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2015 cancer patient experience survey

Charles Amoatey Odonkor, William Addison, Sean Smith, Ernest Osei-Bonsu, Teresa Tang, Michael Erdek
OBJECTIVE: [Formula: see text]The goal of this study was to elucidate the attitudes, beliefs, and barriers interfering with cancer pain management, the degree of barrier interference with trainees' care of patients, and the relationships among prohibitive factors to pain management for physicians in a low-middle-income countries (LMICs) vs high-income countries (HICs). DESIGN AND SETTING:  A multi-institutional cross-sectional survey of physicians in specialties with a focus in pain management training was performed...
September 20, 2016: Pain Medicine: the Official Journal of the American Academy of Pain Medicine
S N Rogers, L Russell, D Lowe
A temporary tracheostomy is commonly done in patients who have reconstruction after the ablation of advanced oral cancer to provide easy access to a secure airway in case a haematoma forms or the patient needs a return to theatre. Although relatively simple to do, we know little about the patients' experience, and to find out, we designed a three-stage study. First, we conducted semi-structured interviews to identify items related to the functional, emotional, and social impacts of the tracheostomy, on the ward and on removal (n=15 patients)...
September 2, 2016: British Journal of Oral & Maxillofacial Surgery
Helen Bibby, Victoria White, Kate Thompson, Antoinette Anazodo
PURPOSE: To assess what is currently known about unmet needs and care experiences of adolescents and young adults (AYAs) with cancer, identify gaps in the research literature, and highlight potential areas for improvement in future research. METHODS: Medline, PsycINFO, CINAHL, and EMBASE databases were searched to identify relevant studies from 1990 to July 2015. Eligible articles included self-reported care experiences or unmet needs of cancer patients aged between 15 and 30 years in the period between symptom onset and 2 years post-treatment...
July 25, 2016: Journal of Adolescent and Young Adult Oncology
H Patel, K Austin-Smith, S M Sherman, D Tincello, E L Moss
BACKGROUND: The incorporation of Human papillomavirus (HPV) testing into the English cervical screening programme has been met with fear and anxiety. Healthcare professionals need to be adequately informed about HPV to help alleviate patient concerns.The aim of this study was to evaluate the HPV training provided to practice nurses (PNs) and determine their level of HPV knowledge. METHOD: A web-based survey was distributed to 147 General Practice surgeries in the Leicester, Leicestershire and Rutland regions, between May and July 2015...
July 13, 2016: Journal of Public Health
C Demoor-Goldschmidt, S Supiot, L Claude, C Carrie, R Mazeron, S Helfré, C Alapetite, A Jouin, B Coche, L Padovani, X Muracciole, V Bernier, C Vigneron, G Noël, J Leseur, É Le Prisé, D Stefan, J L Habrand, C Kerr, P Y Bondiau, A Ruffier, S Chapet, M A Mahé
A survey was conducted in 2015 in France on the care of children in radiotherapy services. We present the results for total body irradiation in children, a specific technique of radiation treatment, which needs dedicated controls for this particular population. Of the 17 centres interviewed, 16 responded, and 13 practiced total body irradiation. Patients are positioned in lateral decubitus in 11 centres and supine/prone in two centres. Doses used for total body irradiation in myeloablative bone marrow transplantation are the same in all centres (12Gy); treatments are always fractionated...
June 2016: Cancer Radiothérapie: Journal de la Société Française de Radiothérapie Oncologique
Ivy Altomare, Blair Irwin, Syed Yousuf Zafar, Kevin Houck, Bailey Maloney, Rachel Greenup, Jeffrey Peppercorn
PURPOSE: We surveyed US cancer doctors to examine current attitudes toward cost discussions and how they influence decision making and practice management. METHODS: We conducted a self-administered, anonymous, electronic survey of randomly selected physician ASCO members to evaluate the frequency and nature of cost discussions reported by physicians, attitudes toward discussions of cost in clinics, and potential barriers. RESULTS: A total of 333 of 2,290 physicians responded (response rate [RR], 15%; adjusted RR after omitting nonpracticing physician ASCO members, 25%), Respondent practice settings were 45% academic and 55% community/private practice...
March 2016: Journal of Oncology Practice
Stacy W Gray, Elyse R Park, Julie Najita, Yolanda Martins, Lara Traeger, Elizabeth Bair, Joshua Gagne, Judy Garber, Pasi A Jänne, Neal Lindeman, Carol Lowenstein, Nelly Oliver, Lynette Sholl, Eliezer M Van Allen, Nikhil Wagle, Sam Wood, Levi Garraway, Steven Joffe
PURPOSE: Although targeted sequencing improves outcomes for many cancer patients, it remains uncertain how somatic and germ-line whole-exome sequencing (WES) will integrate into care. METHODS: We conducted surveys and interviews within a study of WES integration at an academic center to determine oncologists' attitudes about WES and to identify lung and colorectal cancer patients' preferences for learning WES findings. RESULTS: One-hundred sixty-seven patients (85% white, 58% female, mean age 60) and 27 oncologists (22% female) participated...
October 2016: Genetics in Medicine: Official Journal of the American College of Medical Genetics
Xin Nie, Dawei Ye, Qiming Wang, Anne Manyande, Lin Yang, Hong Qiu, Tengfei Chao, Peng Zhang, Chen Gong, Liang Zhuang, Shiying Yu, Huihua Xiong
BACKGROUND: This study attempted to examine the discordance between family caregivers and cancer patients in their poor-prognosis disclosure preferences in mainland China and then ascertained the associations between quality of life (QoL), perceived stress, and poor-prognosis disclosure preferences. METHODS: Six hundred fifty-one pairs of inpatients and their matched caregivers (participation rate = 92.2%) were recruited in this cross-sectional survey. A set of paired self-administered questionnaires were completed independently by patient-caregiver dyads...
September 2016: Psycho-oncology
Alberto Tagliafico, Licia Gristina, Bianca Bignotti, Francesca Valdora, Simona Tosto, Massimo Calabrese
OBJECTIVE: To compare the effects of digital breast tomosynthesis (DBT)-guided and digital mammography (MMx)-guided vacuum-assisted breast biopsy (VABB) on short-term quality of life (QoL). METHODS: From November 2014 through March 2015, females undergoing VABB in an academic medical centre participated in a survey after biopsy. VABB was performed under DBT (Group 1) or MMx guidance (Group 2). Biopsy experience was assessed with a modified testing morbidities index (TMI)...
2015: British Journal of Radiology
K L Whitaker, S Cromme, K Winstanley, C Renzi, J Wardle
OBJECTIVE: To qualitatively explore associations between emotional responses to experience of cancer 'alarm' symptoms and help-seeking in a community sample of adults. METHOD: Interviewees (n = 62) were recruited from a community sample (n = 2042) of adults aged ≥50 years, who had completed a health survey that included a list of cancer alarm symptoms. Participants who had reported an alarm symptom both at baseline and 3-month follow-up (n = 271), and who had consented to contact (n = 215), constituted the pool for invitations to interview...
May 2016: Psycho-oncology
S Furtado, R J Grimer, P Cool, S A Murray, T Briggs, J Fulton, K Grant, C H Gerrand
Patients who have limb amputation for musculoskeletal tumours are a rare group of cancer survivors. This was a prospective cross-sectional survey of patients from five specialist centres for sarcoma surgery in England. Physical function, pain and quality of life (QOL) outcomes were collected after lower extremity amputation for bone or soft-tissue tumours to evaluate the survivorship experience and inform service provision. Of 250 patients, 105 (42%) responded between September 2012 and June 2013. From these, completed questionnaires were received from 100 patients with a mean age of 53...
September 2015: Bone & Joint Journal
Ryan D Nipp, Leah L Zullig, Gregory Samsa, Jeffrey M Peppercorn, Deborah Schrag, Donald H Taylor, Amy P Abernethy, S Yousuf Zafar
BACKGROUND: Cancer patients may experience financial distress as a side effect of their care. Little is known about which patients are at greatest risk for altering their care or lifestyle due to treatment-related financial distress. METHODS: We conducted a cross-sectional survey study to determine which patients are at greatest risk for altering their care or lifestyle due to treatment-related financial distress. Eligible patients were adults receiving cancer treatment enrolled between June 2010 and May 2011...
June 2016: Psycho-oncology
Jessica Ezzell Hunter, Jamilyn M Zepp, Mari J Gilmore, James V Davis, Elizabeth J Esterberg, Kristin R Muessig, Susan K Peterson, Sapna Syngal, Louise S Acheson, Georgia L Wiesner, Jacob A Reiss, Katrina A B Goddard
BACKGROUND: Universal tumor screening for Lynch syndrome, the most common form of hereditary colorectal cancer (CRC), has been recommended among all patients newly diagnosed with CRC. However, there is limited literature regarding patient perspectives of tumor screening for Lynch syndrome among patients with CRC who are not selected for screening based on family history criteria. METHODS: A total of 145 patients aged 39 to 87 years were administered surveys assessing perceived risk, patient perspectives, and potential benefits of and barriers to tumor screening for Lynch syndrome...
September 15, 2015: Cancer
Mahmoud Shaheen Al Ahwal, Faten Al Zaben, Mohammad Gamal Sehlo, Doaa Ahmed Khalifa, Harold G Koenig
OBJECTIVE: Colorectal cancer (CRC) patients experience considerable psychological stress because of changes brought on by their illness. Religion may be a resource for such patients. We examined the prevalence of religious beliefs and practices in CRC patients and correlation with demographic, social, psychological, and physical health characteristics. METHODS: Seventy CRC patients (all Muslim) in Jeddah, Saudi Arabia, were surveyed using a 13-item Muslim religiosity scale...
March 2016: Psycho-oncology
Angela R Bradbury, Linda J Patrick-Miller, Brian L Egleston, Laura DiGiovanni, Jamie Brower, Diana Harris, Evelyn M Stevens, Kara N Maxwell, Abha Kulkarni, Tyler Chavez, Amanda Brandt, Jessica M Long, Jacquelyn Powers, Jill E Stopfer, Katherine L Nathanson, Susan M Domchek
PURPOSE: The risks, benefits, and utilities of multiplex panels for breast cancer susceptibility are unknown, and new counseling and informed consent models are needed. We sought to obtain patient feedback and early outcome data with a novel tiered-binned model for multiplex testing. METHODS: BRCA1/2-negative and untested patients completed pre- and posttest counseling and surveys evaluating testing experiences and cognitive and affective responses to multiplex testing...
January 2016: Genetics in Medicine: Official Journal of the American College of Medical Genetics
Eliza M Park, Devon K Check, Justin M Yopp, Allison M Deal, Teresa P Edwards, Donald L Rosenstein
OBJECTIVE: Effective physician communication about prognosis is a critical aspect of quality care for families affected by terminal illness. This is particularly important for spousal caregivers of terminally ill parents of dependent children, who may have unique needs for communication about anticipated death. The objective of this study was to explore end-of-life prognostic communication experiences reported by bereaved fathers whose wives died from cancer. METHODS: From October 2012 to November 2013 we surveyed widowed fathers whose wives died from cancer through an open-access educational website...
November 2015: Psycho-oncology
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