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Dementia caregivers

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https://www.readbyqxmd.com/read/28914991/resistiveness-to-care-as-experienced-by-family-caregivers-providing-care-for-someone-with-dementia
#1
Pamela C Spigelmyer, Judith E Hupcey, Carol A Smith, Susan J Loeb, Lisa Kitko
PURPOSE: This research explored family caregivers' lived experiences of resistiveness to care when they provided care for people with dementia. The goal was to identify a general meaning of family caregivers' lived experiences to target potential areas for future nursing interventions to help family caregivers manage their caregiving role and provide a base for future research surrounding resistiveness to care. DESIGN: Descriptive phenomenology was used to provide descriptions of eight family caregivers who provided care for someone with dementia and experienced resistiveness to care...
September 15, 2017: Journal of Nursing Scholarship
https://www.readbyqxmd.com/read/28914089/art-museum-based-intervention-to-promote-emotional-well-being-and-improve-quality-of-life-in-people-with-dementia-the-artemis-project
#2
Arthur Schall, Valentina A Tesky, Ann-Katrin Adams, Johannes Pantel
ARTEMIS (ART Encounters: Museum Intervention Study) is an art-based intervention designed especially for people with dementia and their care partners that involves a combination of museum visits and artistic activity. This paper reports the results of a randomized wait-list controlled study on the influence of the ARTEMIS intervention on the emotional state, well-being, and quality of life of dementia patients. People with mild-to-moderate dementia (n = 44) and their care partners (n = 44) visited the Frankfurt Städel Museum once a week on six pre-arranged occasions...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/28904992/too-many-choices-confuse-patients-with-dementia
#3
R C Hamdy, J V Lewis, A Kinser, A Depelteau, R Copeland, T Kendall-Wilson, K Whalen
Choices are often difficult to make by patients with Alzheimer Dementia. They often become acutely confused when faced with too many options because they are not able to retain in their working memory enough information about the various individual choices available. In this case study, we describe how an essentially simple benign task (choosing a dress to wear) can rapidly escalate and result in a catastrophic outcome. We examine what went wrong in the patient/caregiver interaction and how that potentially catastrophic situation could have been avoided or defused...
January 2017: Gerontology & Geriatric Medicine
https://www.readbyqxmd.com/read/28899301/engaging-and-honoring-older-adults-in-research
#4
Steven L Baumann
Research involving persons with cognitive changes associated with aging, including dementia, has increased dramatically in the past two decades, motivated in large part by an increasing number of older adults with such issues. Velzke in the paper that follows this introduction discusses why it is important and how to include older adults as participants in research. While focused primarily on elders and their caregivers in Scotland, the topic is a globally important one.
January 2017: Nursing Science Quarterly
https://www.readbyqxmd.com/read/28895426/music-for-the-ageing-brain-cognitive-emotional-social-and-neural-benefits-of-musical-leisure-activities-in-stroke-and-dementia
#5
Teppo Särkämö
Music engages an extensive network of auditory, cognitive, motor, and emotional processing regions in the brain. Coupled with the fact that the emotional and cognitive impact of music is often well preserved in ageing and dementia, music is a powerful tool in the care and rehabilitation of many ageing-related neurological diseases. In addition to formal music therapy, there has been a growing interest in self- or caregiver-implemented musical leisure activities or hobbies as a widely applicable means to support psychological wellbeing in ageing and in neurological rehabilitation...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/28894746/behavioral-health-characteristics-of-a-technology-enabled-sample-of-alzheimer-s-caregivers-with-high-caregiver-burden
#6
Ian Coffman, Helaine E Resnick, Corinna E Lathan
BACKGROUND: Caregivers of persons with dementia/Alzheimer's disease (AD) experience considerable physical and psychological burdens associated with their caregiving role. Although mobile technologies have the potential to deliver caregiver supports, it is necessary to demonstrate that caregivers in need of these supports are technology-enabled, that they can be identified and accessed, and that they experience the same unfavorable mental health outcomes characteristic of the broader caregiving population...
2017: MHealth
https://www.readbyqxmd.com/read/28894609/an-online-platform-to-support-the-network-of-caregivers-of-people-with-dementia
#7
April B C G Boessen, Renée Verwey, Saskia Duymelinck, Erik van Rossum
Increasing numbers of persons with dementia (PWD) augment the pressure on dementia care, especially informal care. Care technology can support the network of PWD. We tested the usability and perceived value of an online platform that aims to support the communication and collaboration between family and professional caregivers of PWD. A mixed methods design was used for this pilot study, including semistructured interviews, a postal questionnaire, and monitoring of log data. Seven family and thirty-two professional caregivers involved with four PWD participated during a 10-week period...
2017: Journal of Aging Research
https://www.readbyqxmd.com/read/28891356/benefits-and-burdens-family-caregivers-experiences-of-assistive-technology-at-in-everyday-life-with-persons-with-young-onset-dementia-yod
#8
Torhild Holthe, Rita Jentoft, Cathrine Arntzen, Kirsten Thorsen
BACKGROUND: People with dementia and their family caregivers may benefit from assistive technology (AT), but knowledge is scarce about family carers' (FC) experiences and involvement in the use of AT in everyday life. AIM: To examine the FC roles and experiences with AT as means of supporting people with young onset-dementia (YOD). METHOD: Qualitative interview study with follow-up design. Repeated semi-structured interviews were conducted with 13 FC of people with YOD, participating in an ongoing intervention study investigating the families' use and experiences of AT in everyday life...
September 11, 2017: Disability and Rehabilitation. Assistive Technology
https://www.readbyqxmd.com/read/28890528/association-between-economic-status-and-discharge-destination-among-elderly-patients-from-acute-care-hospitals
#9
Nobuo Sakata, Yasuyuki Okumura, Yasuyuki Shirakawa
Objective The aim of this study was to investigate the association between economic status and discharge destination of elderly patients from acute care hospitals.Method We conducted a case-control study using data from a survey of elderly discharged patients conducted under the subsidy program of the Japanese Ministry of Health, Labour and Welfare. The questionnaires were mailed to 1,068 acute care hospitals located in the Kanto and Kansai region. The survey asked medical social workers or nurses, who were responsible for the discharge planning, to answer questions about the discharge of elderly patients from their hospitals...
2017: [Nihon Kōshū Eisei Zasshi] Japanese Journal of Public Health
https://www.readbyqxmd.com/read/28890165/reduction-of-the-anticholinergic-burden-makes-it-possible-to-decrease-behavioral-and-psychological-symptoms-of-dementia
#10
Yacine Jaïdi, Vignon Nonnonhou, Lukshe Kanagaratnam, Laurie Anne Bertholon, Sarah Badr, Vivien Noël, Jean-Luc Novella, Rachid Mahmoudi
OBJECTIVE: The aim of this study was to evaluate the impact of a reduction of the anticholinergic burden (AB) on the frequency and severity of behavioral and psychological symptoms of dementia (BPSD) and their repercussions on the care team (occupational disruptiveness). METHODS: In this prospective, single-center study in an acute care unit for Alzheimer disease (AD) and related disorders, 125 elderly subjects (mean age: 84.4 years) with dementia presented with BPSD...
August 14, 2017: American Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/28887888/neurocognitive-impairment-addressing-couple-and-family-challenges
#11
John S Rolland
Conditions involving neurocognitive impairment pose enormous challenges to couples and families. However, research and practice tend to focus narrowly on immediate issues for individual caregivers and their dyadic relationship with the affected member. A broad family systems approach with attention to family processes over time is needed in training, practice, and research. In this paper, Rolland's Family Systems Illness model provides a guiding framework to consider the interaction of different psychosocial types of neurocognitive conditions and their evolution over time with individual, couple, and family life-course development...
September 9, 2017: Family Process
https://www.readbyqxmd.com/read/28886056/development-and-feasibility-of-inlife-a-pilot-study-of-an-online-social-support-intervention-for-informal-caregivers-of-people-with-dementia
#12
Alieske E H Dam, Martin P J van Boxtel, Nico Rozendaal, Frans R J Verhey, Marjolein E de Vugt
BACKGROUND: Informal caregivers of individuals with dementia have an increased risk to face social isolation due to progression of the disease. Online social media interventions might offer a new opportunity to increase access to social support and enhance positive interactions and openness in dementia care networks. OBJECTIVE: This explorative pilot study describes (1) the development of an online social support intervention Inlife, and (2) the evaluation of the feasibility of this intervention and the measurements to assess its effectiveness...
2017: PloS One
https://www.readbyqxmd.com/read/28883776/receptive-vocabulary-and-cognition-of-elderly-people-in-institutional-care
#13
Amela Ibrahimagic, Lejla Junuzovic Zunic, Omer C Ibrahimagic, Dzevdet Smajlovic, Mirsada Rasidovic
INTRODUCTION: Basic cognitive functions such as: alertness, working memory, long term memory and perception, as well as higher levels of cognitive functions like: speech and language, decision-making and executive functions are affected by aging processes. Relations between the receptive vocabulary and cognitive functioning, and the manifestation of differences between populations of elderly people based on the primary disease is in the focus of this study. AIM: To examine receptive vocabulary and cognition of elderly people with: verified stroke, dementia, verified stroke and dementia, and without the manifested brain disease...
June 2017: Materia Socio-medica
https://www.readbyqxmd.com/read/28882139/the-influence-of-institutional-discourses-on-the-work-of-informal-carers-an-institutional-ethnography-from-the-perspective-of-informal-carers
#14
Guro Wisth Øydgard
BACKGROUND: The growing numbers of seniors worldwide and the need for support and services that follow from a higher standard of living have led to an increased focus on scarce benefits and limited human resources. At the same time, many western countries have had to make welfare cuts to balance budgets. This has brought the contributions of informal carers to the fore. Thus far, the focus has generally been on the need for the informal carers to receive information and support; to enable them to contribute...
September 7, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28879833/prevalence-of-mild-behavioral-impairment-in-mild-cognitive-impairment-and-subjective-cognitive-decline-and-its-association-with-caregiver-burden
#15
Faisal Sheikh, Zahinoor Ismail, Moyra E Mortby, Philip Barber, Alicja Cieslak, Karyn Fischer, Robert Granger, David B Hogan, Aaron Mackie, Colleen J Maxwell, Bijoy Menon, Patricia Mueller, David Patry, Dawn Pearson, Jeremy Quickfall, Tolulope Sajobi, Eric Tse, Meng Wang, Eric E Smith
BACKGROUND: Mild behavioral impairment (MBI) describes later life acquired, sustained neuropsychiatric symptoms (NPS) in cognitively normal individuals or those with mild cognitive impairment (MCI), as an at-risk state for incident cognitive decline and dementia. We developed an operational definition of MBI and tested whether the presence of MBI was related to caregiver burden in patients with subjective cognitive decline (SCD) or MCI assessed at a memory clinic. METHODS: MBI was assessed in 282 consecutive memory clinic patients with SCD (n = 119) or MCI (n = 163) in accordance with the International Society to Advance Alzheimer's Research and Treatment - Alzheimer's Association (ISTAART-AA) research diagnostic criteria...
September 7, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28873856/development-testing-of-a-monitoring-system-assisting-mci-patients-the-european-project-inlife
#16
Evangelos Kaimakamis, Vaia Karavidopoulou, Vassilios Kilintzis, Leandros Stefanopoulos, Valentini Papageorgiou
INLIFE is a project cofounded from the European Union aiming in prolonging independent living of elderly people with cognitive impairment based on open, seamless ICT services supporting communication, daily activities, providing health services and professional care to the elderly. The main innovation stems from ICT solutions offering 19 different services adapted on specific characteristics elderly people with mild cognitive impairment, early and later stages of Dementia, cognitive impairment and co-morbid condition, as well as their formal and informal caregivers...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28871314/-psychotherapy-with-mild-cognitive-impairment-and-dementia
#17
REVIEW
A Linnemann, A Fellgiebel
BACKGROUND: Despite evidence for psychotherapy (PT) in elderly patients, it is not standard care in patients with mild cognitive impairment and dementia. Although neuropsychiatric symptoms are frequent in these patients, there is a lack of studies investigating the importance and efficiency of PT. OBJECTIVE: Can patients with mild cognitive impairment and dementia benefit from PT? If so, which modifications of therapeutic strategies are necessary for treating elderly patients with mild cognitive impairments? MATERIAL AND METHODS: Evaluation of empirical evidence on the efficiency of PT for patients with mild cognitive impairment and dementia...
September 4, 2017: Der Nervenarzt
https://www.readbyqxmd.com/read/28870266/comparison-of-the-lived-experiences-of-family-caregivers-of-patients-with-dementia-and-of-patients-with-cancer-in-indonesia
#18
Martina Sinta Kristanti, Yvonne Engels, Christantie Effendy, Astuti, Adi Utarini, Myrra Vernooij-Dassen
BACKGROUND: Dementia, even more than cancer, demands long-term care. While in Indonesia cancer is accepted as a disease requiring caregiving, dementia is still considered "a normal condition." These differences might affect the experiences of caregivers, especially those relating to social health, the subject of our study. We aim to describe and compare the lived experiences of family caregivers of patients with cancer (PWC) with those of patients with dementia (PWD) in Yogyakarta, Indonesia, and to explore the role of their social health in these experiences...
September 5, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28869661/utilisation-of-formal-and-informal-care-and-services-at-home-among-persons-with-dementia-a-cross-sectional-study
#19
Christina Bökberg, Gerd Ahlström, Staffan Karlsson
BACKGROUND: The progression of dementia disease implies increasing needs for both informal and formal care and services but also risk of institutionalisation. To better adjust care and services in the phase preceding institutionalisation it is important to find out whether utilisation of formal and informal care and services is determined by increased needs and by who meets the needs. AIM: The aim was to compare persons with dementia (65+) with different levels of cognitive impairment, regarding utilisation of formal and informal care and service at home...
September 4, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28865985/extended-continuous-measures-of-functional-status-in-community-dwelling-persons-with-alzheimer-s-and-related-dementia-infrastructure-performance-tradeoffs-preliminary-data-and-promise
#20
Bradley Zylstra, George Netscher, Julien Jacquemot, Michael Schaffer, Galen Shen, Angela D Bowhay, Tamara L Braley, Katherine L Possin, Bruce L Miller, Alexandre M Bayen, A Katrin Schenk, Stephen J Bonasera
BACKGROUND: The past decades have seen phenomenal growth in the availability of inexpensive and powerful personal computing devices. Efforts to leverage these devices to improve health care outcomes promise to remake many aspects of healthcare delivery, but remain in their infancy. NEW METHOD: We describe the development of a mobile health platform designed for daily measures of functional status in ambulatory, community dwelling subjects, including those who have Alzheimer's disease or related neurodegenerative disorders...
August 30, 2017: Journal of Neuroscience Methods
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