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https://www.readbyqxmd.com/read/28812949/-i-m-sure-we-made-it-a-better-study%C3%A2-experiences-of-adults-with-intellectual-disabilities-and-parent-carers-of-patient-and-public-involvement-in-a-health-research-study
#1
Carole Beighton, Christina Victor, Iain M Carey, Fay Hosking, Steve DeWilde, Derek G Cook, Paula Manners, Tess Harris
Patient and public involvement is considered integral to health research in the United Kingdom; however, studies documenting the involvement of adults with intellectual disabilities and parent carers in health research studies are scarce. Through group interviews, this study explored the perspectives and experiences of a group of adults with intellectual disabilities and a group of parent carers about their collaborative/participatory involvement in a 3-year study which explored the effectiveness of annual health checks for adults with intellectual disabilities...
January 1, 2017: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/28812844/clinician-perspectives-of-barriers-to-effective-implementation-of-a-rapid-response-system-in-an-academic-health-centre-a-focus-group-study
#2
John Rihari-Thomas, Michelle DiGiacomo, Jane Phillips, Phillip Newton, Patricia M Davidson
BACKGROUND: Systemic and structural issues of rapid response system (RRS) models can hinder implementation. This study sought to understand the ways in which acute care clinicians (physicians and nurses) experience and negotiate care for deteriorating patients within the RRS. METHODS: Physicians and nurses working within an Australian academic health centre within a jurisdictional-based model of clinical governance participated in focus group interviews. Verbatim transcripts were analysed using thematic content analysis...
January 1, 2017: International Journal of Health Policy and Management
https://www.readbyqxmd.com/read/28812843/collaboration-between-researchers-and-knowledge-users-in-health-technology-assessment-a-qualitative-exploratory-study
#3
Mylène Tantchou Dipankui
BACKGROUND: Collaboration between researchers and knowledge users is increasingly promoted because it could enhance more evidence-based decision-making and practice. These complex relationships differ in form, in the particular goals they are trying to achieve, and in whom they bring together. Although much is understood about why partnerships form, relatively little is known about how collaboration works: how the collaborative process is shaped through the partners' interactions, especially in the field of health technology assessment (HTA)? This study aims at addressing this gap in the literature in the specific context of HTA...
December 16, 2016: International Journal of Health Policy and Management
https://www.readbyqxmd.com/read/28812813/do-management-and-leadership-practices-in-the-context-of-decentralisation-influence-performance-of-community-health-fund-evidence-from-iramba-and-iringa-districts-in-tanzania
#4
Chakupewa Joseph, Stephen Oswald Maluka
BACKGROUND: In early 1990s, Tanzania like other African countries, adopted health sector reform (HSR). The most strongly held centralisation system that informed the nature of services provision including health was, thus, disintegrated giving rise to decentralisation system. It was within the realm of HSR process, user fees were introduced in the health sector. Along with user fees, various types of health insurances, including the Community Health Fund (CHF), were introduced. While the country's level of enrolment in the CHF is low, there are marked variations among districts...
September 26, 2016: International Journal of Health Policy and Management
https://www.readbyqxmd.com/read/28812445/-half-a-woman-half-a-man-that-is-how-they-make-me-feel-a-qualitative-study-of-rural-jordanian-women-s-experience-of-infertility
#5
Mayada A Daibes, Reema R Safadi, Tarek Athamneh, Iman F Anees, Rose E Constantino
Infertility is a health problem encompassing physical, psychological and social consequences that may threaten women's quality of life. Few studies have been conducted in Jordan examining rural women's experiences of infertility. This study aimed to explore responses to infertility and its consequences in the Jordanian rural sociocultural context. Using a descriptive qualitative design, data were collected between April and September 2016 from a fertility clinic in a military hospital in Northern Jordan. Semi-structured interviews were conducted with 14 purposively selected Jordanian women...
August 16, 2017: Culture, Health & Sexuality
https://www.readbyqxmd.com/read/28811835/mental-health-care-providers-perceptions-of-the-barriers-to-suicide-prevention-amongst-people-with-substance-use-disorders-in-south-africa-a-qualitative-study
#6
Daniel Goldstone, Jason Bantjes
BACKGROUND: Substance use is a well-established, and potentially modifiable, risk factor for suicide. Suicide prevention interventions are typically framed within the biomedical paradigm and focus on addressing individual risk factors, improving access to psychiatric care, and improving the skills of medical personnel to recognise at-risk individuals. Few studies have focused on contextual factors that hinder suicide prevention in people with substance use disorders, particularly in low-resource settings...
2017: International Journal of Mental Health Systems
https://www.readbyqxmd.com/read/28810470/representations-and-experiences-of-well-being-among-diabetic-adolescents-relational-normative-and-identity-tensions-in-diabetes-self-management
#7
David Fonte, Sébastien Colson, José Côté, Rachel Reynaud, Marie-Claude Lagouanelle-Simeoni, Thémis Apostolidis
We explore representations of well-being in adolescents with Type 1 diabetes in order to better understand their expectations and needs in therapeutic patient education. In total, 28 interviews were performed and then submitted to thematic content analysis and lexicometric analysis. Results show the intervention of psychosocial processes in the relationship that adolescents maintain with well-being and self-management. More specifically, we observed that well-being is impacted by areas of tension between the expectations of adolescents and the therapeutic objectives expressed by health professionals...
June 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/28810456/components-of-preoperative-anxiety-a-qualitative-study
#8
Amy King, Jim Bartley, Deborah L Johanson, Elizabeth Broadbent
Limited research has explored preoperative anxiety through qualitative methodologies. This study aimed to identify specific factors that contribute to preoperative anxiety. A total of 17 patients awaiting general, plastic reconstructive and hand, orthopaedic, or ear, nose, and throat/otorhinolaryngology surgery were interviewed about their concerns in a public hospital. Thematic analysis identified five main sources of anxiety: surgical procedures, surgical complications, symptoms, recovery process, and organisation and delivery of care...
May 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/28810449/the-importance-of-relationships-in-treatment-for-chronic-leg-ulceration
#9
Philippa Tollow, Jane Ogden
Leg ulcers are a hard-to-heal wound that can have a profound impact on the lives of those that they affect. While a significant body of evidence has explored the efficacy of various treatments for leg ulcers, little research has addressed the patient experience of such treatment. A total of 21 participants were recruited for this qualitative interview study, exploring patient's experiences of non-surgical treatment for leg ulcers. Thematic analysis identified two major themes, 'Failure' and 'Powerlessness', as well as the overarching theme of 'Relationships'...
May 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/28810443/disgust-shame-and-the-psychosocial-impact-of-skin-picking-evidence-from-an-online-support-forum
#10
Suzy Anderson, Victoria Clarke
This article examines the accounts of individuals who problematically pick their skin and explores their subjective experiences. In total, 100 problem disclosure statements were taken from posts made to a publicly accessible online skin picking support forum. These posts were systematically analysed using thematic analysis. Themes of disgust, shame and psychosocial avoidance dominated the analysis and appeared central to the experience of skin picking. Skin picking was shown to be a heterogeneous experience with a complex emotional profile...
April 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/28810392/first-time-fathers-perception-of-their-childbirth-experiences
#11
Anne M Howarth, Kate M Scott, Nicola R Swain
Birth satisfaction impacts on a man's adjustment to his new role as father. Fathers have been found to have needs similar to those of mothers during pregnancy and childbirth. Research suggests that these needs may not be being met for first-time fathers. In a quantitative survey, fathers' birth satisfaction was similar to mothers. This study then used a phenomenological form of thematic analysis to gain an insight into the birth experiences of 155 first-time New Zealand fathers. Core themes included safety of mother and baby, understanding support role, mother in control and managing pain and care and communication after birth...
January 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/28810390/shared-decision-making-rhetoric-and-reality-women-s-experiences-and-perceptions-of-adjuvant-treatment-decision-making-for-breast-cancer
#12
Neda Mahmoodi, Sally Sargeant
This interview-based study uses phenomenology as a theoretical framework and thematic analysis to challenge existing explanatory frameworks of shared decision-making, in an exploration of women's experiences and perceptions of shared decision-making for adjuvant treatment in breast cancer. Three themes emerged are as follows: (1) women's desire to participate in shared decision-making, (2) the degree to which shared decision-making is perceived to be shared and (3) to what extent are women empowered within shared decision-making...
January 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/28810388/perceived-consequences-of-a-successful-weight-loss-a-pluralist-qualitative-study
#13
Raquel Rosas, Filipa Pimenta, João Maroco, Isabel Leal
Weight loss improves health but little is known regarding how those who achieve feel about it. Aiming to identify positive and negative consequences of a successful weight loss, 30 men and women who achieved a successful weight loss were interviewed. Interviews were analysed (content and thematic analysis). Inter-rater agreement was assessed. With multiple correspondence analysis, a three-factor model explained the associations between categories: (1) personal growth/social adversities, (2) body image/social benefits and (3) physical/emotional well-being...
January 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/28810358/human-papillomavirus-vaccine-information-motivation-and-behavioral-skills-among-young-adult-us-women
#14
Erika L Thompson, Cheryl A Vamos, Diane M Straub, William M Sappenfield, Ellen M Daley
This study elicited the information needs, motivations, and behavioral skills related to human papillomavirus vaccine decision-making among young adult women. Interviews were conducted with college women, aged 18-26 years, and stratified by recently vaccinated ( N = 25) and unvaccinated ( N = 25). Comparative thematic analysis using the Information, Motivation, and Behavioral Skills Model was conducted. Healthcare providers were identified as the most trusted sources for information. While unvaccinated women did not have experience receiving the vaccine, they reported the same procedural knowledge for vaccination...
October 1, 2016: Journal of Health Psychology
https://www.readbyqxmd.com/read/28810238/long-term-weight-maintenance-strategies-are-experienced-as-a-burden-by-persons-who-have-lost-weight-compared-to-persons-with-a-lifetime-normal-stable-weight
#15
Maaike Kruseman, Noémi Schmutz, Isabelle Carrard
OBJECTIVE: To assess dietary intake, eating patterns, physical activity and eating behaviors, and to explore strategies and perceptions of the experience of weight maintenance in weight loss maintainers (weight loss maintenance (WLM) ≥ 10% weight loss maintained for ≥1 year) and in matched controls with a lifetime stable normal weight. METHODS: Volunteers (32) were recruited by a snowball procedure in this cross-sectional, mixed-methods study. Diet, physical activity, and eating behaviors were assessed with validated questionnaires...
August 16, 2017: Obesity Facts
https://www.readbyqxmd.com/read/28809134/cancer-treatment-experiences-among-survivors-of-childhood-sexual-abuse-a-qualitative-investigation-of-triggers-and-reactions-to-cumulative-trauma
#16
Julie B Schnur, Matthew J Dillon, Rachel E Goldsmith, Guy H Montgomery
OBJECTIVE: Some 25% of women and 8% of men in the United States have experienced childhood sexual abuse (CSA) before the age of 18. For these individuals, healthcare visits and interactions can be retraumatizing due to perceived similarities to past abuse (e.g., pain, undressing, lack of control). However, no prior studies have provided formal qualitative analyses regarding CSA survivors' reactions to cancer treatment. Therefore, our study's objective was to identify key themes pertaining to CSA survivors' cancer treatment experiences...
August 15, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28807974/exploring-family-physicians-reasons-to-continue-or-discontinue-providing-intrapartum-care-qualitative-descriptive-study
#17
Marion Dove, Maman Joyce Dogba, Charo Rodríguez
OBJECTIVE: To examine the reasons why family physicians continue or discontinue providing intrapartum care in their clinical practice. DESIGN: Qualitative descriptive study. SETTING: Two hospitals located in a multicultural area of Montreal, Que, in November 2011 to June 2012. PARTICIPANTS: Sixteen family physicians who were current or former providers of obstetric care. METHODS: Data were collected using semistructured qualitative interviews...
August 2017: Canadian Family Physician Médecin de Famille Canadien
https://www.readbyqxmd.com/read/28807499/making-the-hard-decisions-ethical-care-decisions-in-wartime-nursing-practice
#18
Janice Agazio, Petra Goodman
BACKGROUND: Codes of ethics set forth standards of ethical conduct for nurses. However, nurses involved in wartime operations, or disasters, may often have their moral compass challenged by the patient care decisions necessary under adverse conditions. Reverse triage, resource allocation, and promotion of patient autonomy present multiple challenges to meeting commonly applied ethical principles. PURPOSE: The purpose of this study was to use the International Council of Nursing code of ethics as a framework to organize the ethical issues emerging from wartime nursing...
June 30, 2017: Nursing Outlook
https://www.readbyqxmd.com/read/28806744/sustainability-of-knowledge-implementation-in-a-low-and-middle-income-context-experiences-from-a-facilitation-project-in-vietnam-targeting-maternal-and-neonatal-health
#19
Leif Eriksson, Anna Bergström, Dinh Thi Phuong Hoa, Nguyen Thu Nga, Ann Catrine Eldh
BACKGROUND: In a previous trial in Vietnam, a facilitation strategy to secure evidence-based practice in primary care resulted in reduced neonatal mortality over a period of three years. While little is known as to what ensures sustainability in the implementation of community-based strategies, the aim of this study was to investigate factors promoting or hindering implementation, and sustainability of knowledge implementation strategies, by means of the former Neonatal Knowledge Into Practice (NeoKIP) trial...
2017: PloS One
https://www.readbyqxmd.com/read/28806484/tensions-in-perspectives-on-suicide-prevention-between-men-who-have-attempted-suicide-and-their-support-networks-secondary-analysis-of-qualitative-data
#20
Andrea S Fogarty, Michael Spurrier, Michael J Player, Kay Wilhelm, Erin L Whittle, Fiona Shand, Helen Christensen, Judith Proudfoot
BACKGROUND: Men generally have higher rates of suicide, despite fewer overt indicators of risk. Differences in presentation and response suggest a need to better understand why suicide prevention is less effective for men. OBJECTIVE: To explore the views of at-risk men, friends and family about the tensions inherent in suicide prevention and to consider how prevention may be improved. DESIGN: Secondary analysis of qualitative interview and focus group data, using thematic analysis techniques, alongside bracketing, construction and contextualisation...
August 14, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
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