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https://www.readbyqxmd.com/read/29656405/the-cellie-coping-kit-for-children-with-injury-initial-feasibility-acceptability-and-outcomes
#1
M L Marsac, D Weiss, K L Kohser, J Van Allen, P Seegan, S Ostrowski-Delahanty, A McGar, F K Winston, N Kassam-Adams
PURPOSE: Physical and psychological challenges can arise from paediatric injury, which can impact child health outcomes. Evidence-based resources to promote recovery are limited. The low cost, portable Cellie Coping Kit for Children with Injury provides evidence-based strategies to help children manage injury-related challenges. This study aimed to describe intervention feasibility and explore initial outcomes (learning, quality of life [QOL], and trauma symptoms). METHODS: Three independent pilot studies were conducted...
April 15, 2018: Child: Care, Health and Development
https://www.readbyqxmd.com/read/29656367/the-impact-of-coping-patterns-and-chronic-health-conditions-on-health-related-quality-of-life-among-children-and-adolescents
#2
Sabrina Oppenheimer, Orit Krispin, Sigal Levy, Maayan Ozeri, Alan Apter
This study examined the relationship among chronic disease, coping strategy patterns, and health-related quality of life (HRQOL) among children and adolescents. The cohort included 273 Israeli children and adolescents aged 8-18 years diagnosed with asthma, diabetes mellitus, or celiac disease. All completed the Coping with a Disease Questionnaire (CODI) and the DISABKIDS Chronic Generic Measure (DCGM-37). The outcome measures were as follows: association of the use of effective and non-effective coping strategies with type of disease; predictive value of coping patterns for health-related quality of life; a European sample was used for comparison...
April 14, 2018: European Journal of Pediatrics
https://www.readbyqxmd.com/read/29652007/objective-and-subjective-parameters-of-oral-health-in-south-indian-children-a-cross-sectional-study
#3
P R Geetha Priya, Sharath Asokan, D Kandaswamy
Background: Oral health of schoolchildren is a strong predictor of their overall well-being. This study was planned to assess and compare the objective and subjective parameters of oral health of South Indian school children. Methodology: Three hundred and sixty school children participated in this cross-sectional study. Their oral hygiene status, dental caries status, and treatment needs were assessed. Two questionnaires were filled by these children, to assess their oral health-related quality of life (OHRQoL) and their knowledge on oral health...
March 2018: Indian Journal of Dental Research: Official Publication of Indian Society for Dental Research
https://www.readbyqxmd.com/read/29651832/psychological-wellbeing-in-parents-of-children-with-phenylketonuria-and-association-with-treatment-adherence
#4
Lidia Borghi, Elisabetta Salvatici, Giuseppe Banderali, Enrica Riva, Marcello Giovannini, Elena Vegni
BACKGROUND: Phenylketonuria (PKU) is a rare metabolic disorder that leads to severe neurological abnormalities unless early treated with a strict phenylalanine (Phe)-restricted diet. The parents' involvement in PKU management is crucial and could lead to psychological distress; however, few studies have explored the parents' psychological wellbeing. The study aimed to: 1) evaluate the presence of psychological distress and impaired quality of life among parents of children with PKU, assessing the load of the diagnosis and the load of the treatment management; 2) explore the associations with their children's blood-Phe levels...
April 12, 2018: Minerva Pediatrica
https://www.readbyqxmd.com/read/29651362/permanent-unilateral-hearing-loss-uhl-and-childhood-development
#5
REVIEW
Judith E C Lieu
Purpose of Review: The aim of this study is to summarize the consequences of permanent unilateral hearing loss (UHL) on the development of children as documented in the recent literature. Recent Findings: Congenital and early-identified UHL places young children at risk for delays in speech-language development. School-aged children with UHL score lower on standardized tests of language and cognition and need increased assistance in school for educational and behavioral issues than siblings with normal hearing, and report lower hearing-related quality of life, similar to children with bilateral hearing loss (HL)...
2018: Current Otorhinolaryngology Reports
https://www.readbyqxmd.com/read/29649527/recommendations-for-evaluation-and-management-of-pain-in-patients-with-mucopolysaccharidosis-in-latin-america
#6
J M Politei, G Gordillo-González, N Guelbert, C F M Souza, C M Lourenço, M L Solano, M M Junqueira, T S P C Magalhães, A M Martins
The mucopolysaccharidosis (MPS) constitute a heterogeneous group of rare genetic disorders caused by enzymatic deficiencies that lead to the accumulation of glycosaminoglycans (GAGs). Several types of MPS are described, historically numbered from I to IX. Clinical observations strongly suggest the presence of chronic pain in patients with all types of MPS. There are few data in the literature on the evaluation and management of pain in these patients, a fact which can compromise the quality of life even more...
April 9, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29649000/review-and-evaluation-of-patient-centered-psychosocial-assessments-for-children-with-central-precocious-puberty-or-early-puberty
#7
REVIEW
Valerie S L Williams, Ahmed M Soliman, Amy M Barrett, Karen O Klein
The objective of this study was to assess the current use of patient-centered psychosocial assessments for the evaluation of children with central precocious puberty (CPP). Studies evaluating the psychosocial impact of CPP were identified through searches of the PubMed and Cochrane Library databases, ClinicalTrials.gov, a drug prescribing information database, and regulatory websites. Studies were screened using prespecified inclusion and exclusion criteria. Potentially relevant patient-centered outcome assessments (including patient-, parent- or observer-reported measures) used in the identified studies were evaluated in detail for their relevance in CPP...
April 12, 2018: Journal of Pediatric Endocrinology & Metabolism: JPEM
https://www.readbyqxmd.com/read/29648488/the-long-term-effects-of-conductive-education-courses-in-young-children-with-cerebral-palsy-a-randomized-controlled-trial
#8
Hilde Tinderholt Myrhaug, Jan Odgaard-Jensen, Reidun Jahnsen
PURPOSE: To assess the additional long-term effects of multiple conductive education (CE) courses followed by conventional practice on functional skills and quality of life in children with cerebral palsy (CP) compared to a 4-month CE-course delay including conventional practice. METHODS: Twenty-one children with CP, 3-6 years and varied functional levels, were randomized to 3-week CE course(s) followed by conventional practice or 4 months on a waiting list, including conventional practice and followed by CE-courses...
April 12, 2018: Developmental Neurorehabilitation
https://www.readbyqxmd.com/read/29645010/adding-patient-reported-outcomes-to-a-multisite-registry-to-quantify-quality-of-life-and-experiences-of-disease-and-treatment-for-youth-with-juvenile-idiopathic-arthritis
#9
Elissa R Weitzman, Lauren E Wisk, Parissa K Salimian, Kara M Magane, Fatma Dedeoglu, Aimee O Hersh, Yukiko Kimura, Kenneth D Mandl, Sarah Ringold, Marc Natter
Background: Children with Juvenile Idiopathic Arthritis (JIA) often have poor health-related quality of life (HRQOL) despite advances in treatment. Patient-centered research may shed light on how patient experiences of treatment and disease contribute to HRQOL, pinpointing directions for improving care and enhancing outcomes. Methods: Parent proxies of youth enrolled in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry shared patient-reported outcomes about their child's HRQOL and experiences of disease and treatment burden (pain interference, morning stiffness, history of medication side effects and methotrexate intolerance)...
2018: Journal of patient-reported outcomes
https://www.readbyqxmd.com/read/29644166/electroejaculation-combined-with-assisted-reproductive-technology-in-psychogenic-anejaculation-patients-refractory-to-penile-vibratory-stimulation
#10
Xianghu Meng, Longchang Fan, Tao Wang, Shaogang Wang, Zengjun Wang, Jihong Liu
Background: Psychogenic anejaculation (PAE) is a rare disease in clinic seriously affecting quality of life, especially fertility of patients. However, there is not an effective treatment for these patients. The aim of the study was to evaluate the results of treatment with electroejaculation (EEJ), intrauterine insemination (IUI), and intracytoplasmic sperm injection (ICSI) in patients with PAE who were refractory to penile vibratory stimulation (PVS). Methods: Twenty PVS-refractory patients with PAE were included in the retrospective study...
March 2018: Translational Andrology and Urology
https://www.readbyqxmd.com/read/29643102/research-priority-setting-in-childhood-chronic-disease-a-systematic-review
#11
Harrison Lindsay Odgers, Allison Tong, Pamela Lopez-Vargas, Andrew Davidson, Adam Jaffe, Anne McKenzie, Ross Pinkerton, Melissa Wake, Peter Richmond, Sally Crowe, Patrina Ha Yuen Caldwell, Sophie Hill, Jennifer Couper, Suzy Haddad, Behrouz Kassai, Jonathan C Craig
OBJECTIVE: To evaluate research priority setting approaches in childhood chronic diseases and to describe the priorities of stakeholders including patients, caregivers/families and health professionals. DESIGN: We conducted a systematic review of MEDLINE, Embase, PsycINFO and CINAHL from inception to 16 October 2016. Studies that elicited stakeholder priorities for paediatric chronic disease research were eligible for inclusion. Data on the prioritisation process were extracted using an appraisal checklist...
April 11, 2018: Archives of Disease in Childhood
https://www.readbyqxmd.com/read/29642916/longitudinal-measurement-invariance-and-explanatory-irt-models-for-adolescents-oral-health-related-quality-of-life
#12
David T W Yau, May C M Wong, K F Lam, Colman McGrath
BACKGROUND: Longitudinal invariance is a perquisite for a valid comparison of oral health-related quality of life (OHRQoL) scores over time. Item response theory (IRT) models can assess measurement invariance and allow better estimation of the associations between predictors and latent construct. By extending IRT models, this study aimed to investigate the longitudinal invariance of the two 8-item short forms of the Child Perception Questionnaire (CPQ11-14 ) regression short form (RSF:8) and item-impact short form (ISF:8) and identify factors associated with adolescents' OHRQoL and its change...
April 11, 2018: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/29642769/themes-of-healing-and-posttraumatic-growth-in-women-survivors-narratives-of-intimate-partner-violence
#13
Cassandra D'Amore, Stephanie L Martin, Karen Wood, Carolyn Brooks
Research on the effects of intimate partner violence (IPV) on women demonstrates the significant physical, emotional, psychological, and spiritual consequences of this form of interpersonal trauma. It is well documented that experiencing IPV can have devastating consequences to women's physical and mental health, overall well-being, and quality of life, as well as that of their children's. However, a small, predominantly qualitative body of research exists on women's experience of and capacity for healing from the effects of IPV, but more research is needed to advance theory and practice in this important area...
April 1, 2018: Journal of Interpersonal Violence
https://www.readbyqxmd.com/read/29629956/what-you-should-not-miss-from-the-systematic-reviews-and-meta-analyses-on-allergen-specific-immunotherapy-in-2017
#14
Désirée Larenas-Linnemann, Jorge A Luna-Pech
PURPOSE OF REVIEW: Allergen immunotherapy (AIT) is a well recognized and extensively studied therapeutic intervention for some allergic diseases. Every year new systematic reviews and meta-analysis provide the most powerful source of evidence to orient decision making on prevention or efficacy of AIT. We here discuss systematic reviews and meta-analyses on AIT (published January 2017 to February 2018). RECENT FINDINGS: We identified 4 systematic reviews and 10 meta-analyses...
April 6, 2018: Current Opinion in Allergy and Clinical Immunology
https://www.readbyqxmd.com/read/29629696/non-pharmacological-interventions-for-pediatric-cancer-patients-a-comparative-review-and-emerging-needs-in-india
#15
Sujata Satapathy, Tanuja Kaushal, Sameer Bakhshi, Rakesh Kumar Chadda
CONTEXT: Evidence-based research on psycho-oncology in last three decades lays emphasis upon the critical role of psychological services for better illness adjustment, improved quality of life, reduced distress and cognitive problems among the rapidly increasing pediatric cancer population. JUSTIFICATION: This review aims to summarize the evidence-based psychological interventions in childhood cancer over the two decades and addresses the wide gap that existed between intervention studies worldwide and India, thus highlighting the need for research and appropriate services...
March 15, 2018: Indian Pediatrics
https://www.readbyqxmd.com/read/29629589/flexed-knee-gait-in-children-with-cerebral-palsy
#16
C Church, J Ge, S Hager, T Haumont, N Lennon, T Niiler, R Hulbert, F Miller
Aims The purpose of this study was to evaluate the long-term outcome of adolescents with cerebral palsy who have undergone single-event multilevel surgery for a flexed-knee gait, followed into young adulthood using 3D motion analysis. Patients and Methods A total of 59 young adults with spastic cerebral palsy, with a mean age of 26 years (sd 3), were enrolled into the study in which their gait was compared with an evaluation that had taken place a mean of 12 years (sd 2) previously. At their visits during adolescence, the children walked with excessive flexion of the knee at initial contact and surgical or therapeutic interventions were not controlled between visits...
April 1, 2018: Bone & Joint Journal
https://www.readbyqxmd.com/read/29627041/obesity-and-asthma
#17
REVIEW
Ubong Peters, Anne E Dixon, Erick Forno
Obesity is a vast public health problem and both a major risk factor and disease modifier for asthma in children and adults. Obese subjects have increased asthma risk, and obese asthmatic patients have more symptoms, more frequent and severe exacerbations, reduced response to several asthma medications, and decreased quality of life. Obese asthma is a complex syndrome, including different phenotypes of disease that are just beginning to be understood. We examine the epidemiology and characteristics of this syndrome in children and adults, as well as the changes in lung function seen in each age group...
April 2018: Journal of Allergy and Clinical Immunology
https://www.readbyqxmd.com/read/29626629/the-burden-of-allergic-rhinitis-and-allergic-rhinoconjunctivitis-on-adolescents-a-literature-review
#18
REVIEW
Michael S Blaiss, Eva Hammerby, Susan Robinson, Tessa Kennedy-Martin, Sarah Buchs
OBJECTIVE: To evaluate the literature regarding the burden of allergic rhinitis (AR) and allergic rhinoconjunctivitis (ARC) in adolescents (10-19 years). DATA SOURCES: Searches were performed in MEDLINE, Embase, Health Technology Assessment Database, and National Health Service Economic Evaluation Database for studies evaluating concepts of symptoms, quality of life (QOL), daily activities, sleep, examination performance, school absenteeism and presenteeism, and treatment burden in adolescents with AR or ARC...
April 4, 2018: Annals of Allergy, Asthma & Immunology
https://www.readbyqxmd.com/read/29625914/maternal-food-related-practices-quality-of-diet-and-well-being-profiles-of-chilean-mother-adolescent-dyads
#19
Berta Schnettler, Klaus G Grunert, Germán Lobos, Edgardo Miranda-Zapata, Marianela Denegri, Clementina Hueche
OBJECTIVE: To identify mother-adolescent dyad profiles according to food-related parenting practices and to determine differences in diet quality, family meal frequency, life satisfaction, and sociodemographic characteristics. DESIGN: Cross-sectional study. SETTING: Mothers and children were surveyed in their homes or at schools in Temuco, Chile. PARTICIPANTS: A total of 300 mothers (average age, 41.6 years) and their adolescent children (average age, 13...
April 3, 2018: Journal of Nutrition Education and Behavior
https://www.readbyqxmd.com/read/29623525/what-are-the-caregivers-needs-on-dementia-care-an-integrated-qualitative-and-quantitative-assessment
#20
Ilaria Cova, N Travi, L Maggiore, V Cucumo, C Mariani, S Pomati
Dementia is one of the main causes of disability later in life. Interventions in support of patients with dementia aim at granting the highest level of independence in activities of daily living and at delivering the required facilities; formal and informal caregivers represent the interface between patients and health services. The aims of our study were to assess caregivers' perceived needs and to relate them to their own socio-cultural features and to patients' clinical characteristics. During three consecutive months, 50 caregivers of patients with dementia were interviewed about their needs in the assistance of subjects with dementia by means of three structured questionnaires (Caregiver Needs Assessment [CNA], Zarit Burden Inventory [ZBI], Neuropsychiatric Inventory-Questionnaire [NPI-Q]) and of two open-ended questions...
April 5, 2018: Neurological Sciences
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