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https://www.readbyqxmd.com/read/27914296/gender-differences-in-primary-home-caregivers-of-older-relatives-in-a-mediterranean-environment-a-cross-sectional-study
#1
Rafael Del-Pino-Casado, María Del Mar Pastor-Bravo, Pedro A Palomino-Moral, Antonio Frías-Osuna
A cross-sectional study was developed in Spain to analyse gender differences in intensity of care, care recipient needs and subjective burden, as well as the moderating effects of kinship on the relationship between gender and subjective burden. A probabilistic sample of 200 primary caregivers (100 male and 100 female) of older relatives was interviewed by expert nurses. Socio-demographic data and several scales regarding objective and subjective burden were used to collect data. Descriptive statistics, Student's t-test, ANOVA and multiple linear regression were used to analyse the data...
November 21, 2016: Archives of Gerontology and Geriatrics
https://www.readbyqxmd.com/read/27909070/informal-caregiving-and-intimate-relationships-the-experiences-of-spouses-of-uk-military-personnel
#2
Gursimran Thandi, S Oram, A Verey, N Greenberg, N T Fear
AIM: Currently, there is no research available on the experiences of spouses providing informal care to wounded, injured or sick (WIS) UK military personnel. The aim of this study was to fill this gap by investigating the relationship experiences of non-military partners caring for WIS UK military personnel. METHODS: Spouses of WIS military personnel (n=25) completed telephone interviews with the research team. The data were transcribed and analysed using thematic analysis...
December 1, 2016: Journal of the Royal Army Medical Corps
https://www.readbyqxmd.com/read/27893951/events-leading-to-hospital-related-disenrollment-of-home-hospice-patients-a-study-of-primary-caregivers-perspectives
#3
Veerawat Phongtankuel, Shawn Paustian, Manney Carrington Reid, Amanda Finley, Angela Martin, John Delfs, Rosemary Baughn, Ronald D Adelman
BACKGROUND: Approximately 25% of hospice disenrollments in the United States occur as the result of hospitalization, which can lead to burdensome transitions and undesired care. Informal caregivers (e.g., spouses, children) play a critical role in caring for patients on home hospice. Research examining hospital-related disenrollment among these patients is limited. OBJECTIVE: To understand the events surrounding the hospitalization of patients discharged from home hospice through the perspective of their informal caregivers...
November 28, 2016: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/27889827/the-effect-of-routine-training-on-the-self-efficacy-of-informal-caregivers-of-colorectal-cancer-patients
#4
Rachel D Havyer, Michelle van Ryn, Patrick M Wilson, Joan M Griffin
PURPOSE: Little is known about the degree to which caregiver training as part of routine clinical care influences caregiver self-efficacy. The objective of this study was to examine the relationship between training during routine clinical cancer care and self-efficacy among caregivers of colorectal cancer patients. METHODS: Caregivers completed a self-administered questionnaire about their experiences with training for specific patient problems and about their task-specific and general caregiving self-efficacy...
November 26, 2016: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/27885069/exploring-family-stigma-among-caregivers-of-persons-with-alzheimer-s-disease-the-experiences-of-israeli-arab-caregivers
#5
Hanan Abojabel, Perla Werner
Providing care to persons with Alzheimer's disease poses challenges for spouses and adult children, including experiencing stigmatic beliefs towards themselves-i.e., family stigma. Drawing on the frameworks of ethnicity and stigma and ethnicity and dementia, the current study explored stigmatic experiences among Israeli Arab family caregivers of a person with Alzheimer's disease. Three focus groups with 20 caregivers (adult children and spouses) of persons with Alzheimer's disease were conducted. Data were analyzed using theory-led thematic analysis...
November 24, 2016: Dementia
https://www.readbyqxmd.com/read/27877063/copd-patients-medical-care-and-support-in-greece-during-financial-crisis
#6
George Mitonas, Alexia Juvana, Zoe Daniil, Chryssa Hatzoglou, Konstantinos Gourgoulianis
BACKGROUND: The need to follow a multidisciplinary strategy in chronic obstructive pulmonary disease (COPD) management and rehabilitation in community settings in Greece raises significant questions, given the severe austerity measures being imposed at present. The aim of this study was to investigate the clinical profile of patients with COPD along with the care provided in rural community settings in Greece. METHODS: Two primary health care centers and 200 newly diagnosed patients over a 12-month period were involved in the study...
2016: International Journal of General Medicine
https://www.readbyqxmd.com/read/27864126/the-use-of-life-sustaining-procedures-in-the-last-month-of-life-is-associated-with-more-depressive-symptoms-in-surviving-spouses
#7
Katherine A Ornstein, Melissa D Aldridge, Melissa M Garrido, Rebecca Gorges, Evan Bollens-Lund, Albert L Siu, Kenneth M Langa, Amy S Kelley
CONTEXT: Family caregivers of individuals with serious illness who undergo intensive life-sustaining medical procedures at the end of life may be at risk of negative consequences including depression. OBJECTIVE: To determine the association between patients' use of life-sustaining procedures at the end of life and depressive symptoms in their surviving spouses. METHODS: We used data from the Health and Retirement Study, a longitudinal survey of U...
November 15, 2016: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/27859889/anxiety-depression-and-quality-of-life-in-family-caregivers-of-palliative-cancer-patients-during-home-care-and-after-the-patient-s-death
#8
H Götze, E Brähler, L Gansera, A Schnabel, A Gottschalk-Fleischer, N Köhler
We examined psychological parameters in family caregivers of palliative cancer patients before and after the death of the patients. Caregivers' data about depression and anxiety (Hospital Anxiety and Depression Scale), quality-of-life (Short Form-8 Health Survey), and social support (Oslo Social Support Scale) were collected at the beginning of home care (t1) and 2 months after the patient had died (t2). Regression models were employed to examine factors related to depression and anxiety in the bereaved caregivers...
November 17, 2016: European Journal of Cancer Care
https://www.readbyqxmd.com/read/27856694/the-experiences-of-family-caregivers-of-people-with-advanced-dementia-living-in-nursing-homes-with-a-specific-focus-on-spouses-a-narrative-literature-review
#9
Jean Hennings, Katherine Froggatt
Dementia affects individuals, families and their relationships. While there is increasing evidence about the experiences of family caregivers of people with dementia, relatively little is known of their experiences when their relatives are living in nursing homes with dementia. This narrative literature review aimed to synthesise current knowledge about family caregivers' experience of having relatives living in nursing homes with advanced dementia, particularly focussing on community-dwelling spouses. Using a systematic approach, textual narrative synthesis was undertaken...
November 17, 2016: Dementia
https://www.readbyqxmd.com/read/27824803/caregiving-immediately-after-stroke-a-study-of-uncertainty-in-caregivers-of-older-adults
#10
Eeeseung Byun, Barbara Riegel, Marilyn Sommers, Nancy Tkacs, Lois Evans
BACKGROUND: Caregivers of stroke survivors experience high rates of mental and physical morbidity. Stroke has sudden onset, and the outcome is not immediately known. Uncertainties surrounding the new caregiving role may not only necessitate major changes in the lives of family caregivers but also contribute to negative health outcomes for the caregiver. PURPOSE: The purposes of this study were to describe caregiver uncertainty across the early weeks after a family member's stroke and to explore characteristics of caregivers and stroke survivors associated with that uncertainty...
December 2016: Journal of Neuroscience Nursing: Journal of the American Association of Neuroscience Nurses
https://www.readbyqxmd.com/read/27821140/multicenter-questionnaire-survey-for-sporadic-inclusion-body-myositis-in-japan
#11
Naoki Suzuki, Madoka Mori-Yoshimura, Satoshi Yamashita, Satoshi Nakano, Ken-Ya Murata, Yukie Inamori, Naoko Matsui, En Kimura, Hirofumi Kusaka, Tomoyoshi Kondo, Itsuro Higuchi, Ryuji Kaji, Maki Tateyama, Rumiko Izumi, Hiroya Ono, Masaaki Kato, Hitoshi Warita, Toshiaki Takahashi, Ichizo Nishino, Masashi Aoki
BACKGROUND: Sporadic inclusion body myositis (sIBM) is the most prevalent acquired muscle disease in the elderly. sIBM is an intractable and progressive disease of unknown cause and without effective treatment. The etiology of sIBM is still unknown; however, genetic factors, aging, lifestyles, and environmental factors may be involved. The purpose of this study is to elucidate the cross-sectional profile of patients affected by sIBM in Japan. METHODS: We surveyed patient data for 146 cases diagnosed at a number of centers across Japan...
November 8, 2016: Orphanet Journal of Rare Diseases
https://www.readbyqxmd.com/read/27809565/relationship-continuity-and-emotional-well-being-in-spouses-of-people-with-dementia
#12
Gerard A Riley, Laura Evans, Jan R Oyebode
OBJECTIVES: Qualitative research has suggested that spousal experiences of discontinuity in their relationship with a person who has dementia (i.e. the relationship is experienced as radically changed) may contribute to heightened feelings of burden, entrapment, isolation, guilt and intolerance of behaviours that challenge. By contrast, continuity in the relationship may contribute to a greater sense of achievement and gratification from providing care. The present study served as a quantitative test of these suggestions...
November 3, 2016: Aging & Mental Health
https://www.readbyqxmd.com/read/27807277/the-risk-of-stroke-in-spouses-of-people-living-with-dementia-in-korea
#13
Ickpyo Hong, Areum Han, Timothy A Reistetter, Annie N Simpson
BACKGROUND AND PURPOSE: As the Korean population ages, the number of patients with dementia is expected to increase. Although prior studies have reported that the burdens associated with caregiving impact the health of spouses of individuals with dementia, it is unclear whether those spouses have increased risk of stroke. We examined the relationship between the risks of stroke among spouses of people with dementia (SPD). METHODS: We retrieved a total of 314,526 respondents from the population-based surveys of the 2012 and 2013 Korea Community Health Survey...
November 2, 2016: International Journal of Stroke: Official Journal of the International Stroke Society
https://www.readbyqxmd.com/read/27804916/end-of-life-care-decisions-using-a-korean-advance-directive-among-cancer-patient-caregiver-dyads
#14
Shinmi Kim, Sujin Koh, Kwonoh Park, Jinshil Kim
OBJECTIVE: The Korean advance directive (K-AD) comprises a value statement, treatment directives, preferences for cardiopulmonary resuscitation (CPR), artificial ventilation, tube feeding, and hospice care, as well as a proxy appointment. The K-AD can facilitate a patient's decision making with respect to end-of-life (EoL) care. The present study aimed to examine the extent to which patient-caregiver dyads would use the K-AD and agree on EoL care decisions. METHODS: Using a descriptive study design, 81 cancer patients were invited to participate...
November 2, 2016: Palliative & Supportive Care
https://www.readbyqxmd.com/read/27783796/-coping-strategies-adopted-by-parents-of-children-with-intellectual-disabilities
#15
Manoel Antonio Dos Santos, Maria Laura de Paula Lopes Pereira-Martins
The tasks of caregiving for children with disabilities involve contextual life stressors. The study aimed to investigate the coping strategies used by parents of children with intellectual disabilities (ID). The search included articles published between 2001 and 2015 on the PubMed, LILACS and PsycINFO databases, using the following key words: intellectual disability, coping, parents, caregivers, family. Thirteen articles were selected, the majority of which adopt a cross-sectional, comparative and quantitative approach...
October 2016: Ciência & Saúde Coletiva
https://www.readbyqxmd.com/read/27780616/perceived-quality-in-a-dementia-unit-patients-caregivers-as-information-providers
#16
J J López-Picazo, J de Dios Cánovas-García, C Antúnez, J Marín, M M Antequera, L Vivancos, B Martínez, A Legaz, D Navarro, M Leal
INTRODUCTION: Dementia units (DU) provide comprehensive and specialised care to patients with dementia. However, assessment in these units normally focuses on patient management. The aim of this study was to determine satisfaction of the caregivers of patients managed in a DU and how they rated DU care. METHODS: We created a self-administered questionnaire which was completed by 236 caregivers visiting the DU in 2015. The questionnaire included 6 dimensions (accessibility, organisation, professionalism, relationship with staff, information, and facilities); data were analysed using problem rates...
October 22, 2016: Neurología: Publicación Oficial de la Sociedad Española de Neurología
https://www.readbyqxmd.com/read/27764957/care-transitions-among-latino-diabetics-barriers-to-study-enrollment-and-transition-care
#17
Annie L Nguyen, Tingjian Yan, Kathleen Ell, Jorge Gonzalez, Susan Enguidanos
OBJECTIVE: Latinos are disproportionately affected by diabetes and people with diabetes experience frequent hospital admissions and readmissions. Care transition interventions can help reduce rates of readmission; however, there are many barriers to recruiting Latinos for participation in intervention research. Exploring reasons for study refusal furthers understanding of low research participation rates to help researchers address barriers. DESIGN: This study presents a cross-sectional, descriptive analysis of reasons for study refusal and attrition drawing from data collected as part of a randomized controlled trial conducted to test the effectiveness of a transitions intervention for diabetic Latino discharged from the hospital to home...
October 21, 2016: Ethnicity & Health
https://www.readbyqxmd.com/read/27758952/sleep-disturbance-association-with-quality-of-life-in-heart-failure-patients-caregivers-dyads
#18
Sami Y Al-Rawashdeh, Terry A Lennie, Misook L Chung
Sleep disturbance is common in patients with heart failure and their family caregivers. The purpose of this study was to determine whether sleep disturbances of patients and their spousal caregivers predicted their own and their partners' quality of life (QoL) in 78 heart failure patient-spousal caregiver dyads. Sleep disturbance was assessed using a composite score of four common sleep complaints. QoL was assessed by the physical and mental well-being subscales of the Short-Form 12 Health Survey. The multilevel dyadic actor-partner interdependence model analysis was used to determine the association between sleep disturbance and QoL...
October 6, 2016: Western Journal of Nursing Research
https://www.readbyqxmd.com/read/27755119/sympathetic-nerves-and-hypertension-in-stress-sleep-apnea-and-caregiving
#19
Michael G Ziegler, Milos Milic
PURPOSE OF REVIEW: The sympathetic nervous system (SNS) mediates short-term increases in blood pressure. Evidence that psychosocial stress leads to chronic hypertension is mixed. The SNS activation found in obstructive sleep apnea (OSA), caregiving for a severely demented spouse, and obesity more specifically address whether SNS activation might lead to the metabolic syndrome and hypertension. RECENT FINDINGS: Obesity is associated with both increased SNS electrical activity and plasma norepinephrine...
January 2017: Current Opinion in Nephrology and Hypertension
https://www.readbyqxmd.com/read/27747997/the-effect-of-widowhood-on-mental-health-an-analysis-of-anticipation-patterns-surrounding-the-death-of-a-spouse
#20
Bettina Siflinger
This study explores the effects of widowhood on mental health by taking into account the anticipation and adaptation to the partner's death. The empirical analysis uses representative panel data from the USA that are linked to administrative death records of the National Death Index. I estimate static and dynamic specifications of the panel probit model in which unobserved heterogeneity is modeled with correlated random effects. I find strong anticipation effects of the partner's death on the probability of depression, implying that the partner's death event cannot be assumed to be exogenous in econometric models...
October 16, 2016: Health Economics
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