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2015 cancer patient experience survey

Megan Chiswell, Annika Smissen, Anna Ugalde, Deborah Lawson, Rachel Whiffen, Sonia Brockington, Anna Boltong
Technology provides an opportunity to engage with a variety of audiences to provide cancer education, information and support. Webinars are one such format that allow live presentations by experts that can be accessed online, from people's homes or other convenient locations. In 2015, Cancer Council Victoria (CCV) undertook a program of work to design and evaluate the effectiveness of a suite of webinars: four designed for people affected by cancer and two for health professionals. Webinars included a series of expert presentations, a panel discussion and an interactive component where participants posed questions to the panel...
December 15, 2016: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
Bode Falase, Michael Sanusi, Adeola Animasahun, Ogadinma Mgbajah, Adetinuwe Majekodunmi, Onyekwelu Nzewi, Jonathan Nwiloh, David Oke
BACKGROUND: Although the specialty of cardiothoracic surgery has been practiced in Nigeria for many years, open heart surgery (OHS) has only in the last decade become relatively more frequent, mainly through visiting foreign cardiac surgical teams. At this early phase of development it is faced with multiple challenges, especially financing and local skilled manpower for which solutions have to be identified in order to ensure sustainability and future growth. This study is aimed at highlighting these obstacles to growth of cardiothoracic surgery based on our own institutional experience at Lagos State University Teaching Hospital (LASUTH) and the current status of OHS activity in other cardiothoracic centers in Nigeria...
October 2016: Cardiovascular Diagnosis and Therapy
Naomi J Fulop, Angus I G Ramsay, Cecilia Vindrola-Padros, Michael Aitchison, Ruth J Boaden, Veronica Brinton, Caroline S Clarke, John Hines, Rachael M Hunter, Claire Levermore, Satish B Maddineni, Mariya Melnychuk, Caroline M Moore, Muntzer M Mughal, Catherine Perry, Kathy Pritchard-Jones, David C Shackley, Jonathan Vickers, Stephen Morris
BACKGROUND: There are longstanding recommendations to centralise specialist healthcare services, citing the potential to reduce variations in care and improve patient outcomes. Current activity to centralise specialist cancer surgical services in two areas of England provides an opportunity to study the planning, implementation and outcomes of such changes. London Cancer and Manchester Cancer are centralising specialist surgical pathways for prostate, bladder, renal, and oesophago-gastric cancers, so that these services are provided in fewer hospitals...
November 25, 2016: Implementation Science: IS
Nicolas Girard, Jesus Corral, Diego Cortinovis, David F Heigener
BACKGROUND: Guidelines provide treatment recommendations for advanced non-small-cell lung cancer (NSCLC), but physicians must also consider other factors. We surveyed physicians treating NSCLC to determine their therapy goals, drivers of treatment choice, current prescribing behavior, and therapy expectations. MATERIALS AND METHODS: In 2015, an online survey was conducted of 500 pulmonologists/oncologists treating lung adenocarcinoma in Germany, France, Italy, Spain, and the United Kingdom, comprising screening and therapy decision questions...
October 26, 2016: Clinical Lung Cancer
Pei-Han Yeh, Shih-Kai Hung, Moon-Sing Lee, Wen-Yen Chiou, Chun-Liang Lai, Wei-Ta Tsai, Hui-Ling Hsieh, Yi-Ting Shih, Liang-Cheng Chen, Li-Wen Huang, Yi-An Lin, Po-Hao Lin, Yung-Hsiang Lin, Dai-Wei Liu, Feng-Chun Hsu, Shiang-Jiun Tsai, Jia-Chi Liu, En-Seu Chung, Hon-Yi Lin
BACKGROUND: Frequent multidisciplinary communication is essential in conducting daily radiotherapy (RT) practice. However, traditional oral or paper-based communication has limitations. E-communication has been suggested, but its effects are still not well demarcated in the field of radiation oncology. OBJECTS: In our web-based integrated information platform, we constructed a ping-pong-type e-communication function to transfer specific notations among multidisciplinary RT staffs...
November 2016: Medicine (Baltimore)
Liisa Karhe, Marja Kaunonen, Anna-Maija Koivisto
This study investigated patients' experiences of loneliness in professional caring relationships and their associations with perceived recovery, health, psychological distress, and general loneliness in life. The sample consisted of 406 patients who had undergone breast cancer or heart surgery 6 months earlier. The data were collected in May 2014-March 2015 using a postal survey including the Caring Loneliness Scale (CARLOS), questions concerning perceived health and recovery, 12-item General Health Questionnaire (GHQ-12), and a question concerning perceived general loneliness in life...
November 10, 2016: Clinical Nursing Research
Charles Amoatey Odonkor, William Addison, Sean Smith, Ernest Osei-Bonsu, Teresa Tang, Michael Erdek
OBJECTIVE: [Formula: see text]The goal of this study was to elucidate the attitudes, beliefs, and barriers interfering with cancer pain management, the degree of barrier interference with trainees' care of patients, and the relationships among prohibitive factors to pain management for physicians in a low-middle-income countries (LMICs) vs high-income countries (HICs). DESIGN AND SETTING:  A multi-institutional cross-sectional survey of physicians in specialties with a focus in pain management training was performed...
September 20, 2016: Pain Medicine: the Official Journal of the American Academy of Pain Medicine
S N Rogers, L Russell, D Lowe
A temporary tracheostomy is commonly done in patients who have reconstruction after the ablation of advanced oral cancer to provide easy access to a secure airway in case a haematoma forms or the patient needs a return to theatre. Although relatively simple to do, we know little about the patients' experience, and to find out, we designed a three-stage study. First, we conducted semi-structured interviews to identify items related to the functional, emotional, and social impacts of the tracheostomy, on the ward and on removal (n=15 patients)...
September 2, 2016: British Journal of Oral & Maxillofacial Surgery
Helen Bibby, Victoria White, Kate Thompson, Antoinette Anazodo
PURPOSE: To assess what is currently known about unmet needs and care experiences of adolescents and young adults (AYAs) with cancer, identify gaps in the research literature, and highlight potential areas for improvement in future research. METHODS: Medline, PsycINFO, CINAHL, and EMBASE databases were searched to identify relevant studies from 1990 to July 2015. Eligible articles included self-reported care experiences or unmet needs of cancer patients aged between 15 and 30 years in the period between symptom onset and 2 years post-treatment...
July 25, 2016: Journal of Adolescent and Young Adult Oncology
H Patel, K Austin-Smith, S M Sherman, D Tincello, E L Moss
BACKGROUND: The incorporation of Human papillomavirus (HPV) testing into the English cervical screening programme has been met with fear and anxiety. Healthcare professionals need to be adequately informed about HPV to help alleviate patient concerns.The aim of this study was to evaluate the HPV training provided to practice nurses (PNs) and determine their level of HPV knowledge. METHOD: A web-based survey was distributed to 147 General Practice surgeries in the Leicester, Leicestershire and Rutland regions, between May and July 2015...
July 13, 2016: Journal of Public Health
C Demoor-Goldschmidt, S Supiot, L Claude, C Carrie, R Mazeron, S Helfré, C Alapetite, A Jouin, B Coche, L Padovani, X Muracciole, V Bernier, C Vigneron, G Noël, J Leseur, É Le Prisé, D Stefan, J L Habrand, C Kerr, P Y Bondiau, A Ruffier, S Chapet, M A Mahé
A survey was conducted in 2015 in France on the care of children in radiotherapy services. We present the results for total body irradiation in children, a specific technique of radiation treatment, which needs dedicated controls for this particular population. Of the 17 centres interviewed, 16 responded, and 13 practiced total body irradiation. Patients are positioned in lateral decubitus in 11 centres and supine/prone in two centres. Doses used for total body irradiation in myeloablative bone marrow transplantation are the same in all centres (12Gy); treatments are always fractionated...
June 2016: Cancer Radiothérapie: Journal de la Société Française de Radiothérapie Oncologique
Ivy Altomare, Blair Irwin, Syed Yousuf Zafar, Kevin Houck, Bailey Maloney, Rachel Greenup, Jeffrey Peppercorn
PURPOSE: We surveyed US cancer doctors to examine current attitudes toward cost discussions and how they influence decision making and practice management. METHODS: We conducted a self-administered, anonymous, electronic survey of randomly selected physician ASCO members to evaluate the frequency and nature of cost discussions reported by physicians, attitudes toward discussions of cost in clinics, and potential barriers. RESULTS: A total of 333 of 2,290 physicians responded (response rate [RR], 15%; adjusted RR after omitting nonpracticing physician ASCO members, 25%), Respondent practice settings were 45% academic and 55% community/private practice...
March 2016: Journal of Oncology Practice
Stacy W Gray, Elyse R Park, Julie Najita, Yolanda Martins, Lara Traeger, Elizabeth Bair, Joshua Gagne, Judy Garber, Pasi A Jänne, Neal Lindeman, Carol Lowenstein, Nelly Oliver, Lynette Sholl, Eliezer M Van Allen, Nikhil Wagle, Sam Wood, Levi Garraway, Steven Joffe
PURPOSE: Although targeted sequencing improves outcomes for many cancer patients, it remains uncertain how somatic and germ-line whole-exome sequencing (WES) will integrate into care. METHODS: We conducted surveys and interviews within a study of WES integration at an academic center to determine oncologists' attitudes about WES and to identify lung and colorectal cancer patients' preferences for learning WES findings. RESULTS: One-hundred sixty-seven patients (85% white, 58% female, mean age 60) and 27 oncologists (22% female) participated...
October 2016: Genetics in Medicine: Official Journal of the American College of Medical Genetics
Xin Nie, Dawei Ye, Qiming Wang, Anne Manyande, Lin Yang, Hong Qiu, Tengfei Chao, Peng Zhang, Chen Gong, Liang Zhuang, Shiying Yu, Huihua Xiong
BACKGROUND: This study attempted to examine the discordance between family caregivers and cancer patients in their poor-prognosis disclosure preferences in mainland China and then ascertained the associations between quality of life (QoL), perceived stress, and poor-prognosis disclosure preferences. METHODS: Six hundred fifty-one pairs of inpatients and their matched caregivers (participation rate = 92.2%) were recruited in this cross-sectional survey. A set of paired self-administered questionnaires were completed independently by patient-caregiver dyads...
September 2016: Psycho-oncology
Alberto Tagliafico, Licia Gristina, Bianca Bignotti, Francesca Valdora, Simona Tosto, Massimo Calabrese
OBJECTIVE: To compare the effects of digital breast tomosynthesis (DBT)-guided and digital mammography (MMx)-guided vacuum-assisted breast biopsy (VABB) on short-term quality of life (QoL). METHODS: From November 2014 through March 2015, females undergoing VABB in an academic medical centre participated in a survey after biopsy. VABB was performed under DBT (Group 1) or MMx guidance (Group 2). Biopsy experience was assessed with a modified testing morbidities index (TMI)...
2015: British Journal of Radiology
K L Whitaker, S Cromme, K Winstanley, C Renzi, J Wardle
OBJECTIVE: To qualitatively explore associations between emotional responses to experience of cancer 'alarm' symptoms and help-seeking in a community sample of adults. METHOD: Interviewees (n = 62) were recruited from a community sample (n = 2042) of adults aged ≥50 years, who had completed a health survey that included a list of cancer alarm symptoms. Participants who had reported an alarm symptom both at baseline and 3-month follow-up (n = 271), and who had consented to contact (n = 215), constituted the pool for invitations to interview...
May 2016: Psycho-oncology
S Furtado, R J Grimer, P Cool, S A Murray, T Briggs, J Fulton, K Grant, C H Gerrand
Patients who have limb amputation for musculoskeletal tumours are a rare group of cancer survivors. This was a prospective cross-sectional survey of patients from five specialist centres for sarcoma surgery in England. Physical function, pain and quality of life (QOL) outcomes were collected after lower extremity amputation for bone or soft-tissue tumours to evaluate the survivorship experience and inform service provision. Of 250 patients, 105 (42%) responded between September 2012 and June 2013. From these, completed questionnaires were received from 100 patients with a mean age of 53...
September 2015: Bone & Joint Journal
Ryan D Nipp, Leah L Zullig, Gregory Samsa, Jeffrey M Peppercorn, Deborah Schrag, Donald H Taylor, Amy P Abernethy, S Yousuf Zafar
BACKGROUND: Cancer patients may experience financial distress as a side effect of their care. Little is known about which patients are at greatest risk for altering their care or lifestyle due to treatment-related financial distress. METHODS: We conducted a cross-sectional survey study to determine which patients are at greatest risk for altering their care or lifestyle due to treatment-related financial distress. Eligible patients were adults receiving cancer treatment enrolled between June 2010 and May 2011...
June 2016: Psycho-oncology
Jessica Ezzell Hunter, Jamilyn M Zepp, Mari J Gilmore, James V Davis, Elizabeth J Esterberg, Kristin R Muessig, Susan K Peterson, Sapna Syngal, Louise S Acheson, Georgia L Wiesner, Jacob A Reiss, Katrina A B Goddard
BACKGROUND: Universal tumor screening for Lynch syndrome, the most common form of hereditary colorectal cancer (CRC), has been recommended among all patients newly diagnosed with CRC. However, there is limited literature regarding patient perspectives of tumor screening for Lynch syndrome among patients with CRC who are not selected for screening based on family history criteria. METHODS: A total of 145 patients aged 39 to 87 years were administered surveys assessing perceived risk, patient perspectives, and potential benefits of and barriers to tumor screening for Lynch syndrome...
September 15, 2015: Cancer
Mahmoud Shaheen Al Ahwal, Faten Al Zaben, Mohammad Gamal Sehlo, Doaa Ahmed Khalifa, Harold G Koenig
OBJECTIVE: Colorectal cancer (CRC) patients experience considerable psychological stress because of changes brought on by their illness. Religion may be a resource for such patients. We examined the prevalence of religious beliefs and practices in CRC patients and correlation with demographic, social, psychological, and physical health characteristics. METHODS: Seventy CRC patients (all Muslim) in Jeddah, Saudi Arabia, were surveyed using a 13-item Muslim religiosity scale...
March 2016: Psycho-oncology
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