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Holistic family care

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https://www.readbyqxmd.com/read/29668147/-together-we-are-stronger-management-of-complex-functional-disorders-during-adolescence
#1
Anne-Emmanuelle Ambresin, Alain Deppen, Michaël Hofer, Laurence Dahner, Olivier Roche, Mellie Huguenin Dezot, Daniela Beltrami, Paul Nouvellet, Jean-Baptiste Armengaud
Functional disorder during adolescence is a very complex problem too often limited to a psychological origin. Its pathogenesis remains unclear but it definitively associates individual and environmental factors. Recent data show anatomo-functional evidence of neural networks of the brain that is involved in pain and its psychological representation as well as the representation of pain in the body. We describe a holistic approach to manage functional disorders that include the family and promote adolescent centered care in order to reach a rapid and optimal rehabilitation...
April 18, 2018: Revue Médicale Suisse
https://www.readbyqxmd.com/read/29603347/the-experiences-and-preparedness-of-family-carers-for-best-interest-decision-making-of-a-relative-living-with-advanced-dementia-a-qualitative-study
#2
Gillian Carter, Dorry Mclaughlin, W George Kernohan, Peter Hudson, Mike Clarke, Katherine Froggatt, Peter Passmore, Kevin Brazil
AIM: To explore the experience and the preparedness of family carers in their caregiving role as best interest decision-makers of a relative living with advanced dementia. BACKGROUND: The prevalence of dementia is a global issue. The role of being a carer of a relative living with dementia does not necessarily lessen once they are admitted to a nursing home. Best interest decision-making including end-of-life care decisions need to be made and reaching these choices can be challenging...
March 30, 2018: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/29533878/work-and-family-transitions-and-the-self-rated-health-of-young-women-in-south-africa
#3
Rachel Bennett, Philippa Waterhouse
Understanding the transition to adulthood has important implications for supporting young adults and understanding the roots of diversity in wellbeing later in life. In South Africa, the end of Apartheid means today's youth are experiencing their transition to adulthood in a changed social and political context which offers opportunities compared to the past but also threats. This paper presents the first national level analysis of the patterning of key transitions (completion of education, entry into the labour force, motherhood and marriage or cohabitation), and the association between the different pathways and health amongst young women...
March 2, 2018: Social Science & Medicine
https://www.readbyqxmd.com/read/29520702/the-just-war-tradition-a-model-for-healthcare-ethics
#4
Chaplain John D Connolly
Healthcare ethics committees, physicians, surgeons, nurses, families, and patients themselves are constantly under pressure to make appropriate medically ethical decisions concerning patient care. Various models for healthcare ethics decisions have been proposed throughout the years, but by and large they are focused on making the initial ethical decision. What follows is a proposed model for healthcare ethics that considers the most appropriate decisions before, during, and after any intervention. The Just War Tradition is a model that is thorough in its exploration of the ethics guiding a nation to either engage in or refuse to engage in combatant actions...
March 8, 2018: HEC Forum: An Interdisciplinary Journal on Hospitals' Ethical and Legal Issues
https://www.readbyqxmd.com/read/29514480/the-use-of-simulation-to-teach-nursing-students-and-clinicians-palliative-care-and-end-of-life-communication-a-systematic-review
#5
Madison B Smith, Tamara G R Macieira, Michael D Bumbach, Susan J Garbutt, Sandra W Citty, Anita Stephen, Margaret Ansell, Toni L Glover, Gail Keenan
OBJECTIVES: To present the findings of a systematic review on the use of simulation-based learning experiences (SBLEs) to teach communication skills to nursing students and clinicians who provide palliative and end-of-life care to patients and their families. BACKGROUND: Palliative care communication skills are fundamental to providing holistic patient care. Since nurses have the greatest amount of direct exposure to patients, building such communication competencies is essential...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29508478/being-we-and-being-me-exploring-the-needs-of-austrian-families-with-caring-children
#6
Martin Nagl-Cupal, Julia Hauprich
Children and adolescents with caring responsibilities are an uncontested reality in our society. Most are hidden from public view, and they perform a broad range of caring activities for chronically ill or disabled family members. The research literature has accumulated a comprehensive body of knowledge about young carers' personal needs. However, knowledge and understanding are limited regarding the needs of young carers' families. This knowledge can contribute to preventing children and adolescents from assuming inappropriate caring roles...
March 5, 2018: Health & Social Care in the Community
https://www.readbyqxmd.com/read/29497345/overcoming-barriers-to-interprofessional-education-in-gerontology-the-interprofessional-curriculum-for-the-care-of-older-adults
#7
Tara J Schapmire, Barbara A Head, Whitney A Nash, Pamela A Yankeelov, Christian D Furman, R Brent Wright, Rangaraj Gopalraj, Barbara Gordon, Karen P Black, Carol Jones, Madri Hall-Faul, Anna C Faul
A fragmented workforce consisting of multiple disciplines with varying levels of training and limited ability to work as a team often provides care to older adults. Interprofessional education (IPE) is essential for preparing practitioners for the effective teamwork required for community-based, holistic, person-centered care of the older adults. Despite numerous programs and offerings to advance education and interdisciplinary patient care, there is an unmet need for geriatric IPE, especially as it relates to community-dwelling older adults and caregivers in medically underserved areas...
2018: Advances in Medical Education and Practice
https://www.readbyqxmd.com/read/29493272/community-palliative-care-clinical-nurse-specialists-as-independent-prescribers-part-2
#8
Kathy Latham, Brian Nyatanga
This study explored the lived experiences of clinical nurse specialists who can prescribe independently in their role of providing support to patients with palliative care needs within the community. Part 1 of this study examined how the study was carried out; this second part explores the findings. The nurses reported that being able to prescribe enabled them to provide seamless, holistic care, which gave patients faster access to medicines, especially at weekends when their GP was unavailable. Prompt availability of medicines led to effective symptom control and consequently a better quality of life for patients...
March 2, 2018: British Journal of Community Nursing
https://www.readbyqxmd.com/read/29475896/music-therapy-in-uk-palliative-and-end-of-life-care-a-service-evaluation
#9
Lisa Graham-Wisener, Grace Watts, Jenny Kirkwood, Craig Harrison, Joan McEwan, Sam Porter, Joanne Reid, Tracey Helena McConnell
Music therapy aligns to the holistic approach to palliative and end-of-life care (PEOLC), with an emergent evidence base reporting positive effect on a range of health-related outcomes for both patient and family carer alongside high client demand. However, the current service provision and the role of music therapists in supporting individuals receiving PEOLC in the UK is currently unknown. OBJECTIVES: This service evaluation aims to identify the provision, role and perceived impact of UK music therapists in supporting patients receiving PEOLC, their families and health and social care professionals...
February 22, 2018: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/29468724/a-roadmap-to-advance-dementia-research-in-prevention-diagnosis-intervention-and-care-by-2025
#10
James Pickett, Cathy Bird, Clive Ballard, Sube Banerjee, Carol Brayne, Katherine Cowan, Linda Clare, Adelina Comas-Herrera, Lynne Corner, Stephanie Daley, Martin Knapp, Louise Lafortune, Gill Livingston, Jill Manthorpe, Natalie Marchant, Jo Moriarty, Louise Robinson, Clare van Lynden, Gill Windle, Bob Woods, Katherine Gray, Clare Walton
OBJECTIVE: National and global dementia plans have focused on the research ambition to develop a cure or disease-modifying therapy by 2025, with the initial focus on investment in drug discovery approaches. We set out to develop complementary research ambitions in the areas of prevention, diagnosis, intervention, and care and strategies for achieving them. METHODS: Alzheimer's Society facilitated a taskforce of leading UK clinicians and researchers in dementia, UK funders of dementia research, people with dementia, and carer representatives to develop, using iterative consensus methodology, goals and recommendations to advance dementia research...
February 22, 2018: International Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/29461871/continuous-comprehensive-and-crucial-care-the-role-of-the-cns-in-the-metastatic-castration-resistant-prostate-cancer-patient-pathway
#11
Vanessa Basketter, Miranda Benney, Louise Causer, Louisa Fleure, David Hames, Sarah Jones, Kamlesh Patel, Lisa White
Several treatment options are now available to men with metastatic castration-resistant prostate cancer (mCRPC). While survival rates for mCRPC continue to improve, patients are faced with increasingly complex treatment pathways and decisions. The clinical nurse specialist (CNS) plays a crucial role in navigating patients with mCRPC through their treatment pathway and fulfils a number of key responsibilities, including providing holistic care and support to patients and their families, educating and communicating with them in a timely and effective manner, and liaising with other healthcare professionals to seamlessly coordinate patient treatment...
February 1, 2018: British Journal of Nursing: BJN
https://www.readbyqxmd.com/read/29451830/quality-of-life-and-african-american-women-who-are-family-caregivers-a-literature-review-with-implications-for-psychiatric-mental-health-advanced-practice-registered-nurses
#12
Shaquita A Starks, Freida Outlaw, J Carolyn Graff, Wendy Likes, Shelley White-Means, Laura Melaro, Mona N Wicks
PURPOSE: To identify factors affecting the quality of life (QOL) of African American women (AAW) family caregivers of individuals with kidney failure. METHODS: Ferrans' Conceptual Model of QOL provided the framework for this literature review. Included studies were (a) peer- reviewed, (b) published within the last ten years, (c) written in English, and (d) examined QOL of AAW family caregivers. Using CINAHL© and PubMed©, we found 14 studies that described factors associated with these caregivers' QOL...
February 16, 2018: Issues in Mental Health Nursing
https://www.readbyqxmd.com/read/29437183/ask-the-right-questions-what-do-non-caregiving-adult-children-need-from-health-care-providers
#13
Munira Wells, Connie Kartoz
Extended healthy life spans are a relatively recent phenomenon that increase the amount of time families spend with older adults in non-caregiving roles. As the emphasis of health care moves to population health and health prevention, nurses caring for older adults must be knowledgeable about this family life stage. To learn more about the lived experience of non-caregiving adult children, 16 non-caregiving adult children were interviewed. The purpose of the current article is to share what needs non-caregiving adult children have from the health care system as they obtain care for themselves and accompany their parent for health care visits...
February 13, 2018: Journal of Gerontological Nursing
https://www.readbyqxmd.com/read/29419364/perspectives-and-insights-from-vietnamese-american-mental-health-professionals-on-how-to-culturally-tailor-a-vietnamese-dementia-caregiving-program
#14
Van Ta Park, Khue Nguyen, Yvonne Tran, Gwen Yeo, Quyen Tiet, Joyce Suen, Dolores Gallagher-Thompson
OBJECTIVE: Little is known about dementia and caregiving among the rapidly growing Vietnamese American population. This qualitative study elicited insights on culturally tailoring an intervention to address mental health needs in Vietnamese American dementia caregivers from Vietnamese American mental health professionals. METHODS: Eight Vietnamese American mental health professionals were interviewed to explore: experiences working with and needs of the community; Vietnamese attitudes toward treatment; and acculturation in Vietnamese caregiving...
January 30, 2018: Clinical Gerontologist
https://www.readbyqxmd.com/read/29389224/perspectives-on-palliative-care-in-cancer-clinical-trials-diverse-meanings-from-multidisciplinary-cancer-care-providers
#15
Michelle A Mollica, Erin E Kent, Kathleen M Castro, Erin M Ellis, Rebecca A Ferrer, Angela L Falisi, Anna Gaysynsky, Grace C Huang, Martha A Palan, Wen-Ying Sylvia Chou
BACKGROUND: Palliative care (PC) is often misunderstood as exclusively pertaining to end-of-life care, which may be consequential for its delivery. There is little research on how PC is operationalized and delivered to cancer patients enrolled in clinical trials. OBJECTIVE: We sought to understand the diverse perspectives of multidisciplinary oncology care providers caring for such patients in a teaching hospital. METHODS: We conducted qualitative semistructured interviews with 19 key informants, including clinical trial principal investigators, oncology fellows, research nurses, inpatient and outpatient nurses, spiritual care providers, and PC fellows...
February 1, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29379828/providing-palliative-care-education-showcasing-efforts-of-asian-nurses
#16
REVIEW
Pam Malloy, Sayaka Takenouchi, Hyun Sook Kim, Yuhan Lu, Betty Ferrell
Most of the world's population lives in Asia. Prevention and detection of cancer, as well as ensuring equitable access to cancer care for all Asians remains a major public health issue and requires governmental involvement and dedicated resources. Palliative care, a medical and nursing specialty, promotes holistic attention to suffering and provides compassionate and interdisciplinary care to the most vulnerable in all societies-those with serious illness. It is nurses who provide the majority of care for patients with cancer, as no other healthcare professional spends more time at the bedside or out in the community assessing and managing these patients and their families...
January 2018: Asia-Pacific Journal of Oncology Nursing
https://www.readbyqxmd.com/read/29378566/bridging-gaps-in-everyday-life-a-free-listing-approach-to-explore-the-variety-of-activities-performed-by-physiotherapists-in-specialized-palliative-care
#17
U Olsson Möller, K Stigmar, I Beck, M Malmström, B H Rasmussen
BACKGROUND: A growing body of studies indicate benefits of physiotherapy for patients in palliative care, for symptom relief and wellbeing. Though physiotherapists are increasingly acknowledged as important members of palliative care teams, they are still an underutilized source and not fully recognized. The aim of this study was to explore the variety of activities described by physiotherapists in addressing the needs and problems of patients and their families in specialized palliative care settings...
January 29, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29370547/depressive-symptoms-and-influencing-factors-in-low-risk-mothers
#18
Susan Liipfert Shelton, Eileen Cormier
INTRODUCTION: Depressive symptoms burden not only postpartum women, but can also compromise partner relationships and mother-infant interactions. With approximately 15% of women affected by perinatal mood and anxiety disorders (PMADs) each year, maternity care providers must be sensitive to personal characteristics and complaints that influence women's potential to develop postpartum depression (PPD). The purpose of the study was to identify personal characteristics and modifiable factors associated with depressive symptoms in low-risk postpartum women...
January 25, 2018: Issues in Mental Health Nursing
https://www.readbyqxmd.com/read/29357986/a-metasynthesis-uncovering-what-is-known-about-the-experiences-of-families-with-children-who-have-life-limiting-and-life-threatening-illnesses
#19
REVIEW
Jill M G Bally, Nicole R Smith, Lorraine Holtslander, Vicky Duncan, Heather Hodgson-Viden, Christopher Mpofu, Marcelline Zimmer
PURPOSE: To conduct a metasynthesis of qualitative research exploring parents' psychosocial experiences during complex and traumatic life transitions related to caring for a child with a life-limiting (LLI) or life-threatening illness (LTI). BACKGROUND: Parents' experiences of caring for a child impacted by an LLI or LTI are not clearly understood, and holistic, comprehensive pediatric nursing care for parents who have children with LLI and LTIs continues to be developed as treatment improves and survival is extended...
January 2018: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/29343195/caring-for-a-family-member-or-friend-with-dementia-at-the-end-of-life-a-scoping-review-and-implications-for-palliative-care-practice
#20
Timothy R Broady, Freya Saich, Tom Hinton
BACKGROUND: Although people with dementia receive substantial care from informal sources, there is limited research available that investigates how these carers experience end-of-life care. AIM: This review aimed to identify what is currently known about carers' experiences of providing end-of-life care to a family member or friend with dementia and draw implications for palliative care policy and service provision. DESIGN: A scoping literature review was conducted, first using a targeted key word search, followed by assessments of eligibility based on title and then abstract content...
January 1, 2018: Palliative Medicine
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