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https://www.readbyqxmd.com/read/28813238/strategies-for-building-trust-with-the-caregiver-of-a-patient-with-end-stage-dementia
#1
Helen Stanton Chapple
This case describes a patient with advanced dementia and an unrealistic spouse, presenting an apparent dilemma about nutrition for physicians. By eliciting the perspective of the caregiver, the physicians can gain insight and rebuild trust that protects the interests of both the patient and the spouse. Their goal needs to shift from resolving the professional ethical dilemma to affirming the immeasurable contribution of the caregiver, acknowledging her journey, asking for her advice, and enabling the work of making meaning in the time available...
July 1, 2017: AMA Journal of Ethics
https://www.readbyqxmd.com/read/28810439/the-impact-of-both-spousal-caregivers-and-care-recipients-health-on-relationship-satisfaction-in-the-caregiver-health-effects-study
#2
Joan K Monin, Becca Levy, Margaret Doyle, Richard Schulz, Trace Kershaw
This study examined, with a sample of older adult, caregiving couples, whether each spouse's health was associated with their own and their partner's relationship satisfaction. Dyads ( n = 233; age = 64-99 years) in the Caregiver Health Effects Study, ancillary to the Cardiovascular Health Study, reported relationship satisfaction, depressive symptoms, disability, and self-reported health. The cross-sectional Actor-Partner Interdependence Model showed that for both caregivers and care recipients, greater depressive symptoms and lower self-reported health related to lower relationship satisfaction (actor effects)...
March 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/28802929/caregiver-burden-and-the-nonmotor-symptoms-of-parkinson-s-disease
#3
Jon P Hiseman, Robin Fackrell
Parkinson's disease has traditionally been considered as primarily a motor disorder (Chaudhuri & Schapira, 2009). It is clear however that it is the burden of the nonmotor symptomatology which impacts significantly more highly on caregiver burden and quality of life (Benavides, Alberquerque, & Chana-Cuevas, 2013; Martinez-Martin, 2011). As Parkinson's disease advances there is an almost inevitable accrual of nonmotor symptoms alongside the motor aspects of the disease. Patients as their disease progresses require increasing support and this is not infrequently provided by an informal caregiver, most typically a spouse or family member (Martinez-Martin, Forjaz, Frades-Payo, et al...
2017: International Review of Neurobiology
https://www.readbyqxmd.com/read/28799427/quality-of-life-in-family-caregivers-of-schizophrenia-patients-in-spain-caregiver-characteristics-caregiving-burden-family-functioning-and-social-and-professional-support
#4
José M Ribé, Manel Salamero, Carles Pérez-Testor, Josep Mercadal, Concepción Aguilera, Margarida Cleris
OBJECTIVE: Caregivers experience physical and mental stress that ends up lowering their quality of life (QoL). Our goal was to research (a) the level of caregivers QoL; (b) the relationships between the demographic characteristics of the caregivers, their caregiving burden, their family functioning, their social and professional support and their QoL and (c) the best predictors of caregivers QoL. METHODS: 100 key caregivers (70% parents, 8% spouses, 17% siblings and 5% children) were studied using the world health organization quality of life-Bref (WHOQOL-BREF) to research their QoL, the Zarit Scale to assess their perception of their caregiving burden, the Social Network Questionnaire to examine their social support, the Family APGAR to assess the satisfaction with social support from the family and a professional support scale (Escala de Apoyo Profesional) to determine the professional support received by caregivers was performed...
August 11, 2017: International Journal of Psychiatry in Clinical Practice
https://www.readbyqxmd.com/read/28797282/who-should-take-care-of-me-preferences-of-old-age-individuals-for-characteristics-of-professional-long-term-caregivers-an-observational-cross-sectional-study
#5
André Hajek, Thomas Lehnert, Annemarie Wegener, Steffi G Riedel-Heller, Hans-Helmut König
BACKGROUND: It is most likely that the need for long-term care increases considerably in the next decades due to demographic shifts. Thus, we aimed at identifying the preferences for characteristics of professional long-term caregivers among old age individuals in Germany. METHODS: Data were gathered from a population-based survey of the German population aged 65 and above in 2015 (n = 1006). RESULTS: It was important for individuals in old age that long-term caregivers were 'empathetic, kind' (99...
August 10, 2017: BMC Research Notes
https://www.readbyqxmd.com/read/28793807/-stuck-in-a-loop-of-fear-a-phenomenological-exploration-of-carers-experiences-supporting-a-spouse-with-acquired-brain-injury
#6
Benjamin J Lond, Iain R Williamson
PURPOSE: Family caregivers are important to facilitating the rehabilitation of individuals with brain injury. However, research shows spousal carers often reporting poorer health and well-being with psychosocial challenges including increased marital dissatisfaction. This study explores the accounts of participants caring for a spouse with brain injury. MATERIALS AND METHODS: This study used semi-structured interviewing and interpretative phenomenological analysis...
August 9, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28793094/therapeutic-nursing-care-transition-in-sexuality-of-the-elderly-caregiving-spouse
#7
Claudia Feio da Maia Lima, Célia Pereira Caldas, Iraci Dos Santos, Liana Amorim Correa Trotte, Bárbara Martins Corrêa da Silva
Objective: To understand the transitions experienced, and the conditions and expected response patterns to changes in sexuality of the spouse-caregiver of the elderly, during progression of the dementia process. Method: A qualitative research study, conducted at the neurogeriatric clinic between May of 2014 and May of 2015. An intensive, individual interview was administered to 12 elderly caregivers. Thematic content analysis was applied, using the theoretical model of Transition Theory...
July 2017: Revista Brasileira de Enfermagem
https://www.readbyqxmd.com/read/28774573/quality-of-life-of-family-caregivers-of-patients-with-a-left-ventricular-assist-device-in-japan
#8
Naoko P Kato, Ikuko Okada, Yukie Kagami, Miyoko Endo, Masaru Hatano, Minoru Ono, Tiny Jaarsma, Koichiro Kinugawa
BACKGROUND: The role of caregivers is important for the successful support of left ventricular assist device (LVAD) patients. We aimed to (1) evaluate quality of life (QoL) of caregivers pre-and post-LVAD implant and (2) identify factors associated with caregivers' QoL. METHODS: The caregivers' QoL was assessed with the Short Form-8 before implant, at 3 and 6 months after LVAD implantation. The physical and mental component summary (PCS and MCS) scores were calculated...
July 31, 2017: Journal of Cardiology
https://www.readbyqxmd.com/read/28749453/mindfulness-based-stress-reduction-therapy-improves-patient-and-caregiver-reported-outcomes-in-cirrhosis
#9
Jasmohan S Bajaj, Michael Ellwood, Timothy Ainger, Thomas Burroughs, Andrew Fagan, Edith A Gavis, Douglas M Heuman, Michael Fuchs, Binu John, James B Wade
OBJECTIVES: Patient-reported outcomes such as health-related quality of life (HRQOL) are impaired in cirrhosis due to under-treated mood and sleep disorders, which can adversely impact their caregivers. Mindfulness-based stress reduction (MBSR) can improve patient-reported outcomes (PRO) in non-cirrhotic patients but their impact in cirrhosis is unclear. To evaluate the effect of MBSR and supportive group therapy on mood, sleep and HRQOL in cirrhotic patients and their caregivers. METHODS: Cirrhotic outpatients with mild depression (Beck Depression Inventory (BDI)>14) on screening with an adult caregiver were enrolled...
July 27, 2017: Clinical and Translational Gastroenterology
https://www.readbyqxmd.com/read/28737120/psychometric-properties-of-the-perceived-stress-scale-in-a-sample-of-german-dementia-patients-and-their-caregivers
#10
Friederike Deeken, Andreas Häusler, Johanna Nordheim, Michael Rapp, Nina Knoll, Nina Rieckmann
BACKGROUND: The aim of the present study was to investigate the psychometric characteristics of the Perceived Stress Scale (PSS) in a sample of dementia patients and their spousal caregivers. METHODS: We investigated the reliability and validity of the 14-item PSS in a sample of 80 couples, each including one spouse who had been diagnosed with mild to moderate dementia (mean age 75.55, SD = 5.85, 38.7% female) and one spousal caregiver (mean age 73.06, SD = 6.75, 61...
July 24, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28727892/end-of-life-experiences-of-family-caregivers-of-deceased-patients-with-cancer-a-nation-wide-survey
#11
Kayo Hirooka, Hiroyuki Otani, Tatsuya Morita, Tomofumi Miura, Hiroki Fukahori, Maho Aoyama, Yoshiyuki Kizawa, Yasuo Shima, Satoru Tsuneto, Mitsunori Miyashita
OBJECTIVES: The purpose of this study was (1) to describe the end-of-life experience of family caregivers of cancer patients, (2) to describe talking about death and dying of the patient to minor children, and (3) to examine the association of family caregivers' experiences by their characteristics and talking about death and dying of the patient. METHODS: A cross-sectional nationwide survey of bereaved family caregivers was conducted. In total, 968 questionnaires were sent to bereaved family caregivers, and 711 were completed and returned...
July 20, 2017: Psycho-oncology
https://www.readbyqxmd.com/read/28721677/the-pervasive-nature-of-uncertainty-a-qualitative-study-of-patients-with-advanced-cancer-and-their-informal-caregivers
#12
Valerie Shilling, Rachel Starkings, Valerie Jenkins, Lesley Fallowfield
PURPOSE: The aim of this study was to explore the impact of extended cancer survival on broader aspects of life and wellbeing such as occupational, financial and family life for patients with advanced cancer and their nominated informal caregivers. METHODS: In-depth qualitative interviews were transcribed verbatim. A thematic framework was developed from an initial process of open coding and tested iteratively as new data were collected. RESULTS: Twenty-four patient-caregiver dyads with advanced ovarian (9), melanoma (9) or lung cancer (6)...
July 18, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28719225/association-between-social-support-and-self-care-behaviors-in-adults-with-chronic-obstructive-pulmonary-disease
#13
Zijing Chen, Vincent S Fan, Basia Belza, Kenneth Pike, Huong Q Nguyen
RATIONALE: Higher social support is associated with a better quality of life and functioning in adults with chronic obstructive pulmonary disease (COPD). OBJECTIVES: To determine the association between structural and functional social support and self-care behaviors in adults with COPD. METHODS: This was a longitudinal study using data from the CASCADE (COPD Activity: Serotonin Transporter, Cytokines, and Depression) study which was focused on depression and functioning in COPD...
July 18, 2017: Annals of the American Thoracic Society
https://www.readbyqxmd.com/read/28706171/-hermeneutic-phenomenological-study-on-caring-experience-of-spouses-of-elderly-people-with-dementia-at-home
#14
Hye Young Jang, Myungsun Yi
PURPOSE: This study aimed to understand and describe the caring experiences of spouses of elderly people with dementia. METHODS: The hermeneutic phenomenological method was used and participants were 12 spouses aged 65 and over who were taking care of their husbands or wives with dementia at home. Data were collected from individual in-depth interviews on participants' actual caring experiences. Additionally, novels, movies, and memoirs on elderly couples with partner who had dementia were included as data for the analysis...
June 2017: Journal of Korean Academy of Nursing
https://www.readbyqxmd.com/read/28693410/staying-married-after-stroke-a-constructivist-grounded-theory-qualitative-study
#15
Sharon Anderson, Norah C Keating, Donna M Wilson
BACKGROUND: Marriages are one of the most powerful predictors of health and longevity, yet research in stroke has focused separately on survivors' experience of impairments and how spouses deal with caregiving. OBJECTIVES: The purpose of this constructivist grounded theory study was to understand the key themes related to reconstruction or breakdown of marriages after stroke. METHODS: In semi-structured interviews, 18 couples in long-term marriages discussed how their marriages were reconstructed or broke down after one member of the couple returned home after being hospitalized for a stroke...
July 10, 2017: Topics in Stroke Rehabilitation
https://www.readbyqxmd.com/read/28677123/the-influence-of-chinese-culture-on-family-caregivers-of-stroke-survivors-a-qualitative-study
#16
Olivia Xichenhui Qiu, Janet W H Sit, Fung Kuen Koo
BACKGROUND: Previous research has indicated that culture can have a significant impact on the stroke caregiving experience. Moreover, scant research exists on stroke caregivers' experience within the Chinese culture. AIMS: The present study aims to explore and describe the caregiving experiences of Chinese stroke caregivers. DESIGN: A qualitative descriptive design was used. METHODS: In-depth, semi-structured interviews were conducted with 25 family caregivers of stroke survivors...
July 5, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/28657641/life-satisfaction-in-spouses-of-stroke-survivors-and-control-subjects-a-7-year-follow-up-of-participants-in-the-sahlgrenska-academy-study-on-ischaemic-stroke
#17
Tamar Abzhandadze, Gunilla Forsberg-Wärleby, Lukas Holmegaard, Petra Redfors, Christina Jern, Christian Blomstrand, Katarina Jood
OBJECTIVE: To investigate life satisfaction in spouses of middle-aged stroke survivors from the long-term perspective and to identify factors that explain their life satisfaction. DESIGN: Cross-sectional, case-control study. SUBJECTS: Cohabitant spouses of survivors of ischaemic stroke aged < 70 years at stroke onset (n = 248) and spouses of controls (n = 246). METHODS: Assessments were made 7 years after inclusion to the study...
June 28, 2017: Journal of Rehabilitation Medicine
https://www.readbyqxmd.com/read/28652082/medical-care-activities-among-spouses-of-older-adults-with-functional-disability-implications-for-caregiving-difficulties-and-gains
#18
Courtney A Polenick, Amanda N Leggett, Helen C Kales
OBJECTIVES: Spouses of older adults with functional disability often provide help with their partner's medical care. Yet little is known about the implications of these activities for spouses' caregiving experiences. We examined how spouses' medical care activities are linked to both positive and negative aspects of caregiving (difficulties and gains), and whether these associations vary by their age, gender, or education. DESIGN: Retrospective analysis of data from the 2011 National Health and Aging Trends Study and National Study of Caregiving cross-sectional studies...
May 4, 2017: American Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/28637329/health-benefits-associated-with-three-helping-behaviors-evidence-for-incident-cardiovascular-disease
#19
Jeffrey A Burr, Saehwang Han, Hyo Jung Lee, Jane L Tavares, Jan E Mutchler
Objective: The purpose of this study was to investigate the association between three helping behaviors and incident cardiovascular disease (CVD; heart attack, stroke; fatal and nonfatal), with an exploration of gender differences. The study is framed within the caregiving system model. Helping others is argued to be an evolved characteristic of humans that yields beneficial health effects. Methods: Data were taken from the 2004-2014 waves of the Health and Retirement Study...
June 16, 2017: Journals of Gerontology. Series B, Psychological Sciences and Social Sciences
https://www.readbyqxmd.com/read/28637290/a-bright-side-to-the-work-family-interface-husbands-support-as-a-resource-in-double-and-triple-duty-caregiving-wives-work-lives
#20
Nicole DePasquale, Courtney A Polenick, Kelly D Davis, Lisa F Berkman, Thomas D Cabot
Purpose of the Study: This study examined how women who combine long-term care employment with unpaid, informal caregiving roles for children (double-duty-child caregivers), older adults (double-duty-elder caregivers), and both children and older adults (triple-duty caregivers) differed from their workplace-only caregiving counterparts on workplace factors related to job retention (i.e., job satisfaction and turnover intentions) and performance (i.e., perceived obligation to work while sick and emotional exhaustion)...
June 16, 2017: Gerontologist
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