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"Community-based research"

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https://www.readbyqxmd.com/read/29218723/how-do-our-values-inform-ethical-research-a-narrative-of-recognizing-colonizing-practices
#1
Peta Dzidic, Brian Bishop
How do you reconcile tensions between ethical research practice, personal values, and disciplinary values? This article focuses on an ethical challenge involving the engagement of rural Indigenous community members that emerged during my PhD fieldwork. The narrative illustrates the necessity to engage in critical reflexive research practice, a process which saw me respond to my own feelings of "wrong" and "right," contemplate a distinction between procedural ethics and virtue ethics in community-based research, explore colonizing research practices, and endeavor to reconcile an instance where the values of community psychology appeared in contest...
December 7, 2017: American Journal of Community Psychology
https://www.readbyqxmd.com/read/29145882/what-goes-around-the-process-of-building-a-community-based-harm-reduction-research-project
#2
Chelsea Jalloh, Shohan Illsley, John Wylie, Paula Migliardi, Ethan West, Debbie Stewart, Javier Mignone
BACKGROUND: Often, research takes place on underserved populations rather than with underserved populations. This approach can further isolate and stigmatize groups that are already made marginalized. What Goes Around is a community-based research project that was led by community members themselves (Peers). CASE PRESENTATION: This research aimed to implement a community-based research methodology grounded in the leadership and growing research capacity of community researchers and to investigate a topic which community members identified as important and meaningful...
November 16, 2017: Harm Reduction Journal
https://www.readbyqxmd.com/read/29056624/community-health-warriors-marshallese-community-health-workers-perceptions-and-experiences-with-cbpr-and-community-engagement
#3
Rachel S Purvis, Williamina Ioanna Bing, Christopher J Jacob, Sharlynn Lang, Sammie Mamis, Mandy Ritok, Jellesen Rubon-Chutaro, Pearl Anna McElfish
Our manuscript highlights the viewpoints and reflections of the native Marshallese community health workers (CHWs) engaged in research with the local Marshallese community in Northwest Arkansas. In particular, this paper documents the vital role Marshallese CHWs play in the success of programs and research efforts. The negative health effects of nuclear testing in the Marshall Islands has been passed down through many generations, along with unfavorable attitudes toward the U.S. government and researchers. However, the community-based participatory research (CBPR) approach used by the University of Arkansas for Medical Sciences (UAMS) has allowed the native Marshallese CHWs to become advocates for the Marshallese community...
2017: Progress in Community Health Partnerships: Research, Education, and Action
https://www.readbyqxmd.com/read/29056615/enrolling-family-participants-in-a-statewide-implementation-trial-of-an-evidence-based-treatment
#4
Carrie B Jackson, Fiona L Macphee, Leah J Hunter, Amy D Herschell, Mary J Carter
BACKGROUND: Community-based research with families is subject to unique challenges in recruiting and enrolling participants, particularly when researchers do not have face-to-face contact with participants. OBJECTIVES: To identify strategies that overcome challenges associated with the recruitment and enrollment of family participants from community behavioral health settings into a research study. METHODS: We used a case study design to describe lessons learned during the recruitment and enrollment phases of a large-scale study of the implementation of an evidence-based treatment (EBT) across the Commonwealth of Pennsylvania...
2017: Progress in Community Health Partnerships: Research, Education, and Action
https://www.readbyqxmd.com/read/29034670/-community-based-research-in-therapeutic-patient-education-practices-and-contributions-a-literature-review
#5
Olivia Gross, Vincent de Andrade, Rémi Gagnayre
INTRODUCTION: Community-based research (CBR) in health involves both researchers and people concerned by the results of the research. It aims to empower populations, using their exposure to the phenomenon being studied as a starting point. The use of CBR in the field of therapeutic patient education (TPE) is of interest, as the two share such characteristics as the desire to foster self-reliance and participation and a culture of interdisciplinarity. AIM: To characterize CBR in the therapeutic patient education field...
October 2, 2017: Santé Publique: Revue Multidisciplinaire Pour la Recherche et L'action
https://www.readbyqxmd.com/read/29034669/-the-seintinelles-an-innovative-approach-to-promoting-community-based-research-and-sustaining-health-democracy-in-oncology
#6
Charlotte Bauquier, Myriam Pannard, Marie Préau
Community-based research drives innovation in major fields of public health, HIV/AIDS being the most emblematic example (Demange, Henry & Préau, 2012), and hepatitis. However, this type of research appears to be more difficult to develop in certain specific diseases, such as cancer (Shankand, Saïas & Friboulet, 2009). This article proposes various approaches concerning current citizen mobilization in relation to cancer research, including potential new levers to the development of participative and community-based research based on the recent creation of the Seintinelles platform, designed to federate researchers and citizens concerned by the problem of cancer...
October 2, 2017: Santé Publique: Revue Multidisciplinaire Pour la Recherche et L'action
https://www.readbyqxmd.com/read/29033613/let-us-fight-and-support-one-another-adolescent-girls-and-young-women-on-contributors-and-solutions-to-hiv-risk-in-zambia
#7
Stefani A Butts, Lauren E Parmley, Maria L Alcaide, Violeta J Rodriguez, Annette Kayukwa, Ndashi Chitalu, Stephen M Weiss, Deborah L Jones
In Zambia, adolescent girls and young women (AGYW) are disproportionately affected by human immunodeficiency virus (HIV), social, cultural and economic factors making them particularly vulnerable. This study was designed to understand the context in which AGYW are at risk and to identify perceived drivers of the epidemic and potential strategies to reduce HIV risk. Focus group discussions were conducted with AGYW in Zambian districts with the highest HIV prevalence from February through August 2016. The focus group guide addressed HIV risk factors and strategies for HIV prevention in AGYW...
2017: International Journal of Women's Health
https://www.readbyqxmd.com/read/29025808/learning-the-truth-first-hand-about-reconciliation-community-based-research-and-first-nations-health-in-rural-manitoba
#8
Sarah de Leeuw
No abstract text is available yet for this article.
October 2017: Canadian Family Physician Médecin de Famille Canadien
https://www.readbyqxmd.com/read/29017335/oxytocin-levels-in-community-collected-saliva-samples-transported-by-dry-versus-wet-ice
#9
Lois C Howland, Rita H Pickler, Brent A Sullenbarger, Cynthia D Connelly
Oxytocin (OT), a neuropeptide produced primarily in the hypothalamus, is associated with both critical physiological and psychological processes, particularly stress and feelings of affiliation. Increasingly, researchers are seeking ways to reliably incorporate OT as an outcome biomarker in clinical research. Previously, OT levels were measured in plasma or urine. Recently, researchers have measured this biomarker in saliva, particularly when conducting research in clinical and community settings. In spite of increased interest in the use of salivary OT in clinical research, procedures for handling, transport, and analysis of specimens vary...
January 1, 2017: Biological Research for Nursing
https://www.readbyqxmd.com/read/28992828/differences-in-sleep-patterns-and-problems-by-race-in-a-clinical-sample-of-black-and-white-preschoolers
#10
Ariel A Williamson, Sonia L Rubens, Kristina E Patrick, Melisa Moore, Jodi A Mindell
STUDY OBJECTIVES: Community-based research indicates that Black preschoolers tend to have more bedtime difficulties and are at higher risk for obstructive sleep apnea (OSA) compared to White preschoolers. This study examined differences in sleep patterns and problems by race among a clinical sample of Black and White preschoolers at an outpatient sleep clinic. METHODS: Data were collected from electronic medical records for 125 children ages 2-5 years (mean = 3...
November 15, 2017: Journal of Clinical Sleep Medicine: JCSM: Official Publication of the American Academy of Sleep Medicine
https://www.readbyqxmd.com/read/28957412/cohort-profile-the-canadian-hiv-women-s-sexual-and-reproductive-health-cohort-study-chiwos
#11
Mona Loutfy, Alexandra de Pokomandy, V Logan Kennedy, Allison Carter, Nadia O'Brien, Karène Proulx-Boucher, Erin Ding, Johanna Lewis, Valerie Nicholson, Kerrigan Beaver, Saara Greene, Wangari Tharao, Anita Benoit, Danièle Dubuc, Jamie Thomas-Pavanel, Paul Sereda, Shahab Jabbari, Jayson H Shurgold, Guillaume Colley, Robert S Hogg, Angela Kaida
Globally, women are at increased vulnerability to HIV due to biological, social, structural, and political reasons. Women living with HIV also experience unique issues related to their medical and social healthcare, which makes a clinical care model specific to their needs worthy of exploration. Furthermore, there is a dearth of research specific to women living with HIV. Research for this population has often been narrowly focused on pregnancy-related issues without considering their complex structural inequalities, social roles, and healthcare and biological needs...
2017: PloS One
https://www.readbyqxmd.com/read/28903081/ethical-practices-in-community-based-research-in-non-suicidal-self-injury-a-systematic-review
#12
REVIEW
Nupur Singhal, Poornima Bhola
BACKGROUND: The growing interest in community-based research on non-suicidal self-injury (NSSI) reflects the high prevalence rates found among vulnerable adolescents and young adults. A significant concern in research with vulnerable populations, and on sensitive topics, is the development of an ethical framework that protects the needs and rights of the participants while responding to researchers' goals and limitations and the broader clinical and public health concerns. AIM: The aim of the present study was to review the ethical practices followed in community-based research on NSSI...
September 1, 2017: Asian Journal of Psychiatry
https://www.readbyqxmd.com/read/28889041/building-a-community-based-culture-of-evaluation
#13
Rich Janzen, Joanna Ochocka, Leanne Turner, Tabitha Cook, Michelle Franklin, Debbie Deichert
In this article we argue for a community-based approach as a means of promoting a culture of evaluation. We do this by linking two bodies of knowledge - the 70-year theoretical tradition of community-based research and the trans-discipline of program evaluation - that are seldom intersected within the evaluation capacity building literature. We use the three hallmarks of a community-based research approach (community-determined; equitable participation; action and change) as a conceptual lens to reflect on a case example of an evaluation capacity building program led by the Ontario Brian Institute...
September 7, 2017: Evaluation and Program Planning
https://www.readbyqxmd.com/read/28838570/-dis-integrated-care-barriers-to-health-care-utilization-for-trans-women-living-with-hiv
#14
Lauren Munro, Zack Marshall, Greta Bauer, Rebecca Hammond, Caleb Nault, Robb Travers
Transgender (trans) women have been particularly impacted by HIV. To seek insights into the dynamics of health service utilization, interviews were conducted with trans women living with HIV (n = 14) as part of the Trans PULSE community-based research project in Ontario, Canada. Service providers (n = 10) were also interviewed to provide additional details about communication between trans women, social service providers, and clinicians. Results highlight how both problematic interactions with individuals and health systems navigation challenges affect access to services and impede the development of trans-specific HIV supports...
September 2017: Journal of the Association of Nurses in AIDS Care: JANAC
https://www.readbyqxmd.com/read/28820641/identifying-communication-barriers-to-colorectal-cancer-screening-adherence-among-appalachian-kentuckians
#15
Audrey Smith Bachman, Elisia L Cohen, Tom Collins, Jennifer Hatcher, Richard Crosby, Robin C Vanderpool
Utilizing data from 40 in-depth interviews, this article identifies both barriers and facilitators to colorectal screening guideline adherence among Appalachian Kentucky adults recruited through a community-based research network. Key findings identify (a) varying levels of knowledge about screening guidelines, (b) reticence to engage in screening processes, and (c) nuanced communication with healthcare providers and family members regarding screening adherence. What participants knew about the screening process was often derived from personal stories or recalled stories from family members about their screening experiences...
August 18, 2017: Health Communication
https://www.readbyqxmd.com/read/28759329/health-literacy-and-informed-consent-materials-designed-for-documentation-not-comprehension-of-health-research
#16
Vanessa Watts Simonds, Eva Marie Garroutte, Dedra Buchwald
Minority populations with health disparities are underrepresented in research designed to address those disparities. One way to improve minority representation is to use community-based participatory methods to overcome barriers to research participation, beginning with the informed consent process. Relevant barriers to participation include lack of individual or community awareness or acceptance of research processes and purposes. These barriers are associated with limited health literacy. To inform recommendations for an improved consent process, we examined 97 consent documents and 10 associated Institutional Review Board websites to determine their health literacy demands and degree of adherence to principles of community-based research...
July 31, 2017: Journal of Health Communication
https://www.readbyqxmd.com/read/28713800/strategies-for-meaningful-engagement-between-community-based-health-researchers-and-first-nations-participants
#17
Jaime Cidro, Marion Maar, Sabrina Peressini, Robert J Schroth, John Broughton, Lisa Jamieson, Herenia P Lawrence
The Baby Teeth Talk Study (BTT) is a partnership-based research project looking at interventions to prevent early childhood caries (ECC) in First Nations populations in Canada. Community-based researchers (CBRs) conducted preventive and behavioral interventions that targeted expectant mothers and their newborns, over a 3-year period. The work of the CBRs requires a great deal of training and skills to administer the interventions. It also requires a broad set of strategies to meaningfully engage participants to make health-promoting changes in their behavior to prevent ECC in their children...
2017: Frontiers in Public Health
https://www.readbyqxmd.com/read/28706777/using-community-based-participatory-research-and-organizational-diagnosis-to-characterize-relationships-between-community-leaders-and-academic-researchers
#18
Karen H Wang, Natasha J Ray, David N Berg, Ann T Greene, Georgina Lucas, Kenn Harris, Amy Carroll-Scott, Barbara Tinney, Marjorie S Rosenthal
Sustaining collaborations between community-based organization leaders and academic researchers in community-engaged research (CEnR) in the service of decreasing health inequities necessitates understanding the collaborations from an inter-organizational perspective. We assessed the perspectives of community leaders and university-based researchers conducting community-engaged research in a medium-sized city with a history of community-university tension. Our research team, included experts in CEnR and organizational theory, used qualitative methods and purposeful, snowball sampling to recruit local participants and performed key informant interviews from July 2011-May 2012...
September 2017: Preventive Medicine Reports
https://www.readbyqxmd.com/read/28673047/assessing-community-health-an-innovative-tool-for-measuring-height-and-length
#19
Ashley Bauman, Kacey Ernst, Mary Hayden, Denise J Roe, Rachel Murray, Maurice Agawo, Stephen Munga, Erik Schmahl, Douglas Taren
Anthropometric measurements, including height and length, are routinely needed for health research worldwide. Measurement boards are the current gold standard for obtaining the height and length of children. In community-based research, however, the size and weight of the measurement boards make them difficult and cumbersome to carry in the field. In addition, children and infants may express an unwillingness to be placed onto the measurement board. Electronic measuring tools commonly used in industry and contracting work are precise and portable...
June 30, 2017: Journal of Tropical Pediatrics
https://www.readbyqxmd.com/read/28594584/attribution-through-the-layperson-s-lens-development-and-preliminary-validation-of-an-inclusive-international-measure-of-beliefs-about-the-causes-of-mental-illness
#20
Brandon A Knettel
Attributions, or beliefs about the causes of mental illness, have traditionally been dichotomized based on their locus, controllability, specificity, and stability. However, scholars have introduced an alternative lay beliefs model identifying attributions related to specific biological, social, and spiritual attributions. This research describes the potential benefits of this alternative model and outlines the validation of a comprehensive, international measure of lay beliefs, the Mental Illness Attribution Questionnaire (MIAQ)...
June 8, 2017: Journal of Personality Assessment
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