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narrative inquiry

Solveig L Hansen
In the traditions of narrative ethics and casuistry, stories have a well-established role. Specifically, illness narratives provide insight into patients' perspectives and histories. However, because they tend to see fiction as an aesthetic endeavour, practitioners in these traditions often do not realize that fictional stories are valuable moral sources of their own. In this paper I employ two arguments to show the mutual relationship between bioethics and fiction, specifically, science fiction. First, both discourses use imagination to set a scene and determine a perspective...
March 8, 2018: Journal of Bioethical Inquiry
Raissa Passos Dos Santos, Eliane Tatsch Neves, Franco Carnevale
BACKGROUND: Pediatric nursing care involves many significant ethical challenges. Although nurses are broadly recognized as professionals with relevant knowledge about children and families, little is known about how nurses experience ethical concerns in their everyday practice. OBJECTIVE: The objective of this study was to better understand the moral experiences and related moral distress experiences of nurses working in pediatric settings in Brazil. DESIGN: Interpretative phenomenological study conducted through narrative interviews...
January 1, 2018: Nursing Ethics
Lee Galuska, Judith Hahn, E Carol Polifroni, Gregory Crow
Health care transformation is guided by the triple aim of improving health, enhancing the patient experience, and reducing costs. Experts have recommended the addition of a fourth aim, improving the experience of providing care. They advise that achievement of the triple aim will only be possible if we create the conditions where health care workers can find meaning and joy in their work. Nurses' experiences with meaning and joy in their practice have not been well described. In an effort to fill this knowledge gap, nurses across the nation recently participated in a qualitative study to share their experiences with meaning and joy in their nursing practice...
April 2018: Nursing Administration Quarterly
Callista Roy
BACKGROUND: Today, we face a situation some call the "profession at the crossroads." The problem is the development of the profession being threatened by an imbalance among philosophical, conceptual/theoretical, and empirical inquiry. OBJECTIVES: The aims of this project are to (a) examine the development and contributions of theory, (b) outline the challenges we face in knowledge development, and (c) provide a structure for disciplinary knowledge that provides a unifying focus and renovates theories' place in nursing science that can direct the future of developing knowledge for practice...
March 2018: Nursing Research
Aine Marie Kelly, Patricia B Mullan
Teaching and assessing trainees' professionalism now represents an explicit expectation for Accreditation Council Graduate Medical Education-accredited radiology programs. Challenges to meeting this expectation include variability in defining the construct of professionalism; limits of traditional teaching and assessment methods, used for competencies historically more prominent in medical education, for professionalism; and emerging expectations for credible and feasible professionalism teaching and assessment practices in the current context of health-care training and practice...
February 22, 2018: Academic Radiology
Rena Lyons, Sue Roulstone
There are policy and theoretical drivers for listening directly to children's perspectives. These perspectives can provide insights to children's experiences of their daily lives and ways in which they construct their multiple identities. Qualitative methodology is a useful research paradigm with regard to exploring children's experiences. However, listening to the perspectives of children with speech and language disorders is a relatively new field of research. Therefore, it is important that researchers share their experiences of using methods and reflect on the strengths and limitations of these methods...
February 14, 2018: Journal of Communication Disorders
Angelika Maly, Navdeep Singh, April Hazard Vallerand
The experience of cancer pain is poorly understood from the perspective of African Americans, who experience higher levels of pain, more pain-related distress, and poorer function than Caucasians. Decreased perceived control over pain may play a greater role for African American patients, affecting pain-related distress and function. The purpose of this study was to add to the understanding of cancer pain and perceived control over pain in African Americans, from the patients' perspective. This qualitative inquiry was part of a larger mixed-methods study testing an intervention to improve pain, pain-related distress, and functional status through increasing perceived control over pain...
February 2018: Pain Management Nursing: Official Journal of the American Society of Pain Management Nurses
Rena Lyons, Sue Roulstone
Purpose: Children with speech and language disorders are at risk in relation to psychological and social well-being. The aim of this study was to understand the experiences of these children from their own perspectives focusing on risks to their well-being and protective indicators that may promote resilience. Method: Eleven 9- to 12-year-old children (4 boys and 7 girls) were recruited using purposeful sampling. One participant presented with a speech sound disorder, 1 presented with both a speech and language disorder, and 9 with language disorders...
January 25, 2018: Journal of Speech, Language, and Hearing Research: JSLHR
Mahed-Ul-Islam Choudhury, C Emdad Haque
The varied interpretations of the concept of resilience in natural hazards research literature has attracted numerous criticisms. A common criticism centers around a poor understanding of the changes caused by natural disasters by the research stream. Considering resilience as a metaphor of change, and newspaper as a catalyst that often highlights post-disaster opportunities for "forward looking" (rather than bouncing back) changes, we examined some specific aspects of change in Canadian communities by analyzing coverage of natural disasters in daily newspapers...
January 6, 2018: Environmental Management
Mihirika Sds Pincha Baduge, Julia Morphet, Cheryle Moss
INTRODUCTION: The 2014 Ebola Virus Disease outbreak in West Africa triggered a public health emergency of international concern. Emergency departments worldwide responded with Ebola containment and preparation measures. This paper reports a literature inquiry into how emergency departments and emergency nurses prepared to manage the Ebola risk. METHOD: Narrative review was the method used. Guidelines (n = 5) for organisational and emergency department preparedness were retrieved from relevant websites...
January 3, 2018: International Emergency Nursing
Jacqueline M Smith, Andrew Estefan, Vera Caine
Substance use disorder is a complex phenomenon that affects people in many different contexts. Adolescent substance abuse within families is a particular problem that merits ongoing study. In particular, the experiences of mothers in this context are not fully explored. In this narrative inquiry study, we explored the experiences of four mothers parenting children through long-term substance abuse treatment. Participants were recruited from a family-orientated long-term adolescent treatment center in Alberta, Canada...
December 1, 2017: Qualitative Health Research
Ben Saxton
This section features original work on pathographies-i.e., (auto)biographical accounts of disease, illness, and disability-that provide narrative inquiry relating to the personal, existential, psychological, social, cultural, spiritual, political, and moral meanings of individual experience. Editors are: Nathan Carlin and Therese Jones. For submissions, contact Nathan Carlin at:
January 2018: Cambridge Quarterly of Healthcare Ethics: CQ: the International Journal of Healthcare Ethics Committees
Qing Wang, Ho Chung Law, Yan Li, Zhanfei Xu, Weiguo Pang
The article explores undergraduate students' experiences of developing mindful agency as a positive learning disposition, their perceived change as a learner, and the possible impact of mindful agency coaching on students' learning and personal growth, using a narrative research method. Seventy Chinese undergraduate students generated personal reflective journals and eight participants' journals were selected to enter into the narrative-oriented inquiry. Our analysis revealed a number of primary themes based on which we produced a meta-story...
2017: Frontiers in Psychology
Lara Keuck
This paper examines medical scientists' accounts of their rediscoveries and reassessments of old materials. It looks at how historical patient files and brain samples of the first cases of Alzheimer's disease became reused as scientific objects of inquiry in the 1990s, when a genetic neuropathologist from Munich and a psychiatrist from Frankfurt lead searches for left-overs of Alzheimer's 'founder cases' from the 1900s. How and why did these researchers use historical methods, materials and narratives, and why did the biomedical community cherish their findings as valuable scientific facts about Alzheimer's disease? The paper approaches these questions by analysing how researchers conceptualised 'history' while backtracking and reassessing clinical and histological materials from the past...
November 27, 2017: History and Philosophy of the Life Sciences
Britney M Wardecker, Robin S Edelstein, Jodi A Quas, Ingrid M Cordon, Gail S Goodman
Traumatized individuals are often encouraged to confront their experiences by talking or writing about them. However, survivors of childhood sexual abuse (CSA) might find it especially difficult to process abuse experiences, particularly when the abuse is more severe, which could put them at greater risk for mental health problems. The current study examined whether CSA survivors who use emotion language when describing their abuse experiences exhibit better mental health. We analyzed the trauma narratives of 55 adults who, as children, were part of a larger study of the long-term emotional effects of criminal prosecutions on CSA survivors...
December 2017: Journal of Language and Social Psychology
Jason L Schwartz
For observers of pharmaceutical regulation and the Food and Drug Administration, these are uncertain times. Events in late 2016 raised concerns that the FDA's evidentiary standards were being weakened, compromising the agency's ability to adequately perform its regulatory and public health responsibilities. Two developments most directly contributed to these fears-the approval of eteplirsen, a treatment for Duchenne muscular dystrophy, against the recommendations of both FDA staff and an advisory committee and the December 2016 signing of the 21st Century Cures Act, which encouraged greater use by the FDA of "real-world" evidence not obtained through randomized controlled trials...
November 2017: Hastings Center Report
Keren Fink, Paul Rhodes, Jane Miskovic-Wheatley, Andrew Wallis, Stephen Touyz, Julian Baudinet, Sloane Madden
Background: This study investigated patient experience in a Family Admissions Program (FAP) - a pilot treatment program for adolescents with Anorexia Nervosa at the Children's Hospital, Westmead. Based on Maudsley Family Based Treatment (FBT), the FAP involves an adolescent and his/her family undergoing a two-week family-based hospital admission at the outset of treatment. The program aims to increase intensity and support to a level needed by some families struggling to engage with or access FBT...
2017: Journal of Eating Disorders
Franco A Carnevale, Gail Teachman, Aline Bogossian
Children with complex health care needs are an emerging population that commonly requires long-term supportive services. A growing body of evidence has highlighted that these children and their families experience significant challenges. Many of these challenges involve ethical concerns that have been under-recognized. In this article, we (a) outline ethical concerns that arise in clinical practice with children with complex health care needs and their families (e.g.: exclusion of children's voices in discussions and decisions that affect them; difficulties in defining their best interests; clashes across the array of social roles that parents manage; limited recognition of the ethical significance of parents' and other family members' interests) and (b) propose a relational ethics framework for addressing these concerns...
December 2017: Comprehensive Child and Adolescent Nursing
Lisa Scandale Lewis
This narrative inquiry study examined community college nursing student repeaters, who failed a required nursing course and then went on to repeat the course. The purpose of this study was to learn about the experience of this group of students who are at high risk for attrition. While each participant had a unique story, common narratives emerged and were presented as storylines. Two storylines that are new to the literature were: Repeating is an Emotional Journey, and Ultimately Repeating was the Best Thing for Me...
October 17, 2017: Nurse Education in Practice
Donald Makoka, Jeffrey Drope, Adriana Appau, Ronald Labonte, Qing Li, Fastone Goma, Richard Zulu, Peter Magati, Raphael Lencucha
BACKGROUND: The preservation of the economic livelihood of tobacco farmers is a common argument used to oppose tobacco control measures. However, little empirical evidence exists about these livelihoods. We seek to evaluate the economic livelihoods of individual tobacco farmers in Malawi, including how much money they earn from selling tobacco, and the costs they incur to produce the crop, including labour inputs. We also evaluate farmers' decisions to contract directly with firms that buy their crops...
November 2017: Tobacco Control
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