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https://www.readbyqxmd.com/read/29777584/neuropsychiatric-expression-and-catatonia-in-22q11-2-deletion-syndrome-an-overview-and-case-series
#1
Nancy J Butcher, Erik Boot, Anthony E Lang, Danielle Andrade, Jacob Vorstman, Donna McDonald-McGinn, Anne S Bassett
Individuals with 22q11.2 deletion syndrome (22q11.2DS) are at elevated risk of developing treatable psychiatric and neurological disorders, including anxiety disorders, schizophrenia, seizures, and movement disorders, often beginning in adolescence or early to mid-adulthood. Here, we provide an overview of neuropsychiatric features associated with 22q11.2DS in adulthood. Results of a new case series of 13 individuals with 22q11.2DS and catatonic features together with 5 previously reported cases support a potential association of this serious psychomotor phenotype with the 22q11...
May 19, 2018: American Journal of Medical Genetics. Part A
https://www.readbyqxmd.com/read/29777245/growth-assessment-and-monitoring-during-childhood
#2
Fabian Yap, Yung Seng Lee, Marion Margaret Hy Aw
Growth is an indicator of the health and nutritional status of infants and children. Health organisations and professionals worldwide advocate monitoring the growth of children with the primary aim of identifying and preventing malnutrition and/or obesity. Growth monitoring should be part of every health care consultation for children. However, physicians during health care consultations are often so busy addressing acute health issues, that they miss the opportunity to monitor the child's growth and provide anticipatory guidance...
April 2018: Annals of the Academy of Medicine, Singapore
https://www.readbyqxmd.com/read/29757833/advance-care-planning-and-anticipatory-decision-making-in-patients-with-alzheimer-disease
#3
(no author information available yet)
No abstract text is available yet for this article.
June 11, 2018: Nurse Practitioner
https://www.readbyqxmd.com/read/29757832/advance-care-planning-and-anticipatory-decision-making-in-patients-with-alzheimer-disease
#4
Jason T Slyer, Ella Archibald, Fernea Moyo, Marie Truglio-Londrigan
Early advance care planning and anticipatory decision making in the Alzheimer disease (AD) trajectory is a strategy NPs can incorporate to improve managing uncertainty around common decisions. This article explores decisions patients and caregivers face along the AD trajectory and provides resources for patients, caregivers, and NPs.
June 11, 2018: Nurse Practitioner
https://www.readbyqxmd.com/read/29750904/perspectives-of-nurses-nurse-leaders-and-women-regarding-anticipatory-rounds-in-the-postpartum-period
#5
Ashley Wright, Marshe Suderman, Donna Moyer, Khristina Grimm, Karen H Morin
OBJECTIVE: To obtain the perspectives of staff nurses, nurse leaders, and women with regard to the relevance and timing of nursing interactions during anticipatory rounds in the postpartum period. DESIGN: A qualitative descriptive design using focus groups. SETTING: A hospital with 405 beds that serves a Midwestern U.S. community of approximately 256,000 people. PARTICIPANTS: A purposive sample of 12 staff nurses, 6 nurse leaders, and 15 women attended a total of 10 focus groups...
May 8, 2018: Journal of Obstetric, Gynecologic, and Neonatal Nursing: JOGNN
https://www.readbyqxmd.com/read/29731002/healthcare-in-a-carbon-constrained-world
#6
Kate E Charlesworth, Maggie Jamieson
Objective The climate crisis necessitates urgent decarbonisation. The health sector must address its large carbon footprint. In the present study, we sought healthcare thought leaders' views about a future environmentally sustainable health system. Methods The present study was a qualitative exploratory study consisting of semistructured, in-depth interviews with 15 healthcare thought leaders from Australia, the UK, the US and New Zealand. Audio recordings of the interviews were transcribed and analysed by matrix display and thematic analysis...
May 7, 2018: Australian Health Review: a Publication of the Australian Hospital Association
https://www.readbyqxmd.com/read/29713242/caring-for-late-preterm-infants-public-health-nurses-experiences
#7
Genevieve Currie, Aliyah Dosani, Shahirose S Premji, Sandra M Reilly, Abhay K Lodha, Marilyn Young
Background: Public health nurses (PHNs) care for and support late preterm infants (LPIs) and their families when they go home from the hospital. PHNs require evidence-informed guidelines to ensure appropriate and consistent care. The objective of this research study is to capture the lived experience of PHNs caring for LPIs in the community as a first step to improving the quality of care for LPIs and support for their parents. Methods: To meet our objectives we chose a descriptive phenomenology approach as a method of inquiry...
2018: BMC Nursing
https://www.readbyqxmd.com/read/29688127/the-feasibility-of-a-randomised-controlled-trial-to-compare-the-cost-effectiveness-of-palliative-cardiology-or-usual-care-in-people-with-advanced-heart-failure-two-exploratory-prospective-cohorts
#8
Miriam J Johnson, Paula McSkimming, Alex McConnachie, Claudia Geue, Yvonne Millerick, Andrew Briggs, Karen Hogg
BACKGROUND: The effectiveness of cardiology-led palliative care is unknown; we have insufficient information to conduct a full trial. AIM: To assess the feasibility (recruitment/retention, data quality, variability/sample size estimation, safety) of a clinical trial of palliative cardiology effectiveness. DESIGN: Non-randomised feasibility. SETTING/PARTICIPANTS: Unmatched symptomatic heart failure patients on optimal cardiac treatment from (1) cardiology-led palliative service (caring together group) and (2) heart failure liaison service (usual care group)...
April 1, 2018: Palliative Medicine
https://www.readbyqxmd.com/read/29687049/health-status-of-adolescents-reporting-experiences-of-adversity
#9
Naomi N Duke, Iris W Borowsky
This study examines relationships between adverse childhood experiences (ACEs) and adolescent health indicators among a sample of 8th, 9th, and 11th graders participating in the 2016 Minnesota Student Survey. Logistic regression was used to determine whether 10 types of ACEs were associated with health indicators that may link to health in adulthood, including self-rated health, body mass index (BMI), sleep duration, and dietary and physical activity participation after adjustment for demographic covariates...
2018: Global Pediatric Health
https://www.readbyqxmd.com/read/29679459/exploring-the-meaning-of-home-and-its-implications-for-the-care-of-older-people
#10
Michele Board, Brendan McCormack
AIMS AND OBJECTIVES: To explore the meaning of home for six baby boomers and consider how this insight can be used when caring for older people in hospital or residential settings. BACKGROUND: Feeling at home is important to help retain a sense of autonomy, security and well-being, but home is a complex concept to understand. The baby boomers are a large cohort entering later life and understanding their sense of home is not only an example of anticipatory gerontology but it could also provide the tools to explore home with the current older population, who may be in a variety of care settings...
April 20, 2018: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29673361/adding-a-second-surprise-question-triggers-general-practitioners-to-increase-the-thoroughness-of-palliative-care-planning-results-of-a-pilot-rct-with-cage-vignettes
#11
F Weijers, C Veldhoven, C Verhagen, K Vissers, Y Engels
BACKGROUND: In our aging society, palliative care should be a standard component of health care. However, currently it is only provided to a small proportion of patients, mostly to those with cancer, and restricted to the terminal phase. Many general practitioners (GPs) say that one of their most significant challenges is to assess the right moment to start anticipatory palliative care. The "Surprise Question" (SQ1: "Would I be surprised if this patient were to die in the next 12 months"?), if answered with "no", is an easy tool to apply in identifying patients in need of palliative care...
April 19, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29672990/screen-time-exposure-and-sleep-among-children-with-developmental-disabilities
#12
Ramkumar Aishworiya, Jennifer Sh Kiing, Yiong Huak Chan, Serena Sw Tung, Evelyn Law
AIM: Children with developmental disabilities are at risk of excessive screen time and are more vulnerable to sleep problems. The aim of this study was to determine the extent of screen time use in children with developmental disabilities and its relationship with sleep duration. METHODS: Consecutive children aged 6-15 years diagnosed with Diagnostic and Statistical Manual of Mental Disorders, Fourth or Fifth Edition (DSM-IV or DSM-5) developmental disabilities were recruited for this study from December 2014 to April 2015...
April 19, 2018: Journal of Paediatrics and Child Health
https://www.readbyqxmd.com/read/29652793/emerging-trends-in-health-promotion-for-people-with-disabilities
#13
EDITORIAL
Brooks C Wingo, James H Rimmer
The need among people with disabilities to improve their own health and prevent/manage secondary conditions requires a better balance between reactive and anticipatory care.
April 13, 2018: International Journal of Environmental Research and Public Health
https://www.readbyqxmd.com/read/29651316/early-identification-of-patients-in-need-of-palliative-care-in-slovenian-general-practice
#14
Lisette Klok, Yvonne Engels, Carel Veldhoven, Danica Rotar Pavlič
Background: To help general practitioners (GPs) in early identification of patients with palliative care (PC) needs, this pilot study aimed to determine the potential of the combined original surprise question (SQ1) ('Would I be surprised if this patient died within the next 12 months?') and the second surprise question (SQ2) ('Would I be surprised if this patient was still alive after 12 months?'). We hypothesized that answering these SQs would trigger them to make a multidimensional care plan...
June 2018: Zdravstveno Varstvo
https://www.readbyqxmd.com/read/29650740/managing-complexity-in-care-of-patients-with-intellectual-and-developmental-disabilities-natural-fit-for-the-family-physician-as-an-expert-generalist
#15
REVIEW
Elizabeth Grier, Dara Abells, Ian Casson, Meg Gemmill, Jessica Ladouceur, Amanda Lepp, Ullanda Niel, Samantha Sacks, Kyle Sue
OBJECTIVE: To delineate the factors inherent in caring for patients with intellectual and developmental disabilities (IDD) that lead to complexity and to provide perspectives and techniques mapped to the phases of the clinical encounter. SOURCES OF INFORMATION: The authors of the physical health section of the 2018 Canadian consensus guidelines on the primary care of adults with IDD consisted of family physicians, all of whom practise comprehensive family medicine with additional clinical experience in care of adults with IDD...
April 2018: Canadian Family Physician Médecin de Famille Canadien
https://www.readbyqxmd.com/read/29569978/anticipatory-guidance-in-type-2-diabetes-to-improve-disease-management-next-steps-after-basal-insulin
#16
Eric L Johnson, Juan P Frias, Jennifer M Trujillo
The alarming rise in the number of people living with type 2 diabetes (T2D) presents primary care physicians with increasing challenges associated with long-term chronic disease care. Studies have shown that the majority of patients are not achieving or maintaining glycemic goals, putting them at risk of a wide range of diabetes-related complications. Disease- and self-management programs have been shown to help patients improve their glycemic control, and are likely to be of particular benefit for patients with diabetes dealing with these issues...
March 23, 2018: Postgraduate Medicine
https://www.readbyqxmd.com/read/29532465/voluntary-stopping-eating-and-drinking
#17
John W Wax, Amy W An, Nicole Kosier, Timothy E Quill
Voluntary stopping of eating and drinking (VSED) is a deliberate, self-initiated attempt to hasten death in the setting of suffering refractory to optimal palliative interventions or prolonged dying that a person finds intolerable. Individuals who consider VSED tend to be older, have a serious but not always imminently terminal illness, place a high value on independence, and have significant illness burden. VSED can theoretically be performed independent of clinician assistance and therefore avoids many of the ethical and legal concerns associated with physician-assisted dying or other palliative measures of last resort, However, VSED is an intense process fraught with new sources of somatic and emotional suffering for individuals and their caregivers, so VSED is best supervised by an experienced, well-informed clinician who can provide appropriate pre-intervention assessment, anticipatory guidance, medical treatment of symptoms, and emotional support...
March 2018: Journal of the American Geriatrics Society
https://www.readbyqxmd.com/read/29516776/palliative-care-for-people-with-advanced-liver-disease-a-feasibility-trial-of-a-supportive-care-liver-nurse-specialist
#18
Barbara Kimbell, Scott A Murray, Heidi Byrne, Andrea Baird, Peter C Hayes, Alastair MacGilchrist, Anne Finucane, Patricia Brookes Young, Ronan E O'Carroll, Christopher J Weir, Marilyn Kendall, Kirsty Boyd
BACKGROUND: Liver disease is an increasing cause of death worldwide but palliative care is largely absent for these patients. AIM: We conducted a feasibility trial of a complex intervention delivered by a supportive care liver nurse specialist to improve care coordination, anticipatory care planning and quality of life for people with advanced liver disease and their carers. DESIGN: Patients received a 6-month intervention (alongside usual care) from a specially trained liver nurse specialist...
May 2018: Palliative Medicine
https://www.readbyqxmd.com/read/29514349/recovery-from-mild-traumatic-brain-injury-following-uncomplicated-mounted-and-dismounted-blast-a-natural-history-approach
#19
Anna E Tschiffely, Ashraful Haque, Francis J Haran, Craig A Cunningham, Melissa L Mehalick, Todd May, Keith Stuessi, Peter B Walker, Jacob N Norris
Objective: The purpose of this study is to utilize a natural history approach to describe and understand symptom recovery in personnel diagnosed with a blast-related mild traumatic brain injury (mTBI) resulting from an improvised explosive device blast. Participants and Design: The population included military personnel who experienced a blast mTBI while mounted (vehicle; n = 176) or dismounted (on foot; n = 37) (N = 213). Patients had no co-morbid psychiatric or muscle-skeletal issues and were treated within 72 h of injury...
March 1, 2018: Military Medicine
https://www.readbyqxmd.com/read/29506591/forty-years-of-the-law-180-the-aspirations-of-a-great-reform-its-successes-and-continuing-need
#20
R Mezzina
AIM: Italy pioneered deinstitutionalisation over the past 60 years and enforced a famous mental health (MH) reform law in 1978. Deinstitutionalisation has been completed with the very closure of all psychiatric hospitals over two decades. METHODS: After 40 years of implementation, this article presents the main achievements and challenges of the Italian MH reform law, including its long-term effect and impact in Italy and abroad. RESULTS: The Legislation of 1978 was based on the discovery of rights as a key tool in mental healthcare...
March 6, 2018: Epidemiology and Psychiatric Sciences
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