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Caregiver Distress

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https://www.readbyqxmd.com/read/28919539/the-nexus-between-the-documentation-of-end-of-life-wishes-and-awareness-of-dying-a-model-for-research-education-and-care
#1
Deborah P Waldrop, Jacqueline M McGinley, Brian Clemency
The convergence of medical treatment that can extend life with written medical orders that make it possible to refuse such treatment brings the differential dynamics of contemporary end-of-life decision-making into sharp focus. Communication between families and clinicians can be confusing, uncertain and pressured when death is imminent. These situations create distress that ultimately influences the end-of-life experience for people who are dying and those who care for them. This paper presents the analysis of the decisional dynamics that emerge from the intersection of the patient-family-provider awareness that death is near with the presence or absence of documentation of expressed wishes for end-of-life care...
September 14, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28915907/effect-of-a-mother-s-recorded-voice-on-emergence-from-general-anesthesia-in-pediatric-patients-study-protocol-for-a-randomized-controlled-trial
#2
Seok Young Song, Sang Gyu Kwak, Eugene Kim
BACKGROUND: Emergence delirium is a behavioral disturbance after general anesthesia in children and may distress both the patients and the primary caregivers, such as parents and medical staff, looking after the patients. Various medical and emotional interventions have been investigated to reduce emergence delirium; however, none are completely effective. This trial intends to assess whether the mother's recorded voice can reduce this adverse post-anesthesia event and facilitate arousal from general anesthesia...
September 15, 2017: Trials
https://www.readbyqxmd.com/read/28914991/resistiveness-to-care-as-experienced-by-family-caregivers-providing-care-for-someone-with-dementia
#3
Pamela C Spigelmyer, Judith E Hupcey, Carol A Smith, Susan J Loeb, Lisa Kitko
PURPOSE: This research explored family caregivers' lived experiences of resistiveness to care when they provided care for people with dementia. The goal was to identify a general meaning of family caregivers' lived experiences to target potential areas for future nursing interventions to help family caregivers manage their caregiving role and provide a base for future research surrounding resistiveness to care. DESIGN: Descriptive phenomenology was used to provide descriptions of eight family caregivers who provided care for someone with dementia and experienced resistiveness to care...
September 15, 2017: Journal of Nursing Scholarship
https://www.readbyqxmd.com/read/28913937/healthcare-professionals-perceptions-of-neglect-of-older-people-in-mexico-a-qualitative-secondary-analysis
#4
Billy A Caceres, Linda Bub, Maria Isabel Negrete, Liliana Giraldo Rodríguez, Allison P Squires
AIMS AND OBJECTIVES: To describe healthcare professionals' perceptions of neglect of older people in Mexico. BACKGROUND: Mistreatment of older people, particularly neglect, has emerged as a significant public health concern worldwide. However, few studies have been conducted to examine neglect of older people in low- and middle-income countries. Most research has focused on estimating the prevalence of neglect in older populations with little emphasis on the perceptions of healthcare professionals and their role in addressing neglect of older people...
September 15, 2017: International Journal of Older People Nursing
https://www.readbyqxmd.com/read/28898605/the-team-approach-to-improving-oncology-outcomes-by-incorporating-palliative-care-in-practice
#5
Marie A Bakitas, Areej El-Jawahri, Morag Farquhar, Betty Ferrell, Corita Grudzen, Irene Higginson, Jennifer S Temel, Camilla Zimmermann, Thomas J Smith
Palliative care (PC) concurrent with usual oncology care is now the standard of care that is recommended for any patient with advanced cancer to begin within 8 weeks of diagnosis on the basis of evidence-driven national clinical practice guidelines; however, there are not enough interdisciplinary palliative care teams to provide such care. How and what can an oncology office incorporate into usual care, borrowing the tools used in PC randomized clinical trials (RCTs), to improve care for patients and their caregivers? We reviewed the multiple RCTs for common practical elements and identified methods and techniques that oncologists can use to deliver some parts of concurrent interdisciplinary PC...
September 2017: Journal of Oncology Practice
https://www.readbyqxmd.com/read/28895129/the-role-of-sustained-attention-maternal-sensitivity-and-infant-temperament-in-the-development-of-early-self-regulation
#6
Matilda A Frick, Tommie Forslund, Mari Fransson, Maria Johansson, Gunilla Bohlin, Karin C Brocki
This study investigated infant predictors of early cognitive and emotional self-regulation from an intrinsic and caregiving environmental perspective. Sustained attention, reactive aspects of infant temperament, and maternal sensitivity were assessed at 10 months (n = 124) and early self-regulation (including executive functions, EF, and emotion regulation) was assessed at 18 months. The results indicated that sustained attention predicted early EF, which provide empirical support for the hierarchical framework of EF development, advocating early attention as a foundation for the development of cognitive self-regulation...
September 12, 2017: British Journal of Psychology
https://www.readbyqxmd.com/read/28894017/effects-of-early-integrated-palliative-care-on-caregivers-of-patients-with-lung-and-gastrointestinal-cancer-a-randomized-clinical-trial
#7
Areej El-Jawahri, Joseph A Greer, William F Pirl, Elyse R Park, Vicki A Jackson, Anthony L Back, Mihir Kamdar, Juliet Jacobsen, Eva H Chittenden, Simone P Rinaldi, Emily R Gallagher, Justin R Eusebio, Sarah Fishman, Harry VanDusen, Zhigang Li, Alona Muzikansky, Jennifer S Temel
BACKGROUND: The family and friends (caregivers) of patients with advanced cancer often experience tremendous distress. Although early integrated palliative care (PC) has been shown to improve patient-reported quality of life (QOL) and mood, its effects on caregivers' outcomes is currently unknown. MATERIALS AND METHODS: We conducted a randomized trial of early PC integrated with oncology care versus oncology care alone for patients who were newly diagnosed with incurable lung and noncolorectal gastrointestinal cancers and their caregivers...
September 11, 2017: Oncologist
https://www.readbyqxmd.com/read/28892547/non-rapid-eye-movement-arousal-parasomnias-in-children
#8
Vijayabharathi Ekambaram, Kiran Maski
Parasomnia is a common pediatric sleep disorder that can cause parents or caregivers distress when experienced by their children. Based on the International Classification of Sleep Disorders, parasomnias can be divided into two subgroups: non-rapid eye movement (NREM) parasomnias and rapid eye movement (REM) parasomnias. REM sleep parasomnias include nightmares, REM behavior disorder, and sleep paralysis, whereas NREM sleep parasomnias include disorders of arousal such as confusional arousals, sleepwalking, sleep talking, night terrors, and sleep-related eating disorder...
September 1, 2017: Pediatric Annals
https://www.readbyqxmd.com/read/28886136/relationship-between-the-number-of-family-members-and-stress-by-gender-cross-sectional-analysis-of-the-fifth-korea-national-health-and-nutrition-examination-survey
#9
Jin-Won Noh, Kyoung-Beom Kim, Jumin Park, Janghun Hong, Young Dae Kwon
BACKGROUND: Due to gendered inequalities in the division of domestic work, women with paid employment and family caregiving responsibilities can feel extremely tired with general distress and depression. Therefore, the purpose of this study was to examine the association between the number of family members and stress level by gender among Korean adults using a nationally representative dataset. METHODS: We used a sample of 6,293 subjects aged 19 or older (3,629 female and 2,264 male) from the fifth Korea National Health and Nutrition Examination Survey...
2017: PloS One
https://www.readbyqxmd.com/read/28881076/the-relationship-between-psychiatric-patients-caregivers-burden-and-anger-expression-styles
#10
Serap Yildirim, Özge Akyüz, Esra Engin, Kadriye Gültekin
AIMS AND OBJECTIVES: The objective of this study was to examine the relationship between psychiatric patients' caregivers burden and anger expression styles. BACKGROUND: In the caregiving process, when coping with problems, caregivers may exhibit emotional and behavioral responses, which can produce distressful results. One of these responses is angry. Examing the relationship between psychiatric patients' caregivers burden and caregivers' anger expression styles is necessary for quality of care...
September 7, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/28878705/children-affected-by-war-and-armed-conflict-parental-protective-factors-and-resistance-to-mental-health-symptoms
#11
Michelle Slone, Anat Shoshani
This study examined the role of parenting styles and parental warmth in moderating relations between exposure to political life events and mental health symptoms among 277 Israeli adolescents aged 12-14 and their parents, who had been exposed to protracted periods of war, missile bombardments, and terrorism. Adolescents completed the Political Life Events (PLE) scale, Brief Symptom Inventory and questionnaires regarding parenting style and parental warmth. The primary caregiver completed the Child Behavior Checklist for assessment of the child's internalizing and externalizing symptoms...
2017: Frontiers in Psychology
https://www.readbyqxmd.com/read/28873121/truth-telling-in-the-setting-of-cultural-differences-and-incurable-pediatric-illness-a-review
#12
Abby R Rosenberg, Helene Starks, Yoram Unguru, Chris Feudtner, Douglas Diekema
Importance: Navigating requests from parents or family caregivers not to disclose poor prognosis to seriously ill children can be challenging, especially when the requests seem culturally mediated. Pediatric clinicians must balance obligations to respect individual patient autonomy, professional truth telling, and tolerance of multicultural values. Observations: To provide suggestions for respectful and ethically appropriate responses to nondisclosure requests, we used a hypothetical case example of a Middle Eastern adolescent patient with incurable cancer and conducted an ethical analysis incorporating (1) evidence from both Western and Middle Eastern medical literature and (2) theories of cultural relativism and justice...
September 5, 2017: JAMA Pediatrics
https://www.readbyqxmd.com/read/28872031/palliative-care-and-management-of-troublesome-symptoms-for-people-with-chronic-obstructive-pulmonary-disease
#13
REVIEW
Matthew Maddocks, Natasha Lovell, Sara Booth, William D-C Man, Irene J Higginson
People with advanced chronic obstructive pulmonary disease (COPD) have distressing physical and psychological symptoms, often have limited understanding of their disease, and infrequently discuss end-of-life issues in routine clinical care. These are strong indicators for expert multidisciplinary palliative care, which incorporates assessment and management of symptoms and concerns, patient and caregiver education, and sensitive communication to elicit preferences for care towards the end of life. The unpredictable course of COPD and the difficulty of predicting survival are barriers to timely referral and receipt of palliative care...
September 2, 2017: Lancet
https://www.readbyqxmd.com/read/28871796/alzheimers-disease-and-caregiving-a-meta-analytic-review-comparing-the-mental-health-of-primary-carers-to-controls
#14
Mandy Ma, Diana Dorstyn, Lynn Ward, Shaun Prentice
OBJECTIVES: To quantitatively review the literature comparing depressed mood, anxiety and psychological distress in caregivers (CGs) of older adults with Alzheimer's disease (AD) with non-caregivers (NCGs) Methods: Eighteen independent studies comparing AD CGs (N = 2378) with NCGs (N = 70,035) were evaluated in accordance with the Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guidelines. Standardised mean differences (Hedges' g) with associated 95% confidence intervals and p-values were calculated using a random-effects model...
September 5, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28870976/caregiver-burden-in-owners-of-a-sick-companion-animal-a-cross-sectional-observational-study
#15
Mary Beth Spitznagel, Dana M Jacobson, Melanie D Cox, Mark D Carlson
Much recent work has focused on occupational stress in veterinary medicine, although little is known about the possible contribution of client-based factors. Clients providing care for a companion animal with protracted illness are likely to experience 'caregiver burden' and reduced psychosocial functioning, which may ultimately lead to increased veterinarian stress. This cross-sectional observational study assessed caregiver burden and psychosocial function in 238 owners of a dog or cat, comparing owners of an animal with chronic or terminal diseases (n=119) with healthy controls blindly matched for owner age/sex and animal species (n=119)...
September 4, 2017: Veterinary Record
https://www.readbyqxmd.com/read/28857958/is-there-a-role-for-a-child-life-specialist-during-orthopedic-cast-room-procedures-a-prospective-randomized-assessment
#16
John A Schlechter, Anna L Avik, Stephanie DeMello
Pediatric anxiety during cast room procedures is common and various methods to manage distress may be used. Certified Child Life Specialists (CCLS) are formally trained professionals with proficiency in helping children during taxing events. The utilization of a CCLS has not been well documented in a pediatric orthopedic cast room. The aim of this study was to assess the impact of a CCLS in this setting through a prospective randomized trial. 86 children, age range 2-10 years, who underwent cast room procedures were randomized: group I (42 children) had a CCLS present during their procedure...
August 28, 2017: Journal of Pediatric Orthopedics. Part B
https://www.readbyqxmd.com/read/28837292/-position-of-a-patient-in-emergency-situations-lots-of-experiences-few-evidences
#17
Adeline Dunand, Pierre-Nicolas Carron, Mathieu Pasquier, Ludovic Maudet
In emergency situations, regularly trained technical skills return as automatisms. This is so with the positioning of our critical patients. According to their signs and symptoms (e.g. respiratory distress, unconsciousness, hypotension), they will be installed immediately in a semi-sitting position, in the recovery position, in the Trendelenburg position or with raised legs. But are these gestures repeated and transmitted to successive generations of caregivers really effective and safe? Do we understand the original context and purpose in which these positions were invented? Here we review three of the most common positions in emergency medicine, reminding ourselves of their contextual origin, as well as existing evidence and limits to their use...
August 9, 2017: Revue Médicale Suisse
https://www.readbyqxmd.com/read/28833964/stress-in-caregivers-of-individuals-with-intellectual-or-developmental-disabilities-a-systematic-review-of-mindfulness-based-interventions
#18
REVIEW
Seán Ó Donnchadha
BACKGROUND: The efficacy of mindfulness-based interventions (MBIs) for stress and psychological distress in professional caregivers supporting individuals with intellectual or developmental disabilities (IDDs) is reviewed. METHODS: Eight studies met inclusion criteria and were systematically reviewed, including RCTs and single-group designs. RESULTS: As per Reichow, Volkmar, and Cicchetti (Journal of Autism and Developmental Disorders, 38, 2008), three studies were classified as "adequate quality" and five were classified as "weak...
August 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28832982/mothers-physiological-and-affective-responding-to-infant-distress-unique-antecedents-of-avoidant-and-resistant-attachments
#19
Ashley M Groh, Cathi Propper, Roger Mills-Koonce, Ginger A Moore, Susan Calkins, Martha Cox
In a sample of 127 mother-infant dyads, this study examined the predictive significance of mothers' physiological and observed emotional responding within distressing and nondistressing caregiving contexts at 6 months for infant attachment assessed with Fraley and Spieker's (2003) dimensional approach and the categorical approach at 12 months. Findings revealed that a lesser degree of maternal respiratory sinus arrhythmia withdrawal and higher levels of maternal neutral (vs. positive) affect within distressing (vs...
August 21, 2017: Child Development
https://www.readbyqxmd.com/read/28829630/associated-factors-of-readiness-to-change-in-young-adult-risky-drinkers
#20
Ebon S Alley, Mary M Velasquez, Kirk Von Sternberg
BACKGROUND: Readiness to change alcohol use has been associated with a number of predictors including emotional distress, drinking severity, and consequence severity, as well as with static demographic factors such as gender and race/ethnicity. OBJECTIVE: To examine the relationships among these variables and readiness to change alcohol use in young adults. METHODS: Structural equation modeling was used to test pathways of readiness to change in 1,256 young adult patients (78% male/22% female) ages 18-29 who were provided screening, brief intervention and referral to treatment (SBIRT) as part of a Substance Abuse and Mental Health Services Administration (SAMHSA) Treatment Capacity Expansion Project...
August 22, 2017: American Journal of Drug and Alcohol Abuse
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