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"Community-based research"

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https://www.readbyqxmd.com/read/29034670/-community-based-research-in-therapeutic-patient-education-practices-and-contributions-a-literature-review
#1
Olivia Gross, Vincent de Andrade, Rémi Gagnayre
INTRODUCTION: Community-based research (CBR) in health involves both researchers and people concerned by the results of the research. It aims to empower populations, using their exposure to the phenomenon being studied as a starting point. The use of CBR in the field of therapeutic patient education (TPE) is of interest, as the two share such characteristics as the desire to foster self-reliance and participation and a culture of interdisciplinarity. AIM: To characterize CBR in the therapeutic patient education field...
October 2, 2017: Santé Publique: Revue Multidisciplinaire Pour la Recherche et L'action
https://www.readbyqxmd.com/read/29034669/-the-seintinelles-an-innovative-approach-to-promoting-community-based-research-and-sustaining-health-democracy-in-oncology
#2
Charlotte Bauquier, Myriam Pannard, Marie Préau
Community-based research drives innovation in major fields of public health, HIV/AIDS being the most emblematic example (Demange, Henry & Préau, 2012), and hepatitis. However, this type of research appears to be more difficult to develop in certain specific diseases, such as cancer (Shankand, Saïas & Friboulet, 2009). This article proposes various approaches concerning current citizen mobilization in relation to cancer research, including potential new levers to the development of participative and community-based research based on the recent creation of the Seintinelles platform, designed to federate researchers and citizens concerned by the problem of cancer...
October 2, 2017: Santé Publique: Revue Multidisciplinaire Pour la Recherche et L'action
https://www.readbyqxmd.com/read/29033613/let-us-fight-and-support-one-another-adolescent-girls-and-young-women-on-contributors-and-solutions-to-hiv-risk-in-zambia
#3
Stefani A Butts, Lauren E Parmley, Maria L Alcaide, Violeta J Rodriguez, Annette Kayukwa, Ndashi Chitalu, Stephen M Weiss, Deborah L Jones
In Zambia, adolescent girls and young women (AGYW) are disproportionately affected by human immunodeficiency virus (HIV), social, cultural and economic factors making them particularly vulnerable. This study was designed to understand the context in which AGYW are at risk and to identify perceived drivers of the epidemic and potential strategies to reduce HIV risk. Focus group discussions were conducted with AGYW in Zambian districts with the highest HIV prevalence from February through August 2016. The focus group guide addressed HIV risk factors and strategies for HIV prevention in AGYW...
2017: International Journal of Women's Health
https://www.readbyqxmd.com/read/29025808/learning-the-truth-first-hand-about-reconciliation-community-based-research-and-first-nations-health-in-rural-manitoba
#4
Sarah de Leeuw
No abstract text is available yet for this article.
October 2017: Canadian Family Physician Médecin de Famille Canadien
https://www.readbyqxmd.com/read/29017335/oxytocin-levels-in-community-collected-saliva-samples-transported-by-dry-versus-wet-ice
#5
Lois C Howland, Rita H Pickler, Brent A Sullenbarger, Cynthia D Connelly
Oxytocin (OT), a neuropeptide produced primarily in the hypothalamus, is associated with both critical physiological and psychological processes, particularly stress and feelings of affiliation. Increasingly, researchers are seeking ways to reliably incorporate OT as an outcome biomarker in clinical research. Previously, OT levels were measured in plasma or urine. Recently, researchers have measured this biomarker in saliva, particularly when conducting research in clinical and community settings. In spite of increased interest in the use of salivary OT in clinical research, procedures for handling, transport, and analysis of specimens vary...
January 1, 2017: Biological Research for Nursing
https://www.readbyqxmd.com/read/28992828/differences-in-sleep-patterns-and-problems-by-race-in-a-clinical-sample-of-black-and-white-preschoolers
#6
Ariel A Williamson, Sonia L Rubens, Kristina E Patrick, Melisa Moore, Jodi A Mindell
STUDY OBJECTIVES: Community-based research indicates that Black preschoolers tend to have more bedtime difficulties and are at higher risk for obstructive sleep apnea (OSA) compared to White preschoolers. This study examined differences in sleep patterns and problems by race among a clinical sample of Black and White preschoolers at an outpatient sleep clinic. METHODS: Data were collected from electronic medical records for 125 children ages 2-5 years (mean = 3...
October 4, 2017: Journal of Clinical Sleep Medicine: JCSM: Official Publication of the American Academy of Sleep Medicine
https://www.readbyqxmd.com/read/28957412/cohort-profile-the-canadian-hiv-women-s-sexual-and-reproductive-health-cohort-study-chiwos
#7
Mona Loutfy, Alexandra de Pokomandy, V Logan Kennedy, Allison Carter, Nadia O'Brien, Karène Proulx-Boucher, Erin Ding, Johanna Lewis, Valerie Nicholson, Kerrigan Beaver, Saara Greene, Wangari Tharao, Anita Benoit, Danièle Dubuc, Jamie Thomas-Pavanel, Paul Sereda, Shahab Jabbari, Jayson H Shurgold, Guillaume Colley, Robert S Hogg, Angela Kaida
Globally, women are at increased vulnerability to HIV due to biological, social, structural, and political reasons. Women living with HIV also experience unique issues related to their medical and social healthcare, which makes a clinical care model specific to their needs worthy of exploration. Furthermore, there is a dearth of research specific to women living with HIV. Research for this population has often been narrowly focused on pregnancy-related issues without considering their complex structural inequalities, social roles, and healthcare and biological needs...
2017: PloS One
https://www.readbyqxmd.com/read/28903081/ethical-practices-in-community-based-research-in-non-suicidal-self-injury-a-systematic-review
#8
REVIEW
Nupur Singhal, Poornima Bhola
BACKGROUND: The growing interest in community-based research on non-suicidal self-injury (NSSI) reflects the high prevalence rates found among vulnerable adolescents and young adults. A significant concern in research with vulnerable populations, and on sensitive topics, is the development of an ethical framework that protects the needs and rights of the participants while responding to researchers' goals and limitations and the broader clinical and public health concerns. AIM: The aim of the present study was to review the ethical practices followed in community-based research on NSSI...
September 1, 2017: Asian Journal of Psychiatry
https://www.readbyqxmd.com/read/28889041/building-a-community-based-culture-of-evaluation
#9
Rich Janzen, Joanna Ochocka, Leanne Turner, Tabitha Cook, Michelle Franklin, Debbie Deichert
In this article we argue for a community-based approach as a means of promoting a culture of evaluation. We do this by linking two bodies of knowledge - the 70-year theoretical tradition of community-based research and the trans-discipline of program evaluation - that are seldom intersected within the evaluation capacity building literature. We use the three hallmarks of a community-based research approach (community-determined; equitable participation; action and change) as a conceptual lens to reflect on a case example of an evaluation capacity building program led by the Ontario Brian Institute...
September 7, 2017: Evaluation and Program Planning
https://www.readbyqxmd.com/read/28838570/-dis-integrated-care-barriers-to-health-care-utilization-for-trans-women-living-with-hiv
#10
Lauren Munro, Zack Marshall, Greta Bauer, Rebecca Hammond, Caleb Nault, Robb Travers
Transgender (trans) women have been particularly impacted by HIV. To seek insights into the dynamics of health service utilization, interviews were conducted with trans women living with HIV (n = 14) as part of the Trans PULSE community-based research project in Ontario, Canada. Service providers (n = 10) were also interviewed to provide additional details about communication between trans women, social service providers, and clinicians. Results highlight how both problematic interactions with individuals and health systems navigation challenges affect access to services and impede the development of trans-specific HIV supports...
September 2017: Journal of the Association of Nurses in AIDS Care: JANAC
https://www.readbyqxmd.com/read/28820641/identifying-communication-barriers-to-colorectal-cancer-screening-adherence-among-appalachian-kentuckians
#11
Audrey Smith Bachman, Elisia L Cohen, Tom Collins, Jennifer Hatcher, Richard Crosby, Robin C Vanderpool
Utilizing data from 40 in-depth interviews, this article identifies both barriers and facilitators to colorectal screening guideline adherence among Appalachian Kentucky adults recruited through a community-based research network. Key findings identify (a) varying levels of knowledge about screening guidelines, (b) reticence to engage in screening processes, and (c) nuanced communication with healthcare providers and family members regarding screening adherence. What participants knew about the screening process was often derived from personal stories or recalled stories from family members about their screening experiences...
August 18, 2017: Health Communication
https://www.readbyqxmd.com/read/28759329/health-literacy-and-informed-consent-materials-designed-for-documentation-not-comprehension-of-health-research
#12
Vanessa Watts Simonds, Eva Marie Garroutte, Dedra Buchwald
Minority populations with health disparities are underrepresented in research designed to address those disparities. One way to improve minority representation is to use community-based participatory methods to overcome barriers to research participation, beginning with the informed consent process. Relevant barriers to participation include lack of individual or community awareness or acceptance of research processes and purposes. These barriers are associated with limited health literacy. To inform recommendations for an improved consent process, we examined 97 consent documents and 10 associated Institutional Review Board websites to determine their health literacy demands and degree of adherence to principles of community-based research...
July 31, 2017: Journal of Health Communication
https://www.readbyqxmd.com/read/28713800/strategies-for-meaningful-engagement-between-community-based-health-researchers-and-first-nations-participants
#13
Jaime Cidro, Marion Maar, Sabrina Peressini, Robert J Schroth, John Broughton, Lisa Jamieson, Herenia P Lawrence
The Baby Teeth Talk Study (BTT) is a partnership-based research project looking at interventions to prevent early childhood caries (ECC) in First Nations populations in Canada. Community-based researchers (CBRs) conducted preventive and behavioral interventions that targeted expectant mothers and their newborns, over a 3-year period. The work of the CBRs requires a great deal of training and skills to administer the interventions. It also requires a broad set of strategies to meaningfully engage participants to make health-promoting changes in their behavior to prevent ECC in their children...
2017: Frontiers in Public Health
https://www.readbyqxmd.com/read/28706777/using-community-based-participatory-research-and-organizational-diagnosis-to-characterize-relationships-between-community-leaders-and-academic-researchers
#14
Karen H Wang, Natasha J Ray, David N Berg, Ann T Greene, Georgina Lucas, Kenn Harris, Amy Carroll-Scott, Barbara Tinney, Marjorie S Rosenthal
Sustaining collaborations between community-based organization leaders and academic researchers in community-engaged research (CEnR) in the service of decreasing health inequities necessitates understanding the collaborations from an inter-organizational perspective. We assessed the perspectives of community leaders and university-based researchers conducting community-engaged research in a medium-sized city with a history of community-university tension. Our research team, included experts in CEnR and organizational theory, used qualitative methods and purposeful, snowball sampling to recruit local participants and performed key informant interviews from July 2011-May 2012...
September 2017: Preventive Medicine Reports
https://www.readbyqxmd.com/read/28673047/assessing-community-health-an-innovative-tool-for-measuring-height-and-length
#15
Ashley Bauman, Kacey Ernst, Mary Hayden, Denise J Roe, Rachel Murray, Maurice Agawo, Stephen Munga, Erik Schmahl, Douglas Taren
Anthropometric measurements, including height and length, are routinely needed for health research worldwide. Measurement boards are the current gold standard for obtaining the height and length of children. In community-based research, however, the size and weight of the measurement boards make them difficult and cumbersome to carry in the field. In addition, children and infants may express an unwillingness to be placed onto the measurement board. Electronic measuring tools commonly used in industry and contracting work are precise and portable...
June 30, 2017: Journal of Tropical Pediatrics
https://www.readbyqxmd.com/read/28594584/attribution-through-the-layperson-s-lens-development-and-preliminary-validation-of-an-inclusive-international-measure-of-beliefs-about-the-causes-of-mental-illness
#16
Brandon A Knettel
Attributions, or beliefs about the causes of mental illness, have traditionally been dichotomized based on their locus, controllability, specificity, and stability. However, scholars have introduced an alternative lay beliefs model identifying attributions related to specific biological, social, and spiritual attributions. This research describes the potential benefits of this alternative model and outlines the validation of a comprehensive, international measure of lay beliefs, the Mental Illness Attribution Questionnaire (MIAQ)...
June 8, 2017: Journal of Personality Assessment
https://www.readbyqxmd.com/read/28578606/community-health-workers-and-use-of-mhealth-improving-identification-of-pregnancy-complications-and-access-to-care-in-the-dominican-republic
#17
Susan Bonnell, Anne Griggs, Gloria Avila, Jonathan Mack, Ruth A Bush, Julie Vignato, Cynthia D Connelly
This article presents the feasibility and acceptability of using mobile health technology by community health workers (CHWs) in San Juan Province, Dominican Republic, to improve identification of pregnancy complications and access to care for pregnant women. Although most women in the Dominican Republic receive four antenatal care visits, poor women and adolescents in remote areas are more likely to have only one initial prenatal visit to verify the pregnancy. This community-based research began when community leaders raised concern about the numbers of their mothers who died in childbirth annually; San Juan's maternal mortality rate is 144/100,000 compared to the Caribbean rate of 85/100,000...
June 1, 2017: Health Promotion Practice
https://www.readbyqxmd.com/read/28521781/telling-our-stories-heroin-assisted-treatment-and-snap-activism-in-the-downtown-eastside-of-vancouver
#18
Susan Boyd, Dave Murray, Donald MacPherson
BACKGROUND: This article highlights the experiences of a peer-run group, SALOME/NAOMI Association of Patients (SNAP), that meets weekly in the Downtown Eastside of Vancouver, British Columbia, Canada. SNAP is a unique independent peer- run drug user group that formed in 2011 following Canada's first heroin-assisted treatment trial (HAT), North America Opiate Medication Initiative (NAOMI). SNAP's members are now made up of former research participants who participated in two heroin-assisted trials in Vancouver...
May 18, 2017: Harm Reduction Journal
https://www.readbyqxmd.com/read/28517968/a-community-based-qualitative-study-of-intergenerational-resilience-with-palestinian-refugee-families-facing-structural-violence-and-historical-trauma
#19
Devin G Atallah
The purpose of this study was to explore resilience processes in Palestinian refugee families living under Israeli occupation for multiple generations. Qualitative methods, critical postcolonial theories, and community-based research approaches were used to examine intergenerational protective practices and to contribute to reconceptualizations of resilience from indigenous perspectives. First, the researcher developed a collaborative partnership with a nongovernmental organization (NGO) in a UN refugee camp in the occupied West Bank...
January 1, 2017: Transcultural Psychiatry
https://www.readbyqxmd.com/read/28435745/a-consult-service-to-support-and-promote-community-based-research-tracking-and-evaluating-a-community-based-research-consult-service
#20
Clara M Pelfrey, Katrice D Cain, Mary Ellen Lawless, Earl Pike, Ashwini R Sehgal
PURPOSE: This study describes the design, operation and evaluation of a community-based research (CBR) consult service within the setting of a Clinical and Translational Science Award (CTSA) institution. To our knowledge, there are no published evaluations of a CBR consult service at a CTSA hub. METHODS: A community-based research Consult Service was created to support faculty, health care providers/research coordinators, trainees, community-based organizations and community members...
February 2017: Journal of clinical and translational science
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