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https://www.readbyqxmd.com/read/29353257/ethical-dilemmas-of-recording-and-reviewing-neonatal-resuscitation
#1
REVIEW
Maria C den Boer, Mirjam Houtlosser, Henriëtte Anje van Zanten, Elizabeth E Foglia, Dirk P Engberts, Arjan B Te Pas
Neonatal resuscitation is provided to approximately 3% of neonates. Adequate ventilation is often the key to successful resuscitation, but this can be difficult to provide. There is increasing evidence that inappropriate respiratory support can have severe consequences. Several neonatal intensive care units have recorded and reviewed neonatal resuscitation procedures for quality assessment, education and research; however, ethical dilemmas sometimes make it difficult to implement this review process. We reviewed the literature on the development of recording and reviewing neonatal resuscitation and have summarised the ethical concerns involved...
January 20, 2018: Archives of Disease in Childhood. Fetal and Neonatal Edition
https://www.readbyqxmd.com/read/29346005/ethical-issues-in-social-media-research-for-public-health
#2
Ruth F Hunter, Aisling Gough, Niamh O'Kane, Gary McKeown, Aine Fitzpatrick, Tom Walker, Michelle McKinley, Mandy Lee, Frank Kee
Social media (SM) offer huge potential for public health research, serving as a vehicle for surveillance, delivery of health interventions, recruitment to trials, collection of data, and dissemination. However, the networked nature of the data means they are riddled with ethical challenges, and no clear consensus has emerged as to the ethical handling of such data. This article outlines the key ethical concerns for public health researchers using SM and discusses how these concerns might best be addressed. Key issues discussed include privacy; anonymity and confidentiality; authenticity; the rapidly changing SM environment; informed consent; recruitment, voluntary participation, and sampling; minimizing harm; and data security and management...
January 18, 2018: American Journal of Public Health
https://www.readbyqxmd.com/read/29336345/-the-role-of-social-media-in-academic-training-in-urology-adequate-use
#3
Juan Gómez Rivas, Leonardo Tortolero Blanco, Moises Rodríguez Socarras, Miguel García Sanz, Diego M Carrión, Zhamshid Okhunov, Domenico Veneziano
Social media is characterized because all its services are participative. Users of 2.0 technologies can interact easily and openly with other people, share resources and communicate immediately and simultaneously. Research improves from participatory technologies by allowing groups to share reflections, methodologies, resources and results.The social media platform with greater diffusion and use in urology is possibly Twitter because it allows to realize what is known like "microblogging", the users generate comments and brief messages through the creation of "tweets"...
January 2018: Archivos Españoles de Urología
https://www.readbyqxmd.com/read/29331259/public-and-physician-s-expectations-and-ethical-concerns-about-electronic-health-record-benefits-outweigh-risks-except-for-information-security
#4
Eleni Entzeridou, Evgenia Markopoulou, Vasiliki Mollaki
INTRODUCTION: Electronic Health Record systems (EHRs) offer numerous benefits in health care but also pose certain risks. As we progress toward the implementation of EHRs, a more in-depth understanding of attitudes that influence overall levels of EHR support is required. OBJECTIVES: To record public and physicians' awareness, expectations for, and ethical concerns about the use of EHRs. METHODS: A convenience sample was surveyed for both the public and physicians...
February 2018: International Journal of Medical Informatics
https://www.readbyqxmd.com/read/29326187/pilot-study-protocol-to-inform-a-future-longitudinal-study-of-ageing-using-linked-administrative-data-healthy-ageing-in-scotland-hagis
#5
Elaine Douglas, Alasdair Rutherford, David Bell
INTRODUCTION: Population ageing is a welcome testament to improvements in the social, economic and health circumstances over the life course. However, these successes necessitate that we understand more about the pathways of ageing to plan and cost our health and social care services, to support our ageing population to live healthier for longer and to make adequate provisions for retirement. Longitudinal studies of ageing facilitate such understanding in many countries around the world...
January 10, 2018: BMJ Open
https://www.readbyqxmd.com/read/29302880/a-framework-for-tracking-former-patients-in-the-electronic-health-record-using-an-educational-registry
#6
Gregory E Brisson, Cynthia Barnard, Patrick D Tyler, David M Liebovitz, Kathy Johnson Neely
One challenge of contemporary medical education is that shorter lengths of stay and time-limited clerkships often interrupt a student's relationship with a patient before a diagnosis is made or treatment is completed, limiting the learning experience. Medical students sometimes use electronic health records (EHRs) to overcome these limitations. EHRs provide access to patients' future medical records, enabling students to track former patients across care venues to audit their diagnostic impressions and observe outcomes...
January 4, 2018: Journal of General Internal Medicine
https://www.readbyqxmd.com/read/29300981/chromosome-screening-using-noninvasive-prenatal-testing-beyond-trisomy-21-what-to-screen-for-and-why-it-matters
#7
Kristien Hens
With the new and highly accurate noninvasive prenatal test (NIPT), new options for screening become available. I contend that the current state of the art of NIPT is already in need of a thorough ethical investigation and that there are different points to consider before any chromosomal or subchromosomal condition is added to the screening panel of a publicly funded screening program. Moreover, the application of certain ethical principles makes the inclusion of some conditions unethical in a privately funded scheme, even if such screening would enhance a woman's reproductive autonomy...
December 29, 2017: Journal of Medicine and Philosophy
https://www.readbyqxmd.com/read/29297898/-artificial-intelligence-in-medicine-limits-and-obstacles
#8
Eugenio Santoro
Data scientists and physicians are starting to use artificial intelligence (AI) even in the medical field in order to better understand the relationships among the huge amount of data coming from the great number of sources today available. Through the data interpretation methods made available by the recent AI tools, researchers and AI companies have focused on the development of models allowing to predict the risk of suffering from a specific disease, to make a diagnosis, and to recommend a treatment that is based on the best and most updated scientific evidence...
December 2017: Recenti Progressi in Medicina
https://www.readbyqxmd.com/read/29283984/stigmatization-of-mentally-ill-patients-through-media
#9
Dragan Babić, Romana Babić, Ivan Vasilj, Esmina Avdibegović
The stigmatization of mentally ill patients has negative labelling, marginalization and exclusion of people simply because they have a mental illness. Stigma has negative consequences for the individual and his family, as well as for psychiatry as a profession and the entire community. Stigma weakens the mentally ill, reinforcing a sense of alienation, which has negative consequences on the course of the illness. The media can inform the public about the treatment of mentally ill patients by conveying correct information, who can then act positively towards improving the quality of treatment...
December 2017: Psychiatria Danubina
https://www.readbyqxmd.com/read/29282045/balancing-the-local-and-the-universal-in-maintaining-ethical-access-to-a-genomics-biobank
#10
Catherine Heeney, Shona M Kerr
BACKGROUND: Issues of balancing data accessibility with ethical considerations and governance of a genomics research biobank, Generation Scotland, are explored within the evolving policy landscape of the past ten years. During this time data sharing and open data access have become increasingly important topics in biomedical research. Decisions around data access are influenced by local arrangements for governance and practices such as linkage to health records, and the global through policies for biobanking and the sharing of data with large-scale biomedical research data resources and consortia...
December 28, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29261408/big-data-in-public-health-terminology-machine-learning-and-privacy
#11
Stephen J Mooney, Vikas Pejaver
The digital world is generating data at a staggering and still increasing rate. While these "big data" have unlocked novel opportunities to understand public health, they hold still greater potential for research and practice. This review explores several key issues that have arisen around big data. First, we propose a taxonomy of sources of big data to clarify terminology and identify threads common across some subtypes of big data. Next, we consider common public health research and practice uses for big data, including surveillance, hypothesis-generating research, and causal inference, while exploring the role that machine learning may play in each use...
December 20, 2017: Annual Review of Public Health
https://www.readbyqxmd.com/read/29251604/social-media-and-physicians-the-indian-scenario
#12
Prateek Singh, Himani Tak
Consent and ethics are integral to a physician's work. Patient images have been used for multiple purposes in medical practice; as an adjunct to clinical care, displayed to colleagues, students and other audiences in educational settings, and published in medical journals. But nowadays there is an increasing trend towards sharing patient pictures and videos online, on social media platforms. Though usually shared privately with friends, these photographs and videos end up in the public domain, accessible to everyone...
November 23, 2017: Indian Journal of Medical Ethics
https://www.readbyqxmd.com/read/29247306/identifying-criteria-for-the-evaluation-of-the-implications-of-brain-reading-for-mental-privacy
#13
Giulio Mecacci, Pim Haselager
Contemporary brain reading technologies promise to provide the possibility to decode and interpret mental states and processes. Brain reading could have numerous societally relevant implications. In particular, the private character of mind might be affected, generating ethical and legal concerns. This paper aims at equipping ethicists and policy makers with conceptual tools to support an evaluation of the potential applicability and the implications of current and near future brain reading technology. We start with clarifying the concepts of mind reading and brain reading, and the different kinds of mental states that could in principle be read...
December 15, 2017: Science and Engineering Ethics
https://www.readbyqxmd.com/read/29241881/ispor-code-of-ethics-2017-4th-edition
#14
Jessica Santos, Francis Palumbo, Elizabeth Molsen-David, Richard J Willke, Louise Binder, Michael Drummond, Anita Ho, William D Marder, Louise Parmenter, Gurmit Sandhu, Asrul A Shafie, David Thompson
As the leading health economics and outcomes research (HEOR) professional society, ISPOR has a responsibility to establish a uniform, harmonized international code for ethical conduct. ISPOR has updated its 2008 Code of Ethics to reflect the current research environment. This code addresses what is acceptable and unacceptable in research, from inception to the dissemination of its results. There are nine chapters: 1 - Introduction; 2 - Ethical Principles respect, beneficence and justice with reference to a non-exhaustive compilation of international, regional, and country-specific guidelines and standards; 3 - Scope HEOR definitions and how HEOR and the Code relate to other research fields; 4 - Research Design Considerations primary and secondary data related issues, e...
December 2017: Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research
https://www.readbyqxmd.com/read/29216830/factors-associated-with-birth-preparedness-and-complication-readiness-in-southern-ethiopia-a-community-based-cross-sectional-study
#15
Eshetu Andarge, Aderajew Nigussie, Mekitie Wondafrash
BACKGROUND: Birth preparedness and complication readiness (BP/CR) is a strategy to promote use of skilled maternal and neonatal care so that they can get timely skilled care, particularly during child birth. There is minimal evidence on the factors associated with BP/CR among pregnant women in Ethiopia. Hence, this study aimed to assess the factors influencing BP/CR among pregnant women in Southern Ethiopia for the purpose of improving utilization of skilled attendant at birth. METHODS: A community based cross-sectional study was conducted among 707 pregnant women in Southern Ethiopia in March 2015...
December 8, 2017: BMC Pregnancy and Childbirth
https://www.readbyqxmd.com/read/29214966/communicating-identifiability-risks-to-biobank-donors
#16
T J Kasperbauer, Mickey Gjerris, Gunhild Waldemar, Peter Sandøe
Recent highly publicized privacy breaches in healthcare and genomics research have led many to question whether current standards of data protection are adequate. Improvements in de-identification techniques, combined with pervasive data sharing, have increased the likelihood that external parties can track individuals across multiple databases. This article focuses on the communication of identifiability risks in the process of obtaining consent for donation and research. Most ethical discussions of identifiability risks have focused on the severity of the risk and how it might be mitigated, and what precisely is at stake in pervasive data sharing...
January 2018: Cambridge Quarterly of Healthcare Ethics: CQ: the International Journal of Healthcare Ethics Committees
https://www.readbyqxmd.com/read/29214593/the-role-of-solidarity-ies-in-rare-diseases-research
#17
Deborah Mascalzoni, Carlo Petrini, Domenica Taruscio, Sabina Gainotti
Solidarity plays a relevant role in rare diseases (RDs) research to create and enable research in the field. In Europe RDs are estimated to affect between 27 and 36 million people even though single RDs can count very few patients, making the contribution of everyone essential to reach solid results. Often RD research is initiated by patient groups devoting substantial time and resources to the scientific enterprise. In RD research solidarity is often evocated and expressed, in different ways and on different levels, so that it is possible to talk about "solidarities" played by different stakeholders and sometimes conflicting with each other...
2017: Advances in Experimental Medicine and Biology
https://www.readbyqxmd.com/read/29214569/rare-disease-biospecimens-and-patient-registries-interoperability-for-research-promotion-a-european-example-eurobiobank-and-spainrdr-bioner
#18
Yaffa R Rubinstein, Manuel Posada de la Paz, Marina Mora
Well-annotated and properly preserved specimens are crucial both for diagnostic purposes and for use in basic and pre-clinical research, and are especially important for rare disease (RD) studies. Several consortia have been established in the recent years in order to facilitate research and to maximise access to rare biological samples and data stored in rare disease biobanks and registries, among them the EuroBioBank network and the Spain National Rare Disease Registry (RDR) and Biobank (BioNER).EuroBioBank, established in 2001, was the first network of RD biobanks to operate in Europe as a service distributing human DNA, cells, and tissue to the scientific community conducting research on rare diseases...
2017: Advances in Experimental Medicine and Biology
https://www.readbyqxmd.com/read/29172377/should-employers-be-permitted-not-to-hire-smokers-a-review-of-us-legal-provisions
#19
Rishi R Patel, Harald Schmidt
BACKGROUND: Increasingly, healthcare and non-healthcare employers prohibit or penalize the use of tobacco products among current and new employees in the United States. Despite this trend, and for a range of different reasons, around half of states currently legally protect employees from being denied positions, or having employment contracts terminated, due to tobacco use. METHODS: We undertook a conceptual analysis of legal provisions in all 50 states. RESULTS: We found ethically relevant variations in terms of how tobacco is defined, which employee populations are protected, and to what extent they are protected...
March 15, 2017: International Journal of Health Policy and Management
https://www.readbyqxmd.com/read/29168677/social-media-channels-in-health-care-research-and-rising-ethical-issues
#20
Samy A Azer
Social media channels such as Twitter, Facebook, and LinkedIn have been used as tools in health care research, opening new horizons for research on health-related topics (e.g., the use of mobile social networking in weight loss programs). While there have been efforts to develop ethical guidelines for internet-related research, researchers still face unresolved ethical challenges. This article investigates some of the risks inherent in social media research and discusses how researchers should handle challenges related to confidentiality, privacy, and consent when social media tools are used in health-related research...
November 1, 2017: AMA Journal of Ethics
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