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https://www.readbyqxmd.com/read/28799481/evolving-motivations-patients-and-caregivers-perceptions-about-seeking-myotonic-dystrophy-dm1-and-huntington-s-disease-care
#1
Kori A LaDonna, Christopher J Watling, Susan L Ray, Christine Piechowicz, Shannon L Venance
Patient-centered care provision is challenging under ideal circumstances; myotonic dystrophy (DM1) and Huntington's disease (HD) are examples of chronic, progressive health conditions that may challenge its limits. If we can understand how care unfolds in these conditions, health care providers may be better equipped to address patients' needs. Constructivist grounded theory informed data collection and analysis. Fourteen patients with DM1 or HD, and 10 caregivers participated in semistructured interviews. Constant comparative analysis was used to identify themes...
September 2017: Qualitative Health Research
https://www.readbyqxmd.com/read/28774759/parents-perspectives-on-navigating-the-work-of-speaking-up-in-the-nicu
#2
Audrey Lyndon, Kirsten Wisner, Carrie Holschuh, Kelly M Fagan, Linda S Franck
OBJECTIVE: To describe parents' perspectives and likelihood of speaking up about safety concerns in the NICU and identify barriers and facilitators to parents speaking up. DESIGN: Exploratory, qualitatively driven, mixed-methods design using questionnaires, interviews, and observations with parents of newborns in the NICU. The qualitative investigation was based on constructivist grounded theory. Quantitative measures included ratings and free-text responses about the likelihood of speaking up in response to a hypothetical scenario about lack of clinician hand hygiene...
August 1, 2017: Journal of Obstetric, Gynecologic, and Neonatal Nursing: JOGNN
https://www.readbyqxmd.com/read/28774227/therapists-perspectives-on-suicide-a-conceptual-model-of-connectedness
#3
Cian Aherne, Barry Coughlan, Paul Surgenor
BACKGROUND: A sense of disconnection for people who are suicidal seems to be a key construct of previous literature. Therapists' ways of encountering and understanding people who are suicidal have not been previously researched in depth using qualitative methodologies. AIMS: The current study aims to develop a theoretical framework for the role played by connectedness in relation to suicide based on the perspectives of psychotherapists working in the field of suicide intervention...
August 3, 2017: Psychotherapy Research: Journal of the Society for Psychotherapy Research
https://www.readbyqxmd.com/read/28756189/historical-pitfalls-and-new-directions-in-the-neuroscience-of-emotion
#4
REVIEW
Lisa Feldman Barrett, Ajay B Satpute
In this article, we offer a brief history summarizing the last century of neuroscientific study of emotion, highlighting dominant themes that run through various schools of thought. We then summarize the current state of the field, followed by six key points for scientific progress that are inspired by a multi-level constructivist theory of emotion.
July 26, 2017: Neuroscience Letters
https://www.readbyqxmd.com/read/28753068/a-qualitative-exploration-of-multiple-perspectives-on-transfer-of-learning-between-classroom-and-clinical-workplace
#5
Sanne Peters, Geraldine Clarebout, Marc van Nuland, Bert Aertgeerts, Ann Roex
Phenomenon: Transfer of learning between classroom and workplace appears to be difficult. Various conceptions about learning in either the classroom or the workplace exist among stakeholders, yet little is known about their conceptions of the transfer of learning between both settings. This study explored stakeholders' conceptions about transfer of learning between classroom-based learning and workplace practice. APPROACH: Homogeneous focus groups with students, medical teachers, and workplace supervisors were conducted using a constructivist grounded theory approach...
July 28, 2017: Teaching and Learning in Medicine
https://www.readbyqxmd.com/read/28746800/the-changing-nature-of-relationships-between-parents-and-healthcare-providers-when-a-child-dies-in-the-paediatric-intensive-care-unit
#6
Ashleigh E Butler, Helen Hall, Beverley Copnell
AIM: To explore bereaved parents' interactions with healthcare providers when a child dies in a paediatric intensive care unit. BACKGROUND: Though most children admitted to a paediatric intensive care unit will survive, 2-5% will die during their stay. The parents of these children interact and form relationships with numerous healthcare staff during their child's illness and death. Though previous studies have explored the parental experience of child death in intensive care generally, the nature of their relationships with healthcare providers during this time remains unknown...
July 26, 2017: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/28746075/fatigue-in-residency-education-understanding-the-influence-of-work-hours-regulations-in-europe
#7
Taryn S Taylor, Pim W Teunissen, Tim Dornan, Lorelei Lingard
PURPOSE: Although one proposed solution to the problem of fatigued medical trainees is the implementation of work hours regulations, concerns about the effectiveness of these regulations are growing. Canada remains one of the few Western jurisdictions without legislated regulation. Recent research suggests that fatigue is a complex social construct, rather than simply a lack of sleep; thus, the authors explored how regulations and fatigue are understood in countries with established work hours frameworks to better inform other jurisdictions looking to address trainee fatigue...
July 25, 2017: Academic Medicine: Journal of the Association of American Medical Colleges
https://www.readbyqxmd.com/read/28744976/patient-experiences-of-adjusting-to-life-in-the-first-2%C3%A2-years-after-bariatric-surgery-a-qualitative-study
#8
Y Graham, C Hayes, P K Small, K Mahawar, J Ling
There is currently little research into the experiences of those who have undergone bariatric surgery, or how surgery affects their lives and social interactions. Adopting a constructivist grounded theory methodological approach with a constant comparative analytical framework, semi-structured interviews were carried out with 18 participants (11 female, 7 male) who had undergone permanent bariatric surgical procedures 5-24 months prior to interview. Findings revealed that participants regarded social encounters after bariatric surgery as underpinned by risk...
July 26, 2017: Clinical Obesity
https://www.readbyqxmd.com/read/28728768/maintaining-integrity-how-nurses-navigate-boundaries-in-pediatric-palliative-care
#9
Alyssa Erikson, Betty Davies
PURPOSE: To explore how nurses manage personal and professional boundaries in caring for seriously ill children and their families. DESIGN AND METHODS: Using a constructivist grounded theory approach, a convenience sample of 18 registered nurses from four practice sites was interviewed using a semi-structured interview guide. RESULTS: Nurses across the sites engaged in a process of maintaining integrity whereby they integrated two competing, yet essential, aspects of their nursing role - behaving professionally and connecting personally...
July 2017: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/28728478/psychosocial-response-to-new-onset-diabetes-as-a-long-term-effect-of-allogeneic-hematopoietic-stem-cell-transplantation
#10
Jill M Olausson, Lauren Clark, Janice M Morse, Marilyn Hammer, Nancy Allen, Marcia Grant
Currently, little information is available to guide health care practitioners on how to facilitate positive outcomes in individuals who develop new-onset diabetes after allogeneic hematopoietic stem cell transplantation (allo HSCT) for treatment of hematological cancers. Results from this constructivist grounded theory study provide a theoretical framework explaining the psychosocial process of change that middle-age and older adults experience when developing new-onset diabetes in this context. Two predominant factors influenced this change: treatment burden and perception of diabetes...
July 1, 2017: Qualitative Health Research
https://www.readbyqxmd.com/read/28723997/access-to-health-care-as-a-human-right-in-international-policy-critical-reflections-and-contemporary-challenges
#11
Camilo Hernán Manchola Castillo, Volnei Garrafa, Thiago Cunha, Fernando Hellmann
Using the United Nations (UN) and its subordinate body, the World Health Organization (WHO), as a frame of reference, this article explores access to healthcare as a human right in international intergovernmental policies. First, we look at how the theme of health is treated within the UN, focusing on the concept of global health. We then discuss the concept of global health from a human rights perspective and go on to outline the debate surrounding universal coverage versus universal access as a human right, addressing some important ethical questions...
July 2017: Ciência & Saúde Coletiva
https://www.readbyqxmd.com/read/28721701/challenges-of-connectedness-in-personal-recovery-for-rural-mothers-with-mental-illness
#12
Rochelle Helena Hine, Darryl Maybery, Melinda Jane Goodyear
Social connection is a fundamental human need, but challenging for individuals with characteristics that are socially stigmatized. Parenting with mental illness presents obstacles, as well as opportunities, for connection. In the present study, we examined connectedness within a personal recovery paradigm for rural mothers with a mental illness. In-depth interviews with 17 mothers with a mental illness, utilizing constructivist grounded theory, resulted in six categories of meaning, including 'yearning for connection', 'connecting intensely', 'encountering rejection and exclusion', 'choosing isolation', 'being known', and 'finding peers/helping others'...
July 18, 2017: International Journal of Mental Health Nursing
https://www.readbyqxmd.com/read/28720270/cancer-through-black-eyes-the-views-of-uk-based-black-men-towards-cancer-a-constructivist-grounded-theory-study
#13
Betselot Mulugeta, Susan Williamson, Rob Monks, Thomas Hack, Kinta Beaver
PURPOSE: Little is known about black African (BA) and black African-Caribbean (BAC) men's views towards cancer; yet culture and acculturation can contribute to the way in which people understand, explain and develop their attitudes towards cancer. Hence, cancer prevention and early detection strategies may not be sensitive to United Kingdom (UK)-based black men's views, affecting their awareness of risk factors and early detection services. This study explored the views of UK-based BA and BAC men towards cancer...
August 2017: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
https://www.readbyqxmd.com/read/28711151/intelligent-cooperation-a-framework-of-pedagogic-practice-in-the-operating-room
#14
Gary Sutkin, Eliza B Littleton, Steven L Kanter
BACKGROUND: Surgeons who work with trainees must address their learning needs without compromising patient safety. METHODS: We used a constructivist grounded theory approach to examine videos of five teaching surgeries. Attending surgeons were interviewed afterward while watching cued videos of their cases. Codes were iteratively refined into major themes, and then constructed into a larger framework. RESULTS: We present a novel framework, Intelligent Cooperation, which accounts for the highly adaptive, iterative features of surgical teaching in the operating room...
July 1, 2017: American Journal of Surgery
https://www.readbyqxmd.com/read/28705161/entrustment-of-the-on-call-senior-medical-resident-role-implications-for-patient-safety-and-collective-care
#15
Noureen Huda, Lisa Faden, Mark Goldszmidt
BACKGROUND: The on-call responsibilities of a senior medicine resident (SMR) may include the admission transition of patient care on medical teaching teams (MTT), supervision of junior trainees, and ensuring patient safety. In many institutions, there is no standardised assessment of SMR competency prior to granting these on-call responsibilities in internal medicine. In order to fulfill competency based medical education requirements, training programs need to develop assessment approaches to make and defend such entrustment decisions...
July 14, 2017: BMC Medical Education
https://www.readbyqxmd.com/read/28693410/staying-married-after-stroke-a-constructivist-grounded-theory-qualitative-study
#16
Sharon Anderson, Norah C Keating, Donna M Wilson
BACKGROUND: Marriages are one of the most powerful predictors of health and longevity, yet research in stroke has focused separately on survivors' experience of impairments and how spouses deal with caregiving. OBJECTIVES: The purpose of this constructivist grounded theory study was to understand the key themes related to reconstruction or breakdown of marriages after stroke. METHODS: In semi-structured interviews, 18 couples in long-term marriages discussed how their marriages were reconstructed or broke down after one member of the couple returned home after being hospitalized for a stroke...
July 10, 2017: Topics in Stroke Rehabilitation
https://www.readbyqxmd.com/read/28691003/leadership-development-of-rehabilitation-professionals-in-a-low-resource-country-a-transformational-leadership-project-based-model
#17
Maureen Romanow Pascal, Monika Mann, Kim Dunleavy, Julia Chevan, Liliane Kirenga, Assuman Nuhu
BACKGROUND AND RATIONALE: This paper presents an overview of the activities and outcomes of the Leadership Institute (LI), a short-term leadership development professional development course offered to physiotherapists in a low-resource country. Previous studies have provided examples of the benefits of such programs in medicine and nursing, but this has yet to be documented in the rehabilitation literature. The prototype of leadership development presented may provide guidance for similar trainings in other low-resource countries and offer the rehabilitation community an opportunity to build on the model to construct a research agenda around rehabilitation leadership development...
2017: Frontiers in Public Health
https://www.readbyqxmd.com/read/28682456/how-hospital-clinicians-select-patients-for-skilled-nursing-facilities
#18
Robert E Burke, Emily Lawrence, Amy Ladebue, Roman Ayele, Brandi Lippmann, Ethan Cumbler, Rebecca Allyn, Jacqueline Jones
OBJECTIVE: To understand how hospital-based clinicians evaluate older adults in the hospital and decide who will be transferred to a skilled nursing facility (SNF) for postacute care. DESIGN: Semistructured interviews paired with a qualitative analytical approach informed by Social Constructivist theory. SETTING: Inpatient care units in three hospitals. Purposive sampling was used to maximize variability in hospitals, units within hospitals, and staff on those units...
July 6, 2017: Journal of the American Geriatrics Society
https://www.readbyqxmd.com/read/28681642/indonesian-teachers-epistemological-beliefs-and-inclusive-education
#19
Kieron Sheehy, Budiyanto, Helen Kaye, Khofidotur Rofiah
A growing number of children with intellectual disabilities attend inclusive schools in Indonesia. Previous research has suggested that teachers' type of school and experience influences their beliefs about inclusive education. This research collected questionnaire data from 267 Indonesian teachers and compared the responses from those working in inclusive, special and regular schools regarding their epistemological and pedagogical beliefs. The results showed that teachers in inclusive schools expressed stronger social constructivist beliefs than those in other schools...
January 1, 2017: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/28681441/university-women-s-and-men-s-mindsets-surrounding-postcesarean-birth-findings-and-implications-for-practice-and-policy
#20
Elizabeth Soliday, Gillian Grant, Jillian James, Bailey Noell, Joel Samaduroff
BACKGROUND: Nearly twice as many women report preferring vaginal birth after cesarean (VBAC) than actually undergo it. It is unknown whether the preference pattern would hold in childbearing-aged individuals who had not yet been directly influenced by care experiences. We therefore examined postcesarean birth preferences in nulliparous university women and men to provide additional evidence to help advance related policy and practice. METHODS: An online study of 558 university women and 164 men who read a hypothetical postcesarean birth scenario was conducted...
July 5, 2017: Birth
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