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https://www.readbyqxmd.com/read/29220598/hope-for-the-future-but-fear-the-risk-of-stigma-ethiopian-family-caregivers-lived-experience-of-caring-for-their-hiv-positive-child-two-years-after-starting-antiretroviral-treatment
#1
Mulatu Biru, Pia Lunqvist, Mitikie Molla, Degu Jerene, Inger Hallström
Family caregivers are believed to be the primary source of support for HIV-affected children. There is limited evidence about practices of support for caregivers, to strengthen them and to enhance the welfare of HIV positive children, especially in African settings. Our aim was therefore to illuminate caregivers' lived experiences of caring for a child in Ethiopia 2 years after the child was enrolled in antiretroviral therapy. Qualitative interviews with 18 family caregivers of 18 children were performed and analyzed using an inductive design with a hermeneutic phenomenological approach...
December 8, 2017: Comprehensive Child and Adolescent Nursing
https://www.readbyqxmd.com/read/29216521/the-use-of-palliative-medications-before-death-from-prostate-cancer-swedish-population-based-study-with-a-comparative-overview-of-european-data
#2
Magdalena Lycken, Linda Drevin, Hans Garmo, Pär Stattin, Jan Adolfsson, Ingela Franck Lissbrant, Lars Holmberg, Anna Bill-Axelson
BACKGROUND: Symptoms of terminal cancer have previously been reported as undertreated. The aim of this study was to assess the use of palliative medications before death from prostate cancer. METHODS: This Swedish register study included men who died from 2009 to 2012 with prostate cancer as the underlying cause of death. We assessed the proportion who collected a prescription of androgen deprivation therapy, non-steroidal anti-inflammatory drugs, paracetamol, opioids, glucocorticoids, antidepressants, anxiolytics and sedative-hypnotics and the differences in treatment related to age, time since diagnosis, educational level, close relatives and comorbidities...
December 4, 2017: European Journal of Cancer
https://www.readbyqxmd.com/read/29215810/pediatric-deaths-attributed-to-complex-chronic-conditions-over-10-years-in-korea-evidence-for-the-need-to-provide-pediatric-palliative-care
#3
Min Sun Kim, Nam Gu Lim, Hyun Joo Kim, Chohee Kim, Jin Yong Lee
BACKGROUND: Pediatric palliative care (PPC) is the active total care of children suffering from life-threatening illnesses. Palliative care includes symptom management, psychosocial support, and end-of-life care. Despite significant advances in disease diagnosis and treatment, resources for PPC of children with serious illnesses are limited in Korea. This study aimed to investigate the scale, time trends, disease composition, regional distribution, and unmet needs of children dying from complex chronic conditions (CCCs)...
January 1, 2018: Journal of Korean Medical Science
https://www.readbyqxmd.com/read/29215504/is-health-related-quality-of-life-decreased-in-adolescents-with-back-pain
#4
Tatiana Rehder Gonçalves, Mauro Felippe Felix Mediano, Rosely Sichieri, Diana Barbosa Cunha
STUDY DESIGN: Cross-sectional study OBJECTIVE.: To evaluate the association between back pain and health-related quality of life (HRQoL) among adolescents. SUMMARY OF BACKGROUND DATA: The prevalence of back pain has been increasing not only in the adult population but also among children and adolescents. The better knowledge about the association between back pain and health-related quality of life could facilitate the implementation of new intervention strategies on prevention and treatment of back pain...
December 5, 2017: Spine
https://www.readbyqxmd.com/read/29215495/caregiver-perceptions-and-health-related-quality-of-life-changes-in-cerebral-palsy-patients-after-spinal-arthrodesis
#5
Amit Jain, Brian Sullivan, Suken A Shah, Amer F Samdani, Burt Yaszay, Michelle C Marks, Paul D Sponseller
STUDY DESIGN: Retrospective analysis of a prospective registryObjective: Our objective was to prospectively assess caregivers' perceptions regarding changes in the health-related quality of life (HRQL) of patients with cerebral palsy (CP) after spinal arthrodesis. We assessed caregiver perceptions from 3 perspectives: 1) qualitative assessment of changes in global quality of life, comfort, and health; 2) relative valuation of spine surgery versus other common interventions in CP patients; and 3) quantitative changes in HRQL scores...
December 5, 2017: Spine
https://www.readbyqxmd.com/read/29214403/executive-functioning-academic-skills-and-quality-of-life-in-pediatric-patients-with-brain-tumors-post-proton-radiation-therapy
#6
Lea M Ventura, Julie A Grieco, Casey L Evans, Karen A Kuhlthau, Shannon M MacDonald, Nancy J Tarbell, Torunn I Yock, Margaret B Pulsifer
Radiation therapy (RT) is integral in the treatment of pediatric brain tumors; however, photon RT (XRT) often results in intellectual decline, executive functioning (EF) deficits, academic underachievement/failure, and lower health-related quality of life (HRQoL). Proton RT (PRT) provides more targeted therapy, minimizing damage to the developing brain, yet few studies have examined its neuropsychological effects. This study investigated the role of EF in academic skills and HRQoL in a sample of children treated with PRT...
December 6, 2017: Journal of Neuro-oncology
https://www.readbyqxmd.com/read/29214323/economic-value-of-using-partially-hydrolysed-infant-formula-for-risk-reduction-of-atopic-dermatitis-in-high-risk-infants-not-exclusively-breastfed-in-singapore
#7
Marc F Botteman, Abhijeet J Bhanegaonkar, Erica G Horodniceanu, Xiang Ji, Bee Wah Lee, Lynette P Shek, Hugo Ps Van Bever, Patrick Detzel
INTRODUCTION: Previous trials have demonstrated reductions in atopic dermatitis (AD) incidence when healthy, high-risk, non-exclusively breastfed infants were fed until four months of age with 100% whey-based partially hydrolysed formula (PHF-W) versus standard cow's milk formula (CMF). We assessed this intervention's cost-effectiveness in Singapore. METHODS: Modelling techniques were used to simulate, from birth to Month 30, the incidence, and clinical and economic burden of AD in high-risk, non-exclusively breastfed infants fed with PHF-W or CMF for up to four months...
December 7, 2017: Singapore Medical Journal
https://www.readbyqxmd.com/read/29212379/provision-of-rehabilitation-services-for-children-with-disabilities-living-in-low-and-middle-income-countries-a-scoping-review
#8
Dawn Magnusson, Frank Sweeney, Michel Landry
BACKGROUND: Childhood disability is a growing global health priority. The purpose of this scoping review was to identify and summarize rehabilitation interventions used to support children with disabilities in low- and middle-income countries. METHODS: This scoping review involved a systematic search of electronic databases using a combination of subject headings and/or keywords related to child disability, rehabilitation, and low- and middle-income countries. Charting involved an iterative process whereby the full text of articles meeting the inclusion criteria were abstracted using a charting form...
December 7, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/29210832/quality-of-caregiving-is-positively-associated-with-neurodevelopment-during-the-first-year-of-life-among-hiv-exposed-uninfected-children-in-uganda
#9
Itziar Familiar, Shalean M Collins, Alla Sikorskii, Horacio Ruisenor-Escudero, Barnabas Natamba, Paul Bangirana, Elizabeth M Widen, Daniel Achidri, Harriet Achola, Daniel Onen, Michael Boivin, Sera L Young
OBJECTIVE: We sought to evaluate if maternal characteristics and infant developmental milieu were predictive of early cognitive development in HIV-exposed uninfected (HEU) and un-exposed uninfected (HU) infants in Uganda. DESIGN: Longitudinal pregnancy study. METHODS: Ugandan women (n=228) were enrolled into the Postnatal Nutrition and Psychosocial Health Outcomes (PostNAPS) study with a 2:1 HIV-uninfected:infected ratio. Maternal socio-demographic, perceived social support, and depressive symptomatology were assessed...
November 27, 2017: Journal of Acquired Immune Deficiency Syndromes: JAIDS
https://www.readbyqxmd.com/read/29210512/auditory-evoked-potentials-in-children-and-adolescents-with-down-syndrome
#10
Letícia Gregory, Rafael F M Rosa, Paulo R G Zen, Pricila Sleifer
Down syndrome, or trisomy 21, is the most common genetic alteration in humans. The syndrome presents with several features, including hearing loss and changes in the central nervous system, which may affect language development in children and lead to school difficulties. The present study aimed to investigate group differences in the central auditory system by long-latency auditory evoked potentials and cognitive potential. An assessment of 23 children and adolescents with Down syndrome was performed, and a control group composed of 43 children and adolescents without genetic and/or neurological changes was used for comparison...
December 6, 2017: American Journal of Medical Genetics. Part A
https://www.readbyqxmd.com/read/29210467/influence-of-the-quality-of-life-and-locus-of-control-of-mothers-of-disabled-children-on-the-oral-health-of-their-children
#11
Raquel Maria de Castro Soares de Barros, Rosana de Fátima Possobon, Estêvão Azevedo Melo, Livia Fernandes Probst, Luciane Miranda Guerra, Karine Laura Cortellazzi, Gláucia Maria Bovi Ambrosano
AIM: To investigate whether quality of life of mothers is related to oral health of disabled children. METHOD: This is an analytical cross-sectional study, based on interviews with 49 mothers and oral clinical examination (DMFT and OHI-S) in children with disabilities from 2 to 6 years old, assisted by the Rehabilitation Center of Piracicaba, SP. Mothers answered WHOQOL BREF quality of life instrument and Multidimensional Health Locus of Control Scale. Data analysis was performed with descriptive statistics, Chi-square test, Fisher's exact test, and multiple logistic regression...
December 6, 2017: Special Care in Dentistry
https://www.readbyqxmd.com/read/29210313/pain-predicts-poorer-health-related-quality-of-life-in-childhood-onset-systemic-lupus-erythematosus-a-cohort-study
#12
Ji Li, Jordan T Jones, Catherine Donnelly, Natoshia Cunningham, Susmita Kashikar-Zuck, Hermine I Brunner
Objectives To investigate the predictive value of pain on health-related quality of life (HRQoL) among patients with childhood-onset systemic lupus erythematous (cSLE), as increased adverse psychosocial events are reported in patients with cSLE, but the predictive impact of psychological events on HRQoL remains unclear. Methods This cohort study recruited patients with cSLE from the Cincinnati Children's Hospital Medical Centre rheumatology clinic. Data regarding pain due to lupus in past week, and HRQoL, were collected during a baseline and 6-month follow-up visit...
January 1, 2017: Journal of International Medical Research
https://www.readbyqxmd.com/read/29210179/cross-sectional-follow-up-of-voice-outcomes-in-children-who-have-a-history-of-airway-reconstruction-surgery
#13
Wendy Cohen, David M Wynne, Susan Lloyd, Richard B Townsley
OBJECTIVES: This study reports vocal function in a cross-section of children with subglottic stenosis. Each child had a history of laryngotracheal reconstruction and/or cricotracheal resection surgery. Vocal function was measured using laryngoscopy, acoustic analysis, perceptual evaluation and impact of voice on quality of life. DESIGN: All patients aged >5 years with history of laryngotracheal reconstruction and/or cricotracheal resection surgery at the Scottish National Complex Airways service were invited to participate...
December 6, 2017: Clinical Otolaryngology
https://www.readbyqxmd.com/read/29209602/economic-evaluation-and-budget-impact-analysis-of-vaccination-against-haemophilus-influenzae-type-b-infection-in-thailand
#14
Surachai Kotirum, Charung Muangchana, Sirirat Techathawat, Piyameth Dilokthornsakul, David Bin-Chia Wu, Nathorn Chaiyakunapruk
Current study aimed to estimate clinical and economic outcomes of providing the Haemophilus influenzae type b (Hib) vaccination as a national vaccine immunization program in Thailand. A decision tree combined with Markov model was developed to simulate relevant costs and health outcomes covering lifetime horizon in societal and health care payer perspectives. This analysis considered children aged under 5 years old whom preventive vaccine of Hib infection are indicated. Two combined Hib vaccination schedules were considered: three-dose series (3 + 0) and three-dose series plus a booster does (3 + 1) compared with no vaccination...
2017: Frontiers in Public Health
https://www.readbyqxmd.com/read/29209274/optimizing-patient-management-and-adherence-for-children-receiving-growth-hormone
#15
Carlo L Acerini, Katarzyna Wac, Peter Bang, Dagmar Lehwalder
Poor adherence with growth hormone (GH) therapy has been associated with worse clinical outcomes, which in children relates specifically to their linear growth and loss of quality of life. The "360° GH in Europe" meeting, held in Lisbon, Portugal, in June 2016 and funded by Merck KGaA (Germany), examined many aspects of GH diseases. The three sessions, entitled "Short Stature Diagnosis and Referral," "Optimizing Patient Management," and "Managing Transition," each benefited from three guest speaker presentations, followed by an open discussion and are reported as a manuscript, authored by the speakers...
2017: Frontiers in Endocrinology
https://www.readbyqxmd.com/read/29208864/how-does-family-structure-relate-with-children-s-language-development-a-cross-sectional-experience-from-urban-slums-in-dhaka
#16
S Islam, F Nusrat, S A Esha, F Mehrin, A Hilaly, S Shiraji, M I Hasan, F Tofail, J D Hamadani
Family structure is an important factor for children's overall development. In this cross sectional study, we explored how single parenting relates to child's language development in slums of Dhaka city, Bangladesh from 31st August 2010 to 9th February 2011. Children aged 10 to 24 months (n=133), living with mother only and those living with both parents were included. Children's comprehensive and expressive language development was assessed using the Bengali version of Mac Arthur's Communicative Development Inventory (MCDI)...
October 2017: Mymensingh Medical Journal: MMJ
https://www.readbyqxmd.com/read/29208588/app-supported-promotion-of-child-growth-and-development-by-community-health-workers-in-kenya-feasibility-and-acceptability-study
#17
Alastair van Heerden, Debjeet Sen, Chris Desmond, Julia Louw, Linda Richter
BACKGROUND: Early childhood is a critical phase of development. In low resource settings, monitoring this stage of development and providing appropriate and timely feedback is a challenge. Community-based service providers play a key role in promoting early childhood development in areas where government services are weak. These community-based service providers are also tasked with the collection of monitoring and evaluation data for donors and local government. Usually, collection of these data aims to provide accountability, learning, and correction leading to improvement...
December 5, 2017: JMIR MHealth and UHealth
https://www.readbyqxmd.com/read/29207908/a-scoping-review-of-pain-in-children-following-traumatic-brain-injury-is-there-more-than-headache
#18
Vivian Kwan, Mai Vo, Melanie Noel, Keith Owen Yeates
AIM: Headache is a common source of pain in children following traumatic brain injury (TBI); however, relatively little is known about non-headache pain in this pediatric population. The present review seeks to map the extant literature to determine the prevalence, characteristics, and impact of non-headache pain in children following TBI of all severities. RESULTS: Of 109 studies published on pain in children following a TBI, 95 (87%) were focused exclusively on headache pain and only 14 (13%) reported on non-headache pain or overall pain, with half (n = 7) in the form of case studies...
December 5, 2017: Journal of Neurotrauma
https://www.readbyqxmd.com/read/29204201/health-related-quality-of-life-in-children-with-congenital-hydrocephalus-and-the-parental-concern-an-analysis-in-a-developing-nation
#19
Monika Bawa, Jegadeesh Sundaram, Vedarth Dash, Nitin James Peters, K L N Rao
Purpose: To analyze quality of life of children operated for congenital hydrocephalus and the concern of parents in taking care of these children. Methods: Thirty patients who underwent ventriculo-peritoneal shunt were randomly selected with minimum gap of 1 year between surgery and study. Canadian validated questionnaire was used. Overall health score (OHS) and parental concern score (PCS) were correlated with gender, family type and number of surgeries. Results: Mean OHS was 159...
July 2017: Journal of Pediatric Neurosciences
https://www.readbyqxmd.com/read/29204200/quality-of-life-in-indian-children-with-cerebral-palsy-using-cerebral-palsy-quality-of-life-questionnaire
#20
Saurbhi Das, Anju Aggarwal, Shambhawi Roy, Pankaj Kumar
Background: Quality of life (QOL) in children with cerebral palsy (CP) needs to be measure by CP-specific questionnaire. CP-QOL questionnaire is being used for this purpose. Objectives: The aim is to determine the QOL in Indian children with CP using CP-QOL questionnaire and to correlate QOL scores with demographic details of the patient. Materials and Methods: Subjects were parents of 50 children (4-12 years) attending child development center of Guru Teg Bahadur Hospital were enrolled...
July 2017: Journal of Pediatric Neurosciences
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