcare
https://read.qxmd.com/read/38088499/parents-preferences-for-respite-care-of-children-with-medical-complexity
#15
JOURNAL ARTICLE
Yoshiko Yamamoto, Ai Aoki, Hiroshi Fuji, Gang Chen, Timothy Bolt, Maiko Suto, Rintaro Mori, Katsuyasu Uchida, Kenji Takehara, Ruoyan Gai
BACKGROUND: The number of children with medical complexity (CMC) is increasing worldwide. For these children and their families, various forms of support are legislated; among them, short-stay respite care has a great unmet need. We examined such children's parents' preferences for respite care and their willingness to pay. METHODS: We used discrete choice experiments (DCEs) to estimate the parents' preferences and willingness to pay. Parents whose children used overnight short-stay respite services answered a questionnaire to compare two hypothetical facilities of respite care having seven attributes and three levels...
2023: Pediatrics International: Official Journal of the Japan Pediatric Society
https://read.qxmd.com/read/37955141/factors-associated-with-transition-from-community-to-permanent-residential-aged-care-following-stroke-a-linked-registry-data-study
#16
JOURNAL ARTICLE
Sarah E Westworth, David Ung, Lachlan L Dalli, Rebecca Barnden, Monique F Kilkenny, Velandai Srikanth, Natasha A Lannin, Margot E Lodge, Dominique A Cadilhac, Muideen T Olaiya, Nadine E Andrew
BACKGROUND: Understanding factors that influence the transition to permanent residential aged care following a stroke or transient ischemic attack may inform strategies to support people to live at home longer. We aimed to identify the demographic, clinical, and system factors that may influence the transition from living in the community to permanent residential care in the 6 to 18 months following stroke/transient ischemic attack. METHODS: Linked data cohort analysis of adults from Queensland and Victoria aged ≥65 years and registered in the Australian Stroke Clinical Registry (2012-2016) with a clinical diagnosis of stroke/transient ischemic attack and living in the community in the first 6 months post-hospital discharge...
December 2023: Stroke; a Journal of Cerebral Circulation
https://read.qxmd.com/read/37954463/developing-competencies-for-volunteer-navigators-to-support-caregivers-of-children-living-with-medical-complexity-a-mixed-method-e-delphi-study
#17
JOURNAL ARTICLE
Robyn Thomas, Barbara Pesut, Hal Siden, Michael Treschow, Gloria Puurveen
BACKGROUND: Providing specially trained volunteer navigators is one promising strategy for supporting the increasing number of family caregivers who are caring for children living with medical complexity. OBJECTIVE: The objective of this study was to develop consensus on the role and competencies required for volunteer navigators who support caregivers of children living with medical complexity. DESIGN: This was a mixed-method study using modified e-Delphi and focus group methods...
2023: Palliative care and social practice
https://read.qxmd.com/read/37949384/peer-and-parent-influences-on-youth-skateboarding-and-factors-that-affect-their-decision-to-return-to-the-sport-after-injury
#18
JOURNAL ARTICLE
Barbara A Morrongiello, Mackenzie Seasons, Emillie Erum, Emilie Arbour
Skateboarding is an increasingly popular sport among youth, despite the fact that they are a high-risk group for injuries during this activity. The purpose of this study was twofold: to explore youths' perceptions about the influences that peers and parents have on their skateboarding; and to identify factors that affect their decisions about returning to the sport after injury. Virtual semi-structured interviews were conducted with 26 youth, 14-17 years of age, who had experienced a medically-treated injury while skateboarding during the past year...
November 8, 2023: Psychology of Sport and Exercise
https://read.qxmd.com/read/37943474/factors-associated-with-psychotropic-medication-use-in-people-living-with-dementia-in-the-community-a-systematic-review-and-meta-analysis
#19
Kerryn L Loftus, Anne P F Wand, Juanita L Breen, Glenn E Hunt, Carmelle Peisah
BACKGROUND: There has been considerable focus on the use of psychotropic agents in people living with dementia in long-term care. However, psychotropic use often commences well before transitioning to long-term care. OBJECTIVES: To synthesize the available literature to identify factors associated with psychotropic medication use in people living with dementia in the community. METHODS: This PROSPERO-registered review reports findings from a comprehensive search of Embase, PsycINFO, and PubMed (including MEDLINE) databases according to predefined inclusion and exclusion criteria (2010-2022)...
December 2023: Drugs & Aging
https://read.qxmd.com/read/37916264/-fitting-the-pieces-together-the-experiences-of-caregivers-of-children-with-medical-complexity
#20
JOURNAL ARTICLE
Elise Hirt, Alyssa Wright, Allysa Kehring, Yinuo Wang, Vanessa Toraño, Jessika Boles
BACKGROUND AND OBJECTIVES: Families of children with medical complexity manage a multitude of care responsibilities that must be carefully coordinated alongside typical family roles and activities. Currently, little is known about this experience from the perspectives of caregivers; therefore, the purpose of this study was to explore the experience of caregiving for a child with medical complexity while identifying unmet medical and psychosocial needs. METHODS: Nineteen caregivers were recruited from the pediatric complex care clinic at an academic medical center in the United States...
November 2, 2023: Hospital Pediatrics
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