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Patient Narratives

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https://www.readbyqxmd.com/read/29453113/epidemiological-profile-of-epilepsy-in-low-income-populations
#1
REVIEW
Camilo Espinosa-Jovel, Rafael Toledano, Ángel Aledo-Serrano, Irene García-Morales, Antonio Gil-Nagel
Epilepsy is a global disease with an unequal distribution. About 80% of the affected individuals reside in low and middle income countries. The incidence and prevalence of epilepsy in low income populations is higher than in the rest of the world, this is partly explained by some risk factors such as head trauma, perinatal injury and CNS infections, which are more common in poor regions, especially in rural areas. Epilepsy is considered a treatable condition with high rates of therapeutic response. About three fourths of patients achieve control of the disease with the use of antiepileptic drugs, however, despite this benign prognosis, over 75% of patients from low income populations do not receive treatment at all...
February 8, 2018: Seizure: the Journal of the British Epilepsy Association
https://www.readbyqxmd.com/read/29452785/the-risks-of-sarcopenia-falls-and-fractures-in-patients-with-type-2-diabetes-mellitus
#2
REVIEW
C Sarodnik, S P G Bours, N C Schaper, J P van den Bergh, T A C M van Geel
Fracture risk in patients with type 2 diabetes mellitus (T2DM) is increased, and the mechanism is multifactorial. Recent research on T2DM-induced bone fragility shows that bone mineral density (BMD) is often normal or even slightly elevated. However, bone turnover may be decreased and bone material and microstructural properties are altered, especially when microvascular complications are present. Besides bone fragility, extra-skeletal factors leading to an increased propensity to experience falls may also contribute to the increased fracture risk in T2DM, such as peripheral neuropathy, retinopathy and diabetes medication (e...
March 2018: Maturitas
https://www.readbyqxmd.com/read/29451418/patient-narratives-in-yelp-reviews-offer-insight-into-opioid-experiences-and-the-challenges-of-pain-management
#3
Rachel L Graves, Jesse Goldshear, Jeanmarie Perrone, Lyle Ungar, Elissa Klinger, Zachary F Meisel, Raina M Merchant
AIM: To characterize Yelp reviews about pain management and opioids. METHODS: We manually coded and applied natural language processing to 836 Yelp reviews of US hospitals mentioning an opioid medication. RESULTS: Yelp reviews by patients and caregivers describing experiences with pain management and opioids had lower ratings compared with other reviews. Negative descriptions of pain management and opioid-related experiences were more commonly described than positive experiences, and the number of themes they reflected was more diverse...
February 16, 2018: Pain Management
https://www.readbyqxmd.com/read/29450863/using-self-reported-patient-experiences-to-understand-patient-burden-learnings-from-digital-patient-communities-in-ankylosing-spondylitis
#4
Prashanth Sunkureddi, Dawn Gibson, Stephen Doogan, John Heid, Samir Benosman, Yujin Park
INTRODUCTION: Online communities contain a wealth of information containing unsolicited patient experiences that may go beyond what is captured by guided surveys or patient-reported outcome (PRO) instruments used in clinical settings. This study described patient experiences reported online to better understand the day-to-day disease burden of ankylosing spondylitis (AS). METHODS: Unguided, English-language patient narratives reported between January 2010 and May 2016 were collected from 52 online sources (e...
February 15, 2018: Advances in Therapy
https://www.readbyqxmd.com/read/29449558/interventions-to-enhance-the-adoption-of-asthma-self-management-behaviour-in-the-south-asian-and-african-american-population-a-systematic-review
#5
REVIEW
Salina Ahmed, Liz Steed, Katherine Harris, Stephanie J C Taylor, Hilary Pinnock
South Asian and other minority communities suffer poorer asthma outcomes, have a higher rate of unscheduled care and benefit less from most existing self-management interventions when compared to the majority population. Possible reasons for these differences include failure to implement asthma self-management strategies, or that strategies implemented were inappropriate for their needs; alternatively, they may relate to the minority and/or lower socioeconomic status of these populations. We aimed to synthesise evidence from randomised controlled trials for asthma self-management in South Asian and Black populations from different sociocultural contexts, and identify barriers and facilitators to implementing self-management...
February 15, 2018: NPJ Primary Care Respiratory Medicine
https://www.readbyqxmd.com/read/29449495/evaluation-of-self-reported-patient-experiences-insights-from-digital-patient-communities-in-psoriatic-arthritis
#6
Prashanth Sunkureddi, Stephen Doogan, John Heid, Samir Benosman, Alexis Ogdie, Layne Martin, Jacqueline B Palmer
OBJECTIVE: To evaluate the types of experiences and treatment access challenges of patients with psoriatic arthritis (PsA) using self-reported online narratives. METHODS: English-language patient narratives reported between January 2010 and May 2016 were collected from 31 online sources (general health social networking sites, disease-focused patient forums, treatment reviews, general health forums, mainstream social media sites) for analysis of functional impairment and 40 online sources for assessment of barriers to treatment...
February 15, 2018: Journal of Rheumatology
https://www.readbyqxmd.com/read/29448834/single-occupancy-patient-rooms-a-systematic-review-of-the-literature-since-2006
#7
Ellen Taylor, Alan J Card, Melissa Piatkowski
AIM: Our review evaluated both the effects of single-occupancy patient rooms (SPRs) on patient outcomes for hospitalized adults and user opinion related to SPRs. BACKGROUND: In 2006, a requirement for SPRs in hospitals was instituted in the United States. This systematic literature review evaluates research published since that time to evaluate the impact of SPRs. METHODS: The review adheres to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses statement...
January 1, 2018: HERD
https://www.readbyqxmd.com/read/29447188/comparing-deep-learning-and-concept-extraction-based-methods-for-patient-phenotyping-from-clinical-narratives
#8
Sebastian Gehrmann, Franck Dernoncourt, Yeran Li, Eric T Carlson, Joy T Wu, Jonathan Welt, John Foote, Edward T Moseley, David W Grant, Patrick D Tyler, Leo A Celi
In secondary analysis of electronic health records, a crucial task consists in correctly identifying the patient cohort under investigation. In many cases, the most valuable and relevant information for an accurate classification of medical conditions exist only in clinical narratives. Therefore, it is necessary to use natural language processing (NLP) techniques to extract and evaluate these narratives. The most commonly used approach to this problem relies on extracting a number of clinician-defined medical concepts from text and using machine learning techniques to identify whether a particular patient has a certain condition...
2018: PloS One
https://www.readbyqxmd.com/read/29446494/prepared-for-surgery-communication-in-nurses-pre-operative-consultations-with-patients-undergoing-surgery-for-colorectal-cancer-after-a-person-centred-intervention
#9
M Pettersson, J Öhlen, F Friberg, L C Hydén, C Wallengren, E Sarenmalm, E Carlsson
AIMS AND OBJECTIVES: To describe preoperative communication after a person-centred intervention in nurses' consultations with patients undergoing surgery for colorectal cancer. BACKGROUND: Patients all over the world scheduled for surgery are referred for preoperative consultations with health care professionals. The goal is to assess the risk for perioperative complications, improving quality of care and enabling patients to be prepared for surgery and recovery...
February 15, 2018: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29444536/optimizing-the-user-experience-identifying-opportunities-to-improve-use-of-an-inpatient-portal
#10
Daniel M Walker, Terri Menser, Po-Yin Yen, Ann Scheck McAlearney
BACKGROUND:  Patient portals specifically designed for the inpatient setting have significant potential to improve patient care. However, little is known about how the users of this technology, the patients, may interact with the inpatient portals. As a result, hospitals have limited ability to design approaches that support patient use of the portal. OBJECTIVES:  This study aims to evaluate the user experience associated with an inpatient portal. METHODS:  We used a Think-Aloud protocol to study user interactions with a commercially available inpatient portal-MyChart Bedside (MCB)...
January 2018: Applied Clinical Informatics
https://www.readbyqxmd.com/read/29440161/clinician-patient-and-general-public-beliefs-about-diagnostic-imaging-for-low-back-pain-protocol-for-a-qualitative-evidence-synthesis
#11
Adrian C Traeger, Benjamin J Reed, Denise A O'Connor, Tammy C Hoffmann, Gustavo C Machado, Carissa Bonner, Chris G Maher, Rachelle Buchbinder
INTRODUCTION: Little is known about how to reduce unnecessary imaging for low back pain. Understanding clinician, patient and general public beliefs about imaging is critical to developing strategies to reduce overuse. OBJECTIVE: To synthesise qualitative research that has explored clinician, patient or general public beliefs about diagnostic imaging for low back pain. METHODS AND ANALYSIS: We will perform a qualitative evidence synthesis of relevant qualitative research exploring clinician, patient and general public beliefs about diagnostic imaging for low back pain...
February 10, 2018: BMJ Open
https://www.readbyqxmd.com/read/29437492/the-experience-of-adolescents-and-young-adults-treated-for-cancer-in-an-adult-setting-a-review-of-the-literature
#12
Steve Marshall, Anne Grinyer, Mark Limmer
The purpose of this review is to explore the literature on the experience of adolescents and young adults (AYAs) having cancer treatment in an adult setting, rather than on a specialist adolescent cancer unit. The integrative review method was used to explore the current literature. Primary research on the topic was located systematically and then synthesized into a thematic narrative. The experience of AYAs undergoing treatment in an adult setting was generally negative. This can be attributed to three themes: feeling isolated in the adult setting; the lack of empathy from staff working in the adult setting; and the inappropriateness of the adult environment for this age group...
February 13, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29437211/an-observational-feasibility-study-of-a-new-anaesthesia-drug-storage-tray
#13
D S Almghairbi, L Sharp, R Griffiths, R Evley, S Gupta, I K Moppett
Drug errors in the anaesthetic domain remain a serious cause of iatrogenic harm. To help reduce this issue, we explored the potential safety impact of using a simple colour-coded tray for anaesthetic drug preparation and storage. Over a six-month period, three different trained researchers observed 30 cases at three NHS Trusts. Ten observations involved standard drug trays in 'normal' practice, and 20 observations, involved 'Rainbow trays' before and after their introduction. We conducted 20 semi-structured interviews immediately after completing the Rainbow tray observation with the anaesthetists involved...
March 2018: Anaesthesia
https://www.readbyqxmd.com/read/29436003/is-hospitalisation-necessary-a-survey-of-frail-older-persons-with-cognitive-impairment-transferred-from-nursing-homes-to-the-emergency-department
#14
Maria Björck, Helle Wijk
BACKGROUND: Providing care for frail older persons is complex and demanding, and the transfer of older persons with cognitive impairment to the emergency department is associated with a high risk of them developing complications. AIM: To survey the most ill and frail older persons with cognitive impairment who were transferred from nursing homes to the emergency department, considering reasons for referral, symptoms and actions taken at the hospital. METHOD: A retrospective descriptive survey, conducting a review of 588 referral notes and medical records, analysed and presented with descriptive statistics and visualised with typical case narratives...
February 12, 2018: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/29433988/effectiveness-and-harms-of-using-kidneys-with-small-renal-tumors-from-deceased-or-living-donors-as-a-source-of-renal-transplantation-a-systematic-review
#15
REVIEW
Vital Hevia, Rhana Hassan Zakri, Claire Fraser Taylor, Harman Maxim Bruins, Romain Boissier, Enrique Lledo, Heinz Regele, Klemens Budde, Arnaldo Figueiredo, Alberto Breda, Cathy Yuhong Yuan, Jonathon Olsburgh
CONTEXT: Kidney transplantation is the best treatment for patients with end-stage renal disease. Incidence of small renal masses (SRMs), which most frequently are renal cell carcinomas (RCCs), is highest in patients aged >60 yr. The increasing age of donors can lead to the diagnosis of a higher number of SRMs when assessing the patient for transplantation, and so can theoretically decrease the number of kidneys suitable for transplantation. Aiming to increase the pool of kidneys suitable for transplantation, a number of studies have reported their experience using kidneys with SRMs for transplantation...
February 9, 2018: European Urology Focus
https://www.readbyqxmd.com/read/29433012/talking-about-male-body-based-contraceptives-the-counseling-visit-and-the-feminization-of-contraception
#16
Katrina Kimport
In developed countries, women bear the primary, and sometimes exclusive, responsibility for preventing pregnancy in heterosexual sexual relations. This unequal burden is not an intrinsic fact; it is the consequence of broad social narratives and interpersonal negotiations. The contraceptive counseling visit is increasingly recognized as a site of the discursive production of normative ideas about reproduction, suggesting that clinicians themselves may contribute to the assignment of responsibility for contraceptive labor to women (i...
February 2, 2018: Social Science & Medicine
https://www.readbyqxmd.com/read/29431235/barriers-to-treatment-adherence-for-individuals-with-latent-tuberculosis-infection-a-systematic-search-and-narrative-synthesis-of-the-literature
#17
REVIEW
Yisi Liu, Stephen Birch, K Bruce Newbold, Beverley M Essue
OBJECTIVES: We investigated the rates of initiation and completion of treatment for latent TB infection (LTBI), factors explaining nonadherence and interventions to improve treatment adherence in countries with low TB incidence. DESIGN: A systematic search was performed in PubMed and Embase. All included articles were assessed for risk of bias. A narrative synthesis of the results was conducted. RESULTS: There were 54 studies included in this review...
February 12, 2018: International Journal of Health Planning and Management
https://www.readbyqxmd.com/read/29430809/morbidity-and-mortality-meetings-gold-silver-or-bronze
#18
REVIEW
Thomas D Vreugdenburg, Deanne Forel, Nicholas Marlow, Guy J Maddern, John Quinn, Richard Lander, Stephen Tobin
BACKGROUND: Morbidity and mortality (M&M) meetings contribute to surgical education and improvements in patient care through the review of surgical outcomes; however, they often lack defined structure, objectives and resource support. The aim of this study was to investigate the factors that impact the effective conduct of M&M meetings. METHODS: We conducted a rapid systematic literature review. Three biomedical databases (PubMed, the Cochrane Library and the University of York Centre for Reviews and Dissemination), clinical practice guideline clearinghouses and grey literature sources were searched from May 2009 to September 2016...
February 11, 2018: ANZ Journal of Surgery
https://www.readbyqxmd.com/read/29430679/seeking-certainty-through-narrative-closure-men-s-stories-of-prostate-cancer-treatments-in-a-state-of-liminality
#19
Ilkka Pietilä, Raisa Jurva, Hanna Ojala, Teuvo Tammela
Radical treatments of prostate cancer often lead to a pervasive liminal state that is characterised by multiple uncertainties that relate both to a possible recurrence of cancer and recovery from side effects, such as erectile and urinary dysfunctions. Liminality can make it difficult for cancer patients to narrate their experiences, as their stories lack a definite ending. After interviews with 22 Finnish men who had undergone radical prostatectomy, we analysed how men produce closure in their illness narratives...
February 11, 2018: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29430200/exploring-sleep-disorders-in-patients-with-chronic-kidney-disease
#20
REVIEW
Gaurav Nigam, Macario Camacho, Edward T Chang, Muhammad Riaz
Kidney disorders have been associated with a variety of sleep-related disorders. Therefore, researchers are placing greater emphasis on finding the role of chronic kidney disease (CKD) in the development of obstructive sleep apnea and restless legs syndrome. Unfortunately, the presence of other sleep-related disorders with CKDs and non-CKDs has not been investigated with the same clinical rigor. Recent studies have revealed that myriad of sleep disorders are associated with CKDs. Furthermore, there are a few non-CKD-related disorders that are associated with sleep disorders...
2018: Nature and Science of Sleep
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