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https://www.readbyqxmd.com/read/28886674/cancer-caregivers-preparedness-for-loss-and-bereavement-outcomes-do-preloss-caregiver-attributes-matter
#1
Michael Caserta, Rebecca Utz, Dale Lund, Katherine Supiano, Gary Donaldson
Past studies examining the relationship between preparedness for loss and bereavement outcomes among caregivers of spouses/partners with life-limiting illness did not adequately account for preloss caregiver attributes that could potentially confound the relationship. Using a sample of spouse/partner cancer caregivers ( N = 226), we examined how preloss caregiver attributes were associated with how prepared one felt for loss and their role in the relationship between preparedness and later bereavement outcomes...
January 1, 2017: Omega
https://www.readbyqxmd.com/read/28886136/relationship-between-the-number-of-family-members-and-stress-by-gender-cross-sectional-analysis-of-the-fifth-korea-national-health-and-nutrition-examination-survey
#2
Jin-Won Noh, Kyoung-Beom Kim, Jumin Park, Janghun Hong, Young Dae Kwon
BACKGROUND: Due to gendered inequalities in the division of domestic work, women with paid employment and family caregiving responsibilities can feel extremely tired with general distress and depression. Therefore, the purpose of this study was to examine the association between the number of family members and stress level by gender among Korean adults using a nationally representative dataset. METHODS: We used a sample of 6,293 subjects aged 19 or older (3,629 female and 2,264 male) from the fifth Korea National Health and Nutrition Examination Survey...
2017: PloS One
https://www.readbyqxmd.com/read/28875732/pain-management-concerns-from-the-hospice-family-caregivers-perspective
#3
Nai-Ching Chi, George Demiris, Kenneth C Pike, Karla Washington, Debra Parker Oliver
BACKGROUND: Pain management is a challenging task for family caregivers in home hospice care. However, there are limited studies that examine the challenges regarding pain management in hospice care from family caregivers' perspectives. OBJECTIVES: To identify the challenges related to pain management faced by family caregivers in hospice care and to examine the validity of an existing framework that outlines pain management challenges for hospice family caregivers...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/28871318/-psychotherapy-with-older-caregivers
#4
REVIEW
G Wilz, K Pfeiffer
Nursing and caring for a relative can be regarded as an important developmental task, which mainly affects elderly people who provide care for their very old parents or their (spouse) partners. Being responsible for the care of someone can be associated with a severe caregiver burden and experienced as a crisis. Possible psychological consequences are pronounced depressive symptoms or maladaptive stress reactions. For these caregivers, psychotherapeutic counselling can be sensible and helpful in addition to other resources of caregiver support...
September 4, 2017: Der Nervenarzt
https://www.readbyqxmd.com/read/28868917/mutuality-and-heart-failure-self-care-in-patients-and-their-informal-caregivers
#5
Stephanie A Hooker, Sarah J Schmiege, Ranak B Trivedi, Nicole R Amoyal, David B Bekelman
BACKGROUND: Heart failure is a progressive condition characterized by frequent hospitalizations for exacerbated symptoms. Informal family caregivers may help patients improve self-care, which may in turn reduce hospitalizations. However, little is known about how mutuality, defined as the quality of the patient-caregiver relationship, and caregiver burden affect self-care. OBJECTIVE: This study examines the associations among mutuality, patient self-care confidence (beliefs in abilities to engage in self-care behaviors) and maintenance (behaviors such as medication adherence, activity, and low salt intake), caregiver confidence in and maintenance of patient care, and caregiver perceived burden...
September 1, 2017: European Journal of Cardiovascular Nursing
https://www.readbyqxmd.com/read/28845408/pain-in-the-context-of-family-a-study-on-factors-contributing-to-marital-satisfaction-among-couples-suffering-from-chronic-pain
#6
Fatemeh Akbari, Mohsen Dehghani
BACKGROUND: Chronic pain is associated with increased stress in families and has its own impact on the relationship between members of the family. Among couples, if one of them suffers from chronic pain, this may influence marital satisfaction in both of them and given the importance of marital satisfaction in the prediction of successful treatment outcome, it is important to investigate pain and personality-related factors contributing to inter-individuals variation in marital satisfaction...
July 2017: Iranian Journal of Public Health
https://www.readbyqxmd.com/read/28844086/caregiving-and-mutuality-among-long-term-colorectal-cancer-survivors-with-ostomies-qualitative-study
#7
Andrea Altschuler, Petra Liljestrand, Marcia Grant, Mark C Hornbrook, Robert S Krouse, Carmit K McMullen
PURPOSE: The cancer caregiving literature focuses on the early phases of survivorship, but caregiving can continue for decades when cancer creates disability. Survivors with an ostomy following colorectal cancer (CRC) have caregiving needs that may last decades. Mutuality has been identified as a relationship component that can affect caregiving. This paper discusses how mutuality may affect long-term ostomy caregiving. METHODS: We conducted semi-structured, in-depth interviews with 31 long-term CRC survivors with ostomies and their primary informal caregivers...
August 26, 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/28833748/the-coping-experiences-of-spouses-of-persons-with-dementia
#8
Janne Myhre, Johanne Tonga Bjørnstad, Ingun Dina Ulstein, Sevald Høye, Kari Kvaal
AIMS AND OBJECTIVES: The aim of the present study was to explore how spouses who are caregivers to persons with dementia experience everyday life six to twelve months after participation in the intervention condition in the Norwegian Cognitive Behavioural Therapy for Early Dementia (N-CORDIAL) study. BACKGROUND: There is no current medical curative treatment for cognitive impairment and dementia-associated conditions. These conditions will lead to an increased need for daily assistance and care, as well as greater stress for caregivers...
August 22, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/28831816/finding-positives-in-caregiving-the-unique-experiences-of-chinese-spousal-caregivers-of-persons-with-young-onset-dementia
#9
Rebecca Ck Pang, Diana Tf Lee
The experience of taking care of spouses with young-onset dementia has been identified as unique and merits considerations. However, current knowledge about this area in Chinese spousal caregivers is scarce. A qualitative descriptive study was therefore conducted to explore the experience of spousal caregivers of persons with young-onset dementia in Hong Kong. A total of six spousal caregivers of persons diagnosed with dementia before the age of 65 participated in this study. Three major categories were identified: coming to terms with an unexpected diagnosis; multiple unanticipated and 'early' losses and finding positives and meaning...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/28828937/development-and-psychometric-testing-of-the-diabetes-caregiver-activity-and-support-scale
#10
Lisa J Scarton, Tamilyn Bakas, Wendy R Miller, Susan M McLennon, Lesa L Huber, Margie A Hull
Purpose The purpose of this study was to develop and psychometrically test the Diabetes Caregiver Activity and Support Scale (D-CASS), a measure of how difficult or easy caregiver activity and supportive behaviors are for family caregivers of persons with type 2 diabetes (T2DM). Methods Internal consistency reliability, test-retest reliability, criterion-related validity, and construct validity were examined in 101 family caregivers of persons with T2DM. Participants were recruited using study brochures distributed at a large hospital in the Midwest and at statewide American Indian Pow Wows...
October 2017: Diabetes Educator
https://www.readbyqxmd.com/read/28827063/beyond-simple-planning-existential-dimensions-of-conversations-with-patients-at-risk-of-dying-from-heart-failure
#11
Valerie Schulz, Allison Crombeen, Denise Marshall, Joshua Shadd, Kori LaDonna, Lorelei Lingard
INTRODUCTION: Despite the recent promotion of communication guides to improve decision-making with patients nearing the end of their lives, these conversations remain challenging. Deeper and more comprehensive understanding of communication barriers that undermine discussions and decisions with patients at risk of dying from heart failure (HF) are vital for informing communication in healthcare. OBJECTIVES: To explore experiences and perspectives of patients with advanced HF, their caregivers and providers, regarding conversations for patients at risk of dying from HF...
August 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28813238/strategies-for-building-trust-with-the-caregiver-of-a-patient-with-end-stage-dementia
#12
Helen Stanton Chapple
This case describes a patient with advanced dementia and an unrealistic spouse, presenting an apparent dilemma about nutrition for physicians. By eliciting the perspective of the caregiver, the physicians can gain insight and rebuild trust that protects the interests of both the patient and the spouse. Their goal needs to shift from resolving the professional ethical dilemma to affirming the immeasurable contribution of the caregiver, acknowledging her journey, asking for her advice, and enabling the work of making meaning in the time available...
July 1, 2017: AMA Journal of Ethics
https://www.readbyqxmd.com/read/28810439/the-impact-of-both-spousal-caregivers-and-care-recipients-health-on-relationship-satisfaction-in-the-caregiver-health-effects-study
#13
Joan K Monin, Becca Levy, Margaret Doyle, Richard Schulz, Trace Kershaw
This study examined, with a sample of older adult, caregiving couples, whether each spouse's health was associated with their own and their partner's relationship satisfaction. Dyads ( n = 233; age = 64-99 years) in the Caregiver Health Effects Study, ancillary to the Cardiovascular Health Study, reported relationship satisfaction, depressive symptoms, disability, and self-reported health. The cross-sectional Actor-Partner Interdependence Model showed that for both caregivers and care recipients, greater depressive symptoms and lower self-reported health related to lower relationship satisfaction (actor effects)...
March 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/28802929/caregiver-burden-and-the-nonmotor-symptoms-of-parkinson-s-disease
#14
Jon P Hiseman, Robin Fackrell
Parkinson's disease has traditionally been considered as primarily a motor disorder (Chaudhuri & Schapira, 2009). It is clear however that it is the burden of the nonmotor symptomatology which impacts significantly more highly on caregiver burden and quality of life (Benavides, Alberquerque, & Chana-Cuevas, 2013; Martinez-Martin, 2011). As Parkinson's disease advances there is an almost inevitable accrual of nonmotor symptoms alongside the motor aspects of the disease. Patients as their disease progresses require increasing support and this is not infrequently provided by an informal caregiver, most typically a spouse or family member (Martinez-Martin, Forjaz, Frades-Payo, et al...
2017: International Review of Neurobiology
https://www.readbyqxmd.com/read/28799427/quality-of-life-in-family-caregivers-of-schizophrenia-patients-in-spain-caregiver-characteristics-caregiving-burden-family-functioning-and-social-and-professional-support
#15
José M Ribé, Manel Salamero, Carles Pérez-Testor, Josep Mercadal, Concepción Aguilera, Margarida Cleris
OBJECTIVE: Caregivers experience physical and mental stress that ends up lowering their quality of life (QoL). Our goal was to research (a) the level of caregivers QoL; (b) the relationships between the demographic characteristics of the caregivers, their caregiving burden, their family functioning, their social and professional support and their QoL and (c) the best predictors of caregivers QoL. METHODS: 100 key caregivers (70% parents, 8% spouses, 17% siblings and 5% children) were studied using the world health organization quality of life-Bref (WHOQOL-BREF) to research their QoL, the Zarit Scale to assess their perception of their caregiving burden, the Social Network Questionnaire to examine their social support, the Family APGAR to assess the satisfaction with social support from the family and a professional support scale (Escala de Apoyo Profesional) to determine the professional support received by caregivers was performed...
August 11, 2017: International Journal of Psychiatry in Clinical Practice
https://www.readbyqxmd.com/read/28797282/who-should-take-care-of-me-preferences-of-old-age-individuals-for-characteristics-of-professional-long-term-caregivers-an-observational-cross-sectional-study
#16
André Hajek, Thomas Lehnert, Annemarie Wegener, Steffi G Riedel-Heller, Hans-Helmut König
BACKGROUND: It is most likely that the need for long-term care increases considerably in the next decades due to demographic shifts. Thus, we aimed at identifying the preferences for characteristics of professional long-term caregivers among old age individuals in Germany. METHODS: Data were gathered from a population-based survey of the German population aged 65 and above in 2015 (n = 1006). RESULTS: It was important for individuals in old age that long-term caregivers were 'empathetic, kind' (99...
August 10, 2017: BMC Research Notes
https://www.readbyqxmd.com/read/28793807/-stuck-in-a-loop-of-fear-a-phenomenological-exploration-of-carers-experiences-supporting-a-spouse-with-acquired-brain-injury
#17
Benjamin J Lond, Iain R Williamson
PURPOSE: Family caregivers are important to facilitating the rehabilitation of individuals with brain injury. However, research shows spousal carers often reporting poorer health and well-being with psychosocial challenges including increased marital dissatisfaction. This study explores the accounts of participants caring for a spouse with brain injury. MATERIALS AND METHODS: This study used semi-structured interviewing and interpretative phenomenological analysis...
August 9, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28793094/therapeutic-nursing-care-transition-in-sexuality-of-the-elderly-caregiving-spouse
#18
Claudia Feio da Maia Lima, Célia Pereira Caldas, Iraci Dos Santos, Liana Amorim Correa Trotte, Bárbara Martins Corrêa da Silva
Objective: To understand the transitions experienced, and the conditions and expected response patterns to changes in sexuality of the spouse-caregiver of the elderly, during progression of the dementia process. Method: A qualitative research study, conducted at the neurogeriatric clinic between May of 2014 and May of 2015. An intensive, individual interview was administered to 12 elderly caregivers. Thematic content analysis was applied, using the theoretical model of Transition Theory...
July 2017: Revista Brasileira de Enfermagem
https://www.readbyqxmd.com/read/28774573/quality-of-life-of-family-caregivers-of-patients-with-a-left-ventricular-assist-device-in-japan
#19
Naoko P Kato, Ikuko Okada, Yukie Kagami, Miyoko Endo, Masaru Hatano, Minoru Ono, Tiny Jaarsma, Koichiro Kinugawa
BACKGROUND: The role of caregivers is important for the successful support of left ventricular assist device (LVAD) patients. We aimed to (1) evaluate quality of life (QoL) of caregivers pre-and post-LVAD implant and (2) identify factors associated with caregivers' QoL. METHODS: The caregivers' QoL was assessed with the Short Form-8 before implant, at 3 and 6 months after LVAD implantation. The physical and mental component summary (PCS and MCS) scores were calculated...
July 31, 2017: Journal of Cardiology
https://www.readbyqxmd.com/read/28749453/mindfulness-based-stress-reduction-therapy-improves-patient-and-caregiver-reported-outcomes-in-cirrhosis
#20
Jasmohan S Bajaj, Michael Ellwood, Timothy Ainger, Thomas Burroughs, Andrew Fagan, Edith A Gavis, Douglas M Heuman, Michael Fuchs, Binu John, James B Wade
OBJECTIVES: Patient-reported outcomes such as health-related quality of life (HRQOL) are impaired in cirrhosis due to under-treated mood and sleep disorders, which can adversely impact their caregivers. Mindfulness-based stress reduction (MBSR) can improve patient-reported outcomes (PRO) in non-cirrhotic patients but their impact in cirrhosis is unclear. To evaluate the effect of MBSR and supportive group therapy on mood, sleep and HRQOL in cirrhotic patients and their caregivers. METHODS: Cirrhotic outpatients with mild depression (Beck Depression Inventory (BDI)>14) on screening with an adult caregiver were enrolled...
July 27, 2017: Clinical and Translational Gastroenterology
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