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https://www.readbyqxmd.com/read/29020846/patients-and-caregivers-needs-experiences-preferences-and-research-priorities-in-spiritual-care-a-focus-group-study-across-nine-countries
#1
Lucy Ellen Selman, Lisa Jane Brighton, Shane Sinclair, Ikali Karvinen, Richard Egan, Peter Speck, Richard A Powell, Ewa Deskur-Smielecka, Myra Glajchen, Shelly Adler, Christina Puchalski, Joy Hunter, Nancy Gikaara, Jonathon Hope
BACKGROUND: Spiritual distress is prevalent in advanced disease, but often neglected, resulting in unnecessary suffering. Evidence to inform spiritual care practices in palliative care is limited. AIM: To explore spiritual care needs, experiences, preferences and research priorities in an international sample of patients with life-limiting disease and family caregivers. DESIGN: Focus group study. SETTING/PARTICIPANTS: Separate patient and caregiver focus groups were conducted at 11 sites in South Africa, Kenya, South Korea, the United States, Canada, the United Kingdom, Belgium, Finland and Poland...
October 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28988657/experiences-of-surviving-a-cardiac-arrest-after-therapeutic-hypothermia-treatment-an-interview-study
#2
Margareta Brännström, Camilla Niederbach, Ann-Charlotte Rödin
BACKGROUND: Cardiac arrest (CA) is often associated with high mortality. In Sweden, it is reported that 13-52 per 100,000 people suffer out-of-hospital CA, and survival to one month is 2-14%. OBJECTIVE: This study aimed to describe people's experiences of surviving a CA after therapeutic hypothermia treatment. METHOD: A descriptive qualitative design was used. Data were collected through individual interviews with seven CA survivors. The collected data were analyzed using qualitative content analysis...
October 4, 2017: International Emergency Nursing
https://www.readbyqxmd.com/read/28971884/development-of-a-trigger-tool-to-identify-adverse-events-and-no-harm-incidents-that-affect-patients-admitted-to-home-healthcare
#3
Marléne Lindblad, Kristina Schildmeijer, Lena Nilsson, Mirjam Ekstedt, Maria Unbeck
BACKGROUND: Adverse events (AEs) and no-harm incidents are common and of great concern in healthcare. A common method for identification of AEs is retrospective record review (RRR) using predefined triggers. This method has been used frequently in inpatient care, but AEs in home healthcare have not been explored to the same extent. The aim of this study was to develop a trigger tool (TT) for the identification of both AEs and no-harm incidents affecting adult patients admitted to home healthcare in Sweden, and to describe the methodology used for this development...
September 29, 2017: BMJ Quality & Safety
https://www.readbyqxmd.com/read/28970302/when-unbearable-suffering-incites-psychiatric-patients-to-request-euthanasia-qualitative-study
#4
Monica Verhofstadt, Lieve Thienpont, Gjalt-Jorn Ygram Peters
BackgroundThe concept of 'unbearable suffering' is central to legislation governing whether euthanasia requests may be granted, but remains insufficiently understood, especially in relation to psychiatric patients.AimsTo provide insights into the suffering experiences of psychiatric patients who have made a request for euthanasia.MethodTestimonials from 26 psychiatric patients who requested euthanasia were analysed using QualiCoder software.ResultsFive domains of suffering were identified: medical, intrapersonal, interpersonal, societal and existential...
October 2017: British Journal of Psychiatry: the Journal of Mental Science
https://www.readbyqxmd.com/read/28965095/understanding-patients-experiences-of-the-wish-to-hasten-death-an-updated-and-expanded-systematic-review-and-meta-ethnography
#5
Andrea Rodríguez-Prat, Albert Balaguer, Andrew Booth, Cristina Monforte-Royo
OBJECTIVES: Patients with advanced disease sometimes express a wish to hasten death (WTHD). In 2012, we published a systematic review and meta-ethnography of qualitative studies examining the experience and meaning of this phenomenon. Since then, new studies eligible for inclusion have been reported, including in Europe, a region not previously featured, and specifically in countries with different legal frameworks for euthanasia and assisted suicide. The aim of the present study was to update our previous review by including new research and to conduct a new analysis of available data on this topic...
September 29, 2017: BMJ Open
https://www.readbyqxmd.com/read/28958214/conceptualizing-suffering-and-pain
#6
Noelia Bueno-Gómez
BACKGROUND: This article aims to contribute to a better conceptualization of pain and suffering by providing non-essential and non-naturalistic definitions of both phenomena. Contributions of classical evidence-based medicine, the humanistic turn in medicine, as well as the phenomenology and narrative theories of suffering and pain, together with certain conceptions of the person beyond them (the mind-body dichotomy, Cassel's idea of persons as "intact beings") are critically discussed with such purpose...
September 29, 2017: Philosophy, Ethics, and Humanities in Medicine: PEHM
https://www.readbyqxmd.com/read/28947181/serotonergic-hallucinogens-in-the-treatment-of-anxiety-and-depression-in-patients-suffering-from-a-life-threatening-disease-a-systematic-review
#7
REVIEW
Simon Reiche, Leo Hermle, Stefan Gutwinski, Henrik Jungaberle, Peter Gasser, Tomislav Majić
Anxiety and depression are some of the most common psychiatric symptoms of patients suffering with life-threatening diseases, often associated with a low quality of life and a poor overall prognosis. 5-HT2A-receptor agonists (serotonergic hallucinogens, 'psychedelics') like lysergic acid diethylamide (LSD) and psilocybin were first investigated as therapeutic agents in the 1960s. Recently, after a long hiatus period of regulatory obstacles, interest in the clinical use of these substances has resumed. The current article provides a systematic review of studies investigating psychedelics in the treatment of symptoms of existential distress in life-threatening diseases across different periods of research, highlighting how underlying concepts have developed over time...
September 22, 2017: Progress in Neuro-psychopharmacology & Biological Psychiatry
https://www.readbyqxmd.com/read/28940617/longing-a-dynamic-power-in-the-becoming-of-health-when-suffering-from-cancer
#8
REVIEW
Venke Ueland, Dagfinn Nåden, Unni Å Lindström
BACKGROUND: The aim of the study was to gain understanding of existential longing in health and suffering as experienced by persons who have been affected by a cancer disease. The theoretical perspective of the study is K. Eriksson's theory of Caring Science. METHOD: Qualitative interviews with nine women with cancer were transcribed and interpreted using Gadamer's ontological hermeneutics. RESULTS: Four perspectives of longing when suffering from cancer are presented: Longing as a source to call upon for survival, Longing for the life prior to the illness, Longing directed towards deeper relations in everyday life, and Transcending longing moves towards the ultimate fulfilment...
September 21, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28899906/does-the-doctrine-of-double-effect-apply-to-the-prescription-of-barbiturates-syme-vs-the-medical-board-of-australia
#9
Xavier Symons
The doctrine of double effect (DDE) is a principle of crucial importance in law and medicine. In medicine, the principle is generally accepted to apply in cases where the treatment necessary to relieve pain and physical suffering runs the risk of hastening the patient's death. More controversially, it has also been used as a justification for withdrawal of treatment from living individuals and physician-assisted suicide. In this paper, I will critique the findings of the controversial Victorian Civil and Administrative Tribunal (VCAT) hearing Syme vs the Medical Board of Australia In that hearing, Dr Rodney Syme, a urologist and euthanasia advocate, was defending his practice of prescribing barbiturates to terminally ill patients...
September 12, 2017: Journal of Medical Ethics
https://www.readbyqxmd.com/read/28880810/theodicies-and-professional-quality-of-life-in-a-nationally-representative-sample-of-chaplains-in-the-veterans-health-administration
#10
Joseph M Currier, Kent D Drescher, Jason A Nieuwsma, Wesley H McCormick
This study examined the role of theodicies or theological/philosophic attempts to resolve existential dilemmas related to evil and human suffering in chaplains' professional quality of life (ProQOL). A nationally representative sample of 298 VHA chaplains completed the recently developed Views of Suffering Scale (Hale-Smith, Park, & Edmondson, 2012 ) and ProQOL-5 (Stamm, 2010 ). Descriptive results revealed that 20-50% endorsed strong theistic beliefs in a compassionate deity who reciprocally suffers with hurting people, God ultimately being responsible for suffering, and that suffering can provide opportunities for intimate encounters with God and personal growth...
October 2017: Journal of Prevention & Intervention in the Community
https://www.readbyqxmd.com/read/28880142/-an-elderly-couple-dies-of-natural-causes-on-the-same-day
#11
S Zwart, E H E Vermeijlen
BACKGROUND: A 77-year-old woman died of metastatic colorectal cancer. On that same day, her 82-year-old husband, who had stayed in bed next to her during the last days of her life, also died. CASE DESCRIPTION: We describe their two separate trajectories to death: anticipated dying and unexpected death with diagnostic uncertainty. We analysed the general practitioner's role in this scenario. Existential suffering was partly the reason for commencing palliative sedation for the husband after his wife had died...
2017: Nederlands Tijdschrift Voor Geneeskunde
https://www.readbyqxmd.com/read/28865868/translation-and-psychometric-testing-of-the-persian-version-of-the-spiritual-needs-questionnaire-among-elders-with-chronic-diseases
#12
Babak Moeini, Hadi Zamanian, Zahra Taheri-Kharameh, Tahereh Ramezani, Mohamadhasan Saati-Asr, Mohamadhasan Hajrahimian, Mohammadali Amini-Tehrani
CONTEXT: Spirituality plays an important role in coping with chronic diseases for patients and they often report unmet spiritual and existential needs, which should be considered for a holistic view of their health. Studying spiritual needs in this generation requires culturally appropriate and valid instruments. The aim of this study is to determine the psychometric properties, such as validity, reliability, and factor structure of the Persian version of Spiritual Needs Questionnaire (SpNQ)...
September 1, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28861916/risking-existence-the-experience-and-handling-of-depression
#13
Marte Bygstad-Landro, Tove Giske
AIM: To gain insight into how people suffering from depression experience and manage life. BACKGROUND: Depression is the leading cause of incapacitation and constitutes the second largest healthcare burden worldwide, causing considerable discomfort for depression sufferers and their significant others. Depression must be understood against the backdrop of a person's context as well as biological, psychological, and social factors. While various studies have been conducted on the process of depression, only a few studies have examined its existential aspects...
August 31, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/28840602/longing-for-homeliness-exploring-mealtime-experiences-of-patients-suffering-from-a-neurological-disease
#14
Malene Beck, Ingrid Poulsen, Bente Martinsen, Regner Birkelund
BACKGROUND: Many patients suffering from a neurological disease experience eating difficulties during mealtimes in the hospital. Consequently, they often refrain from eating in public places to avoid potentially awkward situations. Eating is an essential part of life, providing patients with comfort during their hospitalisation. Therefore, attention should be paid to these patients, who encounter eating difficulties to foster a positive mealtime experience. AIM: To study what patients afflicted with a neurological disease experience and assign meaning when participating in mealtimes during hospitalisation...
August 24, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28827935/signs-of-spiritual-distress-and-its-implications-for-practice-in-indian-palliative-care
#15
Sushma Bhatnagar, Joris Gielen, Aanchal Satija, Suraj Pal Singh, Simon Noble, Santosh K Chaturvedi
INTRODUCTION: Given the particularity of spirituality in the Indian context, models and tools for spiritual care that have been developed in Western countries may not be applicable to Indian palliative care patients. Therefore, we intended to describe the most common signs of spiritual distress in Indian palliative care patients, assess differences between male and female participants, and formulate contextually appropriate recommendations for spiritual care based on this data. METHODS: Data from 300 adult cancer patients who had completed a questionnaire with 36 spirituality items were analyzed...
July 2017: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/28799170/mothers-experiences-of-having-a-premature-infant-due-to-pre-eclampsia
#16
Inger Emilie Vaerland, Kari Vevatne, Berit Støre Brinchmann
AIM: Pre-eclampsia can lead to premature birth aimed at saving mothers' and infants' lives. Few studies have addressed how women with serious pre-eclampsia experience to become mothers to a premature infant. The aim was to describe the phenomenon of mothers' experience of being a seriously ill with pre-eclampsia and on the same time becoming a mother of a premature infant. METHODOLOGY: A reflective phenomenological lifeworld approach with a descriptive design was used...
August 10, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28768678/a-concept-map-of-death-related-anxieties-in-patients-with-advanced-cancer
#17
Sigrun Vehling, Carmine Malfitano, Joanna Shnall, Sarah Watt, Tania Panday, Aubrey Chiu, Anne Rydall, Camilla Zimmermann, Sarah Hales, Gary Rodin, Christopher Lo
OBJECTIVES: Fear of death and dying is common in patients with advanced cancer, but can be difficult to address in clinical conversations. We aimed to show that the experience of death anxiety may be deconstructed into a network of specific concerns and to provide a map of their interconnections to aid clinical exploration. METHODS: We studied a sample of 382 patients with advanced cancer recruited from outpatient clinics at the Princess Margaret Cancer Centre, Toronto, Canada...
August 2, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28736789/spiritual-distress-and-spiritual-care-in-advanced-heart-failure
#18
REVIEW
Ronald Gillilan, Sameena Qawi, Audrey J Weymiller, Christina Puchalski
As patients face serious and chronic illness, they are confronted with the realities of dying. Spiritual and existential issues are particularly prominent near the end of life and can result in significant distress. It is critical that healthcare professionals know how to address patients' and families' spiritual concerns, diagnose spiritual distress and attend to the deep suffering of patients in a way that can result in a better quality of life for patients and families. Tools such as the FICA spiritual history tool help clinicians invite patients and families to share their spiritual or existential concerns as well as sources of hope and meaning which can help them cope better with their illness...
July 24, 2017: Heart Failure Reviews
https://www.readbyqxmd.com/read/28707846/palliative-sedation-ethical-aspects
#19
Guido Miccinesi, Augusto Caraceni, Marco Maltoni
Palliative sedation (PS), the medical act of decreasing a patient's awareness to relieve otherwise intractable suffering, is considered by some commentators to be controversial because of its consequences on residual survival and/or quality of life, and to be inappropriate for treating pure existential suffering. We will argue that PS must be always proportional, i.e. controlling refractory symptoms while keeping the loss of personal values (communication, affective relationships, care relationship) as low as possible, and that imminence of death is necessary too, from an ethical point of view, if a deep and continuous sedation (DCS) is proposed...
July 12, 2017: Minerva Anestesiologica
https://www.readbyqxmd.com/read/28699208/being-in-a-standstill-of-life-women-s-experience-of-being-diagnosed-with-systemic-lupus-erythematosus-a-hermeneutic-phenomenological-study
#20
Janni Lisander Larsen, Elisabeth O C Hall, Søren Jacobsen, Regner Birkelund
Systemic lupus erythematosus (SLE) is a highly unpredictable and potentially lethal disease which ultimately challenges identity, future and the meaning of life. In a caring context, the experience of good health is perceived to be a balance between biomedical health and the existential experience of having a good life. This balance is jeopardised in the face of severe chronic illness and leads to extensive suffering if not handled carefully. Research suggests that patients suffering from severe chronic illness need support on an existential level, but also emphasises that, given its elusive nature, caring for the existential dimension is difficult to manage...
July 12, 2017: Scandinavian Journal of Caring Sciences
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