Puck J Peltenburg, Lieke M van den Heuvel, Dania Kallas, Cheyanne Bell, Isabelle Denjoy, Elijah R Behr, Ella Field, Janneke A E Kammeraad, Sing-Chien Yap, Vincent Probst, Michael J Ackerman, Nico A Blom, Arthur A M Wilde, Sally-Ann B Clur, Christian van der Werf
AIMS: In patients with catecholaminergic polymorphic ventricular tachycardia (CPVT), a rare inherited arrhythmia syndrome, arrhythmic events can be prevented by medication and lifestyle recommendations. In patients who experience breakthrough arrhythmic events, non-adherence plays an essential role. We aimed to investigate the incidence and potential reasons for non-adherence to medication and lifestyle recommendations in a large, international cohort of patients with CPVT. METHODS AND RESULTS: An online multilingual survey was shared with CPVT patients worldwide by their cardiologists, through peer-recruitment, and on social media from November 2022 until July 2023...
February 1, 2024: Europace: European Pacing, Arrhythmias, and Cardiac Electrophysiology