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https://www.readbyqxmd.com/read/28538570/postoperative-patient-and-parent-reported-outcomes-for-children-with-congenital-hand-differences-a-systematic-review
#1
Rebecca S Bickham, Jennifer F Waljee, Kevin C Chung, Joshua M Adkinson
BACKGROUND: Patient- and parent-reported outcomes are increasingly considered as measures of treatment effectiveness for congenital conditions. The authors' specific aim was to review the use of patient- and parent-reported outcomes of quality of life, activities of daily living, perception of hand appearance, and satisfaction after reconstruction for congenital hand differences. METHODS: The authors reviewed articles addressing congenital hand differences from PubMed, MEDLINE, and EMBASE published between January of 1966 and October of 2016...
June 2017: Plastic and Reconstructive Surgery
https://www.readbyqxmd.com/read/28538499/expectations-and-experiences-of-follow-up-and-self-care-after-living-kidney-donation-a-focus-group-study
#2
Karine E Manera, Camilla S Hanson, Jeremy R Chapman, John Kanellis, John Gill, Jonathan C Craig, Steve J Chadban, Germaine Wong, Angelique F Ralph, Allison Tong
BACKGROUND: Ensuring donor wellbeing warrants ongoing monitoring following living kidney donation. However, there is considerable variability in donor follow up processes, including information provided to donors regarding self-care. Loss to follow up is common, suggesting that the aims and benefits of monitoring and follow up may not be apparent. We aimed to describe the experiences and expectations of living kidney donors regarding follow up and self-care after donation. METHODS: Participants from 3 transplant centers in Australia and Canada participated in 14 focus groups (n=123)...
May 24, 2017: Transplantation
https://www.readbyqxmd.com/read/28538137/evidence-affirming-school-supports-for-australian-transgender-and-gender-diverse-students
#3
Tiffany Jones
Background: The United Nations (UN) and related UN bodies have recognised transgender and gender diverse (TGD) students' rights at the global level to full equitable access to education, and specifically sexuality education, repeatedly. Methods: This article explores the available support for this equal access in Australia. It discusses TGD student rights in a range of Australian laws and education policies. Results: It shows how the inclusion of TGD students, particularly in sexuality education, is reinforced in the current Australian National Curricula...
May 25, 2017: Sexual Health
https://www.readbyqxmd.com/read/28537958/everyday-life-after-colon-cancer-the-visible-and-invisible-challenges
#4
Susanne Stuhlfauth, Line Melby, Ragnhild Hellesø
BACKGROUND: There is little research regarding how everyday life is affected by colon cancer treatment. Few studies exist that exclusively examine patients with Dukes C colon cancer. Most studies include other types of bowel cancer and different stages. OBJECTIVES: The aims of this study were to explore and describe how colon cancer survivors experience everyday life in general and sexuality in particular after treatment of Dukes C colon cancer. METHODS: The study is exploratory and descriptive and uses semistructured interviews to collect data...
May 23, 2017: Cancer Nursing
https://www.readbyqxmd.com/read/28537852/-i-felt-like-i-was-being-abused-all-over-again-how-survivors-of-child-sexual-abuse-make-sense-of-the-perinatal-period-through-their-narratives
#5
Jane Byrne, Cordet Smart, Gilli Watson
Sequelae following child sexual abuse pervade the lives of adult survivors, significantly impacting on pregnancy and childbirth. Symptoms of this distress are recognized, but meanings for women are less understood. This research aimed to examine the meaning for women themselves of the impact of child sexual abuse on experiences of pregnancy, childbirth, and the postnatal period. Taking a critical feminist perspective, three open-ended interviews with three survivors enabled women's narratives of pregnancy and childbirth to be heard, explored the structure of these narratives, including how experiences were connected, and identified key themes and how selves and others were positioned...
May 2017: Journal of Child Sexual Abuse
https://www.readbyqxmd.com/read/28537851/family-characteristics-and-structure-as-determinants-of-sexual-abuse-among-female-secondary-school-students-in-nigeria-a-brief-report
#6
Chigozirim Nlewem, Olukemi K Amodu
Child sexual abuse is associated with factors that enhance the vulnerability of the child, raising physical and mental health complications in adulthood. Three hundred and fifty students participated in this cross-sectional study. Important determinants of sexual abuse were parents not living together, not living with parents, family type, and current parents' marital status (p < 0.05). Respondents living with both parents were two times less likely to experience sexual abuse (OR = 0.5, CI: 0.3, 0.9) than respondents living with their guardians...
May 2017: Journal of Child Sexual Abuse
https://www.readbyqxmd.com/read/28537705/hypoxia-responsive-19-f-mri-probes-with-improved-redox-properties-and-biocompatibility
#7
Da Xie, Seyong Kim, Vikraant Kohli, Arnab Banerjee, Meng Yu, José S Enriquez, Jeffrey J Luci, Emily L Que
(19)F magnetic resonance imaging (MRI), an emerging modality in biomedical imaging, has shown promise for in vitro and in vivo preclinical studies. Here we present a series of fluorinated Cu(II)ATSM derivatives for potential use as (19)F magnetic resonance agents for sensing cellular hypoxia. The synthesized complexes feature a hypoxia-targeting Cu(2+) coordination core, nine equivalent fluorine atoms connected via a variable-length poly(ethylene glycol) linker. Introduction of the fluorine moiety maintains the planar coordination geometry of the Cu(2+) center, while the linker length modulates the Cu(2+/+) reduction potential, (19)F NMR relaxation properties, and lipophilicity...
May 24, 2017: Inorganic Chemistry
https://www.readbyqxmd.com/read/28535474/peer-navigators-to-promote-engagement-of-homeless-african-americans-with-serious-mental-illness-in-primary-care
#8
Patrick W Corrigan, Susan Pickett, Annie Schmidt, Edward Stellon, Erin Hantke, Dana Kraus, Rachel Dubke
Homeless African Americans with serious mental illness experience higher rates of morbidity and mortality than adults with severe mental illness alone. Peer navigators, individuals with similar lived experiences, may help these individuals navigate the healthcare system to improve healthcare utilization. This study examined whether the Peer Navigator Program (PNP) improved scheduling and achieving healthcare appointments compared to treatment as usual (TAU) over the course of 12 months, including three periods within that timeframe: engagement (first three months), impact (middle six months), and maintenance (final six months)...
May 17, 2017: Psychiatry Research
https://www.readbyqxmd.com/read/28535284/cumulative-effects-of-neighborhood-social-adversity-and-personal-crime-victimization-on-adolescent-psychotic-experiences
#9
Joanne Newbury, Louise Arseneault, Avshalom Caspi, Terrie E Moffitt, Candice L Odgers, Helen L Fisher
BACKGROUND: Little is known about the impact of urbanicity, adverse neighborhood conditions and violent crime victimization on the emergence of adolescent psychotic experiences. METHODS: Participants were from the Environmental Risk (E-Risk) Longitudinal Twin Study, a nationally-representative cohort of 2232 British twins who were interviewed about adolescent psychotic experiences at age 18. Urbanicity, neighborhood characteristics, and personal victimization by violent crime were measured during childhood and adolescence via geocoded census data, surveys of over 5000 immediate neighbors of the E-Risk participants, and interviews with participants themselves...
May 22, 2017: Schizophrenia Bulletin
https://www.readbyqxmd.com/read/28535071/aphasia-from-the-inside-the-cognitive-world-of-the-aphasic-patient
#10
Alfredo Ardila, Silvia Rubio-Bruno
The purpose of this study was to analyze the question: how do people with aphasia experience the world? Three questions are approached: (1) how is behavior controlled in aphasia, considering that a normal linguistic control is no longer available; (2) what is the pattern of intellectual abilities in aphasia; and (3) what do aphasia patients' self-report regarding the experience of living without language. In aphasia, behavior can no longer be controlled through the "second signal system" and only the first signal system remains...
May 23, 2017: Applied Neuropsychology. Adult
https://www.readbyqxmd.com/read/28534665/-i-look-at-my-own-forest-and-fields-in-a-different-way-the-lived-experience-of-nature-based-therapy-in-a-therapy-garden-when-suffering-from-stress-related-illness
#11
Ulrik Sidenius, Ulrika K Stigsdotter, Dorthe Varning Poulsen, Terese Bondas
Evidence confirms that nature-based therapy (NBT) has a positive effect on people with mental illnesses. However, there is a lack of evidence on the meaning of NBT for specific patient groups. The Nacadia® Therapy Garden was designed according to an evidence-based design process, and an NBT programme was developed. The aim of the study was to illuminate the phenomenon of participants' lived experience of the NBT in Nacadia. Fourteen participants took part in semi-structured interviews (SSIs), and by way of reflective lifeworld research, the SSIs were analysed to identify and describe the meanings of the phenomenon...
December 2017: International Journal of Qualitative Studies on Health and Well-being
https://www.readbyqxmd.com/read/28533630/effects-of-hippotherapy-on-the-thickness-of-deep-abdominal-muscles-and-activity-of-daily-living-in-children-with-intellectual-disabilities
#12
JiHyun Lee, Chang-Kyo Yun
[Purpose] The purpose of this study is to investigate the effect of hippotherapy exercise on the thickness of deep abdominal muscles and daily activities of children with intellectual disabilities. [Subjects and Methods] Seven children with intellectual disabilities were treated with hippotherapy for 30 minutes twice a week for 6 weeks. The thickness of deep abdominal muscles and Functional Independence Measure (FIM) of the subjects were measured by ultrasonography before and after the experiment. [Results] There was no significant change in the thickness of the External Oblique and Internal Oblique muscles, but there was a statistically significant change in Transverse Adbominis thickness and FIM score after treatment compared to before treatment...
April 2017: Journal of Physical Therapy Science
https://www.readbyqxmd.com/read/28532789/recombination-in-jxa1-r-vaccine-and-nadc30-like-strain-of-porcine-reproductive-and-respiratory-syndrome-viruses
#13
Jiankui Liu, Xia Zhou, Junqiong Zhai, Chunhua Wei, Ailing Dai, Xiaoyan Yang, Manlin Luo
Porcine reproductive and respiratory syndrome (PRRS) is considered one of the most devastating swine diseases worldwide, resulting in immense economic losses. PRRS virus (PRRSV) has undergone rapid evolution since its first recognition in 1990s. In the present study, a PRRSV strain named FJXS15 causing high morbidity and mortality was isolated from piglets and sows from a farm participating in vaccination in China. Phylogenetic and molecular evolutionary analyses revealed that FJXS15 was highly similar to the JXA1-R vaccine strain (a live attenuated virus vaccine strain derived from the highly pathogenic PRRSV JXA1) in the ORF1a (nt 901-)-ORF4 (-nt 419) coding regions, as well as to FJZ03 (lineage 1, NADC30-like) in the 5'-UTR, ORF5a-ORF7 coding regions, and 3'-UTR, suggestive of a natural recombination event...
May 2017: Veterinary Microbiology
https://www.readbyqxmd.com/read/28532727/experiences-and-own-management-regarding-residual-symptoms-among-people-with-coeliac-disease
#14
Lisa Ring Jacobsson, Anna Milberg, Katarina Hjelm, Maria Friedrichsen
CONTEXT: Between 7% and 30% of people with treated coeliac disease suffer from residual symptoms, and there is a knowledge gap about their own management of these symptoms. AIM: To explore experiences and management concerning residual symptoms despite a gluten-free diet in people with coeliac disease. METHODS: A qualitative explorative design with semi-structured interviews with 22 adults with coeliac disease in Sweden. Data were analysed using qualitative content analysis...
June 2017: Applied Nursing Research: ANR
https://www.readbyqxmd.com/read/28532515/what-do-we-know-about-assessing-healthcare-students-and-professionals-knowledge-attitude-and-practice-regarding-female-genital-mutilation-a-systematic-review
#15
REVIEW
Jasmine Abdulcadir, Lale Say, Christina Pallitto
INTRODUCTION: Improving healthcare providers' capacities of prevention and treatment of female genital mutilation (FGM) is important given the fact that 200 million women and girls globally are living with FGM. However, training programs are lacking and often not evaluated. Validated and standardized tools to assess providers' knowledge, attitude and practice (KAP) regarding FGM are lacking. Therefore, little evidence exists on the impact of training efforts on healthcare providers' KAP on FGM...
May 22, 2017: Reproductive Health
https://www.readbyqxmd.com/read/28532399/economic-stress-and-condescending-treatment-in-childhood-and-adult-self-rated-health-results-from-a-population-study-in-sweden
#16
Fredrik Granström, Hans-Georg Eriksson, Anu Molarius
BACKGROUND: Even today, 12% of the children in Sweden live in poverty and many children are exposed to adverse experiences, such as being bullied, which may have long-term consequences on public health. This study examined the associations between economic stress and condescending treatment in childhood and self-rated health (SRH) in adulthood. METHODS: The study is based on 26,706 persons who responded to a postal survey questionnaire sent to a random sample of men and women aged 25-84 years in 2012 (response rate 53%)...
May 22, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28532346/low-vision-and-plasticity-implications-for-rehabilitation
#17
Gordon E Legge, Susana T L Chung
Low vision is any type of visual impairment that affects activities of daily living. In the context of low vision, we define plasticity as changes in brain or perceptual behavior that follow the onset of visual impairment and that are not directly due to the underlying pathology. An important goal of low-vision research is to determine how plasticity affects visual performance of everyday activities. In this review, we consider the levels of the visual system at which plasticity occurs, the impact of age and visual experience on plasticity, and whether plastic changes are spontaneous or require explicit training...
October 14, 2016: Annual Review of Vision Science
https://www.readbyqxmd.com/read/28532304/producing-hiv-estimates-from-global-advocacy-to-country-planning-and-impact-measurement
#18
Mary Mahy, Tim Brown, John Stover, Neff Walker, Karen Stanecki, Wilford Kirungi, Txema Garcia-Calleja, Peter D Ghys
BACKGROUND: The development of global HIV estimates has been critical for understanding, advocating for and funding the HIV response. The process of generating HIV estimates has been cited as the gold standard for public health estimates. OBJECTIVE: This paper provides important lessons from an international scientific collaboration and provides a useful model for those producing public health estimates in other fields. DESIGN: Through the compilation and review of published journal articles, United Nations reports, other documents and personal experience we compiled historical information about the estimates and identified potential lessons for other public health estimation efforts...
January 2017: Global Health Action
https://www.readbyqxmd.com/read/28531841/positive-affective-functioning-in-anhedonic-individuals-daily-life-anything-but-flat-and-blunted
#19
V E Heininga, E Van Roekel, J J Ahles, A J Oldehinkel, A H Mezulis
BACKGROUND: Anhedonia, the decreased interest and pleasure, is often described as 'flat' or 'blunted' positive affect (PA). Yet, little is known about PA functioning in anhedonic individuals' daily lives. The current study investigates PA reactivity to pleasurable experiences in anhedonia together with its relevant temporal dynamics (i.e., variability, instability, and inertia), and expands current knowledge by exploring the role of arousal therein. METHODS: Using the Experience Sampling Method (ESM), we collected 90 assessments of real-life PA experiences across 30 days in 18-24 year old individuals with anhedonia (N=69) and without anhedonia (N=69)...
April 21, 2017: Journal of Affective Disorders
https://www.readbyqxmd.com/read/28531821/examining-the-physical-health-and-lifestyle-of-young-people-at-ultra-high-risk-for-psychosis-a-qualitative-study-involving-service-users-parents-and-clinicians
#20
Rebekah Carney, Jack Cotter, Tim Bradshaw, Alison R Yung
Emerging evidence suggests young people at ultra-high risk for psychosis (UHR) are also at-risk for poor physical health, and display high rates of modifiable cardiometabolic risk factors. However, before we can develop effective interventions there is a need to understand factors affecting lifestyle choices in the UHR group. We conducted semi-structured qualitative interviews with 20 UHR individuals (50% male; mean age 21.7), 5 parents (4 mothers, 1 father), and 6 clinicians from early intervention services in the Northwest of England to identify barriers and facilitators to living a healthy lifestyle, including achieving regular exercise, eating well and refraining from excessive substance use...
May 16, 2017: Psychiatry Research
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