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Chronic disease social media

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https://www.readbyqxmd.com/read/27979791/stigma-and-its-impact-on-glucose-control-among-youth-with-diabetes-protocol-for-a-canada-wide-study
#1
Anne-Sophie Brazeau, Meranda Nakhla, Michael Wright, Constadina Panagiotopoulos, Daniele Pacaud, Mélanie Henderson, Elham Rahme, Deborah Da Costa, Kaberi Dasgupta
BACKGROUND: Stigma in chronic disease involves unwarranted rejection, judgement, or exclusion by others based on the chronic disease itself. OBJECTIVE: We aim to determine the prevalence of stigma among youth and young adults with type 1 diabetes in Canada, to assess associations between stigma and glycemic control, and to explore ways to address stigma related to type 1 diabetes. METHODS: The study includes 3 distinct phases: (1) refinement of survey questions, (2) assessment of test-retest reliability, and (3) a data collection and analysis phase (online survey and mailed-in capillary blood sample to assess hemoglobin A1c)...
December 15, 2016: JMIR Research Protocols
https://www.readbyqxmd.com/read/27965845/wildcat-wellness-coaching-feasibility-trial-protocol-for-home-based-health-behavior-mentoring-in-girls
#2
Brooke J Cull, Sara K Rosenkranz, David A Dzewaltowski, Colby S Teeman, Cassandra K Knutson, Richard R Rosenkranz
BACKGROUND: Childhood obesity is a major public health problem, with one third of America's children classified as either overweight or obese. Obesity prevention and health promotion programs using components such as wellness coaching and home-based interventions have shown promise, but there is a lack of published research evaluating the impact of a combined home-based and wellness coaching intervention for obesity prevention and health promotion in young girls. The main objective of this study is to test the feasibility of such an intervention on metrics related to recruitment, intervention delivery, and health-related outcome assessments...
2016: Pilot and Feasibility Studies
https://www.readbyqxmd.com/read/27830250/all-that-glitters-is-not-gold-consumer-health-informatics-and-education-in-the-era-of-social-media-and-health-apps-findings-from-the-yearbook-2016-section-on-consumer-health-informatics
#3
L Fernandez-Luque, P Staccini
OBJECTIVE: To summarize the state of the art published during the year 2015 in the areas related to consumer health informatics and education with a special emphasis on unintended consequences of applying mobile and social media technologies in that domain. METHODS: We conducted a systematic review of articles published in PubMed with a predefined set of queries, which lead to the selection of over 700 potential relevant articles. Section editors screened those papers on the title, abstract, and finally complete paper basis, taking into account the papers' relevance for the section topic...
November 10, 2016: Yearbook of Medical Informatics
https://www.readbyqxmd.com/read/27799136/the-use-of-ehealth-and-provider-based-health-services-by-patients-with-diabetes-mellitus-protocol-for-a-cross-sectional-study
#4
Anne Helen Hansen, Meghan Bradway, Jan Broz, Tor Claudi, Øystein Henriksen, Silje C Wangberg, Eirik Årsand
BACKGROUND: The prevalence of diabetes and the use of electronic health (eHealth) resources are increasing. People with diabetes need frequent monitoring and follow-up of health parameters, and eHealth services can be of great significance in this regard. However, little is known about the extent to which different kinds of eHealth tools are used, and how the use of eHealth is associated with the use of provider-based health care services among people with diabetes. OBJECTIVE: The primary objective of this study is to investigate the use of eHealth and its association with the use of provider-based health care services...
October 31, 2016: JMIR Research Protocols
https://www.readbyqxmd.com/read/27757025/older-adults-attitudes-and-barriers-toward-the-use-of-mobile-phones
#5
Nasrin Navabi, Fatemeh Ghaffari, Zahra Jannat-Alipoor
BACKGROUND AND OBJECTIVES: The limitations caused by the process of aging and the prevalence of chronic diseases contribute to reduced performance in physical, psychological, and social areas of life in older people. The use of mobile phones as easily accessible portable tools with a high performance is associated with an increased health literacy, self-care, and independence in older people. The present study was conducted to determine older people's attitudes toward the use of mobile phones and the barriers to their use...
2016: Clinical Interventions in Aging
https://www.readbyqxmd.com/read/27755269/a-survey-of-social-media-use-and-preferences-in-patients-with-inflammatory-bowel-disease
#6
Jason Reich, Ling Guo, Julia Hall, Ashley Tran, Janice Weinberg, Jacob Groshek, Tanya E Rowell, Jack A DiPalma, Francis A Farraye
BACKGROUND: With the recent increase in the use of social media, patients with chronic illnesses are using the Internet as a resource for disease management. As the peak incidence of inflammatory bowel disease (IBD) occurs in patients between the ages of 15 and 30, IBD is a suitable condition to study social media use. The aim of this study was to assess social media usage and preferences in patients with IBD. METHODS: We administered a survey to 118 patients with IBD at our outpatient practice at the Boston Medical Center (BMC), Center for Digestive Disorders, and the University of Southern Alabama (USA) between November 1, 2015, and March 9, 2016...
November 2016: Inflammatory Bowel Diseases
https://www.readbyqxmd.com/read/27742604/a-review-of-persuasive-principles-in-mobile-apps-for-chronic-arthritis-patients-opportunities-for-improvement
#7
Jonas Geuens, Thijs Willem Swinnen, Rene Westhovens, Kurt de Vlam, Luc Geurts, Vero Vanden Abeele
BACKGROUND: Chronic arthritis (CA), an umbrella term for inflammatory rheumatic and other musculoskeletal diseases, is highly prevalent. Effective disease-modifying antirheumatic drugs for CA are available, with the exception of osteoarthritis, but require a long-term commitment of patients to comply with the medication regimen and management program as well as a tight follow-up by the treating physician and health professionals. Additionally, patients are advised to participate in physical exercise programs...
October 13, 2016: JMIR MHealth and UHealth
https://www.readbyqxmd.com/read/27677267/syndrome-related-stigma-in-the-general-social-environment-as-reported-by-women-with-classical-congenital-adrenal-hyperplasia
#8
Heino F L Meyer-Bahlburg, Jazmin A Reyes-Portillo, Jananne Khuri, Anke A Ehrhardt, Maria I New
Stigma defined as "undesired differentness" (Goffman, 1963) and subtyped as "experienced" or "enacted," "anticipated," and "internalized" has been documented for patients with diverse chronic diseases. However, no systematic data exist on the association of stigma with somatic intersexuality. The current report concerns women with classical congenital adrenal hyperplasia (CAH), the most prevalent intersex syndrome, and provides descriptive data on CAH-related stigma as experienced in the general social environment (excluding medical settings and romantic/sexual partners) during childhood, adolescence, and adulthood...
September 27, 2016: Archives of Sexual Behavior
https://www.readbyqxmd.com/read/27587315/the-seven-stages-of-man-the-role-of-developmental-stage-on-medication-adherence-in-respiratory-diseases
#9
Richard W Costello, Juliet M Foster, Jonathan Grigg, Michelle N Eakin, Walter Canonica, Fasail Yunus, Dermot Ryan
The circumstances and drivers of the decision to initiate, implement, or persist with a medication differ for individuals at each developmental stage. For school-age children with asthma, the social environment of their family's cultural beliefs and the influence of peer networks and school policies are strong determinants of medication adherence. The stage of adolescence can be a particularly challenging time because there is a reduction in parental supervision of asthma management as the young person strives to become more autonomous...
September 2016: Journal of Allergy and Clinical Immunology in Practice
https://www.readbyqxmd.com/read/27577346/lay-crowd-sourced-expertise-lce-and-its-influence-on-the-new-role-of-patients-ethical-and-societal-issues
#10
Eugenia Lamas, Rodrigo Salinas, Marcela Ferrer, Cedric Bousquet, Dominique Vuillaume
The emergence of social media on the Internet allows patients to discuss about their chronic diseases within online communities sharing common interests. This allows patients to gather other patients' experience, and gain new knowledge that is usually not shared by healthcare professionals. In this context, further studies are required on the actual impact of the use of social networks on the quality of life of patients participating in these online communities, focusing on the evolving role and impact of Lay Crowdsourced expertise (LCE) in improving disease management and control...
2016: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/27533266/men-s-health-non-communicable-chronic-diseases-and-social-vulnerability
#11
Daniele Natália Pacharone Bertolini Bidinotto, Janete Pessuto Simonetti, Silvia Cristina Mangini Bocchi
OBJECTIVES: to evaluate the relationship between absences in scheduled appointments and the number of non-communicable chronic diseases and to investigate the relationship between spatial distribution of these diseases and social vulnerability, using geoprocessing. METHOD: a quantitative study of sequential mixed approach by analyzing 158 medical records of male users to relate the absences and 1250 medical records for geoprocessing. RESULTS: the higher the number of absences in the scheduled medical appointments, the less were the number of non-communicable chronic diseases and the ones listed in the International Classification of Diseases in single men...
August 15, 2016: Revista Latino-americana de Enfermagem
https://www.readbyqxmd.com/read/27508920/social-support-of-adults-and-elderly-with-chronic-kidney-disease-on-dialysis
#12
Simone Márcia da Silva, Natalia Fernanda Braido, Ana Carolina Ottaviani, Gabriela Dutra Gesualdo, Marisa Silvana Zazzetta, Fabiana de Souza Orlandi
OBJECTIVE: to evaluate the instrumental and emotional social support of patients with chronic kidney disease on hemodialysis. METHOD: descriptive cross-sectional study. The sample was sized for convenience and included 103 participants under treatment in a Renal Replacement Therapy Unit. Data were collected through individual interviews, using the Social Support Scale. RESULTS: the mean scores of the emotional and instrumental social support were 3...
August 8, 2016: Revista Latino-americana de Enfermagem
https://www.readbyqxmd.com/read/27484237/genetic-and-environmental-determinants-of-otitis-media-in-an-indigenous-filipino-population
#13
Regie Lyn P Santos-Cortez, Ma Rina T Reyes-Quintos, Ma Leah C Tantoco, Izoduwa Abbe, Erasmo Gonzalo D V Llanes, Nadim J Ajami, Diane S Hutchinson, Joseph F Petrosino, Carmencita D Padilla, Romeo L Villarta, Teresa Luisa Gloria-Cruz, Abner L Chan, Eva Maria Cutiongco-de la Paz, Charlotte M Chiong, Suzanne M Leal, Generoso T Abes
OBJECTIVE: To identify genetic and environmental risk factors for otitis media in an indigenous Filipino population. STUDY DESIGN: Cross-sectional study. SETTING: Indigenous Filipino community. SUBJECTS AND METHODS: Clinical history and information on breastfeeding, tobacco smoke exposure, and swimming were obtained from community members. Heads of households were interviewed for family history and personal beliefs on ear health...
August 2, 2016: Otolaryngology—Head and Neck Surgery
https://www.readbyqxmd.com/read/27469161/success-stories-showing-the-diversity-of-kidney-foundations-turkish-kidney-foundation
#14
Timur Erk
Founded in 1985, the Turkish Kidney Foundation serves the society with 3 dialysis centers and a 113-bed general hospital. Interacting with public authorities and advocating end-stage renal disease (ESRD) patients' rights are essential services of this non-governmental organization (NGO). Over the last 30 years, keeping with the trend of chronic kidney disease (CKD) in the country, the foundation raised awareness in the population for this condition and prepared an activity road map by using statistical facts and data...
2016: Clinical Nephrology
https://www.readbyqxmd.com/read/27457719/health-outcomes-and-the-transition-experience-of-hiv-infected-adolescents-after-transfer-to-adult-care-in-qu%C3%A3-bec-canada
#15
Fatima Kakkar, Dimitri Van der Linden, Silvie Valois, Francois Maurice, Marion Onnorouille, Normand Lapointe, Hugo Soudeyns, Valerie Lamarre
BACKGROUND: Little is known on outcomes after transition to adult care among adolescents with perinatal HIV infection. Though there is data from other chronic pediatric diseases suggesting increased morbidity and mortality following transfer to adult care, this has not well been studied among the first wave of survivors of perinatal HIV infection. The primary objective of this study was to determine outcomes after transition to adult care among a cohort of HIV-infected adolescents in Québec, Canada...
2016: BMC Pediatrics
https://www.readbyqxmd.com/read/27435103/a-prescription-for-internet-access-appealing-to-middle-aged-and-older-racial-and-ethnic-minorities-through-social-network-sites-to-combat-colorectal-cancer
#16
Crystal Y Lumpkins, Natabhona Mabachi, Jaehoon Lee, Christina Pacheco, K Allen Greiner, Mugur Geana
The popularity and usage of social media networks or SNS (social networking sites) among American Internet users age 50 and over doubled between 2009 and 2010 and has steadily climbed. Part of this increased access may be the result of older adults who are living with a chronic disease and are reaching out for online support. Colorectal cancer (CRC) risk is among those concerns, particularly among middle-age and older minority populations where disparities exist. This exploratory study investigates information seeking behavior related to cancer factors (e...
July 19, 2016: Health Communication
https://www.readbyqxmd.com/read/27359178/structural-remodeling-of-sympathetic-innervation-in-atherosclerotic-blood-vessels-role-of-atherosclerotic-disease-progression-and-chronic-social-stress
#17
Crystal M Noller, Armando J Mendez, Angela Szeto, Marcia Boulina, Maria M Llabre, Julia Zaias, Neil Schneiderman, Philip M McCabe
OBJECTIVE: The sympathetic nervous system (SNS) can undergo dramatic structural plasticity in response to behavioral factors and/or the presence of disease, leading to SNS hyperinnervation of peripheral tissues. The SNS has been proposed as an important mediator between stressful behavior and the progression of atherosclerosis in the vasculature. The present study examined whether structural remodeling of the SNS occurs in the vasculature in a genetically hyperlipidemic animal model of atherosclerosis, the Watanabe heritable hyperlipidemic rabbit (WHHL; relative to normolipidemic New Zealand white rabbits [NZW]), and whether SNS plasticity is driven by the progression of disease and/or by stressful social behavior...
June 29, 2016: Psychosomatic Medicine
https://www.readbyqxmd.com/read/27337991/patient-perspectives-on-the-choice-of-dialysis-modality-results-from-the-empowering-patients-on-choices-for-renal-replacement-therapy-epoch-rrt-study
#18
Claudia Dahlerus, Martha Quinn, Emily Messersmith, Laurie Lachance, Lalita Subramanian, Erica Perry, Jill Cole, Junhui Zhao, Celeste Lee, Margie McCall, Leslie Paulson, Francesca Tentori
BACKGROUND: Little is known about factors that are important to patients with advanced kidney disease and their perspectives at the time they choose a dialysis modality. EPOCH-RRT, a study supported in part by the Patient-Centered Outcomes Research Institute (PCORI), was designed to assist patients with this choice by identifying such factors and effectively provide relevant information. STUDY DESIGN: Cross-sectional study, designed and conducted in collaboration with a multistakeholder advisory panel that included patients, caregivers, and health care professionals...
June 21, 2016: American Journal of Kidney Diseases: the Official Journal of the National Kidney Foundation
https://www.readbyqxmd.com/read/27296086/a-technology-mediated-behavioral-weight-gain-prevention-intervention-for-college-students-controlled-quasi-experimental-study
#19
Delia Smith West, Courtney M Monroe, Gabrielle Turner-McGrievy, Beth Sundstrom, Chelsea Larsen, Karen Magradey, Sara Wilcox, Heather M Brandt
BACKGROUND: Both men and women are vulnerable to weight gain during the college years, and this phenomenon is linked to an increased risk of several chronic diseases and mortality. Technology represents an attractive medium for the delivery of weight control interventions focused on college students, given its reach and appeal among this population. However, few technology-mediated weight gain prevention interventions have been evaluated for college students. OBJECTIVE: This study examined a new technology-based, social media-facilitated weight gain prevention intervention for college students...
2016: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/27268617/knowledge-and-awareness-of-colorectal-cancer-among-undergraduate-students-at-king-abdulaziz-university-jeddah-saudi-arabia-a-survey-based-study
#20
Muhammad Imran, Zaid Sayedalamin, Salhah S Alsulami, Magdi Atta, Mukhtiar Baig
BACKGROUND: This study explored the knowledge and awareness about colorectal cancer (CRC) among undergraduate students of one of the leading universities in Saudi Arabia, along with the mode of information access. MATERIALS AND METHODS: The present cross-sectional study was conducted at the King Abdulaziz University, Jeddah, Saudi Arabia, among students of different faculties. The study questionnaire, containing 28 items, was adapted from surveys identified in the relevant literature...
2016: Asian Pacific Journal of Cancer Prevention: APJCP
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