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Caregiver Distress

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https://www.readbyqxmd.com/read/28097515/distress-is-interdependent-in-patients-and-caregivers-with-newly-diagnosed-incurable-cancers
#1
Jamie M Jacobs, Kelly M Shaffer, Ryan D Nipp, Joel N Fishbein, James MacDonald, Areej El-Jawahri, William F Pirl, Vicki A Jackson, Elyse R Park, Jennifer S Temel, Joseph A Greer
BACKGROUND: Individuals with advanced, incurable cancer often experience high physical and psychological symptom burden. Family and friend caregivers are at risk for emotional distress. PURPOSE: The aim of the study is to investigate the interrelationship of distress in patient-caregiver dyads at the time of newly diagnosed incurable cancer. METHODS: From May 2011 to July 2015, within 8 weeks of diagnosis of advanced lung or noncolorectal gastrointestinal cancer, 350 patients and 275 family caregivers were enrolled in a randomized controlled trial of early palliative care...
January 17, 2017: Annals of Behavioral Medicine: a Publication of the Society of Behavioral Medicine
https://www.readbyqxmd.com/read/28096023/communications-with-health-professionals-and-psychological-distress-in-family-caregivers-to-cancer-patients-a-model-based-on-stress-coping-theory
#2
Young Sam Oh
BACKGROUND: In cancer care settings, family caregivers often experience negative or little communication with the health professionals, and this negative communication and limited health-related information causes psychological distress in family caregivers to cancer patients. AIM: The first aim of this research is to investigate the relationship between communication with health professionals and psychological distress in family caregivers. The second aim is to investigate the mediating effects of self-efficacy in this hypothetical model...
February 2017: Applied Nursing Research: ANR
https://www.readbyqxmd.com/read/28090619/the-evolving-approach-to-management-of-cancer-cachexia
#3
REVIEW
Rony Dev, Angelique Wong, David Hui, Eduardo Bruera
Weight loss is distressing to cancer patients and caregivers. Anorexia/cachexia syndrome is characterized by lipolysis and the loss of lean body mass, and is not reversible by increasing caloric intake. The pathophysiology of cancer cachexia is complex and includes symptoms that impact caloric intake, as well as chronic inflammation, hypermetabolism, and hormonal alterations. Cancer patients require routine screening for cachexia and, ideally, interventions should be initiated in the early stages of weight loss...
January 15, 2017: Oncology (Williston Park, NY)
https://www.readbyqxmd.com/read/28087202/family-adaptation-to-cerebral-palsy-in-adolescents-a-european-multicenter-study
#4
Audrey Guyard, Susan I Michelsen, Catherine Arnaud, Jerome Fauconnier
BACKGROUND AND AIM: Factors promoting family adaptation to child's disability are poorly studied together. The aim of the study was to describe the family adaptation to disability and to identify determinants associated with using a global theoretical model. MATERIALS AND METHODS: 286 families of teenagers [13-17 years] with cerebral palsy (CP) from 4 European disability registers were included and visited at home. Face to face interviews were performed in order to measure parental distress, perceived impact in various dimensions of family life, family resources and stressors...
January 10, 2017: Research in Developmental Disabilities
https://www.readbyqxmd.com/read/28086861/managing-shades-of-grey-a-focus-group-study-exploring-community-dwellers-views-on-advance-care-planning-in-older-people
#5
Natasha Michael, Clare O'Callaghan, Emma Sayers
BACKGROUND: Community-dwelling consumers of healthcare are increasing, many aging with life-limiting conditions and deteriorating cognition. However, few have had advance care planning discussions or completed documentation to ensure future care preferences are acted upon. This study examines the awareness, attitudes, and experiences of advance care planning amongst older people and unrelated offspring/caregivers of older people residing in the community. METHODS: Qualitative descriptive research, which included focus groups with older people (55+ years) and older people's offspring/caregivers living in an Australian city and surrounding rural region...
January 13, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28078502/engagement-in-health-promoting-behaviors-and-patient-caregiver-interdependence-in-dyads-facing-advanced-cancer-an-exploratory-study
#6
Katrina R Ellis, Mary R Janevic, Trace Kershaw, Cleopatra H Caldwell, Nancy K Janz, Laurel Northouse
Diet and exercise are important for the wellbeing of people with cancer and their family caregivers. Unfortunately, little is known about their behaviors over time or factors that may influence their engagement in these behaviors. This exploratory study examined the influence of chronic conditions, symptom distress, and perceived social support on exercise and diet behaviors of patients with advanced cancer and their caregivers using the actor-partner interdependence mediation model (APIMeM) and interdependence theory as guiding frameworks...
January 11, 2017: Journal of Behavioral Medicine
https://www.readbyqxmd.com/read/28077831/-effects-of-home-care-services-use-by-older-adults-on-family-caregiver-distress
#7
Jiyeon Kim, Hongsoo Kim
PURPOSE: The purpose of this study was to examine the association between utilization of home care services under the national long-term care insurance system and family caregiver distress. METHODS: A secondary data analysis was conducted in this study using data collected in 2011 and 2012 from the Korean version of International Resident Assessment Instrument (interRAI) Home Care assessment system. The study sample included 228 clients receiving community based home care and their family caregivers in Korea...
December 2016: Journal of Korean Academy of Nursing
https://www.readbyqxmd.com/read/28059619/comparison-of-iatrogenic-pain-between-rotavirus-vaccination-before-and-after-vaccine-injection-in-2-month-old-infants
#8
Hui-Chu Yin, Whei-Mei Shih, Hsiu-Lan Lee, Huei-Jing Yang, Yu-Li Chen, Shao-Wen Cheng, Chun-Yuh Yang, Ya-Wen Chiu, Yi-Hao Weng
Oral rotavirus vaccine (RV) administration in conjunction with other injectable vaccines has been used worldwide. However, whether the sequence of RV administration is associated with the reduction of injection-induced pain remains unclear. In this randomized controlled trial, we enrolled 6-12-wk-old healthy infants. The pain response of the infants was scored on the basis of their crying, irritability, facial expression, gagging and distress. A multivariate logistic regression model was used to compare the pain response after adjustment for possible confounders...
January 6, 2017: Human Vaccines & Immunotherapeutics
https://www.readbyqxmd.com/read/28056843/the-influence-of-day-care-centres-designed-for-people-with-dementia-on-family-caregivers-a-qualitative-study
#9
Signe Tretteteig, Solfrid Vatne, Anne Marie Mork Rokstad
BACKGROUND: Dementia is one of the most challenging age-related illnesses for family caregivers, whose care-related burden is well known. Research indicates that day care centres (DCCs) can reduce the caregiver burden and help family caregivers to cope with demands; however, the current body of knowledge is still tentative and inconsistent, and more research is recommended. The aim of this study is to provide an extended understanding of the situation of family caregivers and to examine to what extent DCCs can meet their need for support and respite...
January 5, 2017: BMC Geriatrics
https://www.readbyqxmd.com/read/28046020/response-to-infant-cry-in-clinically-depressed-and-non-depressed-mothers
#10
Gianluca Esposito, Nanmathi Manian, Anna Truzzi, Marc H Bornstein
BACKGROUND: Bowlby and Ainsworth hypothesized that maternal responsiveness is displayed in the context of infant distress. Depressed mothers are less responsive to infant distress vocalizations (cry) than non-depressed mothers. The present study focuses on acoustical components of infant cry that give rise to responsive caregiving in clinically depressed (n = 30) compared with non-depressed mothers (n = 30) in the natural setting of the home. METHODS: Analyses of infant and mother behaviors followed three paths: (1) tests of group differences in acoustic characteristics of infant cry, (2) tests of group differences of mothers' behaviors during their infant's crying, and (3) tree-based modeling to ascertain which variable(s) best predict maternal behaviors during infant cry...
2017: PloS One
https://www.readbyqxmd.com/read/28042073/predictors-of-complicated-grief-and-depression-in-bereaved-caregivers-a-nationwide-prospective-cohort-study
#11
Mette Kjaergaard Nielsen, Mette Asbjoern Neergaard, Anders Bonde Jensen, Peter Vedsted, Flemming Bro, Mai-Britt Guldin
CONTEXT: Complicated grief and depressive symptoms in bereaved caregivers have been associated with female gender, spousal relation and pre-loss psychological distress, but population-based, prospective studies are scarce. OBJECTIVES: We aimed to investigate whether severe pre-loss grief and depressive symptoms, caregiver burden, preparedness for death, communication about dying and socio-economic factors predicted complicated grief and post-loss depressive symptoms...
December 29, 2016: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28035924/the-effect-of-the-association-between-donepezil-and-choline-alphoscerate-on-behavioral-disturbances-in-alzheimer-s-disease-interim-results-of-the-ascomalva-trial
#12
Anna Carotenuto, Raffaele Rea, Enea Traini, Angiola Maria Fasanaro, Giovanna Ricci, Valentino Manzo, Francesco Amenta
BACKGROUND: Behavioral and psychological symptoms of dementia (BPSD) are a group of psychological reactions, psychiatric symptoms, and behaviors commonly found in Alzheimer's disease (AD). Four clusters of BPSD have been described: mood disorders (depression, anxiety, and apathy), psychotic symptoms (delusions and hallucinations), aberrant motor behaviors (pacing, wandering, and other purposeless behaviors), and inappropriate behaviors (agitation, disinhibition, and euphoria). Most of them are attributed to acetylcholine deficiency...
December 30, 2016: Journal of Alzheimer's Disease: JAD
https://www.readbyqxmd.com/read/28035740/hospital-staff-experiences-of-their-relationships-with-adults-who-self-harm-a-meta-synthesis
#13
REVIEW
Sophie O'Connor, Lesley Glover
PURPOSE: This review aimed to synthesize qualitative literature exploring inpatient hospital staff experiences of their relationships with people who self-harm. METHODS: Nine studies were identified from a systematic search of five research databases. Papers included the experiences of physical health and mental health staff working in inpatient settings. The studies employed various qualitative research methods and were appraised using an adapted quality assessment tool (Tong, Sainsbury, & Craig, )...
December 30, 2016: Psychology and Psychotherapy
https://www.readbyqxmd.com/read/28032249/anxiety-and-depressive-symptoms-among-two-seriously-medically-ill-populations-and-their-family-caregivers-a-comparison-and-clinical-implications
#14
Kelly M Shaffer, Jamie M Jacobs, Jessica N Coleman, Jennifer S Temel, Jonathan Rosand, Joseph A Greer, Ana-Maria Vranceanu
BACKGROUND: Anxiety and depression are common among patients with acute illness and their families. In oncology, psychosocial services addressing these symptoms are increasingly part of regular practice. Less is known about psychiatric distress among patients with acute neurological injury (ANI) and their family caregivers. To highlight this inequity in psychosocial intervention across medical services, we compared anxiety and depressive symptomatology shortly following diagnosis among patients facing incurable cancer or ANI and their family caregivers...
December 28, 2016: Neurocritical Care
https://www.readbyqxmd.com/read/28029712/caregiver-patient-and-nurse-visit-communication-patterns-in-cancer-home-hospice
#15
Maija Reblin, Margaret Clayton, Jiayun Xu, Jennifer Hulett, Seth Latimer, Gary Donaldson, Lee Ellington
OBJECTIVE: Few studies have examined the triadic communication between patients, spouse caregivers, and nurses in the home hospice setting. Thus, little is known about the types of communication patterns that unfold. The goals of the study were to first, identify common patterns of communication in home hospice nurse-patient-caregiver home hospice visits and second, to identify nurse, caregiver-patient dyad, and visit characteristics that predict visit communication patterns. METHOD: Nurses (n = 58) and hospice cancer patient and spouse caregiver dyads (n = 101; 202 individuals) were recruited from 10 hospice agencies...
December 28, 2016: Psycho-oncology
https://www.readbyqxmd.com/read/28028042/mental-disorders-in-deaf-and-hard-of-hearing-adult-outpatients-a-comparison-of-linguistic-subgroups
#16
Beate Øhre, Maj Volden, Erik Falkum, Stephen von Tetzchner
Deaf and hard of hearing (DHH) individuals who use signed language and those who use spoken language face different challenges and stressors. Accordingly, the profile of their mental problems may also differ. However, studies of mental disorders in this population have seldom differentiated between linguistic groups. Our study compares demographics, mental disorders, and levels of distress and functioning in 40 patients using Norwegian Sign Language (NSL) and 36 patients using spoken language. Assessment instruments were translated into NSL...
January 2017: Journal of Deaf Studies and Deaf Education
https://www.readbyqxmd.com/read/28027015/caring-for-individuals-with-chronic-illness-and-minor-depression-latino-perceptions-of-caregiver-burden
#17
Jaime Corvin, Isabella Chan, Ann Tezak, Kelly Carpenter, Claudia Aguado Loi, Junius Gonzales, Ismael Hoare
While informal caregiving can be fundamental to disease management, the burden experienced by caregivers, including psychosocial, physical, and financial stress, cannot be overlooked. Moreover, studies suggest that higher levels of stressors may exist among ethnic minorities. In the US, Latinos are burdened with increasing rates of chronic conditions and have the highest uninsured rates in the country. Moreover, the rapid growth of the Latino community coupled with the aging of the population may place increased stress on the health care system, including health care providers and social workers, as well as informal caregivers, from whom Latinos with chronic conditions often receive support...
December 27, 2016: Journal of Gerontological Social Work
https://www.readbyqxmd.com/read/28008609/randomized-trial-of-the-family-intervention-telephone-tracking-caregiver-for-dementia-caregivers-use-of-community-and-healthcare-resources
#18
Geoffrey Tremont, Jennifer D Davis, Brian R Ott, Rachel Galioto, Cara Crook, George D Papandonatos, Richard H Fortinsky, Pedro Gozalo, Duane S Bishop
OBJECTIVES: To examine the effects of a telephone-delivered intervention, Family Intervention: Telephone Tracking-Caregiver (FITT-C), on community support and healthcare use by dementia caregivers. DESIGN: Randomized, controlled trial. SETTING: Academic medical center. PARTICIPANTS: Dyads (n = 250) of distressed informal dementia caregivers and care recipients. INTERVENTION: Caregivers were randomly assigned to receive the FITT-C (n = 133) or telephone support (TS; n = 117)...
December 23, 2016: Journal of the American Geriatrics Society
https://www.readbyqxmd.com/read/28008218/objective-assessment-of-a-preterm-infant-s-nutritive-sucking-from-initiation-of-feeding-through-hospitalization-and-discharge
#19
Gilson J Capilouto, Tommy J Cunningham
INTRODUCTION: In 2008, the American Academy of Pediatrics recommended that an infant's ability to feed independently be considered a primary consideration for discharge home. To date, NICU healthcare teams have relied on clinical experience as well as descriptive scales to determine a high risk infant's ability to transition safely from tube feeding to oral feeding. The aim of the current case study was to illustrate the clinical utility of nfant(®) Feeding Solution as a noninvasive and objective instrument for determining a neonate's readiness to begin and advance oral feeding...
2016: Neonatal Intensive Care: the Journal of Perinatology-neonatology
https://www.readbyqxmd.com/read/28004031/caregiving-and-mental-health-among-workers-longitudinal-evidence-from-a-large-cohort-of-adults-in-thailand
#20
Vasoontara Yiengprugsawan, Liana Leach, Janneke Berecki-Gisolf, Hal Kendig, David Harley, Sam-Ang Seubsman, Adrian C Sleigh
BACKGROUND: As people in middle and lower income countries live longer, more people become sick, disabled, and frail and the demand for family caregiving grows. Thailand faces such challenges. This study investigates the relationship between caregiving and mental health among workers drawn from a large longitudinal cohort of Thai adults. METHODS: Participants were drawn from the Thai Health-Risk Transition Study, a cohort study since 2005 of distance-learning adult Open University students residing nationwide...
December 2016: SSM—Population Health
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