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Dementia caregivers

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https://www.readbyqxmd.com/read/29775139/burden-and-strain-among-familial-caregivers-of-patients-with-dementia-in-china
#1
Min Zhang, Yu-Ping Chang, Yu Jin Liu, Ling Gao, Davina Porock
BACKGROUND: Alzheimer's disease is one of a variety of progressive and ultimately fatal neurodegenerative diseases that are characterized by a number of nervous and mental symptoms and behavior disorders. These problems are likely to cause burden and strain on caregivers. In this study, we demonstrated the level and relationship of burden and strain among caregivers of dementia patients in China. METHODS: A total of 212 caregivers of family members with dementia responded to the survey...
May 2018: Issues in Mental Health Nursing
https://www.readbyqxmd.com/read/29771729/self-regulation-and-executive-functioning-as-related-to-survival-in-motor-neuron-disease-preliminary-findings
#2
Natasha E Garcia-Willingham, Abbey R Roach, Edward J Kasarskis, Suzanne C Segerstrom
OBJECTIVE: Disease progression varies widely among patients with motor neuron disease (MND). Patients with MND and coexisting dementia have shorter survival. However, implications of mild cognitive and behavioral difficulties are unclear. The present study examined the relative contribution of executive functioning and self-regulation difficulties on survival over a 6-year period among patients with MND, who scored largely within normal limits on cognitive and behavioral indices. METHODS: Patients with MND (N=37, age=59...
May 16, 2018: Psychosomatic Medicine
https://www.readbyqxmd.com/read/29771140/the-informal-caregiver-s-lived-experience-of-being-present-with-a-patient-who-receives-a-diagnosis-of-dementia-a-phenomenological-inquiry
#3
Barbara E Champlin
This article describes the lived experience of informal caregivers who accompany loved ones as the loved ones receive a diagnosis of dementia. Each of 12 informal caregivers participated in a face-to-face interview that was audiotaped and transcribed. Analysis of the interview text revealed seven constituents as central to the general structure of this experience: (a) having anticipated the diagnosis; (b) feeling relief; (c) feeling the gravitas of the words; (d) grieving the loss; (e) watching for the patient's reaction; (f) accepting the diagnosis and taking action; and (g) committing to care...
January 1, 2018: Dementia
https://www.readbyqxmd.com/read/29761569/cognitive-and-functional-progression-in-alzheimer-disease-a-prediction-model-of-latent-classes
#4
Miriam L Haaksma, Amaia Calderón-Larrañaga, Marcel G M Olde Rikkert, René J F Melis, Jeannie-Marie S Leoutsakos
OBJECTIVE: We sought to replicate a previously published prediction model for progression, developed in the Cache County Dementia Progression Study, using a clinical cohort from the National Alzheimer's Coordinating Center. METHODS: We included 1120 incident Alzheimer disease (AD) cases with at least one assessment after diagnosis, originating from 31 AD centres from the United States. Trajectories of the Mini-Mental State Examination (MMSE) and Clinical Dementia Rating sum of boxes (CDR-sb) were modelled jointly over time using parallel-process growth mixture models in order to identify latent classes of trajectories...
May 15, 2018: International Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/29755713/a-mobile-multimedia-reminiscence-therapy-application-to-reduce-behavioral-and-psychological-symptoms-in-persons-with-alzheimer-s
#5
Danish Imtiaz, Arshia Khan, Adriana Seelye
The goal of this project is to develop a novel and innovative mobile solution to address behavioral and psychological symptoms of dementia (BPSD) that occur in individuals with Alzheimer's. BPSD can include agitation, restlessness, aggression, apathy, obsessive-compulsive and repetitive behaviors, hallucinations, delusions, paranoia, and wandering. Alzheimer's currently affects 5.4 million adults in the United States and that number is projected to increase to 14 million by 2050. Almost 90% of all affected with AD experience BPSD, resulting in increased healthcare costs, heavier burden on caregivers, poor patient outcomes, early nursing home placement, long-term hospitalizations, and misuse of medications...
2018: Journal of Healthcare Engineering
https://www.readbyqxmd.com/read/29751741/detecting-pre-death-grief-in-family-caregivers-of-persons-with-dementia-measurement-equivalence-of-the-mandarin-chinese-version-of-marwit-meuser-caregiver-grief-inventory
#6
Tau Ming Liew, Philip Yap, Nan Luo, Soo Boon Hia, Gerald Choon-Huat Koh, Bee Choo Tai
BACKGROUND: Pre-death grief (PDG) is a key challenge faced by caregivers of persons with dementia (PWD). Marwit-Meuser Caregiver Grief Inventory (MM-CGI) and its abbreviated MM-CGI-Short-Form (MM-CGI-SF) are among the few empirically-developed scales that detect PDG. However, they have not had a Mandarin-Chinese version even though Chinese-speaking populations have among the largest number of PWD. We produced a Mandarin-Chinese version of MM-CGI and evaluated whether it had equivalent scores and similar psychometric properties to the English version...
May 11, 2018: BMC Geriatrics
https://www.readbyqxmd.com/read/29749754/predictors-of-mortality-during-hospitalization-and-3-months-after-discharge-in-elderly-people-with-and-without-dementia
#7
Josune Martín, Angel Padierna, Ane Anton-Ladislao, Inmaculada Moro, José M Quintana
OBJECTIVES: The aims of this study were to assess mortality during hospitalization and 3 months after discharge in elderly people with and without dementia, and to identify variables that might predict mortality. METHODS: A prospective matched cohort study was conducted involving 195 inpatients with dementia and 204 inpatients without dementia. Information on sociodemographic, and clinical data were gathered. Patients completed questionnaires on premorbid basic (Barthel, BI) and instrumental activities of daily living (Lawton and Brody), quality of life (EuroQoL5-D; Quality of Life in Alzheimer's Disease), burden of the caregiver (Zarit)...
May 11, 2018: Aging & Mental Health
https://www.readbyqxmd.com/read/29747719/determinants-of-medication-adherence-in-older-people-with-dementia-from-the-caregivers-perspective
#8
Najwan El-Saifi, Wendy Moyle, Cindy Jones, Clair Alston-Knox
ABSTRACTBackground:Adherence to treatment is a primary determinant of treatment success. Caregiver support can influence medication adherence in people with cognitive impairment. This study sought to characterize medication adherence in older people with dementia from the caregivers' perspective, and to identify influencing factors. METHODS: Caregivers caring for a person with dementia and living in the community were eligible to complete the survey. Bayesian profile regression was applied to identify determinants of medication adherence measured using the Adherence to Refills and Medication Scale...
May 11, 2018: International Psychogeriatrics
https://www.readbyqxmd.com/read/29747583/effect-of-the-wecareadvisor%C3%A2-on-family-caregiver-outcomes-in-dementia-a-pilot-randomized-controlled-trial
#9
Helen C Kales, Laura N Gitlin, Barbara Stanislawski, H Myra Kim, Katherine Marx, Molly Turnwald, Claire Chiang, Constantine G Lyketsos
BACKGROUND: Behavioral and psychological symptoms of dementia (BPSD) are universal and associated with multiple negative outcomes. This pilot randomized controlled trial (RCT) evaluated the effect of using the WeCareAdvisor, an innovative web-based tool developed to enable family caregivers to assess, manage, and track BPSD. METHODS: This RCT enrolled 57 dementia family caregivers from community and clinical settings in Ann Arbor, Michigan and Baltimore, Maryland...
May 10, 2018: BMC Geriatrics
https://www.readbyqxmd.com/read/29743729/the-value-of-a-year-s-general-education-for-reducing-the-symptoms-of-dementia
#10
Robert J Brent
We present a method for estimating the benefits of years of education for reducing dementia symptoms based on the cost savings that would accrue from continuing independent living rather than relying on formal or informal carers. Our method for estimating the benefits of education involves three steps: first taking a year of education and seeing how much this lowers dementia, second using this dementia reduction and estimating how much independent living is affected and third applying the change in caregiving costs associated with the independent living change...
2018: Applied Economics
https://www.readbyqxmd.com/read/29740312/emotion-detection-deficits-and-decreased-empathy-in-patients-with-alzheimer-s-disease-and-parkinson-s-disease-affect-caregiver-mood-and-burden
#11
Maria Martinez, Namita Multani, Cassandra J Anor, Karen Misquitta, David F Tang-Wai, Ron Keren, Susan Fox, Anthony E Lang, Connie Marras, Maria C Tartaglia
Background : Changes in social cognition occur in patients with Alzheimer's disease (AD) and Parkinson's disease (PD) and can be caused by several factors, including emotion recognition deficits and neuropsychiatric symptoms (NPS). The aims of this study were to investigate: (1) group differences on emotion detection between patients diagnosed with AD or PD and their respective caregivers; (2) the association of emotion detection with empathetic ability and NPS in individuals with AD or PD; (3) caregivers' depression and perceived burden in relation to patients' ability to detect emotions, empathize with others, presence of NPS; and (4) caregiver's awareness of emotion detection deficits in patients with AD or Parkinson...
2018: Frontiers in Aging Neuroscience
https://www.readbyqxmd.com/read/29739423/isupport-an-online-training-and-support-program-for-caregivers-of-people-with-dementia-study-protocol-for-a-randomized-controlled-trial-in-india
#12
Kala M Mehta, Dolores Gallagher-Thompson, Mathew Varghese, Santosh Loganathan, Upasana Baruah, Katrin Seeher, Diana Zandi, Tarun Dua, Anne Margriet Pot
BACKGROUND: Dementia has a huge physical, psychological, social and economic impact upon caregivers, families and societies at large. There has been a growing impetus to utilize Internet interventions given the potential scalability, and presumed cost-effectiveness and accessibility. In this paper, we describe the design of a randomized controlled trial (RCT) aiming to study the impact of online self-help programs on caregivers of people with dementia in India. The experimental group will receive an interactive training and support program and the comparison group will receive an education-only e-book...
May 8, 2018: Trials
https://www.readbyqxmd.com/read/29739358/implementation-of-an-evidence-based-intervention-to-improve-the-wellbeing-of-people-with-dementia-and-their-carers-study-protocol-for-care-of-people-with-dementia-in-their-environments-cope-in-the-australian-context
#13
Lindy Clemson, Kate Laver, Yun-Hee Jeon, Tracy A Comans, Justin Scanlan, Miia Rahja, Jennifer Culph, Lee-Fay Low, Sally Day, Monica Cations, Maria Crotty, Susan Kurrle, Catherine Piersol, Laura N Gitlin
BACKGROUND: There are effective non-pharmacological treatment programs that reduce functional disability and changed behaviours in people with dementia. However, these programs (such as the Care of People with dementia in their Environments (COPE) program) are not widely available. The primary aim of this study is to determine the strategies and processes that enable the COPE program to be implemented into existing dementia care services in Australia. METHODS: This study uses a mixed methods approach to test an implementation strategy...
May 9, 2018: BMC Geriatrics
https://www.readbyqxmd.com/read/29738507/the-association-between-quality-improvement-initiatives-in-dementia-care-and-supportive-psychosocial-work-environments-in-nursing-homes
#14
Miharu Nakanishi, Maki Tei-Tominaga
Background : Quality improvement initiatives can help nursing homes strengthen psychosocial work environments. The aim of the present study was to examine the association between supportive psychosocial work environment, and professional and organizational characteristics regarding quality improvement initiatives in dementia care. Methods : A paper questionnaire survey was administered to a convenience sample of 365 professional caregivers in 12 special nursing homes in Japan. Psychosocial work environment was assessed using the Social Capital and Ethical Climate at the Workplace Scale to calculate a score of social capital in the workplace, ethical leadership, and exclusive workplace climate...
May 8, 2018: Healthcare (Basel, Switzerland)
https://www.readbyqxmd.com/read/29736079/nonpharmacological-methods-in-managing-patients-with-dementia-in-a-tertiary-care-hospital
#15
Nisha Mani Pandey, Shailendra Mohan Tripathi, Bhupendra Singh, Sarvada Chandra Tiwari
Management of dementia is very crucial. Nonpharmacological methods (NPM) are well appreciated and encouraged to be used as first-line treatment for managing elderly patients with dementia (PwD). The present case reports aimed to share the strategies of NPM for managing PwD. NPM requires a structured blueprint to record, follow-up, and monitor the outcomes. A structured proforma has been developed in the department. After getting all the basic information from the patient, needed assessments are being done by the concerned team member to identify and rate the level of severity of the problem, and specific NPM strategies are being provided...
January 2018: Indian Journal of Psychiatry
https://www.readbyqxmd.com/read/29735877/-development-and-effects-of-a-coping-skill-training-program-for-caregivers-in-feeding-difficulty-of-older-adults-with-dementia-in-long-term-care-facilities
#16
Hyun Hwa Hong, Mee Ock Gu
PURPOSE: We developed and tested the effects of a coping skill training program for caregivers in feeding difficulty among older adults with dementia in long-term care facilities. METHODS: A non-equivalent control group pretest-posttest design was used. The subjects comprised 34 caregivers (experimental group: 17, control group: 17) and 40 older adults with dementia (experimental group: 20, control group: 20). The developed program was delivered in 4-hour sessions over 6 weeks (including 2 weeks of lectures and lab practice on feeding difficulty coping skills, and 4 weeks of field practice)...
April 2018: Journal of Korean Academy of Nursing
https://www.readbyqxmd.com/read/29735875/-predictors-of-behavioral-and-psychological-symptoms-of-dementia-based-on-the-model-of-multi-dimensional-behavior
#17
Jeong Eun Yang, Gwi Ryung Son Hong
PURPOSE: The purpose of this study was to identify factors predicting behavioral and psychological symptoms of dementia (BPSD) in persons with dementia. Factors including the patient, caregiver, and environment based on the multi-dimensional behavioral model were tested. METHODS: The subjects of the study were 139 pairs of persons with dementia and their caregivers selected from four geriatric long-term care facilities located in S city, G province, Korea. Data analysis included descriptive statistics, inverse normal transformations, Pearson correlation coefficients, Spearman's correlation coefficients and hierarchical multiple regression with the SPSS Statistics 22...
April 2018: Journal of Korean Academy of Nursing
https://www.readbyqxmd.com/read/29723129/self-compassion-coping-strategies-and-caregiver-burden-in-caregivers-of-people-with-dementia
#18
Joanna Lloyd, Jane Muers, Tom G Patterson, Magdalena Marczak
OBJECTIVE: Caring for someone with dementia can have negative consequences for caregivers, a phenomenon known as caregiver burden. Coping strategies influence the impact of caregiving-related stress. Specifically, using emotion-focused strategies has been associated with lower levels of burden, whereas dysfunctional strategies have been related to increased burden. The concept of self-compassion has been linked to both positive outcomes and the coping strategies that are most advantageous to caregivers...
April 30, 2018: Clinical Gerontologist
https://www.readbyqxmd.com/read/29720290/effectiveness-of-a-home-based-missing-incident-prevention-program-for-community-dwelling-elderly-patients-with-dementia
#19
Wing Man Lau, Tak Yeung Chan, Sze Lok Szeto
ABSTRACTBackground:Getting lost is a recognized complication in patients with dementia. Preventive measures are lacking. This study aims to investigate the effectiveness of a home-based missing incident prevention program (HMIPP) in reducing missing incidents, time of searching, and caregivers' stress. METHODS: The design was a pre- and post-intervention study. Patients were recruited from a hospital-based Geriatric Memory Clinic. Inclusion criteria were as follows: aged 60 years or above, established dementia, and Modified Functional Ambulation Categories score VI or VII...
May 3, 2018: International Psychogeriatrics
https://www.readbyqxmd.com/read/29719975/stigma-phenomenon-to-dementia-in-iranian-population-a-phenomenological-study
#20
Sahar Mohabbat Bahar, Imanollah Bigdeli
Introduction Dementia is considered as a serious threat for over 65years old population, because of its high prevalence rates. Dementia with a complex and multifaceted nature has negative effects on patients, family members, and their caregivers' psychological health and socioeconomic status. The current qualitative study is designed to investigate the stigma phenomenon to dementia in Iranian population. Methods This qualitative research was conducted by the descriptive phenomenological method. In order to analyze the data, the Colaizzi's descriptive phenomenological method was used...
January 1, 2018: Dementia
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