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Existential suffering

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https://www.readbyqxmd.com/read/29436007/survivors-experiences-of-consequences-and-recovery-five-years-after-a-major-bus-crash
#1
Isabelle Doohan, Lina Gyllencreutz, Ulf Björnstig, Britt-Inger Saveman
RATIONALE: There is a lack of long-term follow-up studies focused on injured and uninjured survivors' experiences of the recovery process after major traffic crashes. AIM: To explore all survivors' experiences of long-term physical and psychological consequences and recovery 5 years after a major bus crash. METHODOLOGICAL DESIGN AND JUSTIFICATION: A qualitative design was used to explore experiences in a 5-year follow-up study. RESEARCH METHODS: Participants were 54 survivors of a bus crash with 56 survivors and six fatalities...
February 12, 2018: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/29409563/dignity-in-cancer-patients-with-a-life-expectancy-of-a-few-weeks-implementation-of-the-factor-structure-of-the-patient-dignity-inventory-and-dignity-assessment-for-a-patient-centered-clinical-intervention-a-cross-sectional-study
#2
Andrea Bovero, Nader Alessandro Sedghi, Rossana Botto, Chiara Tosi, Valentina Ieraci, Riccardo Torta
OBJECTIVE: Hospice is a favored setting for dignity care. Studies on dignity dimension in end-of-life patients are growing. The Patient Dignity Inventory (PDI) is a tool that can lead to interesting information on dignity-related aspects of suffering. The study aimed to investigate dignity among end-of-life cancer patients, by examining the Italian version of the PDI factor structure and assessing the relationship between dignity and other patients' psychosocial and spiritual variables to improve a patient-centered clinical practice...
February 7, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29383612/palliative-management-of-peritoneal-metastases
#3
REVIEW
Laura A Lambert, Jason Wiseman
Despite significant recent advances in the management of peritoneal carcinomatosis, this diagnosis still is accompanied frequently by a grim survival prognosis, often measured in weeks to months. The poor prognosis also is accompanied often by complications and symptoms that have a dramatic impact on quality of life and are challenging to the managing health care provider and devastating to loved ones caring for the person who is suffering. Consequently, management of carcinomatosis often revolves around palliation of symptoms such as bowel obstruction, nausea, pain, fatigue, and cachexia as well as emotional and existential concerns...
January 30, 2018: Annals of Surgical Oncology
https://www.readbyqxmd.com/read/29382541/palliative-sedation-for-existential-suffering-a-systematic-review-of-argument-based-ethics-literature
#4
REVIEW
Paulo Rodrigues, Jasper Crokaert, Chris Gastmans
CONTEXT: While unanimity exists on using palliative sedation (PS) for controlling refractory physical suffering in end-of-life situations, using it for controlling refractory existential suffering (PS-ES) is controversial. Complicating the debate is that definitions and terminology for existential suffering are unclear, ambiguous, and imprecise, leading to a lack of consensus for clinical practice. OBJECTIVES: To systematically identify, describe, analyze, and discuss ethical arguments and concepts underpinning the argument-based bioethics literature on palliative sedation for refractory existential suffering...
January 27, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29356590/taking-psychedelics-seriously
#5
Ira Byock
BACKGROUND: Psychiatric research in the 1950s and 1960s showed potential for psychedelic medications to markedly alleviate depression and suffering associated with terminal illness. More recent published studies have demonstrated the safety and efficacy of psilocybin, MDMA, and ketamine when administered in a medically supervised and monitored approach. A single or brief series of sessions often results in substantial and sustained improvement among people with treatment-resistant depression and anxiety, including those with serious medical conditions...
January 22, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29344910/mimesis-and-clinical-pictures-thinking-with-plato-and-broekman-through-the-production-and-meaning-of-images-of-disease
#6
Marjolein Oele
This paper contends, following Plato and Broekman, that (1) seeing images as images is crucial to theorizing medicine and that (2) considering clinical pictures as images of images is a much-needed epistemic complement to the domineering view that sees clinical pictures as mirrors of disease. This does not only offer epistemic, but also ethical benefits to individual patients, especially in those cases where patients suffer from chronic, debilitating, and terminal illnesses and where medicine provides no, or limited, answers in terms of treatment, intervention, and meaning...
January 17, 2018: Medicine, Health Care, and Philosophy
https://www.readbyqxmd.com/read/29334753/physicians-perceptions-of-hope-and-how-hope-informs-interactions-with-patients-a-qualitative-exploratory-study
#7
Airin Wolf, Catherine F Garlid, Kristiina Hyrkas
OBJECTIVES: Today some studies of physicians' perceptions of hope are available, but not studies of how hope informs patient care. The objectives of this qualitative study were to describe the ways physicians conceptualize hope and how these may inform interactions with their patients. METHODS: Ten physicians working in a large tertiary care teaching hospital were interviewed. They represented palliative care, oncology, and 7 other specialties. Minimal amount of background information was collected...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29281944/unveiling-the-maelstrom-of-the-early-breast-cancer-trajectory
#8
Mary Godfrey, Sarah Price, Andrew Long
Length and complexity of illness and treatment in early breast cancer mean that the acute phase may extend over months. Employing concepts of "trajectory" and "work" from chronic illness, we explored the temporality of the illness experience for women as it unfolded from diagnosis through acute treatment. We performed multiple, qualitative interviews with 14 women at critical points in their first year postdiagnosis. We differentiated between subphases of the acute breast cancer trajectory: becoming a person with breast cancer: a turning point; first steps in treatment: struggling to protect self-concept; being and feeling ill: "cure" as suffering; and conditional "recovering": an uncertain future...
December 1, 2017: Qualitative Health Research
https://www.readbyqxmd.com/read/29279037/how-to-increase-the-quality-of-a-suffering-experience-lessons-derived-from-the-diary-narratives-of-a-dying-adolescent-girl
#9
Mustafa Volkan Kavas
Personal narratives are assumed to be primary sources of the essential meaning of lived experiences of dying. In this study, I analyzed the personal diary of Miraç Fidan, a terminally ill adolescent with advanced cancer who kept a diary until her death at the age of 15. Miraç's Diary, also published as a book, was subjected to hermeneutic phenomenological narrative analysis. Inferences were drawn regarding the following basic elements: (a) The dynamics in which Miraç lived and (2) her perceptions of herself, her immediate environment, and her experiences...
February 2018: Omega
https://www.readbyqxmd.com/read/29236807/the-ritualization-of-life-and-the-expansion-of-psy-cultures-in-colombia-the-local-and-the-barely-transnational
#10
Carlos Alberto Uribe
This paper exposes the status of psy cultures in Colombia. It is shown how the country's official health system has transformed biomedical psychiatry and cognitive behavioral psychology into the dominant and hegemonic psy culture. However, far from being hegemonic, as presented, both serve to foster and sustain the existence of different "religious" or "sacred" therapeutic systems and practices that denaturalize human existential and psychological suffering. In general, the latter are ritual practices with a strong spiritualist, anti-materialist and antimonist content, that deal freely with a wide range of cosmologies, beliefs and symbols, even including the same concepts and practices of a biomedical origin...
November 2017: História, Ciências, Saúde—Manguinhos
https://www.readbyqxmd.com/read/29185174/physical-psychological-social-and-existential-symptoms-in-older-homeless-experienced-adults-an-observational-study-of-the-hope-home-cohort
#11
M Patanwala, L Tieu, C Ponath, D Guzman, C S Ritchie, Margot Kushel
BACKGROUND: The homeless population in the United States is aging. Aging-associated comorbidities are associated with increased symptoms. OBJECTIVE: To describe the prevalence of symptoms among older homeless-experienced adults, analyze factors associated with moderate-high physical symptom burden, and identify symptom clusters. DESIGN: Cross-sectional analysis within longitudinal cohort study. PARTICIPANTS: Using population-based sampling from shelters, meal programs, encampments, and a recycling center in Oakland, CA, we recruited homeless adults aged ≥ 50 for a longitudinal cohort...
November 28, 2017: Journal of General Internal Medicine
https://www.readbyqxmd.com/read/29129680/existential-issues-in-sexual-medicine-the-relation-between-death-anxiety-and-hypersexuality
#12
REVIEW
Daniel N Watter
INTRODUCTION: Current sex therapy and sexual medicine protocols often ignore the existential dilemmas associated with sexual dysfunction and other problematic sexual problems. This oversight is especially apparent when assessing and treating the controversial phenomenon of hypersexuality, or "sexual addiction." A deeper understanding of the existential concept of death anxiety could offer an alternative treatment paradigm that might lead to a more effective treatment outcome. AIM: To explore the relation between the existential phenomenon of death anxiety and hypersexuality (ie, sexual addiction) and present an evaluation and treatment paradigm that is rooted in existential psychotherapy, a form of psychotherapy that is a deeply life-affirming and dynamic approach to therapy that focuses on concerns rooted in the individual's existence...
November 9, 2017: Sexual Medicine Reviews
https://www.readbyqxmd.com/read/29020846/patients-and-caregivers-needs-experiences-preferences-and-research-priorities-in-spiritual-care-a-focus-group-study-across-nine-countries
#13
Lucy Ellen Selman, Lisa Jane Brighton, Shane Sinclair, Ikali Karvinen, Richard Egan, Peter Speck, Richard A Powell, Ewa Deskur-Smielecka, Myra Glajchen, Shelly Adler, Christina Puchalski, Joy Hunter, Nancy Gikaara, Jonathon Hope
BACKGROUND: Spiritual distress is prevalent in advanced disease, but often neglected, resulting in unnecessary suffering. Evidence to inform spiritual care practices in palliative care is limited. AIM: To explore spiritual care needs, experiences, preferences and research priorities in an international sample of patients with life-limiting disease and family caregivers. DESIGN: Focus group study. SETTING/PARTICIPANTS: Separate patient and caregiver focus groups were conducted at 11 sites in South Africa, Kenya, South Korea, the United States, Canada, the United Kingdom, Belgium, Finland and Poland...
January 2018: Palliative Medicine
https://www.readbyqxmd.com/read/28988657/experiences-of-surviving-a-cardiac-arrest-after-therapeutic-hypothermia-treatment-an-interview-study
#14
Margareta Brännström, Camilla Niederbach, Ann-Charlotte Rödin
BACKGROUND: Cardiac arrest (CA) is often associated with high mortality. In Sweden, it is reported that 13-52 per 100,000 people suffer out-of-hospital CA, and survival to one month is 2-14%. OBJECTIVE: This study aimed to describe people's experiences of surviving a CA after therapeutic hypothermia treatment. METHOD: A descriptive qualitative design was used. Data were collected through individual interviews with seven CA survivors. The collected data were analyzed using qualitative content analysis...
October 4, 2017: International Emergency Nursing
https://www.readbyqxmd.com/read/28971884/development-of-a-trigger-tool-to-identify-adverse-events-and-no-harm-incidents-that-affect-patients-admitted-to-home-healthcare
#15
Marléne Lindblad, Kristina Schildmeijer, Lena Nilsson, Mirjam Ekstedt, Maria Unbeck
BACKGROUND: Adverse events (AEs) and no-harm incidents are common and of great concern in healthcare. A common method for identification of AEs is retrospective record review (RRR) using predefined triggers. This method has been used frequently in inpatient care, but AEs in home healthcare have not been explored to the same extent. The aim of this study was to develop a trigger tool (TT) for the identification of both AEs and no-harm incidents affecting adult patients admitted to home healthcare in Sweden, and to describe the methodology used for this development...
September 29, 2017: BMJ Quality & Safety
https://www.readbyqxmd.com/read/28970302/when-unbearable-suffering-incites-psychiatric-patients-to-request-euthanasia-qualitative-study
#16
Monica Verhofstadt, Lieve Thienpont, Gjalt-Jorn Ygram Peters
BackgroundThe concept of 'unbearable suffering' is central to legislation governing whether euthanasia requests may be granted, but remains insufficiently understood, especially in relation to psychiatric patients.AimsTo provide insights into the suffering experiences of psychiatric patients who have made a request for euthanasia.MethodTestimonials from 26 psychiatric patients who requested euthanasia were analysed using QualiCoder software.ResultsFive domains of suffering were identified: medical, intrapersonal, interpersonal, societal and existential...
October 2017: British Journal of Psychiatry: the Journal of Mental Science
https://www.readbyqxmd.com/read/28965095/understanding-patients-experiences-of-the-wish-to-hasten-death-an-updated-and-expanded-systematic-review-and-meta-ethnography
#17
Andrea Rodríguez-Prat, Albert Balaguer, Andrew Booth, Cristina Monforte-Royo
OBJECTIVES: Patients with advanced disease sometimes express a wish to hasten death (WTHD). In 2012, we published a systematic review and meta-ethnography of qualitative studies examining the experience and meaning of this phenomenon. Since then, new studies eligible for inclusion have been reported, including in Europe, a region not previously featured, and specifically in countries with different legal frameworks for euthanasia and assisted suicide. The aim of the present study was to update our previous review by including new research and to conduct a new analysis of available data on this topic...
September 29, 2017: BMJ Open
https://www.readbyqxmd.com/read/28958214/conceptualizing-suffering-and-pain
#18
Noelia Bueno-Gómez
BACKGROUND: This article aims to contribute to a better conceptualization of pain and suffering by providing non-essential and non-naturalistic definitions of both phenomena. Contributions of classical evidence-based medicine, the humanistic turn in medicine, as well as the phenomenology and narrative theories of suffering and pain, together with certain conceptions of the person beyond them (the mind-body dichotomy, Cassel's idea of persons as "intact beings") are critically discussed with such purpose...
September 29, 2017: Philosophy, Ethics, and Humanities in Medicine: PEHM
https://www.readbyqxmd.com/read/28947181/serotonergic-hallucinogens-in-the-treatment-of-anxiety-and-depression-in-patients-suffering-from-a-life-threatening-disease-a-systematic-review
#19
REVIEW
Simon Reiche, Leo Hermle, Stefan Gutwinski, Henrik Jungaberle, Peter Gasser, Tomislav Majić
Anxiety and depression are some of the most common psychiatric symptoms of patients suffering with life-threatening diseases, often associated with a low quality of life and a poor overall prognosis. 5-HT2A-receptor agonists (serotonergic hallucinogens, 'psychedelics') like lysergic acid diethylamide (LSD) and psilocybin were first investigated as therapeutic agents in the 1960s. Recently, after a long hiatus period of regulatory obstacles, interest in the clinical use of these substances has resumed. The current article provides a systematic review of studies investigating psychedelics in the treatment of symptoms of existential distress in life-threatening diseases across different periods of research, highlighting how underlying concepts have developed over time...
February 2, 2018: Progress in Neuro-psychopharmacology & Biological Psychiatry
https://www.readbyqxmd.com/read/28940617/longing-a-dynamic-power-in-the-becoming-of-health-when-suffering-from-cancer
#20
REVIEW
Venke Ueland, Dagfinn Nåden, Unni Å Lindström
BACKGROUND: The aim of the study was to gain understanding of existential longing in health and suffering as experienced by persons who have been affected by a cancer disease. The theoretical perspective of the study is K. Eriksson's theory of Caring Science. METHOD: Qualitative interviews with nine women with cancer were transcribed and interpreted using Gadamer's ontological hermeneutics. RESULTS: Four perspectives of longing when suffering from cancer are presented: Longing as a source to call upon for survival, Longing for the life prior to the illness, Longing directed towards deeper relations in everyday life, and Transcending longing moves towards the ultimate fulfilment...
September 21, 2017: Scandinavian Journal of Caring Sciences
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