Nicola M Stock, Bruna Costa, William Bannister, Charlotte Ashby, Nammie Matthews, Louise Hebden, Laura Melles, Zoe Hilton-Webb, Sally Smith, Kristian Kane, Lewis Carter, Anna Kearney, Katie Piggott, Charlotte Russell, Karen Wilkinson-Bell
OBJECTIVE: Despite growing recognition that congenital craniofacial conditions have lifelong implications, psychological support for adults is currently lacking. The aim of this project was to produce a series of short films about living with craniosynostosis in adulthood, alongside a psychoeducational booklet. DESIGN: The resources were developed using multiple focus groups and meetings attended by researchers, patient representatives, a leading charitable organisation, an award-winning film production company, clinicians, and other experts in the field...
March 18, 2024: Cleft Palate-craniofacial Journal