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https://www.readbyqxmd.com/read/29221527/social-experiences-of-women-with-obstetric-fistula-seeking-treatment-in-kampala-uganda
#1
Marielle Meurice, Rene Genadry, Carol Heimer, Galya Ruffer, Barageine Justus Kafunjo
BACKGROUND: Obstetric fistula is a preventable and treatable condition predominately affecting women in low-income countries. Understanding the social context of obstetric fistula may lead to improved prevention and treatment. OBJECTIVES: This study investigated social experiences of women with obstetric fistula seeking treatment at Mulago Hospital in Kampala, Uganda. METHODS: A descriptive study was conducted among women seeking treatment for obstetric fistula during a surgical camp in July 2011 using a structured questionnaire...
May 2017: Annals of Global Health
https://www.readbyqxmd.com/read/29211583/end-of-life-care-in-nursing-homes-a-qualitative-interpretive-meta-synthesis
#2
Cara L Wallace, Gail Adorno, Daniel B Stewart
BACKGROUND: Due to large number of deaths occurring in nursing home (NH) settings, along with reports of pain and suffering, there is great need for improvements in the provision of end-of-life (EOL) care in NHs. OBJECTIVE: The aim of this study was to develop a comprehensive understanding of the experience of dying in NHs through the perspective of residents, family, and facility staff. DESIGN: This study uses a qualitative interpretive meta-synthesis to provide a holistic view of EOL care in NHs across multiple qualitative studies...
December 6, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29202863/a-novel-family-dignity-intervention-fdi-for-enhancing-and-informing-holistic-palliative-care-in-asia-study-protocol-for-a-randomized-controlled-trial
#3
Andy Hau Yan Ho, Josip Car, Moon-Ho Ringo Ho, Geraldine Tan-Ho, Ping Ying Choo, Paul Victor Patinadan, Poh Heng Chong, Wah Ying Ong, Gilbert Fan, Yee Pin Tan, Robert A Neimeyer, Harvey M Chochinov
BACKGROUND: The lack of a holistic approach to palliative care can lead to a fractured sense of dignity at the end of life, resulting in depression, hopelessness, feelings of being a burden to others, and the loss of the will to live among terminally ill patients. Building on the clinical foundation of Dignity Therapy, together with the empirical understanding of dignity-related concerns of Asian families facing terminal illness, a novel Family Dignity Intervention (FDI) has been developed for Asian palliative care...
December 4, 2017: Trials
https://www.readbyqxmd.com/read/29194170/collaborating-with-hospital-chaplains-to-meet-the-spiritual-needs-of-critical-care-patients
#4
Lisa A Ruth-Sahd, Carolanne B Hauck, Kaitlyn E Sahd-Brown
There are many opportunities for critical-care nurses to collaborate with chaplains in an effort to provide spiritual care for patients and their families. By recognizing the educational requirements as well as the unique roles of board-certified chaplains (BCCs), the critical-care nurse will view them as respected members of the health care team. This collaboration positively impacts the work environment and creates a holistic space for healing for patients, as well as the health care team. As nurses, we must educate and inform novice nurses about the important role of BCCs on the interdisciplinary health care team...
January 2018: Dimensions of Critical Care Nursing: DCCN
https://www.readbyqxmd.com/read/29189353/pediatric-palliative-oncology-the-state-of-the-science-and-art-of-caring-for-children-with-cancer
#5
Jennifer M Snaman, Erica C Kaye, Justin N Baker, Joanne Wolfe
PURPOSE OF REVIEW: Pediatric palliative oncology (PPO) is an emerging field that integrates the principles of palliative care early into the illness trajectory of children with cancer. PPO providers work with interdisciplinary clinicians to provide optimal medical and psychosocial care to children with cancer and their families. Ongoing advances in the field of pediatric oncology, including new treatment options for progressive cancers, necessitate the early integration of palliative care tenets including holistic care, high-quality communication, and assessment and management of refractory symptoms...
November 17, 2017: Current Opinion in Pediatrics
https://www.readbyqxmd.com/read/29187141/experiences-and-needs-of-carers-of-aboriginal-children-with-a-disability-a-qualitative-study
#6
Michelle DiGiacomo, Anna Green, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Patricia Mary Davidson, Penelope Abbott
BACKGROUND: Australian parents/carers of a person with a disability experience higher rates of depression, more financial stress, and are twice as likely to be in poor physical health than the general population. Aboriginal and Torres Strait Islander peoples experience worse health, social and economic outcomes than other Australians, and those with a disability face 'double disadvantage'. This study aimed to better understand the experiences and needs of parents/carers/families of Aboriginal children with a disability...
November 29, 2017: BMC Family Practice
https://www.readbyqxmd.com/read/29186651/lived-experience-of-patients-with-glaucoma-glaucoma-a-phenomenological-study
#7
Silvio Simeone, Gianluca Pucciarelli, Marco Perrone, Gianpaolo Gargiulo, G Isabella Continisio, Assunta Guillari, Teresa Rea
INTRODUCTION: Glaucoma is often a misdiagnosed pathology and is one of the main causes of blindness in the world population.Glaucoma frequentlycauses limitations in theactivities of daily livingand changes the patient's quality of life. AIM: The purpose of our study is to describe the life experiences of subjects in southern Italy suffering from glaucoma. METHOD: Phenomenological study RESULTS: From the analysis of interviews six main themes emerged:(1) a profound change in lifestyle, (2) casual diagnosis,(3) independent research,(4) fear of blindness,(5) fear of being a burden to family, and (6) fear of familial pathology...
July 2017: Professioni Infermieristiche
https://www.readbyqxmd.com/read/29173077/family-centred-care-in-the-paediatric-high-dependency-unit-parents-and-staff-s-perception
#8
Mandie Foster, Lisa Whitehead
AIM: This study explored parent and staff perceptions of family centred care within a paediatric high dependency in one New Zealand hospital. BACKGROUND: Family centred care is a partnership approach to healthcare delivery where the child's treatment is aligned to the family's needs and desired level of involvement. Despite widespread endorsement of family centred care, variations in the definitions, perceptions, utilisation and level of importance placed on treatment, information, negotiation, support and family involvement between parents and staff within various healthcare settings continues to be evident...
November 27, 2017: Contemporary Nurse
https://www.readbyqxmd.com/read/29168937/managing-the-nutritional-needs-of-palliative-care-patients
#9
Teresa Day
The nutritional needs of patients receiving palliative care should be routinely assessed, taking into account disease trajectory and nutrition-related symptoms. The social and emotional aspects of eating and drinking should also be acknowledged; as should the distress that weight loss and anorexia engenders in patients and their families. Practical strategies to optimise nutritional intake are discussed. Open and sensitive communication of patients' needs and wishes is essential, especially when discussing complementary nutrition approaches...
November 23, 2017: British Journal of Nursing: BJN
https://www.readbyqxmd.com/read/29168196/family-members-expectations-regarding-nurses-competence-in-care-homes-a-qualitative-interview-study
#10
Outi Kiljunen, Päivi Kankkunen, Pirjo Partanen, Tarja Välimäki
BACKGROUND: Structural and cultural changes in the care of older people have influenced nursing practice, creating a need to identify current competency requirements for nurses working in care homes. Family members have an important role in ensuring the well-being of older people living in care homes, and family members' can provide valuable information about competence requirements. AIM: To explore the expectations of the care home residents' family members regarding the competence of nurses in care homes for older people...
November 22, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/29131469/do-programs-for-aboriginal-and-torres-strait-islander-people-leaving-prison-meet-their-health-and-social-support-needs
#11
REVIEW
Penelope Abbott, Jane E Lloyd, Chandni Joshi, Kathy Malera-Bandjalan, Eileen Baldry, Elizabeth McEntyre, Juanita Sherwood, Jennifer Reath, Devon Indig, Mark F Harris
The objective of this review was to synthesise evidence on the health and social support needs of Aboriginal and Torres Strait Islander people leaving prison and on programs which aid successful community re-entry. A systematic literature review was undertaken of peer-reviewed and grey literature published between 2001 and 2013, focusing on the post-release needs of Aboriginal and Torres Strait Islander adults and pre- and post-release programs. Aboriginal and Torres Strait Islander people have high health and social support needs on leaving prison...
November 13, 2017: Australian Journal of Rural Health
https://www.readbyqxmd.com/read/29120687/a-100-patient-clinical-evaluation-of-an-alternating-pressure-replacement-mattress-in-a-home-based-setting
#12
Jackie Stephen-Haynes, Rosie Callaghan
BACKGROUND: alternating pressure air mattresses (APAMs) support the prevention and management of pressure ulcers. A health and care NHS trust was seeking an APAM that would improve clinical outcomes in relation to pressure ulcers while considering financial cost. An APAM existed that could meet the trust's needs but there was a lack of evidence over its use in a community/home setting. This study examined the effect of using the Dual Professional (IQ Medical) APAM for patients at a high risk of pressure ulceration...
November 8, 2017: British Journal of Nursing: BJN
https://www.readbyqxmd.com/read/29119812/the-nursing-assessment-of-infants-with-bronchiolitis
#13
Clare Davies, Donna Waters, Andrea Marshall
Bronchiolitis is the leading cause of morbidity and hospitalization in infants under the age of one year. Supportive treatments and regular assessment remain the mainstay of care for infants admitted to hospital. Nurses play an important role in the assessment of infants with bronchiolitis; however, this is not well described in the literature and consequently little is known about what strategies nurses employ in assessing infants with bronchiolitis. The aim of this study was to explore bronchiolitis assessment in the context of nursing practice...
June 2017: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29119811/22q11-deletion-syndrome-parents-and-children-s-experiences-of-educational-and-healthcare-provision-in-the-united-kingdom
#14
Wendy Cohen, Elspeth McCartney, Lisa Crampin
22q11 deletion syndrome (22q11DS) is a genetic syndrome, prevalence around 1:4000-1:6000 live births, with a complex array of associated features, impacting on healthcare and educational support. This study reports the perceptions of families and individuals with 22q11DS in relation to these needs. Individuals and families of those with 22q11DS were approached though two national charities - the Max Appeal and 22Crew. An initial observational survey design was used to gather views via questions probing access to healthcare and educational experiences...
June 2017: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29110803/sexual-dysfunction-in-primary-care-an-exploratory-descriptive-analysis-of-medical-record-diagnoses
#15
Katie M Heiden-Rootes, Joanne Salas, Sarah Gebauer, Matthew Witthaus, Jeffrey Scherrer, Kristin McDaniel, Dasha Carver
BACKGROUND: The prevalence of sexual dysfunction (SDx) diagnoses in primary care settings is not well known, which is a concern because of the high prevalence of comorbid chronic health conditions in patients diagnosed with SDx. AIM: To explore the relation of SDx diagnosis, chronic health conditions, and prescription medications commonly associated with SDx for men and women in primary care using medical records diagnoses. METHODS: Exploratory descriptive analyses were used to interpret secondary data from a primary care patient database...
November 2017: Journal of Sexual Medicine
https://www.readbyqxmd.com/read/29105501/a-qualitative-study-of-the-processes-by-which-carers-of-people-with-dementia-derive-meaning-from-caring
#16
M G Cherry, J R Ablett, J M Dickson, D Powell, S Sikdar, P Salmon
BACKGROUND: Most individuals with dementia live in the community, receiving care from family or lay carers. Carers' wellbeing, and the quality of the care they provide, partly depends on their ability to derive meaning from caring for someone with dementia. Both carers' previous relationship with their relative and the caregiving process itself contribute to this sense of meaning. However, it remains unclear why some carers derive meaning from these sources, whereas others do not. OBJECTIVE: To further explore the processes by which carers derive a sense of meaning from caring...
November 6, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/29099474/nurses-perceptions-of-psychosocial-care-and-barriers-to-its-provision-a-qualitative-study
#17
Cassandra Siyun Chen, Sally Wai-Chi Chan, Moon Fai Chan, Suk Foon Yap, Wenru Wang, Yanika Kowitlawakul
BACKGROUND: Psychosocial care is the culturally sensitive provision of psychological, social, and spiritual care through therapeutic communication. Current evidence suggests that effective psychosocial care improves patients' health outcomes and quality of life. PURPOSE: The aim of this study was to explore nurses' perceptions and experiences in providing psychosocial care to patients and to identify the related barriers and challenges. METHODS: An exploratory qualitative design using semistructured, individual, face-to-face interviews was adopted...
December 2017: Journal of Nursing Research: JNR
https://www.readbyqxmd.com/read/29092868/patients-outcomes-after-acute-respiratory-failure-a-qualitative-study-with-the-promis-framework
#18
Michelle N Eakin, Yashika Patel, Pedro Mendez-Tellez, Victor D Dinglas, Dale M Needham, Alison E Turnbull
BACKGROUND: As mortality rates for patients treated in intensive care units decrease, greater understanding of the impact of critical illness on patients' well-being is needed. OBJECTIVE: To describe the survivorship experience of patients who had acute respiratory failure by using the Patient Reported Outcomes Measurement Information System (PROMIS) framework. METHODS: A total of 48 adult patients who had acute respiratory failure completed at least 1 semistructured telephone-based interview between 5 and 18 months after their stay in the intensive care unit...
November 2017: American Journal of Critical Care: An Official Publication, American Association of Critical-Care Nurses
https://www.readbyqxmd.com/read/29084340/overcoming-seasonal-affective-disorder
#19
Laura G Leahy
Seasonal affective disorder (SAD) significantly impacts the lives of individuals around the world. The mood fluctuations that occur are not only exhibited during the winter months but also during the spring and summer. The key to identifying SAD is the distinct seasonal onset and spontaneous remission of symptoms over the course of a season. Nurses are in a unique position to identify the symptoms of SAD and offer treatment recommendations to reduce the negative impact of these seasonal mood fluctuations. As holistic health care practitioners, nurses provide patient education regarding healthy lifestyle interventions, which can aid in minimizing the disruptive symptoms of SAD...
November 1, 2017: Journal of Psychosocial Nursing and Mental Health Services
https://www.readbyqxmd.com/read/29072887/axiomatic-design-of-a-framework-for-the-comprehensive-optimization-of-patient-flows-in-hospitals
#20
Gabriele Arcidiacono, Dominik T. Matt, Erwin Rauch
Lean Management and Six Sigma are nowadays applied not only to the manufacturing industry but also to service industry and public administration. The manifold variables affecting the Health Care system minimize the effect of a narrow Lean intervention. Therefore, this paper aims to discuss a comprehensive, system-based approach to achieve a factual holistic optimization of patient flows. This paper debates the efficacy of Lean principles applied to the optimization of patient flows and related activities, structures, and resources, developing a theoretical framework based on the principles of the Axiomatic Design...
2017: Journal of Healthcare Engineering
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