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https://www.readbyqxmd.com/read/29909595/disability-experiences-and-perspectives-regarding-reproductive-decisions-parenting-and-the-utility-of-genetic-services-a-qualitative-study
#1
C Roadhouse, C Shuman, K Anstey, K Sappleton, D Chitayat, E Ignagni
Genetic counselors adopt seemingly contradictory roles: advocating for individuals with genetic conditions while offering prenatal diagnosis and the option of selective termination to prevent the birth of a child with a disability. This duality contributes to the tension between the disability and clinical genetics communities. Varying opinions exist amongst the disability community: some value genetic services while others are opposed. However, there is limited research exploring the opinions of individuals with a disability regarding issues related to reproduction and genetic services in the context of personal experience...
June 16, 2018: Journal of Genetic Counseling
https://www.readbyqxmd.com/read/29909594/the-influence-of-adolescence-on-parents-perspectives-of-testing-and-discussing-inherited-cancer-predisposition
#2
Corinna L Schultz, Melissa A Alderfer, Robert B Lindell, Zachary McClain, Kristin Zelley, Kim E Nichols, Carol A Ford
Li-Fraumeni syndrome (LFS) is a highly penetrant cancer predisposition syndrome that may present with a first cancer before or during adolescence/young adulthood. Families offered LFS genetic testing for their children can inform our understanding of how the unique developmental context of adolescence influences parental perspectives about genetic testing and discussions of cancer risk. In this study, semi-structured interviews were conducted with 46 parents of children at risk for LFS to capture those perspectives...
June 16, 2018: Journal of Genetic Counseling
https://www.readbyqxmd.com/read/29909589/-it-was-not-my-aim-to-sleep-there-the-impact-of-timing-and-location-of-sex-on-adherence-to-coitally-dependent-hiv-pre-exposure-prophylaxis
#3
Fiona Scorgie, Jonathan Stadler, Deborah Baron, Susan Ju, Tshepiso Ikaneng, Zonke Mabude, Sylvia Makgopa, Matshidiso A Malefo, Kgahlisho N Manenzhe, Thulani Mazibuko, Hilda Ntjana, Busi Nkala, Thesla Palanee-Phillips, Glenda Gray, Helen Rees, Sinead Delany-Moretlwe
The FACTS 001 trial found that vaginal pre- and post-coital application of 1% tenofovir gel did not prevent HIV-1 infection amongst young South African women. The trial included a multi-faceted approach to adherence support and collected objective and self-reported adherence measures. Using qualitative data collected from a random sub-set of FACTS 001 participants (135 in-depth interviews at product discontinuation and 13 focus group discussions at dissemination of trial results), we explore the importance of 'place' and 'timing' in shaping acts of sexual intimacy and product adherence...
June 16, 2018: AIDS and Behavior
https://www.readbyqxmd.com/read/29909522/why-don-t-segregated-roma-do-more-for-their-health-an-explanatory-framework-from-an-ethnographic-study-in-slovakia
#4
Andrej Belak, Andrea Madarasova Geckova, Jitse P van Dijk, Sijmen A Reijneveld
OBJECTIVES: The health status of segregated Roma is poor. To understand why segregated Roma engage in health-endangering practices, we explored their nonadherence to clinical and public health recommendations. METHODS: We examined one segregated Roma settlement of 260 inhabitants in Slovakia. To obtain qualitative data on local-level mechanisms supporting Roma nonadherence, we combined ethnography and systematic interviewing over 10 years. We then performed a qualitative content analysis based on sociological and public health theories...
June 16, 2018: International Journal of Public Health
https://www.readbyqxmd.com/read/29909402/impact-of-exercise-restriction-on-arrhythmic-risk-among-patients-with-arrhythmogenic-right-ventricular-cardiomyopathy
#5
Weijia Wang, Gabriela Orgeron, Crystal Tichnell, Brittney Murray, Jane Crosson, Oliver Monfredi, Julia Cadrin-Tourigny, Harikrishna Tandri, Hugh Calkins, Cynthia A James
BACKGROUND: Prior studies have shown a close link between exercise and development of arrhythmogenic right ventricular cardiomyopathy. How much exercise restriction reduces ventricular arrhythmia (VA), how genotype modifies its benefit, and whether it reduces risk sufficiently to defer implantable cardioverter-defibrillator (ICD) placement in arrhythmogenic right ventricular cardiomyopathy are unknown. METHODS AND RESULTS: We interviewed 129 arrhythmogenic right ventricular cardiomyopathy patients (age: 34...
June 16, 2018: Journal of the American Heart Association
https://www.readbyqxmd.com/read/29909374/the-command-trial-of-cognitive-therapy-for-harmful-compliance-with-command-hallucinations-ctch-a-qualitative-study-of-acceptability-and-tolerability-in-the-uk
#6
Max Birchwood, Laura Mohan, Alan Meaden, Nick Tarrier, Shon Lewis, Til Wykes, Linda M Davies, Graham Dunn, Emmanuelle Peters, Maria Michail
OBJECTIVES: To explore service user experiences of a 9-month cognitive behavioural therapy for command hallucinations in the context of a randomised controlled trial including their views on acceptability and tolerability of the intervention. DESIGN: Qualitative study using semistructured interviews. SETTING: The study took place across three sites: Birmingham, Manchester and London. Interviews were carried out at the sites where therapy took place which included service bases and participants' homes...
June 15, 2018: BMJ Open
https://www.readbyqxmd.com/read/29909373/what-insights-do-patients-and-caregivers-have-on-acute-kidney-injury-and-posthospitalisation-care-a-single-centre-qualitative-study-from-toronto-canada
#7
Samuel A Silver, Marianne Saragosa, Neill K Adhikari, Chaim M Bell, Ziv Harel, Andrea Harvey, Abhijat Kitchlu, Javier A Neyra, Ron Wald, Lianne Jeffs
OBJECTIVES: Hospitalisation with acute kidney injury (AKI) is associated with short-term and long-term adverse events, but patient and caregiver experiences with AKI are not well described. We sought to better understand patient and caregiver perspectives after a hospitalisation with AKI to inform discharge strategies that may improve outcomes for this high-risk population. DESIGN: Qualitative study with semistructured interviews. SETTING: Tertiary care hospital in Toronto, Ontario, Canada...
June 15, 2018: BMJ Open
https://www.readbyqxmd.com/read/29909372/an-international-qualitative-study-exploring-patients-experiences-of-cutaneous-leishmaniasis-study-set-up-and-protocol
#8
Astrid Christine Erber, Byron Arana, Issam Bennis, Afif Ben Salah, Aicha Boukthir, Maria Del Mar Castro Noriega, Mamoudou Cissé, Gláucia Fernandes Cota, Farhad Handjani, Mairie Guizaw Kebede, Trudie Lang, Liliana López Carvajal, Kevin Marsh, Dalila Martinez Medina, Emma Plugge, Piero Olliaro
INTRODUCTION: Lack of investments in drug development, lack of standardisation of clinical trials and the complexity of disease presentations contribute to the current lack of effective, safe and adapted treatments for cutaneous leishmaniasis (CL). One aspect concerns outcomes affecting patients' quality of life (QoL): these are hardly assessed in trials, despite potential functional and/or aesthetic impairment caused by CL, which typically affects disadvantaged and vulnerable people living in rural areas...
June 15, 2018: BMJ Open
https://www.readbyqxmd.com/read/29909369/socioeconomic-status-and-cigarette-expenditure-among-us-households-results-from-2010-to-2015-consumer-expenditure-survey
#9
Mohammad Siahpush, Paraskevi A Farazi, Shannon I Maloney, Danae Dinkel, Minh N Nguyen, Gopal K Singh
OBJECTIVES: To examine (1) the association between household socioeconomic status (SES) and whether a household spends money on cigarettes and (2) socioeconomic variations in proportion of total household expenditure spent on cigarettes among smoking households. METHODS: We pooled data from six consecutive years, 2010-2015, of the Consumer Expenditure Interview Survey. The interviews involved a structured questionnaire about household income, demographics and expenditures including expenditure on cigarettes...
June 15, 2018: BMJ Open
https://www.readbyqxmd.com/read/29909258/lecturers-lived-experiences-of-guiding-reflective-seminars-during-nursing-education
#10
Elisabeth Lindberg
In the present study, reflective seminars were integrated during a three-year nursing programme in Sweden. The specific characteristics of the reflective seminars are built upon a foundation in lifeworld theory and caring science. As teaching in higher education demands an academic degree but not necessarily formal pedagogical education, lecturers involved in reflective seminars are often left without guidance concerning what constitutes a reflective learning activity in nursing education. The aim of the present study is to describe the lived experience of guiding reflective seminars during nursing education from the lecturers' perspective...
June 11, 2018: Nurse Education in Practice
https://www.readbyqxmd.com/read/29909128/prevalence-of-childhood-mental-disorders-in-overweight-and-obese-spanish-children-identifying-loss-of-control-eating
#11
Ana R Sepúlveda, Santos Solano, Miriam Blanco, Tatiana Lacruz, Montserrat Graell
The aim was to examine the prevalence of childhood mental disorders in overweight/obese pediatric sample and also to explore the relationship between these pathologies and loss of control eating (LOC). Another aim was to assess the association between psychopathology and severity of obesity. A total of 170 children from different Health Centers were evaluated (84 girls and 86 boys; aged 8 to 12 years). Childhood psychological problems were assessed through a standardized diagnostic interview schedule (K-SADS-R) and by questionnaires (STAIC for anxiety, CDI for depression and ChEAT for disordered eating)...
June 8, 2018: Psychiatry Research
https://www.readbyqxmd.com/read/29908906/adults-with-an-epilepsy-history-notably-those-45-64-years-old-or-at-the-lowest-income-levels-more-often-report-heart-disease-than-adults-without-an-epilepsy-history
#12
Matthew Zack, Cecily Luncheon
From 95,196 sample adults in the combined 2010, 2013, and 2015 U.S. National Health Interview Survey, we estimated the association between histories of epilepsy and heart disease after accounting for sociodemographic characteristics and behavioral risk factors. Adults 18 years old or older with an epilepsy history reported heart disease (21%) about nine percentage points more often than those without such a history (12%), overall and within levels of characteristics and risk factors. These increases in heart disease history for adults with an epilepsy history compared with adults without such a history were greater in those 45-64 years old or at the lowest family income levels...
June 13, 2018: Epilepsy & Behavior: E&B
https://www.readbyqxmd.com/read/29908801/housing-management-characteristics-and-factors-associated-with-lameness-hock-lesion-and-hygiene-of-lactating-dairy-cattle-on-upper-midwest-united-states-dairy-farms-using-automatic-milking-systems
#13
James A Salfer, Justin M Siewert, Marcia I Endres
The objectives of this cross-sectional study were to describe housing and management practices on farms using automatic milking systems (AMS) in 2 states of the upper Midwest and to evaluate the association of various housing and management factors with 3 measures of animal welfare: prevalence of lameness, severe hock lesions, and dirty cows. Fifty-four farms were visited once to collect facility measurements and observations, interview the dairy producer, and score cows for locomotion, hock lesions, and hygiene...
June 13, 2018: Journal of Dairy Science
https://www.readbyqxmd.com/read/29908691/pancreatic-enzyme-replacement-therapy-following-surgery-for-pancreatic-cancer-an-exploration-of-patient-self-management
#14
Lisa Dunleavy, Ahmed Al-Mukhtar, Vanessa Halliday
BACKGROUND: For those diagnosed with pancreatic cancer, ill-addressed pancreatic exocrine insufficiency (PEI) following surgery can result in malnutrition related complications that may impact on predict mortality and morbidity. The use of pancreatic enzyme replacement therapy (PERT) is recommended and often demands a degree of patient self-management. Understanding more about how this treatment is managed is fundamental to optimising care. OBJECTIVE: This study aimed to explore patient self-management of PERT following surgery for pancreatic cancer...
August 2018: Clinical Nutrition ESPEN
https://www.readbyqxmd.com/read/29908687/the-active-problem-solving-of-patients-dependent-on-home-parenteral-nutrition-a-qualitative-analysis
#15
Liam Ennis, Joanne Ablett, Michael Taylor, Simon Lal
BACKGROUND & AIMS: People with chronic, type 3, intestinal failure often require long-term home parenteral nutrition (HPN). People receiving HPN have frequent interactions with their healthcare, due to the need for close monitoring and due to recurrent hospital admissions. Individuals' responses to, and interactions with, their health care service provides are poorly described. We conducted a service evaluation to explore people's experiences of HPN-related healthcare interactions in order to identify how service providers can best meet the individualised needs of patients...
August 2018: Clinical Nutrition ESPEN
https://www.readbyqxmd.com/read/29908573/traditional-and-ethnomedicinal-dermatology-practices-in-pakistan
#16
Inayat Ur Rahman, Aftab Afzal, Zafar Iqbal, Farhana Ijaz, Niaz Ali, Rainer W Bussmann
In spite of the remarkable achievements in the health care sector over recent decades, inequities in accessibility and affordability of these facilities coexist throughout Pakistan, which has led us to explore and document the cultural knowledge of medicinal plants used in skin disorders by the local community members of Manoor Valley, Pakistan. Field investigations were undertaken during the summer seasons of 2015-2017, and cultural practices of medicinal plants usage for treating various ailments were gathered through interviews with the local inhabitants...
May 2018: Clinics in Dermatology
https://www.readbyqxmd.com/read/29908515/an-altered-state-emergent-changes-to-illicit-drug-markets-and-distribution-networks-in-scotland
#17
James Densley, Robert McLean, Ross Deuchar, Simon Harding
BACKGROUND: Many efforts have been undertaken to construct an overview of various aspects of illicit drug distribution in the United Kingdom. Yet given that national, regional, and local differences can be profound, this has proven difficult, to the extent that Scotland has been largely excluded from the conversation. In addition, the level of supply being examined, the drug type, and the actors involved only add to confusion and vast differences between some findings. METHOD: The current study aims to provide a holistic account, as best as possible considering variations of illegal drug supply in illicit networks, by focusing in on a particular geographical context (Scotland) and addressing drug supply at all levels...
June 13, 2018: International Journal on Drug Policy
https://www.readbyqxmd.com/read/29908475/help-seeking-intention-for-depression-in-early-adolescents-associated-factors-and-sex-differences
#18
Shuntaro Ando, Atsushi Nishida, Satoshi Usami, Shinsuke Koike, Syudo Yamasaki, Sho Kanata, Shinya Fujikawa, Toshiaki A Furukawa, Masato Fukuda, Susan M Sawyer, Mariko Hiraiwa-Hasegawa, Kiyoto Kasai
BACKGROUND: Seeking help from others is an essential behavioural intention for humans to adapt to the social environment. Transgenerational and gender-related mechanisms of how this intention is shaped is an important but unresolved question in adolescent development. This study aimed to comprehensively examine the factors promoting or inhibiting intention to seek help for depression in 10-year-olds, including transgenerational factors, and to investigate the sex differences in the effect of these factors...
June 7, 2018: Journal of Affective Disorders
https://www.readbyqxmd.com/read/29908474/early-warnings-for-suicide-attempt-among-chinese-rural-population
#19
Juncheng Lyu, Yingying Wang, Hong Shi, Jie Zhang
OBJECTIVE: This study was to explore the main influencing factors of attempted suicide and establish an early warning model, so as to put forward prevention strategies for attempted suicide. METHOD: Data came from a large-scale case-control epidemiological survey. A sample of 659 serious suicide attempters was randomly recruited from 13 rural counties in China. Each case was matched by a community control for gender, age, and residence location. Face to face interviews were conducted for all the cases and controls with the same structured questionnaire...
June 5, 2018: Journal of Affective Disorders
https://www.readbyqxmd.com/read/29908457/sleep-disorders-among-yusho-patients-highly-intoxicated-with-dioxin-related-compounds-a-140-case-series
#20
Hideaki Kondo, Keiko Tanio, Yuki Nagaura, Mako Nagayoshi, Chikage Mitoma, Masutaka Furue, Takahiro Maeda
PURPOSE: Patients with Yusho, a condition caused by exposure to dioxins and dioxin-like compounds, have diverse mental and physical complaints. However, the relationship between dioxins and sleep disorders has not yet been examined. This cross-sectional study was designed to investigate problems associated with sleep among patients with Yusho. METHODS: A total of 140 participants (52.9% men, average age: 67.1 ± 12.2 years) were examined using questionnaires and medical interviews by an expert on sleep medicine...
June 13, 2018: Environmental Research
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