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Chronic disease social media

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https://www.readbyqxmd.com/read/29788360/use-of-social-media-for-health-related-tasks-by-adolescents-with-inflammatory-bowel-disease-a-step-in-the-pathway-of-transition
#1
Winnie Szeto, Annelotte van der Bent, Carter R Petty, Jason Reich, Francis Farraye, Laurie N Fishman
Background: Social media is commonly used among the adolescent and young adult population, including those with chronic diseases. For adults, these platforms have been shown to be a major source of health information. Our aims were to explore how youth with inflammatory bowel disease (IBD) use social media for (1) disease information gathering, (2) provider communication, (3) sense of belonging to the IBD community, (4) self-expression around IBD, and (5) disease management/monitoring...
May 18, 2018: Inflammatory Bowel Diseases
https://www.readbyqxmd.com/read/29713795/digital-health-a-new-dimension-in-rheumatology-patient-care
#2
REVIEW
Suchitra Kataria, Vinod Ravindran
The new digital health innovations have opened up several opportunities to help the clinicians, patients and other caregivers of rheumatology healthcare system in maximizing efficiencies resulting in better patient outcomes. In the global context, digital health technology has the potential to bridge the distance gap between all the key stakeholders involved in rheumatology health care. In this review, we update on the recent advances in the field of digital health and highlight unique features of these technologies which would help in routine care...
April 30, 2018: Rheumatology International
https://www.readbyqxmd.com/read/29706237/-pathway-to-diagnosis-and-real-life-experience-of-patients-believing-they-are-affected-by-chronic-lyme-disease
#3
E Forestier, F Gonnet, A Revil-Signorat, A C Zipper
OBJECTIVES: Chronic Lyme disease is a subject of scientific and social controversy in both Europe and the United States. The aim of our study was to analyze the pathway to diagnosis of patients believing they were affected by the disease, and to describe their real-life experience. METHOD: A qualitative study was performed with 13 patients declaring themselves to be affected by chronic Lyme disease. Interviews were analyzed by 2 general medical practice interns, supervised by a general practitioner with a diploma in socio-anthropology and an infectious diseases specialist...
April 26, 2018: La Revue de Médecine Interne
https://www.readbyqxmd.com/read/29700937/is-this-health-campaign-really-social-marketing-a-checklist-to-help-you-decide
#4
Josephine Y Chau, Bronwyn McGill, Margaret M Thomas, Tom E Carroll, William Bellew, Adrian Bauman, Anne C Grunseit
ISSUE ADDRESSED: Social marketing (SM) campaigns can be a powerful disease prevention and health promotion strategy but health-related campaigns may simply focus on the "promotions" communication activities and exclude other key characteristics of the SM approach. This paper describes the application of a checklist for identifying which lifestyle-related chronic disease prevention campaigns reported as SM actually represent key SM principles and practice. METHODS: A checklist of SM criteria was developed, reviewed and refined by SM and mass media campaign experts...
April 2018: Health Promotion Journal of Australia
https://www.readbyqxmd.com/read/29678032/tasome-validating-a-framework-to-generate-evidence-about-health-outcomes-from-social-media-use
#5
Mark Merolli, Kathleen Gray, Fernando Martin-Sanchez
Research surrounding social media's impact on patient-reported health outcomes continues to emerge. However, an ongoing challenge for researchers is generating valid and reliable evidence that draws upon rigorous frameworks. This manuscript details the development and refinement of a framework that defines criteria and methods for generating and evaluating evidence about social media use in chronic disease management; the Therapeutic Affordances of Social Media (TASoMe) framework. TASoMe was built through the considered combination of mixed research methods and data collection instruments...
2018: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/29626050/impact-of-multimorbidity-count-on-all-cause-mortality-and-glycaemic-outcomes-in-people-with-type-2-diabetes-a-systematic-review-protocol
#6
Jason I Chiang, John Furler, Frances S Mair, Bhautesh Jani, Barbara I Nicholl, Alicia Jenkins, Patrick Condron, David O'Neal, Jo-Anne Manski-Nankervis
INTRODUCTION: Type 2 diabetes (T2D) is a leading health priority worldwide. Multimorbidity (MM) is a term describing the co-occurrence of two or more chronic diseases or conditions. The majority of people living with T2D have MM. The relationship between MM and mortality and glycaemia in people with T2D is not clear. METHODS AND ANALYSIS: Medline, Embase, Cumulative Index of Nursing and Allied Health Complete, The Cochrane Library, and SCOPUS will be searched with a prespecified search strategy...
April 5, 2018: BMJ Open
https://www.readbyqxmd.com/read/29527995/factors-predisposing-to-the-use-of-complementary-therapies-in-patients-with-chronic-renal-failure
#7
Aydan Akyüz Özdemir, Rengin Erdal, Mehmet Haberal
OBJECTIVES: Our aim was to gather information about complementary medicine applications used by chronic renal failure patients and their relation to demographic factors. MATERIALS AND METHODS: Of 1750 chronic renal disease patients who were undergoing hemodialysis, only 450 patients attended in the study. Among 450 patients, 388 gave consent and were interviewed using a previously tested questionnaire. Questions about complementary and alternative medicine use, a list of commonly used methods, and the sources of knowledge about these were asked of all patients...
March 2018: Experimental and Clinical Transplantation
https://www.readbyqxmd.com/read/29482399/interpreting-intracorporeal-landscapes-how-patients-visualize-pathophysiology-and-utilize-medical-images-in-their-understanding-of-chronic-musculoskeletal-illness
#8
Andrew J Moore, Jane C Richardson, Miriam Bernard, Julius Sim
Medical science and other sources, such as the media, increasingly inform the general public's understanding of disease. There is often discordance between this understanding and the diagnostic interpretations of health care practitioners (HCPs). In this paper - based on a supra-analysis of qualitative interview data from two studies of joint pain, including osteoarthritis - we investigate how people imagine and make sense of the pathophysiology of their illness, and how these understandings may affect self-management behavior...
February 26, 2018: Disability and Rehabilitation
https://www.readbyqxmd.com/read/29425624/internet-and-social-media-use-for-antibiotic-related-information-seeking-findings-from-a-survey-among-adult-population-in-italy
#9
Rossella Zucco, Francesco Lavano, Rosa Anfosso, Aida Bianco, Claudia Pileggi, Maria Pavia
BACKGROUND: The Internet represents an increasingly common source of health-related information. Internet and Social Media can be used to promote a prudent use of antibiotics. OBJECTIVE: To establish the extent of Internet and Social Media use to search for antibiotic related information and the potential implications in health care among adult population in Italy. METHODS: This cross-sectional study was conducted from March to May 2017, among a sample of parents of public school students...
March 2018: International Journal of Medical Informatics
https://www.readbyqxmd.com/read/29411703/social-media-as-a-tool-for-the-management-of-food-allergy-in-children
#10
A Alvarez-Perea, P Cabrera-Freitag, V Fuentes-Aparicio, S Infante, L Zapatero, J M Zubeldia
BACKGROUND: Food allergy heavily impairs quality of life. Avoiding the offending food requires extensive patient education. Social media have been proven a useful source of information for other chronic conditions. Our aim was to describe how pediatric patients with food allergy and their families are using social media. METHODS: We performed a cross-sectional study in the Pediatric Allergy Unit of a third-level hospital. Patients with food allergy were surveyed about their disease and the use of social media...
February 7, 2018: Journal of Investigational Allergology & Clinical Immunology
https://www.readbyqxmd.com/read/29343460/facebook-groups-for-the-management-of-chronic-diseases
#11
Stephanie R Partridge, Patrick Gallagher, Becky Freeman, Robyn Gallagher
The use of Facebook groups by health care researchers and professionals for chronic disease management, namely type 2 diabetes mellitus and coronary heart disease, is in its early stages and challenges are emerging. While Facebook groups offer great potential to deliver health support, research of Facebook groups for chronic disease management remains in its infancy, with robust evidence not yet available. Designing Facebook groups that are acceptable to users, health care researchers as well as health care professionals is a challenge, and there is a poor fit with traditional research and evaluation methods...
January 17, 2018: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/29336364/mechanism-of-chronic-stress-induced-reduced-atherosclerotic-medial-area-and-increased-plaque-instability-in-rabbit-models-of-chronic-stress
#12
Ze-Mou Yu, Xiao-Tao Deng, Ruo-Mei Qi, Lu-Yan Xiao, Chong-Qing Yang, Tao Gong
BACKGROUND: Chronic stress contributes to increased risks of atherosclerotic diseases including heart disease, stroke, and transient ischemic attack. However, its underline mechanisms are poorly understood. This study aimed to elucidate the mechanism via which chronic stress exerts its effect on atherosclerosis (AS). METHODS: Fifty male New Zealand white rabbits were used. Aortic balloon-injury model was applied. Both social stress and physical stress methods were adopted to establish chronic stress models...
January 20, 2018: Chinese Medical Journal
https://www.readbyqxmd.com/read/29335160/mobile-phone-use-among-patients-and-health-workers-to-enhance-primary-healthcare-a-qualitative-study-in-rural-south-africa
#13
Jocelyn Olivia Todd Anstey Watkins, Jane Goudge, Francesc Xavier Gómez-Olivé, Frances Griffiths
Mobile phones have the potential to improve access to healthcare information and services in low-resourced settings. This study investigated the use of mobile phones among patients with chronic diseases, pregnant women, and health workers to enhance primary healthcare in rural South Africa. Qualitative research was undertaken in Mpumalanga in 2014. Semi structured in-depth interviews were conducted with 113 patients and 43 health workers from seven primary healthcare clinics and one district hospital. Data were thematically analysed...
February 2018: Social Science & Medicine
https://www.readbyqxmd.com/read/29222081/media-consumption-and-creation-in-attitudes-toward-and-knowledge-of-inflammatory-bowel-disease-web-based-survey
#14
Jacob Groshek, Miles Basil, Ling Guo, Sarah Parker Ward, Francis A Farraye, Jason Reich
BACKGROUND: Inflammatory bowel disease (IBD) is a chronic gastrointestinal condition affecting over 5 million people globally and 1.6 million in the United States but currently lacks a precisely determined cause or cure. The range of symptoms IBD patients experience are often debilitating, and the societal stigmas associated with some such symptoms can further degrade their quality of life. Better understanding the nature of this public reproach then is a critical component for improving awareness campaigns and, ultimately, the experiences of IBD patients...
December 8, 2017: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/29169350/-what-say-ye-gout-experts-a-content-analysis-of-questions-about-gout-posted-on-the-social-news-website-reddit
#15
Christina Derksen, Anna Serlachius, Keith J Petrie, Nicola Dalbeth
BACKGROUND: Social media is increasingly used by patients to source information for managing chronic disease. The aim of this study was to understand patient information needs about gout by a content analysis of questions posted on the social news website Reddit. METHODS: We analysed questions posted onto the 'Gout sufferers unite' subreddit site. Two reviewers coded questions into categories (inter-reviewer kappa 0.70), with discordant coding resolved by a third reviewer...
November 23, 2017: BMC Musculoskeletal Disorders
https://www.readbyqxmd.com/read/29148198/ear-nose-and-throat-surgery-all-you-need-to-know-about-the-surgical-approach-to-the-management-of-middle-ear-effusions-in-australian-indigenous-and-non-indigenous-children
#16
REVIEW
Kelvin Kong, Francis J Lannigan, Peter S Morris, Amanda J Leach, Stephen J O'Leary
Otitis media (OM) is a common condition in Australia. It represents a spectrum of diseases from otitis media with effusion (OME) to chronic suppurative otitis media. For all the OM diagnoses, Australian Indigenous children have higher rates of early onset, severe and persistent disease. OME is the most common form of OM and often occurs after an upper respiratory tract infection. It can be difficult to diagnose (and often goes unrecognised). Hearing loss is the most important complication. The middle-ear effusion impedes the movement of the tympanic membrane and causes a conductive hearing loss of around 25 dB...
November 2017: Journal of Paediatrics and Child Health
https://www.readbyqxmd.com/read/29080584/therapeutic-lifestyle-changes-for-diabetes-mellitus
#17
REVIEW
Celia Levesque
Diabetes mellitus is a common chronic disease affecting approximately 9% of the United States population. Successful management of diabetes demands constant self-management on the part of the patient. The patient has to balance diabetes medications, blood glucose monitoring, food intake, physical activity, and management of diabetes-related acute and chronic complications. The patient is often bombarded with misinformation from friends, relatives, and such sources as the Internet and social media. This article discusses the current recommendations for diabetes self-management education and skills including medical nutrition therapy, physical activity, smoking cessation, and assessment for diabetes distress...
December 2017: Nursing Clinics of North America
https://www.readbyqxmd.com/read/29025698/college-freshmen-students-perspectives-on-weight-gain-prevention-in-the-digital-age-web-based-survey
#18
Courtney M Monroe, Gabrielle Turner-McGrievy, Chelsea A Larsen, Karen Magradey, Heather M Brandt, Sara Wilcox, Beth Sundstrom, Delia Smith West
BACKGROUND: College freshmen are highly vulnerable to experiencing weight gain, and this phenomenon is associated with an increased risk of chronic diseases and mortality in older adulthood. Technology offers an attractive and scalable way to deliver behavioral weight gain prevention interventions for this population. Weight gain prevention programs that harness the appeal and widespread reach of Web-based technologies (electronic health or eHealth) are increasingly being evaluated in college students...
October 12, 2017: JMIR Public Health and Surveillance
https://www.readbyqxmd.com/read/29021838/qualitative-analysis-of-parkinson-s-disease-information-on-social-media-the-case-of-youtube%C3%A2
#19
Ibrahim Saleh Al-Busaidi, Tim J Anderson, Yassar Alamri
INTRODUCTION: There is a paucity of data pertaining to the usefulness of information presented on social media platforms on chronic neuropsychiatric conditions such as Parkinson's disease (PD). The aim of this study was to examine the quality of YouTube™ videos that deliver general information on PD and the availability and design of instructional videos addressing the caregiving role in PD. METHODS: YouTube™ was searched using the keyword "Parkinson's disease" for relevant videos...
September 2017: EPMA Journal
https://www.readbyqxmd.com/read/28954717/social-media-and-multiple-sclerosis-in-the-posttruth-age
#20
Luigi Lavorgna, Roberta Lanzillo, Vincenzo Brescia Morra, Gianmarco Abbadessa, Gioacchino Tedeschi, Simona Bonavita
Over the last few decades, patients have increasingly been searching for health information on the Internet. This aspect of information seeking is really important, especially for people affected by chronic pathologies and require lifelong treatment and management. These people are usually very well informed about the disease, but are nonetheless vulnerable to hopes of being cured or saved, often amplified by misinformation, myths, legends, and therapies that are not always scientifically proven. Many studies suggest that some individuals prefer to rely on the Internet as their main source of information, often hindering the patient-doctor relationship...
September 27, 2017: Interactive Journal of Medical Research
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