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https://www.readbyqxmd.com/read/28906549/developing-a-protocol-to-identify-and-prioritise-research-questions-for-psoriasis-a-james-lind-alliance-priority-setting-partnership
#1
R Majeed-Ariss, M McPhee, C Bundy, C E M Griffiths, H Young
BACKGROUND: Psoriasis affects over two million people in the UK. It confers a significant psychological and social impact on individuals and an associated high economic cost to the National Health Service. There are many unanswered questions about psoriasis. OBJECTIVES: 1. To develop a protocol in order to work with patients, families, carers and healthcare professionals to identify psoriasis uncertainties. 2. To agree by consensus a top ten list of psoriasis uncertainties...
September 14, 2017: British Journal of Dermatology
https://www.readbyqxmd.com/read/28898740/transition-from-children-s-to-adult-services-for-young-adults-with-life-limiting-conditions-a-realist-review-of-the-literature
#2
REVIEW
Helen Kerr, Jayne Price, Honor Nicholl, Peter O'Halloran
BACKGROUND: Improvements in care and treatment have led to more young adults with life-limiting conditions living beyond childhood, which means they must make the transition from children's to adult services. This has proved a challenging process for both young adults and service providers, with complex transition interventions interacting in unpredictable ways with local contexts. OBJECTIVES: To explain how intervention processes interact with contextual factors to help transition from children's to adult services for young adults with life-limiting conditions...
June 23, 2017: International Journal of Nursing Studies
https://www.readbyqxmd.com/read/28891356/benefits-and-burdens-family-caregivers-experiences-of-assistive-technology-at-in-everyday-life-with-persons-with-young-onset-dementia-yod
#3
Torhild Holthe, Rita Jentoft, Cathrine Arntzen, Kirsten Thorsen
BACKGROUND: People with dementia and their family caregivers may benefit from assistive technology (AT), but knowledge is scarce about family carers' (FC) experiences and involvement in the use of AT in everyday life. AIM: To examine the FC roles and experiences with AT as means of supporting people with young onset-dementia (YOD). METHOD: Qualitative interview study with follow-up design. Repeated semi-structured interviews were conducted with 13 FC of people with YOD, participating in an ongoing intervention study investigating the families' use and experiences of AT in everyday life...
September 11, 2017: Disability and Rehabilitation. Assistive Technology
https://www.readbyqxmd.com/read/28861649/parents-suggest-which-indicators-of-progress-and-outcomes-should-be-measured-in-young-children-with-autism-spectrum-disorder
#4
Helen McConachie, Nuala Livingstone, Christopher Morris, Bryony Beresford, Ann Le Couteur, Paul Gringras, Deborah Garland, Glenys Jones, Geraldine Macdonald, Katrina Williams, Jeremy R Parr
Evaluation of interventions for children with autism spectrum disorder (ASD) is hampered by the multitude of outcomes measured and tools used. Measurement in research with young children tends to focus on core impairments in ASD. We conducted a systematic review of qualitative studies of what matters to parents. Parent advisory groups completed structured activities to explore their perceptions of the relative importance of a wide range of outcome constructs. Their highest ranked outcomes impacted directly on everyday life and functioning (anxiety, distress, hypersensitivity, sleep problems, happiness, relationships with brothers and sisters, and parent stress)...
August 31, 2017: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/28853665/rights-for-carers
#5
(no author information available yet)
In April 2018, the Carers' Act comes into force in Scotland to ensure the rights of adult and young carers are recognised and upheld, and that they receive consistent and appropriate support to continue their caring role.
August 30, 2017: Nursing Management (Harrow)
https://www.readbyqxmd.com/read/28843442/availability-of-information-on-young-onset-dementia-for-patients-and-carers-in-six-european-countries
#6
Bridget Jones, Heather Gage, Christian Bakker, Helena Barrios, Sarah Boucault, Johannes Mayer, Anna Metcalfe, Joany Millenaar, Wendy Parker, Anneli Orrung Wallin
OBJECTIVES: To identify information available in six European countries (England, France, Germany, Netherlands, Portugal, Sweden) that addresses the specific needs of people with young onset dementia (YOD) and their carers, and identify gaps. METHODS: Search of websites of organisations with potential interest in dementia. Narrative synthesis and comparative analysis. RESULTS: 21 sources of information were identified (Netherlands 6, England 6, France 3, Germany 2, Portugal 2, Sweden 2); 11 were from voluntary sector organisations...
July 13, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28822253/clout-or-doubt-perspectives-on-an-infant-mental-health-service-for-young-children-placed-in-foster-care-due-to-abuse-and-neglect
#7
Fiona Turner-Halliday, Gary Kainth, Genevieve Young-Southward, Richard Cotmore, Nicholas Watson, Lynn McMahon, Helen Minnis
Despite knowledge about the profound effects of child abuse and neglect, we know little about how best to assess whether maltreated children should return home. The effectiveness of the New Orleans Intervention Model (NIM) is being tested in a randomized controlled trial where the comparison is social work 'services as usual.' The future trial results will tell us which approach produces the best outcomes for children; meanwhile qualitative process evaluation is generating intriguing findings about the perceived impact of NIM on decision-making about childrens' futures...
August 16, 2017: Child Abuse & Neglect
https://www.readbyqxmd.com/read/28770976/non-steroidal-anti-inflammatory-drugs-nsaids-for-chronic-non-cancer-pain-in-children-and-adolescents
#8
REVIEW
Christopher Eccleston, Tess E Cooper, Emma Fisher, Brian Anderson, Nick Mr Wilkinson
BACKGROUND: Pain is a common feature of childhood and adolescence around the world, and for many young people, that pain is chronic. The World Health Organization guidelines for pharmacological treatments for children's persisting pain acknowledge that pain in children is a major public health concern of high significance in most parts of the world. While in the past pain was largely dismissed and was frequently left untreated, views on children's pain have changed over time, and relief of pain is now seen as important...
August 2, 2017: Cochrane Database of Systematic Reviews
https://www.readbyqxmd.com/read/28767308/young-carer-awareness-identification-and-referral
#9
REVIEW
Sally Sprung, Michelle Laing
Young carers often provide care because they have always done so for the people they care about, and because they believe that the care recipient could not manage without them. For many young carers, looking after their own health, combining caring with schoolwork, getting access to training or having time off from carer duties can be a major challenge ( Department of Health [DH], 2008 ). This paper presents evidence from a literature review that builds a substantial body of knowledge to suggest that community nursing teams must develop supportive approaches towards increasing an awareness of young carers' needs...
August 2, 2017: British Journal of Community Nursing
https://www.readbyqxmd.com/read/28765679/placement-instability-among-young-people-removed-from-their-original-family-and-the-likely-mental-health-implications
#10
Simon Rice, Sue Cotton, Kristen Moeller-Saxone, Cathrine Mihalopoulos, Anne Magnus, Carol Harvey, Cathy Humphreys, Stephen Halperin, Angela Scheppokat, Patrick McGorry, Helen Herrman
BACKGROUND: Young people in out-of-home care are more likely to experience poorer mental and physical health outcomes related to their peers. Stable care environments are essential for ameliorating impacts of disruptive early childhood experiences, including exposure to psychological trauma, abuse and neglect. At present there are very few high quality data regarding the placement stability history of young people in out-of-home care in Australia or other countries. OBJECTIVES: To undertake the first systematic census of background, care type and placement stability characteristics of young people living in the out-of-home care sector in Australia...
April 25, 2017: Shanghai Archives of Psychiatry
https://www.readbyqxmd.com/read/28760802/this-much-water-a-qualitative-study-using-behavioural-theory-to-develop-a-community-service-video-to-prevent-child-drowning-in-western-australia
#11
Mel Denehy, Justine E Leavy, Jonine Jancey, Lauren Nimmo, Gemma Crawford
OBJECTIVES: Drowning in children under the age of 5 is a frequently occurring, yet preventable event. This research used behavioural theory to test the suitability and appropriateness of a drowning prevention message in a community service video. DESIGN: This qualitative study used content analysis of focus groups. Constructs from the Health Belief Model guided the data analysis. SETTING: Community organisations and playgrounds in Perth, Western Australia...
July 31, 2017: BMJ Open
https://www.readbyqxmd.com/read/28752631/what-approaches-for-promoting-shared-decision-making-are-used-in-child-mental-health-a-scoping-review
#12
Helen Cheng, Daniel Hayes, Julian Edbrooke-Childs, Kate Martin, Louise Chapman, Miranda Wolpert
OBJECTIVE: Whilst the benefits of shared decision-making (SDM) have been promoted across different health settings, its implementation is complex, particularly for children and young people with mental health difficulties. The aim of this scoping review was to identify and describe SDM approaches (tools, techniques, and technologies) used in child and youth mental health. METHOD: Electronic databases and grey literature were searched. Papers were included if they satisfied these criteria: English language; described an SDM approach (tool, technique, or technology); included sufficient detail on the SDM approach for quality assessment; did not use only a questionnaire to provide feedback on SDM or related concepts (e...
July 28, 2017: Clinical Psychology & Psychotherapy
https://www.readbyqxmd.com/read/28716845/caring-for-young-carers-in-canada
#13
Nicholas Chadi, Vivian Stamatopoulos
No abstract text is available yet for this article.
July 17, 2017: CMAJ: Canadian Medical Association Journal, Journal de L'Association Medicale Canadienne
https://www.readbyqxmd.com/read/28708838/decreasing-rates-of-disorganised-attachment-in-infants-and-young-children-who-are-at-risk-of-developing-or-who-already-have-disorganised-attachment-a-systematic-review-and-meta-analysis-of-early-parenting-interventions
#14
Barry Wright, Lisa Hackney, Ellen Hughes, Melissa Barry, Danya Glaser, Vivien Prior, Victoria Allgar, David Marshall, Jamie Barrow, Natalie Kirby, Megan Garside, Pulkit Kaushal, Amanda Perry, Dean McMillan
BACKGROUND: Disorganised attachment patterns in infants have been linked to later psychopathology. Services have variable practices for identifying and providing interventions for families of children with disorganised attachment patterns, which is the attachment pattern leading to most future psychopathology. Several recent government reports have highlighted the need for better parenting interventions in at risk groups. OBJECTIVES: The objective of this review and meta-analysis was to evaluate the clinical effectiveness of available parenting interventions for families of children at high risk of developing, or already showing, a disorganised pattern of attachment...
2017: PloS One
https://www.readbyqxmd.com/read/28705560/les-enjeux-de-la-transition-de-la-p%C3%A3-diatrie-vers-la-m%C3%A3-decine-d%C3%A2-adultes
#15
Nizar Mahlaoui, Béatrice Langellier-Bellevue
The transfer or transition from paediatric care to adult medicine is, for a large number of adolescents and young adults being monitored for a rare and/or chronic pathology, as well as for the care teams, a critical period in their medical journey and in their life. It is both an individual and a public health issue, with medical-economic consequences. At the hôpital Necker-Enfants malades in Paris, a specific programme has been implemented aimed at the patients and carers.
July 2017: Soins. Pédiatrie, Puériculture
https://www.readbyqxmd.com/read/28692351/still-lost-in-transition
#16
Nicholas Medforth, Elaine Huntingdon
Numerous policy directives highlight the need for planned and well-coordinated support to enable young people with long-term conditions and disabilities to negotiate the transition to adulthood, including making the leap from children-oriented to adult- centered health services. The journey is complex and multi-dimensional. For young people with a disability, long-term condition, or mental health problem there are additional challenges when transitioning between services with differences in expectations, delivery, and culture...
July 10, 2017: Compr Child Adolesc Nurs
https://www.readbyqxmd.com/read/28647791/premonitory-symptoms-of-migraine-in-childhood-and-adolescence
#17
REVIEW
N Karsan, P Prabhakar, P J Goadsby
PURPOSE OF REVIEW: Premonitory symptoms in migraine; symptoms occurring before the onset of migraine pain or aura, are an increasingly recognised area of interest within headache research. It has been recently documented in the literature that these symptoms also occur in children and adolescents, with a comparable phenotype to adults. This review discusses the wide presentation of premonitory symptoms in migraine in children and adolescents, and the importance of understanding how these early symptoms are mediated in order to ensure that targeted abortive therapies are developed in the future...
July 2017: Current Pain and Headache Reports
https://www.readbyqxmd.com/read/28641167/exploring-the-role-of-knowledge-of-condition-and-psycho-social-profiles-of-young-people-with-epilepsy-during-transition
#18
Victoria Gray, Lucy Palmer, Kayleigh Whelby, Jacqui Vinten, Lucy Gait
Transitioning from paediatric to adult care can be a particularly challenging time for young people with epilepsy and research has shown that there are a range of factors which may influence a young person's ability to successfully cope with this difficult time. The following study aimed to explore the psychosocial characteristics of this transitioning population, as well as investigate how knowledgeable the young person and their parent/carer are of their own condition throughout transition. Young people with epilepsy were recruited from two specialist epilepsy clinics in the North West and allocated to one of three groups; Group 1 pre-transition, Group 2 transitioning, and Group 3 post-transition...
June 19, 2017: Epilepsy & Behavior: E&B
https://www.readbyqxmd.com/read/28621174/associations-between-family-and-clinician-ratings-of-child-mental-health-a-study-of-uk-camhs-assessments-and-outcomes
#19
Dion N Terrelonge, Andrew Jb Fugard
BACKGROUND: The rated severity of child mental health problems depends on who is doing the rating, whether child, carer or clinician. It is important to know how these ratings relate to each other. AIMS: To investigate to what extent clinicians' views are associated with carers' and young people's views in routine care in the United Kingdom. METHOD: Ratings of clinician and parent/child viewpoints from a large Child and Adolescent Mental Health Services (CAMHS) sample ( ns 1773-47,299), as measured by the Children's Global Assessment Scale (CGAS) and Strengths and Difficulties Questionnaire (SDQ) respectively, were analysed...
June 1, 2017: Clinical Child Psychology and Psychiatry
https://www.readbyqxmd.com/read/28617944/inequity-in-timing-of-prenatal-screening-in-new-zealand-who-are-our-most-vulnerable
#20
Olivia Payne, Avinesh Pillai, Michelle Wise, Peter Stone
BACKGROUND: In New Zealand (NZ), Maori and Pacific women are less likely to complete prenatal screening for Down's syndrome and other aneuploidies than other ethnic groups. Young women <20 have low rates of completed screening compared with women >20 years. Women living in deprived areas have lower completed screen rates than women living in more affluent areas. Combined first trimester screening has a superior sensitivity (85%) compared with second trimester screening (75%) for trisomy 21...
June 15, 2017: Australian & New Zealand Journal of Obstetrics & Gynaecology
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