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Existential suffering

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https://www.readbyqxmd.com/read/28827935/signs-of-spiritual-distress-and-its-implications-for-practice-in-indian-palliative-care
#1
Sushma Bhatnagar, Joris Gielen, Aanchal Satija, Suraj Pal Singh, Simon Noble, Santosh K Chaturvedi
INTRODUCTION: Given the particularity of spirituality in the Indian context, models and tools for spiritual care that have been developed in Western countries may not be applicable to Indian palliative care patients. Therefore, we intended to describe the most common signs of spiritual distress in Indian palliative care patients, assess differences between male and female participants, and formulate contextually appropriate recommendations for spiritual care based on this data. METHODS: Data from 300 adult cancer patients who had completed a questionnaire with 36 spirituality items were analyzed...
July 2017: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/28799170/mothers-experiences-of-having-a-premature-infant-due-to-pre-eclampsia
#2
Inger Emilie Vaerland, Kari Vevatne, Berit Støre Brinchmann
AIM: Pre-eclampsia can lead to premature birth aimed at saving mothers' and infants' lives. Few studies have addressed how women with serious pre-eclampsia experience to become mothers to a premature infant. The aim was to describe the phenomenon of mothers' experience of being a seriously ill with pre-eclampsia and on the same time becoming a mother of a premature infant. METHODOLOGY: A reflective phenomenological lifeworld approach with a descriptive design was used...
August 10, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28768678/a-concept-map-of-death-related-anxieties-in-patients-with-advanced-cancer
#3
Sigrun Vehling, Carmine Malfitano, Joanna Shnall, Sarah Watt, Tania Panday, Aubrey Chiu, Anne Rydall, Camilla Zimmermann, Sarah Hales, Gary Rodin, Christopher Lo
OBJECTIVES: Fear of death and dying is common in patients with advanced cancer, but can be difficult to address in clinical conversations. We aimed to show that the experience of death anxiety may be deconstructed into a network of specific concerns and to provide a map of their interconnections to aid clinical exploration. METHODS: We studied a sample of 382 patients with advanced cancer recruited from outpatient clinics at the Princess Margaret Cancer Centre, Toronto, Canada...
August 2, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28736789/spiritual-distress-and-spiritual-care-in-advanced-heart-failure
#4
REVIEW
Ronald Gillilan, Sameena Qawi, Audrey J Weymiller, Christina Puchalski
As patients face serious and chronic illness, they are confronted with the realities of dying. Spiritual and existential issues are particularly prominent near the end of life and can result in significant distress. It is critical that healthcare professionals know how to address patients' and families' spiritual concerns, diagnose spiritual distress and attend to the deep suffering of patients in a way that can result in a better quality of life for patients and families. Tools such as the FICA spiritual history tool help clinicians invite patients and families to share their spiritual or existential concerns as well as sources of hope and meaning which can help them cope better with their illness...
July 24, 2017: Heart Failure Reviews
https://www.readbyqxmd.com/read/28707846/palliative-sedation-ethical-aspects
#5
Guido Miccinesi, Augusto Caraceni, Marco Maltoni
Palliative sedation (PS), the medical act of decreasing a patient's awareness to relieve otherwise intractable suffering, is considered by some commentators to be controversial because of its consequences on residual survival and/or quality of life, and to be inappropriate for treating pure existential suffering. We will argue that PS must be always proportional, i.e. controlling refractory symptoms while keeping the loss of personal values (communication, affective relationships, care relationship) as low as possible, and that imminence of death is necessary too, from an ethical point of view, if a deep and continuous sedation (DCS) is proposed...
July 12, 2017: Minerva Anestesiologica
https://www.readbyqxmd.com/read/28699208/being-in-a-standstill-of-life-women-s-experience-of-being-diagnosed-with-systemic-lupus-erythematosus-a-hermeneutic-phenomenological-study
#6
Janni Lisander Larsen, Elisabeth O C Hall, Søren Jacobsen, Regner Birkelund
Systemic lupus erythematosus (SLE) is a highly unpredictable and potentially lethal disease which ultimately challenges identity, future and the meaning of life. In a caring context, the experience of good health is perceived to be a balance between biomedical health and the existential experience of having a good life. This balance is jeopardised in the face of severe chronic illness and leads to extensive suffering if not handled carefully. Research suggests that patients suffering from severe chronic illness need support on an existential level, but also emphasises that, given its elusive nature, caring for the existential dimension is difficult to manage...
July 12, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28614103/genocide-rape-trauma-management-an-integrated-framework-for-supporting-survivors
#7
Donatilla Mukamana, Petra Brysiewicz, Anthony Collins, William Rosa
During the 1994 Rwandan genocide, rape was widely used as a strategic weapon against Tutsi women. More than 20 years later, many of these women are still suffering devastating psychological, social, and physical effects of these experiences and remain in need of effective interventions that address their complex trauma. This article develops the theory of genocide rape trauma management as a conceptual framework for promoting the holistic health and recovery of female genocide rape survivors. A qualitative study using grounded theory explored the lived experiences of genocide rape survivors and led to the development of this model...
June 13, 2017: ANS. Advances in Nursing Science
https://www.readbyqxmd.com/read/28595441/healing-spirituality-and-integrative-medicine
#8
David M Steinhorn, Jana Din, Angela Johnson
Spirituality plays a prominent role in the lives of most palliative patients whether or not they formally adhere to a specific religion and belief. As a result, the palliative care team is frequently called upon to support families who are experiencing their "dark night of the soul" and struggling to make sense of their lives during a healthcare crisis. While conventional religious practices provide a source of comfort and guidance for many of our patients, a significant number of our patients do not have a strong religious community to which to turn...
May 22, 2017: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/28567169/patients%C3%A2-variations-of-reflection-about-and-understanding-of-long-term-illness-impact-of-illness-perception-on-trust-in-oneself-or-others
#9
Håkan Nunstedt, Gudrun Rudolfsson, Pia Alsen, Sandra Pennbrant
BACKGROUND: Patients' understanding of their illness is of great importance for recovery. Lacking understanding of the illness is linked with the patients' level of reflection about and interest in understanding their illness. OBJECTIVE: To describe patients' variations of reflection about and understanding of their illness and how this understanding affects their trust in themselves or others. METHOD: The study is based on the "Illness perception" model...
2017: Open Nursing Journal
https://www.readbyqxmd.com/read/28512684/therapeutic-applications-of-classic-hallucinogens
#10
Michael P Bogenschutz, Stephen Ross
This chapter reviews what is known about the therapeutic uses of the serotonergic or classic hallucinogens, i.e., psychoactive drugs such as LSD and psilocybin that exert their effects primarily through agonist activity at serotonin 2A (5HT2A) receptors. Following a review of the history of human use and scientific study of these drugs, the data from clinical research are summarized, including extensive work on the use of classic hallucinogens in the treatment of alcoholism and other addictions, studies of the use of LSD and psilocybin to relieve distress concerning death, particularly in patients with advanced or terminal cancer, and more limited data concerning the use of classic hallucinogens to treat mood and anxiety disorders...
May 18, 2017: Current Topics in Behavioral Neurosciences
https://www.readbyqxmd.com/read/28509335/dignity-conserving-care-actions-in-palliative-care-an-integrative-review-of-swedish-research
#11
REVIEW
Carina Werkander Harstäde, Karin Blomberg, Eva Benzein, Ulrika Östlund
BACKGROUND: Previous research has proposed that persons in need of palliative care often have a loss of functions and roles that affects social and existential self-image. Moreover, these individuals also commonly suffer from complex multisymptoms. This, together with the situation of facing an impending death, can lead to a loss of dignity. Therefore, supporting these persons' dignity is a crucial challenge for professional nurses. The 'Dignity Care Intervention' addresses the multidimensionality of dignity by identifying patients' dignity-related concerns and suggests care actions to address them...
May 16, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28498025/understanding-meaning-in-life-interventions-in-patients-with-advanced-disease-a-systematic-review-and-realist-synthesis
#12
Mariona Guerrero-Torrelles, Cristina Monforte-Royo, Andrea Rodríguez-Prat, Josep Porta-Sales, Albert Balaguer
BACKGROUND: Among patients with advanced disease, meaning in life is thought to enhance well-being, promote coping and improve the tolerance of physical symptoms. It may also act as a buffer against depression and hopelessness. As yet, there has been no synthesis of meaning in life interventions in which contextual factors, procedures and outcomes are described and evaluated. AIMS: To identify meaning in life interventions implemented in patients with advanced disease and to describe their context, mechanisms and outcomes...
February 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28374105/suffering-and-dying-well-on-the-proper-aim-of-palliative-care
#13
Govert den Hartogh
In recent years a large empirical literature has appeared on suffering at the end of life. In this literature it is recognized that suffering has existential and social dimensions in addition to physical and psychological ones. The non-physical aspects of suffering, however, are still understood as pathological symptoms, to be reduced by therapeutical interventions as much as possible. But suffering itself and the negative emotional states it consists of are intentional states of mind which, as such, make cognitive claims: they are more or less appropriate responses to the actual circumstances of the patient...
April 3, 2017: Medicine, Health Care, and Philosophy
https://www.readbyqxmd.com/read/28239195/who-is-the-scientist-subject-a-critique-of-the-neo-kantian-scientist-subject-in-lorraine-daston-and-peter-galison-s-objectivity
#14
REVIEW
Esha Shah
The main focus of this essay is to closely engage with the role of scientist-subjectivity in the making of objectivity in Lorraine Daston and Peter Galison's book Objectivity, and Daston's later and earlier works On Scientific Observation and The Moral Economy of Science. I have posited four challenges to the neo-Kantian and Foucauldian constructions of the co-implication of psychology and epistemology presented in these texts. Firstly, following Jacques Lacan's work, I have argued that the subject of science constituted by the mode of modern science suffers from paranoia...
2017: Minerva
https://www.readbyqxmd.com/read/28230460/meditation-and-hypnosis-two-sides-of-the-same-coin
#15
Enrico Facco
Hypnosis and meditation, as a whole, form a heterogeneous complex of psychosomatic techniques able to control mind and body regulation. Hypnosis has been pragmatically used for limited therapeutic targets, while Eastern meditation has much wider philosophical and existential implications, aiming for a radical liberation from all illusions, attachments, suffering and pain. The available data on the history, phenomenology, and neuropsychology of hypnosis and meditation show several common features, such as the following: (a) induction based on focused attention; (b) capability to reach an intentional control of both biologic-somatic activities and conscious-unconscious processes;...
April 2017: International Journal of Clinical and Experimental Hypnosis
https://www.readbyqxmd.com/read/28156592/symptom-burden-and-distress-in-patients-with-cancer-in-africa
#16
(no author information available yet)
255 Background: Cancer has become a significant public health problem in Africa but still most diagnoses are made late, Sitas et al (2006). The need for palliative care is significant due to the late contact with health care providers and the many symptoms they present with. No study has been undertaken to assess symptomatology for these patients in Africa. OBJECTIVE: To study the prevalence of symptoms in patients with cancer in an African setting. METHODS: Symptom studies from records of patients with cancer referred to the Palliative Care Services at the Aga Khan University Hospital, Nairobi in 6 months...
October 9, 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28156526/integrating-contemplative-and-spiritual-care-in-outpatient-palliative-care-a-pilot-study
#17
Alex Beth Schapiro
247 Background: Spiritual support is associated with better outcomes in cancer care and at the end of life (1, 2). Consensus guidelines advocate for incorporating spiritual care in the provision of specialist level palliative care (3). Contemplative care practices and chaplaincy interventions have the potential for mitigating existential distress, cultivating prognostic awareness, and fostering spiritual approaches to grieving and coping with advanced cancer. We present the results of a pilot program demonstrating the feasibility and impact of integrating a contemplative care chaplain in an outpatient palliative care program in a culturally diverse patient population in a large, academic cancer center...
October 9, 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28110028/surgical-ethical-and-psychosocial-considerations-in-human-head-transplantation
#18
REVIEW
Allen Furr, Mark A Hardy, Juan P Barret, John H Barker
Transplanting a head and brain is perhaps the final frontier of organ transplantation. The goal of body-to-head transplantation (BHT) is to sustain the life of individuals who suffer from terminal disease, but whose head and brain are healthy. Ideally BHT could provide a lifesaving treatment for several conditions where none currently exists. BHT is no ordinary experiment, to transfer a head to another body involves extraordinarily complex medical challenges as well as ethical and existential dilemmas that were previously confined to the imagination of writers of fiction...
May 2017: International Journal of Surgery
https://www.readbyqxmd.com/read/28032560/patients-experience-of-acute-unplanned-surgical-reoperation
#19
Maria Dillström, Kristofer Bjerså, My Engström
BACKGROUND: Undergoing surgery always involves various risks of complications, often depending on the type of surgery. Because of complications, a second surgical intervention, a reoperation, must occasionally be done, which in turn often causes an extended hospital stay, a longer recovery phase, greater suffering for the patient, and higher health care costs. Even though complications after general surgery are relatively common, little is known regarding patient experience of a reoperation...
March 2017: Journal of Surgical Research
https://www.readbyqxmd.com/read/27920549/management-of-hypoglycemia-in-nondiabetic-palliative-care-patients-a-prognosis-based-approach
#20
REVIEW
Victor C Kok, Ping-Hsueh Lee
Hypoglycemia due to underlying terminal illness in nondiabetic end-of-life patients receiving palliative care has not been fully studied. For example, we do not have adequate information on the frequency of spontaneous hypoglycemia in patients as occurs during the different stages of palliative care. Depending on the case-mix nature of the palliative care ward, at least 2% of palliative care patients may develop hypoglycemia near the end of life when the remaining life expectancy counts down in days. As many as 25%-60% of these patients will neither have autonomic response nor have neuroglycopenic symptoms during a hypoglycemic episode...
2016: Palliative Care
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