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Emotional stress AND Multiple sclerosis

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https://www.readbyqxmd.com/read/27907914/anxiety-and-coping-strategy-changes-in-multiple-sclerosis-patients-initiating-fingolimod-the-grace-prospective-study
#1
Thibault Moreau, Catherine Bungener, Olivier Heinzlef, Laurent Suchet, Florent Borgel, Isabelle Bourdeix, Mohamed Meite, Karin Rerat, Isabelle Chouette
The objective of this prospective study was to assess the changes in anxiety levels, and their relationship with coping strategies over the first four months of fingolimod treatment in patients with relapsing remitting multiple sclerosis (RRMS). Data were collected at the inclusion visit (Visit 1) and 4 months later (Visit 2). We used the Hospital Anxiety and Depression Scale (HADS) to assess the level of anxiety and the Coping Inventory for Stressful Situations scale to assess the coping strategies used when engaged with stressful situations...
December 2, 2016: European Neurology
https://www.readbyqxmd.com/read/27422092/-it-feels-like-wearing-a-giant-sandbag-adolescent-and-parent-perceptions-of-fatigue-in-paediatric-multiple-sclerosis
#2
Susan Carroll, Trudie Chalder, Cheryl Hemingway, Isobel Heyman, Rona Moss-Morris
AIM: Fatigue is one of the most common and disabling symptoms of paediatric MS, associated with depressed mood, impaired school performance and lower quality of life. Fatigue in children and adolescents with MS (caMS) is poorly understood, and effective treatments for fatigue are currently lacking. No qualitative studies have previously examined fatigue in caMS. Thus, the objectives were (a) to explore experiences of fatigue in paediatric MS and (b) to gain insight into how caMS and their parents respond to and manage fatigue...
December 0: European Journal of Paediatric Neurology: EJPN
https://www.readbyqxmd.com/read/27148134/treating-post-traumatic-stress-disorder-in-patients-with-multiple-sclerosis-a-randomized-controlled-trial-comparing-the-efficacy-of-eye-movement-desensitization-and-reprocessing-and-relaxation-therapy
#3
Sara Carletto, Martina Borghi, Gabriella Bertino, Francesco Oliva, Marco Cavallo, Arne Hofmann, Alessandro Zennaro, Simona Malucchi, Luca Ostacoli
OBJECTIVE: Multiple Sclerosis (MS) is a demyelinating autoimmune disease that imposes a significant emotional burden with heavy psychosocial consequences. Several studies have investigated the association between MS and mental disorders such as depression and anxiety, and recently researchers have focused also on Post-traumatic Stress Disorder (PTSD). This is the first study that investigates the usefulness of proposing a treatment for PTSD to patients with MS. METHODS: A randomized controlled trial with patients with MS diagnosed with PTSD comparing Eye Movement Desensitization and Reprocessing (EMDR; n = 20) and Relaxation Therapy (RT; n = 22)...
2016: Frontiers in Psychology
https://www.readbyqxmd.com/read/27099848/effect-of-disease-duration-on-personality-type-in-multiple-sclerosis-patients-and-healthy-individual
#4
Sahar Vesal, Leila Dehghani, Masoud Etemadifar, Elahe Poorazizi, Sima Akhavan, Samaneh Mazrouei, Nasim Mehdizadeh, Zahra Saraf
BACKGROUND: Multiple sclerosis may have profound emotional consequences. The relation between psychological and physical factors could lead patients toward unforeseen disease. This study focuses on multiple sclerosis (MS) disease duration on personality type A and B in relation to individuals' behaviors. MATERIALS AND METHODS: This descriptive-analytical study was conducted in Isfahan Alzahra hospital in 2013. Three hundred MS patients and 100 healthy individuals were determined...
2016: Advanced Biomedical Research
https://www.readbyqxmd.com/read/27008209/exploring-sources-of-emotional-distress-among-people-living-with-scleroderma-a-focus-group-study
#5
Stephanie T Gumuchian, Sandra Peláez, Vanessa C Delisle, Marie-Eve Carrier, Lisa R Jewett, Ghassan El-Baalbaki, Catherine Fortune, Marie Hudson, Ann Impens, Annett Körner, Jennifer Persmann, Linda Kwakkenbos, Susan J Bartlett, Brett D Thombs
BACKGROUND: Systemic sclerosis, or scleroderma, is a chronic and rare connective tissue disease with negative physical and psychological implications. Sources of emotional distress and the impact they have on the lives of people with scleroderma are not well understood. OBJECTIVES: To gain an in-depth understanding of the emotional experiences and sources of emotional distress for women and men living with scleroderma through focus group discussions. METHODS: Three semi-structured focus group discussions were conducted (two in English, one in French) with a total of 22 people with scleroderma recruited through the Scleroderma Society of Ontario in Hamilton, Ontario and a scleroderma clinic in Montreal, Canada...
2016: PloS One
https://www.readbyqxmd.com/read/26675663/determinants-of-psychosocial-difficulties-experienced-by-persons-with-brain-disorders-towards-a-horizontal-epidemiology-approach
#6
MULTICENTER STUDY
Carla Sabariego, Michaela Coenen, Carolina Ballert, Maria Cabello, Matilde Leonardi, Marta Anczewska, Tuuli Pitkänen, Alberto Raggi, Blanca Mellor, Venusia Covelli, Piotr Świtaj, Jonna Levola, Silvia Schiavolin, Anna Chrostek, Jerome Bickenbach, Somnath Chatterji, Alarcos Cieza
BACKGROUND: Persons with brain disorders experience significant psychosocial difficulties (PSD) in daily life, e.g. problems with managing daily routine or emotional lability, and the level of the PSD depends on social, physical and political environments, and psychologic-personal determinants. Our objective is to determine a brief set of environmental and psychologic-personal factors that are shared determinants of PSD among persons with different brain disorders. METHODS: Cross-sectional study, convenience sample of persons with either dementia, stroke, multiple sclerosis, epilepsy, migraine, depression, schizophrenia, substance dependence or Parkinson's disease...
2015: PloS One
https://www.readbyqxmd.com/read/26664330/care-partners-and-multiple-sclerosis-differential-effect-on-men-and-women
#7
Tamara McKenzie, Mary Elizabeth Quig, Tuula Tyry, Ruth Ann Marrie, Gary Cutter, Edward Shearin, Kamau Johnson, James Simsarian
BACKGROUND: Caring for someone with multiple sclerosis (MS) can be a stressful experience that requires clinical attention. We investigated the impact of caregiver stress on the emotional well-being and physical health of the MS care partner using the North American Research Committee on Multiple Sclerosis (NARCOMS) Registry. METHODS: Care partners of NARCOMS participants were invited to complete an online questionnaire that captured demographic characteristics, health status, caregiver burden as measured by the Zarit Caregiver Burden Interview, and impact of caregiving on employment...
November 2015: International Journal of MS Care
https://www.readbyqxmd.com/read/26599674/gender-differences-in-caregiver-strain-needs-for-support-social-support-and-quality-of-life-among-spousal-caregivers-of-persons-with-multiple-sclerosis
#8
Eun-Jeong Lee, Jessica Pieczynski, Samantha DeDios-Stern, Camille Simonetti, Gloria K Lee
BACKGROUND: Caregivers of individuals with MS may experience unique caregiver strain due to the age at onset and progressive nature of the disease. Additionally, because MS is more prevalent in women, men often become spousal caregivers. However, gender differences in psychosocial adjustment among caregivers have not been fully explored. OBJECTIVE: The purpose of this study was to explore gender differences in the need for various supports and type of social support needed, caregiver strain, and quality of life among caregivers for individuals with MS...
2015: Work: a Journal of Prevention, Assessment, and Rehabilitation
https://www.readbyqxmd.com/read/26400038/perceptions-of-caregiver-distress-health-behaviors-and-provider-health-promoting-communication-and-their-relationship-to-stress-management-in-ms-caregivers
#9
Lauren Penwell-Waines, Marie-Christine Rutter Goodworth, Rhonda S Casillas, Rebecca Rahn, Lara Stepleman
This study applied the Stress/Health Model to examine a novel approach for promoting stress management among 67 caregivers of persons with multiple sclerosis, who often face unique caregiving challenges. Hierarchical regressions indicated that caregiver distress (i.e., emotional burden) and engagement in other health-promoting activities (i.e., controlling alcohol use) were the best predictors of caregiver stress management. Communication with the MS care recipient's health provider about caregiver engagement in health-promoting activities was associated with caregiver stress management, but not significantly more so than explained by the other factors (i...
2016: Health Communication
https://www.readbyqxmd.com/read/26081331/-psychoneuroimmunology-and-multiple-sclerosis
#10
M V Mel'nikov, M V Pashchenkov, A N Boĭko
In this review, the authors discuss interactions between mental, nervous and immune systems in multiple sclerosis, an impact of psycho-emotional stress on disease development and progression as well as possible mechanisms of these interactions.
2015: Zhurnal Nevrologii i Psikhiatrii Imeni S.S. Korsakova
https://www.readbyqxmd.com/read/26052255/the-effect-of-biofeedback-as-a-psychological-intervention-in-multiple-sclerosis-a-randomized-controlled-study
#11
Alison M Mackay, Robert Buckingham, Raymond S Schwartz, Suzanne Hodgkinson, Roy G Beran, Dennis J Cordato
BACKGROUND: Relaxation, mindfulness, social support, and education (RMSSE) have been shown to improve emotional symptoms, coping, and fatigue in multiple sclerosis (MS). Biofeedback was trialed as a psychological intervention, designed to improve self-control, in two groups of patients with MS. Both groups received RMSSE, and one group additionally received biofeedback. METHODS: Forty people with relapsing-remitting MS were recruited from three sites in Sydney, Australia...
May 2015: International Journal of MS Care
https://www.readbyqxmd.com/read/26030822/patient-expression-of-emotions-and-neurologist-responses-in-first-multiple-sclerosis-consultations
#12
Lidia Del Piccolo, Erika Pietrolongo, Davide Radice, Carla Tortorella, Paolo Confalonieri, Maura Pugliatti, Alessandra Lugaresi, Andrea Giordano, Christoph Heesen, Alessandra Solari
BACKGROUND: Anxiety and depression are common in people with multiple sclerosis (MS), but data on emotional communication during MS consultations are lacking. We assessed patient expressions of emotion and neurologist responses during first-ever MS consultations using the Verona Coding Definitions of Emotional Sequences (VR-CoDES). METHODS: We applied VR-CoDES to recordings/transcripts of 88 outpatient consultations (10 neurologists, four MS Italian centers). Before consultation, patients completed the Hospital Anxiety and Depression Scale (HADS)...
2015: PloS One
https://www.readbyqxmd.com/read/26009936/the-effect-of-executive-function-on-stress-depression-anxiety-and-quality-of-life-in-multiple-sclerosis
#13
Lisa B Grech, Litza A Kiropoulos, Katherine M Kirby, Ernest Butler, Mark Paine, Robert Hester
The experience of cognitive deficits and emotional dysfunction are prevalent in people with multiple sclerosis (PwMS), although research examining their interaction has provided inconsistent findings. The current study examined the ability of executive function to predict psychosocial adjustment in PwMS. One hundred and seven PwMS underwent cognitive assessment and completed measures of stress, depression, anxiety, and quality of life (QoL). There was limited support for a relationship. There was no relationship between objective cognitive tasks and state or trait anxiety, mental health QoL, overall QoL, or stress frequency...
2015: Journal of Clinical and Experimental Neuropsychology
https://www.readbyqxmd.com/read/25927425/exploring-meanings-of-illness-causation-among-those-severely-affected-by-multiple-sclerosis-a-comparative-qualitative-study-of-black-caribbean-and-white-british-people
#14
COMPARATIVE STUDY
Jonathan Koffman, Cassie Goddard, Wei Gao, Diana Jackson, Pauline Shaw, Rachel Burman, Irene J Higginson, Eli Silber
BACKGROUND: Illness attributions, particularly for those living with life limiting illnesses, are associated with emotional adjustment or psychological distress. Few studies have examined attributions among people severely affected by multiple sclerosis (PwMS), and specifically among from diverse communities. This study aimed to explore and compare the presence and construction of meanings among Black Caribbean and White British PwMS. METHODS: Cross sectional qualitative interviews were conducted among Black Caribbean (BC) and White British (WB) PwMS with an EDSS of ≥6...
April 19, 2015: BMC Palliative Care
https://www.readbyqxmd.com/read/25822181/coping-among-individuals-with-multiple-sclerosis-evaluating-a-goodness-of-fit-model
#15
Danielle S Roubinov, Aaron P Turner, Rhonda M Williams
OBJECTIVE: Multiple sclerosis (MS) is a chronic illness involving both controllable and uncontrollable stressors. The goodness-of-fit hypothesis posits that managing stressors effectively requires the use of different coping approaches in the face of controllable and uncontrollable stressors. To test the applicability of the goodness-of-fit model in a sample of adults with MS, we evaluated the ratio of 2 types of coping (an active problem-solving approach and an emotion-based meaning-focused approach) as a moderator of the relations between stress uncontrollability and mental health outcomes...
May 2015: Rehabilitation Psychology
https://www.readbyqxmd.com/read/25741221/development-and-effectiveness-of-a-psychoeducational-wellness-program-for-people-with-multiple-sclerosis-description-and-outcomes
#16
Kimberly Beckwith McGuire, Jelena Stojanovic-Radic, Lauren Strober, Nancy D Chiaravalloti, John DeLuca
BACKGROUND: Multiple sclerosis (MS) mostly affects young and middle-aged adults and is known to be associated with a host of factors involved in overall quality of life and well-being. The biopsychosocial model of disease takes into account the multifaceted nature of chronic illness and is commonly applied to MS. The present investigation examined the effectiveness of a 10-week psychoeducational MS wellness program that was developed on the basis of the biopsychosocial model and a wellness approach to treatment...
January 2015: International Journal of MS Care
https://www.readbyqxmd.com/read/25217970/-putting-one-foot-in-front-of-the-other-a-qualitative-study-of-emotional-experiences-and-help-seeking-in-women-with-multiple-sclerosis
#17
Joanna Blundell Jones, Sue Walsh, Claire Isaac
Treatments for depression and anxiety in multiple sclerosis (MS) are effective but evidence suggests that individuals do not always seek help for emotional difficulties. This study explored how ten women with MS (aged 30-64), recruited via a hospital based MS clinic, coped with and understood their emotions. The semi-structured interviews were analysed using interpretative phenomenological analysis. Eight participants discussed the analytic process and themes. Four overarching themes emerged: Disclosure stress, Uncomfortable dependence, Facing deterioration and One step at a time...
December 2014: Journal of Clinical Psychology in Medical Settings
https://www.readbyqxmd.com/read/25183985/iranian-family-caregivers-challenges-and-issues-in-caring-of-multiple-sclerosis-patients-a-descriptive-explorative-qualitative-study
#18
Reza Masoudi, Heidar Ali Abedi, Parvin Abedi, Seyed Ehsan Mohammadianinejad
BACKGROUND: The broad spectrum of problems caused by multiple sclerosis (MS) imposes heavy responsibility to caregivers in caring of their patients. Therefore, they encounter many issues and challenges in this situation. The purpose of this study was to explore the experiences and challenges of MS family caregivers. MATERIALS AND METHODS: A qualitative design, based on a thematic analysis approach, was used to reach the study aim. Data were collected and analyzed concurrently through in-depth unstructured interviews, field notes, and observations that were held with 23 participants (14 family caregivers and 9 MS patients) at two referral centers in Ahvaz, Iran...
July 2014: Iranian Journal of Nursing and Midwifery Research
https://www.readbyqxmd.com/read/24849300/self-rating-makes-the-difference-identifying-palliative-care-needs-of-patients-feeling-severely-affected-by-multiple-sclerosis
#19
Julia Strupp, Heidrun Golla, Maren Galushko, Raphael Buecken, Nicole Ernstmann, Moritz Hahn, Holger Pfaff, Raymond Voltz
OBJECTIVE: People feeling severely affected by multiple sclerosis (MS) comprise a heterogeneous group, and this heterogeneity leads to very distinct needs and makes planning for needs difficult. To provide optimal care, it is important to identify specific needs in specific subgroups. Our objective was to identify the specific palliative care (PC) needs of patients who felt severely affected by the disease by analyzing their feeling (1) more or (2) less severely affected and their possible differences in expressed care needs...
June 2015: Palliative & Supportive Care
https://www.readbyqxmd.com/read/24832035/the-impact-of-multiple-sclerosis-on-family-members-a-review-of-the-literature
#20
REVIEW
Michele Messmer Uccelli
Multiple sclerosis (MS) is one of the most common neurological diseases in young adults and involves inflammatory demyelination of the CNS. MS typically manifests between 20 and 40 years of age, and can lead to significant disability in some cases. The disease course is unpredictable. MS has a significant impact on families, influencing their wellbeing and quality of life, often creating psychological stress in each family member as well as on family functioning in general. Common themes include the impact of the emotional state of the person with MS on family members, the role of the healthy parent on how children cope, the effect of a lack of information about MS, communication within the family and with healthcare professionals, and the importance of assessing and treating families as a dynamic unit in order to assure comprehensive intervention plans...
2014: Neurodegenerative Disease Management
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