keyword
MENU ▼
Read by QxMD icon Read
search

Caregiver Distress

keyword
https://www.readbyqxmd.com/read/29776481/reflections-on-the-emotional-hazards-of-pediatric-oncology-nursing-four-decades-of-perspectives-and-potential
#1
REVIEW
Deborah A Boyle, Nancy Jo Bush
THEORETICAL PRINCIPLES: Pediatric oncology nurses are particularly vulnerable to emotional distress. Responsible for the oversight of a child's care, these nurses sustain close interactions with multiple patients and families over time, many of whom are coping with life-limiting diagnoses. The world of pediatric oncology nurses is one where tragedy is routinely witnessed thus demanding self-care and healing across a continuum. PHENOMENON ADDRESSED: The aim of this article is to outline and review the emotional sequelae of pediatric oncology nurses' work and to suggest interventions to support well-being in light of prolonged caregiving...
May 2018: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/29772911/the-incidence-and-impact-of-implantable-cardioverter-defibrillator-shocks-in-the-last-phase-of-life-an-integrated-review
#2
Rik Stoevelaar, Arianne Brinkman-Stoppelenburg, Rohit E Bhagwandien, Rozemarijn L van Bruchem-Visser, Dominic Amj Theuns, Agnes van der Heide, Judith Ac Rietjens
BACKGROUND: Although the implantable cardioverter defibrillator is successful in terminating life threatening arrhythmias, it might give unwanted shocks in the last phase of life if not deactivated in a timely manner. AIMS: This integrated review aimed to provide an overview of studies reporting on implantable cardioverter defibrillator shock incidence and impact in the last phase of life. METHODS AND RESULTS: We systematically searched five electronic databases...
May 1, 2018: European Journal of Cardiovascular Nursing
https://www.readbyqxmd.com/read/29772351/a-couple-based-communication-intervention-for-hematopoietic-cell-transplant-survivors-and-their-caregiving-partners-feasibility-acceptability-and-change-in-process-measures
#3
Shelby Langer, Laura Porter, Joan Romano, Michael Todd, Stephanie Lee
Hematopoietic cell transplantation (HCT) poses significant challenges for recipients and their caregiving partners. Couples may refrain from talking about treatment-related fears and concerns in order to minimize distress. This single-group, pre-post study examined feasibility and acceptability of an intervention designed to optimize communication between HCT patients and partners; it also assessed change in process measures. Couples met with a therapist five times to learn skills for disclosing illness-related thoughts and feelings and responding supportively to one another...
May 14, 2018: Biology of Blood and Marrow Transplantation
https://www.readbyqxmd.com/read/29768675/developing-self-regulation-in-a-dysregulating-world-attachment-and-biobehavioral-catch-up-for-a-toddler-in-foster-care
#4
Steven D Imrisek, Katerina Castaño, Kristin Bernard
Toddlers in foster care have typically experienced histories of maltreatment and disruptions in relationships with primary caregivers. As a result, they are at increased risk for developing disorganized attachment and showing emotional, behavioral, and physiological dysregulation. Attachment and Biobehavioral Catch-up for Toddlers in Foster Care (ABC-T) was developed to address the needs of these vulnerable children by supporting foster parents in responding with nurturance to children's distress, following children's lead, and helping children calm when they are becoming overwhelmed or dysregulated...
May 16, 2018: Journal of Clinical Psychology
https://www.readbyqxmd.com/read/29768296/pediatric-diabetic-ketoacidosis-with-hypotensive-shock-and-rash-an-unusual-presentation
#5
Yehonatan Pasternak, Omer Niv, Yehezkel Hezi Waisman
We describe a previously healthy adolescent boy who presented with respiratory distress, hypotensive shock, and a diffuse erythematous rash. The final diagnosis was diabetic ketoacidosis. Caregivers should be alert to this unusual combination of symptoms in the emergency department setting in order to improve the recognition and management of children with new-onset diabetes.
May 15, 2018: Pediatric Emergency Care
https://www.readbyqxmd.com/read/29767417/do-concordances-of-social-support-and-relationship-quality-predict-psychological-distress-and-well-being-of-cancer-patients-and-caregivers
#6
W K Hou, K M Lau, T C Y Shum, A C K Cheng, T M C Lee
This study examined concordances of cancer patients' received and caregivers' provided support and dyadic relationship quality, and their predictive utility in prospective psychological distress and well-being. A total of 83 Chinese cancer patient-caregiver dyads were recruited in two government-funded hospitals in Hong Kong. Participants reported received (patient)/provided (caregiver) emotional and instrumental support and dyadic relationship quality within 6 months after diagnosis (T1), and anxiety and depressive symptoms, positive affect and life satisfaction at both T1 and 6-month follow-up (T2)...
May 16, 2018: European Journal of Cancer Care
https://www.readbyqxmd.com/read/29766259/a-telephone-outcall-program-to-support-caregivers-of-people-diagnosed-with-cancer-utility-changes-in-levels-of-distress-and-unmet-needs
#7
Leila Heckel, Kate M Fennell, Liliana Orellana, Anna Boltong, Monica Byrnes, Patricia M Livingston
PURPOSE: To evaluate the utility of a telephone outcall program for cancer caregivers and to examine longitudinal changes in their distress levels and supportive care needs. METHODS: As part of the PROTECT trial, caregivers assigned to the intervention arm (N = 108) received three telephone outcalls from a Cancer Council 13 11 20 nurse at three time points (7-10 days post-randomization, 1 and 4 months later). During each call, caregivers were screened for distress using the Distress Thermometer (range: 0-10) then six supportive care issues were raised for discussion...
May 15, 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29760027/case-management-in-primary-care-for-frequent-users-of-health-care-services-a-mixed-methods-study
#8
Catherine Hudon, Maud-Christine Chouinard, Marie-France Dubois, Pasquale Roberge, Christine Loignon, Éric Tchouaket, Mireille Lambert, Émilie Hudon, Fatoumata Diadiou, Danielle Bouliane
PURPOSE: This study aimed to evaluate the effects of the V1SAGES case management intervention (Vulnerable Patients in Primary Care: Nurse Case Management and Self-management Support) for frequent users of health care services with chronic disease and complex care needs on psychological distress and patient activation. METHODS: We used a 2-phase sequential mixed methods design. The first phase was a pragmatic randomized controlled trial with intention-to-treat analysis that measured the effects of the intervention compared with usual care on psychological distress and patient activation before and after 6 months...
May 2018: Annals of Family Medicine
https://www.readbyqxmd.com/read/29759913/improving-implementation-of-psychological-interventions-to-older-adult-patients-with-cancer-convening-older-adults-caregivers-providers-researchers
#9
Kelly M Trevino, Charlotte Healy, Peter Martin, Beverly Canin, Karl Pillemer, Jo Anne Sirey, M Cary Reid
INTRODUCTION: Older adults with cancer (OACs) are a large and growing population. Psychological distress is prevalent in this population yet few OACs receive evidence-based psychological care. The purpose of this project was to identify barriers and strategies for the implementation of psychological interventions to OACs from the perspective of OACs, OAC caregivers, researchers, clinicians, and advocacy organization members. METHODS: The Cornell Research-to-Practice (RTP) Consensus Workshop Model was used to organize and convene a consensus conference...
May 11, 2018: Journal of Geriatric Oncology
https://www.readbyqxmd.com/read/29747583/effect-of-the-wecareadvisor%C3%A2-on-family-caregiver-outcomes-in-dementia-a-pilot-randomized-controlled-trial
#10
Helen C Kales, Laura N Gitlin, Barbara Stanislawski, H Myra Kim, Katherine Marx, Molly Turnwald, Claire Chiang, Constantine G Lyketsos
BACKGROUND: Behavioral and psychological symptoms of dementia (BPSD) are universal and associated with multiple negative outcomes. This pilot randomized controlled trial (RCT) evaluated the effect of using the WeCareAdvisor, an innovative web-based tool developed to enable family caregivers to assess, manage, and track BPSD. METHODS: This RCT enrolled 57 dementia family caregivers from community and clinical settings in Ann Arbor, Michigan and Baltimore, Maryland...
May 10, 2018: BMC Geriatrics
https://www.readbyqxmd.com/read/29746694/delirium-burden-in-patients-and-family-caregivers-development-and-testing-of-new-instruments
#11
Annie M Racine, Madeline D'Aquila, Eva M Schmitt, Jacqueline Gallagher, Edward R Marcantonio, Richard N Jones, Sharon K Inouye, Dena Schulman-Green
Background and Objectives: Delirium creates distinct emotional distress in patients and family caregivers, yet there are limited tools to assess the experience. Our objective was to develop separate patient and family caregiver delirium burden instruments and to test their content and construct validity. Research Design and Methods: Two hundred forty-seven patients and 213 family caregivers were selected from an ongoing prospective cohort of medical-surgical admissions aged ≥70 years old...
May 8, 2018: Gerontologist
https://www.readbyqxmd.com/read/29744286/adolescent-pregnancy-and-challenges-in-kenyan-context-perspectives-from-multiple-community-stakeholders
#12
Manasi Kumar, Keng-Yen Huang, Caleb Othieno, Dalton Wamalwa, Beatrice Madeghe, Judith Osok, Simon Njuguna Kahonge, Joyce Nato, Mary McKernon McKay
Objective: The key objective of this paper is to provide a phenomenological account of the mental health challenges and experiences of adolescent new mothers. We explore the role of social support and the absence of empathy plays in depression among pregnant adolescents. The project also collected data on the adolescents' caregiving environment which includes the adolescents' mothers, their partners, the community, and health care workers, as well as feedback from staff nurses at the maternal and child health centers...
March 2018: Global Social Welfare: Research, Policy & Practice
https://www.readbyqxmd.com/read/29744197/influence-of-full-mouth-rehabilitation-on-oral-health-related-quality-of-life-among-disabled-children
#13
Abeer M Al-Nowaiser, Abdulaziz S Al Suwyed, Khalid H Al Zoman, Asirvatham A Robert, Tarfa Al Brahim, Sebastian G Ciancio, Sultan A Al Mubarak, Omar A El Meligy
The efficacy of full mouth rehabilitation (FMR) on oral health-related quality of life of physically disabled children was assessed. This prospective study was performed at Dental Department of Sultan Bin Abdulaziz Humanitarian City, Riyadh, and King Abdulaziz University Hospital, Jeddah, Saudi Arabia, during May 2012 to September 2014. A total of 186 physically disabled children aged 11-14 years were assigned to a test group (n = 97) or a control group (n = 89). FMR was applied for test group children at baseline and 3 months' visits, whereas those in the control group did not receive FMR...
October 2017: Clinical and Experimental Dental Research
https://www.readbyqxmd.com/read/29742212/accidental-strangulation-in-children-by-the-automatic-closing-of-a-car-window
#14
Kailene Serena, Jefferson Pedro Piva, Cinara Andreolio, Paulo Roberto Antonacci Carvalho, Tais Sica da Rocha
Among the main causes of death in our country are car accidents, drowning and accidental burns. Strangulation is a potentially fatal injury and an important cause of homicide and suicide among adults and adolescents. In children, its occurrence is usually accidental. However, in recent years, several cases of accidental strangulation in children around the world have been reported. A 2-year-old male patient was strangled in a car window. The patient was admitted to the pediatric intensive care unit with a Glasgow Coma Scale score of 8 and presented with progressive worsening of respiratory dysfunction and torpor...
March 2018: Revista Brasileira de Terapia Intensiva
https://www.readbyqxmd.com/read/29739423/isupport-an-online-training-and-support-program-for-caregivers-of-people-with-dementia-study-protocol-for-a-randomized-controlled-trial-in-india
#15
Kala M Mehta, Dolores Gallagher-Thompson, Mathew Varghese, Santosh Loganathan, Upasana Baruah, Katrin Seeher, Diana Zandi, Tarun Dua, Anne Margriet Pot
BACKGROUND: Dementia has a huge physical, psychological, social and economic impact upon caregivers, families and societies at large. There has been a growing impetus to utilize Internet interventions given the potential scalability, and presumed cost-effectiveness and accessibility. In this paper, we describe the design of a randomized controlled trial (RCT) aiming to study the impact of online self-help programs on caregivers of people with dementia in India. The experimental group will receive an interactive training and support program and the comparison group will receive an education-only e-book...
May 8, 2018: Trials
https://www.readbyqxmd.com/read/29736124/burden-experience-of-caregivers-of-acute-lymphoblastic-leukemia-impact-of-coping-and-spirituality
#16
Usha Chivukula, Sirisha Kota, Durgesh Nandinee
Background: When a child is diagnosed with cancer the parents as caregivers experience severe anxiety, trauma, ambiguity, and grief. Caregivers of cancer patients thus deal with the management of their own psychological distress along with the child's illness. Aim: Coping plays a crucial role in improving the caregivers' physical and emotional well-being. Spirituality is an important means of consolation, strength, and emotional support during this phase. The present study aims to investigate the impact of coping and spirituality on caregiver burden...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29732651/supporting-carers-of-children-and-adolescents-with-eating-disorders-in-austria-succeat-study-protocol-for-a-randomised-controlled-trial
#17
Claudia Franta, Julia Philipp, Karin Waldherr, Stefanie Truttmann, Elisabeth Merl, Gabriele Schöfbeck, Doris Koubek, Clarissa Laczkovics, Hartmut Imgart, Annika Zanko, Michael Zeiler, Janet Treasure, Andreas Karwautz, Gudrun Wagner
Supporting Carers of Children and Adolescents with Eating Disorders in Austria (SUCCEAT) is an intervention for carers of children and adolescents with anorexia nervosa and atypical anorexia nervosa. This paper describes the study protocol for a randomised controlled trial including the process and economic evaluation. Carers are randomly allocated to one of the 2 SUCCEAT intervention formats, either 8 weekly 2-hr workshop sessions (n = 48) or web-based modules (n = 48), and compared with a nonrandomised control group (n = 48)...
May 6, 2018: European Eating Disorders Review: the Journal of the Eating Disorders Association
https://www.readbyqxmd.com/read/29731597/the-family-stress-model-as-it-applies-to-custodial-grandfamilies-a-cross-validation
#18
Gregory C Smith, Bert Hayslip, Gregory R Hancock, William Merchant, Julian Montoro-Rodriguez, Frederick Strieder
There is scant research on how the parenting practices of custodial grandmothers affect the psychological adjustment of grandchildren in their care. Yet, the findings from a handful of prior studies suggest the relevance of the Family Stress Model (FSM) to these caregivers. The present study further tested the FSM with baseline data from 343 custodial grandmothers (Mage = 58.5 years) enrolled in a clinical trial of the efficacy of interventions for improving the well-being of their families. Not only was this "help-seeking" sample atypical of prior FSM studies, but also unique to the present study was our addition of multiple parenting practices, self-reported and clinical ratings of grandmothers' distress, and reports of grandchildren's internalizing and externalizing difficulties from grandchildren and grandmothers...
February 2018: Journal of Child and Family Studies
https://www.readbyqxmd.com/read/29730041/explaining-individual-variation-in-paternal-brain-responses-to-infant-cries
#19
Ting Li, Marilyn Horta, Jennifer S Mascaro, Kelly Bijanki, Luc H Arnal, Melissa Adams, Ronald G Barr, James K Rilling
Crying is the principal means by which newborn infants shape parental behavior to meet their needs. While this mechanism can be highly effective, infant crying can also be an aversive stimulus that leads to parental frustration and even abuse. Fathers have recently become more involved in direct caregiving activities in modern, developed nations, and fathers are more likely than mothers to physically abuse infants. In this study, we attempt to explain variation in the neural response to infant crying among human fathers, with the hope of identifying factors that are associated with a more or less sensitive response...
May 2, 2018: Physiology & Behavior
https://www.readbyqxmd.com/read/29728939/coping-strategies-in-caregivers-of-disorders-of-consciousness-patients
#20
Francesco Corallo, Lilla Bonanno, Viviana Lo Buono, Simona De Salvo, Carmela Rifici, Alessia Bramanti, Silvia Marino
OBJECTIVE: The management of patients with disorders of consciousness (DOC) has raised several important ethical, social, and medical issues. It is also known that families and caregivers are subjected to physical and emotional load due to their assistance activity. The aim of this observational study was to compare distress and coping strategies used among caregivers of two kinds of DOC: vegetative state (VS) and minimally conscious state (MCS). METHODS: We have enrolled 80 caregivers (mean age 47...
May 4, 2018: Neurological Sciences
keyword
keyword
91697
1
2
Fetch more papers »
Fetching more papers... Fetching...
Read by QxMD. Sign in or create an account to discover new knowledge that matter to you.
Remove bar
Read by QxMD icon Read
×

Search Tips

Use Boolean operators: AND/OR

diabetic AND foot
diabetes OR diabetic

Exclude a word using the 'minus' sign

Virchow -triad

Use Parentheses

water AND (cup OR glass)

Add an asterisk (*) at end of a word to include word stems

Neuro* will search for Neurology, Neuroscientist, Neurological, and so on

Use quotes to search for an exact phrase

"primary prevention of cancer"
(heart or cardiac or cardio*) AND arrest -"American Heart Association"