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amyotrophic lateral sclerosis rehabilitation

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https://www.readbyqxmd.com/read/29686818/effects-of-combined-endurance-and-resistance-training-in-amyotrophic-lateral-sclerosis-a-pilot-randomized-controlled-study
#1
Antonio Merico, Marianna Cavinato, Caterina Gregorio, Alessandra Lacatena, Elisabetta Gioia, Francesco Piccione, Corrado Angelini
Based on available evidence, muscle strengthening and cardiovascular exercises can help maintain function and not adversely affect the progression of disease in patients with ALS. However, this evidence is not sufficiently detailed to recommend a specific exercise prescription. The purpose of this project was to assess clinical outcomes of a combined exercise programme to increase knowledge of rehabilitation in ALS patients. 38 ALS patients were assigned randomly to two groups: one group underwent a specific exercise programme (ALS-EP) based on a moderate aerobic workout and isometric contractions, and the second group followed a standard neuromotor rehabilitation treatment...
January 12, 2018: European Journal of Translational Myology
https://www.readbyqxmd.com/read/29608902/effectiveness-of-home-based-exercises-without-supervision-by-physical-therapists-for-patients-with-early-stage-amyotrophic-lateral-sclerosis-a-pilot-study
#2
Kosuke Kitano, Takashi Asakawa, Naoto Kamide, Keisuke Yorimoto, Masaki Yoneda, Yutaka Kikuchi, Makoto Sawada, Tetsuo Komori
OBJECTIVE: This study aimed to verify the effects of structured home-based exercises without supervision by a physical therapist on patients with early-stage amyotrophic lateral sclerosis (ALS). DESIGN: This is a historical controlled study that is part of a multicenter collaborative study. SETTING: Rehabilitation departments at general hospitals and outpatient clinics with a neurology department in Japan. PARTICIPANTS: Twenty-one patients with ALS were enrolled and designated as the Home-EX group, and they performed unsupervised home-based exercises...
March 30, 2018: Archives of Physical Medicine and Rehabilitation
https://www.readbyqxmd.com/read/29373921/-understanding-my-als-experiences-and-reflections-of-persons-with-amyotrophic-lateral-sclerosis-and-relatives-on-participation-in-peer-group-rehabilitation
#3
Louise Sofia Madsen, Jørgen Jeppesen, Charlotte Handberg
PURPOSE: The aim of this study was to gain insight into experiences and reflections of persons with amyotrophic lateral sclerosis and relatives concerning the peer group rehabilitation programme "More Life - Less Illness". METHODS: This qualitative study used the Interpretive Description methodology with Symbolic Interactionism as the analytical framework. Eighteen programme participants representing persons with amyotrophic lateral sclerosis (n = 8) and relatives (n = 10) were included...
January 26, 2018: Disability and Rehabilitation
https://www.readbyqxmd.com/read/29204783/the-impact-of-rehabilitative-interventions-on-quality-of-life-a-qualitative-evidence-synthesis-of-personal-experiences-of-individuals-with-amyotrophic-lateral-sclerosis
#4
REVIEW
Ammarah Y Soofi, Vanina Dal Bello-Haas, Michelle E Kho, Lori Letts
BACKGROUND: The nature of amyotrophic lateral sclerosis (ALS) is progressive and degenerative, thus influencing individuals physically, emotionally, and socially. A broad review of qualitative studies that describe the personal experiences of people with ALS with physiotherapy, occupational therapy and speech and language pathology interventions, and how those affect QoL is warranted. PURPOSE: This study synthesizes qualitative research regarding the potential that rehabilitation interventions have to maintain and/or improve QoL from the perspective of people with ALS...
December 4, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29082797/adaptive-equipment-use-by-people-with-motor-neuron-disease-in-australia-a-prospective-observational-consecutive-cohort-study
#5
Karol A Connors, Lisa M Mahony, Prue Morgan
PURPOSE: People with motor neuron sisease require adaptive equipment to enhance life quality. This study aimed to examine total and concurrent equipment items prescribed with phenotype consideration. METHODS: A prospective, observational consecutive cohort study was undertaken. Data regarding Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised, phenotype, symptom onset and Functional Independence Measure (inpatients only) was recorded. Equipment utilized was coded by therapist as: speech devices; transfer devices; mobility devices (including power wheelchairs); orthoses; activities of daily living equipment; assisted technology and home modification equipment...
October 28, 2017: Disability and Rehabilitation. Assistive Technology
https://www.readbyqxmd.com/read/29036846/perceptions-of-sexuality-in-individuals-with-amyotrophic-lateral-sclerosis-als-and-their-treating-clinicians
#6
Mona Shahbazi, Shara Holzberg, Saeyoan Thirunavukkarasu, Gioia Ciani
INTRODUCTION: Amyotrophic Lateral Sclerosis (ALS) may not affect an individual's sexual function directly, but it can indirectly impact their sexual activity. Sexual partners often become caregivers, diminishing sexuality within a relationship. This can result in decline of quality of life. OBJECTIVE: The study aimed to explore the perspectives of individuals with ALS and their treating clinicians regarding the importance of sexuality in rehabilitation within a multidisciplinary ALS center...
2017: NeuroRehabilitation
https://www.readbyqxmd.com/read/28913349/brain-computer-interface-for-clinical-purposes-cognitive-assessment-and-rehabilitation
#7
REVIEW
Laura Carelli, Federica Solca, Andrea Faini, Paolo Meriggi, Davide Sangalli, Pietro Cipresso, Giuseppe Riva, Nicola Ticozzi, Andrea Ciammola, Vincenzo Silani, Barbara Poletti
Alongside the best-known applications of brain-computer interface (BCI) technology for restoring communication abilities and controlling external devices, we present the state of the art of BCI use for cognitive assessment and training purposes. We first describe some preliminary attempts to develop verbal-motor free BCI-based tests for evaluating specific or multiple cognitive domains in patients with Amyotrophic Lateral Sclerosis, disorders of consciousness, and other neurological diseases. Then we present the more heterogeneous and advanced field of BCI-based cognitive training, which has its roots in the context of neurofeedback therapy and addresses patients with neurological developmental disorders (autism spectrum disorder and attention-deficit/hyperactivity disorder), stroke patients, and elderly subjects...
2017: BioMed Research International
https://www.readbyqxmd.com/read/28527504/telehealth-in-physical-medicine-and-rehabilitation-a-narrative-review
#8
REVIEW
Adam S Tenforde, Jaye E Hefner, Jodi E Kodish-Wachs, Mary A Iaccarino, Sabrina Paganoni
Telehealth refers to health care interactions that leverage telecommunication devices to provide medical care outside the traditional face-to-face, in-person medical encounter. Technology advances and research have expanded use of telehealth in health care delivery. Physical medicine and rehabilitation providers may use telehealth to deliver care to populations with neurologic and musculoskeletal conditions, commonly treated in both acute care and outpatient settings. Patients with impaired mobility and those living in locations with reduced access to care may particularly benefit...
May 2017: PM & R: the Journal of Injury, Function, and Rehabilitation
https://www.readbyqxmd.com/read/28382811/early-initiation-of-night-time-niv-in-an-outpatient-setting-a-randomized-non-inferiority-study-in-als-patients
#9
Enrica Bertella, Paolo Banfi, Mara Paneroni, Silvia Grilli, Luca Bianchi, Eleonora Volpato, Michele Vitacca
BACKGROUND: In patients with amyotrophic lateral sclerosis (ALS), non-invasive ventilation (NIV) is usually initiated in an in-hospital regime. AIM: We investigated if NIV initiated in an outpatient setting can be as effective in terms of patients' acceptance/adherence. We also evaluated factors predicting NIV acceptance and adherence and disease progression. DESIGN: Prospective randomized study. SETTING: Outpatient versus inpatient rehabilitation...
December 2017: European Journal of Physical and Rehabilitation Medicine
https://www.readbyqxmd.com/read/28225381/information-seeking-behavior-and-information-needs-in-patients-with-amyotrophic-lateral-sclerosis-analyzing-an-online-patient-community
#10
Juyeon Oh, Jung A Kim
A few studies have examined the specific informational needs of the population with amyotrophic lateral sclerosis. The aims of this study were to describe the information-seeking behavior and information needs of patients with amyotrophic lateral sclerosis and their families in Korea by analyzing messages from an online patient community. A total of 1047 messages from the question and answer forum of the "Lou Gehrig's Disease Network" (http://cafe.daum.net/alsfree) from January 2010 to September 2015 were collected...
July 2017: Computers, Informatics, Nursing: CIN
https://www.readbyqxmd.com/read/28096400/defining-recovery-neurobiology-of-injured-spinal-cord-by-synthetic-matrix-assisted-hmsc-implantation
#11
Alexander E Ropper, Devang K Thakor, InBo Han, Dou Yu, Xiang Zeng, Jamie E Anderson, Zaid Aljuboori, Soo-Woo Kim, Hongjun Wang, Richard L Sidman, Ross D Zafonte, Yang D Teng
Mesenchymal stromal stem cells (MSCs) isolated from adult tissues offer tangible potential for regenerative medicine, given their feasibility for autologous transplantation. MSC research shows encouraging results in experimental stroke, amyotrophic lateral sclerosis, and neurotrauma models. However, further translational progress has been hampered by poor MSC graft survival, jeopardizing cellular and molecular bases for neural repair in vivo. We have devised an adult human bone marrow MSC (hMSC) delivery formula by investigating molecular events involving hMSCs incorporated in a uniquely designed poly(lactic-co-glycolic) acid scaffold, a clinically safe polymer, following inflammatory exposures in a dorsal root ganglion organotypic coculture system...
January 31, 2017: Proceedings of the National Academy of Sciences of the United States of America
https://www.readbyqxmd.com/read/27854227/do-psychosocial-interventions-improve-quality-of-life-and-wellbeing-in-adults-with-neuromuscular-disorders-a-systematic-review-and-narrative-synthesis
#12
REVIEW
Elaine Walklet, Kate Muse, Jane Meyrick, Tim Moss
Quality of life and well-being are frequently restricted in adults with neuromuscular disorders. As such, identification of appropriate interventions is imperative. The objective of this paper was to systematically review and critically appraise quantitative studies (RCTs, controlled trials and cohort studies) of psychosocial interventions designed to improve quality of life and well-being in adults with neuromuscular disorders. A systematic review of the published and unpublished literature was conducted. Studies meeting inclusion criteria were appraised using a validated quality assessment tool and results presented in a narrative synthesis...
August 30, 2016: Journal of Neuromuscular Diseases
https://www.readbyqxmd.com/read/27590975/interfacing-brain-with-computer-to-improve-communication-and-rehabilitation-after-brain-damage
#13
REVIEW
A Riccio, F Pichiorri, F Schettini, J Toppi, M Risetti, R Formisano, M Molinari, L Astolfi, F Cincotti, D Mattia
Communication and control of the external environment can be provided via brain-computer interfaces (BCIs) to replace a lost function in persons with severe diseases and little or no chance of recovery of motor abilities (ie, amyotrophic lateral sclerosis, brainstem stroke). BCIs allow to intentionally modulate brain activity, to train specific brain functions, and to control prosthetic devices, and thus, this technology can also improve the outcome of rehabilitation programs in persons who have suffered from a central nervous system injury (ie, stroke leading to motor or cognitive impairment)...
2016: Progress in Brain Research
https://www.readbyqxmd.com/read/27590968/brain-computer-interfaces-in-the-completely-locked-in-state-and-chronic-stroke
#14
REVIEW
U Chaudhary, N Birbaumer, A Ramos-Murguialday
Brain-computer interfaces (BCIs) use brain activity to control external devices, facilitating paralyzed patients to interact with the environment. In this chapter, we discuss the historical perspective of development of BCIs and the current advances of noninvasive BCIs for communication in patients with amyotrophic lateral sclerosis and for restoration of motor impairment after severe stroke. Distinct techniques have been explored to control a BCI in patient population especially electroencephalography (EEG) and more recently near-infrared spectroscopy (NIRS) because of their noninvasive nature and low cost...
2016: Progress in Brain Research
https://www.readbyqxmd.com/read/27579582/assessing-and-treating-pain-in-movement-disorders-amyotrophic-lateral-sclerosis-severe-acquired-brain-injury-disorders-of-consciousness-dementia-oncology-and-neuroinfectivology-evidence-and-recommendations-from-the-italian-consensus-conference-on-pain-in-neurorehabilitation
#15
Michelangelo Bartolo, Adriano Chiò, Sergio Ferrari, Cristina Tassorelli, Stefano Tamburin, Micol Avenali, Eva Azicnuda, Andrea Calvo, Augusto T Caraceni, Giovanni Defazio, Roberto DE Icco, Rita Formisano, Simone Franzoni, Elena Greco, Iwona Jedrychowska, Francesca Magrinelli, Umberto Manera, Enrico Marchioni, Sara Mariotto, Salvatore Monaco, Andrea Pace, Donatella Saviola, Isabella Springhetti, Michele Tinazzi, Antonio DE Tanti
Pain is an important non-motor symptom in several neurological diseases, such as Parkinson's disease, cervical dystonia, amyotrophic lateral sclerosis, severe acquired brain injury, disorders of consciousness and dementia, as well as in oncology and neuroinfectivology. To overcome the lack of evidence-based data on pain management in these diseases, the Italian Consensus Conference on Pain in Neurorehabilitation (ICCPN) has defined criteria for good clinical practice among Italian neurorehabilitation professionals...
December 2016: European Journal of Physical and Rehabilitation Medicine
https://www.readbyqxmd.com/read/27539560/brain-computer-interfaces-for-communication-and-rehabilitation
#16
REVIEW
Ujwal Chaudhary, Niels Birbaumer, Ander Ramos-Murguialday
Brain-computer interfaces (BCIs) use brain activity to control external devices, thereby enabling severely disabled patients to interact with the environment. A variety of invasive and noninvasive techniques for controlling BCIs have been explored, most notably EEG, and more recently, near-infrared spectroscopy. Assistive BCIs are designed to enable paralyzed patients to communicate or control external robotic devices, such as prosthetics; rehabilitative BCIs are designed to facilitate recovery of neural function...
September 2016: Nature Reviews. Neurology
https://www.readbyqxmd.com/read/27437724/active-music-therapy-approach-in-amyotrophic-lateral-sclerosis-a-randomized-controlled-trial
#17
RANDOMIZED CONTROLLED TRIAL
Alfredo Raglio, Elena Giovanazzi, Debora Pain, Paola Baiardi, Chiara Imbriani, Marcello Imbriani, Gabriele Mora
This randomized controlled study assessed the efficacy of active music therapy (AMT) on anxiety, depression, and quality of life in amyotrophic lateral sclerosis (ALS). Communication and relationship during AMT treatment were also evaluated. Thirty patients were assigned randomly to experimental [AMT plus standard of care (SC)] or control (SC) groups. AMT consisted of 12 sessions (three times a week), whereas the SC treatment was based on physical and speech rehabilitation sessions, occupational therapy, and psychological support...
December 2016: International Journal of Rehabilitation Research. Revue Internationale de Recherches de Réadaptation
https://www.readbyqxmd.com/read/27026167/respiratory-training-improved-ventilatory-function-and-respiratory-muscle-strength-in-patients-with-multiple-sclerosis-and-lateral-amyotrophic-sclerosis-systematic-review-and-meta-analysis
#18
REVIEW
Gustavo D Ferreira, Ana Cecília C Costa, Rodrigo D M Plentz, Christian C Coronel, Graciele Sbruzzi
BACKGROUND: Among neurodegenerative diseases, multiple sclerosis (MS) and amyotrophic lateral sclerosis (ALS) have a high rate of respiratory disability. OBJECTIVES: To analyze the effects of respiratory muscle training (RMT) on ventilatory function, muscle strength and functional capacity in patients with MS or ALS. DATA SOURCES: A systematic review and meta-analysis of randomized controlled trials (RCTs) was performed. The sources were MEDLINE, PEDro, Cochrane CENTRAL, EMBASE, and LILACS, from inception to January 2015...
September 2016: Physiotherapy
https://www.readbyqxmd.com/read/26949672/comparison-of-pulmonary-functions-at-onset-of-ventilatory-insufficiency-in-patients-with-amyotrophic-lateral-sclerosis-duchenne-muscular-dystrophy-and-myotonic-muscular-dystrophy
#19
Han Eol Cho, Jang Woo Lee, Seong Woong Kang, Won Ah Choi, Hyeonjun Oh, Kil Chan Lee
OBJECTIVE: To evaluate pulmonary functions of patients with amyotrophic lateral sclerosis (ALS), Duchenne muscular dystrophy (DMD), and myotonic muscular dystrophy (MMD) at the onset of ventilatory insufficiency. METHODS: This retrospective study included ALS, DMD, and MMD patients with regular outpatient clinic follow-up in the Department of Rehabilitation Medicine at Gangnam Severance Hospital before the application of non-invasive positive pressure ventilation (NIPPV)...
February 2016: Annals of Rehabilitation Medicine
https://www.readbyqxmd.com/read/26699449/a-basic-technology-aided-programme-for-leisure-and-communication-of-persons-with-advanced-amyotrophic-lateral-sclerosis-performance-and-social-rating
#20
Giulio E Lancioni, Nirbhay N Singh, Mark F O'Reilly, Jeff Sigafoos, Fiora D'Amico, Gabriele Ferlisi, Valeria Zullo, Floriana Denitto, Enrico Lauta, Crescenza Abbinante, Caterina V Pesce
PURPOSE: This study assessed (a) the impact of a technology-aided programme on the leisure and communication engagement of persons with advanced amyotrophic lateral sclerosis (ALS) and (b) the opinion of rehabilitation and care personnel regarding the programme. METHOD: The programme's impact was assessed with four participants who were allowed to activate leisure and communication options through basic responses (e.g. knee, finger or lip movements) and microswitches...
February 2017: Disability and Rehabilitation. Assistive Technology
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