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https://www.readbyqxmd.com/read/29333736/underestimated-caregiver-burden-by-cancer-patients-and-its-association-with-quality-of-life-depression-and-anxiety-among-caregivers
#1
J Y Shin, J-W Lim, D W Shin, S Y Kim, H-K Yang, J Cho, A Jeong, D Jo, C-Y Yim, K Park, J-H Park
This study examined how patients with cancer estimate caregiver burden (CB) and the association between their underestimation of CB and their caregivers' self-ratings of their quality of life (CQOLC-K; Korean version of the Caregiver Quality of Life Index-Cancer), depression and anxiety (Korean version of the Hospital Anxiety and Depression Scale). Participants consisted of 990 patient-caregiver dyads recruited from a nationwide cross-sectional survey conducted in South Korea. Medical baseline data were retrieved from the hospital information systems of the participating centres...
January 15, 2018: European Journal of Cancer Care
https://www.readbyqxmd.com/read/29325105/predictors-of-secondary-role-strains-among-spousal-caregivers-of-older-adults-with-functional-disability
#2
Courtney A Polenick, Nicole DePasquale
Background and Objectives: Aging spouses commonly care for a partner with functional disability, but little is known about how spousal caregiving may impact different life domains. This study evaluated how caregiving characteristics are associated with secondary role strains among spousal caregivers. Research Design and Methods: This cross-sectional study examined 367 spousal caregivers and their partners from the 2011 National Health and Aging Trends Study and National Study of Caregiving...
January 8, 2018: Gerontologist
https://www.readbyqxmd.com/read/29313177/high-functioning-autism-spectrum-disorders-in-adults-consequences-for-primary-caregivers-compared-to-schizophrenia-and-depression
#3
Inge A C Grootscholten, Bob van Wijngaarden, Cornelis C Kan
Primary caregivers experience consequences from being in close contact to a person with autism spectrum disorder (ASD). This study used the Involvement Evaluation Questionnaire to explore the level of consequences of 104 caregivers involved with adults with High Functioning ASD (HF-ASD) and compared these with the consequences reported by caregivers of patients suffering from depression and schizophrenia. Caregivers involved with adults with an HF-ASD experience overall consequences comparable to those involved with patients with depression or schizophrenia...
January 8, 2018: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/29305612/effects-of-familiarization-on-intelligibility-of-dysarthric-speech-in-older-adults-with-and-without-hearing-loss
#4
Kaitlin L Lansford, Stephani Luhrsen, Erin M Ingvalson, Stephanie A Borrie
Purpose: Familiarization tasks offer a promising platform for listener-targeted remediation of intelligibility disorders associated with dysarthria. To date, the body of work demonstrating improved understanding of dysarthric speech following a familiarization experience has been carried out on younger adults. The primary purpose of the present study was to examine the intelligibility effects of familiarization in older adults. Method: Nineteen older adults, with and without hearing loss, completed a familiarization protocol consisting of three phases: pretest, familiarization, and posttest...
January 5, 2018: American Journal of Speech-language Pathology
https://www.readbyqxmd.com/read/29278924/depression-anxiety-stress-and-stigma-in-informal-caregivers-of-people-living-with-hiv-plhiv
#5
Rumana Khan, Keshava Pai, Vaman Kulkarni, John Ramapuram
Informal caregivers are unpaid individuals who help friends or family members who cannot fully care for themselves. However fulfilling the act of helping debilitated individuals, exposure to another person's traumatic experiences often results in psychological distress. Caregiver's stigma towards HIV worsens this. Hence, this study aims to assess the effect of stigma on the mental health of caregivers so that their needs for support can be determined. A cross sectional hospital based study was carried out in Mangalore, India on 150 informal caregivers of PLHIV...
December 27, 2017: AIDS Care
https://www.readbyqxmd.com/read/29237339/multimodal-rehabilitation-in-the-late-phase-after-stroke-enhances-the-life-situation-of-informal-caregivers
#6
Lina Bunketorp-Käll, Åsa Lundgren-Nilsson, Michael Nilsson, Christian Blomstrand
Purpose The burden of caregiving for stroke survivors is well known, but the effect of late stroke rehabilitation on the life situation of informal caregivers is unknown. Here, we assessed changes in the life situation of informal caregivers of stroke survivors enrolled in a multimodal intervention trial. Methods This controlled study was a questionnaire-based survey accompanying a three-armed randomized controlled trial of 123 stroke survivors. The care recipients of 106 caregivers who chose to participate were assigned to rhythm-and-music-based therapy (R-MT; n = 37), horse-riding therapy (H-RT; n = 37), or delayed intervention (control group, n = 32)...
December 13, 2017: Topics in Stroke Rehabilitation
https://www.readbyqxmd.com/read/29236217/the-association-between-medical-diagnosis-and-caregiver-burden-a-cross-sectional-study-of-recipients-of-informal-support-and-caregivers-from-the-general-population-study-good-aging-in-sk%C3%A3-ne-sweden
#7
Sölve Elmståhl, Beth Dahlrup, Henrik Ekström, Eva Nordell
BACKGROUND: Different kinds of chronic diseases might imply different dimensions of caregiver burden, not previously described among the caregivers to recipients from the general elder population. AIM: The main objective was to examine differences in burden between the 343 caregivers to persons with different diagnoses. METHODS: A group of elderly recipients of informal care (n = 343) from the general population study 'Good Aging in Skåne' (GÅS) Sweden, were divided into five diagnostic groups: dementia (n = 90), heart and lung diseases (n = 48), stroke (n = 62), fractures (n = 66), depression (n = 40) and the group "other", consisting of different diagnoses (n = 37) according to ICD-10...
December 13, 2017: Aging Clinical and Experimental Research
https://www.readbyqxmd.com/read/29228835/the-self-management-balancing-act-of-spousal-care-partners-in-the-case-of-parkinson-s-disease
#8
Sue Berger, Tiffany Chen, Jenna Eldridge, Cathi A Thomas, Barbara Habermann, Linda Tickle-Degnen
BACKGROUND: Living with and caring for someone with chronic illness can lead to limitations in activity and social participation for the care partner. Past research emphasizes the importance of care partners taking care of themselves physically and emotionally so they can stay healthy to support the care recipient. There is little information regarding how the care partner takes care of their own social lives. The purpose of this study was to explore the concept of social self-management from the perspective of spousal care partners of people with Parkinson's disease...
December 12, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/29226997/participation-and-interest-in-support-services-among-family-caregivers-of-older-adults-with-cancer
#9
J Nicholas Dionne-Odom, Allison J Applebaum, Katherine Ornstein, Andres Azuero, Paula P Warren, Richard A Taylor, Gabrielle Rocque, Elizabeth Kvale, Wendy Demark-Wahnefried, Maria Pisu, Edward Partridge, Michelle Y Martin, Marie Bakitas
OBJECTIVE: To describe distressed and underprepared family caregiver's use of and interest in formal support services (e.g., professional counseling, education, organizational assistance). METHODS: Cross-sectional mail survey conducted in communities of eight cancer centers in Tennessee, Alabama, and Florida (response rate: 42%). Family caregivers of Medicare beneficiaries with pancreatic, lung, brain, ovarian, head and neck, hematologic, and stage IV cancers reported support service use and completed validated measures of depression, anxiety, burden, preparedness, and health...
December 11, 2017: Psycho-oncology
https://www.readbyqxmd.com/read/29220371/the-impact-of-different-anti-vascular-endothelial-growth-factor-treatment-regimens-on-reducing-burden-for-caregivers-and-patients-with-wet-age-related-macular-degeneration-in-a-single-center-real-world-japanese-setting
#10
Tsukasa Hanemoto, Yusuke Hikichi, Norimasa Kikuchi, Tadahiko Kozawa
OBJECTIVE: To describe the burden associated with different anti-vascular endothelial growth factor (VEGF) treatment strategies for wet age-related macular degeneration (wAMD) in a real-word setting in Japan. METHODS: Single-center, cross-sectional survey of caregivers of patients with wAMD performed in a hospital in Mito-City, a rural area in Japan. Caregiver burden was evaluated using the Burden Index of Caregivers (BIC-11), and depressive symptoms were assessed by the Center for Epidemiologic Studies Depression scale...
2017: PloS One
https://www.readbyqxmd.com/read/29211233/elderly-caregivers-living-in-urban-rural-and-high-social-vulnerability-contexts
#11
Sofia Cristina Iost Pavarini, Anita Liberalesso Neri, Allan Gustavo Brígola, Ana Carolina Ottaviani, Érica Nestor Souza, Estefani Serafim Rossetti, Mariélli Terassi, Nathalia Alves de Oliveira, Bruna Moretti Luchesi
OBJECTIVE Comparing the differences in the sociodemographic, care and health profiles of elderly caregivers of the elderly living in urban, rural, and high social vulnerability contexts. METHOD A cross-sectional study developed with elderly caregivers enrolled in the Family Health Units of a municipality in the interior of São Paulo. Household interviews and evaluations were conducted on: Activities of Daily Living (ADL), self-reported pain, frailty, cognition, life satisfaction, family functionality, burden, stress and hope...
2017: Revista da Escola de Enfermagem da U S P
https://www.readbyqxmd.com/read/29204426/burden-among-family-caregivers-of-dementia-in-the-oldest-old-an-exploratory-study
#12
Khin Khin Win, Mei Sian Chong, Noorhazlina Ali, Mark Chan, Wee Shiong Lim
Background: With >85 years, the fastest growing age segment in developed countries, dementia in the oldest-old is projected to increase exponentially. Being older, caregivers of dementia in oldest-old (CDOO) may experience unique challenges compared with younger-age groups. Thus, we aim to explore demographic characteristics and burden pattern among CDOO. Methods: We studied 458 family caregiver-patient dyads attending an outpatient memory clinic. We classified patients into three age-groups: <75, 75-84, and ≥85 years...
2017: Frontiers in Medicine
https://www.readbyqxmd.com/read/29200000/mutual-support-and-challenges-among-chinese-couples-living-with-colorectal-cancer-a-qualitative-study
#13
Qiuping Li, Yi Lin, Ying Chen, Alice Yuen Loke
BACKGROUND: A diagnosis of cancer and its treatment affect couples as a unit, and they must cope and give each other mutual support as dyads. Few studies have focused explicitly on understanding mutual support among couples coping with colorectal cancer (CRC). OBJECTIVE: The aim of this study was to explore the mutual support of couples in their journey of coping together with CRC. METHODS: This is a qualitative descriptive study with purposeful sampling...
December 2, 2017: Cancer Nursing
https://www.readbyqxmd.com/read/29187141/experiences-and-needs-of-carers-of-aboriginal-children-with-a-disability-a-qualitative-study
#14
Michelle DiGiacomo, Anna Green, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Patricia Mary Davidson, Penelope Abbott
BACKGROUND: Australian parents/carers of a person with a disability experience higher rates of depression, more financial stress, and are twice as likely to be in poor physical health than the general population. Aboriginal and Torres Strait Islander peoples experience worse health, social and economic outcomes than other Australians, and those with a disability face 'double disadvantage'. This study aimed to better understand the experiences and needs of parents/carers/families of Aboriginal children with a disability...
November 29, 2017: BMC Family Practice
https://www.readbyqxmd.com/read/29184350/female-caregivers-and-stroke-severity-determines-caregiver-stress-in-stroke-patients
#15
Bindu Menon, P Salini, K Habeeba, Jyoti Conjeevaram, K Munisusmitha
Background: Stroke is among the major causes of short- and long-term disability. This study aimed to understand the caregivers (CGs) stress in stroke survivors. Materials and Methods: A 22-item questionnaire was administered to 201 CGs of stroke survivors. The variables tested were physical and mental health, social support, financial, and personal problems. CGs were divided into Group A (Barthel index [BI] <75) and B (BI >75) according to patient's BI, according to gender (male and female CG) and relation; spouses (wife, husband), daughters, sons, daughter-in-law, grandchildren, and rest (father, mother, brother, sister, and in-laws)...
October 2017: Annals of Indian Academy of Neurology
https://www.readbyqxmd.com/read/29167045/long-term-caregiving-is-associated-with-impaired-cardiovagal-baroreflex
#16
Kevin K Wu, Taylor Bos, Brent T Mausbach, Milos Milic, Michael G Ziegler, Roland von Känel, Matthew A Allison, Joel E Dimsdale, Paul J Mills, Sonia Ancoli-Israel, Thomas L Patterson, Igor Grant
OBJECTIVE: Caregiving stress is associated with increased risk of cardiovascular disease (CVD). Inability to adequately regulate blood pressure is a possible underlying mechanism explaining this risk. We examined the relationship between length of caregiving and cardiovagal baroreflex sensitivity (cBRS) to better understand the link between caregiving and CVD risk. METHODS: A total of 146 elderly individuals (≥55years) participated in this study, of whom 96 were providing in-home care to a spouse with dementia and 50 were healthy controls married to a non-demented spouse (i...
December 2017: Journal of Psychosomatic Research
https://www.readbyqxmd.com/read/29167039/psychological-and-psychiatric-symptoms-of-terminally-ill-patients-with-cancer-and-their-family-caregivers-in-the-home-care-setting-a-nation-wide-survey-from-the-perspective-of-bereaved-family-members-in-japan
#17
Makoto Kobayakawa, Asao Ogawa, Michiko Konno, Akiko Kurata, Jun Hamano, Tatsuya Morita, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Maho Aoyama, Mitsunori Miyashita
OBJECTIVE: The psychological and psychiatric symptoms of terminally ill cancer patients are highly problematic and have been associated with greater burden among caregivers. Until now, the extent of these problems in the home care setting was unclear. METHODS: This retrospective study was conducted as part of a nationwide survey from the perspective of bereaved family members in Japan (J-HOPE3). The bereaved family members rated the symptoms of delirium and suicidal ideation of patients with cancer, and the sleeplessness and depressed mood of family caregivers utilizing home care services in the one month before the patients' deaths...
December 2017: Journal of Psychosomatic Research
https://www.readbyqxmd.com/read/29146639/impact-of-informal-caregiving-on-older-adults-physical-and-mental-health-in-low-income-and-middle-income-countries-a-cross-sectional-secondary-analysis-based-on-the-who-s-study-on-global-ageing-and-adult-health-sage
#18
Sylvie D Lambert, Steven J Bowe, Patricia M Livingston, Leila Heckel, Selina Cook, Paul Kowal, Liliana Orellana
OBJECTIVES: A high proportion of care stemming from chronic disease or disability in low-income and middle-income countries is provided by informal caregivers. The goal of this study was to determine the level of burden experienced by these caregivers, explore associated factors and assess whether caregivers' and non-caregivers' health differed. DESIGN AND SETTING: This cross-sectional study was a secondary analysis of data on caregivers' burden, health and health risk factors in Ghana, India and the Russian Federation collected as part of the WHO's Study on global AGEing and adult health (SAGE) Wave 1...
November 15, 2017: BMJ Open
https://www.readbyqxmd.com/read/29139308/the-impact-of-deployment-and-traumatic-brain-injury-on-the-health-and-behavior-of-children-of-us-military-service-members-and-veterans
#19
Tracey A Brickell, Louis M French, Sara M Lippa, Rael T Lange
This study examined the impact of service member/veteran (SMV) combat deployment and traumatic brain injury (TBI) on the health and behavior of his or her children. Participants were 104 female spouse caregivers of US SMVs who had sustained a mild, severe, or penetrating TBI. Participants completed the Children's Health and Behavior Questionnaire (CHBQ; r = .758 to .881) that evaluates school grades, behavior, medical health, emotional health, and social participation: (a) prior to the first combat deployment, (b) in the month prior to the TBI, (c) within 2 years after the TBI, and (d) 2 or more years after the TBI...
November 1, 2017: Clinical Child Psychology and Psychiatry
https://www.readbyqxmd.com/read/29121916/a-longitudinal-study-looking-at-and-beyond-care-recipient-health-as-a-predictor-of-long-term-care-home-admission
#20
Raquel S D Betini, John P Hirdes, Donna S Lero, Susan Cadell, Jeff Poss, George Heckman
BACKGROUND: The unpaid care provided by informal caregivers allows care recipients to live longer in their homes, which often results in fewer unnecessary long term care home (LTCH) admissions. Although the relationship between care recipient's health characteristics and institutionalization is well known, the influence of caregiver distress and caregiving coresidence and relationship on this outcome is less clear. This study examines the association of care recipient care needs, caregiver distress and caregiving coresidence and relationship with care recipient long term care home admission...
November 9, 2017: BMC Health Services Research
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