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Caregiver Distress

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https://www.readbyqxmd.com/read/28642213/development-of-a-web-based-intervention-for-addressing-distress-in-caregivers-of-patients-receiving-stem-cell-transplants-formative-evaluation-with-stakeholder-interviews-and-focus-groups
#1
Nicole Amoyal Pensak, Tanisha Joshi, Teresa Simoneau, Kristin Kilbourn, Alaina Carr, Jean Kutner, Mark L Laudenslager
BACKGROUND: Caregivers of cancer patients experience significant burden and distress including depression and anxiety. We previously demonstrated the efficacy of an eight session, in-person, one-on-one stress management intervention to reduce distress in caregivers of patients receiving allogeneic hematopoietic stem cell transplants (allo-HSCT). OBJECTIVE: The objective of this study was to adapt and enhance the in-person caregiver stress management intervention to a mobilized website (eg, tablet, smartphone, or computer-based) for self-delivery in order to enhance dissemination to caregiver populations most in need...
June 22, 2017: JMIR Research Protocols
https://www.readbyqxmd.com/read/28639158/development-of-a-survivorship-needs-assessment-planning-tool-for-head-and-neck-cancer-survivors-and-their-caregivers-a-preliminary-study
#2
K R Sterba, J Zapka, N LaPelle, T K Garris, A Buchanan, M Scallion, T Day
PURPOSE: The purpose of this study was to characterize primary end-of-treatment challenges in head and neck cancer (HNC) to drive the development of a survivorship needs assessment planning (SNAP) tool and evaluate its acceptability and feasibility. METHODS: Using qualitative methods (focus groups, interviews), we identified physical, emotional, and social post-treatment challenges from the perspectives of survivors (N = 17), caregivers (N = 14), and healthcare providers (N = 14) and pretested the SNAP tool...
June 21, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28631956/coping-strategies-and-psychological-distress-in-caregivers-of-patients-with-amyotrophic-lateral-sclerosis-als
#3
Mattia Siciliano, Gabriella Santangelo, Francesca Trojsi, Carmela Di Somma, Manila Patrone, Cinzia Femiano, Maria Rosaria Monsurrò, Luigi Trojano, Gioacchino Tedeschi
BACKGROUND: Amyotrophic lateral sclerosis (ALS) causes distress in caregivers. The present study aims to examine the association between coping strategies and psychological distress in caregivers of ALS patients. METHODS: Coping strategies were assessed in 96 ALS informal caregivers by means of the Coping Inventory for Stressful Situations. Data about caregivers' demographic characteristics, levels of burden, depression and anxiety (psychological distress) were also gathered by standardised questionnaires...
February 10, 2017: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
https://www.readbyqxmd.com/read/28625164/the-effect-of-weekly-specialist-palliative-care-teleconsultations-in-patients-with-advanced-cancer-a-randomized-clinical-trial
#4
Patrick D Hoek, Henk J Schers, Ewald M Bronkhorst, Kris C P Vissers, Jeroen G J Hasselaar
BACKGROUND: Teleconsultation seems to be a promising intervention for providing palliative care to home-dwelling patients; however, its effect on clinically relevant outcome measures remains largely unexplored. Therefore, the purpose of this study was to determine whether weekly teleconsultations from a hospital-based specialist palliative care consultation team (SPCT) improved patient-experienced symptom burden compared to "care as usual". Secondary objectives were to determine the effects of these teleconsultations on unmet palliative care needs, continuity of care, hospital admissions, satisfaction with teleconsultations, and the burden experienced by informal caregivers...
June 19, 2017: BMC Medicine
https://www.readbyqxmd.com/read/28614419/risk-factors-for-exclusive-breastfeeding-lasting-less-than-two-months-identifying-women-in-need-of-targeted-breastfeeding-support
#5
Karin Cato, Sara M Sylvén, Johan Lindbäck, Alkistis Skalkidou, Christine Rubertsson
BACKGROUND: Breastfeeding rates in Sweden are declining, and it is important to identify women at risk for early cessation of exclusive breastfeeding. OBJECTIVE: The aim of this study was to investigate factors associated with exclusive breastfeeding lasting less than two months postpartum. METHODS: A population-based longitudinal study was conducted at Uppsala University Hospital, Sweden. Six hundred and seventy-nine women were included in this sub-study...
2017: PloS One
https://www.readbyqxmd.com/read/28614001/self-forgiveness-is-associated-with-reduced-psychological-distress-in-cancer-patients-and-unmatched-caregivers-hope-and-self-blame-as-mediating-mechanisms
#6
Loren Toussaint, Michael Barry, Drew Angus, Lynn Bornfriend, Maurie Markman
This study examined the association between self-forgiveness and psychological distress and tested whether self-blame and hope mediated these associations equally for both patients and caregivers. Participants were 38 patients and 44 unmatched caregivers receiving care at a national cancer hospital. Participants completed measures of self-forgiveness, self-blame, hope, and psychological distress. Self-forgiveness was inversely associated with self-blame and psychological distress and positively associated with hope...
June 14, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28612623/frontal-tasks-and-behavior-in-rigid-or-tremor-dominant-parkinson-disease
#7
Rita Moretti, Vera Milner, Paola Caruso, Silvia Gazzin, Raffaella Rumiati
Parkinson disease (PD) is not an unambiguous entity, and there is a general consensus for the statement that an akinetic-rigid dominant type of presentation has a worse prognosis, in the follow-up. The aim of our study was to examine the differences in frontal tasks and behavior, in 2 PD naive groups: the rigid and the tremor-dominant types of presentation, according to motor scores. Our study has showed some important differences in frontal tasks and in behavior, performing more apathy, aggressiveness, and irritability in the rigid type, and more depression and anxiety in the tremor-dominant type...
January 1, 2017: American Journal of Alzheimer's Disease and Other Dementias
https://www.readbyqxmd.com/read/28612157/effectiveness-of-implementing-a-dyadic-psychoeducational-intervention-for-cancer-patients-and-family-caregivers
#8
Marita G Titler, Moira A Visovatti, Clayton Shuman, Katrina R Ellis, Tanima Banerjee, Bonnie Dockham, Olga Yakusheva, Laurel Northouse
PURPOSE: This study examined the effectiveness, feasibility, and satisfaction with implementation of the FOCUS program in two US Cancer Support Community affiliates in Ohio and California as well as the cost to deliver the program. FOCUS is an evidence-based psychoeducational intervention for dyads (cancer patients and caregivers). METHODS: A pre-post-intervention design was employed. Eleven, five-session Focus programs were delivered by licensed professionals in a small group format (three-four dyads/group) to 36 patient-caregiver dyads...
June 13, 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/28610666/informal-caregiving-in-copd-a-systematic-review-of-instruments-and-their-measurement-properties
#9
REVIEW
Joana Cruz, Alda Marques, Ana Machado, Sachi O'Hoski, Roger Goldstein, Dina Brooks
BACKGROUND: Increasing symptoms and activity restriction associated with COPD progression greatly impact on the lives of their informal caregivers, who play a vital role in maintaining their health. An understanding of this impact is important for clinicians to support caregivers and maintain a viable patient environment at home. This systematic review aimed to identify the instruments commonly used to assess informal caregiving in COPD and describe their measurement properties in this population...
July 2017: Respiratory Medicine
https://www.readbyqxmd.com/read/28604059/gender-effects-on-components-of-burden-and-depression-among-dementia-caregivers
#10
Sarah Pillemer, Jennifer Davis, Geoffrey Tremont
OBJECTIVE: Previous literature has examined burden and depression predominately as unitary constructs in relation to dementia caregiving. No studies thus far have examined gender differences in the specific components of burden and depression in dementia caregivers. The current study examined whether empirically validated dimensions of caregiver burden differed by gender for dementia caregivers. METHODS: The sample consisted of 211 dementia caregivers enrolled in a longitudinal intervention study...
June 12, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28601957/examining-the-effect-of-peer-helping-in-a-coping-skills-intervention-a-randomized-controlled-trial-for-advanced-gastrointestinal-cancer-patients-and-their-family-caregivers
#11
Catherine E Mosher, Ekin Secinti, Shelley A Johns, Bert H O'Neil, Paul R Helft, Safi Shahda, Shadia I Jalal, Victoria L Champion
PURPOSE: At the end of life, spiritual well-being is a central aspect of quality of life for many patients and their family caregivers. A prevalent spiritual value in advanced cancer patients is the need to actively give. To address this need, the current randomized trial examined whether adding a peer helping component to a coping skills intervention leads to improved meaning in life and peace for advanced gastrointestinal cancer patients and their caregivers. Feasibility and acceptability outcomes were also assessed...
June 10, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28598227/integration-of-a-palliative-care-intervention-into-community-practice-for-lung-cancer-a-study-protocol-and-lessons-learned-with-implementation
#12
Huong Q Nguyen, Thomas Cuyegkeng, Tieu O Phung, Karisa Jahn, Tami Borneman, Mayra Macias, Nora Ruel, Betty Ferrell
BACKGROUND: A notable gap in the evidence base for outpatient palliative care (PC) for cancer is that most trials were conducted in specialized oncology or academic centers with limited translation and further evaluation in "real-world" settings. Health systems are desperate for guidance regarding the most effective and sustainable PC service models. OBJECTIVE: Describe the study protocol to evaluate the dissemination of a previously tested nurse-led PC intervention (PCI) for patients with lung cancer and their family caregiver in community-based settings, lessons learned in adapting and implementing the PCI, and implications for future dissemination-translational efforts Design: Two-group, prospective sequential, quasi-experimental design with Phase 1 (Usual care) followed by Phase 2 (Intervention) setting/subjects...
June 9, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28594643/ce-early-intervention-in-patients-with-poststroke-depression
#13
Gwendolyn M Hamid, Meredith A MacKenzie
An evidence-based review of risk factors, screening, and management. ABSTRACT: Nearly one-third of stroke survivors experience depression. Poststroke depression is associated with longer hospital stays, poor physical and cognitive recovery, poor quality of life, high caregiver distress, increased risk of recurrent stroke, and higher rates of morbidity and mortality. Poststroke depression, however, often goes unrecognized and untreated because the physical and cognitive repercussions of stroke make it difficult to identify...
June 7, 2017: American Journal of Nursing
https://www.readbyqxmd.com/read/28593599/behavioral-symptoms-of-reported-abuse-in-children-and-adolescents-with-autism-spectrum-disorder-in-inpatient-settings
#14
Jamie Brenner, Zhaoxing Pan, Carla Mazefsky, Kahsi A Smith, Robin Gabriels
The objective of this study was to examine how behavioral manifestations of trauma due to abuse are expressed in youth with autism spectrum disorder (ASD). Analysis of covariance (ANCOVA) compared outcomes between patients with a caregiver reported history of abuse and those without. Findings indicate that patients with ASD and reported abuse (i.e. physical, sexual, and/or emotional) have more intrusive thoughts, distressing memories, loss of interest, irritability, and lethargy than those without reported maltreatment...
June 7, 2017: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/28573704/rct-of-a-video-based-intervention-program-for-caregivers-of-patients-with-an-eating-disorder
#15
Norbert Quadflieg, Daniela Schädler, Silke Naab, Manfred M Fichter
OBJECTIVE: This paper presents the results of a randomized controlled trial measuring the efficacy of a video-based skills training to decrease burden and psychological distress in caregivers of inpatients treated for an eating disorder in specialized hospital units. METHOD: Two hundred eighty-five caregivers were randomized to either the video intervention (N = 147) or the control group (N = 138). Caregivers' primary outcomes were assessed via Eating Disorder Symptom Impact Scale, Accommodation and Enabling Scale and General Health Questionnaire-12 at baseline and three-months follow-up...
July 2017: European Eating Disorders Review: the Journal of the Eating Disorders Association
https://www.readbyqxmd.com/read/28567190/experiences-of-caregivers-of-infants-who-have-been-on-bubble-continuous-positive-airway-pressure-at-queen-elizabeth-central-hospital-malawi-a-descriptive-qualitative-study
#16
Mtisunge Joshua Gondwe, Belinda Gombachika, Maureen D Majamanda
BACKGROUND: An innovative, low-cost bubble continuous positive airway pressure (bCPAP) device has recently been introduced in Malawi for the treatment of respiratory distress in infants. While this novel bCPAP system has been shown to be safe and effective in reducing infant mortality, caregivers' experiences have not been investigated. The purpose of this study was to explore experiences of parents and guardians of infants who had been on bCPAP at Queen Elizabeth Central Hospital (QECH) in Blantyre, Malawi...
March 2017: Malawi Medical Journal: the Journal of Medical Association of Malawi
https://www.readbyqxmd.com/read/28566965/caregiver-burden-in-different-stages-of-alzheimer-s-disease
#17
REVIEW
Elif Koca, Özlem Taşkapilioğlu, Mustafa Bakar
With an increasing number of patients being diagnosed with Alzheimer's disease (AD) daily, it has become one of the major problems in public health. The increase in the number of dementia patients in low- and middle-income countries is expected to be much more than that in developed countries. As a result, the economic burden of dementia, both worldwide and in Turkey, is growing. Moreover, AD leads to emotional burdens and psychological distress in family member(s) and caregiver(s) alongside the patient. Each stage of AD imposes different responsibilities on caregivers, increasing their burden...
March 2017: Noro Psikiyatri Arsivi
https://www.readbyqxmd.com/read/28561696/using-the-new-asco-clinical-practice-guideline-for-palliative-care-concurrent-with-oncology-care-using-the-team-approach
#18
Cardinale B Smith, Tanyanika Phillips, Thomas J Smith
Palliative care alongside usual oncology care is now recommended by ASCO as the standard of care for any patient with advanced cancer on the basis of multiple randomized trials that show better results with concurrent care than with usual oncology care. Some benefits include better quality of life, better symptom management, reduced anxiety and depression, less caregiver distress, more accordance of care with the wishes of the patient, and less aggressive end-of-life care. Several studies show a survival advantage of several months, and many show considerable cost savings: better care at an affordable cost...
2017: American Society of Clinical Oncology Educational Book
https://www.readbyqxmd.com/read/28559862/family-burden-emotional-distress-and-service-satisfaction-in-first-episode-psychosis-data-from-the-get-up-trial
#19
Mirella Ruggeri, Antonio Lasalvia, Paolo Santonastaso, Francesca Pileggi, Emanuela Leuci, Maurizio Miceli, Silvio Scarone, Stefano Torresani, Sarah Tosato, Katia De Santi, Doriana Cristofalo, Carla Comacchio, Simona Tomassi, Carla Cremonese, Angelo Fioritti, Giovanni Patelli, Chiara Bonetto
Background: Literature has documented the role of family in the outcome of chronic schizophrenia. In the light of this, family interventions (FIs) are becoming an integral component of treatment for psychosis. The First Episode of Psychosis (FEP) is the period when most of the changes in family atmosphere are observed; unfortunately, few studies on the relatives are available. Objective: To explore burden of care and emotional distress at baseline and at 9-month follow-up and the levels of service satisfaction at follow-up in the two groups of relatives (experimental treatment EXP vs...
2017: Frontiers in Psychology
https://www.readbyqxmd.com/read/28557581/quality-of-life-in-youth-with-obstructive-sleep-apnea-syndrome-osas-treated-with-continuous-positive-airway-pressure-cpap-therapy
#20
Mary K Lynch, Lindsey C Elliott, Kristin T Avis, David C Schwebel, Burel R Goodin
OBJECTIVE/BACKGROUND: Improvement is sought for youth with obstructive sleep apnea syndrome (OSAS) who have poor quality of life (QoL), which resolves somewhat following treatment. One mitigating factor in improved QoL following treatment may be adherence to the CPAP protocol, which presents a barrier to most youth. This study explored relations between CPAP adherence and QoL in youth with OSAS. PARTICIPANTS: We recruited 42 youth-caregiver dyads in which youth between the ages of 8 and 16 years were diagnosed with OSAS and required CPAP use as part of their treatment plan...
May 30, 2017: Behavioral Sleep Medicine
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