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Caregiver Distress

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https://www.readbyqxmd.com/read/28530312/-the-second-victim-treating-the-health-care-providers
#1
REVIEW
Shimrit Shor, Orna Tal, Ron Maymon
During their professional careers, physicians and other health care providers are repeatedly exposed to emotional stress. This is usually secondary to coping with the results of a medical error or complicated medical event. Generally, in the above cases, the patient and his/her family are in the center of the medical system, being "the first victim" of such an event, while the involved caregiver, who provided the medical service, is categorized as the "second victim". "Second victims" may feel anxiety, fear, guilt or anger and experience social withdrawal, which may lead to troubling memories, depression and insomnia...
January 2017: Harefuah
https://www.readbyqxmd.com/read/28527134/comparison-of-nurses-and-general-caregivers-knowledge-attitude-and-practice-on-medication-administration-process-and-their-distress-level-in-long-term-care-facilities-across-penang-kuala-lumpur-and-selangor-of-malaysia
#2
Balamurugan Tangiisuran, Sok Cin Tye, May Yen Leow, Rahmat Awang
AIM: Comparing nurses and general caregivers' knowledge, attitude, and practices (KAP) on medication administration process in long-term care (LTC) setting and an assessment of their stress, anxiety, and depression (SAD) level. METHODS: A cross-sectional survey was conducted among nurses and general caregivers working in LTC using a validated questionnaire. Consisting of demographic characteristics (Section 1); 40 questions on KAP (Section 2); and assessment of Depression, Anxiety, and Stress Scale (DASS-21) (Section 3)...
May 19, 2017: Aging Clinical and Experimental Research
https://www.readbyqxmd.com/read/28520673/behavioral-clinical-trials-in-moderate-to-severe-pediatric-traumatic-brain-injury-challenges-potential-solutions-and-lessons-learned
#3
Shari L Wade, Brad G Kurowski
The purpose of this commentary is to outline the challenges encountered when conducting clinical trials of interventions for pediatric traumatic brain injury (TBI) and share potential solutions for surmounting these issues. This commentary grows out of our experience implementing 8 randomized clinical trials (RCTs) of family-centered interventions to reduce child behavior problems and caregiver/parent distress following pediatric brain injury. These studies, involving more than 600 participants from 8 clinical centers, support the feasibility of conducting RCTs with children who have sustained TBIs while highlighting potential challenges and threats to validity...
May 17, 2017: Journal of Head Trauma Rehabilitation
https://www.readbyqxmd.com/read/28517041/modifying-illness-beliefs-in-recent-onset-psychosis-carers-evaluating-the-impact-of-a-cognitively-focused-brief-group-intervention-in-a-routine-service
#4
Juliana Onwumere, Naomi Glover, Sarah Whittaker, Shireen Rahim, Lai Chu Man, Gareth James, Sanna Khan, Roya Afsharzadegan, Saal Seneviratne, Raythe Harvey, Anna Georgiades, David Raune
AIMS: At first-episode psychosis (FEP), many patients will be routed within familial networks and supported by informal carers who are predominately close family members such as parents. Carer burden, distress and poorer coping styles are associated with different illness beliefs. The current study sought to examine the impact and acceptability of a 3 session, cognitively informed, group intervention targeting illness beliefs previously linked to distress and poorer caregiving experiences in FEP carers...
May 18, 2017: Early Intervention in Psychiatry
https://www.readbyqxmd.com/read/28509367/measuring-change-in-perceived-well-being-of-family-caregivers-validation-of-the-spanish-version-of-the-perceived-change-index-pci-s-in-chilean-dementia-caregivers
#5
José M Aravena, Cecilia Albala, Laura N Gitlin
OBJECTIVE: Few instruments evaluate family caregiver perceptions of challenges caring for persons with dementia and improvement or worsening in these areas. To address this measurement gap, we examine psychometric properties of a Spanish version of the 13-item Perceived Change Index (PCI-S), originally validated with English-speaking caregivers. METHODS: Cross-sectional study with 94 caregivers of persons with mild to moderate dementia in Chile. Interviews included caregiver demographics, burden, health perception, distress with behaviours, dementia severity, behavioural symptoms and functionality...
May 16, 2017: International Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/28499745/distress-in-caregivers-accompanying-patients-to-an-emergency-department-a-scoping-review
#6
Thom Ringer, Daniel Moller, Adam Mutsaers
BACKGROUND: Despite substantial research interest in caregiver distress in the emergency department (ED), no recent review of the literature exists. OBJECTIVE: Our aims were to map primary research on caregiver distress in the ED, synthesize key concepts underpinning the literature, identify gaps, and provide guidance for future work. METHODS: We used a five-stage scoping review with tandem screening and data extraction. RESULTS: Of 2121 records, 29 studies were included...
May 9, 2017: Journal of Emergency Medicine
https://www.readbyqxmd.com/read/28499319/-aftermath-of-death-of-a-seriously-ill-family-member-online-survey-of-psychological-distress-and-care-satisfaction-of-relatives
#7
Antje Gottschalk-Fleischer, Norbert Köhler, Elmar Brähler, Anja Mehnert, Heide Götze
Aim of the study The aim of the study was to assess the level of psychosocial distress and satisfaction with care in family caregivers after the death of a close relative. Method Anxiety and depression (HADS) of family caregivers were evaluated in both bereaved family caregivers and a comparable group from the general population. Furthermore, satisfaction with care (ZUF-8) and social support (HOPE-Module, ESSI) were assessed after the patients had died. Regression models were employed to analyze associations between psychological distress and sociodemographic and care-related variables...
May 12, 2017: Das Gesundheitswesen
https://www.readbyqxmd.com/read/28486962/quality-of-life-psychological-burden-needs-and-satisfaction-during-specialized-inpatient-palliative-care-in-family-caregivers-of-advanced-cancer-patients
#8
Anneke Ullrich, Lilian Ascherfeld, Gabriella Marx, Carsten Bokemeyer, Corinna Bergelt, Karin Oechsle
BACKGROUND: This pilot study aimed to investigate quality of life, psychological burden, unmet needs, and care satisfaction in family caregivers of advanced cancer patients (FCs) during specialized inpatient palliative care (SIPC) and to test feasibility and acceptance of the questionnaire survey. METHODS: During a period of 12 weeks, FCs were recruited consecutively within 72 h after the patient's admission. They completed validated scales on several outcomes: quality of life (SF-8), distress (DT), anxiety (GAD-7), depression (PHQ-9), supportive needs (FIN), palliative care outcome (POS), and satisfaction with care (FAMCARE-2)...
May 10, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28483100/caregiver-burden-in-alzheimer-type-dementia-and-psychosis-a-comparative-study-from-india
#9
P Sinha, N G Desai, O Prakash, S Kushwaha, C B Tripathi
BACKGROUND: Caregiver burden in dementia is an important area of research. Providing care for a relative can be a potent source of chronic stress and can have deleterious consequences for both the physical and emotional health of caregivers. This study aims to evaluate the burden of care in caregivers of patients with Alzheimer-type dementia and compare it with elderly psychosis; and to also study the factors that influence burden of care in Alzheimer's dementia. METHODS: Thirty-two caregiver-patient dyads of Alzheimer-type dementia were compared with thirty-two caregiver-patient dyads of psychosis...
April 2017: Asian Journal of Psychiatry
https://www.readbyqxmd.com/read/28481652/when-a-parent-suffers-abi-investigation-of-emotional-distress-in-children
#10
A Redolfi, G Bartolini, M Gugliotta, A Maietti, P Pietrapiana, S Sapienza, A D'Amato, A Mazzucchi
PRIMARY OBJECTIVE: To investigate the type of emotional and behavioural impact that having a parent with a severe acquired brain injury (ABI) has on children during the first period of adjustment. METHODS AND PROCEDURE: The study involved 25 couples in which one of the spouses was affected by ABI, and their 35 children (3-14 years). The children attended three sessions with a psychologist aimed at identifying their spontaneous playing and relational behaviour by means of a grid created on the basis of ICD-10 criteria...
May 8, 2017: Brain Injury: [BI]
https://www.readbyqxmd.com/read/28475220/caring-for-a-centenarian-parent-an-exploratory-study-on-role-strains-and-psychological-distress
#11
Daniela Brandão, Oscar Ribeiro, Mónica Oliveira, Constança Paúl
OBJECTIVES: This study examined the main sources of strain and the presence of psychological distress in a sample of centenarians' children who assumed the role of primary caregivers. METHOD: A sample of 43 children (M age = 67.10 ± 6.67 years; 90.7% female) caring for a centenarian parent was interviewed and asked about their overall caregiving experience. Information on caregiving burden (Zarit Burden Interview) and psychological distress (Hospital Anxiety and Depression Scale) was also obtained...
May 5, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28474241/reported-distress-in-patients-living-with-advanced-cancer-changes-pre-post-interdisciplinary-palliative-rehabilitation
#12
Andrea Feldstain, Neil MacDonald, Ravi Bhargava, Martin Chasen
PURPOSE: Patients are living extended life with advanced cancer making it chronic rather than imminently terminal. Literature on the experience of living with advanced cancer is emerging, indicating ongoing polysymptomatic burden, lack of information, burnout (patients and caregivers), and emotional concerns, all of which contribute to emotional distress. The interdisciplinary Ottawa Palliative Rehabilitation Program (PRP) offers a scarce clinical resource for this population. The current research aimed to explore changes in self-reported distress for patients who completed the PRP, from baseline to program completion...
May 4, 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/28467640/observing-the-influence-of-mindfulness-and-attachment-styles-through-mother-and-infant-interaction-a-longitudinal-study
#13
Judy A Pickard, Michelle Townsend, Peter Caputi, Brin F S Grenyer
The cross-generational influence of attachment security or insecurity on caregiving is well-established. Recently, research has focused on mindfulness as a potential variable to interrupt the transmission of insecure attachment and disrupt its effect across generations. Thirty-six pregnant female participants completed the Five Facets Mindfulness Questionnaire and Relationship Questionnaire-Clinical Version at 30 weeks' gestation. Following the infant's birth, mothers and their babies participated in a video-recorded feeding session at 7 to 10 weeks' postpartum...
May 3, 2017: Infant Mental Health Journal
https://www.readbyqxmd.com/read/28464972/the-influence-of-psychological-factors-on-the-burden-of-caregivers-of-patients-with-advanced-cancer-resiliency-and-caregiver-burden
#14
Carolina Palacio, Alicia Krikorian, Joaquín T Limonero
OBJECTIVE: The aim of our study was to identify the influence of such psychological factors as emotional intelligence and perceived competence on caregiver burden in those who care for patients with advanced cancer. METHOD: A total of 50 informal caregivers completed self-report assessments of resilience, perceived competence, emotional regulation, positive aspects of care, emotional distress, and burden. We conducted a quantitative study with a cross-sectional design...
May 3, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28454612/postoperative-distress-of-orthopedic-ambulatory-surgery-patients
#15
Jan Odom-Forren, Deborah B Reed, Carrell Rush
Patients who undergo orthopedic ambulatory surgery have reported high levels of symptom distress during recovery at home. Content analysis of this qualitative descriptive study identified techniques of symptom management that effectively reduce postoperative symptom distress after orthopedic ambulatory surgery and provided insight into facilitators and barriers to postsurgery self-management. Focus groups consisted of 19 patients and caregivers recruited from a university orthopedic surgery office. The authors identified the common themes as distressing symptoms and consequences of surgery, management of symptoms, and self-management facilitators and barriers...
May 2017: AORN Journal
https://www.readbyqxmd.com/read/28438877/it-based-psychosocial-distress-screening-in-patients-with-sarcoma-and-parental-caregivers-via-disease-specific-online-social-media-communities
#16
Florian Pohlig, Ulrich Lenze, Heinrich M L Muhlhofer, Florian W Lenze, Johannes Schauwecker, Carolin Knebel, Tanja Zimmermann, Peter Herschbach
BACKGROUND: Psychosocial distress can be frequently observed in patients with sarcoma, depicting a relevant clinical problem. However, prospective data collection on psychosocial distress in patients with rare tumors is often time-consuming. In this context, social media such as Facebook can serve as a potential platform to expand research. The aim of this study was to assess the feasibility of psychosocial distress screening in patients with osteosarcoma and Ewing's sarcoma via social media...
May 2017: In Vivo
https://www.readbyqxmd.com/read/28437205/-she-would-be-flailing-around-distressed-the-critical-role-of-home-based-palliative-care-for-patients-with-advanced-cancer
#17
Brook A Calton, Nicole Thompson, Nancy Shepard, Redwing Keyssar, Kanan Patel, Virginia Dzul-Church, Helen Kao, Christine Ritchie, Michael W Rabow
BACKGROUND: Patients with advanced cancer experience significant symptoms, ineffective treatments, and hospice underutilization. Home-based palliative care (HBPC) may fill a service gap for patients who require intensive home management, but are not enrolled in hospice. Even as data emerge on the utilization impacts of HBPC, other impacts are not as well known. METHODS: We describe findings of a pilot project in HBPC, Community Bridges (CB), for patients with advanced cancer...
February 16, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28433550/evaluation-of-a-telephone-delivered-community-based-collaborative-care-management-program-for-caregivers-of-older-adults-with-dementia
#18
Shahrzad Mavandadi, Laura O Wray, Suzanne DiFilippo, Joel Streim, David Oslin
OBJECTIVES: To evaluate whether a community-based, telephone-delivered, brief patient/caregiver-centered collaborative dementia care management intervention is associated with improved caregiver and care recipient (CR) outcomes. DESIGN: Longitudinal program evaluation of a clinical intervention; assessments at baseline and 3- and 6-month follow-up. SETTING: General community. PARTICIPANTS: Caregivers (N = 440) of older, community-dwelling, low-income CRs prescribed a psychotropic medication by a primary care provider who met criteria for dementia and were enrolled in the SUpporting Seniors Receiving Treatment And INtervention (SUSTAIN) program for older adults...
March 27, 2017: American Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/28429405/child-body-mass-index-genotype-and-parenting-in-the-prediction-of-restrictive-feeding
#19
K K Bost, M Teran-Garcia, S M Donovan, B H Fiese
BACKGROUND: Restrictive feeding is implicated in pediatric obesity, and caregivers increase controlling feeding practices on the basis of higher child weight status. However, few studies have examined how child genetic and parenting characteristics together impact restrictive feeding. OBJECTIVES: We examined whether child body mass index (BMI) status predicts caregiver use of restrictive feeding and if this association is moderated by (i) caregiver strategies to manage their children's distress and (ii) child variations in the catechol-O-methyltransferase (COMT) gene (Val(158) Met, rs4680)...
April 21, 2017: Pediatric Obesity
https://www.readbyqxmd.com/read/28428813/perinatal-depression-in-nigeria-perspectives-of-women-family-caregivers-and-health-care-providers
#20
Ademola Adeponle, Danielle Groleau, Lola Kola, Laurence J Kirmayer, Oye Gureje
BACKGROUND: Perinatal maternal depression is common and undertreated in many sub-Saharan African countries, including Nigeria. While culture shapes the social determinants and expression of depressive symptoms, there is a dearth of research investigating these processes in African contexts. METHODS: To address this gap, we conducted in-depth interviews with 14 women with perinatal depression, 14 of their family caregivers and 11 health providers, using the McGill Illness Narrative Interview as part of a larger trial of a stepped-care intervention...
2017: International Journal of Mental Health Systems
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