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Psychosocial oncology

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https://www.readbyqxmd.com/read/29784141/psychosocial-care-from-the-perspective-of-nurses-working-in-oncology-a-qualitative-study
#1
Perihan Güner, Duygu Hiçdurmaz, Nazmiye Kocaman Yıldırım, Figen İnci
PURPOSE: In cancer patients, unmet psychosocial needs are a common occurrence. The purpose of this study was to determine the views, obstacles, and needs of the nurses working with adult oncology patients with regards to psychosocial care. METHODS: A qualitative descriptive research design conducted through focus group interviews was adopted for the study. Thirty nurses providing care for cancer patients in adult oncology departments of three hospitals in Turkey with comprehensive oncology centers were involved in the interviews...
June 2018: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
https://www.readbyqxmd.com/read/29784140/telephone-follow-up-after-treatment-for-endometrial-cancer-a-qualitative-study-of-patients-and-clinical-nurse-specialists-experiences-in-the-endcat-trial
#2
S Williamson, K Beaver, A Gardner, P Martin-Hirsch
PURPOSE: Endometrial cancer is the sixth most common female cancer worldwide. There is little evidence that routine hospital surveillance increases survival or decreases morbidity following treatment. Gynaecology Oncology clinical nurse specialists (CNSs) are ideally placed to provide the care, information and support to enable women with a gynaecological cancer to self-manage and live well. A multi-centre randomised controlled trial (RCT) compared hospital follow-up (HFU) with telephone follow-up (TFU) by CNSs...
June 2018: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
https://www.readbyqxmd.com/read/29774474/perspectives-of-children-family-caregivers-and-health-professionals-about-pediatric-oncology-symptoms-a-systematic-review
#3
REVIEW
Lei Cheng, Liying Wang, Mengxue He, Sheng Feng, Yehui Zhu, Cheryl Rodgers
OBJECTIVES: To evaluate the existing body of evidence to determine the current state of knowledge regarding the perspectives of the following groups: (1) children with cancer, (2) family caregivers, and (3) healthcare professionals, about symptoms, as well as factors that may influence the symptom reports. METHODS: A systematic search was performed for all types of studies that included the perspectives of at least two groups of participants' symptom reports. Children included anyone younger than 19 years of age who was diagnosed with any type of cancer...
May 17, 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29770995/adolescent-and-young-adult-oncology-patients-in-france-heterogeneity-in-pathways-of-care
#4
Emmanuel Desandes, Laurence Brugières, Florence Molinié, Gautier Defossez, Patricia Delafosse, Karine Jehannin-Ligier, Michel Velten, Brigitte Trétarre, Brice Amadéo, Emilie Marrer, Anne-Sophie Woronoff, Olivier Ganry, Alain Monnereau, Tania d'Almeida, Xavier Troussard, Laetitia Daubisse-Marliac, Simona Bara, Anne-Valérie Guizard, Isabelle Baldi, Guy Launoy, Jacqueline Clavel, Brigitte Lacour
BACKGROUND: In order to evaluate at the population level the impact of the actions developed in France since 2004 to organize the care of adolescents and young adults (AYAs) with cancer, we conducted the present study to provide an unbiased view of the pathway of care of these patients. METHODS: Using a population-based registry, we conducted a review of all cases of cancer diagnosed during 2012 and 2013 in 15- to 24-year-old patients living in nineteen French administrative areas...
May 17, 2018: Pediatric Blood & Cancer
https://www.readbyqxmd.com/read/29758554/psychosocial-distress-in-bladder-cancer-stratified-by-gender-age-treatment-and-tumour-stage
#5
Désirée Louise Draeger, Karl-Dietrich Sievert, Oliver W Hakenberg
OBJECTIVES: Cancer patients have to cope with anxieties -concerning their prognosis, potential recurrence/progression, and treatment-associated sequelae. Stress-related psychosocial factors influence survival and disease-related mortality in cancer patients. Despite improvements in diagnosis and treatment, bladder cancer (BC) remains characterized by high rates of recurrence and progression. We screened -pre-therapeutically the stress level of BC patients stratified by gender, disease state, treatment, and other factors by -self-administered validated questionnaires to integrate them into psychosocial support as needed...
May 14, 2018: Urologia Internationalis
https://www.readbyqxmd.com/read/29756480/tracheoesophageal-prosthesis-use-is-associated-with-improved-overall-quality-of-life-in-veterans-with-laryngeal-cancer
#6
Ramya S Patel, Tiffany Mohr, Christine Hartman, Carol Stach, Andrew G Sikora, Jose P Zevallos, Vlad C Sandulache
OBJECTIVES: Veterans have an increased risk of laryngeal cancer, yet their oncologic and functional outcomes remain understudied. We sought to determine the longitudinal impact of tracheoesophageal puncture and voice prosthesis on quality-of-life measures in veterans following total laryngectomy (TL). METHODS: We performed a cross-sectional analysis of TL patients (n = 68) treated at the Michael E. DeBakey Veterans Affairs Medical Center using the Voice Handicap Index (VHI), MD Anderson Dysphagia Index (MDADI), and University of Washington Quality of Life Index (UW-QOL)...
May 1, 2018: Annals of Otology, Rhinology, and Laryngology
https://www.readbyqxmd.com/read/29752847/an-interpretative-phenomenological-analysis-of-the-experience-of-living-with-colorectal-cancer-as-a-chronic-illness
#7
Grant J McGeechan, Kerri E McPherson, Karen Roberts
AIMS AND OBJECTIVES: The main aim of this study was to explore the lived experiences of patients living with cancer as a chronic illness. BACKGROUND: Due to recent advances in detection and treatment, cancer is now regarded as a chronic illness. However, living with cancer as a chronic illness can lead to a number of physical and psychosocial consequences all of which can lead to uncertainty over how patients view and plan for their future. DESIGN: A longitudinal qualitative study...
May 12, 2018: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29749682/psycho-oncology-overview-obstacles-and-opportunities
#8
Jimmie C Holland
Worldwide, psychological and social issues in cancer were not the subject of scientific inquiry until the past two decades. Since then, a new subspecialty of oncology has evolved, psycho-oncology. It addresses two dimensions of cancer: the emotional responses of patients at all stages of disease, as well as their families and caretakers (psychosocial); and the pyschological, social and behavioral factors that may influence cancer morbidity and mortality (psychobiological). Obstacles to development have been the facts of small numbers of clinicians and investigators worldwide and the few valid assessment instruments and research methods available to the biomedical community...
May 2018: Psycho-oncology
https://www.readbyqxmd.com/read/29748162/cocreated-smartphone-app-to-improve-the-quality-of-life-of-adolescents-and-young-adults-with-cancer-kr%C3%A3-ftv%C3%A3-rket-protocol-for-a-quantitative-and-qualitative-evaluation
#9
Abbey Elsbernd, Maiken Hjerming, Camilla Visler, Lisa Lyngsie Hjalgrim, Carsten Utoft Niemann, Kirsten Boisen, Helle Pappot
BACKGROUND: Adolescents and young adults with cancer face significant challenges during the course of their medical treatment and recovery from illness. Many adolescents and young adults struggle with long-term complications in the physical, psychosocial, economic, and academic domains. Mobile health (mHealth) interventions provide an innovative platform for delivering supportive care, particularly through the utilization of apps on smartphones and tablets. To create a successful mHealth intervention for adolescents and young adults, youth input and feedback is essential...
May 10, 2018: JMIR Research Protocols
https://www.readbyqxmd.com/read/29744966/the-effects-of-self-book%C3%A2-art-therapy-on-cancer-related-distress-in-female-cancer-patients-during-active-treatment-a-randomized-controlled-trial
#10
Donna Radl, Maureen Vita, Nancy Gerber, Edward J Gracely, Joke Bradt
OBJECTIVE: National attention on patients' cancer-related emotional distress produced a need for evidence-based, psychosocial interventions in oncology care. The purpose of this study was to evaluate the efficacy of Self-Book© art therapy for emotional distress and psychological well-being of female oncology patients during active oncology treatment. METHODS: Sixty consenting women with cancer were randomly assigned to either a six-session Self-Book© art therapy program or standard care...
May 10, 2018: Psycho-oncology
https://www.readbyqxmd.com/read/29739897/cluster-analysis-demonstrates-the-need-to-individualize-care-for-cancer-survivors
#11
Belle H de Rooij, Elyse R Park, Giselle K Perez, Julia Rabin, Katharine M Quain, Don S Dizon, Kathryn E Post, Garrett M Chinn, Allison L McDonough, Rachel B Jimenez, Lonneke V van de Poll-Franse, Jeffrey Peppercorn
BACKGROUND: In efforts to inform clinical screening and development of survivorship care services, we sought to characterize patterns of health care needs among cancer survivors by (a) identifying and characterizing subgroups based on self-reported health care needs and (b) assessing sociodemographic, clinical, and psychosocial factors associated with these subgroups. METHODS: We conducted a cross-sectional self-administered survey among patients presenting for routine follow-up care for early-stage cancer at our academic medical center...
May 8, 2018: Oncologist
https://www.readbyqxmd.com/read/29739375/how-do-professionals-assess-the-quality-of-life-of-children-with-advanced-cancer-receiving-palliative-care-and-what-are-their-recommendations-for-improvement
#12
Josianne Avoine-Blondin, Véronique Parent, Léonor Fasse, Clémentine Lopez, Nago Humbert, Michel Duval, Serge Sultan
BACKGROUND: It is known that information regarding the quality of life of a patient is central to pediatric palliative care. This information allows professionals to adapt the care and support provided to children and their families. Previous studies have documented the major areas to be investigated in order to assess the quality of life, although it is not yet known what operational criteria or piece of information should be used in the context of pediatric palliative care. The present study aims to: 1) Identify signs of quality of life and evaluation methods currently used by professionals to assess the quality of life of children with cancer receiving palliative care...
May 8, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29737245/palliative-care-volunteerism-across-the-healthcare-system-a-survey-study
#13
Steven Vanderstichelen, Dirk Houttekier, Joachim Cohen, Yanna Van Wesemael, Luc Deliens, Kenneth Chambaere
BACKGROUND: Volunteers fulfil several roles in supporting terminally ill people and their relatives and can positively influence quality of care. Healthcare in many countries faces resource constraints and some governments now expect communities to provide an increasing proportion of palliative care. However, systematic insights into volunteer presence, tasks and training and organisational challenges for volunteerism are lacking. AIM: Describe organised volunteerism in palliative direct patient care across the Flemish healthcare system (Belgium)...
May 1, 2018: Palliative Medicine
https://www.readbyqxmd.com/read/29730713/predictors-of-outpatients-request-for-palliative-care-service-at-a-medical-oncology-clinic-of-a-german-comprehensive-cancer-center
#14
Mitra Tewes, Teresa Rettler, Nathalie Wolf, Jörg Hense, Martin Schuler, Martin Teufel, Mingo Beckmann
PURPOSE: Early integration of palliative care (PC) is recommended. The determination of predictors for patients' request for PC may guide implementation in clinical practice. Toward this end, we analyzed the symptom burden and distress of cancer patients in outpatient care and examined their need and request for PC. METHODS: Between October 2013 and March 2016, 705 patients receiving outpatient cancer treatment took part in the survey. We used the new MInimal DOcumentation System to detect symptom clusters...
May 5, 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29728467/predictors-of-location-of-death-for-children-with-cancer-enrolled-on-a-palliative-care-service
#15
Erica C Kaye, Samantha DeMarsh, Courtney A Gushue, Jonathan Jerkins, April Sykes, Zhaohua Lu, Jennifer M Snaman, Lindsay J Blazin, Liza-Marie Johnson, Deena R Levine, R Ray Morrison, Justin N Baker
BACKGROUND: In the U.S., more children die from cancer than from any other disease, and more than one third die in the hospital setting. These data have been replicated even in subpopulations of children with cancer enrolled on a palliative care service. Children with cancer who die in high-acuity inpatient settings often experience suffering at the end of life, with increased psychosocial morbidities seen in their bereaved parents. Strategies to preemptively identify children with cancer who are more likely to die in high-acuity inpatient settings have not been explored...
May 4, 2018: Oncologist
https://www.readbyqxmd.com/read/29728347/the-development-of-delta-using-agile-to-develop-a-decision-aid-for-pediatric-oncology-clinical-trial-enrollment
#16
Eden G Robertson, Claire E Wakefield, Richard J Cohn, Tracey O'Brien, David S Ziegler, Joanna E Fardell
BACKGROUND: The internet is increasingly being used to disseminate health information. Given the complexity of pediatric oncology clinical trials, we developed Delta, a Web-based decision aid to support families deciding whether or not to enroll their child with cancer in a clinical trial. OBJECTIVE: This paper details the Agile development process of Delta and user testing results of Delta. METHODS: Development was iterative and involved 5 main stages: a requirements analysis, planning, design, development, and user testing...
May 4, 2018: JMIR Research Protocols
https://www.readbyqxmd.com/read/29719434/measuring-patient-reported-outcomes-to-improve-cancer-care-in-canada-an-analysis-of-provincial-survey-data
#17
K Tran, S Zomer, J Chadder, C Earle, S Fung, J Liu, C Louzado, R Rahal, R Shaw Moxam, E Green
Patient-reported outcomes measures (proms) are an important component of the shift from disease-centred to person-centred care. In oncology, proms describe the effects of cancer and its treatment from the patient perspective and ideally enable patients to communicate to their providers the physical symptoms and psychosocial concerns that are most relevant to them. The Edmonton Symptom Assessment System-revised (esas-r) is a commonly used and validated tool in Canada to assess symptoms related to cancer. Here, we describe the extent to which patient-reported outcome programs have been implemented in Canada and the severity of symptoms causing distress for patients with cancer...
April 2018: Current Oncology
https://www.readbyqxmd.com/read/29697192/assessment-of-end-of-treatment-transition-needs-for-pediatric-cancer-and-hematopoietic-stem-cell-transplant-patients-and-their-families
#18
Jeffrey S Karst, Jennifer A Hoag, Sherilynn F Chan, Debra J Schmidt, Lynnette J Anderson, Nicole E Englebert, Eva C Igler, Kristin M Bingen
BACKGROUND/OBJECTIVES: The transition off active treatment is a time of significant stress for pediatric cancer patients and families. Providing information and support at this time is among the new psychosocial standards of care in pediatric oncology. This study sought to explore patient and family needs and concerns at the end of their active cancer treatment. DESIGN/METHODS: Forty-nine caregiver-child dyads completed semi-structured interviews and surveys 1-2 months before ending treatment, and again 3-7 months after treatment concluded...
April 26, 2018: Pediatric Blood & Cancer
https://www.readbyqxmd.com/read/29691245/health-related-quality-of-life-in-chinese-inpatients-with-lung-cancer-treatedin-large-general-hospitals-across-sectional-study
#19
Wen Gu, Yan-Min Xu, Bao-Liang Zhong
OBJECTIVE: In China, psychosocial problems of patients with cancer are under-recognised and undertreated in medical oncology practice. This study examined the health-related quality of life (QOL) in inpatients with lung cancer treated in large general hospitals and explored the demographic, clinical and psychosocial factors associated with QOL. DESIGN: Cross-sectional study. PARTICIPANTS AND SETTING: Altogether, 148 inpatients with lung cancer were consecutively recruited from two large general hospitals in Tianjin, China...
April 24, 2018: BMJ Open
https://www.readbyqxmd.com/read/29684230/effective-palliative-care-what-is-involved
#20
REVIEW
Mehak Swami, Amy Allen Case
It is important for oncologists who provide comprehensive cancer care to be familiar with the principles of primary palliative care and interdisciplinary team-based approaches to palliative care. Palliative care is a medical subspecialty that provides specialized care to individuals with serious illnesses, with a primary focus on providing symptom relief, pain management, and relief from psychosocial distress, regardless of diagnosis or prognosis. Ideally, palliative care is provided by a team of physicians, nurses, social workers, psychologists, and chaplains...
April 15, 2018: Oncology (Williston Park, NY)
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