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https://www.readbyqxmd.com/read/28320348/methods-for-conceptualising-visual-ability-as-a-measurable-construct-in-children-with-cerebral-palsy
#1
Belinda Deramore Denver, Margareta Adolfsson, Elspeth Froude, Peter Rosenbaum, Christine Imms
BACKGROUND: Vision influences functioning and disability of children with cerebral palsy, so there is a growing need for psychometrically robust tools to advance assessment of children's vision abilities in clinical practice and research. Vision is a complex construct, and in the absence of clarity about this construct it is challenging to know whether valid, reliable measures exist. This study reports a method for conceptualising 'visual ability' as a measurable construct. METHODS: Using the items from 19 assessment tools previously identified in a systematic review, this study used a two-phase process: first, deductive content analysis linked items to the International Classification of Functioning, Disability and Health - Child and Youth version (ICF-CY), and second, vision-specific 'Activity'-level items were explored using inductive thematic analysis...
March 21, 2017: BMC Medical Research Methodology
https://www.readbyqxmd.com/read/28219081/current-methods-of-evaluating-speech-language-outcomes-for-preschoolers-with-communication-disorders-a-scoping-review-using-the-icf-cy
#2
Barbara Jane Cunningham, Karla N Washington, Amanda Binns, Katelyn Rolfe, Bernadette Robertson, Peter Rosenbaum
Purpose: The purpose of this scoping review was to identify current measures used to evaluate speech-language outcomes for preschoolers with communication disorders within the framework of the International Classification of Functioning, Disability and Health-Children and Youth Version (ICF-CY; World Health Organization, 2007). Method: The review involved 5 phases outlined by Arksey and O'Malley (2005) and further developed by Levac, Colquhoun, and O'Brien (2010): (a) articulating the research question; (b) identifying relevant studies; (c) selecting studies; (d) charting the data; and (e) collating, summarizing, and reporting the results...
February 1, 2017: Journal of Speech, Language, and Hearing Research: JSLHR
https://www.readbyqxmd.com/read/28167314/the-impact-of-contact-on-students-attitudes-towards-peers-with-disabilities
#3
Susanne Schwab
This study aimed to understand the relationship between contact with peers with Special Educational Needs (SEN) and students' attitudes towards their peers with SEN, by examining the inter-group contact theory in regular and inclusive classes. A total of 463 students in 8th grade, with a mean age of 14.42 years, from 25 secondary school classes in Styria (Austria) completed a self-report questionnaire regarding their contact with peers with SEN and their attitudes towards peers with disabilities. Contact was indicated by nominations for joint activities and examined in inclusive and regular classes...
March 2017: Research in Developmental Disabilities
https://www.readbyqxmd.com/read/28125437/value-in-single-level-lumbar-discectomy-surgical-disposable-item-cost-and-relationship-to-patient-reported-outcomes
#4
Benjamin P Rosenbaum, Michael T Modic, Ajit A Krishnaney
STUDY DESIGN: This is a retrospective study. OBJECTIVE: Compare improvements in health status measures (HSMs) and surgical costs to determine whether use of more costly items has any relationship to clinical outcome and value in lumbar disc surgery. SUMMARY OF BACKGROUND DATA: Association between cost, outcomes, and value in spine surgery, including lumbar discectomy is poorly understood. Outcomes were calculated as difference in mean HSM scores between preoperative and postoperative timeframes...
January 25, 2017: Clinical Spine Surgery
https://www.readbyqxmd.com/read/28080012/medicaid-s-future-what-might-aca-repeal-mean
#5
Sara Rosenbaum, Sara Rothenberg, Rachel Gunsalus, Sara Schmucker
Issue: Republicans in Congress are expected to repeal portions of the Affordable Care Act (ACA) using a fast-track process known as budget reconciliation. Goals: This issue brief examines how repeal legislation could affect Medicaid, the nation’s health care safety net, which insured 70 million people in 2016. Findings and Conclusions: Partial-repeal legislation that passed Congress but was vetoed by President Obama in 2016 offers some insight but new legislation could go further. It could repeal the ACA’s Medicaid eligibility expansions for adults and children but also roll back other provisions, such as simplified enrollment and improvements in long-term services and supports for beneficiaries with disabilities...
2017: Issue Brief of the Commonwealth Fund
https://www.readbyqxmd.com/read/27833905/perspectives-on-disease-and-disability-in-child-health-the-case-of-childhood-neurodisability
#6
REVIEW
Anton Rodney Miller, Peter Rosenbaum
Chronic health conditions are often associated with what is termed disability. Traditional thinking has focused on diagnosis and treatment of chronic diseases and disorders, with less attention to people's functional abilities and their contextual determinants. Understanding all of these factors is integral to addressing the predicaments and needs of persons with chronic conditions. However, these complementary yet distinct "worldviews" reflected in what we call disease and disability perspectives often remain, at best, only vaguely articulated...
2016: Frontiers in Public Health
https://www.readbyqxmd.com/read/27640996/participation-both-a-means-and-an-end-a-conceptual-analysis-of-processes-and-outcomes-in-childhood-disability
#7
REVIEW
Christine Imms, Mats Granlund, Peter H Wilson, Bert Steenbergen, Peter L Rosenbaum, Andrew M Gordon
This review outlines a conceptual approach to inform research and practice aimed at supporting children whose lives are complicated by impairment and/or chronic medical conditions, and their families. 'Participation' in meaningful life activities should be an essential intervention goal, to meet the challenges of healthy growth and development, and to provide opportunities to help ensure that young people with impairments reach their full potential across their lifespan. Intervention activities and research can focus on participation as either an independent or dependent variable...
January 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/27628485/physical-fitness-in-people-with-posttraumatic-stress-disorder-a-systematic-review
#8
Davy Vancampfort, Brendon Stubbs, Justin Richards, Philip B Ward, Joseph Firth, Felipe B Schuch, Simon Rosenbaum
PURPOSE: People with posttraumatic stress disorder (PTSD) have an increased risk of cardiovascular diseases (CVD). Physical fitness is a key modifiable risk factor for CVD and associated mortality. We reviewed the evidence-base regarding physical fitness in people with PTSD. METHODS: Two independent reviewers searched PubMed, CINAHL, PsycARTICLES, PEDro, and SPORTDiscus from inception until May 2016 using the key words "fitness" OR "exercise" AND "posttraumatic stress disorder" OR "PTSD"...
September 15, 2016: Disability and Rehabilitation
https://www.readbyqxmd.com/read/27618847/participation-in-out-of-home-environments-for-young-children-with-and-without-developmental-disabilities
#9
Chun Yi Lim, Mary Law, Mary Khetani, Nancy Pollock, Peter Rosenbaum
This study examines caregivers' perceptions of participation patterns and environmental supports and barriers for young children with and without developmental disabilities within their child care/preschool and community settings. The Young Children's Participation and Environment Measure (YC-PEM) was completed by 151 parents of Singaporean children (0-7 years old) with and without developmental disabilities. Setting-specific summary and item-level scores of these children were compared using ANCOVA, Mann-Whitney U, and Pearson chi-square tests...
July 2016: OTJR: Occupation, Participation and Health
https://www.readbyqxmd.com/read/27444634/positive-cardiometabolic-health-for-adults-with-intellectual-disability-an-early-intervention-framework
#10
Julian Trollor, Carmela Salomon, Jackie Curtis, Andrew Watkins, Simon Rosenbaum, Katherine Samaras, Philip B Ward
Cardiometabolic morbidity is a significant contributor to the poorer health outcomes experienced by people with intellectual disability (ID). Tailoring cardiometabolic monitoring tools developed for the general population to better fit the altered risk profiles and extra needs of people with ID may help to improve health outcomes. This paper describes a new cardiometabolic monitoring framework designed to address the extra needs of people with ID. The framework was adapted from a generalist guideline after a process of extensive consultation with the original authors and over 30 ID and cardiometabolic experts...
July 22, 2016: Australian Journal of Primary Health
https://www.readbyqxmd.com/read/27283848/is-a-family-centred-initiative-a-family-centred-service-a-case-of-a-conductive-education-setting-for-children-with-cerebral-palsy
#11
R Schenker, S Parush, P Rosenbaum, A Rigbi, A Yochman
BACKGROUND: From the moment a child is diagnosed as having cerebral palsy, families have to cope on a daily basis with the multifaceted challenges of life-long disability management. Family-centred service is embraced as a 'best practice' model because of accumulating evidence supporting its positive influence on parents and children's outcomes. Nevertheless, research comparing parent and provider perspectives on family-centred practices of educational service providers in education settings is scarce...
June 9, 2016: Child: Care, Health and Development
https://www.readbyqxmd.com/read/27188686/cerebral-palsy
#12
H Kerr Graham, Peter Rosenbaum, Nigel Paneth, Bernard Dan, Jean-Pierre Lin, Diane L Damiano, Jules G Becher, Deborah Gaebler-Spira, Allan Colver, Dinah S Reddihough, Kylie E Crompton, Richard L Lieber
Cerebral palsy is the most common cause of childhood-onset, lifelong physical disability in most countries, affecting about 1 in 500 neonates with an estimated prevalence of 17 million people worldwide. Cerebral palsy is not a disease entity in the traditional sense but a clinical description of children who share features of a non-progressive brain injury or lesion acquired during the antenatal, perinatal or early postnatal period. The clinical manifestations of cerebral palsy vary greatly in the type of movement disorder, the degree of functional ability and limitation and the affected parts of the body...
January 7, 2016: Nature Reviews. Disease Primers
https://www.readbyqxmd.com/read/27171024/developmental-disability-shouldn-t-grandparents-have-a-place-at-the-table
#13
EDITORIAL
Peter Rosenbaum
No abstract text is available yet for this article.
June 2016: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/27129405/rethinking-fatigue-in-gaucher-disease
#14
REVIEW
Y Chen Zion, E Pappadopulos, M Wajnrajch, H Rosenbaum
BACKGROUND: Gaucher disease (GD) is a rare lysosomal storage disease caused by deficiency in the enzyme beta-glucocerebrosidase. Along with visceral, hematologic, and bone manifestations, patients may experience chronic fatigue resulting in functional disability and reduced quality of life. Management of the disease includes therapeutic intervention, supportive therapies, and regular monitoring of all clinically relevant disease signs and symptoms. However, current practice guidelines do not include measurement of fatigue or therapeutic goals for fatigue...
April 29, 2016: Orphanet Journal of Rare Diseases
https://www.readbyqxmd.com/read/27127257/using-the-courts-to-shape-medicaid-policy-olmstead-v-l-c-by-zimring-and-its-community-integration-legacy
#15
Sara Rosenbaum
In Olmstead v. L.C. by Zimring, the United States Supreme Court addressed the relationship between the Americans with Disabilities Act (ADA), a landmark in US civil rights law, and the Medicaid program. Olmstead holds that qualified individuals with disabilities who are protected by the ADA have the right to receive publicly funded services in community-integrated treatment settings and that medically unnecessary institutionalization violates the ADA. But the Court had to wrestle with the extent to which the ADA requires state Medicaid programs to make deep and structural reforms in how long-term care services are organized, financed, and delivered...
August 2016: Journal of Health Politics, Policy and Law
https://www.readbyqxmd.com/read/27098366/measurement-of-visual-ability-in-children-with-cerebral-palsy-a%C3%A2-systematic-review
#16
REVIEW
Belinda Deramore Denver, Elspeth Froude, Peter Rosenbaum, Sarah Wilkes-Gillan, Christine Imms
AIM: To identify and evaluate measures of visual ability used with children with cerebral palsy (CP). METHOD: Eight databases were searched for measures of visual ability. Key selection criteria for measures were: use with children with CP; focus of visual ability measurement at the Activities and Participation domain of the International Classification of Functioning, Disability and Health (ICF). The Consensus-based Standards for the Selection of Measurement Instruments (COSMIN) Checklist was used to assess psychometric properties...
October 2016: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/26767564/the-importance-of-context-what-are-our-assumptions-about-childhood-disability
#17
EDITORIAL
Peter Rosenbaum
No abstract text is available yet for this article.
December 2015: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/26531668/financial-stress-among-parents-of-children-with-neurodevelopmental-disabilities-in-canada-the-role-of-complexity
#18
A Bogossian, D W Rothwell, L M Lach, D Nicholas, D Kohen, P Rosenbaum
No abstract text is available yet for this article.
December 2015: International Journal of Developmental Neuroscience
https://www.readbyqxmd.com/read/26442231/characteristics-of-patients-receiving-long-term-opioid-therapy-for-chronic-noncancer-pain-a-cross-sectional-survey-of-patients-attending-the-pain-management-centre-at-hamilton-general-hospital-hamilton-ontario
#19
Jason W Busse, Hamza Mahmood, Bilal Maqbool, Amna Maqbool, Ali Zahran, Adnan Alwosaibai, Eshaq Alshaqaq, Nav Persaud, Lynn Cooper, Angela Carol, Janice Sumpton, Erin McGinnis, Daniel Rosenbaum, Natalie Lidster, D Norman Buckley
BACKGROUND: Characteristics of patients receiving long-term opioid therapy (≥ 6 months) for chronic noncancer pain are poorly understood. We conducted a cross-sectional survey of this patient population to explore demographic variables, pain relief, functional improvement, adverse effects and impressions of an educational pamphlet on long-term opioid therapy. METHODS: We invited 260 adult patients presenting to the Pain Management Centre at the Hamilton General Hospital, Hamilton, Ontario, with chronic noncancer pain to complete a 20-item survey...
July 2015: CMAJ Open
https://www.readbyqxmd.com/read/26246787/pharmacological-approaches-to-the-challenge-of-treatment-resistant-depression
#20
REVIEW
Dawn F Ionescu, Jerrold F Rosenbaum, Jonathan E Alpert
Although monoaminergic antidepressants revolutionized the treatment of Major Depressive Disorder (MDD) over a half-century ago, approximately one third of depressed patients experience treatment-resistant depression (TRD). Such patients account for a disproportionately large burden of disease, as evidenced by increased disability, cost, human suffering, and suicide. This review addresses the definition, causes, evaluation, and treatment of unipolar TRD, as well as the major treatment strategies, including optimization, augmentation, combination, and switch therapies...
June 2015: Dialogues in Clinical Neuroscience
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