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https://www.readbyqxmd.com/read/29776979/ethical-challenges-raised-by-opennotes-for-pediatric-and-adolescent-patients
#1
Fabienne C Bourgeois, Catherine M DesRoches, Sigall K Bell
Sharing clinic notes online with patients and parents may yield many potential benefits to patients and providers alike, but the unprecedented transparency and accessibility to notes afforded by patient portals has also raised a number of unique ethical and legal concerns. As the movement toward transparent notes (OpenNotes) grows, clinicians and health care organizations caring for pediatric and adolescent patients wrestle with how to document confidential and sensitive information, including issues such as reproductive health, misattributed paternity, or provider and parent disagreements...
May 18, 2018: Pediatrics
https://www.readbyqxmd.com/read/29773704/effect-of-dietary-omega-3-fatty-acid-supplementation-on-frailty-related-phenotypes-in-older-adults-a-systematic-review-and-meta-analysis-protocol
#2
Joanne Stocks, Ana M Valdes
INTRODUCTION: The beneficial effect of dietary omega-3 supplementation in younger adults or older people with acute or chronic disease is established. Knowledge is now needed about the effect in medically stable older people. The objective of this study is to examine and assess the evidence for a role of dietary omega-3 polyunsaturated fatty acid (PUFA) supplementation in older adults on (1) muscle mass and muscle strength, (2) inflammatory biomarkers and (3) physical activity. METHODS AND ANALYSIS: A systematic review and data synthesis will be conducted of randomised controlled trials in older people not recruited for any given disease diagnosis...
May 17, 2018: BMJ Open
https://www.readbyqxmd.com/read/29773527/acceptability-and-feasibility-of-real-time-antiretroviral-therapy-adherence-interventions-in-rural-uganda-mixed-method-pilot-randomized-controlled-trial
#3
Angella Musiimenta, Esther C Atukunda, Wilson Tumuhimbise, Emily E Pisarski, Melanie Tam, Monique A Wyatt, Norma C Ware, Jessica E Haberer
BACKGROUND: Wireless electronic adherence monitors can detect antiretroviral therapy (ART) adherence lapses and trigger interventions in real time, thus potentially avoiding unnecessary HIV viremia. Evidence about the acceptability and feasibility of these monitors and associated interventions, however, is limited. OBJECTIVE: The aim of this study was to assess the acceptability and feasibility of real-time adherence monitoring linked to text messaging (short message service, SMS) reminders and notifications to support adherence among individuals living with HIV who are taking ART in rural southwestern Uganda...
May 17, 2018: JMIR MHealth and UHealth
https://www.readbyqxmd.com/read/29773123/circumstances-of-child-deaths-in-mali-and-uganda-a-community-based-confidential-enquiry
#4
Merlin L Willcox, Elias Kumbakumba, Drissa Diallo, Vincent Mubangizi, Peter Kirabira, Florence Nakaggwa, Birungi Mutahunga, Chiaka Diakité, Eugene Dembélé, Mamadou Traoré, Pierre Daou, Drissa Bamba, Amadou Traoré, Diafara Berthé, Nick Wooding, Kieran Dinwoodie, Sarah Capewell, Hamish Foster, Rowena Neville, Joseph Ngonzi, Jerome Kabakyenga, David Mant, Anthony Harnden
BACKGROUND: Interventions to reduce child deaths in Africa have often underachieved, causing the Millennium Development Goal targets to be missed. We assessed whether a community enquiry into the circumstances of death could improve intervention effectiveness by identifying local avoidable factors and explaining implementation failures. METHODS: Deaths of children younger than 5 years were ascertained by community informants in two districts in Mali (762 deaths) and three districts in Uganda (442 deaths) in 2011-15...
June 2018: Lancet Global Health
https://www.readbyqxmd.com/read/29771199/narrative-intervention-stories-from-the-front-lines-of-oncology-health-care
#5
Nicole M Saint-Louis, Joretha N Bourjolly
This study examined the experiences of health care professionals who participated in monthly narrative oncology groups. Ten professionals participated in separate, semi-structured, face-to-face interviews. Using a qualitative research design, the transcriptions of the interviews were analyzed using a phenomenological approach. The analysis yielded descriptive information about the professionals' positive experiences of participating in narrative oncology sessions and provides insight into the importance of such a group through five themes: (1) Shared perspectives and bearing witness, (2) Comfort in confidentiality and a safe-space, (3) Group-care becomes self-care, (4) Writing gives structure, and (5) Patient stories...
May 17, 2018: Social Work in Health Care
https://www.readbyqxmd.com/read/29770101/resources-to-address-stigma-related-to-sexuality-substance-use-and-sexually-transmitted-and-blood-borne-infections
#6
R MacLean
Background: Stigma is widely recognized as a significant barrier to the prevention, management and treatment of sexually transmitted and blood-borne infections (STBBIs) in Canada. Despite major advances in STBBI prevention and treatment, and global efforts to reduce stigma, people living with or affected by STBBIs continue to experience stigma within health and social service settings in Canada. Objective: To describe the development, content and evaluation of knowledge translation resources and training workshops designed to equip health and social service professionals with the knowledge and skills needed to provide more respectful and inclusive sexual health, harm reduction and STBBI services...
February 1, 2018: Canada Communicable Disease Report, Relevé des Maladies Transmissibles Au Canada
https://www.readbyqxmd.com/read/29767725/advancing-the-health-of-women-and-newborns-predictors-of-patient-satisfaction-among-women-attending-antenatal-and-maternity-care-in-rural-rwanda
#7
Christine Mutaganzwa, Leah Wibecan, Hari S Iyer, Evrard Nahimana, Anatole Manzi, Francois Biziyaremye, Merab Nyishime, Fulgence Nkikabahizi, Lisa R Hirschhorn, Hema Magge
Objective: Identify predictors of patient satisfaction with antenatal care (ANC) and maternity services in rural Rwanda. Design: Cross-sectional. Setting: Twenty-six health facilities in Southern Kayonza (SK) and Kirehe districts. Participants: Sample of women ≥ 16 years old receiving antenatal and delivery care between November and December 2013. Intervention: Survey of patient satisfaction with antenatal and delivery care to inform quality improvement (QI) initiatives aimed at reducing neonatal mortality...
May 15, 2018: International Journal for Quality in Health Care
https://www.readbyqxmd.com/read/29764247/survey-and-analysis-for-impact-factors-of-psychological-distress-in-hiv-infected-pregnant-women-who-continue-pregnancy
#8
Shouxue Qin, Yanping Tan, Bingyan Lu, Yuqing Cheng, Yanli Nong
OBJECTIVE: The objective of this study is to explore the psychological distress of HIV-infected pregnant women who continue pregnancy, and analyze the possible influencing factors. METHODS: A total of 194 HIV-infected pregnant women who continue pregnancy were enrolled for this study by a convenient sampling method during June 2012-August 2016. Participants completed questionnaires including Hospital Anxiety and Depression Scale (HADS), Berger HIV Stigma Scale (BHSS), Distress Thermometer (DT) and Problem List (PL), and to determine the cut-off value of DT in the group...
May 15, 2018: Journal of Maternal-fetal & Neonatal Medicine
https://www.readbyqxmd.com/read/29755825/bilateral-asymmetric-rhegmatogenous-retinal-detachment-in-a-patient-with-stickler-syndrome
#9
Caner Öztürk, Almila Sarıgül Sezenöz, Gürsel Yılmaz, İmren Akkoyun
Here we present the long-term anatomical and visual outcomes of bilateral asymmetric rhegmatogenous retinal detachment repair in a patient with Stickler syndrome. A 17-year-old girl presented with decreased visual acuity in both eyes for more than one year. Her best-corrected visual acuity (BCVA) was 0.1 in the right eye and 0.05 in the left eye. Slit-lamp anterior segment examination revealed subcapsular cataract in both eyes. Fundus examination showed bilateral rhegmatogenous retinal detachment, chronic retinal detachment accompanied by multiple retinal holes, tears and membranous fibrillary vitreous in the peripheral retina...
April 2018: Turkish Journal of Ophthalmology
https://www.readbyqxmd.com/read/29753624/a-critical-review-and-analysis-of-ethical-issues-associated-with-the-artificial-pancreas
#10
REVIEW
A Quintal, V Messier, R Rabasa-Lhoret, E Racine
The artificial pancreas combines a hormone infusion pump with a continuous glucose ontinuous glucose monitoring, supported by a dosing algorithm currently installed on the pump. It allows for dynamic infusions of insulin (and possibly other hormones such as glucagon) tailored to patient needs. For patients with type 1 diabetes the artificial pancreas has been shown to prevent more effectively hypoglycaemic events and hyperglycaemia than insulin pump therapy and has the potential to simplify care. However, the potential ethical issues associated with the upcoming integration of the artificial pancreas into clinical practice have not yet been discussed...
April 25, 2018: Diabetes & Metabolism
https://www.readbyqxmd.com/read/29749294/questioning-the-current-public-health-approach-to-countering-violent-extremism
#11
Neil Krishan Aggarwal
Since the start of the global War on Terror, governments have used the mental health system for counterintelligence purposes. A recent manifestation of this trend is the call from policymakers and mental health researchers to screen individuals at risk for violent extremism through the public health system. Civil rights organisations have raised alarms that Muslims are being disproportionately referred to law enforcement agencies and that Muslim communities are being selected for surveillance despite government assurances that violent extremism is not exclusive to any ideology...
May 11, 2018: Global Public Health
https://www.readbyqxmd.com/read/29745969/comparison-of-short-term-clinical-outcomes-between-resolute-onyx-zotarolimus-eluting-stents-and-everolimus-eluting-stent-in-patients-with-acute-myocardial-infarction-results-from-the-korea-acute-myocardial-infarction-registry-kamir
#12
Yongcheol Kim, Sung Sik Oh, Myung Ho Jeong, Youngkeun Ahn, Ju Han Kim, Young Joon Hong, Doo Sun Sim, Min Chul Kim, Hyo-Soo Kim, Kyeong Ho Yun, Seok Kyu Oh, Chong Jin Kim, Myeong Chan Cho
BACKGROUND: There are few studies which compare the efficacy and safety of the Resolute Onyx zotarolimus-eluting stent (O-ZES) and everolimus-eluting stent (EES) in patients with acute myocardial infarction (AMI). Therefore, the present study aimed to compare clinical outcomes of O-ZES and EES in patients with AMI undergoing successful percutaneous coronary intervention (PCI). METHODS: From January 2016 to December 2016, the Korea Acute Myocardial Infarction Registry (KAMIR) enrolled 3,364 consecutive patients...
May 10, 2018: Cardiology Journal
https://www.readbyqxmd.com/read/29743448/intermittent-withdrawal-of-oxaliplatin-for-alleviating-neurotoxicity-during-oxaliplatin-based-chemotherapy-for-japanese-patients-with-inoperable-or-metastatic-colorectal-cancer-a-phase-2-multicenter-study
#13
Shunsuke Kato, Hiroo Imai, Makio Gamoh, Takenori Takahata, Hisatsugu Ohori, Katsuhiro Yasuda, Tomohito Niitani, Yasuko Murakawa, Kenji Amagai, Hideki Isobe, Yoshiaki Shindo, Michio Kuroki, Yasuhiro Sakamoto, Hideki Shimodaira, Takashi Yoshioka, Chikashi Ishioka
Oxaliplatin-based chemotherapy is a well-established regimen for patients with inoperable and metastatic colorectal cancer. However, one of the major limitations of oxaliplatin-based chemotherapy is sensory neuropathy. It was previously reported that introduction of intermittent oxaliplatin treatment to an oxaliplatin-based regimen has a significant benefit on efficacy or safety. Here, we prospectively assessed whether efficacy and safety of first-line chemotherapy for advanced colorectal cancer are achieved by introduction of withdrawal of oxaliplatin treatment for a certain period (intermittent oxaliplatin treatment)...
2018: Tohoku Journal of Experimental Medicine
https://www.readbyqxmd.com/read/29733269/evaluation-of-burn-rounds-using-telemedicine-perspectives-from-patients-families-and-burn-center-staff
#14
Haig A Yenikomshian, Tara L Lerew, Melvin Tam, Sam P Mandell, Shari E Honari, Tam N Pham
INTRODUCTION: Burn care requires multiple disciplines to collaborate to achieve best patient care. Because of this, rounds involve a very large burn team to assess patients' wounds and formulate plans. To decrease the amount of team members on rounds, our burn center implemented a new budding technology: telemedicine. We created "Zoom Rounds," a Health Insurance Portability and Accountability Act (HIPAA)-compliant, secure videoconferencing system to relay patient wound evaluations to a remote conference room where team members can participate digitally...
May 7, 2018: Telemedicine Journal and E-health: the Official Journal of the American Telemedicine Association
https://www.readbyqxmd.com/read/29724236/patient-consent-to-publication-and-data-sharing-in-industry-and-nih-funded-clinical-trials
#15
O'Mareen Spence, Richie Onwuchekwa Uba, Seongbin Shin, Peter Doshi
BACKGROUND: Participants are recruited into clinical trials under the assumption that the research will contribute to medical knowledge. Therefore, non-publication trials-and, more recently, lack of data sharing-are widely considered to violate the trust of trial participants. Existing practices regarding patient consent to publication and data sharing have not been evaluated. Analyzing informed consent forms (ICFs), we studied what trial participants were told regarding investigators' intention to contribute to medical knowledge, publish trial results, and share de-identified trial data...
May 3, 2018: Trials
https://www.readbyqxmd.com/read/29718392/patient-information-to-share-or-not-to-share
#16
Catherine Stanton
This commentary considers the General Medical Council's new guidance, Confidentiality: Good Practice in Handling Patient Information, which came into effect in April 2017. The commentary highlights some of the changes from the previous guidance and argues that, while some areas could have been developed further, the new guidelines are in general more detailed and user-friendly than previously, and will therefore be of benefit to practitioners. The commentary also highlights further developments on the horizon, such as new data protection legislation...
April 27, 2018: Medical Law Review
https://www.readbyqxmd.com/read/29717953/robot-assisted-surgical-ward-rounds-virtually-always-there
#17
Stefanie M Croghan, Paul Carroll, Sarah Reade, Amy E Gillis, Paul F Ridgway
 While an explosion in technological sophistication has revolutionized surgery within the operating theatre, delivery of surgical ward-based care has seen little innovation.  Use of telepresence allowing off-site clinicians communicate with patients has been largely restricted to outpatient settings or use of complex, expensive, static devices.  We designed a prospective study to ascertain feasibility and face validity of a remotely controlled mobile audiovisual drone (LUCY) to access inpatients.  This device is, uniquely, lightweight, freely mobile and emulates 'human' interaction by swiveling and adjusting height to patients' eye-level...
May 2, 2018: Journal of Innovation in Health Informatics
https://www.readbyqxmd.com/read/29715061/guidelines-for-the-ethical-publication-of-facial-photographs-and-review-of-the-literature
#18
Katelyn G Bennett, Steven C Bonawitz, Christian J Vercler
Facial photography presents a unique ethical dilemma, as faces are difficult to deidentify for publication. We performed a review of the literature to examine current guidelines for the publication of facial photographs. We also reviewed societies' websites, journal requirements, and ethical and legal aspects of confidentiality. Most articles emphasized the importance of consent for photography and publication. Masking is not appropriate, but some journals continue to allow masking. Most legislation allows patients to restrict the uses of photographs...
January 1, 2018: Cleft Palate-craniofacial Journal
https://www.readbyqxmd.com/read/29704101/clinical-impact-of-thrombus-aspiration-on-in-hospital-mortality-in-each-culprit-lesion-in-the-setting-of-st-segment-elevation-myocardial-infarction
#19
Satoshi Higuchi, Makoto Suzuki, Yu Horiuchi, Hiroyuki Tanaka, Mike Saji, Hideaki Yoshino, Ken Nagao, Takeshi Yamamoto, Morimasa Takayama
Recent randomized clinical trials have questioned the clinical benefits of thrombus aspiration (TA) in ST-segment elevation myocardial infarction (STEMI). Real-world data on TA and the efficacy of TA for various culprit lesions have not been sufficiently evaluated. This study mainly aimed to evaluate whether the clinical impact of TA depends on culprit lesions in the setting of STEMI. We surveyed the Tokyo Coronary Care Unit Network Registry, a prospective cohort study, between 2010 and 2014, which included 10,232 patients with STEMI...
April 27, 2018: Heart and Vessels
https://www.readbyqxmd.com/read/29703153/a-comparison-of-weather-variables-linked-to-infectious-disease-patterns-using-laboratory-addresses-and-patient-residence-addresses
#20
Abdelmajid Djennad, Giovanni Lo Iacono, Christophe Sarran, Lora E Fleming, Anthony Kessel, Andy Haines, Gordon L Nichols
BACKGROUND: To understand the impact of weather on infectious diseases, information on weather parameters at patient locations is needed, but this is not always accessible due to confidentiality or data availability. Weather parameters at nearby locations are often used as a proxy, but the accuracy of this practice is not known. METHODS: Daily Campylobacter and Cryptosporidium cases across England and Wales were linked to local temperature and rainfall at the residence postcodes of the patients and at the corresponding postcodes of the laboratory where the patient's specimen was tested...
April 27, 2018: BMC Infectious Diseases
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