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https://www.readbyqxmd.com/read/29229172/self-management-and-health-care-transition-among-adolescents-and-young-adults-with-chronic-kidney-disease-medical-and-psychosocial-considerations
#1
REVIEW
Maria E Díaz-González de Ferris, Marta Del Villar-Vilchis, Ricardo Guerrero, Victor M Barajas-Valencia, Emily B Vander-Schaaf, Alexandre de Pomposo, Mara Medeiros, Eniko Rak, Guillermo Cantu-Quintanilla, Rupesh Raina, Ana C Alvarez-Elias
Health care transition (HCT) is a process that requires preparation as a continuum from pediatric- to adult-focused services. For adolescents and young adults with chronic or ESRD, this process can be prolonged due to their physical, psychological, family, or ecological factors. HCT preparation is a matter of patient safety and patient rights as the consequences of poor preparation at the time of transfer to adult-focused services are great, including rejection of organs, disease relapse, or even death. We present a case to illustrate important points of HCT preparation, with suggestions for intervention by the interdisciplinary team members who serve (and will serve) these survivors of pediatric-onset health conditions...
November 2017: Advances in Chronic Kidney Disease
https://www.readbyqxmd.com/read/29222289/what-is-the-role-of-screening-for-pulmonary-hypertension-in-adults-and-children-with-sickle-cell-disease
#2
REVIEW
Shaina M Willen, Mark T Gladwin
Patient case: An 18-year-old male patient with homozygous hemoglobin SS disease was evaluated for progressive dyspnea and elevated tricuspid regurgitant jet velocity (TRV) on echocardiography. The patient's case is described in detail in Lancet1 He had been treated with regular transfusions since childhood for stroke, had rare episodes of vaso-occlusive pain episodes, and did not take narcotic pain medications. He presented with progressive severe dyspnea on exertion and lower extremity edema. His laboratory tests were notable for a total hemoglobin level of 11...
December 8, 2017: Hematology—the Education Program of the American Society of Hematology
https://www.readbyqxmd.com/read/29217519/conscientious-objection-in-sexual-and-reproductive-health-a-guideline-that-respects-diverse-views-but-emphasises-patients-rights
#3
EDITORIAL
Asha Kasliwal, Jane Hatfield
No abstract text is available yet for this article.
December 7, 2017: Journal of Family Planning and Reproductive Health Care
https://www.readbyqxmd.com/read/29210251/lightning-or-lightning-bug-the-role-of-the-language-gap-and-the-access-to-proper-information-on-entitlements-in-cross-border-patient-mobility
#4
Gabriella Berki
The language barrier and the lack of reliable information were identified as major practical obstacles of European patient mobility. Patients are highly concerned about the ability to communicate with their doctors when obtaining healthcare in a country where they do not speak the local language, as well as they find it complicated to gather all the necessary information about an unfamiliar healthcare system or about their cross-border healthcare entitlements conferred on them by the Union legislation. In a multilingual and patient-friendly European Union these issues must be tackled in order to ensure effective healthcare and to enforce patients’ right to cross-border healthcare...
March 2017: European Journal of Health Law
https://www.readbyqxmd.com/read/29208199/-amputation-of-an-arm-due-to-infection-with-vibrio-vulnificus-after-beach-holiday
#5
Esra Arici, Allan Evald, Dennis Back Holmgaard, Lars Quist, Susanne Dam Poulsen, Signe W Worm
Infection with Vibrio vulnificus is a rare condition with approximately 11 cases reported in the Danish literature. It is characterized by soft tissue infection/wound, necrotizing fasciitis and septicaemia. In this case report we present a patient admitted with a rapid progression and sepsis consistent with V. vulnificus infection but with no informa-tion of water exposure. The initial treatment was surgery and sepsis management including broad-spectrum antibiotics. On day eight the patient's right arm was amputated...
November 27, 2017: Ugeskrift for Laeger
https://www.readbyqxmd.com/read/29207736/awareness-of-patients-rights-among-inpatients-of-a-tertiary-care-teaching-hospital-a-cross-sectional-study
#6
Upasana Agrawal, Brayal C D'Souza, Arun Mavaji Seetharam
Introduction: The rights of a patient are a set of rules of conduct which govern the interaction between the patients' and healthcare professionals. Every patient has a right to be informed about their rights and also the responsibility of the healthcare provider. Aim: To assess awareness among inpatient about patients' rights at an academic accredited hospital. Materials and Methods: A questionnaire based cross-sectional study was carried out among 350 patients admitted to the wards of a Tertiary Care Teaching Hospital...
September 2017: Journal of Clinical and Diagnostic Research: JCDR
https://www.readbyqxmd.com/read/29207100/retinal-microvasculature-alteration-in-central-serous-chorioretinopathy
#7
Li Yu, Yi Shao, Yong Chai, Lin-Hong Ye, Qi-Chen Yang, Lei Ye, Qing Yuan, Nan Jiang, Jing-Lin Yi
The aim of the present study was to investigate the changes of retinal microvascular network in patients with central serous chorioretinopathy (CSCR). A total of fifteen patients (right eye) with CSCR and 15 normal controls (right eye) were recruited. We used optical coherence tomography angiography to scan 6x6 mm macular retinal blood flow images with the application of a series of customized image segmentation processing program software to obtain microvascular and macrovascular density, and compared the superficial microvascular (SMIR), superficial macrovascular ring (SMAR) and the superficial total microvascular (STMI) density between CSCR patients and control group...
November 21, 2017: Molecular Medicine Reports
https://www.readbyqxmd.com/read/29203967/patients-rights-in-cross-border-healthcare-directive-2011-24-eu-and-how-it-applies-to-turkey-as-a-negotiating-candidate-country
#8
Perihan Elif Ekmekci
Cross-border healthcare and patient mobility across European Union Member States has been on the agenda of EU Commission for the last decade. Directive 2011/24/EU on the application of patients' rights in cross-border healthcare went into force in 2013. The Directive mainly addresses the responsibilities of Member States in cross-border healthcare, regulates reimbursement procedure, and coordinates European reference networks and health technology assessment in the EU. The Directive has direct and indirect implications on Turkish health system...
2017: European Journal of Health Law
https://www.readbyqxmd.com/read/29189051/withdrawing-or-withholding-life-sustaining-clinically-assisted-nutrition-and-hydration
#9
Richard Griffith
The previous article in this law column considered a patient's right to give a real consent before a district nurse could proceed with care and treatment. This article considers the district nurse's rights and responsibilities when considering withdrawing or withholding clinically-assisted nutrition and hydration. It focuses on recent cases in the Court of Protection, M v A Hospital [2017] , and High Court, NHS Trust v Mr Y & Mrs Y [2017] , and on the need to bring such cases to court before treatment is withdrawn...
December 2, 2017: British Journal of Community Nursing
https://www.readbyqxmd.com/read/29183089/successful-treatment-of-estrogen-excess-in-primary-bilateral-macronodular-adrenocortical-hyperplasia-with-leuprolide-acetate
#10
Fady Hannah-Shmouni, Andreas G Moraitis, Vladimir Valera Romero, Fabio R Faucz, Spyridon A Mastroyannis, Annabel Berthon, Richard A Failor, Maria Merino, Andrew P Demidowich, Constantine A Stratakis
Primary bilateral macronodular adrenocortical hyperplasia (PBMAH) is an uncommon cause of adrenal Cushing syndrome (CS) in which cortisol and occasionally other steroid hormones can be secreted under the influence of aberrantly expressed G-protein coupled receptors (GPCRs) in the adrenal cortex. We describe the unique case of a 64-year-old postmenopausal female with PBMAH whose adrenal lesions expressed luteinizing hormone receptors (LHr). She presented initially with CS and underwent right adrenalectomy; a few years later she presented with macromastia and mastodynia, possibly due to estrogen excess from her remaining left adrenocortical masses...
November 28, 2017: Hormone and Metabolic Research, Hormon- und Stoffwechselforschung, Hormones et Métabolisme
https://www.readbyqxmd.com/read/29163748/transradial-approach-for-deployment-of-a-flow-diverter-for-an-intracranial-aneurysm-in-a-patient-with-a-type-3-aortic-arch
#11
Geoffrey W Peitz, Bhavani Kura, Jeremiah N Johnson, Ramesh Grandhi
Background: Flow diversion with the Pipeline embolization device (PED) is an effective treatment for giant and wide-neck intracranial aneurysms, but the standard transfemoral approach may not be feasible in patients with Type-3 aortic arches. Case Report: An 84-year-old woman presented with a right internal carotid artery (ICA) giant aneurysm and a Type-3 aortic arch, necessitating a transradial approach for access to the right common carotid artery. A triaxial catheter system made for a stable platform for the deployment of two telescoping PEDs to treat the patient's right ICA giant aneurysm...
October 2017: Journal of Vascular and Interventional Neurology
https://www.readbyqxmd.com/read/29150824/legislation-of-direct-to-consumer-genetic-testing-in-europe-a-fragmented-regulatory-landscape
#12
L Kalokairinou, H C Howard, S Slokenberga, E Fisher, M Flatscher-Thöni, M Hartlev, R van Hellemondt, J Juškevičius, J Kapelenska-Pregowska, P Kováč, L Lovrečić, H Nys, A de Paor, A Phillips, L Prudil, E Rial-Sebbag, C M Romeo Casabona, J Sándor, A Schuster, S Soini, K H Søvig, D Stoffel, T Titma, T Trokanas, P Borry
Despite the increasing availability of direct-to-consumer (DTC) genetic testing, it is currently unclear how such services are regulated in Europe, due to the lack of EU or national legislation specifically addressing this issue. In this article, we provide an overview of laws that could potentially impact the regulation of DTC genetic testing in 26 European countries, namely Austria, Belgium, Cyprus, the Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Ireland, Italy, Latvia, Lithuania, Luxembourg, Norway, Poland, Portugal, Romania, Slovakia, Slovenia, Spain, Sweden, the Netherlands and the United Kingdom...
November 18, 2017: Journal of Community Genetics
https://www.readbyqxmd.com/read/29150155/the-association-of-functional-capacity-with-right-atrial-deformation-in-patients-with-pulmonary-arterial-hypertension-a-study-with-two-dimensional-speckle-tracking
#13
Weiwei Liu, Yueheng Wang, Jinling Zhou, Hui Bai, Feng Wang, Ju Wang
BACKGROUND: The purpose of this study was to assess right atrial (RA) myocardial mechanics in pulmonary hypertension (PH) patients using two-dimensional speckle tracking (2D-STE), and define the relationship between RA function and exercise capacity in PH patients. METHODS: Thirty-eight consecutive PH patients were studied and compared with a control group of 25 healthy volunteers. Peak atrial longitudinal strain (PALS), RA strain rate were measured in all subjects...
April 13, 2017: Heart, Lung & Circulation
https://www.readbyqxmd.com/read/29129123/opinions-of-nurses-regarding-conscientious-objection
#14
Rafael Toro-Flores, Pilar Bravo-Agüi, María Victoria Catalán-Gómez, Marisa González-Hernando, María Jesús Guijarro-Cenisergue, Margarita Moreno-Vázquez, Isabel Roch-Hamelin, Tamara Raquel Velasco-Sanz
BACKGROUND: In the last decades, there have been important developments in the scientific and technological areas of healthcare. On certain occasions this provokes conflict between the patients' rights and the values of healthcare professionals which brings about, within this clinical relationship, the problem of conscientious objection. AIMS: To learn the opinions that the Nurses of the Madrid Autonomous Community have regarding conscientious objection. RESEARCH DESIGN: Cross-cutting descriptive study...
January 1, 2017: Nursing Ethics
https://www.readbyqxmd.com/read/29123581/surgical-treatment-of-hepatic-echinococcus-granulosus
#15
Waldemar Patkowski, Maciej Krasnodębski, Michał Grąt, Łukasz Masior, Marek Krawczyk
Introduction: Infections caused by metacestode stage of the Echinococcus granulosus in humans result in disease named cystic echinococcosis. Aim: To present the outcomes of patients treated surgically for cystic echinococcosis of the liver. Material and methods: One hundred and nineteen patients treated in the period between 1989 and 2014 due to E. granulosus infection in the Department of General, Transplant, and Liver Surgery, Medical University of Warsaw were selected for this retrospective study...
2017: Przegla̜d Gastroenterologiczny
https://www.readbyqxmd.com/read/29118706/recurrent-diabetic-macular-edema-what-to-do
#16
Rita Santos Gonçalves, Carla Teixeira, Pedro Coelho
Diabetic macular edema (DME) is a leading cause of blindness in the working population. Herein, we report the case of a patient with recurrent DME for about 6 years, uncontrolled by several medical and surgical treatments, that was successfully treated with a single sustained-release fluocinolone acetonide intravitreal implant in her right eye. The affected eye had presented a visual acuity of 2/10 and a central macular thickness of 488 µm prior to the injection. After treatment with the fluocinolone acetonide intravitreal implant, the patient's right eye presented an improvement in best corrected visual acuity to 6/10 and a reduction of central macular thickness to 198 µm...
September 2017: Case Reports in Ophthalmology
https://www.readbyqxmd.com/read/29094422/health-democracy-in-europe-cancer-patient-organization-participation-in-health-policy
#17
Kyriakos Souliotis, Lily E Peppou, Eirini Agapidaki, Chara Tzavara, Dominique Debiais, Stanimir Hasurdjiev, Francois Sarkozy
BACKGROUND: Patient organization participation in health policy decision making is an understudied area of inquiry. A handful of qualitative studies have suggested that the growing number of patient organizations in Europe and their increasing involvement in policy issues do not result in high political effectiveness. However, existing research is largely country-specific. OBJECTIVE: To examine the degree and impact of cancer patient organization (CPO) participation in health policy decision making in EU-28 and to identify their correlates...
November 1, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/29081383/laparoscopic-single-incision-supracervical-hysterectomy-for-extremely-large-uterus-with-bag-tissue-extraction
#18
Xiaoming Guan, Juan Liu, Yanzhou Wang, Jordan Gisseman, Zhenkun Guan, Christopher Kleithermes
OBJECTIVE: To describe the single incision laparoscopic technique with an articulated energy device for uterus larger than 20 cm. DESIGN: Stepwise demonstration of the single site surgical technique and Tissue extraction with narrated video footage (Canadian Task Force classification III). BACKGROUND: Single-incision laparoscopic hysterectomy can be difficult because of longer surgery time, steep learning curve, and the need for articulated instruments, but is especially challenging in patients with a uterus larger than 20 cm...
October 25, 2017: Journal of Minimally Invasive Gynecology
https://www.readbyqxmd.com/read/29080001/the-relevance-of-the-hippocratic-oath-to-the-ethical-and-moral-values-of-contemporary-medicine-part-i-the-hippocratic-oath-from-antiquity-to-modern-times
#19
REVIEW
Helen Askitopoulou, Antoniοs N Vgontzas
The present paper discusses the relevance and significance of the Hippocratic Oath to contemporary medical ethical and moral values. It attempts to answer the questions about some controversial issues related to the Oath. The text is divided in two parts. Part I discusses the general attributes and ethical values of the Oath, while Part II presents a detailed analysis of each passage of the Oath with regard to perennial ethical principles and moral values. Part I starts with the contribution of Hippocrates and his School of Cos to medicine...
October 27, 2017: European Spine Journal
https://www.readbyqxmd.com/read/29079875/-clinical-registers-in-the-twenty-first-century-balancing-act-between-data-protection-and-feasibility
#20
REVIEW
C-A Behrendt, H Pridöhl, K Schaar, H Federrath, E S Debus
In the light of big data applications in modern medicine, the various forms of registries becoming increasingly more important. To meet the changing requirements in the field of digital healthcare, the European Commission proposed a comprehensive reform of data protection rules in the European Union (EU). After a transition phase the novel regulations will come into force from 25 May 2018 and then replace the existing Federal Data Protection Act. To conscientiously deal with this subject is of utmost importance before implementing registry-based projects in medical research or quality improvement...
November 2017: Der Chirurg; Zeitschrift Für Alle Gebiete der Operativen Medizen
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