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https://www.readbyqxmd.com/read/29131714/understanding-variations-in-secondary-findings-reporting-practices-across-u-s-genome-sequencing-laboratories
#1
Sara Ackerman, Barbara Koenig
BACKGROUND: Increasingly used for clinical purposes, genome and exome sequencing can generate clinically relevant information that is not directly related to the reason for testing (incidental or secondary findings). Debates about the ethical implications of secondary findings were sparked by the American College of Medical Genetics (ACMG)'s 2013 policy statement, which recommended that laboratories report pathogenic alterations in 56 genes. Although wide variation in laboratories' secondary findings policies has been reported, little is known about its causes...
November 13, 2017: AJOB Empirical Bioethics
https://www.readbyqxmd.com/read/29117649/use-of-alternative-and-complementary-medicine-in-patients-with-malignant-diseases-in-high-volume-cancer-center-and-future-aspects
#2
Davor Kust, Ivan Šamija, Jasmina Marić-Brozić, Branka Svetec, Marija Miletić, Gordana Mamić, Ante Bolanča, Zvonko Kusić, Ana Fröbe
Usage of complementary and alternative medicine (CAM) is steadily increasing over the last decades, gaining medical, economic and sociological importance. The aim of the present study was to assess the use of complementary and alternative therapies in cancer patients. A cross-sectional, descriptive survey design was used to collect data through an anonymous questionnaire. A total of 267 patients were included in the study. The prevalence of CAM use among cancer patients in this study was 60.3%. It was found that 61 heterogeneous CAM therapies were used, the most popular among patients being naturopathy/folk medicine...
December 2016: Acta Clinica Croatica
https://www.readbyqxmd.com/read/29107529/learning-the-patient-s-story
#3
REVIEW
Sandra L Ragan, Elisa Kanter
OBJECTIVES: To provide a brief history on narrative medicine and highlight its importance in providing quality patient care. DATA SOURCES: Explains narrative medicine using published, peer-reviewed literature and highlights some of the literary, medical, sociological, and communication perspectives that contributed to the narrative medicine movement. CONCLUSION: A commitment to the patient-provider relationship and knowing the patient's story is a critical aspect in providing quality cancer care...
October 26, 2017: Seminars in Oncology Nursing
https://www.readbyqxmd.com/read/29071731/telemedicine-and-the-senses-a-review
#4
Deborah Lupton, Sarah Maslen
Telemedicine technologies have been presented as solutions to the challenges of equitable, cost-effective and efficient health service provision for over two decades. The ways in which the sensory dimensions of medical care and the doctor-patient relationship are mediated via telemedicine can be important contributors to the success, failure or unintended consequences of telemedicine. In this article, we present a review of the relevant literature in social research that provides insights into the sensory dimensions of telemedicine...
October 25, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29060608/cognitive-control-related-network-analysis-a-novel-way-to-measure-neuron-fiber-connection-of-alzheimer-s-disease
#5
Changle Zhang, Tao Chai, Na Gao, Heather T Ma
Effective measurement of cognitive impairment caused by Alzheimer's disease (AD) will provide a chance for early medical intervention and delay the disease onset. Diffusion tensor imaging (DTI) provides a non-intrusive examination of cranial nerve diseases which can help us observe the microstructure of neuron fibers. Cognitive control network (CCN) consists of the brain regions that highly related to human self-control. In this study, hub-and-spoke model which was widely used in transportation and sociology area had been employed to analyze the relationship of CCN and other regions under its control, cognitive control related network (CCRN) was built by applying this model...
July 2017: Conference Proceedings: Annual International Conference of the IEEE Engineering in Medicine and Biology Society
https://www.readbyqxmd.com/read/29059804/the-role-of-a-creative-joint-assignment-project-in-biomedical-engineering-bachelor-degree-education
#6
Jiehui Jiang, Yuting Zhang, Mi Zhou, Xiaosong Zheng, Zhuangzhi Yan
Biomedical Engineering (BME) bachelor education aims to train qualified engineers who devote themselves to addressing biological and medical problems by integrating the technological, medical and biological knowledge. Design thinking and teamwork with other disciplines are necessary for biomedical engineers. In the current biomedical engineering education system of Shanghai University (SHU), however, such design thinking and teamwork through a practical project is lacking. This paper describes a creative "joint assignment" project in Shanghai University, China, which has provided BME bachelor students a two-year practical experience to work with students from multidisciplinary departments including sociology, mechanics, computer sciences, business and art, etc...
July 2017: Conference Proceedings: Annual International Conference of the IEEE Engineering in Medicine and Biology Society
https://www.readbyqxmd.com/read/28984633/homeopathy-as-boundary-object-and-distributed-therapeutic-agency-a-discussion-on-the-homeopathic-placebo-response
#7
Cosima Rughiniş, Alexandra Ciocănel, Sorina Vasile
BACKGROUND: We discuss homeopathy's placebo effect as the result of a distributed therapeutic agency involving humans, objects, and texts. Homeopathy has been involved in controversies for centuries, and the dispute whether it is therapy or quackery is as lively as ever. Still, homeopathy has retained significant popularity and acceptance within the medical establishment. AREAS OF UNCERTAINTY: We bracket the issue of biochemical effectiveness of homeopathic remedies as we only discuss homeopathy's potential to elicit a placebo response within its therapeutic alliance, in virtue of its social, symbolic, and material features...
September 27, 2017: American Journal of Therapeutics
https://www.readbyqxmd.com/read/28980337/from-loss-to-repair-a-study-of-body-narratives-in-patient-claims-for-medical-injury
#8
Myriam Winance, Janine Barbot, Isabelle Parizot
In this article we examine the body's status in the complaints that patients filed with a compensation agency. Taking a corpus of letters, we analyse the way in which the patients mobilise their bodily experience from the angle of the damage for which they demand compensation. To this end, we articulate an approach in terms of the sociology of complaint with an approach rooted in the sociology of medicine, health and illness. To analyse the body narratives, we use the notion of loss. We highlight the manner in which patients approach their losses as 'losses in practice'...
October 4, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/28936931/patient-perspectives-on-transitions-of-surgical-care-examining-the-complexities-and-interdependencies-of-care
#9
Maynor G González, Kristin N Kelly, Ann M Dozier, Fergal Fleming, John R T Monson, Adan Z Becerra, Christopher T Aquina, Christian P Probst, Bradley J Hensley, Nick Sevdalis, Katia Noyes
This study examined a thematic network aimed at identifying experiences that influence patients' outcomes (e.g., patients' satisfaction, anxiety, and discharge readiness) in an effort to improve care transitions and reduce patient burden. We drew upon the Sociology and Complexity Science Toolkit to analyze themes derived from 61 semistructured, longitudinal interviews with 20 patients undergoing either a benign or malignant colorectal resection (three interviews per patient over a 30-day after hospital discharge)...
October 2017: Qualitative Health Research
https://www.readbyqxmd.com/read/28905883/acceptable-applications-of-preimplantation-genetic-diagnosis-pgd-among-israeli-pgd-users
#10
Shachar Zuckerman, David A Zeevi, Sigal Gooldin, Gheona Altarescu
The use of PGD technology to select against genetic disorders and traits is increasing. Although PGD may eliminate some of the obstacles related to conservative options of prenatal diagnosis, it can raise personal, social and moral questions. Ethical issues concerning the justified uses of PGD are a subject of ongoing debate among medical and bioethical communities. Although attitudes toward the acceptable uses of PGD were evaluated among population groups worldwide, bioethics councils were criticized for ignoring public perspectives...
October 2017: European Journal of Human Genetics: EJHG
https://www.readbyqxmd.com/read/28860865/advanced-maternal-age-ethical-and-medical-considerations-for-assisted-reproductive-technology
#11
REVIEW
Brittany J Harrison, Tara N Hilton, Raphaël N Rivière, Zachary M Ferraro, Raywat Deonandan, Mark C Walker
OBJECTIVES: This review explores the ethical and medical challenges faced by women of advanced maternal age who decide to have children. Assisted reproductive technologies (ARTs) make post-menopausal pregnancy physiologically plausible, however, one must consider the associated physical, psychological, and sociological factors involved. METHODS: A quasi-systematic review was conducted in PubMed and Ovid using the key terms post-menopause, pregnancy + MeSH terms [donations, hormone replacement therapy, assisted reproductive technologies, embryo donation, donor artificial insemination, cryopreservation]...
2017: International Journal of Women's Health
https://www.readbyqxmd.com/read/28859561/psychosurgery-ethics-and-media-a-history-of-walter-freeman-and-the-lobotomy
#12
James P Caruso, Jason P Sheehan
At the peak of his career, Walter J. Freeman II was a celebrated physician and scientist. He served as the first chairman of the Department of Neurology at George Washington University and was a tireless advocate of surgical treatment for mental illness. His eccentric appearance, engaging personality during interviews, and theatrical demonstrations of his surgical techniques gained him substantial popularity with local and national media, and he performed more than 3000 prefrontal and transorbital lobotomies between 1930 and 1960...
September 2017: Neurosurgical Focus
https://www.readbyqxmd.com/read/28852938/medicalising-short-children-with-growth-hormone-ethical-considerations-of-the-underlying-sociocultural-aspects
#13
Maria Cristina Murano
In 2003, the Food and Drug Administration approved the use of growth hormone treatment for idiopathic short stature children, i.e. children shorter than average due to an unknown medical cause. Given the absence of any pathological conditions, this decision has been contested as a case of medicalisation. The aim of this paper is to broaden the debate over the reasons for and against the treatment, to include considerations of the sociocultural phenomenon of the medicalisation of short stature, by means of a critical understanding of the concept of medicalisation...
August 29, 2017: Medicine, Health Care, and Philosophy
https://www.readbyqxmd.com/read/28805149/contestation-instrumental-resistance-and-strategic-conformation-within-the-diagnostic-process-of-gender-dysphoria-in-portugal
#14
Ana Patrícia Hilário
This article aims to provide insights into the ways in which trans people (i.e. those whose gender identity or expression do not align with their assigned sex at birth) in Portugal make sense of the diagnosis of gender dysphoria. Drawing upon in-depth interviews with 10 trans men and 9 trans women carried out by the TRANSRIGHTS team, we identified three major themes: (a) contestation of gender dysphoria as a (mental) illness, (b) instrumental resistance to complete demedicalisation of gender dysphoria and (c) strategic conformation to gender essentialism within the diagnostic process of gender dysphoria...
September 2017: Health (London)
https://www.readbyqxmd.com/read/28793981/attitudes-of-crohn-s-disease-patients-infodemiology-case-study-and-sentiment-analysis-of-facebook-and-twitter-posts
#15
Marco Roccetti, Gustavo Marfia, Paola Salomoni, Catia Prandi, Rocco Maurizio Zagari, Faustine Linda Gningaye Kengni, Franco Bazzoli, Marco Montagnani
BACKGROUND: Data concerning patients originates from a variety of sources on social media. OBJECTIVE: The aim of this study was to show how methodologies borrowed from different areas including computer science, econometrics, statistics, data mining, and sociology may be used to analyze Facebook data to investigate the patients' perspectives on a given medical prescription. METHODS: To shed light on patients' behavior and concerns, we focused on Crohn's disease, a chronic inflammatory bowel disease, and the specific therapy with the biological drug Infliximab...
August 9, 2017: JMIR Public Health and Surveillance
https://www.readbyqxmd.com/read/28770633/understanding-each-other-in-the-medical-encounter-exploring-therapists-and-patients-understanding-of-each-other-s-experiential-knowledge-through-the-imitation-game
#16
Rik Wehrens, Bethany Hipple Walters
The ability of health-care professionals to understand the lived experiences of their patients has become increasingly important but has been a difficult topic to investigate empirically because it involves two distinctive research strands: interpretative phenomenological analysis and patient-provider communication. While interpretative phenomenological analysis focuses on experiences and illness narratives of patients, but not on therapist's understanding of those, patient-provider communication surveys focus primarily on effective forms of communication without addressing the actual illness experiences of patients...
July 1, 2017: Health (London)
https://www.readbyqxmd.com/read/28759586/apology-in-cases-of-medical-error-disclosure-thoughts-based-on-a-preliminary-study
#17
Sonia Dahan, Dominique Ducard, Laurence Caeymaex
BACKGROUND: Disclosing medical errors is considered necessary by patients, ethicists, and health care professionals. Literature insists on the framing of this disclosure and describes the apology as appropriate and necessary. However, this policy seems difficult to put into practice. Few works have explored the function and meaning of the apology. OBJECTIVE: The aim of this study was to explore the role ascribed to apology in communication between healthcare professionals and patients when disclosing a medical error, and to discuss these findings using a linguistic and philosophical perspective...
2017: PloS One
https://www.readbyqxmd.com/read/28742196/sociological-histories-on-epilepsy-as-causes-for-disqualification-stipulated-in-the-japanese-road-traffic-act-of-1960-and-revised-road-traffic-act-of-2001
#18
G Imataka, S Yoshihara
In the wake of successive cases of fatal accidents caused by patients behind the wheel whose driving was likely to be hindered due to paroxysmal diseases, including epilepsy, there has been an outcry from victims demanding stricter criminal penalties against the perpetrators due to negligence. As a result of this action, a revised Road Traffic Act was put into effect in Japan on June 14, 2013. This act established new penal provisions against any person who provides false statements on his/her medical condition(s) when acquiring or renewing a driver's license...
July 2017: European Review for Medical and Pharmacological Sciences
https://www.readbyqxmd.com/read/28726015/community-perceptions-of-hospitals-and-shared-physical-space-a-qualitative-study
#19
Daniel Skinner, Berkeley Franz, Kelly Kelleher, Robert Penfold
In addition to providing critical medical services to communities, hospitals are also forces of broader change when seen from the perspective of neighborhood development. Over the past few decades the obligation on the part of U.S. nonprofit hospitals to positively impact the communities in which they are located has become entrenched in both U.S. tax law and the practices of many hospitals. This article presents findings from a grounded theory qualitative study of the relationship between a non-profit children's hospital in Columbus, Ohio, and the neighborhood in which it is located...
July 19, 2017: Culture, Medicine and Psychiatry
https://www.readbyqxmd.com/read/28705562/la-%C3%A2-double-transition%C3%A2-des-jeunes-atteints-de-cancer
#20
Thibaud Pombet
THE "DOUBLE TRANSITION" OF YOUNG PEOPLE AFFECTED BY CANCER.: Transition can refer to the transfer of a patient from a paediatric institution to an adult department, but it can also refer to the constitutive process of moving into adulthood. Based on a sociological field survey carried out on devices dedicated to adolescents and young adults affected by cancer in France, the impact of this ambivalence on care practices can be assessed. The current paradoxes the medical and care relationship is exposed to are thus identified...
July 2017: Soins. Pédiatrie, Puériculture
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