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https://www.readbyqxmd.com/read/29766533/a-cross-sectional-study-on-experiences-of-young-adult-carers-compared-to-young-adult-noncarers-parentification-coping-and-resilience
#1
REVIEW
Nicolle P G Boumans, Elisabeth Dorant
BACKGROUND: Most young carer studies on parentification, resilience and coping concentrated on child carers up to age 18 years, whereas the group of young adult caregivers (18-24 years) has been neglected. In our study, we focused on these young adult caregivers, who are in a life phase in which young people usually are distancing themselves from their families and are striving for autonomy and freedom. AIM: To explore young adult carers' perceptions of parentification, resilience and coping compared to young adult noncarers...
May 15, 2018: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/29761582/blended-diets-for-gastrostomy-fed-children-and-young-people-a-scoping-review
#2
REVIEW
Anne Breaks, Christina Smith, Steven Bloch, Sally Morgan
BACKGROUND: The present review aimed to identify what is known about the use of blended diets in gastrostomy fed children and young people (i.e. children and young people refers to those who are aged up to 25 years with special educational needs or a disability in accordance with Part 3 of the Children and Family Act 2014; within the review, the word children is used for simplicity but encompasses young people too) and to identify gaps in the literature on this topic to inform future research and policy...
May 15, 2018: Journal of Human Nutrition and Dietetics: the Official Journal of the British Dietetic Association
https://www.readbyqxmd.com/read/29739282/young-people-who-display-harmful-sexual-behaviors-and-their-families-a-qualitative-systematic-review-of-their-experiences-of-professional-interventions
#3
Fiona Campbell, Andrew Booth, Simon Hackett, Anthea Sutton
It is estimated that 30-50% of all childhood sexual abuse involves other young people as perpetrators. The treatment of harmful sexual behavior (HSB) in young people has evolved from interventions developed for use with adult perpetrators of sexual offenses. Increasingly, these approaches were not seen as appropriate for use with young people. The purpose of this qualitative systematic review was to establish what intervention components are viewed as acceptable or useful by young people and their families in order to inform the development of interventions for young people with HSB...
January 1, 2018: Trauma, Violence & Abuse
https://www.readbyqxmd.com/read/29729535/the-emotional-and-behavioural-symptom-trajectories-of-children-in-long-term-out-of-home-care-in-an-english-local-authority
#4
Rachel M Hiller, Michelle C St Clair
The significant mental health needs of young people in out-of-home care has been well-documented. However, there is little empirical evidence on the timing or development of these difficulties, once these young people have been removed from the maltreatment-environment. Such information may provide useful clinical insight in to how problems develop and persist and whether intervention timings may allow for the prevention of later mental health problems. The current service-data study explored the emotional and behavioural symptom trajectories of 207 young people under the long-term care of a local authority in the South West of England, over their first five years in the care system...
May 1, 2018: Child Abuse & Neglect
https://www.readbyqxmd.com/read/29700932/yarning-quiet-ways-aboriginal-carers-views-on-talking-to-youth-about-sexuality-and-relationships
#5
Daniel Vujcich, Marilyn Lyford, Chontarle Bellottie, Dawn Bessarab, Sandra Thompson
ISSUE ADDRESSED: Research suggests that young Indigenous people want carers to take a more active role in discussions about sexual health. The aim of this study was to ascertain carers' perspectives of: the importance of providing young people with information about sex and sexual health; what they want young people to know about sex and sexual health; and facilitators and barriers to discussing sex and sexual health with youth. METHODS: Thirteen focus groups and three interviews were conducted with 81 carers in four rural and urban regions of Western Australia...
April 2018: Health Promotion Journal of Australia
https://www.readbyqxmd.com/read/29688140/potential-barriers-in-the-therapeutic-relationship-in-unaccompanied-refugee-minors-in-mental-health
#6
Pallab Majumder, Panos Vostanis, Khalid Karim, Michelle O'Reilly
BACKGROUND: Unaccompanied refugee minors present with disproportionately high prevalence of emotional and psychological morbidities. However, their utilization of mental health services has been shown to be significantly poorer than the indigenous population of the country they seek asylum in. Despite this, there is limited research exploring their perspectives on the barriers they face. AIMS: This research aims to understand unaccompanied refugee minors' and their carers' perceptions of the barriers to utilize mental health services and to explore issues perceived to be related to poor engagement with services...
April 24, 2018: Journal of Mental Health
https://www.readbyqxmd.com/read/29687081/public-and-patient-involvement-in-child-health-research-and-service-improvements-a-survey-of-hospital-doctors
#7
Rachel Winch, Martin Patrick McColgan, Emma Sparrow, Neena Modi, Anne Greenough
Objectives: To determine whether paediatricians are supported by their organisations to encourage patient and public involvement (PPI) in research activities and clinical improvement work, the challenges they face and how they think these could be addressed by the Royal College of Paediatrics and Child Health (RCPCH). Design: A survey. Setting: UK consultant paediatricians and staff associate specialist and specialty (SAS) doctors who are members of RCPCH...
2018: BMJ Paediatrics Open
https://www.readbyqxmd.com/read/29674224/the-young-adult-strengths-and-difficulties-questionnaire-sdq-in-routine-clinical-practice
#8
Peter Brann, Melissa J Lethbridge, Helen Mildred
Expansion of the youth mental health sector has exposed a need for an outcome measure for young adults accessing services. The Strengths and Difficulties Questionnaire (SDQ) is a widely used consumer and carer outcome measure for children and adolescents. The aim of this study was to evaluate the psychometric properties of a young adult SDQ. The young adult SDQ was introduced for routine clinical practice at Eastern Health Child and Youth Mental Health Service (EH-CYMHS), complementing the well-established adolescent and child versions...
March 4, 2018: Psychiatry Research
https://www.readbyqxmd.com/read/29627115/migrant-children-within-europe-a-systematic-review-of-children-s-perspectives-on-their-health-experiences
#9
REVIEW
P Curtis, J Thompson, H Fairbrother
OBJECTIVES: To review the extant literature to explore what is known about children's own perspectives on their health experiences, focussing on children and young people who have migrated into, and within, Europe. STUDY DESIGN: A systematic review with narrative synthesis. METHODS: A review of English language articles was performed in June 2016 using the following databases: MEDLINE, CINAHL, Cochrane and Web of Science. Included articles had to report data generated directly with children, up to 18 years of age, who had migrated across national borders into, or within, Europe during their own lifetimes...
April 4, 2018: Public Health
https://www.readbyqxmd.com/read/29577848/survival-signaling-and-security-foster-carers-and-residential-carers-accounts-of-self-harming-practices-among-children-and-young-people-in-care
#10
Rhiannon E Evans
Research on clinicians' interpretations of self-harming practices has shown that they can often be negative. To date there has been limited consideration of other professionals' narratives, notably those working in social care. This article presents focus group and interview data generated with foster carers ( n = 15) and residential carers ( n = 15) to explore the symbolic meanings ascribed to self-harm among the children and young people they care for. Three repertoires of interpretation are presented: survival, which conceives self-harm as a mechanism for redefining the identity of "looked-after"; signaling, which understands self-harm as a communicative tool for the expression of emotion; and security, which sees self-harming practices as testing the authenticity and safety of the caring relationship...
March 1, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/29555725/predicting-respiratory-hospital-admissions-in-young-people-with-cerebral-palsy
#11
Amanda Marie Blackmore, Natasha Bear, Eve Blair, Katherine Langdon, Lisa Moshovis, Kellie Steer, Andrew C Wilson
OBJECTIVE: To determine the early predictors of respiratory hospital admissions in young people with cerebral palsy (CP). DESIGN: A 3-year prospective cohort study using linked data. PATIENTS: Children and young people with CP, aged 1 to 26 years. MAIN OUTCOME MEASURES: Self-reported and carer-reported respiratory symptoms were linked to respiratory hospital admissions (as defined by the International Statistical Classification of Diseases and Related Health Problems 10th Revision codes) during the following 3 years...
March 19, 2018: Archives of Disease in Childhood
https://www.readbyqxmd.com/read/29544484/study-protocol-young-carers-and-young-adult-carers-in-switzerland
#12
Agnes Leu, Corinna Jung, Marianne Frech, Joe Sempik, Urs Moser, Martin Verner, Saul Becker
BACKGROUND: In Switzerland, the issue of young carers and young adult carers - young people under the age of 18 and 24 respectively, who take on significant or substantial caring tasks and levels of responsibility that would usually be associated with an adult - has not been researched before. The number of these younger carers is unknown, as is the extent and kind of their caring activities and the outcomes for their health, well-being, psycho-social development, education, transitions to adulthood, future employability and economic participation...
March 15, 2018: BMC Health Services Research
https://www.readbyqxmd.com/read/29516776/palliative-care-for-people-with-advanced-liver-disease-a-feasibility-trial-of-a-supportive-care-liver-nurse-specialist
#13
Barbara Kimbell, Scott A Murray, Heidi Byrne, Andrea Baird, Peter C Hayes, Alastair MacGilchrist, Anne Finucane, Patricia Brookes Young, Ronan E O'Carroll, Christopher J Weir, Marilyn Kendall, Kirsty Boyd
BACKGROUND: Liver disease is an increasing cause of death worldwide but palliative care is largely absent for these patients. AIM: We conducted a feasibility trial of a complex intervention delivered by a supportive care liver nurse specialist to improve care coordination, anticipatory care planning and quality of life for people with advanced liver disease and their carers. DESIGN: Patients received a 6-month intervention (alongside usual care) from a specially trained liver nurse specialist...
May 2018: Palliative Medicine
https://www.readbyqxmd.com/read/29508478/being-we-and-being-me-exploring-the-needs-of-austrian-families-with-caring-children
#14
Martin Nagl-Cupal, Julia Hauprich
Children and adolescents with caring responsibilities are an uncontested reality in our society. Most are hidden from public view, and they perform a broad range of caring activities for chronically ill or disabled family members. The research literature has accumulated a comprehensive body of knowledge about young carers' personal needs. However, knowledge and understanding are limited regarding the needs of young carers' families. This knowledge can contribute to preventing children and adolescents from assuming inappropriate caring roles...
March 5, 2018: Health & Social Care in the Community
https://www.readbyqxmd.com/read/29502430/anxiety-and-depression-symptoms-in-young-people-with-perinatally-acquired-hiv-and-hiv-affected-young-people-in-england
#15
Marthe Le Prevost, Alejandro Arenas-Pinto, Diane Melvin, Francesca Parrott, Caroline Foster, Deborah Ford, Michael Evangeli, Alan Winston, Kate Sturgeon, Katie Rowson, Diana M Gibb, Ali Judd
Adolescents with perinatal HIV (PHIV) may be at higher risk of anxiety and depression than HIV negative young people. We investigated prevalence of anxiety and depression symptoms in 283 PHIV and 96 HIV-affected (HIV-negative) young people in England recruited into the Adolescents and Adults Living with Perinatal HIV (AALPHI) cohort. We used Hospital Anxiety and Depression Scale (HADS) scores and linear regression investigated predictors of higher (worse) scores.115 (41%) and 29 (30%) PHIV and HIV-affected young people were male, median age was 16 [interquartile range 15,18] and 16 [14,18] years and 241 (85%) and 71 (74%) were black African, respectively...
March 4, 2018: AIDS Care
https://www.readbyqxmd.com/read/29482653/physical-activity-for-people-with-young-onset-dementia-and-carers-protocol-for-a-scoping-review
#16
Chloe Rodgers, David Rogerson, Judy Stevenson, Davina Porock
BACKGROUND: Physical activity has been cited as a potential symptomatic treatment option for people living with dementia. At present, much of the research concerning physical activity and dementia considers older adults, and there are several review articles summarising the evidence in this area. Less is known about physical activity for younger people with dementia, despite the marked differences in needs and preferences between the two groups. The aim of this scoping review is to systematically explore and critically appraise the current state of the evidence regarding physical activity for people with young-onset dementia and carers...
February 27, 2018: Systematic Reviews
https://www.readbyqxmd.com/read/29457295/-something-that-happens-at-home-and-stays-at-home-an-exploration-of-the-lived-experience-of-young-carers-in-western-australia
#17
Emma McDougall, Moira O'Connor, Joel Howell
There are approximately 350,000 young carers in Australia, yet their experience is not well understood. Young carers face adversities and disenfranchisement by being a young person in a caring role, and the role can affect other areas of their lives. We explored the lived experiences of young carers, aged 14-25 years (N = 13), from Western Australia through in-depth semi-structured interviews. A phenomenological approach was adopted. A thematic analysis of the transcribed interview data revealed four key themes...
February 19, 2018: Health & Social Care in the Community
https://www.readbyqxmd.com/read/29449202/a-web-based-psychoeducational-intervention-for-adolescent-depression-design-and-development-of-moodhwb
#18
Rhys Bevan Jones, Anita Thapar, Frances Rice, Harriet Beeching, Rachel Cichosz, Becky Mars, Daniel J Smith, Sally Merry, Paul Stallard, Ian Jones, Ajay K Thapar, Sharon A Simpson
BACKGROUND: Depression is common in adolescence and leads to distress and impairment in individuals, families and carers. Treatment and prevention guidelines highlight the key role of information and evidence-based psychosocial interventions not only for individuals but also for their families and carers. Engaging young people in prevention and early intervention programs is a challenge, and early treatment and prevention of adolescent depression is a major public health concern. There has been growing interest in psychoeducational interventions to provide accurate information about health issues and to enhance and develop self-management skills...
February 15, 2018: JMIR Mental Health
https://www.readbyqxmd.com/read/29434020/children-and-young-people-s-versus-parents-responses-in-an-english-national-inpatient-survey
#19
Dougal S Hargreaves, Steve Sizmur, Jacqueline Pitchforth, Amy Tallett, Sara L Toomey, Bridget Hopwood, Mark A Schuster, Russell M Viner
OBJECTIVE: Despite growing interest in children and young people's (CYP) perspectives on healthcare, they continue to be excluded from many patient experience surveys. This study investigated the feasibility of, and additional information gained by, measuring CYP experiences of a recent hospital admission. DESIGN: Cross-sectional analysis of national survey data. SETTING: Inpatients aged 8-15 years in eligible National Health Service hospitals, July-September 2014...
May 2018: Archives of Disease in Childhood
https://www.readbyqxmd.com/read/29429819/how-marginalized-young-people-access-engage-with-and-navigate-health-care-systems-in-the-digital-age-systematic-review
#20
REVIEW
Fiona Robards, Melissa Kang, Tim Usherwood, Lena Sanci
PURPOSE: This systematic review examines how marginalized young people access and engage with health services and navigate health-care systems in high-income countries. METHODS: Medline, CINAHL, PsychInfo, The University of Sydney Library database, and Google Scholar were searched to identify qualitative and quantitative original research, published from 2006 to 2017, that focused on selected definitions of marginalized young people (12 to 24 years), their parents/carers, and/or health professionals working with these populations...
April 2018: Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine
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