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https://www.readbyqxmd.com/read/27927667/life-after-prostate-cancer-diagnosis-protocol-for-a-uk-wide-patient-reported-outcomes-study
#1
Amy Downing, Penny Wright, Richard Wagland, Eila Watson, Therese Kearney, Rebecca Mottram, Majorie Allen, Victoria Cairnduff, Oonagh McSorley, Hugh Butcher, Luke Hounsome, Conan Donnelly, Peter Selby, Paul Kind, William Cross, James W H Catto, Dyfed Huws, David H Brewster, Emma McNair, Lauren Matheson, Carol Rivas, Johana Nayoan, Mike Horton, Jessica Corner, Julia Verne, Anna Gavin, Adam W Glaser
BACKGROUND: Prostate cancer and its treatment may impact physically, psychologically and socially; affecting the health-related quality of life of men and their partners/spouses. The Life After Prostate Cancer Diagnosis (LAPCD) study is a UK-wide patient-reported outcomes study which will generate information to improve the health and well-being of men with prostate cancer. METHODS AND ANALYSIS: Postal surveys will be sent to prostate cancer survivors (18-42 months postdiagnosis) in all 4 UK countries (n=∼70 000)...
December 7, 2016: BMJ Open
https://www.readbyqxmd.com/read/27914479/race-trouble-experiences-of-black-medical-specialist-trainees-in-south-africa
#2
Nicola Thackwell, Leslie Swartz, Sipho Dlamini, Lebogang Phahladira, Rudzani Muloiwa, Bonginkosi Chiliza
BACKGROUND: This research aimed to identify and explore the experiences of Black registrars in their training in the Western Cape's academic hospitals in order to identify structures, practices, attitudes and ideologies that may promote or impede the advancement of Black doctors into specialist medicine. This is justified by the requirement for universities to work towards monitoring and evaluating efforts to create non-discriminatory and inclusive training environments. METHODS: This study employed qualitative research methods...
December 3, 2016: BMC International Health and Human Rights
https://www.readbyqxmd.com/read/27910118/motivational-factors-associated-with-physical-activity-and-quality-of-life-in-people-with-severe-mental-illness
#3
Anders Farholm, Marit Sørensen, Hallgeir Halvari
BACKGROUND: There has been increasing interest for investigating the role of motivation in physical activity among people with severe mental illness (SMI). Autonomous motivation has been suggested to have a potentially important role in adoption and maintenance of physical activity. However, the knowledge about factors that facilitate autonomous motivation among people with SMI is scarce. AIM: The aim of this study was to examine factors associated with motivation for physical activity as well as the relationships between motivation, physical activity and health-related quality of life in individuals with SMI that were currently physically active...
December 2, 2016: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/27905677/coping-and-caring-support-resources-integral-to-perioperative-nurses-during-the-process-of-organ-procurement-surgery
#4
Zaneta Smith, Gavin Leslie, Dianne Wynaden
AIM AND OBJECTIVE: This paper, discusses and explores the levels of support provided to perioperative nurses' when participating in multi-organ procurement surgery and the impact to their overall well-being. BACKGROUND: Assisting within multi-organ procurement surgical procedures has been recognised to impact on the well-being of perioperative nurses leaving little opportunity for them to recover from their participation or to seek available support resources. To date, this area has remained largely unexplored with limited evidence of how nurses manage and cope with these procedures, in addition to the support received in the workplace...
December 1, 2016: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/27882769/-current-issues-of-reproductive-medicine-in-the-czech-republic
#5
P Ventruba, J Žáková, M Ješeta, D Rumpík, M Brandejská, I Crha, D Hlinka, L Jelínková, E Oráčová, J Pavelková, K Řežábek, K Veselá
INTRODUCTION: During the 25th symposium of assisted reproduction in Brno was lunch time organised as the lunch table discussion on the selected topics of assisted reproduction. More than 150 specialists reviewed themes related to gynecology and embryology.Discussed topics: Lunch table discussion covered the following topics: (1) Cross-border health care in assisted reproduction; (2) Indication for PGS (preimplantation genetic screening) in the context of actual information; (3) Does ovarian stimulation belong to the ambulance of registering gynecologists? (4) Therapy with clomifen - only for IVF specialists? (5) How and with whom should psychological support be directed during IVF? (6) Stimulation in women with low ovarian reserve; (7) Is basic semen analyses sufficient? (8) Time-lapse systems as relevant markers of embryonic development; (9) How to be oriented with choices of media and consumables in the IVF lab, and (10) "Freeze All" - is this new trend in cryopreservation suitable for all? CONCLUSIONS: Panel conclusions were presented during the afternoon session, which had great attendance, featured lively commentary, and produced some definitive consensus...
2016: Ceská Gynekologie
https://www.readbyqxmd.com/read/27871301/an-innovative-and-collaborative-partnership-between-patients-with-rare-disease-and-industry-supported-registries-the-global-ahus-registry
#6
REVIEW
Len Woodward, Sally Johnson, Johan Vande Walle, Joran Beck, Christoph Gasteyger, Christoph Licht, Gema Ariceta
BACKGROUND: Patients are becoming increasingly involved in research which can promote innovation through novel ideas, support patient-centred actions, and facilitate drug development. For rare diseases, registries that collect data from patients can increase knowledge of the disease's natural history, evaluate clinical therapies, monitor drug safety, and measure quality of care. The active participation of patients is expected to optimise rare-disease management and improve patient outcomes...
November 21, 2016: Orphanet Journal of Rare Diseases
https://www.readbyqxmd.com/read/27867244/community-based-organisations-for-vulnerable-children-in-south-africa-reach-psychosocial-correlates-and-potential-mechanisms
#7
A R Yakubovich, L Sherr, L D Cluver, S Skeen, I S Hensels, A Macedo, M Tomlinson
Community-based organisations (CBOs) have the potential to provide high quality services for orphaned and vulnerable children in resource-limited settings. However, evidence is lacking as to whether CBOs are reaching those who are most vulnerable, whether attending these organisations is associated with greater psychosocial wellbeing, and how they might work. This study addressed these three questions using cross-sectional data from 1848 South African children aged 9-13. Data were obtained from the Young Carers and Child Community Care studies, which both investigated child wellbeing in South Africa using standardised self-report measures...
March 2016: Children and Youth Services Review
https://www.readbyqxmd.com/read/27864082/individual-variation-in-intentionality-in-the-mind-wandering-state-is-reflected-in-the-integration-of-the-default-mode-fronto-parietal-and-limbic-networks
#8
Johannes Golchert, Jonathan Smallwood, Elizabeth Jefferies, Paul Seli, Julia M Huntenburg, Franziskus Liem, Mark E Lauckner, Sabine Oligschläger, Boris C Bernhardt, Arno Villringer, Daniel S Margulies
Mind-wandering has a controversial relationship with cognitive control. Existing psychological evidence supports the hypothesis that episodes of mind-wandering reflect a failure to constrain thinking to task-relevant material, as well the apparently alternative view that control can facilitate the expression of self-generated mental content. We assessed whether this apparent contradiction arises because of a failure to consider differences in the types of thoughts that occur during mind-wandering, and in particular, the associated level of intentionality...
November 15, 2016: NeuroImage
https://www.readbyqxmd.com/read/27858779/measuring-change-and-changing-measures-the-development-of-a-torture-survivor-specific-measure-of-change
#9
Rebecca Horn, Andy Keefe
Freedom from Torture is a UK-based human rights organisation dedicated to the treatment and rehabilitation of torture survivors. The organisation has been working towards the development of a clinical outcome tool for a number of years, and the purpose of this paper is to (a) describe the process of developing the tool and the final tool itself, and (b) to outline the system which Freedom from Torture has established to collect, record and analyse the data produced. A review of the literature revealed that existing measures were not appropriate for measuring psychological and emotional change amongst torture survivors; therefore the organisation undertook to develop a tool specifically designed for this target group...
2016: Torture: Quarterly Journal on Rehabilitation of Torture Victims and Prevention of Torture
https://www.readbyqxmd.com/read/27852878/working-hours-and-common-mental-disorders-in-english-police-officers
#10
J Houdmont, R Randall
BACKGROUND: There is a paucity of evidence on working hours and their psychological correlates in police officers of the federated ranks in England. AIMS: An exploratory study to establish the extent to which a sample of English police officers worked long hours and the association between long working hours and common mental disorder (CMD). METHODS: Officers of the federated ranks (constable, sergeant, inspector) from two English county forces completed a questionnaire to report their typical weekly working hours and symptoms of CMD...
November 16, 2016: Occupational Medicine
https://www.readbyqxmd.com/read/27825322/rheumatoid-arthritis-patient-perceptions-on-the-value-of-predictive-testing-for-treatments-a-qualitative-study
#11
Kanta Kumar, Sarah Peters, Anne Barton
BACKGROUND: Rheumatoid arthritis (RA) is a long term condition that requires early treatment to control symptoms and improve long-term outcomes. Lack of response to RA treatments is not only a waste of healthcare resources, but also causes disability and distress to patients. Identifying biomarkers predictive of treatment response offers an opportunity to improve clinical decisions about which treatment to recommend in patients and could ultimately lead to better patient outcomes. The aim of this study was to explore the understanding of and factors affecting Rheumatoid Arthritis (RA) patients' decisions around predictive treatment testing...
November 8, 2016: BMC Musculoskeletal Disorders
https://www.readbyqxmd.com/read/27815555/family-caregivers-conceptualisation-of-quality-end-of-life-care-for-people-with-dementia-a-qualitative-study
#12
Nathan Davies, Greta Rait, Laura Maio, Steve Iliffe
BACKGROUND: People with dementia have been described as the 'disadvantaged dying' with poor end-of-life care. Towards the end of life, people with dementia cannot report on the care they receive. It is therefore important to talk to caregivers; however, few have explored the views about end-of-life care from the caregivers' perspective. The majority of research on family caregivers has focussed on the burden and psychological impact of caring for a relative with dementia. AIM: This study aimed to explore the views of family caregivers about quality end-of-life care for people with dementia...
October 25, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27812994/a-review-of-adverse-outcomes-associated-with-psychoactive-drug-use-in-nursing-home-residents-with-dementia
#13
REVIEW
Maryse Lapeyre-Mestre
Treatment guidelines generally recommend careful assessment and non-pharmacological treatment approaches for behavioural and psychological symptoms of dementia. However, the inappropriate use of psychoactive drugs in patients with dementia in nursing homes is still prevalent. The aim of this narrative review is to summarise and criticize the most recent data investigating the adverse outcomes related to psychoactive drug use, specifically antipsychotics, antidepressants and benzodiazepines, in patients with dementia living in nursing homes...
November 4, 2016: Drugs & Aging
https://www.readbyqxmd.com/read/27812203/ordinal-to-interval-scale-conversion-tables-and-national-items-for-the-new-zealand-version-of-the-whoqol-bref
#14
Christian U Krägeloh, D Rex Billington, Patricia Hsien-Chuan Hsu, Xuan Joanna Feng, Oleg N Medvedev, Paula Kersten, Jason Landon, Richard J Siegert
The World Health Organisation Quality of Life (WHOQOL) questionnaires are widely used around the world and can claim strong cross-cultural validity due to their development in collaboration with international field centres. To enhance conceptual equivalence of quality of life across cultures, optional national items are often developed for use alongside the core instrument. The present study outlines the development of national items for the New Zealand WHOQOL-BREF. Focus groups with members of the community as well as health experts discussed what constitutes quality of life in their opinion...
2016: PloS One
https://www.readbyqxmd.com/read/27807958/-the-contribution-of-the-italian-association-of-cancer-registries-airtum
#15
Emanuele Crocetti, Carlotta Buzzoni
The study of cluster requires the ability to identify, with accuracy and completeness, the health events of interest and their geographical location and time of occurrence. For rare and complex diseases, such as childhood cancers, it is possible to observe a significant health migration from the place of residence, which makes the detection even more complex. The best tool to identify these rare diseases is represented by cancer registries (CRs). In fact, CRs collect, through many sources, information related to tumours that arise in the population resident in their areas of activity...
September 2016: Epidemiologia e Prevenzione
https://www.readbyqxmd.com/read/27801745/bidirectional-associations-between-sport-involvement-and-mental-health-in-adolescence
#16
Stewart A Vella, Christian Swann, Mark S Allen, Matthew Schweickle, Christopher A Magee
PURPOSE: To investigate potential bidirectional relationships between sport participation and mental health during early adolescence. METHODS: Data were taken from wave 5 (2012) and wave 6 (2014) of the K-Cohort of the Longitudinal Study of Australian Children. In total, there were 4023 participants aged 12.41 (SD = 0.49) years at baseline, and this sample were followed up 24 months later. Cross lagged panel models were used to examine bidirectional relationships between sport participation (hours·wk for team, individual and total sport participation) and mental health (total psychological difficulties, internalising problems, and externalising problems) as measured by the parent-report version of the Strengths and Difficulties Questionnaire...
October 31, 2016: Medicine and Science in Sports and Exercise
https://www.readbyqxmd.com/read/27792031/a-process-evaluation-of-a%C3%A2-return-to-work-intervention-to-improve-cooperation-between-sick-listed-employees-and-their-supervisors-coss
#17
Nicole Hoefsmit, Nicolle Boumans, Inge Houkes, Frans Nijhuis
BACKGROUND: This is a process evaluation of an intervention to improve Cooperation regarding return-to-work (RTW) between sick-listed employees and their supervisors (COSS, which consists of a conversation roadmap, monitoring of cooperation using questionnaires and, if necessary, extra support by an occupational physician (OP). OBJECTIVE: Objectives were to study (1) the adoption of COSS by a banking organization and (2) its implementation among individual employees, supervisors and OPs...
October 28, 2016: Work: a Journal of Prevention, Assessment, and Rehabilitation
https://www.readbyqxmd.com/read/27737929/the-psychological-health-and-well-being-of-emergency-medicine-consultants-in-the-uk
#18
Katherine Fitzgerald, Philip Yates, Jonathan Benger, Adrian Harris
OBJECTIVE: To explore the experience of psychological distress and well-being in emergency medicine (EM) consultants. METHODS: A qualitative, interpretative phenomenological analysis (IPA) study based on 1:1 semistructured interviews with EM consultants working full time in EDs across South West England. Eighteen EM consultants were interviewed across five EDs, the mean (SD) age of participants being 43.17 (5.8) years. The personal meanings that participants attached to their experiences were inductively analysed...
October 13, 2016: Emergency Medicine Journal: EMJ
https://www.readbyqxmd.com/read/27726208/live-concerts-reduce-cancer-inpatients-anxiety
#19
A Toccafondi, A Bonacchi, A Mambrini, G Miccinesi, R Prosseda, M Cantore
In Italy a new experience of music medicine called "The Music Givers" is spreading among Oncology Units; it aims to organise weekly live concerts (length 45-60 min) followed by a buffet. Purpose of the present study is to evaluate the effect of the format of The Music Givers on cancer in-patients' anxiety. State-Trait Anxiety Inventory (STAI-Y) was administered to 111 in-patients before and after the concerts. After the concerts we observed a 3.87 point decrease in state anxiety (p < .001) and statistically significant differences in most of the domains assessed by STAI-Y...
October 10, 2016: European Journal of Cancer Care
https://www.readbyqxmd.com/read/27722995/training-genetic-counsellors-to-deliver-an-innovative-therapeutic-intervention-their-views-and-experience-of-facilitating-multi-family-discussion-groups
#20
Ivan Eisler, Frances Flinter, Jo Grey, Suzanne Hutchison, Carole Jackson, Louise Longworth, Rhona MacLeod, Marion McAllister, Alison Metcalfe, Christine Patch, Buddug Cope, Glenn Robert, Emma Rowland, Fiona Ulph
Innovations in clinical genetics have increased diagnosis, treatment and prognosis of inherited genetic conditions (IGCs). This has led to an increased number of families seeking genetic testing and / or genetic counselling and increased the clinical load for genetic counsellors (GCs). Keeping pace with biomedical discoveries, interventions are required to support families to understand, communicate and cope with their Inherited Genetic Condition. The Socio-Psychological Research in Genomics (SPRinG) collaborative have developed a new intervention, based on multi-family discussion groups (MFDGs), to support families affected by IGCs and train GCs in its delivery...
October 10, 2016: Journal of Genetic Counseling
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