Use the keywords feature with a free QxMD account.
Use Read by QxMD to access full text via your institution or open access sources.
Read also provides personalized recommendations to keep you up to date in your field.
Existing User
Sign InNew to Read
Sign Up#1
JOURNAL ARTICLE
Yahya Doğan, Nur Banu Karaca, Sinan Buran, Orkun Tüfekçi, Ege Nur Atabey Gerlegiz, Emil Aliyev, Yağmur Bayındır, Yelda Bilginer, Edibe Ünal, Seza Özen
INTRODUCTION: This study aimed to assess the cultural adaptation, validity, and reliability of the Turkish version of the Juvenile Arthritis Quality of Life Questionnaire (JAQQ) in patients with juvenile idiopathic arthritis (JIA). METHODS: A total of 100 JIA patients (64% female), aged 9 to 18 years, participated in the study conducted at a tertiary care university hospital. The JAQQ was culturally adapted through a rigorous translation process and administered alongside established measures, including the Childhood Health Assessment Questionnaire (CHAQ), Juvenile Arthritis Biopsychosocial Questionnaire (JABQ), and Children's Depression Inventory (CDI)...
April 15, 2024: Clinical Rheumatology
#2
REVIEW
Aviya Lanis, Helene Alexanderson, Kaveh Ardalan, Suzanne Edison, Christopher D Graham, Ingrid de Groot, Latika Gupta, Susan Kim, Andrea M Knight, Linda Kobert, Polly Livermore, Christian Lood, Clarissa Pilkington, Malin Regardt, Tamar B Rubinstein, Susan Shenoi, Luke Turnier, Nicole B M Voet, Dawn M Wahezi, Lesley Ann Saketkoo
Psychological and emotional well-being are critical aspects of overall health for individuals with chronic rheumatologic conditions. Mental health-related literature, however, predominantly focuses on systemic lupus erythematosus or rheumatoid arthritis, with limited emphasis on idiopathic inflammatory myopathies (IIMs). High proportions of those with juvenile myositis report psychological distress at levels warranting mental health referral. Adults with dermatomyositis diagnosed with depression or anxiety do not receive adequate mental health care...
February 2024: Clinical and Experimental Rheumatology
#3
REVIEW
Ignacio Ventura, Gemma Clara Meira-Blanco, María Ester Legidos-García, Marcelino Pérez-Bermejo, María Teresa Murillo-Llorente
UNLABELLED: Juvenile Idiopathic Arthritis (JIA) is currently the most common chronic rheumatic disease in children. It is known to have no single identity, but a variety of diagnoses. Under-diagnosis is a barrier to early treatment and reduced complications of the disease. Other immune-mediated diseases may coexist in the same patient, making research in this area relevant. The main objective was to analyse whether links could be established between the molecular basis of JIA and other immune-mediated diseases...
February 28, 2024: International Journal of Molecular Sciences
#4
REVIEW
Wen-Yu Liu, Hui-Min Li, Hao Jiang, Wen-Kui Zhang
OBJECTIVE: Little is known about the efficacy and safety of exercise training on juvenile idiopathic arthritis (JIA). This study aims to investigate the effect of exercise on health, quality of life, and different exercise capacities in individuals with JIA. METHOD: A comprehensive search of Medline, Embase, Web of Science, and the Cochrane Library was conducted from database inception to October, 2023. Included studies were randomized controlled trials (RCTs) reporting the effects of exercise on JIA patients...
March 4, 2024: Pediatric Rheumatology Online Journal
#5
Violetta Opoka-Winiarska, Natalia Winiarska, Monika Lejman, Małgorzata Gdak, Krzysztof Gosik, Filip Lewandowski, Paulina Niedźwiedzka-Rystwej, Ewelina Grywalska
This study investigated the association between autoimmunity and immunodeficiency in pediatric patients, focusing on the case of a 15-year-old female diagnosed with juvenile idiopathic arthritis (JIA) and secondary Sjögren's syndrome. The patient presented with a variety of symptoms, including joint pain, bronchial asthma, leukopenia, and skin lesions. Genetic testing revealed a de novo mutation in the DOCK8 gene, associated with DOCK8 deficiency, a condition usually associated with immunodeficiencies...
February 13, 2024: International Journal of Molecular Sciences
#6
JOURNAL ARTICLE
Mei Zhang, Jiaoyu Li, Yue Su, Guimei Guo, Nan Chen
INTRODUCTION: Enthesitis-related arthritis (ERA) is a category of juvenile idiopathic arthritis (JIA). The complications of JIA include pain, muscle weakness, limited movement and worsening quality of life. Yoga is an effective exercise therapy for rheumatoid arthritis and may have similar benefits for JIA. Considering the limitation of yoga for strengthening muscles, combined yoga and resistance training (CYRT) may compensate for the shortcomings and provide more benefits for JIA patients...
February 20, 2024: BMJ Open
#7
REVIEW
Alia Fazza, Sakina Chemil, Sawssen Miladi, Hiba Boussaa, Yasmine Makhlouf, Kaouther Ben Abdelghani, Ahmed Laatar
Juvenile idiopathic arthritis (JIA), as a chronic condition, is associated with significant disease- and treatment-related morbidity, thus impacting children's quality of life. In order to optimize JIA management and to ensure the best possible care and outcome for children with rheumatic diseases, dedicated disease activity and damage assessment tools are essential. In recent years, there has been a concerted and important international effort to develop and validate disease activity and outcome instruments specific to JIA...
June 5, 2023: La Tunisie Médicale
#8
JOURNAL ARTICLE
Elif Gur Kabul, Zulal Tatar, Ozge Cankaya, Esra Akın, Gulsah Kılbas, Bilge Basakci Calik, Ismail Saracoglu, Selcuk Yuksel
OBJECTIVE: The aim of this study was to investigate the validity and reliability of the Turkish version of the Fear of Pain Questionnaire for Children-Short Form (FOPQC-SF) in children/adolescents with juvenile idiopathic arthritis (JIA). METHODS: To evaluate validity of FOPQC-SF, 70 children/adolescents with JIA were included. Data were collected using Pediatric Quality Of Life Inventory 3.0. Module Arthritis (PedsQL), Childhood Health Assessment Questionnaire (CHAQ) and Juvenile Arthritis Disease Activity Score (JADAS)...
February 16, 2024: Physiotherapy Theory and Practice
#9
JOURNAL ARTICLE
Anna-Kaisa Tuomi, Katariina Rebane, Ellen Dalen Arnstad, Lillemor Berntson, Anders Fasth, Mia Glerup, Troels Herlin, Hannu Kautiainen, Ellen Nordal, Suvi Peltoniemi, Marite Rygg, Veronika Rypdal, Marek Zak, Kristiina Aalto
BACKGROUND: There is a growing interest concerning the relationship between obesity and several medical conditions and inflammation. Nevertheless, there is a lack of studies regarding body mass index (BMI) among patients with juvenile idiopathic arthritis (JIA). Our aim was to investigate the impact of BMI on health-related quality of life (HRQoL) measured with a 36-Item Short Form Survey (SF-36), disease activity, and disability in young adults with JIA. METHODS: This study is a part of the population-based Nordic JIA cohort study...
February 2, 2024: Pediatric Rheumatology Online Journal
#10
JOURNAL ARTICLE
Maria Stavrakidou, Maria Trachana, Artemis Koutsonikoli, Kyriaki Spanidou, Alexandra Hristara-Papadopoulou
OBJECTIVES: To investigate the applicability and impact of a physiotherapy tele-rehabilitation program (TRP) on children with Juvenile Idiopathic Arthritis (JIA) and their families. METHODS: Thirty JIA patients, applying an individualized home-exercise program (HEP), were randomly divided in the tele-rehabilitation (TRG, n=15) and control group (CG, n=15). Each TRG patient participated in a 30-minute tele-session, under a paediatric physiotherapist's supervision, twice a week, for 12 weeks...
December 2023: Mediterranean journal of rheumatology
#11
JOURNAL ARTICLE
Johannes J Noordstar, Kristien G Kuipers
No abstract text is available yet for this article.
January 1, 2024: Pediatric Physical Therapy
#12
JOURNAL ARTICLE
G Horneff, K Minden, D Foell, J Klotsche, K Tenbrock
BACKGROUND: The aims of the PROKIND protocols are improvement and harmonization of the diagnostics, monitoring, treatment decision and prognosis. MATERIAL AND METHODS: This article reports the results of a prospective treat-to-target observational study of patients with polyarticular juvenile idiopathic arthritis (JIA) during the first year of treatment. Disease activity was assessed with the 10-joint juvenile arthritis disease activity score (JADAS-10), functional limitation with the childhood health assessment questionnaire disability index (CHAQ-DI) and with information on overall well-being, on pain, on fatigue and on global estimation of disease activity...
December 29, 2023: Zeitschrift Für Rheumatologie
#13
JOURNAL ARTICLE
Ana Isabel Rebollo-Giménez, Silvia Rosina, Valentina Natoli, Marco Burrone, Patrizia Barone, Simona Campus, Adele Civino, Rita Consolini, Giovanni Filocamo, Romina Gallizzi, Maurizio Gattinara, Francesco La Torre, Maria Cristina Maggio, Silvia Magni-Manzoni, Maria Greca Magnolia, Angela Miniaci, Davide Montin, Serena Pastore, Antonella Petaccia, Sara Pieropan, Donato Rigante, Gabriele Simonini, Francesca Ridella, Silvia Maria Orsi, Simona Angioloni, Luca Carlini, Nicolino Ruperto, Alessandro Consolaro
OBJECTIVES: Limited information is available on the clinical features, treatment modalities and outcomes of the juvenile idiopathic arthritis (JIA) categories of enthesitis-related arthritis (ERA) and juvenile psoriatic arthritis (JPsA). This study was aimed to describe the characteristics of Italian children with ERA and JPsA and to compare them with those of patients with the other categories of JIA. METHODS: Patients were part of a multinational sample included in a study aimed to investigate the prevalence of disease categories, treatment approaches, and disease status in patients from across different geographical areas (EPOCA Study)...
December 22, 2023: Clinical and Experimental Rheumatology
#14
JOURNAL ARTICLE
Jordi Antón, Estefania Moreno Ruzafa, Mireia Lopez Corbeto, Rosa Bou, Judith Sánchez Manubens, Sonia Carriquí Arenas, Joan Calzada Hernández, Violetta Bittermann, Carolina Estepa Guillén, Juan Mosquera Angarita, Lucía Rodríguez Díez, Estíbaliz Iglesias, Miguel Marti Masanet, Berta Lopez Montesinos, Maria I González Fernández, Alfonso de Lossada, Carmen Peral, Mónica Valderrama, Noelia Llevat, María Montoro Álvarez, Immaculada Calvo Penadés
Background: Juvenile idiopathic arthritis (JIA) is the most frequent chronic rheumatic disease in children. If inflammation is not adequately treated, joint damage, long-term disability, and active disease during adulthood can occur. Identifying and implementing early and adequate therapy are critical for improving clinical outcomes. The burden of JIA on affected children, their families, and the healthcare system in Spain has not been adequately assessed. The greatest contribution to direct costs is medication, but other expenses contribute to the consumption of resources, negatively impacting healthcare cost and the economic conditions of affected families...
2023: Journal of health economics and outcomes research
#15
JOURNAL ARTICLE
Anouk Vroegindeweij, Nico M Wulffraat, Elise M Van De Putte, Hanne B T De Jong, Desiree A Lucassen, Joost F Swart, Sanne L Nijhof
OBJECTIVES: To evaluate the use of two self-management intervention strategies for persistent fatigue in adolescents and young adults with a fatigue syndrome or rheumatic condition. DESIGN: A randomized crossover trial administering tailored lifestyle advice and generic dietary advice, each 12 weeks, with a four-week washout period between. METHODS: Sixty participants (aged 12-29) were included. Tailoring was achieved through the PROfeel method...
December 10, 2023: British Journal of Health Psychology
#16
JOURNAL ARTICLE
Merve Cansu Polat, Elif Çelikel, Zahide Ekici Tekin, Vildan Güngörer, Tuba Kurt, Nilüfer Tekgöz, Müge Sezer, Cüneyt Karagöl, Serkan Coşkun, Melike Mehveş Kaplan, Nimet Öner, Banu Çelikel Acar
The purpose of this study was to evaluate physical activity (PA) and health-related quality of life (HRQOL) in children with oligoarticular juvenile idiopathic arthritis (JIA) in remission in comparison with healthy peers and to determine the disease-related factors affecting PA levels. This study was conducted with 50 oligoarticular JIA patients in remission and 50 healthy peers between 9 and 14 years. Demographic and clinical characteristics, laboratory parameters, and treatments were noted from electronic medical records...
December 10, 2023: European Journal of Pediatrics
#17
JOURNAL ARTICLE
Devrim Can Sarac, Deniz Bayraktar, Derya Ozer Kaya, Ozge Altug Gucenmez, Deran Oskay
INTRODUCTION: Although inspiratory muscle training (IMT) has proven effective in adult rheumatic diseases, its impact on juvenile idiopathic arthritis (JIA) remains unexplored. The present study aimed to investigate the effects of IMT in children with JIA. METHODS: Thirty-three children (13-18 years) with JIA were divided into two groups as exercise (n = 17) and control (n = 16). The exercise group performed IMT at home daily for 8 weeks...
December 1, 2023: Pediatric Pulmonology
#18
JOURNAL ARTICLE
Hana Smajlović, Asja Prohić
For over two decades, the acronym PAPA syndrome has been used to describe an autoinflammatory condition caused by missense mutations in the PSTPIP1 (proline-serine-threonine phosphatase interacting protein 1) gene and clinically characterized by the presence of pyogenic arthritis, pyoderma gangrenosum (PG), and acne (1,2). Due to the involvement of the PSTPIP1 gene in the regulation of innate immunity, mutations of this gene cause abnormal activation of inflammasomes, complexes of NLRP3/ASC/caspase-1 proteins...
November 2023: Acta Dermatovenerologica Croatica: ADC
#19
JOURNAL ARTICLE
Josefine M Halbig, Birgitta Jönsson, Elisabeth G Gil, Anne N Åstrøm, Veronika Rypdal, Paula Frid, Thomas A Augdal, Johannes Fischer, Lena Cetrelli, Marite Rygg, Anette Lundestad, Karin Tylleskär, Ellen Nordal
BACKGROUND: Knowledge on oral health-related quality of life (OHRQoL) in children and adolescents with juvenile idiopathic arthritis (JIA) is limited, and longitudinal studies are lacking. We aimed to describe OHRQoL in children and adolescents with JIA compared to controls, and to explore the validity and internal consistency of the Early Childhood Oral Health Impact Scale (ECOHIS) and the Child Oral Impact on Daily Performance (Child-OIDP). Furthermore, we wanted to investigate associations between OHRQoL and orofacial pain, physical health, disease activity, and temporomandibular joint (TMJ) involvement in JIA...
November 20, 2023: BMC Oral Health
#20
JOURNAL ARTICLE
Kelly Nguyen, Julie Barsalou, Daniah Basodan, Michelle Batthish, Susanne M Benseler, Roberta A Berard, Nicholas Blanchette, Gilles Boire, Roxana Bolaria, Alessandra Bruns, David A Cabral, Bonnie Cameron, Sarah Campillo, Tania Cellucci, Mercedes Chan, Gaëlle Chédeville, Anne-Laure Chetaille, Amieleena Chhabra, Julie Couture, Paul Dancey, Jean-Jacques De Bruycker, Erkan Demirkaya, Muhammed Dhalla, Ciarán M Duffy, Brian M Feldman, Debbie E Feldman, Tommy Gerschman, Elie Haddad, Liane Heale, Julie Herrington, Kristin Houghton, Adam M Huber, Andrea Human, Nicole Johnson, Roman Jurencak, Bianca Lang, Maggie Larché, Ronald M Laxer, Claire M LeBlanc, Jennifer J Y Lee, Deborah M Levy, Lillian Lim, Lily S H Lim, Nadia Luca, Tara McGrath, Tamara McMillan, Paivi M Miettunen, Kimberly A Morishita, Hon Yan Ng, Kiem Oen, Jonathan Park, Ross E Petty, Jean-Philippe Proulx-Gauthier, Suzanne Ramsey, Johannes Roth, Alan M Rosenberg, Evelyn Rozenblyum, Dax G Rumsey, Heinrike Schmeling, Rayfel Schneider, Rosie Scuccimarri, Natalie J Shiff, Earl Silverman, Gordon Soon, Lynn Spiegel, Elizabeth Stringer, Herman Tam, Shirley M Tse, Lori Tucker, Stuart Turvey, Marinka Twilt, Karen Watanabe Duffy, Rae S M Yeung, Jaime Guzman
OBJECTIVE: To assess changes in juvenile idiopathic arthritis (JIA) treatments and outcomes in Canada, comparing a 2005-2010 and a 2017-2021 inception cohorts. METHODS: Patients enrolled within three months of diagnosis in the Research in Arthritis in Canadian Children Emphasizing Outcomes (ReACCh-Out) and the Canadian Alliance of Pediatric Rheumatology Investigators Registry (CAPRI) cohorts were included. Cumulative incidences of drug starts and outcome attainment within 70 weeks of diagnosis were compared with Kaplan Meier survival analysis and multivariable Cox regression...
October 18, 2023: Rheumatology
Make the most of Read.
Download the mobile app.
Download the mobile app.
Fetching more papers... 
