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https://www.readbyqxmd.com/read/28324767/the-health-assessment-questionnaire-disability-index-haq-di-as-a-valid-alternative-for-measuring-the-functional-capacity-of-people-with-haemophilia
#1
Hortensia De La Corte-Rodriguez, E Carlos Rodriguez-Merchan
BACKGROUND: There are several scales for evaluating the functional capacity of people with haemophilia (PWH). OBJECTIVE: To demonstrate the value and simplicity of the "Health Assessment Questionnaire Disability Index" (HAQ-DI) for making a functional assessment of persons with haemophilia (PWH) in those contexts in which the specific physical assessment scales cannot be used (the "World Federation of Haemophilia Physical Examination Score" (WFH-PES) and the "Haemophilia Joint Health Score 2...
March 14, 2017: Thrombosis Research
https://www.readbyqxmd.com/read/28324029/vital-directions-for-health-and-health-care-priorities-from-a-national-academy-of-medicine-initiative
#2
Victor J Dzau, Mark B McClellan, J Michael McGinnis, Sheila P Burke, Molly J Coye, Angela Diaz, Thomas A Daschle, William H Frist, Martha Gaines, Margaret A Hamburg, Jane E Henney, Shiriki Kumanyika, Michael O Leavitt, Ruth M Parker, Lewis G Sandy, Leonard D Schaeffer, Glenn D Steele, Pamela Thompson, Elias Zerhouni
Importance: Recent discussion has focused on questions related to the repeal and replacement of portions of the Affordable Care Act (ACA). However, issues central to the future of health and health care in the United States transcend the ACA provisions receiving the greatest attention. Initiatives directed to certain strategic and infrastructure priorities are vital to achieve better health at lower cost. Objectives: To review the most salient health challenges and opportunities facing the United States, to identify practical and achievable priorities essential to health progress, and to present policy initiatives critical to the nation's health and fiscal integrity...
March 21, 2017: JAMA: the Journal of the American Medical Association
https://www.readbyqxmd.com/read/28323478/disability-items-from-the-current-population-survey-2008-2015-and-permanent-versus-temporary-disability-status
#3
Bryce Ward, Andrew Myers, Jennifer Wong, Craig Ravesloot
OBJECTIVES: To examine longitudinal responses to the disability indicator questions that have been adopted as the standard across national surveys sponsored by the US Department of Health and Human Services. METHODS: Data from the Current Population Survey between 2008 and 2015 were linked to create a longitudinal sample of 721 178 individual respondents. RESULTS: Responses to the disability questions fluctuated significantly. Although 17% of all respondents reported a disability at some point, only 3% consistently reported the same set of disabilities...
March 21, 2017: American Journal of Public Health
https://www.readbyqxmd.com/read/28320158/addressing-post-stroke-care-in-rural-areas-with-peru-as-a-case-study-placing-emphasis-on-evidence-based-pragmatism
#4
REVIEW
J Jaime Miranda, Miguel G Moscoso, Lijing L Yan, Francisco Diez-Canseco, Germán Málaga, Hector H Garcia, Bruce Ovbiagele
Stroke is a major cause of death and disability, with most of its burden now affecting low- and middle-income countries (LMIC). People in rural areas of LMIC who have a stroke receive very little acute stroke care and local healthcare workers and family caregivers in these regions lack the necessary knowledge to assist them. Intriguingly, a recent rapid growth in cell-phone use and digital technology in rural areas has not yet been appropriately exploited for health care training and delivery purposes. What should be done in rural areas, at the community setting-level, where access to healthcare is limited remains a challenge...
April 15, 2017: Journal of the Neurological Sciences
https://www.readbyqxmd.com/read/28318009/the-efficacy-of-interventions-to-increase-physical-activity-participation-of-children-with-cerebral-palsy-a-systematic-review-and-meta-analysis
#5
REVIEW
Sarah Reedman, Roslyn N Boyd, Leanne Sakzewski
AIM: To determine efficacy of therapy and behaviour change interventions to increase the level of participation in leisure-time physical activities (LTPAs) and habitual physical activity in children and young people with cerebral palsy. METHOD: Five databases were systematically searched. Included studies were randomized or comparison designs. Methodological quality was assessed with a modified Downs and Black Scale. Quantitative analysis was performed using RevMan 5...
March 20, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28317084/dietary-interventions-and-multiple-sclerosis
#6
REVIEW
Ghadah Altowaijri, Allison Fryman, Vijayshree Yadav
Multiple Sclerosis (MS) is a chronic, disabling neurologic disease that has its onset in young adulthood. While the knowledge about underlying pathogenesis of MS has improved significantly over the last few decades, the exact cause still eludes us. Despite the availability of several United States Food and Drug Administration-approved disease-modifying therapies (DMT) for MS in the last two decades, the disease remains disabling for many. DMT use is limited by its partial effectiveness, significant side effects in many cases, and high cost that leads people with MS (PwMS) to look for alternative management options...
March 2017: Current Neurology and Neuroscience Reports
https://www.readbyqxmd.com/read/28315930/disparities-in-mortality-by-disability-an-11-year-follow-up-study-of-1%C3%A2-million-individuals
#7
Jung Min Park, Ukchan Oh, Beop-Rae Roh, Yeongmin Moon
OBJECTIVES: This longitudinal study examines to what extent the risk of mortality-all-cause, natural death, suicide, and unintentional injury mortality-differs by types and severity of disabilities as well as disability status. METHODS: Data were the National Sample Cohort of 1,025,340 individuals in South Korea followed from 2002 to 2013. Cox regression with time-variant variables was used to estimate the hazard ratio of mortality by disability. RESULTS: Individuals with disabilities had a higher risk of mortality compared to those without (HR 1...
March 18, 2017: International Journal of Public Health
https://www.readbyqxmd.com/read/28314660/alzheimer-s-disease-the-next-frontier-special-report-2017
#8
Jason Karlawish, Clifford R Jack, Walter A Rocca, Heather M Snyder, Maria C Carrillo
In the history of medicine, one means to progress is when we make the decision that our assumptions and definitions of disease are no longer consistent with the scientific evidence, and no longer serve our health care needs. The arc of scientific progress is now requiring a change in how we diagnose Alzheimer's disease. Both the National Institute on Aging-Alzheimer's Association (NIA-AA) 2011 workgroup and the International Work Group (IWG) have proposed guidelines that use detectable measures of biological changes in the brain, commonly known as biological markers, or biomarkers, as part of the diagnosis...
March 14, 2017: Alzheimer's & Dementia: the Journal of the Alzheimer's Association
https://www.readbyqxmd.com/read/28306397/public-views-on-genetics-and-genetic-testing-a-survey-of-the-general-public-in-belgium
#9
Davit Chokoshvili, Carmen Belmans, Roxanne Poncelet, Sofie Sanders, Deborah Vaes, Danya Vears, Sandra Janssens, Isabelle Huys, Pascal Borry
AIMS: To explore the views of the Belgian public on various topics surrounding genetics and genetic testing (GT). MATERIALS AND METHODS: A written questionnaire was administered to visitors of the annual cartoon festival in Knokke-Heist, Belgium, during the summer of 2014. The main theme of the festival was challenges and progress in human genetics and it was attended by more than 100,000 visitors. RESULTS: The survey was completed by 1182 respondents, resulting in a demographically diverse sample with a mean age of 48...
March 2017: Genetic Testing and Molecular Biomarkers
https://www.readbyqxmd.com/read/28306158/effect-of-chronic-diseases-and-multimorbidity-on-survival-and-functioning-in-elderly-adults
#10
Debora Rizzuto, René J F Melis, Sara Angleman, Chengxuan Qiu, Alessandra Marengoni
OBJECTIVES: To determine the effect of chronic disorders and their co-occurrence on survival and functioning in community-dwelling older adults. DESIGN: Population-based cohort study. SETTING: Kungsholmen, Stockholm, Sweden. PARTICIPANTS: Individuals aged 78 and older examined by physicians four times over 11 years (N = 1,099). MEASUREMENTS: Chronic diseases (grouped according to 10 organ systems according to the International Classification of Diseases, Tenth Revision, code) and multimorbidity (≥2 coexisting chronic diseases) were evaluated in terms of mortality, population attributable risk of death, median years of life lost, and median survival time with and without disability (need of assistance in ≥1 activities of daily living)...
March 17, 2017: Journal of the American Geriatrics Society
https://www.readbyqxmd.com/read/28303914/restoring-brain-function-after-stroke-bridging-the-gap-between-animals-and-humans
#11
REVIEW
Nick S Ward
Stroke is the leading cause of complex adult disability in the world. Recovery from stroke is often incomplete, which leaves many people dependent on others for their care. The improvement of long-term outcomes should, therefore, be a clinical and research priority. As a result of advances in our understanding of the biological mechanisms involved in recovery and repair after stroke, therapeutic opportunities to promote recovery through manipulation of poststroke plasticity have never been greater. This work has almost exclusively been carried out in preclinical animal models of stroke with little translation into human studies...
March 17, 2017: Nature Reviews. Neurology
https://www.readbyqxmd.com/read/28299972/older-and-incarcerated-policy-implications-of-aging-prison-populations
#12
Zachary Psick, Jonathan Simon, Rebecca Brown, Cyrus Ahalt
Purpose The purpose of this paper is to explore the policy Implications of aging prison populations. Design/methodology/approach An examination of the worldwide aging trend in prison and its implications for correctional policy, including an examination of population aging in California prisons as a case example of needed reform. Findings Prison populations worldwide are aging at an unprecedented rate, and age-related medical costs have had serious consequences for jurisdictions struggling to respond to the changes...
March 13, 2017: International Journal of Prisoner Health
https://www.readbyqxmd.com/read/28299896/is-behavioural-activation-effective-in-the-treatment-of-depression-in-young-people-a-systematic-review-and-meta-analysis
#13
REVIEW
Lucy Tindall, Antonina Mikocka-Walus, Dean McMillan, Barry Wright, Catherine Hewitt, Samantha Gascoyne
PURPOSE: Depression is currently the leading cause of illness and disability in young people. Evidence suggests that behavioural activation (BA) is an effective treatment for depression in adults but less research focuses on its application with young people. This review therefore examined whether BA is effective in the treatment of depression in young people. METHODS: A systematic review (International Prospective Register of Systematic Reviews reference: CRD42015020453), following Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines, was conducted to examine studies that had explored behavioural interventions for young people with depression...
March 16, 2017: Psychology and Psychotherapy
https://www.readbyqxmd.com/read/28299557/beyond-a-reading-disability-comments-on-the-need-to-examine-the-full-spectrum-of-abilities-disabilities-of-the-atypical-dyslexic-brain
#14
Jeffrey W Gilger
A panel of practioners and researchers convened to consider how to advance a broader understanding of the neurocognitive profile of people with dyslexia. While a great deal of research has been conducted on the reading process, the panel recognized that the "dyslexia brain" may be unique in other ways as well. In particular, the panel focused on complex nonverbal/spatial skills and correlated attributes such as career choice. The conclusion of the panel was that there is more to be learned about how people with dyslexia reason spatially and how these qualities manifest in academic, personal, and career behaviors...
March 15, 2017: Annals of Dyslexia
https://www.readbyqxmd.com/read/28299257/cleft-lip-and-palate-parental-experiences-of-stigma-discrimination-and-social-structural-inequalities
#15
Wasiu Lanre Adeyemo, Olutayo James, Azeez Butali
BACKGROUND: Cleft lip and palate (CLP) are the most common craniofacial birth impairment and one of the most common congenital impairments in humans. Anecdotal evidence suggests that stigmatization, discrimination, and sociocultural inequalities are common "phenomenon" experienced by families of children with CLP in Nigeria. This study aimed to explore the stigmatization, discrimination, and sociocultural inequalities experiences of families with children born with CLP. MATERIALS AND METHODS: The study was carried out at the surgical outpatient cleft clinic of the Lagos University Teaching Hospital, Lagos, Nigeria...
July 2016: Annals of Maxillofacial Surgery
https://www.readbyqxmd.com/read/28296516/eye-disorders-among-adult-people-diagnosed-with-infantile-autism-in-childhood-a-longitudinal-case-control-study
#16
Svend Erik Mouridsen, Bente Rich, Torben Isager
PURPOSE: The objective of this study was to compare the prevalence and types of eye disorders in a clinical sample of 118 adult people diagnosed with infantile autism (IA) during childhood with 336 sex- and age-matched controls from the general population. METHODS: All participants were screened through the nationwide Danish National Hospital Register. The average observation time of both groups was 37.2 years, and mean age was 49.6 years, by the end of the observation period...
March 15, 2017: Ophthalmic Epidemiology
https://www.readbyqxmd.com/read/28296176/mini-mental-state-examination-score-trajectories-and-incident-disabling-dementia-among-community-dwelling-older-japanese-adults
#17
Yu Taniguchi, Akihiko Kitamura, Hiroshi Murayama, Hidenori Amano, Tomohiro Shinozaki, Isao Yokota, Satoshi Seino, Yu Nofuji, Mariko Nishi, Yuri Yokoyama, Yutaka Matsuyama, Yoshinori Fujiwara, Shoji Shinkai
AIM: The present prospective study used repeated measures analysis to identify potential Mini-Mental State Examination (MMSE) score trajectories and determine whether MMSE trajectory was associated with incident disabling dementia among community-dwelling older Japanese adults. METHODS: A total of 1724 non-demented adults (mean age 71.4 years [SD 5.7]; 56.7% women) aged 65-90 years participated in annual geriatric health assessments during the period from June 2002 through July 2014...
March 14, 2017: Geriatrics & Gerontology International
https://www.readbyqxmd.com/read/28295893/do-older-adults-with-chronic-low-back-pain-differ-from-younger-adults-in-regards-to-baseline-characteristics-and-prognosis
#18
S Manogharan, A Kongsted, M L Ferreira, M J Hancock
BACKGROUND: Low back pain (LBP) in older adults is poorly understood because the vast majority of the LBP research has focused on the working aged population. The aim of this study was to compare older adults consulting with chronic LBP to middle aged and young adults consulting with chronic LBP, in terms of their baseline characteristics, and pain and disability outcomes over 1 year. METHODS: Data were systematically collected as part of routine care in a secondary care spine clinic...
March 14, 2017: European Journal of Pain: EJP
https://www.readbyqxmd.com/read/28295883/social-and-material-aspects-of-life-and-their-impact-on-the-physical-health-of-people-diagnosed-with-mental-illness
#19
Stephanie B Ewart, Brenda Happell, Julia Bocking, Chris Platania-Phung, Robert Stanton, Brett Scholz
BACKGROUND: People diagnosed with mental illness have shorter lives and poorer physical health, compared to the general population. These health inequities are usually viewed at an individual and clinical level, yet there is little research on the views of mental health consumers on clinical factors in broader contexts. OBJECTIVE: To elicit the views of consumers of mental health services regarding their physical health and experiences of accessing physical health-care services...
March 15, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28295847/effects-on-leisure-activities-and-social-participation-of-a-case-management-intervention-for-frail-older-people-living-at-home-a-randomised-controlled-trial
#20
Marianne Granbom, Jimmie Kristensson, Magnus Sandberg
Frailty causes disability and restrictions on older people's ability to engage in leisure activities and for social participation. The objective of this study was to evaluate the effects of a 1-year case management intervention for frail older people living at home in Sweden in terms of social participation and leisure activities. The study was a randomised controlled trial with repeated follow-ups. The sample (n = 153) was consecutively and randomly assigned to intervention (n = 80) or control groups (n = 73)...
March 12, 2017: Health & Social Care in the Community
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