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https://www.readbyqxmd.com/read/28938284/longitudinal-validation-of-the-promis-physical-function-item-bank-in-upper-extremity-trauma
#1
Aaron J Kaat, Nan E Rothrock, Mark S Vrahas, Robert V OʼToole, Sarah K Buono, Timothy Zerhusen, Richard C Gershon
OBJECTIVES: To evaluate the reliability, validity, and responsiveness of the Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity Computer Adaptive Test (UE-CAT) and the 8-item Physical Function short form (PF-SF8a) for monitoring outcomes after musculoskeletal injuries in upper extremity trauma patients. DESIGN: Prospective cohort study. SETTING: Two Level-I trauma centers. PATIENTS: Eligible consecutive patients were approached and 424 consented at time 1 (median 9...
October 2017: Journal of Orthopaedic Trauma
https://www.readbyqxmd.com/read/28937310/remotely-supervised-transcranial-direct-current-stimulation-for-the-treatment-of-fatigue-in-multiple-sclerosis-results-from-a-randomized-sham-controlled-trial
#2
Leigh E Charvet, Bryan Dobbs, Michael T Shaw, Marom Bikson, Abhishek Datta, Lauren B Krupp
BACKGROUND: Fatigue is a common and debilitating feature of multiple sclerosis (MS) that remains without reliably effective treatment. Transcranial direct current stimulation (tDCS) is a promising option for fatigue reduction. We developed a telerehabilitation protocol that delivers tDCS to participants at home using specially designed equipment and real-time supervision (remotely supervised transcranial direct current stimulation (RS-tDCS)). OBJECTIVE: To evaluate whether tDCS can reduce fatigue in individuals with MS...
September 1, 2017: Multiple Sclerosis: Clinical and Laboratory Research
https://www.readbyqxmd.com/read/28935163/optimising-the-diagnosis-of-prostate-cancer-in-the-era-of-multiparametric-magnetic-resonance-imaging-a-cost-effectiveness-analysis-based-on-the-prostate-mr-imaging-study-promis
#3
Rita Faria, Marta O Soares, Eldon Spackman, Hashim U Ahmed, Louise C Brown, Richard Kaplan, Mark Emberton, Mark J Sculpher
BACKGROUND: The current recommendation of using transrectal ultrasound-guided biopsy (TRUSB) to diagnose prostate cancer misses clinically significant (CS) cancers. More sensitive biopsies (eg, template prostate mapping biopsy [TPMB]) are too resource intensive for routine use, and there is little evidence on multiparametric magnetic resonance imaging (MPMRI). OBJECTIVE: To identify the most effective and cost-effective way of using these tests to detect CS prostate cancer...
September 18, 2017: European Urology
https://www.readbyqxmd.com/read/28934891/quality-of-life-among-boys-with-adrenoleukodystrophy-following-hematopoietic-stem-cell-transplant
#4
Nicole B Beckmann, Weston P Miller, Mary S Dietrich, Paul J Orchard
Hematopoietic stem cell transplant (HSCT) is the only accepted treatment capable of halting the progression of X-linked cerebral adrenoleukodystrophy (CALD). While survival and neurological outcomes have been described, there is little information regarding the quality of life (QoL) of transplanted patients with CALD. This analysis is a cross-sectional study of QoL in 16 males diagnosed with CALD who underwent HSCT at a single institution. Each child or parent proxy completed subscales from the Neuro-QoL and the PROMIS Pediatric Profile Instrument representing physical, mental, and social health domains...
September 21, 2017: Child Neuropsychology: a Journal on Normal and Abnormal Development in Childhood and Adolescence
https://www.readbyqxmd.com/read/28934521/social-media-use-before-bed-and-sleep-disturbance-among-young-adults-in-the-united-states-a-nationally-representative-study
#5
Jessica C Levenson, Ariel Shensa, Jaime E Sidani, Jason B Colditz, Brian A Primack
Study Objectives: Social media (SM) use has been positively associated with disturbed sleep among young adults. However, previous studies have not elucidated the specific importance of SM use immediately before bed. We aimed to determine the independent association of SM use during the 30 minutes before bed and disturbed sleep while controlling for covariates including total SM use throughout the day. Methods: We assessed a nationally representative sample of 1763 US young adults aged 19-32...
September 1, 2017: Sleep
https://www.readbyqxmd.com/read/28921658/evaluating-instrument-responsiveness-in-joint-function-the-hoos-jr-the-koos-jr-and-the-promis-pf-cat
#6
Man Hung, Charles L Saltzman, Tom Greene, Maren W Voss, Jerry Bounsanga, Yushan Gu, Mike B Anderson, Christopher L Peters, Jeremy Gililland, Christopher E Pelt
Responsiveness is the ability to detect change over time and is an important aspect of measures used to detect treatment effects. The purpose of this study was to assess the responsiveness of the HOOS JR, the KOOS JR, and the PROMIS Physical Function (PF) computerized adaptive test (CAT) in a joint reconstruction practice. 983 patients were evaluated for joint conditions between 2014 and 2017 in an orthopaedic clinic and completed the three instruments at baseline and three and/or six-month follow-up visits...
September 16, 2017: Journal of Orthopaedic Research: Official Publication of the Orthopaedic Research Society
https://www.readbyqxmd.com/read/28913785/evolution-of-patient-reported-outcomes-and-their-role-in-multiple-sclerosis-clinical-trials
#7
REVIEW
Cindy J Nowinski, Deborah M Miller, David Cella
Patient-reported outcomes (PROs) are playing an increasing role in multiple sclerosis (MS) research and practice, and are essential for understanding the effects that MS and MS treatments have on patients' lives. PROs are captured directly from patients and include symptoms, function, health status, and health-related quality of life. In this article, we review different categories (e.g., generic, targeted, preference-based) of PRO measures and considerations in selecting a measure. The PROs included in MS clinical research have evolved over time, as have the measures used to assess them...
September 14, 2017: Neurotherapeutics: the Journal of the American Society for Experimental NeuroTherapeutics
https://www.readbyqxmd.com/read/28894746/behavioral-health-characteristics-of-a-technology-enabled-sample-of-alzheimer-s-caregivers-with-high-caregiver-burden
#8
Ian Coffman, Helaine E Resnick, Corinna E Lathan
BACKGROUND: Caregivers of persons with dementia/Alzheimer's disease (AD) experience considerable physical and psychological burdens associated with their caregiving role. Although mobile technologies have the potential to deliver caregiver supports, it is necessary to demonstrate that caregivers in need of these supports are technology-enabled, that they can be identified and accessed, and that they experience the same unfavorable mental health outcomes characteristic of the broader caregiving population...
2017: MHealth
https://www.readbyqxmd.com/read/28890332/association-of-physical-function-anxiety-and-pain-interference-in-nonshoulder-upper-extremity-patients-using-the-promis-platform
#9
Nikolas H Kazmers, Man Hung, Ajinkya A Rane, Jerry Bounsanga, Cindy Weng, Andrew R Tyser
PURPOSE: The relationship between psychosocial factors and self-reported physical function among hand and upper extremity patients is complex. The Patient-Reported Outcomes Measurement Information System (PROMIS) platform has attempted to create a variety of specifically targeted metrics that can be administered using computer adaptive testing (CAT). Three metrics measuring self-reported physical function (herein referred to in combination as "functional" metrics) include the PROMIS Physical Function (PF) CAT, PROMIS Upper Extremity (UE) CAT, and the Quick Disabilities of the Arm, Shoulder, and Hand (QuickDASH)...
June 29, 2017: Journal of Hand Surgery
https://www.readbyqxmd.com/read/28888494/stress-anxiety-depression-and-sleep-disturbance-among-jordanian-mothers-and-fathers-of-infants-admitted-to-neonatal-intensive-care-unit-a-preliminary-study
#10
Dua'a Fayiz Al Maghaireh, Khatijah Lim Abdullah, Mei Chan Chong, Yan Piaw Chua, Mariam Mefleh Al Kawafha
PURPOSE: To investigate the stressors and stress levels among Jordanian parents of infants in the NICU and their relationship to three factors: anxiety, depression and sleep disturbance. DESIGN AND METHODS: A cross-sectional survey was conducted in two hospitals in Jordan among 310 parents of infants in the NICU by using PSS: NICU and PROMIS. RESULTS: Both parents experienced high levels of stress, anxiety, depression and sleep disturbance...
September 2017: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/28885858/the-latino-integrative-medical-group-visit-as-a-model-for-pain-reduction-in-underserved-spanish-speakers
#11
Oscar Cornelio-Flores, Anna Sophia Lestoquoy, Sheila Abdallah, Amanda DeLoureiro, Karla Lorente, Bryan Pardo, Joseph Olunwa, Paula Gardiner
OBJECTIVES: Chronic pain is a common problem in the United States, one for which there is a dearth of effective treatments. Nonpharmacological options are a promising alternative, especially for Spanish-speaking Latinos. This pilot study would like to assess the feasibility of an adapted Integrative Medical Group Visit (IMGV) curriculum for a Spanish-speaking Latino chronic pain population. DESIGN AND INTERVENTION: We translated and adapted the curriculum of the IMGV for a Spanish-speaking Latino chronic pain population...
September 8, 2017: Journal of Alternative and Complementary Medicine: Research on Paradigm, Practice, and Policy
https://www.readbyqxmd.com/read/28885707/physical-function-metric-over-measure-an-illustration-with-the-patient-reported-outcomes-measurement-information-system-promis-and-the-functional-assessment-of-cancer-therapy-fact
#12
Aaron J Kaat, Benjamin D Schalet, Joshua Rutsohn, Roxanne E Jensen, David Cella
BACKGROUND: Measuring patient-reported outcomes (PROs) is becoming an integral component of quality improvement initiatives, clinical care, and research studies in cancer, including comparative effectiveness research. However, the number of PROs limits comparability across studies. Herein, the authors attempted to link the Functional Assessment of Cancer Therapy-General Physical Well-Being (FACT-G PWB) subscale with the Patient-Reported Outcomes Measurement Information System (PROMIS) Physical Function (PF) calibrated item bank...
September 8, 2017: Cancer
https://www.readbyqxmd.com/read/28884421/assessing-responsiveness-over-time-of-the-promis-%C3%A2-pediatric-symptom-and-function-measures-in-cancer-nephrotic-syndrome-and-sickle-cell-disease
#13
Bryce B Reeve, Lloyd J Edwards, Byron C Jaeger, Pamela S Hinds, Carlton Dampier, Debbie S Gipson, David T Selewski, Jonathan P Troost, David Thissen, Vaughn Barry, Heather E Gross, Darren A DeWalt
PURPOSE: Previous studies provided evidence for the validity of the PROMIS Pediatric measures in cross-sectional studies. This study evaluated the ability of the PROMIS Pediatric measures to detect change over time in children and adolescents with cancer, nephrotic syndrome (NS), or sickle cell disease (SCD). METHODS: Participants (8-17 years) completed measures of fatigue, pain interference, anger, anxiety, depressive symptoms, mobility, upper extremity, and peer relationships at three or four time points (T1-T4)...
September 7, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28879537/assessing-reserve-building-pursuits-and-person-characteristics-psychometric-validation-of-the-reserve-building-measure
#14
Carolyn E Schwartz, Wesley Michael, Jie Zhang, Bruce D Rapkin, Mirjam A G Sprangers
AIMS: A growing body of research suggests that regularly engaging in stimulating activities across multiple domains-physical, cultural, intellectual, communal, and spiritual-builds resilience. This project investigated the psychometric characteristics of the DeltaQuest Reserve-Building Measure for use in prospective research. METHODS: The study included Rare Patient Voice panel participants. The web-based survey included the Reserve-Building Measure with one-week re-test, measures of quality of life (QOL) and well-being (PROMIS General Health; NeuroQOL Cognitive Function and Positive Affect & Well-Being short-forms; Ryff Environmental Mastery subscale); and the Big Five Inventory-10 personality measure...
September 6, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28877861/assessing-the-equivalence-of-paper-mobile-phone-and-tablet-survey-responses-at-a-community-mental-health-center-using-equivalent-halves-of-a-gold-standard-depression-item-bank
#15
Benjamin B Brodey, Nicole L Gonzalez, Kathryn Ann Elkin, W Jordan Sasiela, Inger S Brodey
BACKGROUND: The computerized administration of self-report psychiatric diagnostic and outcomes assessments has risen in popularity. If results are similar enough across different administration modalities, then new administration technologies can be used interchangeably and the choice of technology can be based on other factors, such as convenience in the study design. An assessment based on item response theory (IRT), such as the Patient-Reported Outcomes Measurement Information System (PROMIS) depression item bank, offers new possibilities for assessing the effect of technology choice upon results...
September 6, 2017: JMIR Mental Health
https://www.readbyqxmd.com/read/28875367/differential-item-functioning-by-language-on-the-promis-%C3%A2-physical-functioning-items-for-children-and-adolescents
#16
Ron D Hays, José Luis Calderón, Karen L Spritzer, Steve P Reise, Sylvia H Paz
PURPOSE: To assess the equivalence of self-reports of physical functioning between pediatric respondents to the English- and Spanish-language patient-reported outcomes measurement information system (PROMIS(®)) physical functioning item banks. METHODS: The PROMIS pediatric physical functioning item banks include 29 upper extremity items and 23 mobility items. A sample of 5091 children and adolescents (mean age = 12 years, range 8-17; 49% male) completed the English-language version of the items...
September 5, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28866752/altered-associations-between-pain-symptoms-and-brain-morphometry-in-the-pain-matrix-of-hiv-seropositive-individuals
#17
Deborrah Castillo, Thomas Ernst, Eric Cunningham, Linda Chang
Pain remains highly prevalent in HIV-seropositive (HIV+) patients despite their well-suppressed viremia with combined antiretroviral therapy. Investigating brain abnormalities within the pain matrix, and in relation to pain symptoms, in HIV+ participants may provide objective biomarkers and insights regarding their pain symptoms. We used Patient-Reported Outcome Measurement Information System (PROMIS®) pain questionnaire to evaluate pain symptoms (pain intensity, pain interference and pain behavior), and structural MRI to assess brain morphometry using FreeSurfer (cortical area, cortical thickness and subcortical volumes were evaluated in 12 regions within the pain matrix)...
September 2, 2017: Journal of Neuroimmune Pharmacology: the Official Journal of the Society on NeuroImmune Pharmacology
https://www.readbyqxmd.com/read/28865867/a-longitudinal-study-of-promis-pediatric-symptom-clusters-in-children-undergoing-chemotherapy
#18
Jichuan Wang, Shana Jacobs, Darren A Dewalt, Emily Stern, Heather Gross, Pamela S Hinds
CONTEXT: Children in treatment for cancer experience multiple, troubling and interrelated symptoms. Analyzing the interrelatedness of symptoms and how that changes during treatment could yield clinically relevant patient profiles to guide patient care. OBJECTIVES: The aims were to identify a) pediatric profiles with respect to PROMIS symptom measures, b) changes in profile status throughout a chemotherapy cycle, and c) if a baseline single-item fatigue measure could significantly predict symptom profile status and its changes...
August 30, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28865494/implementation-and-validation-of-the-extended-hill-type-muscle-model-with-robust-routing-capabilities-in-ls-dyna-for-active-human-body-models
#19
Christian Kleinbach, Oleksandr Martynenko, Janik Promies, Daniel F B Haeufle, Jörg Fehr, Syn Schmitt
BACKGROUND: In the state of the art finite element AHBMs for car crash analysis in the LS-DYNA software material named *MAT_MUSCLE (*MAT_156) is used for active muscles modeling. It has three elements in parallel configuration, which has several major drawbacks: restraint approximation of the physical reality, complicated parameterization and absence of the integrated activation dynamics. This study presents implementation of the extended four element Hill-type muscle model with serial damping and eccentric force-velocity relation including [Formula: see text] dependent activation dynamics and internal method for physiological muscle routing...
September 2, 2017: Biomedical Engineering Online
https://www.readbyqxmd.com/read/28864650/omeract-endorsement-of-patient-reported-outcome-instruments-in-antineutrophil-cytoplasmic-antibody-associated-vasculitis
#20
Joanna C Robson, Gunnar Tomasson, Nataliya Milman, Sue Ashdown, Annelies Boonen, George C Casey, Peter F Cronholm, David Cuthbertson, Jill Dawson, Haner Direskeneli, Ebony Easley, Tanaz A Kermani, John T Farrar, Don Gebhart, Georgia Lanier, Raashid A Luqmani, Alfred Mahr, Carol A McAlear, Jacqueline Peck, Beverley Shea, Judy A Shea, Antoine G Sreih, Peter S Tugwell, Peter A Merkel
OBJECTIVE: The antineutrophil cytoplasmic antibody-associated vasculitides (AAV) are multiorgan diseases. Patients with AAV report impairment in their health-related quality of life (HRQOL) and have different priorities regarding disease assessment compared with physicians. The Outcome Measures in Rheumatology (OMERACT) Vasculitis Working Group previously received endorsement for a core set of domains in AAV. Two approaches to measure patient-reported outcomes (PRO) were presented at OMERACT 2016...
September 1, 2017: Journal of Rheumatology
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