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Caregiver Distress

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https://www.readbyqxmd.com/read/29149796/effectiveness-of-treatment-in-wards-for-patients-with-dementia-and-issues-associated-with-this-treatment-a-prospective-analysis
#1
Shogo Taniguchi, Teruyuki Matsuoka, Takeshi Hikawa, Atsushi Machihara, Keisuke Shibata, Hideki Miki, Hiroshi Shimizu, Jin Narumoto
In order to optimize the treatment in wards for patients with dementia, we investigated predictors of the length of stay in the ward for patients with dementia. A prospective analysis of 72 patients with dementia was conducted in two wards for patients with dementia. Severity of dementia was assessed by the Clinical Dementia Rating, basic activities of daily living were evaluated using the Physical Self-Maintenance Scale, and severity of behavioral and psychological symptoms of dementia and caregiver distress were determined with the Nursing Home version of the Neuropsychiatric Inventory...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/29146222/nursing-staff-distress-associated-with-neuropsychiatric-symptoms-in-young-onset-dementia-and-late-onset-dementia
#2
Jeannette C L van Duinen-van den IJssel, Ans J M J Mulders, Martin Smalbrugge, Sandra A Zwijsen, Britt Appelhof, Syste U Zuidema, Marjolein E de Vugt, Frans R J Verhey, Christian Bakker, Raymond T C M Koopmans
OBJECTIVE: The aims of this study were (1) to investigate the relationship between different neuropsychiatric symptoms (NPS) and the level of distress experienced by nurses caring for residents with young-onset dementia (YOD) and (2) to compare these findings with those for nurses caring for residents with late-onset dementia (LOD). DESIGN/SETTING: This is a retrospective study conducted in Dutch long-term care facilities. Data were used from the Behavior and Evolution of Young-ONset Dementia studies (BEYOND) Parts I and II and the WAAL Behavior in Dementia-II (Waalbed-II) study...
November 14, 2017: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/29143722/relationship-between-the-number-of-behavioral-symptoms-in-dementia-and-caregiver-distress-what-is-the-tipping-point
#3
Paul B Arthur, Laura N Gitlin, John A Kairalla, William C Mann
BACKGROUND: Behavioral and psychological symptoms of dementia (BPSD) are a primary manifestation of brain dysfunction in dementia and a great challenge in caregiving. While BPSD are historically associated with caregiver distress, it is unclear whether there is an identifiable point where BPSD number is associated with heightened caregiver distress. The purpose of this study was to determine if such a tipping point exists to assist clinicians in identifying caregiver compromise. METHODS: Analyses were performed with three datasets totaling 569 community-dwelling persons with dementia and their caregivers...
November 16, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/29143427/effectiveness-of-educational-program-using-printed-educational-material-on-care-burden-distress-among-staff-of-residential-aged-care-facilities-without-medical-specialists-and-or-registered-nurses-cluster-quasi-randomization-study
#4
Koji Fukuda, Seishi Terada, Mamoru Hashimoto, Katsuyuki Ukai, Ryo Kumagai, Mizue Suzuki, Masahiro Nagaya, Mika Yoshida, Hideyuki Hattori, Kenta Murotani, Kenji Toba
AIM: Behavioral and psychological symptoms of dementia are an important source of distress for caregivers. The aim of the present study was to evaluate the effectiveness of educational intervention using printed educational material for reducing distress induced by behavioral and psychological symptoms of dementia among caregivers working at facilities without medical specialists and/or registered nurses. METHODS: A cluster quasi-randomized, controlled comparative trial was carried out at 17 facilities in Japan...
November 15, 2017: Geriatrics & Gerontology International
https://www.readbyqxmd.com/read/29141448/utilizing-evidence-based-assessment-instruments-to-detect-well-being-and-distress-in-english-and-spanish-speaking-caregivers-of-individuals-affected-by-dementia
#5
Shanna L Burke, Aaron Burgess, Tamara Cadet
Objective The purpose of this study was to examine the most effective and available English and Spanish language caregiver assessments for providers and caregivers. Methods Assessments were included if they screened for caregiving-related concerns, including stress, depression, and caregiving burden and could be administered directly to caregivers in person or online. Results Eighteen assessments are designed to assess caregiver burden, distress, depression, and grief. Six did not have psychometric data to support efficacy but are widely used in clinical and research settings...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/29138131/reducing-symptom-distress-in-patients-with-advanced-cancer-using-an-e-alert-system-for-caregivers-pooled-analysis-of-two-randomized-clinical-trials
#6
David H Gustafson, Lori L DuBenske, Amy K Atwood, Ming-Yuan Chih, Roberta A Johnson, Fiona McTavish, Andrew Quanbeck, Roger L Brown, James F Cleary, Dhavan Shah
BACKGROUND: Symptom distress in patients toward the end of life can change rapidly. Family caregivers have the potential to help patients manage those symptoms, as well as their own stress, if they are equipped with the proper resources. Electronic health (eHealth) systems may be able to provide those resources. Very sick patients may not be able to use such systems themselves to report their symptoms but family caregivers could. OBJECTIVE: The aim of this paper was to assess the effects on cancer patient symptom distress of an eHealth system that alerts clinicians to significant changes in the patient's symptoms, as reported by a family caregiver...
November 14, 2017: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/29125677/a-dyadic-analysis-of-stress-processes-in-latinas-with-breast-cancer-and-their-family-caregivers
#7
Chris Segrin, Terry A Badger, Alla Sikorskii, Tracy E Crane, Thaddeus W W Pace
OBJECTIVE: Breast cancer diagnosis and treatment negatively affect quality of life for survivors and their family caregivers. The stress process model has been useful for describing the cascade of social and psychological experiences that culminate in degraded quality of life for both survivors and their family caregivers. This study is designed to test theoretically specified predictors of negative psychosocial outcomes in a dyadic context. METHOD: Participants were 230 dyads comprised of Latinas recently diagnosed with breast cancer and their primary family caregiver, who completed measures of socioeconomic status, stress, family conflict, depression, and anxiety...
November 10, 2017: Psycho-oncology
https://www.readbyqxmd.com/read/29122049/predictive-factors-associated-with-psychological-distress-of-caregivers-of-people-with-dementia-in-japan-a-cross-sectional-study
#8
Ryo Shikimoto, Mitsuhiro Sado, Akira Ninomiya, Kimio Yoshimura, Baku Ikeda, Toshiaki Baba, Masaru Mimura
BACKGROUND: Caregivers of people with dementia are likely to have psychological distress that sometimes results in mental health problems, such as depression. The objective of this study was to examine some predictive factors that are thought to be associated with psychological distress of caregivers of people with dementia in Japan. METHODS: Design: A cross-sectional study. SAMPLE: As part of a study to estimate the cost of dementia in Japan, 1,437 people with dementia-caregiver dyads were enrolled in the current informal care time study...
November 10, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/29121916/a-longitudinal-study-looking-at-and-beyond-care-recipient-health-as-a-predictor-of-long-term-care-home-admission
#9
Raquel S D Betini, John P Hirdes, Donna S Lero, Susan Cadell, Jeff Poss, George Heckman
BACKGROUND: The unpaid care provided by informal caregivers allows care recipients to live longer in their homes, which often results in fewer unnecessary long term care home (LTCH) admissions. Although the relationship between care recipient's health characteristics and institutionalization is well known, the influence of caregiver distress and caregiving coresidence and relationship on this outcome is less clear. This study examines the association of care recipient care needs, caregiver distress and caregiving coresidence and relationship with care recipient long term care home admission...
November 9, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/29119657/reduced-neural-responses-to-vocal-fear-a-potential-biomarker-for-callous-uncaring-traits-in-early-childhood
#10
Caroline P Hoyniak, John E Bates, Isaac T Petersen, Chung-Lin Yang, Isabelle Darcy, Nathalie M G Fontaine
OBJECTIVE: Callous-unemotional (CU) traits are characterized by a lack of guilt and empathy, and low responsiveness to distress and fear in others. Children with CU traits are at-risk for engaging in early and persistent conduct problems. Individuals showing CU traits have been shown to have reduced neural responses to others' distress (e.g., fear). However, the neural components of distress responses in children with CU traits have not been investigated in early childhood. In the current study, we examined neural responses that underlie the processing of emotionally valenced vocal stimuli using the event-related potential technique in a group of preschoolers...
November 8, 2017: Developmental Science
https://www.readbyqxmd.com/read/29116825/spanish-validation-of-the-10-item-connor-davidson-resilience-scale-cd-risc-10-with-non-professional-caregivers
#11
Vanessa Blanco, María Adelina Guisande, María Teresa Sánchez, Patricia Otero, Fernando L Vázquez
OBJECTIVES: Despite the importance of resilience in populations under stress, and the fact that the 10-item version Connor-Davidson Resilience Scale (CD-RISC 10) is the shortest instrument for reliable and valid evaluation of resilience, there are no data on their psychometric properties in non-professional caregivers. The aim of this study was to analyze the psychometric properties and factorial structure of the spanish version of the CD-RISC 10 in non-professional caregivers. METHOD: Independently trained assessors evaluated resilience, self-esteem, social support, emotional distress and depression in a sample of 294 caregivers (89...
November 8, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/29114558/predictors-of-caregiver-burden-in-iranian-family-caregivers-of-cancer-patients
#12
Seyed Reza Mirsoleymani, Camelia Rohani, Mahsa Matbouei, Malihe Nasiri, Parvaneh Vasli
BACKGROUND: Caregiver burden threatens the psychological, emotional, functional and even physical health of caregivers. The aims of this study were to determine caregiver burden and family distress and the relationship between them, also to explore predictors of caregiver burden in a sample of Iranian family caregivers of cancer patients. MATERIALS AND METHODS: This is a cross-sectional study with correlational design. A total of 104 family caregivers of cancer patients were asked to respond to the Caregiver Burden Inventory (CBI) and the Family Distress Index (FDI) together with a sociodemographic questionnaire...
2017: Journal of Education and Health Promotion
https://www.readbyqxmd.com/read/29103150/caregiver-social-support-quality-when-interacting-with-cancer-survivors-advancing-the-dual-process-model-of-supportive-communication
#13
Jacquelyn Harvey-Knowles, Meara H Faw
Cancer caregivers often experience significant challenges in their motivation and ability to comfort cancer survivors, particularly in a spousal or romantic context. Spousal cancer caregivers have been known to report even greater levels of burden and distress than cancer sufferers, yet still take on the role of acting as an informal caregiver so they can attend to their partner's needs. The current study tested whether a theoretical model of supportive outcomes-the dual-process model of supportive communication-explained variations in cancer caregivers' motivation and ability to create high-quality support messages...
November 4, 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29095373/good-and-bad-days-fluctuations-in-the-burden-of-informal-dementia-caregivers-an-experience-sampling-study
#14
Sandrine Pihet, Christina Moses Passini, Manuela Eicher
BACKGROUND: Informal dementia caregivers (IDCs) are often confronted with important fluctuations in care-related burden, commonly described as "good and bad days." These fluctuations are overlooked by traditional questionnaires focusing on the average experience. The experience sampling method (ESM) is based on the repeated collection of data in everyday life, thereby allowing the description of day-to-day fluctuations in IDC burden, and the identification of their correlates. ESM studies are still scarce among IDCs, with none focusing on day-to-day fluctuations in burden...
November 2017: Nursing Research
https://www.readbyqxmd.com/read/29091831/psychological-burden-and-caregiver-reported-non-adherence-to-psychotropic-medications-among-patients-with-schizophrenia
#15
Irene A Kretchy, Joseph Osafo, Samuel Agyei Agyemang, Bernard Appiah, Justice Nonvignon
The study examined the association between psychological distress, caregiving burden and caregiver-reported medication adherence in 444 informal family caregivers of patients with schizophrenia. Participants were assessed on the Depression, Anxiety Stress Scale, Zarit Burden Interview and the Medication Adherence Report Scale. Caregivers reported a non-adherence rate of 54.5% among patients with schizophrenia. Poor adherence to antipsychotics was significantly associated with caregiver burden (p < 0.01) and experience of anxiety (p < 0...
October 24, 2017: Psychiatry Research
https://www.readbyqxmd.com/read/29084049/preschool-children-s-coping-responses-and-outcomes-in-the-vaccination-context-child-and-caregiver-transactional-and-longitudinal-relationships
#16
Lauren Campbell, Rebecca Pillai Riddell, Robert Cribbie, Hartley Garfield, Saul Greenberg
This paper, based on two companion studies, presents an in-depth analysis of preschooler coping with vaccination pain. Study 1 employed an autoregressive cross-lagged path model to investigate the dynamic and reciprocal relationships between young children's coping responses (how they cope with pain and distress) and coping outcomes (pain behaviors) at the preschool vaccination. Expanding on this analysis, Study 2 then modeled preschool coping responses and outcomes using both caregiver and child variables from the child's 12-month vaccination (n=548), preschool vaccination (n=302), and a preschool psychological assessment (n=172)...
October 26, 2017: Pain
https://www.readbyqxmd.com/read/29079031/neuropsychiatric-symptoms-in-people-with-korsakoff-syndrome-and-other-alcohol-related-cognitive-disorders-living-in-specialized-long-term-care-facilities-prevalence-severity-and-associated-caregiver-distress
#17
Ineke J Gerridzen, Cees M P M Hertogh, Marja F Depla, Ruth B Veenhuizen, Els M L Verschuur, Karlijn J Joling
OBJECTIVES: Caring for people with Korsakoff syndrome (KS) residing in specialized long-term care facilities (LTCFs) can be distressing because of challenging neuropsychiatric symptoms (NPS). However, good-quality studies on NPS in this under-researched population are lacking. This study examined the prevalence and severity of NPS in people with KS living in specialized LTCFs and the associated caregiver distress. DESIGN: Cross-sectional, observational study. Data were obtained using structured interviews with care staff, elderly care physicians, and residents...
October 24, 2017: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/29078366/neurobiology-of-culturally-common-maternal-responses-to-infant-cry
#18
Marc H Bornstein, Diane L Putnick, Paola Rigo, Gianluca Esposito, James E Swain, Joan T D Suwalsky, Xueyun Su, Xiaoxia Du, Kaihua Zhang, Linda R Cote, Nicola De Pisapia, Paola Venuti
This report coordinates assessments of five types of behavioral responses in new mothers to their own infants' cries with neurobiological responses in new mothers to their own infants' cries and in experienced mothers and inexperienced nonmothers to infant cries and other emotional and control sounds. We found that 684 new primipara mothers in 11 countries (Argentina, Belgium, Brazil, Cameroon, France, Kenya, Israel, Italy, Japan, South Korea, and the United States) preferentially responded to their infants' vocalizing distress by picking up and holding and by talking to their infants, as opposed to displaying affection, distracting, or nurturing...
November 7, 2017: Proceedings of the National Academy of Sciences of the United States of America
https://www.readbyqxmd.com/read/29077999/caregiver-responses-to-child-posttraumatic-distress-a-qualitative-study-in-a-high-risk-context-in-south-africa
#19
Victoria Williamson, Ian Butler, Mark Tomlinson, Sarah Skeen, Hope Christie, Jackie Stewart, Sarah L Halligan
Many low- and middle-income countries (LMIC) have high rates of child trauma exposure and limited access to psychological services. Caregivers are often a child's key source of support following trauma in such contexts. The aim of this study was to explore the experiences of primary caregivers in supporting their child posttrauma. Qualitative interviews were conducted with 20 female caregivers from a high-risk settlement in Cape Town following child trauma exposure. Children were exposed to significant traumatic events, including gang violence, assault, and fatalities of close relatives...
October 2017: Journal of Traumatic Stress
https://www.readbyqxmd.com/read/29077985/the-experience-of-psychological-distress-in-family-caregivers-of-people-with-dementia-a-cross-sectional-study
#20
Wilson Abreu, Teresa Rodrigues, Carlos Sequeira, Regina Pires, Ana Sanhudo
PURPOSE: To evaluate the degree of psychological distress in family caregivers of people with dementia. DESIGN AND METHODS: A nonprobabilistic sample of 54 dyads (people with dementia and family caregivers) was recruited. A sociodemographic questionnaire, the Brief Symptom Inventory (BSI), and the Barthel Index were used for data collection. FINDINGS: About half of the caregivers had significant levels of psychological distress. Caregivers showed high scores in some BSI dimensions: somatization, obsessive-compulsion, interpersonal sensitivity, anxiety, and paranoid ideation...
October 27, 2017: Perspectives in Psychiatric Care
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