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https://www.readbyqxmd.com/read/28524377/to-be-or-not-to-be-a-caregiver-s-question-the-lived-experience-of-a-stroke-family-during-the-first-18-months-poststroke
#1
Cheryl L Olivier, Jill Phillips, Dianne E Roy
BACKGROUND: Disability following a stroke often requires family, commonly a spouse, to provide care enabling the stroke survivor to return home. Immediate or extended family and friends may help provide direct care or support the primary caregiver. While family members share the common stroke experience, this is lived within the context of separate lives. Research examining the individual nuances, roles and contribution of family and/or friends forming part of collective stroke networks, has largely been overlooked...
May 19, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28506018/return-to-work-predictors-of-stroke-survivors-and-their-spousal-caregivers
#2
Celia H Schulz, Kyler M Godwin, Gayle I Hersch, Leslie K Hyde, Jocelyn J Irabor, Sharon K Ostwald
BACKGROUND: Return to work is an issue of concern for stroke survivors and their spouses. Ramifications may include loss of income and self-efficacy. OBJECTIVE: This study describes the return to work patterns of stroke survivors and their spousal caregivers post stroke. METHODS: One hundred fifty-nine dyads were examined for their return to work patterns at baseline (post hospital discharge) and then at 3 month intervals for one year. Relationships were determined between work and gender, age, ethnicity, education, type of insurance, type of stroke, location of stroke, motor and cognitive functional status, depression, mutuality, and life satisfaction...
May 6, 2017: Work: a Journal of Prevention, Assessment, and Rehabilitation
https://www.readbyqxmd.com/read/28503652/experiences-of-caregivers-with-spouses-receiving-chemotherapy-for-colorectal-cancer-and-their-expectations-from-nursing-services
#3
Ayse Cal, Ilknur Aydin Avci, Figen Cavusoglu
OBJECTIVE: The purpose of this study was to reveal experiences of caregivers whose spouses were receiving chemotherapy for colorectal cancer and their expectations from nursing services. METHODS: This is a qualitative study. The caregivers were interviewed at their home. Sampling criteria were volunteering to participate in the study, being able to understand Turkish, not having speech or hearing problems and offering care to spouses with primary colorectal cancer...
April 2017: Asia-Pacific Journal of Oncology Nursing
https://www.readbyqxmd.com/read/28483100/caregiver-burden-in-alzheimer-type-dementia-and-psychosis-a-comparative-study-from-india
#4
P Sinha, N G Desai, O Prakash, S Kushwaha, C B Tripathi
BACKGROUND: Caregiver burden in dementia is an important area of research. Providing care for a relative can be a potent source of chronic stress and can have deleterious consequences for both the physical and emotional health of caregivers. This study aims to evaluate the burden of care in caregivers of patients with Alzheimer-type dementia and compare it with elderly psychosis; and to also study the factors that influence burden of care in Alzheimer's dementia. METHODS: Thirty-two caregiver-patient dyads of Alzheimer-type dementia were compared with thirty-two caregiver-patient dyads of psychosis...
April 2017: Asian Journal of Psychiatry
https://www.readbyqxmd.com/read/28482111/conditional-adaptive-bayesian-spectral-analysis-of-nonstationary-biomedical-time-series
#5
Scott A Bruce, Martica H Hall, Daniel J Buysse, Robert T Krafty
Many studies of biomedical time series signals aim to measure the association between frequency-domain properties of time series and clinical and behavioral covariates. However, the time-varying dynamics of these associations are largely ignored due to a lack of methods that can assess the changing nature of the relationship through time. This article introduces a method for the simultaneous and automatic analysis of the association between the time-varying power spectrum and covariates, which we refer to as conditional adaptive Bayesian spectrum analysis (CABS)...
May 8, 2017: Biometrics
https://www.readbyqxmd.com/read/28481778/the-relationship-between-body-image-gender-subjective-norms-and-the-decision-to-undergo-preventive-mastectomy-among-arab-and-jewish-brca-carriers
#6
Majeda Kardosh, Yoram Bar-Tal, Sivia Barnoy
BACKGROUND: Carriers for a mutation in BRCA1/2 genes have a high, lifelong risk for developing breast cancer. Preventive mastectomy is considered an effective risk reduction surgery. Many factors might affect the decision to undergo preventive mastectomy, including culture, perceived body image after mastectomy and important others opinion. OBJECTIVE: The aim of this study is to evaluate BRCA mutation carriers' decision to undergo preventive mastectomy and the relationship between culture, gender, body image, and the decision...
May 5, 2017: Cancer Nursing
https://www.readbyqxmd.com/read/28481652/when-a-parent-suffers-abi-investigation-of-emotional-distress-in-children
#7
A Redolfi, G Bartolini, M Gugliotta, A Maietti, P Pietrapiana, S Sapienza, A D'Amato, A Mazzucchi
PRIMARY OBJECTIVE: To investigate the type of emotional and behavioural impact that having a parent with a severe acquired brain injury (ABI) has on children during the first period of adjustment. METHODS AND PROCEDURE: The study involved 25 couples in which one of the spouses was affected by ABI, and their 35 children (3-14 years). The children attended three sessions with a psychologist aimed at identifying their spontaneous playing and relational behaviour by means of a grid created on the basis of ICD-10 criteria...
May 8, 2017: Brain Injury: [BI]
https://www.readbyqxmd.com/read/28452643/the-effects-of-the-more-wisdom-resources-on-spousal-caregivers-life-satisfaction-an-application-of-the-resilience-model
#8
Seungyoun Kim, Bob G Knight
OBJECTIVES: Models of resilience suggest that psychosocial resources and their interactions facilitate resilience while experiencing life challenges of caregiving. The MORE wisdom resources (sense of Mastery, Openness to experience, Reflective attitude, and Emotion regulation) have been suggested as possible personal resources of resilience that predict positive health outcomes of caregivers. Applying a model of resilience, this study examined the direct and indirect effects of the three of the MORE wisdom resources (sense of Mastery, Openness to experience, and Emotion regulation) on caregiving spouses' life satisfaction and perceived physical health...
July 7, 2016: Clinical Gerontologist
https://www.readbyqxmd.com/read/28448998/efficacy-safety-and-tolerability-of-armodafinil-therapy-for-hypersomnia-associated-with-dementia-with-lewy-bodies-a-pilot-study
#9
Maria I Lapid, Karen M Kuntz, Sara S Mason, Jeremiah A Aakre, Emily S Lundt, Walter Kremers, Laura A Allen, Daniel A Drubach, Bradley F Boeve
BACKGROUND/AIMS: Hypersomnia is common in dementia with Lewy bodies (DLB). We assessed the efficacy, safety, and tolerability of armodafinil for hypersomnia associated with DLB. METHODS: We performed a 12-week pilot trial of armodafinil therapy (125-250 mg orally daily) in DLB outpatients with hypersomnia. The patients underwent neurologic examinations, a neuropsychological battery, laboratory testing, electrocardiography, and polysomnography. Efficacy was assessed at 2, 4, 8, and 12 weeks...
April 28, 2017: Dementia and Geriatric Cognitive Disorders
https://www.readbyqxmd.com/read/28448374/characteristics-and-correlates-of-caregivers-perceptions-of-their-family-members-memory-loss
#10
Hairong Yu, Jennifer H Lingler, Susan M Sereika, Judith A Erlen
BACKGROUND: Understanding caregiver's perceptions of their family member's memory loss is a necessary step in planning nursing interventions to detect and address caregiver burden. OBJECTIVE: The purpose of this study was to characterize caregivers' perceptions of their family members' memory loss and identify potential correlates within Leventhal's common sense model (CSM). METHODS: This secondary analysis used baseline data from a larger randomized controlled trial...
May 2017: Nursing Research
https://www.readbyqxmd.com/read/28447879/the-lived-experience-of-caregivers-of-persons-with-heart-failure-a-phenomenological-study
#11
Antonio Petruzzo, Marco Paturzo, Monica Naletto, Marlene Z Cohen, Rosaria Alvaro, Ercole Vellone
BACKGROUND: Heart failure (HF) patients need to follow a strict pharmacological and nonpharmacological regimen in order to counteract the burden of the disease, and informal caregivers are an important resource for HF patients in managing and coping with their disease. Few studies have examined the lived experience of these caregivers with a rigorous phenomenological approach, and none have been conducted in Italy. AIM: To describe the lived experience of the caregivers of HF patients...
April 1, 2017: European Journal of Cardiovascular Nursing
https://www.readbyqxmd.com/read/28412599/group-intervention-for-individuals-with-primary-progressive-aphasia-and-their-spouses-who-comes-first
#12
Regina Jokel, Jed Meltzer, J D R, L D M, J J C, E A N, C D T
Primary progressive aphasia (PPA) is a neurodegenerative dementia in which language impairment is the first and most dominant symptom. There is a considerable dearth of interventions for PPA although language rehabilitation has made headway in managing the disorder. Thus far, no comprehensive services have been proposed for PPA clients and/or their spouses. This paper describes the first structured group intervention program designated exclusively for people with PPA and their caregivers. This pilot project originates from a clinical service and presents supporting evidence for initiation of a larger study to establish an evidence-based intervention for PPA...
April 9, 2017: Journal of Communication Disorders
https://www.readbyqxmd.com/read/28395276/lower-visual-avoidance-in-dementia-patients-is-associated-with-greater-psychological-distress-in-caregivers
#13
Marcela C Otero, Robert W Levenson
Caring for a spouse with dementia can lead to increased health problems in caregivers. The present study examined whether patient deficits in visual avoidance, a common form of emotion regulation, are related to greater psychological distress in caregivers. Participants were 43 Alzheimer disease (AD) patients, 43 behavioral variant frontotemporal dementia (bvFTD) patients, and their spousal caregivers. Patient visual avoidance (e.g., gaze aversion) was measured using behavioral coding of head, body, and eye position while viewing a disgusting film...
April 11, 2017: Dementia and Geriatric Cognitive Disorders
https://www.readbyqxmd.com/read/28394175/early-morning-functional-impairments-in-stimulant-treated-children-with-attention-deficit-hyperactivity-disorder-versus-controls-impact-on-the-family
#14
Stephen V Faraone, Russell J Schachar, Russell A Barkley, Rick Nullmeier, F Randy Sallee
OBJECTIVE: Children with attention-deficit/hyperactivity disorder (ADHD) frequently manifest early morning functional (EMF) impairments before school. We conducted a quantitative research survey to assess the impact of these EMF impairments on the family unit (caregiver, spouse/partner, and siblings). STUDY DESIGN: We developed an online survey questionnaire to collect data from 300 primary caregivers of children with ADHD and 50 primary caregivers of children who did not have ADHD...
April 10, 2017: Journal of Child and Adolescent Psychopharmacology
https://www.readbyqxmd.com/read/28380708/accuracy-of-caregiver-proxy-reports-of-home-care-service-use
#15
Neena L Chappell, Helena Kadlec
Although much of the research on service use by older adults with dementia relies on proxy reports by informal caregivers, little research assesses the accuracy of these reports, and that which does exist, does not focus on home care services. This brief report compares proxy reports by family caregivers to those with dementia with provincial Ministry of Health records collected for payment and monitoring. The four home care services examined include home nursing care, adult day care, home support, and respite care...
December 1, 2016: Journal of Applied Gerontology: the Official Journal of the Southern Gerontological Society
https://www.readbyqxmd.com/read/28369622/functional-status-cognition-and-social-relationships-in-dyadic-perspective
#16
Jaclyn S Wong, Ning Hsieh
Objectives: Health limitations can change older adults' social relationships and social engagement. Yet, researchers rarely examine how the disability of one's spouse might affect one's social relationships, even though such life strains are often experienced as a couple. This study investigates the association between functional and cognitive limitations and social experience in a dyadic context. Method: We use actor-partner interdependence models to analyze the partner data from 953 heterosexual couples in Wave II (2010-2011) of the National Social Life, Health, and Aging Project...
March 28, 2017: Journals of Gerontology. Series B, Psychological Sciences and Social Sciences
https://www.readbyqxmd.com/read/28363700/caregivers-do-they-make-a-difference-to-patient-recovery-in-subacute-stroke
#17
Peck-Hoon Ong, Bee-Choo Tai, Wai-Pong Wong, Liang En Wee, Cynthia Chen, Angela Cheong, Ngan Phoon Fong, Kin Ming Chan, Boon Yeow Tan, Edward Menon, Kok Keng Lee, Chye Hua Ee, Robert Petrella, Amardeep Thind, Gerald Choon-Huat Koh
OBJECTIVE: To evaluate the relationship between caregiver nature and availability, and rehabilitation outcomes in subacute stroke. DESIGN: Retrospective cohort study. SETTING: Four community rehabilitation hospitals in Singapore. PARTICIPANTS: Subacute, first-time stroke patients (N=4,042; 48.5% men, mean age ±SD 70.12±10.4y; and 51.5% women, mean age ±SD 72.54 ±10.0y). INTERVENTION: Not applicable MAIN OUTCOME MEASURES: Rehabilitation effectiveness (R-effectiveness), defined as percentage of potential improvement eventually achieved with rehabilitation; and rehabilitation efficiency (R-efficiency), defined as rate of functional improvement during rehabilitation...
March 28, 2017: Archives of Physical Medicine and Rehabilitation
https://www.readbyqxmd.com/read/28349856/older-adult-spouses-with-multiple-chronic-conditions-challenges-rewards-and-coping-strategies
#18
Shelley Peacock, Bharati Sethi, Allison Williams, Wendy Duggleby, Melanie Bayly, Jenny Swindle, Jenny Ploeg, Maureen Markle-Reid
There is a paucity of research exploring how spouses to older adults with multiple chronic conditions make meaning of their caregiving experience. For this study, we asked: What is the experience of spousal caregivers to persons with multiple chronic conditions? We applied Thorne's interpretive description approach, interviewing 18 spouses who provided a rich description of their caregiving experience; interviews were transcribed verbatim and thematically analysed. Themes were categorized according to challenges encountered, rewards gleaned, and sustaining strategies employed by participants in caregiving to their spouse with multiple chronic conditions...
June 2017: Canadian Journal on Aging, la Revue Canadienne du Vieillissement
https://www.readbyqxmd.com/read/28339638/the-impact-of-older-parents-pain-symptoms-on-adult-children
#19
Karl Pillemer, Catherine Riffin, J Jill Suitor, Siyun Peng, M C Reid
Objective. : Not only is persistent pain a debilitating health problem for older adults, it also may have negative effects on family relationships. Studies have documented the effects of pain on spouses and on parents of young children. However, research has not extended this line of inquiry to later life, and specifically to the impact of older parents' pain symptoms on adult children. This study addresses the question: Does older mothers' pain affect the quality of relations with offspring? Subjects and Design...
February 16, 2017: Pain Medicine: the Official Journal of the American Academy of Pain Medicine
https://www.readbyqxmd.com/read/28338981/continuity-and-changes-in-three-types-of-caregiving-and-the-risk-of-depression-in-later-life-a-2-year-prospective-study
#20
Huiying Liu, Wei Qun Vivian Lou
Objective: previous studies have well documented the psychological consequences of family caregiving but less is known about the heterogeneity of older carers being affected during different temporal phases of caregiving over time. This study aimed to prospectively examine the impact of continuity and changes in grandchild care, parent care and spouse care on older carers' depressive symptoms 2 years later. Methods: the analytic sample contained 2,398 urban seniors who completed interviews for both the 2011 and 2013 waves of the China Health and Retirement Longitudinal Study...
March 10, 2017: Age and Ageing
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