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https://www.readbyqxmd.com/read/27919565/examination-of-the-promis-upper-extremity-item-bank
#1
Man Hung, Maren W Voss, Jerry Bounsanga, Anthony B Crum, Andrew R Tyser
STUDY DESIGN: Clinical measurement. INTRODUCTION: The psychometric properties of the PROMIS v1.2 UE item bank were tested on various samples prior to its release, but have not been fully evaluated among the orthopaedic population. PURPOSE OF THE STUDY: This study assesses the performance of the UE item bank within the UE orthopaedic patient population. METHODS: The UE item bank was administered to 1197 adult patients presenting to a tertiary orthopaedic clinic specializing in hand and UE conditions and was examined using traditional statistics and Rasch analysis...
December 2, 2016: Journal of Hand Therapy: Official Journal of the American Society of Hand Therapists
https://www.readbyqxmd.com/read/27913986/establishing-clinical-meaning-and-defining-important-differences-for-patient-reported-outcomes-measurement-information-system-promis-%C3%A2-measures-in-juvenile-idiopathic-arthritis-using-standard-setting-with-patients-parents-and-providers
#2
Esi M Morgan, Constance A Mara, Bin Huang, Kimberly Barnett, Adam C Carle, Jennifer E Farrell, Karon F Cook
BACKGROUND: Patient-Reported Outcomes Measurement Information System (PROMIS) measures are used increasingly in clinical care. However, for juvenile idiopathic arthritis (JIA), scores lack a framework for interpretation of clinical severity, and minimally important differences (MID) have not been established, which are necessary to evaluate the importance of change. METHODS: We identified clinical severity thresholds for pediatric PROMIS measures of mobility, upper extremity function (UE), fatigue, and pain interference working with adolescents with JIA, parents of JIA patients, and clinicians, using a standard setting methodology modified from educational testing...
December 2, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27912920/the-relationship-between-therapist-rated-function-and-patient-reported-outcome-measures
#3
Yvonne Braun, Jos J Mellema, Rinne M Peters, Suzanne Curley, Gae Burchill, David Ring
STUDY DESIGN: Prospective cohort study. INTRODUCTION: Some third-party payers require hand therapists to rate patient's functional disability based on patient self-rating using patient-reported outcome measures (PROMs), objective measurements of impairment, and observation of functional tasks-hand therapist-rated function (HTRF). PURPOSE OF THE STUDY: To test the correlation between HTRF and PROMs (upper limb functional index [ULFI] and Patient-Reported Outcomes Measurement Information System upper extremity [PROMIS UE]) and its association with psychological factors...
November 29, 2016: Journal of Hand Therapy: Official Journal of the American Society of Hand Therapists
https://www.readbyqxmd.com/read/27912040/patient-reported-outcomes-measurement-information-system-physical-function-item-bank-version-1-0-physical-function-assessment-for-athletic-patient-populations
#4
Leif P Madsen, Todd A Evans, Kelli R Snyder, Carrie L Docherty
CONTEXT: The Patient-Reported Outcomes Measurement Information System (PROMIS) item banks have been validated for general populations, but their application to high-functioning patient populations remains speculative. OBJECTIVE: To examine the measurement properties of the PROMIS physical function item bank, version 1.0, when applied to individuals representing high levels of physical ability. DESIGN: Cross-sectional study. SETTING: National Collegiate Athletic Association Division I and III collegiate athletic training rooms and intramural events...
September 2016: Journal of Athletic Training
https://www.readbyqxmd.com/read/27909853/impact-of-irt-item-misfit-on-score-estimates-and-severity-classifications-an-examination-of-promis-depression-and-pain-interference-item-banks
#5
Yue Zhao
PURPOSE: In patient-reported outcome research that utilizes item response theory (IRT), using statistical significance tests to detect misfit is usually the focus of IRT model-data fit evaluations. However, such evaluations rarely address the impact/consequence of using misfitting items on the intended clinical applications. This study was designed to evaluate the impact of IRT item misfit on score estimates and severity classifications and to demonstrate a recommended process of model-fit evaluation...
December 1, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27907082/gender-differences-in-compulsive-buying-disorder-assessment-of-demographic-and-psychiatric-co-morbidities
#6
Cristiana Nicoli de Mattos, Hyoun S Kim, Marinalva G Requião, Renata F Marasaldi, Tatiana Z Filomensky, David C Hodgins, Hermano Tavares
Compulsive buying is a common disorder found worldwide. Although recent research has shed light into the prevalence, etiology and clinical correlates of compulsive buying disorder, less is known about gender differences. To address this empirical gap, we assessed potential gender differences in demographic and psychiatric co-morbidities in a sample of 171 compulsive buyers (20 men and 151 women) voluntarily seeking treatment in São Paulo, Brazil. A structured clinical interview confirmed the diagnosis of compulsive buying...
2016: PloS One
https://www.readbyqxmd.com/read/27900643/first-use-of-patient-reported-outcomes-measurement-information-system-promis-measures-in-adults-with-neurofibromatosis
#7
Mojtaba Talaei-Khoei, Eric Riklin, Vanessa L Merker, Monica R Sheridan, Justin T Jordan, Scott R Plotkin, Ana-Maria Vranceanu
The patient reported outcomes measurement information system (PROMIS) provides clinicians and researchers access to reliable, validated measures of physical, mental, and social well-being. The use of PROMIS can facilitate comparisons among clinical subpopulations and with the U.S. general population. We report on the first study using PROMIS measures in patients with neurofibromatosis (NF). Eighty-six adult patients (mean age = 44; 55% female; 87% white; 50% NF1, 41% NF2 and 9% schwannomatosis) completed a battery of PROMIS computerized adaptive tests (CATs)...
November 29, 2016: Journal of Neuro-oncology
https://www.readbyqxmd.com/read/27900545/functional-and-oncological-outcome-after-surgical-resection-of-the-scapula-and-clavicle-for-primary-chondrosarcoma
#8
S P F T Nota, M J A M Russchen, K A Raskin, H J Mankin, F J Hornicek, J H Schwab
PURPOSE: The scapula is a relatively common site for chondrosarcoma to develop in contrary to the clavicle, which is rarely affected by these tumors. The aim of this study is to determine the functional and oncological outcome for patients treated operatively for scapular or clavicular chondrosarcoma. METHODS: In this single-center retrospective study, we included a sample of 20 patients that received the diagnosis of a primary chondrosarcoma of the scapula or clavicle...
November 29, 2016: Musculoskeletal Surgery
https://www.readbyqxmd.com/read/27896936/health-related-quality-of-life-and-adherence-to-hydroxyurea-in-adolescents-and-young-adults-with-sickle-cell-disease
#9
Sherif M Badawy, Alexis A Thompson, Jin-Shei Lai, Frank J Penedo, Karen Rychlik, Robert I Liem
BACKGROUND: Complications related to sickle cell disease (SCD) result in significant declines in health-related quality of life (HRQOL). While hydroxyurea reduces SCD complications, adherence remains suboptimal. The study's objectives were to assess the feasibility of Internet-based electronic assessment of HRQOL in SCD clinic and to examine the relationship between HRQOL and hydroxyurea adherence in adolescents and young adults (AYAs) with SCD. PROCEDURE: A cross-sectional survey was administered on tablets to 34 AYAs (12-22 years old) in a SCD clinic from January through December 2015...
November 28, 2016: Pediatric Blood & Cancer
https://www.readbyqxmd.com/read/27863317/evaluating-promis-%C3%A2-applied-cognition-items-in-a-sample-of-older-adults-at-risk-for-cognitive-decline
#10
Molly Howland, Curtis Tatsuoka, Kathleen A Smyth, Martha Sajatovic
PROMIS(®) Applied Cognition is a short self-assessment of cognitive abilities and concerns that eliminates the need for a trained rater and provides online question banks that can be uniformly used across health care providers. This 12-month prospective study of 281 elderly individuals evaluates self-perceptions of cognitive functioning in relation to objective cognition, or assessment by an external rater, and compares PROMIS® Applied Cognition Abilities and Concerns subsets with commonly used "legacy" instruments...
November 1, 2016: Psychiatry Research
https://www.readbyqxmd.com/read/27856381/what-questionnaires-to-use-when-measuring-quality-of-life-in-sacral-tumor-patients-the-updated-sacral-tumor-survey
#11
Olivier D R van Wulfften Palthe, Stein J Janssen, Jay S Wunder, Peter C Ferguson, Guo Wei, Peter S Rose, Micheal J Yaszemski, Franklin H Sim, Patrick J Boland, John H Healey, Francis J Hornicek, Joseph H Schwab
BACKGROUND CONTEXT: Patient-reported outcomes are becoming increasingly important when investigating results of patient and disease management. In sacral tumor, the symptoms of patients can vary substantially; therefore, no single questionnaire can adequately account for the full spectrum of symptoms and disability. PURPOSE: The purpose of this study is to analyze redundancy within the current sacral tumor survey and make a recommendation for an updated version based on the results and patient and expert opinions...
November 14, 2016: Spine Journal: Official Journal of the North American Spine Society
https://www.readbyqxmd.com/read/27848056/an-evaluation-of-health-related-quality-of-life-in-patients-with-systemic-lupus-erythematosus-using-promis-and-neuro-qol
#12
Jin-Shei Lai, Jennifer L Beaumont, Sally E Jensen, Karen Kaiser, David L Van Brunt, Amy H Kao, Shih-Yin Chen
Systemic lupus erythematosus (SLE) is a multi-organ chronic autoimmune disease that can negatively affect patients' health-related quality of life (HRQOL). This study evaluated HRQOL of SLE patients using questionnaires from the Patient-Reported Outcomes Measurement Information System (PROMIS) and Quality of Life in Neurological Disorders (Neuro-QoL). Individuals with SLE completed an online survey consisting of the PROMIS-29 health profile, PROMIS Psychosocial Illness Impact-Negative, and Neuro-QoL Applied Cognition...
November 15, 2016: Clinical Rheumatology
https://www.readbyqxmd.com/read/27847850/predictors-of-upper-extremity-physical-function-in-older-adults
#13
Hugo H Hermanussen, Mariano E Menendez, Neal C Chen, David Ring, Ana-Maria Vranceanu
BACKGROUND: Little is known about the influence of habitual participation in physical exercise and diet on upper-extremity physical function in older adults. To assess the relationship of general physical exercise and diet to upper-extremity physical function and pain intensity in older adults. METHODS: A cohort of 111 patients 50 or older completed a sociodemographic survey, the Rapid Assessment of Physical Activity (RAPA), an 11-point ordinal pain intensity scale, a Mediterranean diet questionnaire, and three Patient- Reported Outcomes Measurement Information System (PROMIS) based questionnaires: Pain Interference to measure inability to engage in activities due to pain, Upper-Extremity Physical Function, and Depression...
October 2016: Archives of Bone and Joint Surgery
https://www.readbyqxmd.com/read/27815821/expanding-a-common-metric-for-depression-reporting-linking-two-scales-to-promis-%C3%A2-depression
#14
Aaron J Kaat, Michael E Newcomb, Daniel T Ryan, Brian Mustanski
PURPOSE: Depression is a significant mental health concern. There are numerous depression questionnaires, several of which can be scored onto the Patient Reported Outcomes Measurement Information System (PROMIS(®)) Depression metric. This study expands the unified metric by linking depression subscales from the Adult Self-Report (ASR) and the Brief Symptom Inventory (BSI) to it. METHODS: An online sample of 2009 men who have sex with men (MSM) was recruited. Item factor analysis was used to evaluate the dimensionality of the aggregated measures and confirm the statistical assumptions for linking...
November 4, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27811550/preliminary-validation-of-the-promis-parent-proxy-peer-relationships-measure-in-children-with-autism-spectrum-disorder-a-dbpnet-study
#15
Marisa Toomey, Justin Schwartz, Michele Laverdiere, Carole A Tucker, Katherine Bevans, Christopher B Forrest, Nathan J Blum
OBJECTIVE: To evaluate the content and construct validity of the existing PROMIS Pediatric Parent-Proxy Peer Relationships Measure in 5- to 12-year-old children with autism spectrum disorder (ASD). METHOD: Parents of 121 children aged 5 to 12 years who met DSM-IV criteria for ASD completed the Peer Relationships Measure using computerized adaptive testing (CAT). Parents also completed the Social Responsiveness Scale, Second Edition (SRS-2) and a demographic form...
October 31, 2016: Journal of Developmental and Behavioral Pediatrics: JDBP
https://www.readbyqxmd.com/read/27808460/patient-reported-health-status-during-pediatric-cancer-treatment
#16
Sarah Dobrozsi, Ke Yan, Raymond Hoffmann, Julie Panepinto
BACKGROUND: Changes in patient function and factors affecting pediatric patients with cancer during treatment are largely unknown. The purpose of this study was to measure patient-reported outcomes (PROs) in children during the initial 6 months of therapy to characterize function and explore factors associated with function including type of cancer, intensity of therapy, age, and gender. PROCEDURE: We conducted a prospective cohort study of children aged 5-21 newly diagnosed with cancer...
November 3, 2016: Pediatric Blood & Cancer
https://www.readbyqxmd.com/read/27808129/editorial-using-patient-reported-outcome-measures-in-gastroenterology-promised-land-or-road-to-nowhere
#17
David J Gracie, Alexander C Ford
Incorporating patient-reported outcomes (PROs) into clinical practice is advocated by some. However, the benefits remain uncertain. Almario et al. examined the impact of a gastrointestinal (GI) version of the patient-reported outcomes measurement information system (PROMIS) on patient satisfaction, perception of doctors' interpersonal skills, and the likelihood of shared decision-making. Patients were allocated to complete GI PROMIS prior to their outpatient appointment, or usual management. Overall, uptake of GI PROMIS was poor and there was no difference in any outcome measure between those completing the questionnaire and those receiving usual management, suggesting PROs may be of limited utility in this setting...
November 2016: American Journal of Gastroenterology
https://www.readbyqxmd.com/read/27801722/preliminary-validation-of-the-promis-parent-proxy-peer-relationships-measure-in-children-with-autism-spectrum-disorder-a-dbpnet-study
#18
Marisa Toomey, Justin Schwartz, Michele Laverdiere, Carole A Tucker, Katherine Bevans, Christopher B Forrest, Nathan J Blum
OBJECTIVE: To evaluate the content and construct validity of the existing PROMIS Pediatric Parent-Proxy Peer Relationships Measure in 5- to 12-year-old children with autism spectrum disorder (ASD). METHOD: Parents of 121 children aged 5 to 12 years who met DSM-IV criteria for ASD completed the Peer Relationships Measure using computerized adaptive testing (CAT). Parents also completed the Social Responsiveness Scale, Second Edition (SRS-2) and a demographic form...
November 2016: Journal of Developmental and Behavioral Pediatrics: JDBP
https://www.readbyqxmd.com/read/27797663/the-implementation-of-patient-reported-outcome-measures-in-yoga-therapy
#19
Alyson Ross, Gurjeet Birdee, Katharine Touchton-Leonard, Margaret Bevans
Yoga therapists are interested in knowing whether their therapeutic interventions are helpful in improving health and wellbeing in their yoga therapy clients. However, few yoga therapists use standardized, reliable, and valid questionnaires to determine the therapeutic effectiveness of their treatments. Patient-reported outcome (PRO) measures are paper or web-based questionnaires used to assess an individual's perceptions of their symptoms and/or quality of life. In 2004, the National Institutes of Health (NIH) launched the PROMIS(®) initiative to standardize and simplify the collection of PROs in research and in clinical practice...
January 2016: International Journal of Yoga Therapy
https://www.readbyqxmd.com/read/27796917/the-spectrum-of-functional-rating-scales-in-neurology-clinical-trials
#20
REVIEW
Pushpa Narayanaswami
The selection of an appropriate outcome measure is crucial to the success of a clinical trial, in order to obtain accurate results, which, in turn, influence patient care and future research. Outcomes that can be directly measured are mortality/survival. More frequently, neurology clinical trials evaluate outcomes that cannot be directly measured, such as disability, cognitive function, or change in symptoms of the condition under study. These complex outcomes are abstract ideas or latent constructs and are measured using rating scales...
October 27, 2016: Neurotherapeutics: the Journal of the American Society for Experimental NeuroTherapeutics
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