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Caregiver Distress

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https://www.readbyqxmd.com/read/29322577/i-just-can-t-please-them-all-and-stay-sane-adult-child-caregivers-experiences-of-family-dynamics-in-care-giving-for-a-parent-with-dementia-in-australia
#1
Gemma Tatangelo, Marita McCabe, Ashley Macleod, Anastasia Konis
Family caregivers of people with dementia who live within the community often experience stress and poor quality of life due to their care-giving role. While there are many factors that affect this, one influential factor is the family context. This study focussed on adult child caregivers. It examined the specific ways that family dynamics contribute to adult child caregivers' distress in the context of caring for a parent with dementia. Semi-structured interviews were conducted with 17 participants who were adult child primary caregivers for a parent with dementia who was living within the community...
January 11, 2018: Health & Social Care in the Community
https://www.readbyqxmd.com/read/29322243/humanistic-burden-of-disease-for-patients-with-advanced-melanoma-in-canada
#2
Winson Y Cheung, Martha S Bayliss, Michelle K White, Angela Stroupe, Andrew Lovley, Bellinda L King-Kallimanis, Kathryn Lasch
BACKGROUND: Metastatic melanoma is a highly aggressive cancer, often striking in the prime of life. This study provides new information directly from advanced melanoma (stage III and IV) patients on how their disease impacts their health-related quality of life (HRQL). METHODS: Twenty-nine in-depth, qualitative interviews were conducted with adult patients with advanced melanoma in Canada. A semi-structured interview guide was used. Interviews were transcribed verbatim and key concepts were identified using a grounded theory analytic approach...
January 10, 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29319428/the-relationship-between-caregiver-burden-and-depressive-symptoms-in-ontario-home-care-clients
#3
Nicole Williams, Samantha Jamal, Dawn M Guthrie
OBJECTIVES: To examine risk factors for the development of depressive symptoms. DESIGN: Longitudinal analysis was completed for clients with 2+ assessments. Development of depressive symptoms was defined as a Depression Rating Scale score of 3+ on re-assessment. RESULTS: Overall, 10.7% of clients experienced new depressive symptoms and clients with a caregiver who was feeling distressed, angry or depressed were 45% more likely to develop symptoms...
January 10, 2018: Home Health Care Services Quarterly
https://www.readbyqxmd.com/read/29314437/prolonged-grief-disorder-and-depression-are-distinct-for-caregivers-across-their-first-bereavement-year
#4
Wei-I Tsai, Su-Ching Kuo, Fur-Hsing Wen, Holly G Prigerson, Siew Tzuh Tang
BACKGROUND: Prolonged grief disorder (PGD) and depression are recognized as distinct emotional-distress disorders for bereaved family caregivers. However, this distinction has been mostly validated in cross-sectional studies, neglecting the dynamic characteristics of bereaved caregivers' emotional distress. OBJECTIVE: To validate the distinction between symptoms of PGD and depression across the first bereavement year for family caregivers of terminally ill cancer patients...
January 4, 2018: Psycho-oncology
https://www.readbyqxmd.com/read/29313179/protective-factors-against-distress-for-caregivers-of-a-child-with-autism-spectrum-disorder
#5
Rebecca A Lindsey, Tammy D Barry
Caregivers of a child with autism spectrum disorder (ASD) often experience elevated distress. The current study examined potential protective factors against caregiver distress when child externalizing and internalizing behaviors are present: family resources, perceived social support, parenting efficacy, knowledge of ASD, and the agreement between actual and perceived knowledge of ASD. Caregivers of a child with ASD completed an online questionnaire. Results demonstrated main effects for externalizing behavior, family resources, and perceived social support...
January 8, 2018: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/29307036/acceptance-or-despair-maternal-adjustment-to-having-a-child-diagnosed-with-autism
#6
Nikko S Da Paz, Bryna Siegel, Michael A Coccia, Elissa S Epel
Psychological adjustment to having one's child diagnosed with an autism spectrum disorder has important implications for a parent's mental health. In a longitudinal study, we examined the association between maternal adjustment to the diagnosis and measures of distress and well-being in 90 mothers of children with autism (baseline and 18 months). We used a novel 30-item scale "Adjustment to the Diagnosis of Autism." Factor analysis identified three dimensions of adjustment: acceptance, self-blame, and despair...
January 6, 2018: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/29306338/adverse-events-in-home-care-identifying-and-responding-with-interrai-scales-and-clinical-assessment-protocols
#7
Chi-Ling Joanna Sinn, Raquel Souza Dias Betini, Jennifer Wright, Lorri Eckler, Byung Wook Chang, Sophie Hogeveen, Luke Turcotte, John P Hirdes
Outcomes of adverse events in home care are varied and multifactorial. This study tested a framework combining two health measures to identify home care recipients at higher risk of long-term care placement or death within one year. Both measures come from the Resident Assessment Instrument-Home Care (RAI-HC), a standardized comprehensive clinical assessment. Persons scoring high in the Method for Assigning Priority Levels (MAPLe) algorithm and Changes in Health, End-stage disease, Signs and Symptoms (CHESS) scale were at the greatest risk of placement or death and more than twice as likely to experience either outcome earlier than others...
January 8, 2018: Canadian Journal on Aging, la Revue Canadienne du Vieillissement
https://www.readbyqxmd.com/read/29301586/effectiveness-of-a-psycho-educational-intervention-to-prevent-postpartum-parental-distress-and-enhance-infant-well-being-study-protocol-of-a-randomized-controlled-trial
#8
Marjolein Missler, Roseriet Beijers, Jaap Denissen, Annemieke van Straten
BACKGROUND: The first months after birth can be challenging for parents, leading to parental distress and decreased well-being. Parents with high levels of distress are found to respond less adequately and sensitively to their infant, which in turn affects infant well-being and health. The goal of this study is to examine the effectiveness of a psycho-educational intervention to prevent postpartum parental distress and enhance the quality of caregiving and infant well-being. In contrast to other interventions, this intervention will be (1) offered already before birth, (2) offered to all parents-to-be, regardless of their risk of postpartum distress, and (3) include fathers...
January 4, 2018: Trials
https://www.readbyqxmd.com/read/29299872/coping-strategies-stress-and-support-needs-in-caregivers-of-children-with-mucopolysaccharidosis
#9
Amy Schadewald, Ericka Kimball, Li Ou
The mucopolysaccharidoses are a set of rare, inherited conditions that can have a catastrophic impact on those affected and their families. Because of the rarity of these disorders, little is known regarding the challenges faced by families of those affected and what coping mechanisms are commonly used. Coping is a way to manage demands that occur in one's environment or within oneself. Medical social workers historically have facilitated this process while providing support to patients who are responding to pressures of their diagnosis and the system...
January 4, 2018: JIMD Reports
https://www.readbyqxmd.com/read/29294788/the-impact-of-child-sexual-abuse-discovery-on-caregivers-and-families-a-qualitative-study
#10
Hiu-Fai Fong, Colleen E Bennett, Valerie Mondestin, Philip V Scribano, Cynthia Mollen, Joanne N Wood
In this qualitative study with nonoffending caregivers of suspected child sexual abuse victims, we aimed to explore the perceived impact of sexual abuse discovery on caregivers and their families, and caregivers' attitudes about mental health services for themselves. We conducted semistructured, in-person interviews with 22 nonoffending caregivers of suspected sexual abuse victims <13 years old seen at a child advocacy center in Philadelphia. Interviews were audio-recorded, transcribed, coded, and analyzed using modified grounded theory...
June 1, 2017: Journal of Interpersonal Violence
https://www.readbyqxmd.com/read/29282408/behavioural-and-psychological-symptoms-of-dementia-correlates-and-impact-on-caregiver-distress
#11
Adreesh Mukherjee, Atanu Biswas, Arijit Roy, Samar Biswas, Goutam Gangopadhyay, Shyamal Kumar Das
Aims: To evaluate the behavioural and psychological symptoms of dementia (BPSD), to determine their correlation with types and stages of dementia and patient demographics, and to assess the impact on caregiver distress. Methods: This cross-sectional study recruited consecutive dementia patients and caregivers who attended our cognitive clinic. Standard criteria were used to classify types of dementia. BPSD were assessed with the Neuropsychiatric Inventory, and its distress scale was used for caregiver distress...
September 2017: Dementia and Geriatric Cognitive Disorders Extra
https://www.readbyqxmd.com/read/29278924/depression-anxiety-stress-and-stigma-in-informal-caregivers-of-people-living-with-hiv-plhiv
#12
Rumana Khan, Keshava Pai, Vaman Kulkarni, John Ramapuram
Informal caregivers are unpaid individuals who help friends or family members who cannot fully care for themselves. However fulfilling the act of helping debilitated individuals, exposure to another person's traumatic experiences often results in psychological distress. Caregiver's stigma towards HIV worsens this. Hence, this study aims to assess the effect of stigma on the mental health of caregivers so that their needs for support can be determined. A cross sectional hospital based study was carried out in Mangalore, India on 150 informal caregivers of PLHIV...
December 27, 2017: AIDS Care
https://www.readbyqxmd.com/read/29277430/challenges-facing-palliative-neurology-practice-a-qualitative-analysis
#13
T E Gofton, M Chum, V Schulz, B T Gofton, A Sarpal, C Watling
PURPOSE: This study aimed to develop a conceptual understanding of the specific characteristics of palliative care in neurology and the challenges of providing palliative care in the setting of neurological illness. METHOD: The study was conducted at London Health Sciences Centre in Canada using grounded theory methodology. Qualitative thematic analysis was applied to focus group (health care providers physicians, nursing, allied health, trainees) and semi-structured interview (patient-caregiver dyads) data to explore challenges facing the delivery of palliative care in neurology...
December 7, 2017: Journal of the Neurological Sciences
https://www.readbyqxmd.com/read/29261818/update-in-hospital-palliative-care-symptom-management-communication-caregiver-outcomes-and-moral-distress
#14
Rachel D Havyer, Daniel H Pomerantz, Robert L Jayes, Patricia F Harris, Stephanie M Harman, Aziz A Ansari
BACKGROUND: Updated knowledge of the palliative care (PC) literature is needed to maintain competency and best address the PC needs of hospitalized patients. We critiqued the recent PC literature with the highest potential to impact hospital practice. METHODS: We reviewed articles published between January 2016 and December 2016, which were identified through a handsearch of leading journals and a MEDLINE search. The final 9 articles selected were determined by consensus based on scientific rigor, relevance to hospital medicine, and impact on practice...
December 20, 2017: Journal of Hospital Medicine: An Official Publication of the Society of Hospital Medicine
https://www.readbyqxmd.com/read/29246614/perceived-embarrassment-and-caregiver-burden-in-essential-tremor-caregivers
#15
Sarah Kellner, Sarah Morgan, Jesus Gutierrez, Kathleen Collins, Brittany Rohl, Fanny Migliore, Stephanie Cosentino, Edward D Huey, Elan D Louis, Joan K Monin
Essential tremor (ET) is a progressive neurological disease associated with functional disability, diminished quality of life and, in some individuals, poorer balance, cognitive impairment, depression and sleep dysregulation. Individuals with ET may rely on family members and friends to act as informal caregivers to assist with daily activities and provide emotional support. There is a high prevalence of embarrassment among individuals with ET, which may be a result of the outwardly visible nature of tremor...
December 15, 2017: Journal of the Neurological Sciences
https://www.readbyqxmd.com/read/29244140/the-distress-and-benefit-to-bereaved-family-members-of-participating-in-a-post-bereavement-survey
#16
Mitsunori Miyashita, Maho Aoyama, Saki Yoshida, Yuji Yamada, Mutsumi Abe, Kazuhiro Yanagihara, Akemi Shirado, Mariko Shutoh, Yoshiaki Okamoto, Jun Hamano, Aoi Miyamoto, Misato Nakahata
Background: Few studies have simultaneously collected quantitative data regarding the positive and negative effects of participating in post-bereavement surveys. Methods: We conducted a cross-sectional postal questionnaire survey in October 2013. Potential participants were caregivers for family members who had died in four inpatient palliative care units, two home hospices, and a general hospital. We collected opinions regarding the distress and benefit of completing a post-bereavement survey...
December 13, 2017: Japanese Journal of Clinical Oncology
https://www.readbyqxmd.com/read/29238216/improved-health-related-quality-of-life-participation-and-autonomy-in-patients-with-treatment-resistant-chronic-pain-after-an-intensive-social-cognitive-intervention-with-the-participation-of-support-partners
#17
Peter Joseph Jongen, Rob P Ruimschotel, Y M Museler-Kreijns, Tmc Dragstra, L Duyverman, J Valkenburg-Vissers, J Cornelissen, R Lagrand, Rogier Donders, A Hartog
Despite the availability of various specific treatments, most patients with chronic pain (CP) consider their pain problem as undertreated. Recently, multiple sclerosis (MS) patients who were given an intensive 3-day social cognitive treatment with the participation of support partners experienced lasting improvements in health-related quality of life (HRQoL) and self-efficacy. In this study, a similar intervention was given to treatment-resistant CP patients with stressors, relational problems with support partner, and distress, anxiety or depression...
2017: Journal of Pain Research
https://www.readbyqxmd.com/read/29235701/relation-of-child-caregiver-and-environmental-characteristics-to-childhood-injury-in-an-urban-aboriginal-cohort-in-new-south-wales-australia
#18
Katherine Thurber, Leonie Burgess, Kathleen Falster, Emily Banks, Holger Möller, Rebecca Ivers, Chris Cowell, Vivian Isaac, Deanna Kalucy, Peter Fernando, Cheryl Woodall, Kathleen Clapham
OBJECTIVE: Despite being disproportionately affected by injury, little is known about factors associated with injury in Aboriginal children. We investigated factors associated with injury among urban Aboriginal children attending four Aboriginal Community Controlled Health Services in New South Wales, Australia. METHODS: We examined characteristics of caregiver-reported child injury, and calculated prevalence ratios of 'ever-injury' by child, family, and environmental factors...
December 13, 2017: Australian and New Zealand Journal of Public Health
https://www.readbyqxmd.com/read/29235422/-the-importance-of-planning-for-the-future-burden-and-unmet-needs-of-caregivers-in-advanced-heart-failure-a-mixed-methods-study
#19
Sonja McIlfatrick, Leanne C Doherty, Mary Murphy, Lana Dixon, Patrick Donnelly, Kenneth McDonald, Donna Fitzsimons
BACKGROUND: While studies have evaluated caregiver outcomes in heart failure, the burden and support needs when caring for someone with advanced heart failure at the end of life have yet to be outlined. AIM: To identify psychosocial factors associated with caregiver burden and evaluate the support needs of caregivers in advanced heart failure. DESIGN: A sequential mixed methods study comprising two phases: (1) postal survey with advanced heart failure patients and their caregivers and (2) interviews with current and bereaved caregivers...
December 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/29235420/a-self-care-problem-solving-and-mindfulness-intervention-for-informal-caregivers-of-people-with-motor-neurone-disease-a-pilot-study
#20
Anna Ugalde, Susan Mathers, Nicole Hennessy Anderson, Peter Hudson, Liliana Orellana, Cathy Gluyas
BACKGROUND: Informal caregivers of people with motor neurone disease (MND) take on an extensive role. Caregivers are at increased risk of experiencing psychological distress and burden, yet, there is a lack of intervention programmes to support them. AIM: The aim of this study was to investigate the feasibility and acceptability of a therapeutic group intervention promoting self-care, problem-solving and mindfulness to informal caregivers of people with MND. DESIGN: Pilot study that utilised a one-arm pre- and post-design...
November 1, 2017: Palliative Medicine
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