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https://www.readbyqxmd.com/read/28101101/predictive-factors-of-rapid-cognitive-decline-in-patients-with-alzheimer-disease
#1
Coralie Barbe, Isabella Morrone, J L Novella, Moustapha Dramé, Aurore Wolak-Thierry, Jean-Pierre Aquino, Joël Ankri, Damien Jolly, Rachid Mahmoudi
AIM: To determine predictive factors associated with rapid cognitive decline (RCD) in elderly patients suffering from Alzheimer disease (AD). METHODS: Patients suffering from mild to moderate AD were included. RCD was defined as the loss of at least 3 points on the Mini-Mental State Examination (MMSE) over 12 months. Factors associated with RCD were identified by logistic regression. RESULTS: Among 123 patients included, 61 were followed up until 12 months...
September 2016: Dementia and Geriatric Cognitive Disorders Extra
https://www.readbyqxmd.com/read/28096681/the-relatives-voice-how-do-relatives-experience-participation-in-reablement-a-qualitative-study
#2
Kari Margrete Hjelle, Herdis Alvsvåg, Oddvar Førland
BACKGROUND: Reablement is an early and time-limited home-based model of rehabilitation intervention with an emphasis on intensive, goal-oriented, and multidisciplinary assistance for persons experiencing functional decline. When rehabilitation in general takes place in the person's own home, in contrast to an institution, relatives may have larger responsibilities in helping and supporting the family member. Although there is evidence, showing that family caregivers, such as spouses and children, experience burdens and demanding situations related to their caregiving role, there are currently few publications exploring relatives' experiences of participating in reablement...
2017: Journal of Multidisciplinary Healthcare
https://www.readbyqxmd.com/read/28089132/trajectories-of-mental-and-physical-functioning-among-spouse-caregivers-of-cancer-survivors-over-the-first-five-years-following-the-diagnosis
#3
Sylvie Lambert, Afaf Girgis, Joseph Descallar, Janelle V Levesque, Bobby Jones
OBJECTIVE: Identify the trajectories of physical and mental functioning among spouse caregivers of patients with cancer over the first five years post-diagnosis and variables associated with low or deteriorating functioning. METHODS: Caregivers completed a survey at 6 months and 1, 2, 3.5, and 5 years post-patient diagnosis, including the SF-12 for quality of life (QOL). SF-12 Mental Component Summary (MCS, n=299) and Physical Component Summary (PCS, n=300) scores were analyzed using SAS...
December 30, 2016: Patient Education and Counseling
https://www.readbyqxmd.com/read/28057337/caregiver-status-and-outcomes-after-durable-left-ventricular-assist-device-implantation
#4
Michael Koeckert, Patrick Vining, Alex Reyentovich, Stuart D Katz, Abe DeAnda, Stefanie Philipson, Leora B Balsam
OBJECTIVES: To determine the relationship between caregiver status and outcomes after durable left ventricular assist device (LVAD) implantation. BACKGROUND: The absence of a caregiver is a relative contraindication to durable LVAD support. METHODS: Forty-three patients that underwent primary LVAD implantation were divided into three groups: those with caregivers that retained their roles for the duration of LVAD support (CG group), those with caregivers that resigned their roles (CG-QUIT group), and those implanted without an assigned caregiver (No-CG group)...
January 2, 2017: Heart & Lung: the Journal of Critical Care
https://www.readbyqxmd.com/read/28052789/aging-filipino-domestic-workers-and-the-in-adequacy-of-retirement-provisions-in-canada
#5
Ilyan Ferrer
Although domestic work scholarship in Canada has focused primarily on the immigration/migration and labour experiences of domestic workers under the Foreign Domestic Movement and the Live-in-Caregiver Program, research is scarce on how these workers retire and consequently age in Canadian society. This article focuses on the aging experiences of retired Filipino domestic workers who, upon entering retirement, find themselves working in the secondary and/or underground economy while providing and receiving care from spouses, grandchildren, and local/transnational family members...
January 5, 2017: Canadian Journal on Aging, la Revue Canadienne du Vieillissement
https://www.readbyqxmd.com/read/28029712/caregiver-patient-and-nurse-visit-communication-patterns-in-cancer-home-hospice
#6
Maija Reblin, Margaret Clayton, Jiayun Xu, Jennifer Hulett, Seth Latimer, Gary Donaldson, Lee Ellington
OBJECTIVE: Few studies have examined the triadic communication between patients, spouse caregivers, and nurses in the home hospice setting. Thus, little is known about the types of communication patterns that unfold. The goals of the study were to first, identify common patterns of communication in home hospice nurse-patient-caregiver home hospice visits and second, to identify nurse, caregiver-patient dyad, and visit characteristics that predict visit communication patterns. METHOD: Nurses (n = 58) and hospice cancer patient and spouse caregiver dyads (n = 101; 202 individuals) were recruited from 10 hospice agencies...
December 28, 2016: Psycho-oncology
https://www.readbyqxmd.com/read/27997670/perceived-health-caregiver-burden-and-quality-of-life-in-women-partners-providing-care-to-veterans-with-traumatic-brain-injury
#7
Karen L Saban, Joan M Griffin, Amanda Urban, Marissa A Janusek, Theresa Louise-Bender Pape, Eileen Collins
Families of Veterans with traumatic brain injury (TBI) are often faced with providing long-term informal care to their loved one. However, little is known about how their perceived health and caregiving burden contribute to their quality of life (QOL). The purpose of this descriptive study was to describe perceived health, somatic symptoms, caregiver burden, and perceived QOL and to identify the extent to which these variables are associated with QOL in female partners/spouses of Veterans with TBI. Participants completed a written questionnaire including the Patient Health Questionnaire-15, Caregiver Reaction Assessment, Quality of Life Index, and the general health subscale of the 12-Item Short Form Survey version 2...
2016: Journal of Rehabilitation Research and Development
https://www.readbyqxmd.com/read/27978492/do-spouse-caregivers-of-persons-with-early-and-late-onset-dementia-cope-differently-a-comparative-study
#8
Emilie Wawrziczny, Florence Pasquier, Francine Ducharme, Marie-Jeanne Kergoat, Pascal Antoine
OBJECTIVES: To explore spouse caregivers' means of coping with the disease and compare them based on the age of onset of the disease in order to adapt support programs. METHODS: Interviews were conducted with 38 spouse caregivers of persons with late-onset dementia (PLOD) and 40 spouse caregivers of persons with early onset dementia (PEOD). The first step in the analysis was qualitative, using QSR N'Vivo 10 to identify the coping strategies. The second step was quantitative, comparing the coping strategies based on the age of onset of the disease with a χ2 test...
March 2017: Archives of Gerontology and Geriatrics
https://www.readbyqxmd.com/read/27956072/older-citizens-opinions-on-long-term-care-options-a-vignette-survey
#9
Brigitte Santos-Eggimann, Lionel Meylan
BACKGROUND: Older citizens are directly concerned, as potential beneficiaries and informal caregivers, by access to long-term care (LTC) services matching their expectations. The aim of this research was to collect their opinions regarding LTC arrangements for a diversity of disability profiles. DESIGN/SETTING/PARTICIPANTS: Mailed vignette survey in a representative population-based sample of 3133 community-dwelling persons 68 years or older residing in a Swiss region...
December 9, 2016: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/27943606/balancing-give-and-take-between-patients-and-their-spousal-caregivers-in-hematopoietic-stem-cell-transplantation
#10
Sara Beattie, Sophie Lebel, Danielle Petricone-Westwood, Keith G Wilson, Cheryl Harris, Gerald Devins, Lothar Huebsch, Jason Tay
OBJECTIVE: \Hematopoietic stem cell transplant (HSCT) is a demanding treatment. Spouses of HSCT patients assume caregiving responsibilities that can induce feelings of burden and disrupt relationship equity. Based on equity theory, we propose a conceptual framework examining the individual and dyadic experience of HSCT patients and their caregivers. The model includes feelings of inequity, patient self- perceived burden (SPB), caregiver burden and distress. METHODS: HSCT patients and their spousal caregivers were recruited prior to HSCT between March 2011 and September 2012...
December 10, 2016: Psycho-oncology
https://www.readbyqxmd.com/read/27943551/a-systematic-review-of-dyadic-studies-examining-relationship-quality-incouples-facing-colorectal-cancer-together
#11
REVIEW
Chiara Acquati, Jennifer Barsky Reese, Eli Karam, Karen Kayser, Kristen Mark, Daniela Wittmann
BACKGROUND: Despite the adverse effects that treatment for colorectal cancer can have on patients' quality of life and, in particular, their intimate relationships, very little research has been conducted on the psychosocial adjustment for both patients and their partners/spouses. OBJECTIVES: The aim of this systematic review was to examine dyadic studies of adjustment in couples in which one partner has been diagnosed with colorectal cancer. METHODS: Pub Med, PsychINFO, MEDLINE, Social Sciences Abstracts (EBSCO) and the Cochrane Library were systematically searched for studies reporting quality of life outcomes for colorectal cancer patients and their partners/spouses...
December 10, 2016: Psycho-oncology
https://www.readbyqxmd.com/read/27937437/new-frontiers-in-couple-based-interventions-in-cancer-care-refining-the-prescription-for-spousal-communication
#12
Hoda Badr
BACKGROUND: The diagnosis and treatment of cancer is a life-altering experience that signals profound changes in a person's life. However, most people do not experience cancer in isolation or cope alone. Despite the fact that partners (i.e. spouses, significant others) provide emotional support and play a critical role in caregiving, cancer exacts a heavy toll on them and challenges their relationship with the patient by altering established communication patterns and roles. In recognition of this, a burgeoning literature involving couple-based interventions to improve patient and partner quality of life and adaptation has emerged...
December 12, 2016: Acta Oncologica
https://www.readbyqxmd.com/read/27928511/latino-hispanic-alzheimer-s-caregivers-experiencing-dementia-related-dressing-issues-corroboration-of-the-preservation-of-self-model-and-reactions-to-a-smart-dresser-computer-based-dressing-aid
#13
Diane Feeney Mahoney, David W Coon, Cecil Lozano
OBJECTIVE: To gain an understanding of Latino/Hispanic caregivers' dementia-related dressing issues, their impressions of using a "smart" context-aware dresser to coach dressing, and recommendations to improve its acceptability. METHOD: The same Latina moderator conducted all the caregiver focus groups. She followed a semi-structured interview guide that was previously used with White and African American family caregivers who experienced Alzheimer's disease related dressing challenges...
November 2016: Digit Health
https://www.readbyqxmd.com/read/27927746/the-association-between-informal-caregiving-and-exit-from-employment-among-older-workers-prospective-findings-from-the-uk-household-longitudinal-study
#14
Ewan Carr, Emily T Murray, Paola Zaninotto, Dorina Cadar, Jenny Head, Stephen Stansfeld, Mai Stafford
OBJECTIVE: This study investigated associations between informal caregiving and exit from paid employment among older workers in the United Kingdom. METHOD: Information on caregiving and work status for 8,473 older workers (aged 50-75 years) was drawn from five waves of Understanding Society (2009-2014). We used discrete-time survival models to estimate the associations of caring intensity and type on the probability of exiting paid work (from >0 to 0 hours/week) in the following year...
December 7, 2016: Journals of Gerontology. Series B, Psychological Sciences and Social Sciences
https://www.readbyqxmd.com/read/27923553/anxiety-and-depression-in-caregivers-of-individuals-with-celiac-disease-a-population-based-study
#15
Jonas F Ludvigsson, Abhik Roy, Benjamin Lebwohl, Peter H R Green, Louise Emilsson
BACKGROUND & AIMS: Partner burden is common in celiac disease (CD), but it is unclear if parents of children with CD have increased burden, and if this may translate into depression and anxiety meriting healthcare. METHODS: Nationwide population-based study of 41,753 parents and spouses ("caregivers") to 29,096 celiac patients and 215,752 caregivers to 144,522 matched controls. Caregivers were identified from the Swedish Total Population Register, and linked to data on psychiatric disease in the National Patient Registry...
November 16, 2016: Digestive and Liver Disease
https://www.readbyqxmd.com/read/27914296/gender-differences-in-primary-home-caregivers-of-older-relatives-in-a-mediterranean-environment-a-cross-sectional-study
#16
Rafael Del-Pino-Casado, María Del Mar Pastor-Bravo, Pedro A Palomino-Moral, Antonio Frías-Osuna
A cross-sectional study was developed in Spain to analyse gender differences in intensity of care, care recipient needs and subjective burden, as well as the moderating effects of kinship on the relationship between gender and subjective burden. A probabilistic sample of 200 primary caregivers (100 male and 100 female) of older relatives was interviewed by expert nurses. Socio-demographic data and several scales regarding objective and subjective burden were used to collect data. Descriptive statistics, Student's t-test, ANOVA and multiple linear regression were used to analyse the data...
March 2017: Archives of Gerontology and Geriatrics
https://www.readbyqxmd.com/read/27909070/informal-caregiving-and-intimate-relationships-the-experiences-of-spouses-of-uk-military-personnel
#17
Gursimran Thandi, S Oram, A Verey, N Greenberg, N T Fear
AIM: Currently, there is no research available on the experiences of spouses providing informal care to wounded, injured or sick (WIS) UK military personnel. The aim of this study was to fill this gap by investigating the relationship experiences of non-military partners caring for WIS UK military personnel. METHODS: Spouses of WIS military personnel (n=25) completed telephone interviews with the research team. The data were transcribed and analysed using thematic analysis...
December 1, 2016: Journal of the Royal Army Medical Corps
https://www.readbyqxmd.com/read/27893951/events-leading-to-hospital-related-disenrollment-of-home-hospice-patients-a-study-of-primary-caregivers-perspectives
#18
Veerawat Phongtankuel, Shawn Paustian, Manney Carrington Reid, Amanda Finley, Angela Martin, John Delfs, Rosemary Baughn, Ronald D Adelman
BACKGROUND: Approximately 25% of hospice disenrollments in the United States occur as the result of hospitalization, which can lead to burdensome transitions and undesired care. Informal caregivers (e.g., spouses, children) play a critical role in caring for patients on home hospice. Research examining hospital-related disenrollment among these patients is limited. OBJECTIVE: To understand the events surrounding the hospitalization of patients discharged from home hospice through the perspective of their informal caregivers...
November 28, 2016: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/27889827/the-effect-of-routine-training-on-the-self-efficacy-of-informal-caregivers-of-colorectal-cancer-patients
#19
Rachel D Havyer, Michelle van Ryn, Patrick M Wilson, Joan M Griffin
PURPOSE: Little is known about the degree to which caregiver training as part of routine clinical care influences caregiver self-efficacy. The objective of this study was to examine the relationship between training during routine clinical cancer care and self-efficacy among caregivers of colorectal cancer patients. METHODS: Caregivers completed a self-administered questionnaire about their experiences with training for specific patient problems and about their task-specific and general caregiving self-efficacy...
November 26, 2016: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/27885069/exploring-family-stigma-among-caregivers-of-persons-with-alzheimer-s-disease-the-experiences-of-israeli-arab-caregivers
#20
Hanan Abojabel, Perla Werner
Providing care to persons with Alzheimer's disease poses challenges for spouses and adult children, including experiencing stigmatic beliefs towards themselves-i.e., family stigma. Drawing on the frameworks of ethnicity and stigma and ethnicity and dementia, the current study explored stigmatic experiences among Israeli Arab family caregivers of a person with Alzheimer's disease. Three focus groups with 20 caregivers (adult children and spouses) of persons with Alzheimer's disease were conducted. Data were analyzed using theory-led thematic analysis...
November 24, 2016: Dementia
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