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Dementia caregivers

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https://www.readbyqxmd.com/read/28633382/detecting-predeath-grief-in-family-caregivers-of-persons-with-dementia-validity-and-utility-of-the-marwit-meuser-caregiver-grief-inventory-in-a-multiethnic-asian-population
#1
Tau Ming Liew, Beow Im Yeap, Gerald Choon-Huat Koh, Mihir Gandhi, Kheng Siew Tan, Nan Luo, Philip Yap
Background and Objectives: Coping with predeath grief (PDG) is an unmet need in caregivers of persons with dementia (PWD). The Marwit-Meuser Caregiver Grief Inventory (MM-CGI) and its abbreviated MM-CGI-Short-Form (MM-CGI-SF) are among the few empirically developed scales that detect PDG, yet they have not been substantially validated outside United States. We evaluated the reliability and validity of the PDG scales in a multiethnic Asian population distinct from that of United States...
June 15, 2017: Gerontologist
https://www.readbyqxmd.com/read/28631510/characteristics-of-the-spouse-caregiving-experience-comparison-between-early-and-late-onset-dementia
#2
Emilie Wawrziczny, Guillaume Berna, Francine Ducharme, Marie-Jeanne Kergoat, Florence Pasquier, Pascal Antoine
OBJECTIVES: To investigate the characteristics of the caregiving experience according to age at onset of dementia to adapt support programs. METHOD: Fifty-seven spouse caregivers of persons with early-onset dementia (PEOD) and 93 spouse caregivers of persons with late-onset dementia (PLOD) participated. The characteristics of the caregiving experience were assessed using questionnaires. We compared the two groups according to age at onset of the disease using a multivariate test, Pillai's Trace test...
June 20, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28625933/experience-for-caregivers-of-dependent-elderly-persons-with-dementia
#3
Alexandre Vallée, Jean-Noël Vallée
Dependent elderly people with dementia require constant attention and significant care most of which are provided by family caregivers. The aim of our study is to highlight the feelings of caregivers of elderly with dementia and dependent. This qualitative study based on grounded theory method with semi-structured interviews with caregivers of dependent elderly. A comparative analysis of interviews to interview was conducted to identify themes, from the codes compared on a semantic level. 39 caregivers were interviewed until data saturation...
June 1, 2017: Gériatrie et Psychologie Neuropsychiatrie du Vieillissement
https://www.readbyqxmd.com/read/28624128/facilitating-aging-in-place-a-qualitative-study-of-practical-problems-preventing-people-with-dementia-from-living-at-home
#4
Theresa Thoma-Lürken, Michel H C Bleijlevens, Monique A S Lexis, Luc P de Witte, Jan P H Hamers
Although the majority of people with dementia wish to age in place, they are particularly susceptible to nursing home admission. Nurses can play an important role in detecting practical problems people with dementia and their informal caregivers are facing and in advising them on various ways to manage these problems at home. Six focus group interviews (n = 43) with formal and informal caregivers and experts in the field of assistive technology were conducted to gain insight into the most important practical problems preventing people with dementia from living at home...
June 14, 2017: Geriatric Nursing
https://www.readbyqxmd.com/read/28621715/neuropsychiatric-burden-in-huntington-s-disease
#5
REVIEW
Ricardo Augusto Paoli, Andrea Botturi, Andrea Ciammola, Vincenzo Silani, Cecilia Prunas, Claudio Lucchiari, Elisa Zugno, Elisabetta Caletti
Huntington's disease is a disorder that results in motor, cognitive, and psychiatric problems. The symptoms often take different forms and the presence of disturbances of the psychic sphere reduces patients' autonomy and quality of life, also impacting patients' social life. It is estimated that a prevalence between 33% and 76% of the main psychiatric syndromes may arise in different phases of the disease, often in atypical form, even 20 years before the onset of chorea and dementia. We present a narrative review of the literature describing the main psychopathological patterns that may be found in Huntington's disease, searching for a related article in the main database sources (Medline, ISI Web of Knowledge, Scopus, and Medscape)...
June 16, 2017: Brain Sciences
https://www.readbyqxmd.com/read/28621549/age-appropriate-services-for-people-diagnosed-with-young-onset-dementia-yod-a-systematic-review
#6
Andrea Mayrhofer, Elspeth Mathie, Jane McKeown, Frances Bunn, Claire Goodman
BACKGROUND: Literature agrees that post-diagnostic services for people living with young onset dementia (YOD) need to be age-appropriate, but there is insufficient evidence of 'what works' to inform service design and delivery. OBJECTIVE: To provide an evidence base of age-appropriate services and to review the perceived effectiveness of current interventions. METHODS: We undertook a systematic review including all types of research relating to interventions for YOD...
June 16, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28620342/challenges-for-service-robots-requirements-of-elderly-adults-with-cognitive-impairments
#7
Agnieszka Korchut, Sebastian Szklener, Carla Abdelnour, Natalia Tantinya, Joan Hernández-Farigola, Joan Carles Ribes, Urszula Skrobas, Katarzyna Grabowska-Aleksandrowicz, Dorota Szczęśniak-Stańczyk, Konrad Rejdak
OBJECTIVE: We focused on identifying the requirements and needs of people suffering from Alzheimer disease and early dementia stages with relation to robotic assistants. METHODS: Based on focus groups performed in two centers (Poland and Spain), we created surveys for medical staff, patients, and caregivers, including: functional requirements; human-robot interaction, the design of the robotic assistant and user acceptance aspects. Using Likert scale and analysis made on the basis of the frequency of survey responses, we identified users' needs as high, medium, and low priority...
2017: Frontiers in Neurology
https://www.readbyqxmd.com/read/28618899/development-of-a-caregiver-reported-measure-to-support-systematic-assessment-of-people-with-dementia-in-long-term-care-the-integrated-palliative-care-outcome-scale-for-dementia
#8
Clare Ellis-Smith, Catherine J Evans, Fliss Em Murtagh, Lesley A Henson, Alice M Firth, Irene J Higginson, Barbara A Daveson
BACKGROUND: Symptom burden is common for long-term care residents with dementia which if untreated compromises quality of life. Measurement tools can support assessment of symptoms and problems but are not widely used in long-term care settings. We developed the Integrated Palliative care Outcome Scale for Dementia derived from the Palliative care Outcome Scale, Palliative care Outcome Scale-Symptom and Integrated Palliative care Outcome Scale. AIM: To examine the content validity, acceptability and comprehension of Integrated Palliative care Outcome Scale for Dementia for routine use in long-term care settings for people with dementia and to refine Integrated Palliative care Outcome Scale for Dementia...
July 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28617065/unmet-needs-for-family-caregivers-of-elderly-people-with-dementia-living-in-italy-what-do-we-know-so-far-and-what-should-we-do-next
#9
Maria C De Cola, Viviana Lo Buono, Agata Mento, Mariella Foti, Silvia Marino, Placido Bramanti, Alfredo Manuli, Rocco S Calabrò
Care of the elderly with dementia represents one of the major challenges for the modern society worldwide. The burden of dementia care often falls on the family members, entailing heavy psychosocial and economic consequences. The aim of this study was to evaluate the caregiver's perspective concerning the support for disease management on behalf of the physicians and the local Sicilian administrations (Italy), and the burden of care and effects on their lifestyle, to propose new prevention strategies and service for managing dementia and caregiver's burden...
January 1, 2017: Inquiry: a Journal of Medical Care Organization, Provision and Financing
https://www.readbyqxmd.com/read/28615081/clinical-variables-related-to-the-diagnostic-stability-of-demential-syndromes
#10
Fabiano Moulin de Moraes, Paulo Henrique Ferreira Bertolucci
BACKGROUND: Assigning a diagnosis to a patient with dementia is important for the present treatment of the patient and caregivers, and scientific research. Nowadays, the dementia diagnostic criteria are based on clinical information regarding medical, history, physical examination, neuropsychological tests, and supplementary exams and, therefore, subject to variability through time. METHODS: A retrospective observational study to evaluate variables related to clinical diagnostic stability in dementia syndromes in at least one year follow up...
June 15, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28614541/knowledge-and-attitudes-towards-dementia-among-final-year-medical-students-in-brazil
#11
Alessandro Ferrari Jacinto, Vanessa de Albuquerque Citero, José Luiz de Lima, Paulo José Fortes Villas Boas, Adriana Polachini do Valle, Ananda Ghelfi Raza Leite
Objective: Among all countries, Brazil is expected to have the sixth largest elderly population in 2025. Dementia syndromes are prominent among aging-related diseases. Despite the necessity of and curriculum for training in geriatric medicine to make recommendations on an approach to this theme, adequate training appears to be infrequent. The present study aimed to evaluate the knowledge about dementia and students' attitude towards it during the last semester of the medical course in two of the most important Brazilian medical schools...
April 2017: Revista da Associação Médica Brasileira
https://www.readbyqxmd.com/read/28611822/disease-progression-in-mild-dementia-due-to-alzheimer-disease-in-an-18-month-observational-study-geras-the-impact-on-costs-and-caregiver-outcomes
#12
Roy W Jones, Jeremie Lebrec, Kristin Kahle-Wrobleski, Grazia Dell'Agnello, Giuseppe Bruno, Bruno Vellas, Josep M Argimon, Richard Dodel, Josep Maria Haro, Anders Wimo, Catherine Reed
BACKGROUND/AIMS: We assessed whether cognitive and functional decline in community-dwelling patients with mild Alzheimer disease (AD) dementia were associated with increased societal costs and caregiver burden and time outcomes. METHODS: Cognitive decline was defined as a ≥3-point reduction in the Mini-Mental State Examination and functional decline as a decrease in the ability to perform one or more basic items of the Alzheimer's Disease Cooperative Study Activities of Daily Living Inventory (ADCS-ADL) or ≥20% of instrumental ADL items...
January 2017: Dementia and Geriatric Cognitive Disorders Extra
https://www.readbyqxmd.com/read/28606195/a-mismatch-between-supply-and-demand-of-social-support-in-dementia-care-a-qualitative-study-on-the-perspectives-of-spousal-caregivers-and-their-social-network-members
#13
Alieske E H Dam, Lizzy M M Boots, Martin P J van Boxtel, Frans R J Verhey, Marjolein E de Vugt
BACKGROUND: Access to social support contributes to feelings of independence and better social health. This qualitative study aims to investigate multi-informant perspectives on informal social support in dementia care networks. METHODS: Ten spousal caregivers of people with dementia (PwD) completed an ecogram, a social network card and a semi-structured interview. The ecogram aimed to trigger subjective experiences regarding social support. Subsequently, 17 network members were interviewed...
June 13, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28605997/predictors-of-desire-to-institutionalization-in-dementia-caregivers-from-a-developing-country
#14
Preeti Sinha, Sherin Yohannan, A Thirumoorthy, Palanimuthu Thangaraju Sivakumar
Older adults with dementia have higher rates of institutionalization than those without dementia. Desire to institutionalization (DTI) is an important factor influencing the actual institutionalization but is less well studied. This cross-sectional study examines the DTI with the scale of same name developed by Morycz, in 1985, in a sample of 50 caregivers of patients with dementia in a tertiary clinical care setting in a developing country. Caregiver burden associated with personal strain (by factor analyzed Zarit Burden Interview scale), and stress perceived out of caregiving (by Perceived Stress Scale) predicted higher DTI...
January 1, 2017: American Journal of Alzheimer's Disease and Other Dementias
https://www.readbyqxmd.com/read/28604059/gender-effects-on-components-of-burden-and-depression-among-dementia-caregivers
#15
Sarah Pillemer, Jennifer Davis, Geoffrey Tremont
OBJECTIVE: Previous literature has examined burden and depression predominately as unitary constructs in relation to dementia caregiving. No studies thus far have examined gender differences in the specific components of burden and depression in dementia caregivers. The current study examined whether empirically validated dimensions of caregiver burden differed by gender for dementia caregivers. METHODS: The sample consisted of 211 dementia caregivers enrolled in a longitudinal intervention study...
June 12, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28601570/agreement-among-neuropsychological-and-behavioral-data-and-pib-findings-in-diagnosing-frontotemporal-dementia
#16
Kelly A Ryan, Dustin Hammers, Angeline DeLeon, Hande Bilen, Kirk Frey, James Burke, Roger Albin, Nancy Barbas, Judith Heidebrink, Bruno Giordani
Diagnostic inaccuracies have been reported in Alzheimer's disease (AD) and Frontotemporal Dementia (FTD) using clinical data alone. The [(11)C]-PiB PET scan offers a new method of identifying AD based on the detection of amyloid deposits. Our study investigated whether there was an agreement between neuropsychological and behavioral data and PiB findings in the diagnosis of FTD. Participants were 32 patients diagnosed with suspected FTD by clinical consensus. All participants underwent neuropsychological testing and PiB imaging...
June 7, 2017: Journal of Clinical Neuroscience: Official Journal of the Neurosurgical Society of Australasia
https://www.readbyqxmd.com/read/28595977/factors-influencing-time-between-onset-of-signs-symptoms-and-referral-for-dementia-in-elderly-outpatients
#17
P Koskas, C Pons-Peyneau, N Houenou-Quenum, M Romdhani, M Gasmi, S Galleron, O Drunat
BACKGROUND: The few studies that have focused on Time between Onset of Signs and Symptoms and Referral (TOSR) for dementia to a memory center suggest a substantial delay of 1-3 years. This delay has a negative impact on both patients' and their caregivers' quality of life. OBJECTIVE: This study aimed to evaluate this delay and the factors associated with it in a cohort of community-dwelling elderly people attending a memory clinic, as well as assess the impact of the Third French National Alzheimer Plan (2008-2012)...
June 5, 2017: Revue Neurologique
https://www.readbyqxmd.com/read/28595682/wandering-unearthing-new-tracking-devices
#18
Leah Mangini, Jeannette Y Wick
Wandering away from home or facilities is dangerous for patients with dementia and stressful for families and caregivers when those who go missing cannot be located. Up to 60% of Alzheimer's disease patients wander, and up to 50% of those who are not found within 24 hours face serious injury or death. Currently, no effective drug therapies exist to abate wandering, which has multiple causes, but emerging technologies offer a promise of comfort in being able to easily locate a missing loved one. As of 2012, 41 states had enacted Silver Alert programs that broadcast information about missing, vulnerable adults...
June 1, 2017: Consultant Pharmacist: the Journal of the American Society of Consultant Pharmacists
https://www.readbyqxmd.com/read/28594233/own-and-partners-dyadic-coping-and-depressive-symptoms-in-individuals-with-early-stage-dementia-and-their-caregiving-partners
#19
Paul Gellert, Andreas Häusler, Maryam Gholami, Michael Rapp, Adelheid Kuhlmey, Johanna Nordheim
OBJECTIVES: In patients with early-stage dementia and their caregiving partners, reciprocal dyadic coping (DC) is crucial for preventing or reducing depressive symptoms in both partners. This study examines the relationships between 'own DC' and 'perceived partner DC' with depressive symptoms in couples coping with dementia on individual (actor effects) and cross-person (partner effects) levels. METHOD: 164 individuals (82 patients with early-stage dementia and their 82 caregiving partners; ND = 82 dyads) participated in this prospective study with measures (DC, depressive symptoms, and dementia severity) taken at baseline and at six months...
June 8, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28594057/online-interventions-for-caregivers-of-people-with-dementia-a-systematic-review
#20
Esther Parra-Vidales, Felipe Soto-Pérez, Mª Victoria Perea-Bartolomé, Manuel A Franco-Martín, Juan L Muñoz-Sánchez
INTRODUCTION: The elderly population is growing driven by the increase in life expectancy, which in turn entails an increase in the number of people with chronic diseases such as dementia. The vast majority of people suffering from this illness is assisted by informal caregivers, who play a key role in fulfilling the patients’ needs, promoting the possibility for people with dementia to live in their home environment. The Internet as a support tool in psychoeducational programs can significantly improve accessibility of them, becoming a currently consolidated interactive resource for the training of patients with acute and chronic diseases, and their caregivers...
May 2017: Actas Españolas de Psiquiatría
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