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https://www.readbyqxmd.com/read/28516470/survived-so-what-identifying-priorities-for-research-with-children-and-families-post-paediatric-intensive-care-unit
#1
Joseph C Manning, Pippa Hemingway, Sarah A Redsell
The involvement of patients and the public in the development, implementation and evaluation of health care services and research is recognized to have tangible benefits in relation to effectiveness and credibility. However, despite >96% of children and young people surviving critical illness or injury, there is a paucity of published reports demonstrating their contribution to informing the priorities for aftercare services and outcomes research. We aimed to identify the service and research priorities for Paediatric Intensive Care Unit survivors with children and young people, their families and other stakeholders...
May 17, 2017: Nursing in Critical Care
https://www.readbyqxmd.com/read/28513616/complementariness-between-medical-geneticists-and-genetic-counsellors-its-added-value-in-genetic-services-in-europe
#2
Milena Paneque, Clara Serra-Juhé, Rebecka Pestoff, Christophe Cordier, João Silva, Ramona Moldovan, Charlotta Ingvoldstad
Clinical genetic services have progressed significantly the last few decades. This has led to the need for non-medical health-care professionals working as genetic counsellors in Europe and worldwide. However, there is no unified approach to genetic counsellors' role in health-care services in Europe, as in most countries the profession is still emerging and the educational backgrounds diverge noticeably, within and between countries. This qualitative study aims to describe the potential added value of genetic counsellors in clinical genetics teams and to explore their tasks and responsibilities in different European countries...
May 17, 2017: European Journal of Human Genetics: EJHG
https://www.readbyqxmd.com/read/28508021/examining-the-roles-and-experiences-of-fathers-of-children-with-chronic-kidney-disease
#3
David B Nicholas
This study examined roles and experiences of fathers of children with chronic kidney disease (CKD). Based on interpretive description, semistructured interviews were conducted with 22 fathers of children receiving a range of treatments (transplant, peritoneal dialysis, hemodialysis, and CKD not requiring renal replacement therapy). Fathers described various experiences and means of adjusting to shifts associated with pediatric CKD. These included loss of personal control, a sense of personal isolation, and a stance of remaining strong amidst personal suffering...
January 2017: Global Qualitative Nursing Research
https://www.readbyqxmd.com/read/28490461/quality-of-life-among-children-with-spina-bifida-in-uganda
#4
Helen J Sims-Williams, Hugh P Sims-Williams, Edith Mbabazi Kabachelor, Benjamin C Warf
BACKGROUND: Children surviving after spina bifida repair often have significant disability, the consequences of which may be more profound in low-income countries. The aim of this cross-sectional study was to measure quality of life (QOL) reported by children with spina bifida in Uganda, and to define factors associated with QOL. METHODS: QOL was measured using both the Health Utilities Index (HUI3) Tool and a visual analogue scale (VAS) marked from 0 to 10. In keeping with the WHO definition of QOL, further analysis was conducted using subjective QOL scores (using the VAS)...
May 10, 2017: Archives of Disease in Childhood
https://www.readbyqxmd.com/read/28490381/palliative-care-in-the-neonatal-unit-neonatal-nursing-staff-perceptions-of-facilitators-and-barriers-in-a-regional-tertiary-nursery
#5
Meegan Kilcullen, Susan Ireland
BACKGROUND: Neonatology has made significant advances in the last 30 years. Despite the advances in treatments, not all neonates survive and a palliative care model is required within the neonatal context. Previous research has focused on the barriers of palliative care provision. A holistic approach to enhancing palliative care provision should include identifying both facilitators and barriers. A strengths-based approach would allow barriers to be addressed while also enhancing facilitators...
May 11, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28474751/a-willingness-to-go-there-nurses-and-spiritual-care
#6
Mary E Minton, Mary J Isaacson, Brandon Michael Varilek, Jessica L Stadick, Shannon O'Connell-Persaud
AIMS AND OBJECTIVES: Describe rural and urban palliative/hospice care nurses' communication strategies while providing spiritual care for patients and families at end-of-life. BACKGROUND: Nurses aim to provide holistic care consisting of physical, psychological, and spiritual components. However, it is well documented that spiritual care is largely missing from nursing care. Internationally, spiritual care is a growing topic of interest, yet many nurses feel unprepared to deliver spiritual care...
May 5, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/28472987/use-of-complementary-and-alternative-medicine-by-patients-with-end-stage-renal-disease-on-haemodialysis-in-trinidad-a-descriptive-study
#7
Mandreker Bahall
BACKGROUND: Despite the paucity of scientific evidence, complementary and alternative medicine (CAM) is widely used for the prevention and treatment of illness, holistic care, and counteracting the adverse effects of conventional medicine (CM). This study investigates the use of CAM by patients with end-stage renal disease (ESRD) on haemodialysis. METHODS: This quantitative study was conducted from November 1, 2014 to December 31, 2014 in the haemodialysis unit at San Fernando General Hospital (San Fernando, Trinidad)...
May 4, 2017: BMC Complementary and Alternative Medicine
https://www.readbyqxmd.com/read/28468708/fading-away-in-plain-sight
#8
Shirley A Lucier
The failure of health care professionals and providers to recognize and discuss end-of-life care continues to resonate across our heath care continuum. The value of the patient-clinician interaction is paramount in advocating for and establishing effective communication and care. A meaningful nurse-patient relationship is a key component to facilitate discussion of patient and family choices in how care can be managed throughout the dying process. This article describes how, using Virginia Henderson's nursing model of patientcentered care, a holistic and palliative approach to end-of-life care was successfully supported in the home...
May 1, 2017: Creative Nursing
https://www.readbyqxmd.com/read/28434431/a-concept-analysis-in-relation-to-the-cultural-competency-of-the-palliative-care-workforce-in-meeting-the-needs-of-young-people-from-south-asian-cultures
#9
Erica Brown, Anita Franklin, Jane Coad
OBJECTIVE: Our aims were to report an analysis of the concept of cultural competency and to explore how the cultural competency of the palliative care workforce impacts the holistic care of young people with palliative care needs from South Asian cultures. METHOD: Using keywords, we searched the online databases MEDLINE, CINAHL, ScienceDirect, and PubMed from January of 1990 through to December of 2016. Some 1543 articles were retrieved, and inclusion and exclusion criteria were applied...
April 24, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28427405/ceiling-effect-in-emr-system-assimilation-a-multiple-case-study-in-primary-care-family-practices
#10
Marie-Claude Trudel, Josianne Marsan, Guy Paré, Louis Raymond, Ana Ortiz de Guinea, Éric Maillet, Thomas Micheneau
BACKGROUND: There has been indisputable growth in adoption of electronic medical record (EMR) systems in the recent years. However, physicians' progress in using these systems has stagnated when measured with maturity scales. While this so-called ceiling effect has been observed and its consequences described in previous studies, there is a paucity of research on the elements that could explain such an outcome. We first suggest that in the context of EMR systems we are in presence of a "tiered ceiling effect" and then we show why such phenomenon occurs...
April 20, 2017: BMC Medical Informatics and Decision Making
https://www.readbyqxmd.com/read/28415900/pediatric-nurse-practitioners-clinical-competencies-and-knowing-patterns-in-nursing-focus-group-interviews
#11
Hyejung Lee, Anna Kim, Anna Meong, Minjeong Seo
BACKGROUND: The generic competency domains of advanced nursing practice have been reported on in numerous countries, but rather few studies have examined competencies specific to pediatric nurse practitioners (PNPs). OBJECTIVES: We identified the core clinical competencies of PNPs in South Korea and related these identified competencies to the five patterns of knowing in nursing. DESIGN: Focus group interviews were conducted with five PNP students and four PNPs using two thematic questions, one on clinical competencies required for PNPs and the other on competencies specific to Korean PNPs...
April 19, 2017: Contemporary Nurse
https://www.readbyqxmd.com/read/28409167/changes-in-daily-life-of-iranian-patients-with-implantable-cardioverter-defibrillator-a-qualitative-study
#12
Nilofar Pasyar, Farkhondeh Sharif, Mahnaz Rakhshan, Mohammad Hossein Nikoo, Elham Navab
BACKGROUND: Although Implantable Cardioverter Defibrillator (ICD) saves the life of patients with life-threatening ventricular dysrhythmias, it causes various challenges in their life span. Considering the increase in the number of ICD users, more knowledge is required regarding changes in the patients' life after device implantation. The aim of this study was description of changes in daily life of patients after ICD implantation. METHODS: This qualitative study was conducted through content analysis method...
April 2017: International Journal of Community Based Nursing and Midwifery
https://www.readbyqxmd.com/read/28406340/team-functioning-in-hospice-interprofessional-meetings-an-exploratory-study-of-providers-perspectives
#13
Karla T Washington, Yuqi Guo, David L Albright, Alexandria Lewis, Debra Parker Oliver, George Demiris
Interprofessional collaboration is the foundation of hospice service delivery. In the United States, hospice agencies are required to regularly convene interprofessional meetings during which teams review plans of care for the patients and families they serve. A small body of research suggests that team functioning could be significantly enhanced in hospice interprofessional meetings; however, systematic investigation of this possibility has been limited to date. The purpose of this qualitative study was to better understand the experiences and perspectives of hospice providers who regularly participate in interprofessional meetings as a first step toward improving teamwork in this setting...
April 13, 2017: Journal of Interprofessional Care
https://www.readbyqxmd.com/read/28395618/examining-evidence-on-dog-bite-injuries-and-their-management-in-children
#14
Gemma Elizabeth Murray
Dog bites are common injuries in children. The effects of such injuries can be devastating for the children concerned and their families. It is therefore important to provide holistic care and to consider psychological well-being as well as physical recovery. There should be clear guidelines for professionals about reporting dog bites and safeguarding. The literature recommends primary closure of the dog bite wound unless an infection is present. Literature also suggests that prophylactic antibiotics are ineffective in preventing infection except in hand injuries, although they are still routinely used in practice...
April 11, 2017: Nursing Children and Young People
https://www.readbyqxmd.com/read/28393339/-the-status-change-and-health-issues-of-inpatients-sixth-vital-sign-in-a-medical-center
#15
Li-Ying Lin, Ya-Hui Huang, Chung-Lung Hung, Ya-Mei Chen, Ching-Ju Kuo, Yan-Chiou Ku
BACKGROUND: Hospitalized patients generally have elevated levels of emotional distress. Gaining a better under-standing of the problem of emotional distress among hospitalized patients is conducive to providing appropriate emotional care and promoting their recovery. PURPOSE: To analyze the scores for the "sixth vital sign" (i.e., emotional distress), diversification, and the health-related problems of hospitalized patients at a medical center in Taiwan. The results may offer an important reference for providing effective emotional care to hospitalized patients...
April 2017: Hu Li za Zhi the Journal of Nursing
https://www.readbyqxmd.com/read/28390671/the-fourth-trimester-a-critical-transition-period-with-unmet-maternal-health-needs
#16
Kristin P Tully, Alison M Stuebe, Sarah B Verbiest
After childbirth, most American women are not scheduled for follow-up care for 6 weeks, and this visit is poorly attended. Many new mothers feel unprepared for the common health issues they encounter and are uncertain of whom to contact. To improve care, the 4(th) Trimester Project is bringing together mothers, health care providers, and other stakeholders to explore what families need most from birth to 12 weeks postpartum. Eighty-seven individuals convened in March 2016 in Chapel Hill, NC. Four major topic areas emerged: (1) the intense focus on women's health prenatally is unbalanced by infrequent and late postpartum care; (2) medical practice guidelines often do not align with women's experiences and constraints; (3) validation of women as experts of their infants and elevating their strengths as mothers is necessary to achieve health goals; and (4) mothers need comprehensive care, which is difficult to provide because of numerous system constraints...
April 5, 2017: American Journal of Obstetrics and Gynecology
https://www.readbyqxmd.com/read/28361642/nursing-care-for-people-with-delirium-superimposed-on-dementia
#17
Claire Pryor, Amanda Clarke
Nursing and healthcare is changing in response to an ageing population. There is a renewed need for holistic nursing to provide clinically competent, appropriate and timely care for patients who may present with inextricably linked mental and physical health requirements. This article explores the dichotomy in healthcare provision for 'physical' and 'mental' health, and the unique role nurses have when caring for people with delirium superimposed on dementia (DSD). Delirium is prevalent in older people and recognised as 'acute brain failure'...
March 31, 2017: Nursing Older People
https://www.readbyqxmd.com/read/28330379/patient-self-defined-goals
#18
Sandra Ellen Schellinger, Eric Worden Anderson, Monica Schmitz Frazer, Cindy Lynn Cain
This research, a descriptive qualitative analysis of self-defined serious illness goals, expands the knowledge of what goals are important beyond the physical-making existing disease-specific guidelines more holistic. Integration of goals of care discussions and documentation is standard for quality palliative care but not consistently executed into general and specialty practice. Over 14 months, lay health-care workers (care guides) provided monthly supportive visits for 160 patients with advanced heart failure, cancer, and dementia expected to die in 2 to 3 years...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/28327852/-person-centered-clinical-care-principles-and-strategies
#19
Juan Enrique Mezzich, Alberto Perales
The development of person-centered clinical care is inscribed within an international programmatic movement towards a medicine focused on the totality of the person. This movement, with broad historical bases, has been maturing since 2008 through conferences among global health institutions, research projects and academic publications. This paper is aimed at elucidating the conceptual principles of person-centered medicine (PCM) and to delineate strategies for the practical application of such principles in clinical care services...
October 2016: Revista Peruana de Medicina Experimental y Salud Pública
https://www.readbyqxmd.com/read/28304261/self-care-motivation-among-patients-with-heart-failure-a-qualitative-study-based-on-orem-s-theory
#20
Ghasem Abotalebidariasari, Robabe Memarian, Zohreh Vanaki, Anoshirvan Kazemnejad, Nasim Naderi
BACKGROUND AND PURPOSE: Initiating and adhering to self-care activities necessitate self-care motivation. This study was undertaken in Iran to explore self-care motivation among patients with heart failure (HF). METHODS: This qualitative study was done in 2014 and 2015. Study participants were patients with HF and their family members who were purposively selected from Shaheed Rajaei Cardiovascular, Medical and Research Center, Tehran, Iran. The study data were collected from December 2014 to May 2015 by doing in-depth semistructured face-to-face interviews and were analyzed via the directed content analysis approach...
November 1, 2016: Research and Theory for Nursing Practice
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