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Spouse caregivers

Sylvie D Lambert, Steven J Bowe, Patricia M Livingston, Leila Heckel, Selina Cook, Paul Kowal, Liliana Orellana
OBJECTIVES: A high proportion of care stemming from chronic disease or disability in low-income and middle-income countries is provided by informal caregivers. The goal of this study was to determine the level of burden experienced by these caregivers, explore associated factors and assess whether caregivers' and non-caregivers' health differed. DESIGN AND SETTING: This cross-sectional study was a secondary analysis of data on caregivers' burden, health and health risk factors in Ghana, India and the Russian Federation collected as part of the WHO's Study on global AGEing and adult health (SAGE) Wave 1...
November 15, 2017: BMJ Open
Tracey A Brickell, Louis M French, Sara M Lippa, Rael T Lange
This study examined the impact of service member/veteran (SMV) combat deployment and traumatic brain injury (TBI) on the health and behavior of his or her children. Participants were 104 female spouse caregivers of US SMVs who had sustained a mild, severe, or penetrating TBI. Participants completed the Children's Health and Behavior Questionnaire (CHBQ; r = .758 to .881) that evaluates school grades, behavior, medical health, emotional health, and social participation: (a) prior to the first combat deployment, (b) in the month prior to the TBI, (c) within 2 years after the TBI, and (d) 2 or more years after the TBI...
November 1, 2017: Clinical Child Psychology and Psychiatry
Raquel S D Betini, John P Hirdes, Donna S Lero, Susan Cadell, Jeff Poss, George Heckman
BACKGROUND: The unpaid care provided by informal caregivers allows care recipients to live longer in their homes, which often results in fewer unnecessary long term care home (LTCH) admissions. Although the relationship between care recipient's health characteristics and institutionalization is well known, the influence of caregiver distress and caregiving coresidence and relationship on this outcome is less clear. This study examines the association of care recipient care needs, caregiver distress and caregiving coresidence and relationship with care recipient long term care home admission...
November 9, 2017: BMC Health Services Research
Minyoung Kwak, Ji Won Han, Jung-Hwa Ha
BACKGROUND: Dementia has negative consequences for both persons with dementia and their family caregivers. Dyadic interventions in which both groups participate together have shown an effective and promising approach. The Couples Life Story Approach (CLSA) that was recently developed for older couples dealing with dementia in the USA was adapted and implemented for the older Korean population in this study. The purpose of this paper is to understand how older Korean couples dealing with dementia experienced the CLSA...
November 7, 2017: International Psychogeriatrics
Therése Bielsten, Ingrid Hellström
This scoping review is an extended version of a narrative review of couple-centred interventions in dementia shared in part A and the previous publication in this edition. The rationale for expanding study A emerged through the fact that most dyadic interventions have samples consisting of a majority of couples. The exclusion of interventions with samples of mixed relationships in part A therefore contributed to a narrow picture of joint dyadic interventions for couples in which one partner has a dementia. The aim of this second review is to explore the 'what' (types of interventions) and the 'why' (objectives and outcome measures) of dyadic interventions in which sample consists of a majority of couples/spouses and in which people with dementia and caregivers jointly participate...
January 1, 2017: Dementia
Christine L Williams, David Newman, Lena Marmstål Hammar
OBJECTIVE: This study was to designed to examine the feasibility and preliminary outcomes of CARE: Caring About Relationships and Emotions, a 10-week, home-based, intervention to support married couples affected by dementia. METHODS: Fifteen older couples participated in a single group repeated measures feasibility study. Weekly, video-recorded conversations over 10 weeks were used to rate communication using the Verbal/Nonverbal Interaction Scale for caregivers and care receivers...
November 3, 2017: International Journal of Geriatric Psychiatry
Jacquelyn Harvey-Knowles, Meara H Faw
Cancer caregivers often experience significant challenges in their motivation and ability to comfort cancer survivors, particularly in a spousal or romantic context. Spousal cancer caregivers have been known to report even greater levels of burden and distress than cancer sufferers, yet still take on the role of acting as an informal caregiver so they can attend to their partner's needs. The current study tested whether a theoretical model of supportive outcomes-the dual-process model of supportive communication-explained variations in cancer caregivers' motivation and ability to create high-quality support messages...
November 4, 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
Ying-Chieh Lai, I-Hui Chen, Nae-Fang Miao, Yu-Ling Hsiao, Hsien-Chang Li
BACKGROUND: Immigration is a global issue. Taiwan has a high proportion of immigrant spouses who take care of the aging parents-in-law at home mainly based on filial piety. Difficulties in communication in many aspects of daily life occur between the elderly and immigrant spouses, and result in the elderly becoming vulnerable and thus, influencing their psychological well-being. Although past studies demonstrated that due to cultural differences, employed foreign care providers negatively influenced elder care quality (e...
October 26, 2017: Archives of Gerontology and Geriatrics
Sandrine Pihet, Christina Moses Passini, Manuela Eicher
BACKGROUND: Informal dementia caregivers (IDCs) are often confronted with important fluctuations in care-related burden, commonly described as "good and bad days." These fluctuations are overlooked by traditional questionnaires focusing on the average experience. The experience sampling method (ESM) is based on the repeated collection of data in everyday life, thereby allowing the description of day-to-day fluctuations in IDC burden, and the identification of their correlates. ESM studies are still scarce among IDCs, with none focusing on day-to-day fluctuations in burden...
November 2017: Nursing Research
Isabelle Jalenques, Marion Cleret, Barbara Richard, Fabien Rondepierre, Candy Auclair
OBJECTIVE: To assess and compare the health-related quality of life (HRQoL) of spouses living at home with a patient aged 65 years or more suffering from a major depressive disorder and that of matched controls. Secondly, to investigate whether the HRQoL of spouses was correlated with the assessment of their partner's depression, their own depression and the self-perceived level of care burden experienced by the caregiver partner. METHODS: Assessment of patients was based on the clinical diagnosis of a major depressive disorder as established by the criteria of the DSM-IV-TR, the geriatric depression scale GDS-15 and the LEIPAD questionnaire specific to subjects aged 65 or over living at home...
October 28, 2017: La Presse Médicale
Einav Segev, Miriam Levinger, Yael Hochman
This qualitative research focused on the relationships between family members of patients with acquired brain injury (ABI). The aim was to explore the dynamics between caregivers of the family member with a brain injury during rehabilitation hospitalization, and the relationships between them and the rest of the extended family. Twenty semistructured interviews were conducted with family members. In each family, the spouse of the patient and another family member involved in caregiving were interviewed. The importance of the relationships between family members during rehabilitation hospitalization justifies the examination undertaken in this research...
October 1, 2017: Qualitative Health Research
Carlo Della Pelle, Vincenzo Orsatti, Francesco Cipollone, Giancarlo Cicolini
AIMS AND OBJECTIVE: To assess the levels of Health Literacy of Italian caregivers of patients with heart failure. BACKGROUND: Health Literacy is related to patients' health outcomes. Low Health Literacy has been found in elderly people with Heart Failure, less is known on the Health Literacy of caregivers whose patients are suffering from Heart Failure. DESIGN: Observational, multicenter, cross-sectional study. METHODS: From July 2015 to May 2016, caregivers' were recruited in five hospitals from Central and Southern Italy...
October 27, 2017: Journal of Clinical Nursing
Anam Qadeer, Usama Khalid, Mahwish Amin, Sajeela Murtaza, Muhammad F Khaliq, Maria Shoaib
Insufficient attention towards caregivers has resulted in the emergence of psychological and health complaints. Affliction tethers more towards spouses as compared to parents and females as compared to males. The role of sibling care givers was found to be no different from parents or spouses. Marital relationships were found to suffer the most, with the caregiver leaving the traumatic brain injury (TBI) patient in his time of need. The Brief Symptom Inventory (BSI) and family assessment device (FAD) predicted a correlation between patient variables and caregiver discontent...
August 21, 2017: Curēus
Ming-Chun Chen, Chi-Wen Kao, Yu-Lung Chiu, Tzu-Ying Lin, Yu-Ting Tsai, Yi-Ting Zhang Jian, Ya-Mei Tzeng, Fu-Gong Lin, Shu-Ling Hwang, Shan-Ru Li, Senyeong Kao
BACKGROUND: Caregiver health is a crucial public health concern due to the increasing number of elderly people with disabilities. Elderly caregivers are more likely to have poorer health and be a care recipient than younger caregivers. The Taiwan government offers home-based long-term care (LTC) services to provide formal care and decrease the burden of caregivers. This study examined the effects of home-based LTC services on caregiver health according to caregiver age. METHODS: This cross-sectional study included a simple random sample of care recipients and their caregivers...
October 23, 2017: Health and Quality of Life Outcomes
Oh Young Kwon, Hyeong Sik Ahn, Hyun Jung Kim, Kun Woo Park
BACKGROUND AND PURPOSE: Caregivers endure tremendous physical, emotional, and financial burdens while caring for people with dementia. The current study aimed to estimate the effectiveness of cognitive behavioral therapy (CBT) for caregivers of people with dementia (CGPWD). METHODS: Studies in the MEDLINE, EMBASE, Cochrane Library, Web of Science, and SCOPUS databases were screened. Studies with a randomized controlled design and which produced CBT outcomes for CGPWD were included in this study, and we investigated these outcomes...
October 2017: Journal of Clinical Neurology
Wendy Duggleby, Sunita Ghosh, Kelly Struthers-Montford, Cheryl Nekolaichuk, Ceinwen Cumming, Roanne Thomas, Katia Tonkin, Jennifer Swindle
PURPOSE/OBJECTIVES: To evaluate the feasibility of a web-based psychosocial supportive intervention entitled Male Transition Toolkit (MaTT). 
. DESIGN: Randomized, controlled trial, mixed methods, concurrent feasibility design.
. SETTING: Edmonton, a large metropolitan city in western Canada.
. SAMPLE: 40 dyads (women with breast cancer and their spouse).
. METHODS: Male spouse participants in the treatment group accessed MaTT for four weeks...
November 1, 2017: Oncology Nursing Forum
Willow C Glasier, Kelly J Arbeau
Background and Objectives: We explored the meaning of the experience of involuntary separation, as defined formally by the Canadian government and informally by our participants, in formerly caregiving spouses whose partners had been admitted to long-term care. Our goal was to explore their lifeworld experience of separation, including factors influencing well-being as spouses shifted from at-home caregiving to involuntary separation. Research Design and Methods: Guided, semi-scripted personal interviews were conducted with 10 individuals who had become involuntarily separated up to 4 years prior to the interview...
October 13, 2017: Gerontologist
Ann Wojtaszczyk, Myra Glajchen, Russell K Portenoy, Maria Berdella, Patricia Walker, Malcolm Barrett, Jack Chen, Amy Plachta, Julie Balzano, Ashley Fresenius, Kenya Wilder, Elinor Langfelder-Schwind, Lara Dhingra
OBJECTIVES: Little is known about the experience of family caregivers of adults with cystic fibrosis (CF). This information is important for the identification of caregivers at risk for burden. METHODS: This was a longitudinal analysis of survey data obtained from caregivers of adult CF patients participating in an early intervention palliative care trial. Caregivers completed the validated Brief Assessment Scale for Caregivers (BASC) repeatedly over a 28-month period...
October 17, 2017: Palliative & Supportive Care
Shannon M Dunlay, Véronique L Roger, Susan A Weston, Lauren R Bangerter, Jill M Killian, Joan M Griffin
BACKGROUND: A diagnosis of heart failure (HF) often requires a comprehensive lifestyle change to maintain disease stability. When patients with HF are married, the spouse frequently assumes the caregiving role. Our objectives were to describe the health of spouses of married patients with HF, and examine whether the health of a spouse impacts patient outcomes. METHODS AND RESULTS: We identified 905 patients that were married at the time of incident HF diagnosis in Olmsted County, MN, from 2000 to 2012...
October 2017: Circulation. Heart Failure
Tomoko Kamimura
This article describes four older adults with Alzheimer's disease and comorbidities who used an automatic medication dispenser (AMD) to continue pharmacotherapy for these chronic diseases and who remained at home living either alone or with an older spouse. The AMDs were used for 3 to 4.5 years. The patients scored at least 21 on the Mini-Mental State Examination, and their dosing regimen involved taking the medication once or twice per day throughout this period. The caregivers filled the devices with medications once every 1 to 2 weeks and continuously monitored the patients' conditions nearly every day...
June 30, 2017: Clinical Gerontologist
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