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https://www.readbyqxmd.com/read/29785204/using-digital-health-to-enable-ethical-health-research-in-conflict-and-other-humanitarian-settings
#1
REVIEW
Eric D Perakslis
Conducting research in a humanitarian setting requires quantifiable quality measures to ensure ethical study conduct. Digital health technologies are proven to improve research study quality and efficacy via automated data collection, improvement of data reliability, fidelity and resilience and by improved data provenance and traceability. Additionally, digital health methodologies can improve patient identity, patient privacy, study transparency, data sharing, competent informed consent, and the confidentiality and security of humanitarian operations...
2018: Conflict and Health
https://www.readbyqxmd.com/read/29782372/keeping-up-with-today-s-top-health-law-issues-to-avoid-a-nasty-surprise
#2
Joseph Baar Topinka
Just as in fictional television shows and movies, reality in the healthcare industry sometimes includes complications, disruptions, glitches, and nasty surprises. This article reviews several important legal topics, including emergency planning, privacy, fraud, public health, and ethics, to name only a few. Healthcare administrators are not expected to be attorneys or compliance officers, but they must appreciate (or at least be sensitive to) the legal and regulatory issues facing their organizations.
2018: Frontiers of Health Services Management
https://www.readbyqxmd.com/read/29780034/improving-predictive-asthma-algorithms-with-modelled-environment-data-for-scotland-an-observational-cohort-study-protocol
#3
Ireneous N Soyiri, Aziz Sheikh, Stefan Reis, Kimberly Kavanagh, Massimo Vieno, Tom Clemens, Edward J Carnell, Jiafeng Pan, Abby King, Rachel C Beck, Hester J T Ward, Chris Dibben, Chris Robertson, Colin R Simpson
INTRODUCTION: Asthma has a considerable, but potentially, avoidable burden on many populations globally. Scotland has some of the poorest health outcomes from asthma. Although ambient pollution, weather changes and sociodemographic factors have been associated with asthma attacks, it remains unclear whether modelled environment data and geospatial information can improve population-based asthma predictive algorithms. We aim to create the afferent loop of a national learning health system for asthma in Scotland...
May 20, 2018: BMJ Open
https://www.readbyqxmd.com/read/29773528/a-digital-app-to-aid-detection-monitoring-and-management-of-dyslexia-in-young-children-dimmand-protocol-for-a-digital-health-and-education-solution
#4
Mariam R Sood, Annet Toornstra, Martin I Sereno, Mark Boland, Daniele Filaretti, Anuj Sood
BACKGROUND: Dyslexia, a specific learning difficulty and a disability as defined in the Equality Act 2010, is a lifelong condition that affects a child from the start of education. Dyslexia is characterized by difficulties in language processing (reading, spelling, and writing) which do not correspond with the child's general intellectual abilities. Although dyslexia cannot be cured, there is a consensus that interventions are more effective and have greater impact the earlier they are administered...
May 17, 2018: JMIR Research Protocols
https://www.readbyqxmd.com/read/29763392/should-family-be-permitted-in-a-trauma-bay
#5
Matthew Traylor
This essay explores how some of the arguments advanced for and against family presence during cardiopulmonary resuscitation might apply to the question of whether family should be permitted in the trauma bay. While the first section suggests that many of the proposed benefits might apply to family presence during trauma resuscitations, the second section contends that family presence in the trauma bay could detract from the quality of patient care, violate patient privacy, and be psychologically damaging for the witnessing family...
May 1, 2018: AMA Journal of Ethics
https://www.readbyqxmd.com/read/29759958/data-access-and-usage-practices-across-a-cohort-of-researchers-at-a-large-tertiary-pediatric-hospital-qualitative-survey-study
#6
Hoi Ki Kiki Ho, Matthias Görges, Elodie Portales-Casamar
BACKGROUND: Health and health-related data collected as part of clinical care is a foundational component of quality improvement and research. While the importance of these data is widely recognized, there are many challenges faced by researchers attempting to use such data. It is crucial to acknowledge and identify barriers to improve data sharing and access practices and ultimately optimize research capacity. OBJECTIVE: To better understand the current state, explore opportunities, and identify barriers, an environmental scan of investigators at BC Children's Hospital Research Institute (BCCHR) was conducted to elucidate current local practices around data access and usage...
May 14, 2018: JMIR Medical Informatics
https://www.readbyqxmd.com/read/29734885/patients-perception-of-dignity-in-iranian-general-hospital-settings
#7
Fahimeh Alsadat Hosseini, Marzieh Momennasab, Shahrzad Yektatalab, Armin Zareiyan
BACKGROUND: Dignified care is one of the main objectives of holistic care. Furthermore, paying attention to dignity as one of the fundamental rights of patients is extremely important. However, in many cases, the dignity of hospitalized patients is not considered. Dignity is an abstract concept, and comprehensive studies of the dignity of Iranian patients hospitalized in general hospital settings are limited. OBJECTIVE: The aim of this study was to explore the concept of dignity from the perspective of patients hospitalized in general hospital settings in Iran...
January 1, 2018: Nursing Ethics
https://www.readbyqxmd.com/read/29733683/biobanking-in-a-challenging-african-environment-unique-experience-from-the-siren-project
#8
Rufus O Akinyemi, Kazeem Akinwande, Samuel Diala, Osi Adeleye, Abiodun Ajose, Kehinde Issa, Dorcas Owusu, Isaac Boamah, Isah Suleiman Yahaya, Abdulraheem Olayemi Jimoh, Lucius Imoh, Gregory Fakunle, Albert Akpalu, Fred Sarfo, Kolawole Wahab, Emmanuel Sanya, Lukman Owolabi, Reginald Obiako, Godwin Osaigbovo, Morenikeji Komolafe, Michael Fawale, Philip Adebayo, Paul Olowoyo, Yahaya Obiabo, Taofiki Sunmonu, Ijezie Chukwuonye, Olayemi Balogun, Basirat Adeoye, Florence Oladele, Peter Olowoniyi, Frederick Adeyemi, Arthur Lezzi, Ajibola Tunde Falayi, Michael Fasanya, Kolawole Ogunwale, Olabisi Adeola, Omolara Olomu, Olumayowa Aridegbe, Ruth Laryea, Ezinne Uvere, Moyinoluwalogo Faniyan, Ezinne Melikam, Raelle Tagge, Onoja Akpa, Joshua Akinyemi, Oyedunni Arulogun, Hemant K Tiwari, Bruce Ovbiagele, Mayowa Owolabi
Africa was previously insufficiently represented in the emerging discipline of biobanking despite commendable early efforts. However, with the Human, Heredity, and Health in Africa (H3Africa) initiative, biorepository science has been bolstered, regional biobanks are springing up, and awareness about biobanks is growing on the continent. The Stroke Investigative Research and Educational Network (SIREN) project is a transnational, multicenter, hospital and community-based study involving over 3000 cases and 3000 controls recruited from 16 sites in Ghana and Nigeria...
May 7, 2018: Biopreservation and Biobanking
https://www.readbyqxmd.com/read/29726448/using-meestar-to-identify-ethical-and-social-issues-implementing-a-digital-patient-centered-care-platform
#9
Johannes Wutzkowsky, Britta Böckmann
The PIQ research project ("Pflege im Quartier") aims for optimizing communication and patient-centered care for elderly people by implementing a digital, patient-centered care platform, with particular attention is paid to the consideration of ethical, legal and social issues. In this work, an instrument for the ethical evaluation of social-technical arrangement was used to map features of the platform with ethical concerns. The results include precise ethical questions based on scenarios identified and possible solutions to address them, regarding the ethical and privacy issues...
2018: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/29724696/invisible-women-in-reproductive-technologies-critical-reflections
#10
Piyali Mitra
The recent spectacular progress in assisted reproductive technologies (ARTs) has resulted in new ethical dilemmas. Though women occupy a central role in the reproductive process, within the ART paradigm, the importance accorded to the embryo commonly surpasses that given to the mother. This commentary questions the increasing tendency to position the embryonic subject in an antagonistic relation with the mother. I examine how the mother's reproductive autonomy is compromised in relation to that of her embryo and argue in favour of doing away with the subject-object dyad between them, particularly in the contexts of surrogacy and abortion...
April 2018: Indian Journal of Medical Ethics
https://www.readbyqxmd.com/read/29717645/medication-adherence-monitoring-implications-for-patients-and-providers
#11
Bobby Gheorghiu, Seema Nayani
Non-adherence to medication is a key worldwide issue and can lead to adverse patient outcomes and increased health system costs. Would a process facilitating notification of non-adherence infringe upon the autonomy of individuals or breach expectations of privacy? In contrast, patients who are not taking their medication could unknowingly be putting themselves at risk and all the while prescribers are unaware and without the opportunity to intervene. With the advent of electronic methods of medication adherence monitoring, this ethical dilemma now involves a new layer of complexity...
May 2018: Healthcare Management Forum
https://www.readbyqxmd.com/read/29717470/atm-card-cloning-and-ethical-considerations
#12
REVIEW
Paramjit Kaur, Kewal Krishan, Suresh K Sharma, Tanuj Kanchan
With the advent of modern technology, the way society handles and performs monetary transactions has changed tremendously. The world is moving swiftly towards the digital arena. The use of Automated Teller Machine (ATM) cards (credit and debit) has led to a "cash-less society" and has fostered digital payments and purchases. In addition to this, the trust and reliance of the society upon these small pieces of plastic, having numbers engraved upon them, has increased immensely over the last two decades...
May 1, 2018: Science and Engineering Ethics
https://www.readbyqxmd.com/read/29715061/guidelines-for-the-ethical-publication-of-facial-photographs-and-review-of-the-literature
#13
Katelyn G Bennett, Steven C Bonawitz, Christian J Vercler
Facial photography presents a unique ethical dilemma, as faces are difficult to deidentify for publication. We performed a review of the literature to examine current guidelines for the publication of facial photographs. We also reviewed societies' websites, journal requirements, and ethical and legal aspects of confidentiality. Most articles emphasized the importance of consent for photography and publication. Masking is not appropriate, but some journals continue to allow masking. Most legislation allows patients to restrict the uses of photographs...
January 1, 2018: Cleft Palate-craniofacial Journal
https://www.readbyqxmd.com/read/29712631/social-media-as-a-new-vital-sign-commentary
#14
Sean D Young
Mobile technologies, such as wireless glucometers and mobile health apps, are increasingly being integrated into health and medical care. Because patients openly share real-time information about their health behaviors and outcomes on social media, social media data may also be used as a tool for monitoring patient care. This commentary describes how recent advances in computer science, psychology, and medicine enable social media data to become a new health "vital sign," as well as actionable steps that public health officials, health systems, and clinics can take to integrate social data into both public and population health as well as into individual patient care...
April 30, 2018: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/29685865/ethical-issues-for-direct-to-consumer-digital-psychotherapy-apps-addressing-accountability-data-protection-and-consent
#15
Nicole Martinez-Martin, Karola Kreitmair
This paper focuses on the ethical challenges presented by direct-to-consumer (DTC) digital psychotherapy services that do not involve oversight by a professional mental health provider. DTC digital psychotherapy services can potentially assist in improving access to mental health care for the many people who would otherwise not have the resources or ability to connect with a therapist. However, the lack of adequate regulation in this area exacerbates concerns over how safety, privacy, accountability, and other ethical obligations to protect an individual in therapy are addressed within these services...
April 23, 2018: JMIR Mental Health
https://www.readbyqxmd.com/read/29681042/the-privacy-and-security-implications-of-open-data-in-healthcare
#16
Shinji Kobayashi, Thomas B Kane, Chris Paton
OBJECTIVE:  The International Medical Informatics Association (IMIA) Open Source Working Group (OSWG) initiated a group discussion to discuss current privacy and security issues in the open data movement in the healthcare domain from the perspective of the OSWG membership. METHODS:  Working group members independently reviewed the recent academic and grey literature and sampled a number of current large-scale open data projects to inform the working group discussion...
April 22, 2018: Yearbook of Medical Informatics
https://www.readbyqxmd.com/read/29681041/ethics-certification-of-health-information-professionals
#17
Eike-Henner Kluge, Paulette Lacroix, Pekka Ruotsalainen
OBJECTIVES:  To provide a model for ensuring the ethical acceptability of the provisions that characterize the interjurisdictional use of eHealth, telemedicine, and associated modalities of health care deliveiy that are currently in place. METHODS:  Following the approach initiated in their Global Protection of Health Data project within the Security in Health Information Systems (SiHIS) working group of the International Medical Informatics Association (IMIA), the authors analyze and evaluate relevant privacy and security approaches that are intended to stem the erosion of patients' trustworthiness in the handling of their sensitive information by health care and informatics professionals in the international context...
April 22, 2018: Yearbook of Medical Informatics
https://www.readbyqxmd.com/read/29681039/the-safe-and-effective-use-of-shared-data-underpinned-by-stakeholder-engagement-and-evaluation-practice
#18
Andrew Georgiou, Farah Magrabi, Hannele Hypponen, Zoie Shui-Yee Wong, Pirkko Nykänen, Philip J Scott, Elske Ammenwerth, Michael Rigby
OBJECTIVES:  The paper draws attention to: i) key considerations involving the confidentiality, privacy, and security of shared data; and ii) the requirements needed to build collaborative arrangements encompassing all stakeholders with the goal of ensuring safe, secure, and quality use of shared data. METHOD:  A narrative review of existing research and policy approaches along with expert perspectives drawn from the International Medical Informatics Association (IMIA) Working Group on Technology Assessment and Quality Development in Health Care and the European Federation for Medical Informatics (EFMI) Working Group for Assessment of Health Information Systems...
April 22, 2018: Yearbook of Medical Informatics
https://www.readbyqxmd.com/read/29674182/forensic-epigenetic-age-estimation-and-beyond-ethical-and-legal-considerations
#19
Mahsa Shabani, Pascal Borry, Inge Smeers, Bram Bekaert
Forensic geneticists are in a race to develop methods based on DNA methylation for various forensic applications, including age estimation. We argue that using epigenetic biomarkers could reveal a broad range of health and life-style related information, therefore it is necessary to develop adequate safeguards to protect the privacy of the individuals under scrutiny.
April 16, 2018: Trends in Genetics: TIG
https://www.readbyqxmd.com/read/29669639/ethical-implications-of-mandatory-reporting-of-intimate-partner-violence
#20
Kathy Grimley-Baker
Nurses are expected to provide a safe haven for clients. When clients seek the services of nurses, they are vulnerable, and they expect privacy and confi dentiality. Reporting acknowledged or suspected intimate partner violence (IPV) to authorities can impact nurse-client trust relationships. This article discusses the legal ramifi cations of reporting of IPV and their implications in a health care setting.
April 1, 2018: Creative Nursing
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