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Medical Respite

Shingisai Chando, Christian Young, Jonathan C Craig, Hasantha Gunasekera, Allison Tong
UNLABELLED: This study aims to describe parental experiences and perspectives of caring for a child with otitis media. We conducted a systematic review of qualitative studies on parental perspectives on caring for a child with otitis media. We searched electronic databases to July 2015. Seventeen studies involving 284 participants from six countries were included. We identified seven themes: diminishing competency (guilt over failure to identify symptoms, helpless and despairing, fear of complications, disempowered and dismissed); disrupting life schedules (disturbing sleep, interfering with work, burden on family); social isolation (stigma and judgement, sick consciousness); threatening normal development (delaying growth milestones, impairing interpersonal skills, impeding education); taking ownership (recognising symptoms, diagnostic closure, working the system, protecting against physical trauma, contingency planning); valuing support (needing respite, depending on community, clinician validation); and cherishing health (relief with treatment success, inspiring resilience)...
October 2016: European Journal of Pediatrics
Christine H Smith, Carol A Graham, Anthony R Herbert
AIM: The care of a child with a life-limiting condition proves an emotional, physical and financial strain on the family that provides care for their child. Respite care is one way which allows carers to receive some relief and support in the context of this burden of care. The provision of and the requirements for respite in this context is poorly understood. This survey aims to describe the types of respite care families receive, the respite that they would ideally receive and the barriers that prevent this...
August 23, 2016: Journal of Paediatrics and Child Health
Brent E Salvig, Alev H Gulum, Stephanie A Walters, Leigh B Edwards, T Neal Fourakre, Susan C Marvin, Michael S McKenzie, Michelle V Moseley, Ishrat J Ansari
OBJECTIVE: To assess the effect of pharmacist screening for osteoporosis risk with increased bone mineral density (BMD) testing. DESIGN: Prospective, quasi-experiment. SETTING: Veterans Affairs medical center Community Living Centers (CLC), home-based primary care, and outpatient geriatric clinic. PARTICIPANTS: Patients with a routine pharmacist interaction were included. Exclusion criteria included hospice, dialysis, and respite care...
2016: Consultant Pharmacist: the Journal of the American Society of Consultant Pharmacists
Timothy A Carey, Kellie Schouten, John Wakerman, John S Humphreys, Fred Miegel, Simon Murphy, Mick Arundell
BACKGROUND: In the Northern Territory (NT) there is a lack of respite services available to palliative care patients and their families. Indigenous people in the NT suffer substantially higher rates of poorly controlled chronic disease and premature mortality associated with poor heath than the Australian population as a whole. The need for a flexible, community based, culturally appropriate respite service in Alice Springs was identified and, after the service had been operating for 10 months, a qualitative evaluation was conducted to investigate the experiences of people involved in the use and operation of the service...
2016: BMC Palliative Care
Lisa K McIntyre, Saman Arbabi, Ellen F Robinson, Ronald V Maier
IMPORTANCE: Previous studies investigating patients at risk for hospital readmissions focus on medical services and have found chronic conditions as contributors. Little is known, however, of the characteristics of patients readmitted from surgical services. OBJECTIVE: Surgical patients readmitted within 30 days following discharge were analyzed to identify opportunities for intervention in a cohort that may differ from the medical population. DESIGN, SETTING, AND PARTICIPANTS: Medical record review of patients readmitted to any service within 30 days of discharge from the general surgery service to characterize index and readmission data between July 1, 2014, and June 30, 2015, at a Level I trauma center and safety-net hospital...
September 1, 2016: JAMA Surgery
Ayumi Igarashi, Noriko Yamamoto-Mitani, Satoru Yoshie, Katsuya Iijima
AIM: Increasing service use under the long-term care insurance (LTCI) system in Japan requires a comprehensive understanding of how the services are actually used. This study aimed to identify patterns of LTCI service use and to examine the characteristics of the patterns. METHODS: We analyzed data from a population of 4,339 older adults living in the community who were certified as "Needing Care" and were using at least one LTCI service in a suburban municipality of Japan...
June 8, 2016: Geriatrics & Gerontology International
Peter Camfield, Carol Camfield, Kathleen Nolan
A child with Dravet syndrome shakes family life to the core. Dravet syndrome usually has three phases: (1) up to 1-1½ years: with episodes of febrile status epilepticus but normal development; (2) age 1½ to ~6-10 years: with frequent seizures of varying types, developmental stagnation, behavioural and sleep problems; (3) after ~10 years: improvement in seizures, deteriorating gait, intellectual disability but some developmental gains. Complete seizure control is rare-simply prescribing medication is inadequate to help families...
June 2016: Canadian Journal of Neurological Sciences. le Journal Canadien des Sciences Neurologiques
Silke Kuske, Martina Roes, Sabine Bartholomeyczik
INTRODUCTION: Respite care for people with dementia is increasingly promoted. However, little is known about the safety-relevant aspects of handover between home and respite care facilities for people with dementia. We thus focus on the safety-relevant information exchange taking place at the admission to and the discharge from respite care and discuss the need for improvement. METHODS: A pilot online survey with staff in management positions in different types of respite care facilities in Germany was conducted between April and June 2014...
2016: Zeitschrift Für Evidenz, Fortbildung und Qualität Im Gesundheitswesen
Chelsea E Manheim, Leah M Haverhals, Jacqueline Jones, Cari R Levy
The Medical Foster Home program is a unique long-term care program coordinated by the Veterans Health Administration. The program pairs Veterans with private, 24-hour a day community-based caregivers who often care for Veterans until the end of life. This qualitative study explored the experiences of care coordination for Medical Foster Home Veterans at the end of life with eight Veterans' family members, five Medical Foster Home caregivers, and seven Veterans Health Administration Home-Based Primary Care team members...
January 2016: Journal of Social Work in End-of-life & Palliative Care
Alison M Beieler, Timothy H Dellit, Jeannie D Chan, Shireesha Dhanireddy, Leslie K Enzian, Tamera J Stone, Edward Dwyer-O'Connor, John B Lynch
BACKGROUND: Outpatient parenteral antimicrobial therapy (OPAT) is a safe way to administer intravenous (IV) antimicrobial therapy to patients with the potential to decrease hospital length of stay (LOS). Often, homeless patients with complex infections, who could otherwise be treated as an outpatient, remain in the hospital for the duration of IV antibiotic treatment. Injection drug use (IDU) is a barrier to OPAT. OBJECTIVE: To evaluate our experience with administering OPAT to homeless patients at a medical respite facility and determine if patients could complete a successful course of antibiotics...
August 2016: Journal of Hospital Medicine: An Official Publication of the Society of Hospital Medicine
Julia Zur, Sabriya Linton, Holly Mead
Medical respite programs provide nursing care and case management to individuals experiencing homelessness following hospitalization for an acute medical problem. One goal of these programs is to link clients to outpatient providers to decrease their reliance on hospital services. Through qualitative interviews with staff members (n = 8) and clients (n = 14) at a medical respite program, we explored processes of, and challenges associated with, linking clients to outpatient care. Six themes were identified, which offer insight about important considerations when linking clients to outpatient providers and highlight the value of medical respite programs for this population...
2016: Journal of Community Health Nursing
Terrill Bravender, Hannah Elkus, Hannah Lange
PURPOSE: The serious physical complications of eating disorders in adolescents may necessitate inpatient medical stabilization, yet little is known about how patients and their parents perceive the hospitalization experience. METHODS: We identified 82 patients admitted to a large urban hospital for medical stabilization between January 1, 2010 and June 30, 2013. Twenty-three patients and 32 parents completed directed telephone interviews. Respondents rated components of the inpatient protocol using five-point Likert scales and answered open-ended questions regarding hospitalization...
April 6, 2016: Eating and Weight Disorders: EWD
J Paul Leigh, Scott D Grosse, Diana Cassady, Joy Melnikow, Irva Hertz-Picciotto
BACKGROUND: Few autism spectrum disorder (ASD) studies have estimated non-medical costs for treatment or addressed possible differences in provision of services across gender, race-ethnic, age or demographic or expenditure categories, especially among adults. METHODS: The California Department of Developmental Services (CDDS) provides services to residents with developmental disabilities. CDDS provided aggregate data on primarily non-medical spending for fiscal year 2012-2013 for persons with ASD with or without intellectual disability (ID) (main sample, n = 42,274), and two sub-samples: ASD only (n = 30,164), and ASD+ID (n = 12,110)...
2016: PloS One
Abigail Sabey, Michael Harris, Clare van Hamel
BACKGROUND: General practice is a popular placement in the second year of Foundation training. Evaluations suggest this is a positive experience for most trainee doctors and benefits their perceptions of primary care, but the impact on primary care supervisors has not been considered. At a time when placements may need to increase, understanding the experience of the GP supervisors responsible for these placements is important. AIM: To explore the views, experiences and needs of GPs who supervise F2 doctors in their practices including their perceptions of the benefits to individuals and practices...
March 2016: Education for Primary Care
Teal W Benevides, Henry J Carretta, David S Mandell
OBJECTIVE: Identifying racial and ethnic differences in perceived need for treatment among families of children with autism spectrum disorder (ASD) will improve understanding of disparities in care seeking. We described racial and ethnic differences in perceived need for services that children with ASD and their families frequently use. METHODS: We conducted bivariate analyses of racial and ethnic categories and perceived need for 6 common services used by children with ASD as found in the 2005 to 2006 (n = 2123) and the 2009 to 2010 (n = 3055) National Survey of Children With Special Health Care Needs data sets...
February 2016: Pediatrics
Kelly M Doran, S Ryan Greysen, Alison Cunningham, Kathleen Tynan-McKiernan, Georgina I Lucas, Marjorie S Rosenthal
This article discusses how community-based participatory research (CBPR) on hospital care transitions in New Haven, Connecticut led to the development of a new medical respite program to better serve patients who are homeless. Key insights include: • Homelessness is an important driver of hospital utilization and must be addressed in efforts to decrease hospital readmissions. • Hospitals and community organizations often serve a shared patient/client base and can work together to develop innovative programs that are beneficial to all parties...
December 2015: Healthcare
Janice Du Mont, Daisy Kosa, Sheila Macdonald, Shannon Elliot, Mark Yaffe
OBJECTIVE: We have undertaken a multi-phase, multi-method program of research to develop, implement, and evaluate a comprehensive hospital-based nurse examiner elder abuse intervention that addresses the complex functional, social, forensic, and medical needs of older women and men. In this study, we determined the importance of possible participating professionals and respective roles and responsibilities within the intervention. METHODS: Using a modified Delphi methodology, recommended professionals and their associated roles and responsibilities were generated from a systematic scoping review of relevant scholarly and grey literatures...
2015: PloS One
Krista Keilty, Eyal Cohen
Policy to support informal caregivers is a critical health policy issue in Canada. Lessons may be learned from the perspectives and experience in the child health field with applicability for all cared-for persons and their informal caregivers. Familycentred care addresses the centrality of the family caregiver in the design and delivery of health services. A life course approach focuses on key periods of transition and downstream effects facing caregivers over their lifetime. The medical home model where care delivery is more coordinated offers potential direct cost savings for both family caregivers and the healthcare system...
2015: HealthcarePapers
Dennis Z Kuo, Jay G Berry, Laurie Glader, Melinda J Morin, Sarah Johaningsmeir, John Gordon
OBJECTIVE: To describe family-reported health service needs of children with medical complexity (CMC) and to assess which needs are more often addressed in a tertiary care center-based structured clinical program for CMC. STUDY DESIGN: Mailed survey to families of CMC enrolled in a structured-care program providing care coordination and oversight at 1 of 3 children's hospitals. Outcomes included receipt of 14 specific health service needs. Paired t tests compared unmet health care needs prior to and following program enrollment...
February 2016: Journal of Pediatrics
Mona Tamannai, Joel Kaah, Glenn Mbah, Joseph Ndimba, Catherine D'Souza, Paul Wharin, Peter B Hesseling
BACKGROUND: Palliative care (PC) is the most appropriate treatment for patients with life-limiting, incurable diseases, but it is a relatively new concept in sub-Saharan Africa (SSA). A lack of curative treatment options for some conditions creates a great need for PC, but such services are rarely provided in SSA. More research into PC in SSA is urgently needed to create an evidence base to confirm the importance of appropriate PC services. OBJECTIVES: To gain a better understanding of the needs of patients and their families visited by a children's PC nurse in Cameroon and to identify aspects of the service that can be improved...
July 2015: International Journal of Palliative Nursing
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