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Holistic family care

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https://www.readbyqxmd.com/read/28068863/an-exploratory-study-investigating-the-multidimensional-factors-impacting-the-health-and-well-being-of-young-adults-with-cerebral-palsy
#1
Susan E Sienko
BACKGROUND: For young adults with cerebral palsy, changes in psychological and social development, in conjunction with the progression of musculoskeletal deformities and the onset of secondary conditions, make the transition to adulthood a difficult developmental phase. Preliminary evidence shows that many of the physical impairments reported in adults with cerebral palsy begin during late adolescence; however, there is little information about prevalence of impairments and the combined role impairments, psychological and social factors have on the health and well-being of young adults with cerebral palsy...
January 9, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28025490/a-model-of-health-for-family-caregivers-of-elders
#2
Florence M Weierbach, Yan Cao
: Family members who provide care to their loved ones experience changes in their own health. The caregiver health model (CGHM) is a new model that identifies health holistically and identifies four determinant(s) that contribute to the health status of the family caregiver. The purpose is to introduce the CGHM: Hypothesis 1: the determinants of health in the CGHM contribute to the health of the Caregiver, Hypothesis 2: the determinants of health contribute to changes in the caregivers' health at 8 and 16 weeks, and Hypothesis 3: a change in health occurs from baseline to 8 and 16 weeks...
December 22, 2016: Healthcare (Basel, Switzerland)
https://www.readbyqxmd.com/read/27999485/effect-of-perceived-social-support-on-the-levels-of-anxiety-and-depression-of-hemodialysis-patients
#3
Ioanna Lilympaki, Andriana Makri, Kyriaki Vlantousi, Ioannis Koutelekos, Fotoula Babatsikou, Maria Polikandrioti
PURPOSE: of this study was to explore the effect of social support on the levels of anxiety and depression of hemodialysis patients. MATERIAL AND METHODS: 258 patients undergoing hemodialysis were enrolled. A questionnaire developed for the purpose of the study was used to collect data through the interview process. Apart from socio-demographic, clinical and other characteristics, the questionnaire also included the Multidimensional Scale of Perceived Social Support (MSPSS) to assess social support from significant others, family and friends, and the questionnaire Hospital Anxiety and Depression Scale (HADs) to assess the levels of anxiety and depression of patients...
October 2016: Materia Socio-medica
https://www.readbyqxmd.com/read/27997304/supporting-the-supporters-what-family-caregivers-need-to-care-for-a-loved-one-with-cancer
#4
Leonard L Berry, Shraddha Mahesh Dalwadi, Joseph O Jacobson
Patients with cancer who live at home often require help with activities of daily living, basic medical care (eg, injections), social needs, and patient advocacy. Most of that support comes from intimate caregivers, typically members of the patient's family. These family caregivers themselves require support so that they can be effective and maintain their own well-being while caring for the patient with cancer. Research shows that support for caregivers contributes to achieving these goals. We propose a four-part framework for supporting family caregivers: (1) assess caregivers' needs using formal measures, just as the cancer patient's own needs are assessed, (2) educate caregivers for their caregiving roles, most notably, with training in the low-level medical support that cancer patients require at home, (3) empower caregivers to become full-fledged members of the patient's cancer team, all working toward common goals, and (4) assist caregivers proactively in their duties, so that they retain a sense of control and self-efficacy rather than having to react to imminent medical crises without sufficient resources at their disposal...
December 20, 2016: Journal of Oncology Practice
https://www.readbyqxmd.com/read/27995844/next-steps-for-meeting-the-needs-of-people-with-severe-mental-illness-in-low-and-middle-income-countries
#5
C Hanlon
The explicit inclusion of mental health within the Sustainable Development Goals is a welcome development, borne out of powerful advocacy using public health, economic and human rights arguments. As funding comes on line for scale-up of evidence-based mental health care by task-sharing with primary care, it is time to take stock about care for people affected by severe mental illness (SMI). The existing evidence base for task shared care for SMI provides an imperative to get started, but is skewed towards relatively more affluent and urban populations in middle-income countries where specialist mental health professionals provide most of the care...
December 20, 2016: Epidemiology and Psychiatric Sciences
https://www.readbyqxmd.com/read/27981150/raising-the-awareness-of-undergraduate-nurses-to-the-psychosocial-impact-of-living-with-cancer-a-consumer-engagement-in-teaching-initiative
#6
Lana Zannettino, Jan Thompson, Julie Marker, Stephanie Agius
This article reflects on the development and implementation of a consumer engagement in teaching initiative by the authors. The authors highlight the challenges of engaging undergraduate nursing students on the psychosocial aspects of living with cancer and other chronic illnesses when students have very limited personal and professional experiences to draw on. The authors discuss how they have responded to these challenges by integrating the voices of consumers into their classrooms. Speakers from consumer advocacy organization, Cancer Voices SA, participated in a series of tutorials in a 1(st) year topic in the Undergraduate Nursing Program at the School of Nursing and Midwifery, Flinders University...
April 2016: Asia-Pacific Journal of Oncology Nursing
https://www.readbyqxmd.com/read/27957432/factors-associated-with-the-social-support-of-hemodialysis-patients
#7
Anastasia Theodoritsi, Maria-Eleni Aravantinou, Victoria Gravani, Eirini Bourtsi, Chrysoula Vasilopoulou, Paraskevi Theofilou, Maria Polikandrioti
BACKGROUND: Support has been gradually acknowledged as a significant factor that exerts a positive influence on hemodialysis patients' lives as well as on the outcome of the disease. The purpose was to explore factors associated with social support of hemodialysis patients. METHODS: The sample studied consisted of 258 patients undergoing hemodialysis in public hospitals in Athens, Greece during 2015. Data collection was performed by the method of the interview using a specially designed questionnaire, which included the Multidimensional Scale of Perceived Social Support for the assessment of social support from significant others, family and friends as well as patients' socio-demographic, clinical and other characteristics...
October 2016: Iranian Journal of Public Health
https://www.readbyqxmd.com/read/27951734/caregiver-mental-health-and-hiv-infected-child-wellness-perspectives-from-ugandan-caregivers
#8
S M Murray, I Familiar, N Nakasujja, P J Winch, J J Gallo, R Opoka, J O Caesar, M J Boivin, J K Bass
Prior studies indicate a substantial link between maternal depression and early child health but give limited consideration to the direction of this relationship or the context in which it occurs. We sought to create a contextually informed conceptual framework of this relationship through semi-structured interviews with women that had lived experience of caring for an HIV-infected child while coping with depression and anxiety symptoms. Caregivers explained their role in raising healthy children as complex and complicated by poverty, stigma, and isolation...
December 13, 2016: AIDS Care
https://www.readbyqxmd.com/read/27935339/history-taking-and-physical-assessment-in-holistic-palliative-care
#9
Marie Donnelly, Daphne Martin
In carrying out a holistic palliative care assessment the palliative care clinical nurse specialist needs to develop the knowledge and skill of history taking and health assessment to make safe and competent decisions with patients regarding the future management of their care. This article examines this process in making a differential diagnosis with particular reference to the respiratory physical examination of a patient with a history of lung cancer using the Calgary-Cambridge Model. The model gives structure to the preparation, history taking, and physical examination (inspection, palpation, percussion and auscultation) before explaining, planning and closing the consultation, while considering the palliative patient's and family's individual wishes and goals...
December 8, 2016: British Journal of Nursing: BJN
https://www.readbyqxmd.com/read/27928502/improving-cardiovascular-outcomes-among-aboriginal-australians-lessons-from-research-for-primary-care
#10
Sandra C Thompson, Emma Haynes, John A Woods, Dawn C Bessarab, Lynette A Dimer, Marianne M Wood, Frank M Sanfilippo, Sandra J Hamilton, Judith M Katzenellenbogen
BACKGROUND: The Aboriginal people of Australia have much poorer health and social indicators and a substantial life expectancy gap compared to other Australians, with premature cardiovascular disease a major contributor to poorer health. This article draws on research undertaken to examine cardiovascular disparities and focuses on ways in which primary care practitioners can contribute to reducing cardiovascular disparities and improving Aboriginal health. METHODS: The overall research utilised mixed methods and included data analysis, interviews and group processes which included Aboriginal people, service providers and policymakers...
2016: SAGE Open Medicine
https://www.readbyqxmd.com/read/27902520/rethinking-recovery-incorporating-holistic-nursing-perspectives-in-poststroke-care
#11
Frances Peterson-Burch, Karin Reuter-Rice, Taura L Barr
Stroke is a life-changing experience. Current treatments focus on treating the condition, rather than the whole person. The goal of this report was to communicate the benefits of a holistic approach to the treatment and recovery of stroke. Our intent was to begin a conversation to transform our approach to stroke care to focus on the whole person, body, mind, and spirit. Wellness approaches are fiscally responsible ways of providing holistic care for patients and their family members to help them achieve optimal individualized recovery...
January 2017: Holistic Nursing Practice
https://www.readbyqxmd.com/read/27901408/four-steps-to-eliminate-or-reduce-pain-in-children-caused-by-needles-part-1
#12
Stefan J Friedrichsdorf
Dr Stefan Friedrichsdorf* speaks to Jade Parker, Commissioning Editor: Stefan J Friedrichsdorf, MD, is medical director of the Department of Pain Medicine, Palliative Care and Integrative Medicine at Children's Hospitals and Clinics of Minnesota, Minneapolis/St Paul, MN, USA, home to one of the largest and most comprehensive programs of its kind in the country. The interdisciplinary pain team is devoted to prevent and treat acute, procedural, neuropathic, psycho-social-spiritual, visceral, and chronic/complex pain for all inpatients and outpatients in close collaboration with all pediatric subspecialties at Children's Minnesota...
November 30, 2016: Pain Management
https://www.readbyqxmd.com/read/27882391/-palliative-care-for-patients-with-turkish-or-arabic-migration-background-in-lower-saxony-a%C3%A2-survey-from-palliative-care-professionals-perspective
#13
Maximiliane Jansky, Sonja Owusu-Boakye, Friedemann Nauck
BACKGROUND AND OBJECTIVES: People with a migration background (MB) are an important part of German society. If and how they use specialised palliative care (SPC) has not been studied. We aimed to assess the current SPC for patients with Turkish or Arabic MB (the largest group of immigrants in Germany with a shared ascribed culture) from the point of view of healthcare professionals (HCP) in Lower Saxony. METHOD: All HCPs in institutions providing SPC (n = 90) were invited to participate in an anonymous online survey which contained closed and open questions about care for this patient group, characteristics of the last patient with Turkish or Arabic MB they cared for, and resources and strategies to care for these patients...
January 2017: Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz
https://www.readbyqxmd.com/read/27874840/an-integrated-narrative-nursing-model-towards-a-new-healthcare-paradigm
#14
Giovanna Artioli, Chiara Foà, Chiara Taffurelli
In the traditional biomedical model of clinical practice, which assumes a medicine focused on disease, diseases are considered as biological or psycho-physiological universal entities. This explanation, although necessary, is not enough. Several authors have recently become interested in the use of narrative practices in the medical care setting, underlining the increasing importance of "a patient-centered approach", a "relationship -centered care" and "narrative medicine". Even in Nursing, the challenge was to combine two models that seemed incompatible: the Evidence-Based Nursing Model and the Narrative-Based Nursing Model...
November 22, 2016: Acta Bio-medica: Atenei Parmensis
https://www.readbyqxmd.com/read/27872340/evaluating-the-needs-of-patients-living-with-solid-tumor-cancer-a-survey-design
#15
April L Schmidt, Rebecca A Lorenz, Paula M Buchanan, Laura McLaughlin
PURPOSE: To describe the unmet needs of adult patients living with solid tumor cancer. DESIGN: Survey design. METHOD: Adult patients living with solid tumor cancer from two outpatient clinics were mailed the Sheffield Profile for Assessment and Referral to Care, a holistic screening questionnaire for assessing palliative care needs, and a demographics questionnaire. One hundred fifteen patients returned the instruments, corresponding to a 62% response rate...
November 20, 2016: Journal of Holistic Nursing: Official Journal of the American Holistic Nurses' Association
https://www.readbyqxmd.com/read/27868448/applying-an-ecological-framework-to-understand-transition-pathways-to-post-secondary-education-for-youth-with-physical-disabilities
#16
Sally Lindsay, Michelle Duncanson, Nadia Niles-Campbell, Carolyn McDougall, Sara Diederichs, Dolly Menna-Dack
PURPOSE: The purpose of this study was to explore the experiences of youth with physical disabilities and clinicians who support them in their transition to post-secondary education (PSE). Most research on transition to PSE has focused on youth with intellectual disabilities while there is a lack of research on youth with physical disabilities. METHODS: This study drew on 30 interviews with 20 youth with disabilities and 10 clinicians. We used Bronfrenbrenner's ecological framework to inform our analysis...
November 20, 2016: Disability and Rehabilitation
https://www.readbyqxmd.com/read/27868348/theory-that-explains-an-aboriginal-perspective-of-learning-to-understand-and-manage-diabetes
#17
Emma Webster, Craig Johnson, Bernie Kemp, Valerie Smith, Monica Johnson, Billie Townsend
OBJECTIVE: To use grounded theory and participatory research methodology to explain how Aboriginal people learn to understand and manage type 2 diabetes. METHODS: Aboriginal people with diabetes were invited to participate in one of five focus groups (n=25, male=12, female=13). Focus groups and education sessions were conducted by Aboriginal members of the research team. Focus groups were audio recorded and transcribed, with coding and first level analysis undertaken by all members of the research team...
November 20, 2016: Australian and New Zealand Journal of Public Health
https://www.readbyqxmd.com/read/27866338/reflections-on-serving-remote-mountain-communities-mobile-hospitals-and-women-s-and-children-s-health-care-in-northern-haiti
#18
Rose-Marie Chierici, Thony Michelet Voltaire
In 2003 Alyans Sante Borgne's (ASB) conducted the first week-long mobile hospital in Molas, a poor mountain community a 10-h walk from the main hospital in the town of Borgne in North Haiti. ASB is a partnership between Haiti Outreach-Pwoje Espwa (H.O.P.E.), a US-based NGO, and Haiti's Ministry of Health. The paper reflects on this first experience and the evolution of an indigenous model of health care delivery, Sante Nan Lakou (SNL)/Health at the Extended Family Level, a model that prioritizes the needs of patients over those of the institution...
November 19, 2016: Maternal and Child Health Journal
https://www.readbyqxmd.com/read/27860051/the-professional-psychiatric-mental-health-nurse-skills-competencies-and-supports-required-to-adopt-recovery-orientated-policy-in-practice
#19
E Cusack, F Killoury, L E Nugent
: WHAT IS KNOWN ON THE SUBJECT?: Nationally and internationally there has been a movement away from the traditional medical model towards a more holistic recovery-oriented approach to mental health care delivery. At every level of service provision the emphasis is firmly on recovery and on facilitating active partnership working and involvement of service users, their carers and family members. WHAT THIS PAPER ADDS TO EXISTING KNOWLEDGE?: This is the first study to identify on a national level specific areas of care that are addressed most or least by psychiatric and mental health nurses in care planning for mental health service users in Ireland...
November 18, 2016: Journal of Psychiatric and Mental Health Nursing
https://www.readbyqxmd.com/read/27849163/fifteen-minute-consultation-perinatal-palliative-care
#20
Peter Sidgwick, Emily Harrop, Brenda Kelly, Ana Todorovic, Dominic Wilkinson
Perinatal palliative medicine is an emerging subspecialty within paediatric palliative medicine, neonatal medicine, fetal medicine and obstetrics. It comprises patient-focused, non-judgemental shared decision making and aims to provide holistic multidisciplinary support for families. In this paper we define and describe one model for providing perinatal palliative care, drawing on the personal and professional experience of the authors.
November 14, 2016: Archives of Disease in Childhood. Education and Practice Edition
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