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Spouse caregivers

Annie L Nguyen, Tingjian Yan, Kathleen Ell, Jorge Gonzalez, Susan Enguidanos
OBJECTIVE: Latinos are disproportionately affected by diabetes and people with diabetes experience frequent hospital admissions and readmissions. Care transition interventions can help reduce rates of readmission; however, there are many barriers to recruiting Latinos for participation in intervention research. Exploring reasons for study refusal furthers understanding of low research participation rates to help researchers address barriers. DESIGN: This study presents a cross-sectional, descriptive analysis of reasons for study refusal and attrition drawing from data collected as part of a randomized controlled trial conducted to test the effectiveness of a transitions intervention for diabetic Latino discharged from the hospital to home...
October 21, 2016: Ethnicity & Health
Sami Y Al-Rawashdeh, Terry A Lennie, Misook L Chung
Sleep disturbance is common in patients with heart failure and their family caregivers. The purpose of this study was to determine whether sleep disturbances of patients and their spousal caregivers predicted their own and their partners' quality of life (QoL) in 78 heart failure patient-spousal caregiver dyads. Sleep disturbance was assessed using a composite score of four common sleep complaints. QoL was assessed by the physical and mental well-being subscales of the Short-Form 12 Health Survey. The multilevel dyadic actor-partner interdependence model analysis was used to determine the association between sleep disturbance and QoL...
October 6, 2016: Western Journal of Nursing Research
Michael G Ziegler, Milos Milic
PURPOSE OF REVIEW: The sympathetic nervous system (SNS) mediates short-term increases in blood pressure. Evidence that psychosocial stress leads to chronic hypertension is mixed. The SNS activation found in obstructive sleep apnea (OSA), caregiving for a severely demented spouse, and obesity more specifically address whether SNS activation might lead to the metabolic syndrome and hypertension. RECENT FINDINGS: Obesity is associated with both increased SNS electrical activity and plasma norepinephrine...
October 15, 2016: Current Opinion in Nephrology and Hypertension
Bettina Siflinger
This study explores the effects of widowhood on mental health by taking into account the anticipation and adaptation to the partner's death. The empirical analysis uses representative panel data from the USA that are linked to administrative death records of the National Death Index. I estimate static and dynamic specifications of the panel probit model in which unobserved heterogeneity is modeled with correlated random effects. I find strong anticipation effects of the partner's death on the probability of depression, implying that the partner's death event cannot be assumed to be exogenous in econometric models...
October 16, 2016: Health Economics
Marcela Moreira Lima Nogueira, Jose Pedro Simões Neto, Maria Fernanda B Sousa, Raquel L Santos, Isabel Barbeito Lacerda, Maria Alice Tourinho Baptista, Marcia Cristina Nascimento Dourado
INTRODUCTION: The onset of Alzheimer's disease (AD) affects couples' relationship. We investigated the perception of change and sexual satisfaction in spouse-caregivers and their partners diagnosed with AD. METHODS: We compared 74 dyads of people with Alzheimer's disease (PwAD)/spouse-caregivers and 21 elderly dyads control. We assessed sexual satisfaction with Questionnaire on Sexual Experience and Satisfaction (QSES), cognition using a Mini-Mental State Examination (MMSE), disease severity using a Clinical Dementia Rating scale (CDR), awareness of disease with Assessment Scale of Psychosocial Impact of the Diagnosis of Dementia (ASPIDD), functionality with Pfeffer Functional Activities Questionnaire (FAQ), depressive symptoms with Cornell Scale for Depression in Dementia (CSDD), quality of life using a Quality of Life in Alzheimer's Disease Scale (QoL-AD), and burden using a Zarit Burden Interview (ZBI)...
October 10, 2016: International Psychogeriatrics
Emilie Wawrziczny, Guillaume Berna, Francine Ducharme, Marie-Jeanne Kergoat, Florence Pasquier, Pascal Antoine
BACKGROUND: The progressive mobilization of spouse caregivers who take care of a person with dementia (PWD) can lead to situations of distress. OBJECTIVE: The current study sought to investigate the influence of the characteristics of the caregiving context on spousal caregiver distress. METHODS: 125 spousal caregivers participated in this study. The characteristics of the caregiving context were assessed using questionnaires. We examined a moderated-mediator model (Step 1) in which we hypothesized that PWD and caregiver characteristics and dyadic determinants contribute to spousal caregiver distress...
October 5, 2016: Journal of Alzheimer's Disease: JAD
Gil Goldzweig, Lea Baider, Elisabeth Andritsch, Yakir Rottenberg
AIM: Assess relationships between oldest-old (minimum 86 years) patients' perceived social support to their own and their spousal caregivers' hope through application of the actor-partner interdependence model (APIM). PATIENTS & METHODS: 58 dyads of patients and their spousal caregivers completed standardized self-report measures of depression, distress, hope and social support. RESULTS: Patients presented high distress levels. Among patients and spouses, perceived social support was positively correlated to their own level of hope (β = 0...
October 7, 2016: Future Oncology
Yakir Rottenberg, Lea Baider, Jeremy M Jacobs, Tamar Peretz, Gil Goldzweig
BACKGROUND: Experiences in caregiving may affect further coping with illness. The aim of this study was to assess mortality risk among women diagnosed with breast cancer while caring for a male spouse who had been diagnosed with cancer before or at the time of their own diagnosis. PATIENTS AND METHODS: We used a historical prospective study of a nationally representative cohort that was assessed by the Israeli Central Bureau of Statistics 1995 census and followed until 2011...
October 6, 2016: Journal of Women's Health
Shubhank Khare, Jolly Rohatgi, Manjeet Singh Bhatia, Upreet Dhaliwal
CONTEXT: Caregivers who assist persons with visual impairment often neglect their needs, resulting in burden and depression. Rehabilitation efforts, directed to the disabled, seldom target the caregiver. AIM: To assess burden and depression in persons caring for blind individuals. SETTINGS AND DESIGN: This was a cross-sectional study carried out in the outpatient department of a tertiary-level teaching hospital in New Delhi. MATERIALS AND METHODS: Institutional Ethical Board approval was obtained and written informed consent too was obtained from the participants involved in this study...
August 2016: Indian Journal of Ophthalmology
Shuai Liu, Chonghui Li, Zhihong Shi, Xiaodan Wang, Yuying Zhou, Shuling Liu, Jing Liu, Tao Yu, Yong Ji
AIM: To evaluate caregiver burden and factors that influence this burden among caregivers and patients with Alzheimer's disease in China. BACKGROUND: Long-term care can reduce the quality of life for caregivers and result in both mental and physical exhaustion. However, little is known about caregiver burden and associated factors in China. DESIGN: The study had a quantitative cross-sectional design. METHODS: A total of 309 caregivers and their patients were included in the study...
September 29, 2016: Journal of Clinical Nursing
Min Hee Kim, Ruth E Dunkle, Amanda J Lehning, Huei-Wern Shen, Sheila Feld, Angela K Perone
Framed by Pearlin's Stress Process Model, this study prospectively examines the effects of primary stress factors reflecting the duration, amount, and type of care on the depressive symptoms of spousal caregivers over a 2-year period, and whether the effects of stressors differ between husbands and wives. Data are from the 2004 and 2006 waves of the Health and Retirement Study and we included community-dwelling respondents providing activities of daily life (ADL) and/or instrumental activities of daily life (IADL) help to their spouses/partners (N = 774)...
September 27, 2016: Journal of Women & Aging
Corinne Reczek, Debra Umberson
It is well established that married heterosexual women do more intergenerational caregiving for aging parents and parents-in-law than married heterosexual men do. However, gay men and lesbian women's recent access to marriage presents new questions about the gendered marital dynamics of intergenerational caregiving. We use dyadic data with gay, lesbian, and heterosexual spouses to examine the marital dynamics of intergenerational caregivers. Results show that gay and lesbian spouses provided intensive time and emotional support for an intergenerational caregiver...
August 2016: Journal of Marriage and the Family
Kendra Peterson, Howard Hahn, Amber J Lee, Catherine A Madison, Alireza Atri
BACKGROUND: Most patients with dementia or cognitive impairment receive care from family members, often untrained for this challenging role. Caregivers may not access publicly available caregiving information, and caregiver education programs are not widely implemented clinically. Prior large surveys yielded broad quantitative understanding of caregiver information needs, but do not illuminate the in-depth, rich, and nuanced caregiver perspectives that can be gleaned using qualitative methodology...
2016: BMC Geriatrics
Nerina Vecchio, Janna A Fitzgerald, Katrina Radford, Susan Kurrle
OBJECTIVES: To identify the main drivers of the use of respite services and the need for respite services among caregivers of people experiencing dementia relative to family caregivers of people with other health conditions. METHOD: Based on nationally representative secondary data regression analysis was used to test the association between selected health conditions and the utilisation of and need for respite services. RESULTS: For a person living with dementia the odds of using respite care are higher than for a person with either a musculoskeletal or circulatory condition...
September 23, 2016: Aging & Mental Health
Linda Høgsnes, Karl-Gustaf Norbergh, Ella Danielson, Christina Melin-Johansson
BACKGROUND: Previous research describes spouses and adult children of people with dementia as a homogeneous group using one term: family caregivers. Recent research shows that the needs and experiences of spouses and adult children differ, therefore they cannot be studied as a homogeneous group. AIMS: The aim of the study was to describe the shift in existential life situations of adult children of a parent with dementia relocated to nursing homes. DESIGN: This is a qualitative study with an interpretive approach...
2016: Open Nursing Journal
Eléonore Bayen, Florence Laigle-Donadey, Myrtille Prouté, Khê Hoang-Xuan, Marie-Eve Joël, Jean-Yves Delattre
PURPOSE: Informal caregivers (ICs) provide care and improve the quality of life of patients with malignant brain tumor. We analyze the impact of their involvement on themselves from a triple perspective. METHODS: Home-dwelling patients with primary malignant brain tumor underwent a medical examination. ICs burden was evaluated by a self-administered postal questionnaire. Objective burden (Informal Care Time, ICT), subjective burden (Zarit Burden Inventory, ZBI), and financial burden (valuation of lost earnings using the Replacement and Opportunity Cost Methods, RCM, OCM) were evaluated...
September 13, 2016: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
Jean Mullins, Donna Z Bliss, Sharon Rolnick, Casey Arntson Henre, Jody Jackson
PURPOSE: The purpose of this study was to examine barriers to communicating with healthcare professionals and health literacy about incontinence among different types of informal caregivers of individuals with Alzheimer disease (AD). DESIGN: Descriptive secondary analysis. SUBJECTS AND SETTING: The sample included 48 family/friend adult caregivers of individuals who had AD. Seventy-five percent were female; their mean age was 64 ± 14 years (mean ± SD)...
September 2016: Journal of Wound, Ostomy, and Continence Nursing
Monica Rückholdt, Geoffrey H Tofler, Thomas Buckley
Evidence suggests that when an immediate family member of a spouse is hospitalised, the partner's risk of death significantly increases. Hospitalisation can represent a time of great vulnerability and imposed stress for both the patient and their family members. Family members have been reported to give priority to the welfare of their ill relative and in their heightened emotional state, often adversely put their own health at risk. The paper presents a case study highlighting how an intensive care hospitalisation and discharge to rehabilitation experience for a patient's mother triggered an episode of myocardial infarction for her adult son...
September 1, 2016: Australian Critical Care: Official Journal of the Confederation of Australian Critical Care Nurses
Ana Cristina Viana Campos, Efigênia Ferreira E Ferreira, Andréa Maria Duarte Vargas, Lúcia Hisako Takase Gonçalves
OBJECTIVE: to identify the healthy aging profile in octogenarians in Brazil. METHOD: this population-based epidemiological study was conducted using household interviews of 335 octogenarians in a Brazilian municipality. The decision-tree model was used to assess the healthy aging profile in relation to the socioeconomic characteristics evaluated at baseline. All of the tests used a p-value < 0.05. RESULTS: the majority of the 335 participating older adults were women (62...
2016: Revista Latino-americana de Enfermagem
Åsa Johansson Stark, Sanna Salanterä, Arun K Sigurdardottir, Kirsi Valkeapää, Margareta Bachrach-Lindström
BACKGROUND: Today's shorter hospital stays mean that patients may need support from informal caregivers during their recovery period. The responsibility for providing this support shifts from the healthcare staff to their family members fairly early in the recovery process. Spousal caregivers are considered to be the primary caregivers as their relationship with the patient is more interdependent than that of other family members or caregivers. OBJECTIVES: The aim was to describe spouse-related factors that were associated with patients' quality of recovery on discharge from hospital after elective hip or knee replacement...
March 17, 2016: International Journal of Orthopaedic and Trauma Nursing
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