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https://www.readbyqxmd.com/read/28101699/humanity-at-the-edge-the-moral-laboratory-of-feeding-precarious-lives
#1
Mette N Svendsen, Iben M Gjødsbøl, Mie S Dam, Laura E Navne
At the heart of anthropology and the social sciences lies a notion of human existence according to which humans and animals share the basic need for food, but only humans have the capacity for morality. Based on fieldwork in a pig laboratory, a neonatal intensive care unit (NICU), and a dementia nursing home, we follow practices of feeding precarious lives lacking most markers of human personhood, including the exercise of moral judgment. Despite the absence of such markers, laboratory researchers and caregivers in these three sites do not abstain from engaging in questions about the moral status of the piglets, infants, and people with dementia in their care...
January 18, 2017: Culture, Medicine and Psychiatry
https://www.readbyqxmd.com/read/28095582/enhancing-the-admit-me-tool-for-care-transitions-for-individuals-with-alzheimer-s-disease
#2
Janet R Moore, Meghan M Sullivan
One of the goals of the National Plan to Address Alzheimer's Disease is to ensure safe care transitions. To facilitate safe and effective transitions from home to hospital, the ADMIT (Alzheimer's, Dementia, Memory Impaired Transitions) Me tool was developed and three focus groups were conducted with caregivers (n = 6), emergency department nurses (n = 6), and first responders (n = 14) to determine its usefulness and applicability to practice. Feedback was used to enhance the tool to reflect their needs. Each group expressed that the tool would help promote safety in care transitions...
January 17, 2017: Journal of Gerontological Nursing
https://www.readbyqxmd.com/read/28086861/managing-shades-of-grey-a-focus-group-study-exploring-community-dwellers-views-on-advance-care-planning-in-older-people
#3
Natasha Michael, Clare O'Callaghan, Emma Sayers
BACKGROUND: Community-dwelling consumers of healthcare are increasing, many aging with life-limiting conditions and deteriorating cognition. However, few have had advance care planning discussions or completed documentation to ensure future care preferences are acted upon. This study examines the awareness, attitudes, and experiences of advance care planning amongst older people and unrelated offspring/caregivers of older people residing in the community. METHODS: Qualitative descriptive research, which included focus groups with older people (55+ years) and older people's offspring/caregivers living in an Australian city and surrounding rural region...
January 13, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28078993/mirnas-new-biomarkers-and-therapeutic-targets-in-dementia
#4
Ana Teresa de Bastos Viegas, Joana Ribeiro Guedes, Ana Rafaela Oliveira, Ana Maria Sequeira Cardoso, Ana Luísa Colaço Cardoso
BACKGROUND: Dementia is a complex pathological state that affects millions of individuals worldwide and is responsible for a huge socioeconomic burden, making it a major health concern of current times. Given the impact of dementia in both patients and caregivers, it is crucial to fully clarify the molecular mechanisms underlying dementia-associated disorders, since without this knowledge our ability to correctly diagnose and treat these diseases is severely hampered. METHODS: Epigenetic mechanisms, such as miRNA-mediated post-transcriptional regulation, have been reported to play a role in dementia pathogenesis...
January 10, 2017: Current Pharmaceutical Design
https://www.readbyqxmd.com/read/28077452/does-it-matter-if-we-disagree-the-impact-of-incongruent-care-preferences-on-persons-with-dementia-and-their-care-partners
#5
Evan G Shelton, Silvia Orsulic-Jeras, Carol J Whitlatch, Sarah M Szabo
PURPOSE: To gain a better understanding of how actual and perceived incongruence of care preferences affects the psychosocial well-being of persons with dementia and their family caregiver. DESIGN AND METHODS: In-depth interviews were conducted with 128 dyads each consisting of a person with dementia and a family caregiver. Baseline data from an intervention study were used to examine the relationship between the caregiver's care-related preferences, the person with dementia's care-related preferences, and the caregiver's perception of the person with dementia's preferences...
January 10, 2017: Gerontologist
https://www.readbyqxmd.com/read/28077010/positive-aspects-of-caregiving-questionnaire
#6
Ibrahim Abdollahpour, Saharnaz Nedjat, Maryam Noroozian, Yahya Salimi, Reza Majdzadeh
OBJECTIVE: The potential role of positive aspects of caregiving in enhancing caregivers' health is an important issue. The aim of this study was to develop and validate Positive Aspects of Caregiving Questionnaire (PACQ) in caregivers of patients with dementia in Iran. METHODS: Content validation process was used to content valid development. Cronbach α and intraclass correlation coefficient (ICC) were calculated as reliability indices. We used exploratory factor analysis to extract potential latent factors and evaluate the factor structure of PACQ...
January 1, 2017: Journal of Geriatric Psychiatry and Neurology
https://www.readbyqxmd.com/read/28068146/a-natural-language-based-presentation-of-cognitive-stimulation-to-people-with-dementia-in-assistive-technology-a-pilot-study
#7
Nina Dethlefs, Maarten Milders, Heriberto Cuayáhuitl, Turkey Al-Salkini, Lorraine Douglas
Currently, an estimated 36 million people worldwide are affected by Alzheimer's disease or related dementias. In the absence of a cure, non-pharmacological interventions, such as cognitive stimulation, which slow down the rate of deterioration can benefit people with dementia and their caregivers. Such interventions have shown to improve well-being and slow down the rate of cognitive decline. It has further been shown that cognitive stimulation in interaction with a computer is as effective as with a human...
January 9, 2017: Informatics for Health & Social Care
https://www.readbyqxmd.com/read/28067961/quality-of-life-in-relation-to-neuropsychiatric-symptoms-in-alzheimer-s-disease-5-year-prospective-alsova-cohort-study
#8
Kristiina Hongisto, Ilona Hallikainen, Tuomas Selander, Soili Törmälehto, Saku Väätäinen, Janne Martikainen, Tarja Välimäki, Sirpa Hartikainen, Jaana Suhonen, Anne M Koivisto
OBJECTIVE: To examine the association between neuropsychiatric symptoms (NPS) with self- and caregiver-rated Quality of Life (QoL) for patients with Alzheimer's disease (AD) during a 5-year follow-up. METHODS: The ALSOVA 5-year follow-up study included, at baseline, 236 patients with either very mild (Clinical Dementia Rating Scale (CDR) 0.5), or mild (CDR 1) AD, together with their caregivers from three Finnish hospital districts. QoL was evaluated using patient self-reported, and caregiver-rated, QoL in AD (QoL-AD) scores...
January 9, 2017: International Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/28067184/cognitive-reserve-and-self-efficacy-as-moderators-of-the-relationship-between-stress-exposure-and-executive-functioning-among-spousal-dementia-caregivers
#9
M M Pertl, C Hannigan, S Brennan, I H Robertson, B A Lawlor
BACKGROUND: A substantial literature has reported that stress negatively impacts on cognitive processes. As dementia caregiving can be stressful, it has been hypothesized that the challenges of dementia care may increase caregivers' own vulnerability to cognitive decline. Prefrontal processes are thought to be most vulnerable to stress; however, few studies have examined whether greater caregiver stress predicts poorer executive dysfunction, and no previous research has considered potential moderators of this relationship...
January 9, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28064236/when-caregiving-ends-the-experiences-of-former-family-caregivers-of-people-with-dementia
#10
Kristin L Corey, Mary K McCurry
PURPOSE OF THE STUDY: Numerous adverse physiological and psychological effects of family caregiving are documented in the literature. However, there is little knowledge about family caregivers after caregiving ends. The purpose of this study is to examine the health of former family caregivers and describe their experiences following the death of a care recipient with dementia. METHODS: Eight former family caregivers were recruited using convenience sampling. Each caregiver participated in one semi-structured interview ranging from 45 minutes to 3 hours in length...
January 7, 2017: Gerontologist
https://www.readbyqxmd.com/read/28057424/sundown-syndrome-sleep-quality-and-walking-among-community-dwelling-people-with-alzheimer-disease
#11
Yen-Hua Shih, Ming-Chyi Pai, Ying-Che Huang, Jing-Jy Wang
PURPOSES: Sundown syndrome and sleep disturbances cause people with Alzheimer disease (PAD) and caregivers suffering. Studies have indicated that physical exercise could have a positive impact on sundown syndrome, yet no research has ever explored the relationship between walking and sundown syndrome. The aims of this study were to examine the relationship between sundown syndrome and sleep quality, and determine whether the severity of dementia, sleep quality, and weekly duration of walking influenced sundown syndrome, and to assess differences in sundown syndrome and sleep quality in relation to the accompanying walker and weekly duration of walking among people with Alzheimer disease living in the community...
January 2, 2017: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/28056843/the-influence-of-day-care-centres-designed-for-people-with-dementia-on-family-caregivers-a-qualitative-study
#12
Signe Tretteteig, Solfrid Vatne, Anne Marie Mork Rokstad
BACKGROUND: Dementia is one of the most challenging age-related illnesses for family caregivers, whose care-related burden is well known. Research indicates that day care centres (DCCs) can reduce the caregiver burden and help family caregivers to cope with demands; however, the current body of knowledge is still tentative and inconsistent, and more research is recommended. The aim of this study is to provide an extended understanding of the situation of family caregivers and to examine to what extent DCCs can meet their need for support and respite...
January 5, 2017: BMC Geriatrics
https://www.readbyqxmd.com/read/28052780/stakeholder-meeting-integrated-knowledge-translation-approach-to-address-the-caregiver-support-gap
#13
Jayna M Holroyd-Leduc, Jacqueline McMillan, Nathalie Jette, Suzette C Brémault-Phillips, Wendy Duggleby, Heather M Hanson, Jasneet Parmar
Family caregivers are an integral and increasingly overburdened part of the health care system. There is a gap between what research evidence shows is beneficial to caregivers and what is actually provided. Using an integrated knowledge translation approach, a stakeholder meeting was held among researchers, family caregivers, caregiver associations, clinicians, health care administrators, and policy makers. The objectives of the meeting were to review current research evidence and conduct multi-stakeholder dialogue on the potential gaps, facilitators, and barriers to the provision of caregiver supports...
January 5, 2017: Canadian Journal on Aging, la Revue Canadienne du Vieillissement
https://www.readbyqxmd.com/read/28051926/the-process-of-change-in-complicated-grief-group-therapy-for-bereaved-dementia-caregivers-an-evaluation-using-the-meaning-of-loss-codebook
#14
Katherine P Supiano, Lara Burns Haynes, Vicki Pond
Caring for a person with dementia is challenging and has adverse health and mental health effects that, for 9-25% of caregivers persist into bereavement in the form of complicated grief (CG). For those bereaved dementia caregivers unable to satisfactorily process grief, specialized Complicated Grief Group Therapy (CGGT) can restore a healthy grief process. We investigated the progression of therapeutic change in CGGT participants (N = 16 in three treatment groups), using an adapted version of Meaning of Loss Codebook (MLC; Gillies et al...
January 4, 2017: Journal of Gerontological Social Work
https://www.readbyqxmd.com/read/28048992/-geriatric-psychiatry-and-dementia
#15
Philippe Fernandez
Behavioural disorders linked to dementia are common. The intertwining of psychiatric and neurodegenerative pathologies means caregivers are faced with complex situations on a daily basis. The expertise of the geriatric psychiatry teams helps to guide the clinical reasoning and to find the best nursing approach in order to understand the symptom and support the patient.
January 2017: Revue de L'infirmière
https://www.readbyqxmd.com/read/28040429/dealing-with-daily-challenges-in-dementia-deal-id-study-an-experience-sampling-study-to-assess-caregivers-sense-of-competence-and-experienced-positive-affect-in-daily-life
#16
Rosalia J M van Knippenberg, Marjolein E de Vugt, Rudolf W Ponds, Inez Myin-Germeys, Frans R J Verhey
OBJECTIVE: Positive emotions and feelings of competence seem to play an important role in the well-being of caregivers of people with dementia. Both are likely to fluctuate constantly throughout the caretaking process. Unlike standard retrospective methods, momentary assessments in daily life can provide insight into these moment-to-moment fluctuations. Therefore, in this study both retrospective and momentary assessments were used to examine the relationship between caregivers' sense of competence and their experienced positive affect (PA) in daily life...
November 11, 2016: American Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/28035933/frontal-lobe-function-correlates-with%C3%A2-one-year-incidence-of-urinary-incontinence-in-elderly-with-alzheimer-disease
#17
Taiki Sugimoto, Masaki Yoshida, Rei Ono, Shunsuke Murata, Naoki Saji, Shumpei Niida, Kenji Toba, Takashi Sakurai
BACKGROUND: Urinary incontinence (UI) is frequently observed in patients with Alzheimer's disease (AD). Although previous works highlight the association between frontal lobe-related function and UI, causal relationship is unclear. OBJECTS: To clarify the longitudinal association between frontal lobe function and the incidence of UI at 1 year in patients with AD. METHODS: The subjects were 215 continent AD patients who attended the Memory Clinic of the National Center for Geriatrics and Gerontology of Japan during the period from March 2011 to December 2014...
December 30, 2016: Journal of Alzheimer's Disease: JAD
https://www.readbyqxmd.com/read/28035924/the-effect-of-the-association-between-donepezil-and-choline-alphoscerate-on-behavioral-disturbances-in-alzheimer-s-disease-interim-results-of-the-ascomalva-trial
#18
Anna Carotenuto, Raffaele Rea, Enea Traini, Angiola Maria Fasanaro, Giovanna Ricci, Valentino Manzo, Francesco Amenta
BACKGROUND: Behavioral and psychological symptoms of dementia (BPSD) are a group of psychological reactions, psychiatric symptoms, and behaviors commonly found in Alzheimer's disease (AD). Four clusters of BPSD have been described: mood disorders (depression, anxiety, and apathy), psychotic symptoms (delusions and hallucinations), aberrant motor behaviors (pacing, wandering, and other purposeless behaviors), and inappropriate behaviors (agitation, disinhibition, and euphoria). Most of them are attributed to acetylcholine deficiency...
December 30, 2016: Journal of Alzheimer's Disease: JAD
https://www.readbyqxmd.com/read/28034977/which-facial-descriptors-do-care-home-nurses-use-to-infer-whether-a-person-with-dementia-is-in-pain
#19
Stefan Lautenbacher, Elizabeth L Sampson, Sonja Pähl, Miriam Kunz
OBJECTIVES : Pain assessment in people with advanced dementia relies strongly on observable pain behaviors, such as facial expressions, body movement, and vocalizations. However, the process of inferring pain in others based on such observations is not well understood. We aimed to investigate which features of facial expressions caregivers rely on when inferring the presence and intensity of pain in people with dementia. METHODS : A questionnaire, including items on 13 facial descriptors, which were extracted from established observational scales for pain in dementia, was sent to 366 nursing homes in Germany...
December 29, 2016: Pain Medicine: the Official Journal of the American Academy of Pain Medicine
https://www.readbyqxmd.com/read/28027651/the-senior-companion-program-plus-a-culturally-tailored-psychoeducational-training-program-innovative-practice
#20
Noelle L Fields, Ling Xu, Virginia E Richardson, Rupal Parekh, Dorothea Ivey, Gretchen Feinhals, Melanie Calhoun
A purposive sample of African American Senior Companions ( N = 23) participated in a 5-day, 20-hour psychoeducational training designed to address the unique cultural needs of African American dementia caregivers. Previous studies have not utilized lay caregiver volunteers such as Senior Companions in dementia research in the United States. Pre- and post-tests were administered to determine whether African American Senior Companions increased their knowledge of Alzheimer's disease after participating in the Senior Companion Program Plus...
January 1, 2016: Dementia
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