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Benjamin J Peipert, Sneha Goswami, Susan E Yount, Cord Sturgeon
BACKGROUND: Health-related quality of life (HRQOL) in multiple endocrine neoplasia type-1 (MEN-1) is poorly described. HRQOL in MEN-1 was compared with other chronic conditions and the US general population. METHODS: Adults aged ≥18 years recruited from an MEN-1 support group (n=153) completed the Patient-Reported Outcomes Measurement Information System (PROMIS) 29-item profile. MEN-1 scores were compared with PROMIS scores reported in peer-reviewed literature from back pain (n=218), cancer (n=310), congestive heart failure (CHF; n=60), chronic obstructive pulmonary disease (COPD; n=79), major depressive disorder (n=196), rheumatoid arthritis (RA; n=521), neuroendocrine tumors (NET; n=619), and primary hyperparathyroidism (PHPT; n=45) cohorts...
November 8, 2017: Surgery
Bruce D Rapkin, Iliana Garcia, Wesley Michael, Jie Zhang, Carolyn E Schwartz
BACKGROUND: The present study evaluated the distributional and structural characteristics and explanatory power of the 23-item Brief Appraisal Inventory (BAI), a more practical appraisal measure for use in clinical research and practice. METHODS: A heterogeneous, online cohort of chronic disease patients and caregivers completed the BAI, along with demographics, comorbidities, PROMIS-10, and the Brief NEO Personality Inventory. Principal components, bivariate, and linear and logistic regression analyses addressed BAI item distributions, structure, and construct validity...
November 10, 2017: Quality of Life Research
Joel Alcantara, Jeanne Ohm, Junjoe Alcantara
OBJECTIVE: To measure the cross-informant variant of pediatric quality of life (QoL) based on self-reports and parent proxy measures. METHODS: A secondary analysis of baseline data obtained from two independent studies measuring the QoL based on the pediatric PROMIS-25 self-report and the PROMIS parent-proxy items banks. A scoring manual associated raw scores to a T score metric (mean = 50; SD = 10). Reliability of QoL ratings utilized the ICC while comparison of mean T Scores utilized the unpaired t-test...
November 2017: Complementary Therapies in Clinical Practice
Joel Alcantara, Jeanne Ohm, Junjoe Alcantara
No abstract text is available yet for this article.
November 2017: Complementary Therapies in Clinical Practice
Heather L Gelhorn, Savita B Anand, Javad Parvizi, Tiffany Morrison, Holly Yu, Robin Pokrzywinski, Gemma Al-Jassar, Antonia F Chen
AIM: To gather qualitative data from patients on the burden, impacts and costs of surgical site infections (SSI) requiring second surgeries. PATIENTS & METHODS: Fifteen adults with SSIs from spinal (n = 4), knee replacement (n = 3) or hip replacement (n = 8) surgery participated in a focus group or individual interview. Patients completed the PROMIS Physical Functioning (PF) Short Form 10A (PROMIS-PF). RESULTS: Patients reported impacts within four primary domains: PF/activity-related; social/emotional; financial/employment; and energy/sleep...
November 9, 2017: Journal of Comparative Effectiveness Research
Alessandro Chiarotto, Caroline B Terwee, Raymond W Ostelo
Choosing the most fit-for-purpose outcome measurement instruments is fundamental because using inappropriate instruments can lead to detection bias and measurement inconsistency. Recent recommendations, consensus procedures and systematic reviews on existing patient-reported outcome measures (PROMs) informed this manuscript, which provides suggestions on which outcome domains and measurement instruments to use in patients with low back pain (LBP). Six domains are identified as highly relevant: (1) physical functioning, (2) pain intensity, (3) health-related quality of life, (4) work, (5) psychological functioning and (6) pain interference...
December 2016: Best Practice & Research. Clinical Rheumatology
Alfred P Yoon, Ji Qi, David L Brown, Hyungjin M Kim, Jennifer B Hamill, Jessica Erdmann-Sager, Andrea L Pusic, Edwin G Wilkins
BACKGROUND: Previous studies suggest that immediate reconstruction following mastectomy produces superior results over delayed procedures. However, for medical or oncological reasons, some patients may be poor candidates for immediate reconstruction. We compared complications and patient-reported outcomes between immediate and delayed breast reconstructions in a prospective, multicenter study. METHODS: 1957 patients (1806 immediate, 151 delayed) met eligibility criteria...
November 2, 2017: Breast: Official Journal of the European Society of Mastology
Mohsin S Fidai, Bryan M Saltzman, Fabien Meta, Vincent A Lizzio, Jeffrey P Stephens, Kevin J Bozic, Eric C Makhni
PURPOSE: To compare Patient-Reported Outcomes Measurement Information System (PROMIS) physical function (PF) with legacy patient-reported outcome measures with regard to correlations, ease of use, and quality criteria for orthopaedic conditions. METHODS: A systematic search of the PubMed/MEDLINE database was performed according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines to identify published articles that referenced the various PROMIS PF measures...
October 30, 2017: Arthroscopy: the Journal of Arthroscopic & related Surgery
Michelle N Eakin, Yashika Patel, Pedro Mendez-Tellez, Victor D Dinglas, Dale M Needham, Alison E Turnbull
BACKGROUND: As mortality rates for patients treated in intensive care units decrease, greater understanding of the impact of critical illness on patients' well-being is needed. OBJECTIVE: To describe the survivorship experience of patients who had acute respiratory failure by using the Patient Reported Outcomes Measurement Information System (PROMIS) framework. METHODS: A total of 48 adult patients who had acute respiratory failure completed at least 1 semistructured telephone-based interview between 5 and 18 months after their stay in the intensive care unit...
November 2017: American Journal of Critical Care: An Official Publication, American Association of Critical-Care Nurses
Kharma C Foucher, Christopher C Cinnamon, Colleen A Ryan, Samuel J Chmell, Kris Dapiton
Despite improvements in pain and function, people who undergo total hip arthroplasty (THR) may not always return to desired levels of physical activity (PA). The factors associated with low activity levels are not fully understood. Abductor weakness and fatigue have both been proposed as factors that limit activity in older adults or people with hip osteoarthritis, but have not been investigated after THR. We hypothesized that abductor weakness and fatigue are associated with lower activity levels in people who have undergone a THR and that fatigue mediates the association between abductor strength and activity...
October 27, 2017: Journal of Orthopaedic Research: Official Publication of the Orthopaedic Research Society
Michaela Tsai, Shelly Lo, William Audeh, Rubina Qamar, Raye Budway, Ellis Levine, Pat Whitworth, Blanche Mavromatis, Robin Zon, Dwight Oldham, Sarah Untch, Tina Treece, Lisa Blumencranz, Hatem Soliman
Importance: Among patients who undergo the 21-gene assay (21-GA), 39% to 67% receive an intermediate risk result and may receive ambiguous treatment guidance. The 70-gene signature assay (70-GS) may be associated with physicians' treatment decisions in this population with early breast cancer. Objective: To determine whether 70-GS findings are associated with physicians' decisions about adjuvant treatment and confidence in their recommendations and to evaluate the dichotomous (high- vs low-risk) and continuous distribution of 70-GS indices among this group of patients with intermediate risk...
October 26, 2017: JAMA Oncology
Bronwen E Shaw, Karen L Syrjala, Lynn E Onstad, Eric J Chow, Mary E Flowers, Heather Jim, K Scott Baker, Sarah Buckley, Diane L Fairclough, Mary M Horowitz, Stephanie J Lee
BACKGROUND: Patient-reported outcomes for hematopoietic cell transplantation (HCT) survivors are well characterized with established measures; however, there is little experience with the new, freely available Patient-Reported Outcomes Measurement Information System (PROMIS) measures in this population. The aim of this study was to compare the performance of the PROMIS measures in the HCT setting with the performance of the commonly used 36-Item Short Form Health Survey (SF-36). METHODS: Adult HCT survivors from the Fred Hutchinson Cancer Research Center (n = 4446) were mailed a survey that included the following as part of an annual follow-up survey: the Patient-Reported Outcomes Measurement Information System-Global Health (PROMIS-GH; 10 questions), the 29-Item Patient-Reported Outcomes Measurement Information System Profile (PROMIS-29), and the SF-36...
October 26, 2017: Cancer
R Frank Henn, Andrew G Dubina, Julio J Jauregui, Michael P Smuda, J Kathleen Tracy
BACKGROUND: Utilization of patient-reported outcome tools allows a more accurate assessment of the efficacy of treatment, which is critical to comparative effectiveness research. OBJECTIVES: The Maryland Orthopaedic Registry (MOR) was established to assess post-surgical outcomes related to patients' pain, functional status, met expectations, and satisfaction using an electronic data collection system. Secondary aims of the registry include assessment of patient expectations of treatment, activity level, and general health status...
October 2017: Journal of Clinical Orthopaedics and Trauma
Becky Kinkead, Pamela J Schettler, Erika R Larson, Dedric Carroll, Margaret Sharenko, James Nettles, Sherry A Edwards, Andrew H Miller, Mylin A Torres, Boadie W Dunlop, Jeffrey J Rakofsky, Mark Hyman Rapaport
BACKGROUND: Cancer-related fatigue (CRF) is a prevalent and debilitating symptom experienced by cancer survivors, yet treatment options for CRF are limited. In this study, we evaluated the efficacy of weekly Swedish massage therapy (SMT) versus an active control condition (light touch [LT]) and waitlist control (WLC) on persistent CRF in breast cancer survivors. METHODS: This early phase, randomized, single-masked, 6-week investigation of SMT, LT, and WLC enrolled 66 female stage 0-III breast cancer survivors (age range, 32-72 years) who had received surgery plus radiation and/or chemotherapy/chemoprevention with CRF (Brief Fatigue Inventory > 25)...
October 17, 2017: Cancer
Jessica Erdmann-Sager, Edwin G Wilkins, Andrea L Pusic, Ji Qi, Jennifer B Hamill, Hyungjin Myra Kim, Gretchen E Guldbrandsen, Yoon S Chun
BACKGROUND: Abdominal flap reconstruction is the most popular form of autologous breast reconstruction. The current study compared complications and patient-reported outcomes (PROs) after pedicled transverse rectus abdominis myocutaneous (PTRAM), free TRAM (FTRAM), deep inferior epigastric perforator (DIEP), and superficial inferior epigastric artery (SIEA) flaps. METHODS: Patients having abdominal-based breast reconstruction at 11 centers were prospectively evaluated for abdominal donor-site and breast complications...
October 10, 2017: Plastic and Reconstructive Surgery
Mojtaba Talaei-Khoei, Stefan F Fischerauer, Ragini Jha, David Ring, Neal Chen, Ana-Maria Vranceanu
Pain intensity and symptoms of depression are correlated and individually associated with decreased physical function. We compared two explanatory mediation models; one with depression as mediator of the association of pain intensity with physical function and the other one with pain intensity as the mediator of the effect of depression on physical function. In a cross-sectional study, 102 patients with upper extremity musculoskeletal illness completed measures of pain intensity, PROMIS depression CAT, PROMIS physical function-upper extremity CAT and demographics...
October 6, 2017: Journal of Behavioral Medicine
Vivek Nagaraja, Constance Mara, Puja P Khanna, Rajaie Namas, Amber Young, David A Fox, Timothy Laing, William J McCune, Carol Dodge, Debra Rizzo, Maha Almackenzie, Dinesh Khanna
PURPOSE: Different patient-reported outcome (PRO) measures are used for rheumatic diseases (RD). The aims of this study are-(1) Identify PROMIS(®) domains most relevant to care of patients with RD, (2) Collect T-Score metrics in patients with RD, and (3) Identify clinically meaningful cut-points for these domains. METHODS: A convenience sample of RD patients was recruited consecutively during clinic visits, and asked to complete computer-adaptive tests on thirteen Patient-Reported Outcomes Measurement Information System (PROMIS(®)) instruments...
October 5, 2017: Quality of Life Research
Josef Stehlik, Carlos Rodriguez-Correa, John A Spertus, Joshua Biber, Jose Nativi-Nicolau, Susan Zickmund, Benjamin A Steinberg, David C Peritz, Andrew Walker, Jordan Hess, Stavros G Drakos, Abdallah G Kfoury, James C Fang, Craig H Selzman, Rachel Hess
BACKGROUND: Patient-reported outcomes (PROs) quantify, from patients' perspectives, their symptoms, function, and quality of life. Our aim was to determine the feasibility of integrating PRO capture into routine clinical practice at a large heart failure (HF) clinic. METHODS: We examined the practicality of PRO completion at the time of clinic visit, the time required to complete the selected instruments, the completion rate, and the feasibility of immediate PRO scoring and integration of the results into the electronic health record (EHR)...
October 2, 2017: Journal of Cardiac Failure
Cassia Rye Hanton, Yong-Jun Kwon, Thawda Aung, Jackie Whittington, Robin R High, Evan H Goulding, A Katrin Schenk, Stephen J Bonasera
BACKGROUND: Cellular mobile telephone technology shows much promise for delivering and evaluating healthcare interventions in cost-effective manners with minimal barriers to access. There is little data demonstrating that these devices can accurately measure clinically important aspects of individual functional status in naturalistic environments outside of the laboratory. OBJECTIVE: The objective of this study was to demonstrate that data derived from ubiquitous mobile phone technology, using algorithms developed and previously validated by our lab in a controlled setting, can be employed to continuously and noninvasively measure aspects of participant (subject) health status including step counts, gait speed, and activity level, in a naturalistic community setting...
October 3, 2017: JMIR MHealth and UHealth
William R Beach
Collection of patient-reported outcome data in orthopaedic surgery is more important than ever. A recent research article compares the Patient Reported Outcomes Measurement Information System to several general health and shoulder-specific scoring systems in patients with preoperative rotator cuff pathology. This study addresses important concepts such as validity, reliability, floor/ceiling effects, and "decreased question burden" or questionnaire brevity that orthopaedic surgeons should consider when they collect patient-reported outcome data...
October 2017: Arthroscopy: the Journal of Arthroscopic & related Surgery
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