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Dementia caregivers

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https://www.readbyqxmd.com/read/29325105/predictors-of-secondary-role-strains-among-spousal-caregivers-of-older-adults-with-functional-disability
#1
Courtney A Polenick, Nicole DePasquale
Background and Objectives: Aging spouses commonly care for a partner with functional disability, but little is known about how spousal caregiving may impact different life domains. This study evaluated how caregiving characteristics are associated with secondary role strains among spousal caregivers. Research Design and Methods: This cross-sectional study examined 367 spousal caregivers and their partners from the 2011 National Health and Aging Trends Study and National Study of Caregiving...
January 8, 2018: Gerontologist
https://www.readbyqxmd.com/read/29323835/recurring-vivid-dreams-in-an-older-hmong-man-with-complex-trauma-experience-and-cognitive-impairment
#2
Wajih Askar, Ariba Khan, Soo Borson, Michael L Malone
INTRODUCTION: Health care workers need to consider the culture and ethnic preferences prevalent in the Hmong community in order to provide optimal care. We describe an older Hmong man to illustrate the challenges faced and competencies needed by primary care. CASE PRESENTATION: An 80-year-old non-English speaking Hmong man with diabetes, nerve sheath tumor, and hypertension presented to the outpatient clinic with his grandson complaining of sleep problems. He had had 2 vivid recurring dreams during the previous few months...
August 2017: WMJ: Official Publication of the State Medical Society of Wisconsin
https://www.readbyqxmd.com/read/29322577/i-just-can-t-please-them-all-and-stay-sane-adult-child-caregivers-experiences-of-family-dynamics-in-care-giving-for-a-parent-with-dementia-in-australia
#3
Gemma Tatangelo, Marita McCabe, Ashley Macleod, Anastasia Konis
Family caregivers of people with dementia who live within the community often experience stress and poor quality of life due to their care-giving role. While there are many factors that affect this, one influential factor is the family context. This study focussed on adult child caregivers. It examined the specific ways that family dynamics contribute to adult child caregivers' distress in the context of caring for a parent with dementia. Semi-structured interviews were conducted with 17 participants who were adult child primary caregivers for a parent with dementia who was living within the community...
January 11, 2018: Health & Social Care in the Community
https://www.readbyqxmd.com/read/29319813/testing-the-implementation-of-the-veder-contact-method-a-theatre-based-communication-method-in-dementia-care
#4
Petra Boersma, Julia C M van Weert, Birgit I Lissenberg-Witte, Berno van Meijel, Rose-Marie Dröes
Background and Objectives: There is a lack of research on implementation of person-centered care in nursing home care. The purpose of this study was to assess the implementation of the Veder contact method (VCM), a new person-centered method using theatrical, poetic and musical communication for application in 24-hr care. Research Design and Methods: Caregivers (n = 136) and residents (n = 141) participated in a 1-year quasi-experimental study. Foundation Theater Veder implemented VCM on six experimental wards and rated implementation quality...
January 8, 2018: Gerontologist
https://www.readbyqxmd.com/read/29315202/the-effects-of-white-noise-on-agitated-behaviors-mental-status-and-activities-of-daily-living-in-older-adults-with-dementia
#5
Li-Wei Lin, Shu-Chuan Weng, Hua-Shan Wu, Lu-Jen Tsai, Ya-Ling Lin, Shu-Hui Yeh
BACKGROUND: The aging of society is a global trend, and care of older adults with dementia is an urgent challenge. As dementia progresses, patients exhibit negative emotions, memory disorders, sleep disorders, and agitated behavior. Agitated behavior is one of the most difficult problems for family caregivers and healthcare providers to handle when caring for older adults with dementia. PURPOSE: The aim of this study was to investigate the effectiveness of white noise in improving agitated behavior, mental status, and activities of daily living in older adults with dementia...
February 2018: Journal of Nursing Research: JNR
https://www.readbyqxmd.com/read/29310735/what-do-clinical-supervisors-require-to-teach-residents-in-family-medicine-how-to-care-for-seniors
#6
Anik M C Giguere, Paule Lebel, Michèle Morin, Françoise Proust, Charo Rodríguez, Valerie Carnovale, Louise Champagne, France Légaré, Pierre-Hugues Carmichael, Bernard Martineau, Philippe Karazivan, Pierre J Durand
We assessed clinicians' continuing professional development (CPD) needs at family practice teaching clinics in the province of Quebec. Our mixed methodology design comprised an environmental scan of training programs at four family medicine departments, an expert panel to determine priority clinical situations for senior care, a supervisors survey to assess their perceived CPD needs, and interviews to help understand the rationale behind their needs. From the environmental scan, the expert panel selected 13 priority situations...
January 9, 2018: Canadian Journal on Aging, la Revue Canadienne du Vieillissement
https://www.readbyqxmd.com/read/29306605/online-training-and-support-programs-designed-to-improve-mental-health-and-reduce-burden-among-caregivers-of-people-with-dementia-a-systematic-review
#7
REVIEW
Kieren J Egan, Ángel C Pinto-Bruno, Irene Bighelli, Marla Berg-Weger, Annemieke van Straten, Emiliano Albanese, Anne-Margriet Pot
INTRODUCTION: Dementia poses a considerable socioeconomic burden to society. On a global scale, family and other unpaid care predominates. Supporting caregivers is crucial, but scalable interventions are currently lacking. Because a growing number of studies have suggested that online training and support programs hold considerable promise for scaling up, we reviewed existing literature. METHODS: We systematically searched 6 databases to identify studies of Internet-based interventions designed to train and support caregivers of people with dementia, and we formally assessed risk of bias...
January 3, 2018: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/29304203/primary-caregivers-in-a-network-context
#8
Christopher Steven Marcum, Sato Ashida, Laura M Koehly
Objectives: Caregiving to individuals affected by Alzheimer's disease and related dementia (ADRD) is a family-systems process where tasks are distributed between multiple caregivers in a network. We evaluate the extent to which multiple network members nominate one another as filling primary caregiver (PCG) roles and factors associated with nomination. Method: Data come from the Caregiving Roles and Expectations Networks project, which aimed to characterize the caregiving networks of families affected by ADRD...
January 3, 2018: Journals of Gerontology. Series B, Psychological Sciences and Social Sciences
https://www.readbyqxmd.com/read/29301414/helping-dementia-caregivers-manage-medical-problems-benefits-of-an-educational-resource
#9
Sheryl Zimmerman, Philip D Sloane, Kimberly Ward, Anna Beeber, David Reed, Christine Lathren, Bobbi Matchar, Lisa Gwyther
BACKGROUND/RATIONALE: Family caregivers of people with dementia must attend to medical care needs of their relative, yet few available resources address comorbidities in dementia. Consequently, caregivers feel ill-equipped when medical concerns arise. In response, an educational resource-Alzheimer's Medical Advisor ( AlzMed)-was developed in 2 forms (website and book) and evaluated. METHODS: Family caregivers (143 website and 51 book) used an educational resource that provides information on medical problems, vital signs, pain, dehydration, and the healthcare system...
January 1, 2018: American Journal of Alzheimer's Disease and Other Dementias
https://www.readbyqxmd.com/read/29300741/testing-the-stress-buffering-hypothesis-of-social-support-in-couples-coping-with-early-stage-dementia
#10
Paul Gellert, Andreas Häusler, Ralf Suhr, Maryam Gholami, Michael Rapp, Adelheid Kuhlmey, Johanna Nordheim
PURPOSE: To test whether the negative relationship between perceived stress and quality of life (Hypothesis 1) can be buffered by perceived social support in patients with dementia as well as in caregivers individually (Hypothesis 2: actor effects) and across partners (Hypothesis 3: partner effects and actor-partner effects). METHOD: A total of 108 couples (N = 216 individuals) comprised of one individual with early-stage dementia and one caregiving partner were assessed at baseline and one month apart...
2018: PloS One
https://www.readbyqxmd.com/read/29286983/aerobic-exercise-sustains-performance-of-instrumental-activities-of-daily-living-in-early-stage-alzheimer-disease
#11
Eric D Vidoni, Jaime Perales, Mohammed Alshehri, Abdul-Mannaan Giles, Catherine F Siengsukon, Jeffrey M Burns
BACKGROUND AND PURPOSE: Individuals with Alzheimer disease (AD) experience progressive loss of independence-performing activities of daily living. Identifying interventions to support independence and reduce the economic and psychosocial burden of caregiving for individuals with AD is imperative. The purpose of this analysis was to examine functional disability and caregiver time in individuals with early-stage AD. METHODS: This was a secondary analysis of a randomized controlled trial of 26 weeks of aerobic exercise (AEx) versus stretching and toning (ST)...
December 28, 2017: Journal of Geriatric Physical Therapy
https://www.readbyqxmd.com/read/29283927/are-informal-caregivers-of-persons-with-dementia-open-to-extending-medical-aid-in-dying-to-incompetent-patients-findings-from-a-survey-conducted-in-quebec-canada
#12
Gina Bravo, Claudie Rodrigue, Marcel Arcand, Jocelyn Downie, Marie-France Dubois, Sharon Kaasalainen, Cees M Hertogh, Sophie Pautex, Lieve Van den Block
Euthanasia is a controversial and complex issue, especially when involving incompetent patients. On December 10, 2015, Quebec became the first Canadian province to give access to medical aid in dying (MAiD) (ie, euthanasia performed by a physician) to competent patients who satisfy strictly defined criteria. Less than 2 years later, Quebec is considering extending MAiD to incompetent patients who made an advance request. With the objective of contributing scientific data to current societal debates, we conducted a survey among 471 informal caregivers of persons with dementia, reached through Alzheimer Societies...
December 27, 2017: Alzheimer Disease and Associated Disorders
https://www.readbyqxmd.com/read/29282408/behavioural-and-psychological-symptoms-of-dementia-correlates-and-impact-on-caregiver-distress
#13
Adreesh Mukherjee, Atanu Biswas, Arijit Roy, Samar Biswas, Goutam Gangopadhyay, Shyamal Kumar Das
Aims: To evaluate the behavioural and psychological symptoms of dementia (BPSD), to determine their correlation with types and stages of dementia and patient demographics, and to assess the impact on caregiver distress. Methods: This cross-sectional study recruited consecutive dementia patients and caregivers who attended our cognitive clinic. Standard criteria were used to classify types of dementia. BPSD were assessed with the Neuropsychiatric Inventory, and its distress scale was used for caregiver distress...
September 2017: Dementia and Geriatric Cognitive Disorders Extra
https://www.readbyqxmd.com/read/29281895/underreporting-of-gender-and-race-ethnicity-differences-in-nih-funded-dementia-caregiver-support-interventions
#14
Andrea Gilmore-Bykovskyi, Rachel Johnson, Lily Walljasper, Laura Block, Nicole Werner
Women and racial/ethnic minority dementia caregivers have unique caregiving experiences and support needs. To ensure the identification of potentially important differences in outcomes within these groups, the amended National Institutes of Health (NIH) Policy on Inclusion of Women and Minorities mandates reporting by gender and race/ethnicity. The objective of this study was to determine the inclusion and reporting rates among NIH-funded dementia caregiver support interventions. A focused systematic literature review of studies published from 1994 to 2015 located 48 articles meeting inclusion criteria...
January 1, 2017: American Journal of Alzheimer's Disease and Other Dementias
https://www.readbyqxmd.com/read/29280514/left-dorsolateral-prefrontal-cortex-atrophy-is-associated-with-frontal-lobe-function-in-alzheimer-s-disease-and-contributes-to-caregiver-burden
#15
Kiwamu Matsuoka, Fumihiko Yasuno, Akiko Hashimoto, Toshiteru Miyasaka, Masato Takahashi, Kuniaki Kiuchi, Junzo Iida, Kimihiko Kichikawa, Toshifumi Kishimoto
OBJECTIVE: Caregivers of patients with dementia experience physical and mental deterioration. We have previously reported a correlation between caregiver burden and the Frontal Assessment Battery (FAB) total scores of patients with Alzheimer's disease (AD), especially regarding the dependency factor from the Zarit Burden Interview. The present study aimed to identify an objective biomarker for predicting caregiver burden. METHODS: The participants were 26 pairs of caregivers and patients with AD and mild-to-moderate dementia...
December 27, 2017: International Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/29278938/moving-through-predeath-grief-psychological-support-for-family-caregivers-of-people-with-dementia
#16
Franziska Meichsner, Stefanie Köhler, Gabriele Wilz
When caring for a family member with dementia, continuous losses and predeath grief can adversely affect the caregivers' physical and mental health. Interventions for caregivers should therefore also aim at coping with loss and managing predeath grief. It was the objective of the present study to describe sources of grief caregivers report during therapy and to investigate how therapists can support caregivers. Two caregivers who participated in a randomized controlled trial were selected for this case study...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/29278557/discrepancies-between-alzheimer-s-disease-patients-and-caregivers-ratings-about-patients-quality-of-life-a-1-year-observation-study-in-brazil
#17
Maria F B Sousa, Raquel L Santos, Pedro Simões, Josep L Conde-Sala, Marcia C N Dourado
OBJECTIVES: We investigated the factors associated with discrepancies between patients' and caregivers' ratings about patients' general quality of life (QoL) and about the domains of Quality of Life in Alzheimer's disease (QoL-AD) Scale at baseline and 12 months. METHODS: This was a longitudinal study that comprised 114 outpatients with AD and their caregivers. Patients were assessed with the QoL-AD, Mini-mental State Examination, Assessment Scale of Psychosocial Impact of the Diagnosis of Dementia, Cornell Scale for Depression, Functional Activities Questionnaire, and Neuropsychiatric Inventory, and Clinical Dementia Rating Scale...
December 22, 2017: Alzheimer Disease and Associated Disorders
https://www.readbyqxmd.com/read/29275939/costs-of-care-of-agitation-associated-with-dementia-in-8-european-countries-results-from-the-righttimeplacecare-study
#18
Nadège Costa, Ansgar Wübker, Adelaïde De Mauléon, Sandra M G Zwakhalen, David Challis, Helena Leino-Kilpi, Ingalill R Hallberg, Astrid Stephan, Adelaida Zabalegui, Kai Saks, Laurent Molinier, Anders Wimo, Bruno Vellas, Dirk Sauerland, Ingrid Binot, Maria E Soto
OBJECTIVE: To estimate the additional societal costs for people living with dementia (PwD) with agitation in home care (HC) and institutional long-term care (ILTC) settings in 8 European countries. DESIGN: Cross-sectional data from the RightTimePlaceCare cohort. SETTING: HC and ILTC settings from 8 European countries (Estonia, Finland, France, Germany, Netherlands, Spain, Sweden, and England). PARTICIPANTS: A total of 1997 PwD (1217 in HC group and 780 lived in an ILTC) and their caregivers...
January 2018: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/29260038/can-suitable-candidates-for-levodopa-carbidopa-intestinal-gel-therapy-be-identified-using-current-evidence
#19
REVIEW
Maria José Catalán, Angelo Antonini, Matilde Calopa, Ovidiu Băjenaru, Oriol de Fábregues, Adolfo Mínguez-Castellanos, Per Odin, José Manuel García-Moreno, Stephen W Pedersen, Zvezdan Pirtošek, Jaime Kulisevsky
Advanced Parkinson's disease (APD) is characterized by increased functional disability, caused by motor complications, the presence of axial symptoms, and emergent disease- and drug-related non-motor symptoms. One of the advanced therapies available is intrajejunal infusion of levodopa/carbidopa intestinal gel (LCIG); however, patient selection for this treatment is sometimes difficult, particularly because of overlapping indications with other alternatives. In recent years, strong evidence has supported the use of LCIG in treating motor fluctuations associated with APD, and several clinical studies provide emerging evidence for additional benefits of LCIG treatment in certain patients...
September 2017: ENeurologicalSci
https://www.readbyqxmd.com/read/29258980/implementation-of-the-blended-care-self-management-program-for-caregivers-of-people-with-early-stage-dementia-partner-in-balance-process-evaluation-of-a-randomized-controlled-trial
#20
Lizzy Mm Boots, Marjolein E de Vugt, Claudia Mj Smeets, Gertrudis Ijm Kempen, Frans Rj Verhey
BACKGROUND: Caring for a family member with dementia puts caregivers at risk of overburdening. Electronic health (eHealth) support for caregivers offers an opportunity for accessible tailored interventions. The blended care self-management program "Partner in Balance" (PiB) for early-stage dementia caregivers was executed in Dutch dementia care organizations. The program combines face-to-face coaching with tailored Web-based modules. Next to an evaluation of program effectiveness, an evaluation of sampling and intervention quality is essential for the generalizability and interpretation of results...
December 19, 2017: Journal of Medical Internet Research
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