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https://www.readbyqxmd.com/read/28382123/parental-expectation-from-children-with-cochlear-implants-in-indian-context-a-questionnaire-based-study
#1
Prawin Kumar, Himanshu Kumar Sanju, Rajkishor Mishra, Varun Singh, Priyanka Mohan
Introduction Parental support is important in the habilitation/rehabilitation of children using cochlear implant devices. Hence, it is important for families to know the realistic expectations regarding outcomes from CIs. Objective The objective of the present study is to know the parents' expectation from children using CIs. Methods For this study, we recruited 23 parents of children using CIs. We administered 15 questions translated in to Hindi related to communication abilities, social skills, academic achievement, change in future life, rehabilitation demand, and stress due to hearing impairment...
April 2017: International Archives of Otorhinolaryngology
https://www.readbyqxmd.com/read/28377666/unique-approach-to-dental-management-of-children-with-hearing-impairment
#2
Navanith Renahan, R Balagopal Varma, Parvathy Kumaran, Arun M Xavier
The number of deaf children has dramatically increased in the past few decades. These children present to the pediatric dentist a unique set of challenges mostly pertaining to the establishment of communication with them. There have been very few attempts in the past to break down these challenges and formulate a strategy on how to manage them effectively. This is a case report of a child who was successfully managed using two different modes of communication. Finally, the advantages and disadvantages are mentioned, and a common strategy incorporating the positives of both the methods has been devised...
January 2017: International Journal of Clinical Pediatric Dentistry
https://www.readbyqxmd.com/read/28289595/case-report-of-a-novel-mutation-of-the-eya1-gene-in-a-patient-with-branchio-oto-renal-syndrome
#3
L Spahiu, B Merovci, V Ismaili Jaha, A Batalli Këpuska, H Jashari
Branchio-oto-renal (BOR) syndrome is an autosomal dominant disorder characterized by the coexistence of branchial cysts or fistulae, external ear malformation with pre-auricular pits or tags, hearing impairment and renal malformations. However, the presence of the main features varies in affected families. Here, we present a 16-year-old boy admitted to the Department of Nephrology at the Pediatric Clinic, University Clinical Center of Kosovo, Pristina, Republic of Kosovo because of severe renal insufficiency diagnosed 6 years ago, which progressed to end-stage renal failure...
December 1, 2016: Balkan Journal of Medical Genetics: BJMG
https://www.readbyqxmd.com/read/28140832/assistive-technology-needs-functional-difficulties-and-services-utilization-and-coordination-of-children-with-developmental-disabilities-in-the-united-states
#4
Sue C Lin, Robert S Gold
Assistive technology (AT) enhances the ability of individuals with disabilities to be fully engaged in activities at home, at school, and within their communities-especially for children with developmental disabilities (DD) with physical, sensory, learning, and/or communication impairments. The prevalence of children with DD in the United States has risen from 12.84% in 1997 to 15.04% in 2008. Thus, it is important to monitor the status of their AT needs, functional difficulties, services utilization, and coordination...
January 31, 2017: Assistive Technology: the Official Journal of RESNA
https://www.readbyqxmd.com/read/28120639/cognitive-skills-affect-outcome-of-ci-in-children-a-systematic-review
#5
Nichlas Udholm, Anders W Jørgensen, Therese Ovesen
OBJECTIVE: To systematically review previous literature to determine to what extent hearing- impaired children with cognitive disabilities benefit from cochlear implantation (CI). Ultimately, to recommend guidelines for preoperative cognitive testing of hearing- impaired children and for the postoperative rehabilitation programs. METHODS: Pubmed, Cinahl, Embase, and The Cochrane Library was searched systematically for studies reporting cognitive disabilities in CI children...
March 2017: Cochlear Implants International
https://www.readbyqxmd.com/read/28095295/hematopoietic-stem-cell-transplantation-corrects-osteopetrosis-in-a-child-carrying-a-novel-homozygous-mutation-in-the-fermt3-gene
#6
Eleonora Palagano, Mary A Slatter, Paolo Uva, Ciro Menale, Anna Villa, Mario Abinun, Cristina Sobacchi
Osteopetrosis (OPT) is a rare skeletal disorder with phenotypic and genotypic heterogeneity: a variety of clinical features besides the bony defect may be present, and at least ten different genes are known to be involved in the disease pathogenesis. In the framework of this heterogeneity, we report the clinical description of a neonate, first child of consanguineous parents, who had osteoclast-rich osteopetrosis and bone marrow failure in early life, but no other usual classical features of infantile malignant OPT, such as visual or hearing impairments...
January 14, 2017: Bone
https://www.readbyqxmd.com/read/27931988/linking-hearing-impairment-employment-and-education
#7
I Garramiola-Bilbao, A Rodríguez-Álvarez
OBJECTIVE: To analyse the impact that hearing impairment and other relevant variables have on the education and employment situation of those affected by it in the Principality of Asturias, Spain. METHODS: To achieve this objective, two discrete choice models (probit) are presented. The first one associates, among other variables, hearing impairment with the individual's employment status and in the second model, an ordered multinomial probit model is used to analyse, among other variables, how the impairment affects the individual's level of studies...
December 2016: Public Health
https://www.readbyqxmd.com/read/27867345/language-impairment-resulting-from-a-de-novo-deletion-of-7q32-1q33
#8
María S Jiménez-Romero, Montserrat Barcos-Martínez, Isabel Espejo-Portero, Antonio Benítez-Burraco
We report on a girl who presents with hearing loss, behavioral disturbances (according to the Inventory for Client and Agency Planning) as well as motor and cognitive delay (according to Battelle Developmental Inventories) which have a significant impact on her speech and language abilities [according to the Peabody Picture Vocabulary Test (ed 3), and the Prueba de Lenguaje Oral de Navarra-Revisada (Navarra Oral Language Test, Revised)]. Five copy number variations (CNVs) were identified in the child: arr[hg18] 7q32...
October 2016: Molecular Syndromology
https://www.readbyqxmd.com/read/27863634/predictors-of-flourishing-among-children-with-hearing-loss
#9
COMPARATIVE STUDY
Laura Nabors, Cathleen Odar Stough, Ashley Merianos, James Peugh
OBJECTIVES: To examine parent report of flourishing in children with hearing impairments compared to children without hearing impairments, and to explore whether school engagement and bullying related to child flourishing. METHODS: Participants were 655 children with hearing impairments and 44, 618 children without hearing impairments who were 10-17 years of age. Caregivers completed telephone interviews about their child's functioning for the National Survey of Children's Health...
December 2016: International Journal of Pediatric Otorhinolaryngology
https://www.readbyqxmd.com/read/27818401/recognizing-the-needs-of-families-of-children-and-youth-who-are-deafblind
#10
Silvia M Correa-Torres, Sandy K Bowen
Research on deafblindness and families is scant. The few available studies, in combination with research in the areas of visual impairment, hearing impairment, and significant support needs, help paint a picture of the services and other assistance required by families, including siblings of a child with deafblindness. In the present article, the authors synthetize the literature related to families of students who are deafblind and the supports needed by these families. The article also addresses the impact of the diagnosis on the family, supports needed by the family, including the contributions of siblings of the child who is deafblind, and considerations of cultural, linguistic, and economic diversity within the deafblind population...
2016: American Annals of the Deaf
https://www.readbyqxmd.com/read/27761875/saving-deaf-children-screening-for-hearing-loss-as-a-public-interest-case
#11
Sigrid Bosteels, Michel Vandenbroeck, Geert Van Hove
New-born screening programs for congenital disorders and chronic disease are expanding worldwide and children "at risk" are identified by nationwide tracking systems at the earliest possible stage. These practices are never neutral and raise important social and ethical questions. An emergent concern is that a reflexive professionalism should interrogate the ever earlier interference in children's lives. The Flemish community of Belgium was among the first to generalize the screening for hearing loss in young children and is an interesting case to study the public justification of early interventions for families with deaf children...
October 19, 2016: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/27686986/-social-emotional-competence-in-young-children-with-hearing-visual-or-intellectual-impairments-an-explorative-study-with-the-itsea
#12
Klaus Sarimski, Manfred Hintermair, Markus Lang
Social-Emotional Competence in Young Children with Hearing, Visual or Intellectual Impairments - an Explorative Study with the ITSEA Early emotional and social competence is considered as an important requirement for social participation in family and child care settings. We report on a study exploring the usefulness of the competence scales as a part of the "Infant-Toddler Social and Emotional Assessment" (ITSEA) for one- to three-year old children in a sample of 253 toddlers with hearing, visual or intellectual impairments...
October 2016: Praxis der Kinderpsychologie und Kinderpsychiatrie
https://www.readbyqxmd.com/read/27622588/neurodevelopmental-outcomes-at-5years-of-age-in-congenital-diaphragmatic-hernia
#13
Enrico Danzer, Casey Hoffman, Jo Ann D'Agostino, Marsha Gerdes, Judy Bernbaum, Ryan M Antiel, Natalie E Rintoul, Lisa M Herkert, Alan W Flake, N Scott Adzick, Holly L Hedrick
OBJECTIVE: To evaluate neurodevelopmental sequelae in congenital diaphragmatic hernia (CDH) children at 5years of age. MATERIALS AND METHODS: The study cohort of 35 CDH patients was enrolled in our follow-up program between 06/2004 and 09/2014. The neurodevelopmental outcomes assessed at a median of 5years (range, 4-6) included cognition (Wechsler Preschool and Primary Scale of Intelligence [WPPSI], n=35), Visual-Motor-Integration (n=35), academic achievement (Woodcock-Johnson Tests of Achievement, n=25), and behavior problems (Child Behavior Check List [CBCL], n=26)...
March 2017: Journal of Pediatric Surgery
https://www.readbyqxmd.com/read/27614962/parental-views-on-otitis-media-systematic-review-of-qualitative-studies
#14
REVIEW
Shingisai Chando, Christian Young, Jonathan C Craig, Hasantha Gunasekera, Allison Tong
UNLABELLED: This study aims to describe parental experiences and perspectives of caring for a child with otitis media. We conducted a systematic review of qualitative studies on parental perspectives on caring for a child with otitis media. We searched electronic databases to July 2015. Seventeen studies involving 284 participants from six countries were included. We identified seven themes: diminishing competency (guilt over failure to identify symptoms, helpless and despairing, fear of complications, disempowered and dismissed); disrupting life schedules (disturbing sleep, interfering with work, burden on family); social isolation (stigma and judgement, sick consciousness); threatening normal development (delaying growth milestones, impairing interpersonal skills, impeding education); taking ownership (recognising symptoms, diagnostic closure, working the system, protecting against physical trauma, contingency planning); valuing support (needing respite, depending on community, clinician validation); and cherishing health (relief with treatment success, inspiring resilience)...
October 2016: European Journal of Pediatrics
https://www.readbyqxmd.com/read/27551970/hearing-loss-in-hiv-infected-children-in-lilongwe-malawi
#15
Susan Hrapcak, Hannah Kuper, Peter Bartlett, Akash Devendra, Atupele Makawa, Maria Kim, Peter Kazembe, Saeed Ahmed
INTRODUCTION: With improved access to antiretroviral therapy (ART), HIV infection is becoming a chronic illness. Preliminary data suggest that HIV-infected children have a higher risk of disabilities, including hearing impairment, although data are sparse. This study aimed to estimate the prevalence and types of hearing loss in HIV-infected children in Lilongwe, Malawi. METHODS: This was a cross-sectional survey of 380 HIV-infected children aged 4-14 years attending ART clinic in Lilongwe between December 2013-March 2014...
2016: PloS One
https://www.readbyqxmd.com/read/27438873/effects-of-self-generated-noise-on-estimates-of-detection-threshold-in-quiet-for-school-age-children-and-adults
#16
Emily Buss, Heather L Porter, Lori J Leibold, John H Grose, Joseph W Hall
OBJECTIVES: Detection thresholds in quiet become adult-like earlier in childhood for high than low frequencies. When adults listen for sounds near threshold, they tend to engage in behaviors that reduce physiologic noise (e.g., quiet breathing), which is predominantly low frequency. Children may not suppress self-generated noise to the same extent as adults, such that low-frequency self-generated noise elevates thresholds in the associated frequency regions. This possibility was evaluated by measuring noise levels in the ear canal simultaneous with adaptive threshold estimation...
November 2016: Ear and Hearing
https://www.readbyqxmd.com/read/27422943/access-to-and-uptake-of-cochlear-implantation-among-children-in-north-carolina
#17
Joni Alberg, Matthew G Crowson, Debara L Tucci
BACKGROUND: Cochlear implantation (CI) is a highly effective intervention for children with advanced hearing loss who cannot benefit from amplification. Despite the established benefits of CI, it is likely that not all children who are potential candidates for CI receive this intervention. The purpose of this study was to determine the percentage of North Carolina children who are candidates for and end up undergoing CI, and to detect whether barriers exist that prevent access to care for unimplanted candidates...
July 2016: North Carolina Medical Journal
https://www.readbyqxmd.com/read/27402315/a-hearing-screening-program-for-children-in-primary-schools-in-tajikistan-a-telemedicine-model
#18
Piotr Henryk Skarzyński, Weronica Świerniak, Adam Piłka, Magdalena B Skarżynska, Andrzej W Włodarczyk, Dzhamol Kholmatov, Abdukholik Makhamadiev, Stavros Hatzopoulos
BACKGROUND According to the guidelines of the European Scientific Consensus on Hearing (European Federation of Audiology Societies 'EFAS' Congress, June 2011, Warsaw, Poland), the detection and treatment of communication disorders in early school-age children is of the highest importance. This objective was adopted by the Polish president of the EFAS Council from the second half of 2011; as a result, pilot programs on children's hearing screening were initiated in various European countries. This paper reports data from a pilot program in Dushanbe, Tajikistan...
July 12, 2016: Medical Science Monitor: International Medical Journal of Experimental and Clinical Research
https://www.readbyqxmd.com/read/27387216/analysis-of-difficulties-occurring-during-the-early-auditory-screening-in-children
#19
Sebastian Kocoń, Maciej Wiatr, Paweł Stręk, Agnieszka Wiatr, Aleksandra Grudzień-Ziarno, Patryk Hartwich
INTRODUCTION: It is assumed that the critical period for diagnosis of hearing disorders is the baby's first three months of life and that appropriate course and implementation of treatment and/or rehabilitation should begin before a child is six months old. However various kinds of problems may occur during auditory screening of a child may exceed this interval. This problem is particularly pronounced among children with development and health problems and leads to unreliable and varied results...
June 30, 2016: Otolaryngologia Polska
https://www.readbyqxmd.com/read/27367606/prevalence-and-predictors-of-persistent-speech-sound-disorder-at-eight-years-old-findings-from-a-population-cohort-study
#20
Yvonne Wren, Laura L Miller, Tim J Peters, Alan Emond, Sue Roulstone
PURPOSE: The purpose of this study was to determine prevalence and predictors of persistent speech sound disorder (SSD) in children aged 8 years after disregarding children presenting solely with common clinical distortions (i.e., residual errors). METHOD: Data from the Avon Longitudinal Study of Parents and Children (Boyd et al., 2012) were used. Children were classified as having persistent SSD on the basis of percentage of consonants correct measures from connected speech samples...
August 1, 2016: Journal of Speech, Language, and Hearing Research: JSLHR
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