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Spouse caregivers

Aimee Milliken, Ellen K Mahoney, Kevin J Mahoney, Kate Mignosa, Isabella Rodriguez, Catherine Cuchetti, Megumi Inoue
Recently, national attention has focused on the needs of family caregivers providing complex chronic care, noting the necessity to better understand the scope of challenges they encounter. Although a robust body of literature exists about the scope of family caregiving, little is known specifically about the experiences and perspectives of family caregivers who support participant directed (PD) participants, particularly across the caregiving trajectory. Therefore, the aim of this qualitative descriptive study was to describe what family caregivers of individuals with developmental disabilities, physical disabilities, aging, or chronic health conditions identify as the challenges they experience as complex, and their perceptions of the effectiveness and gaps in family support resources in PD...
May 17, 2018: Journal of Gerontological Social Work
Janella Hudson, Maija Reblin, Margaret F Clayton, Lee Ellington
OBJECTIVE: Many family caregivers and hospice patients experience role changes resulting from advancing illness and the need for increased caregiver responsibility. Successful navigation of conflicts that arise because of these role transitions has been linked to higher quality of patient care and improved caregiver bereavement adjustment. Nursing communication with patients and their caregivers plays an important role in facilitating these transitions. Our objective is to describe patient-caregiver-nurse communication during transitions at end of life...
May 15, 2018: Palliative & Supportive Care
Catherine Hudon, Maud-Christine Chouinard, Marie-France Dubois, Pasquale Roberge, Christine Loignon, Éric Tchouaket, Mireille Lambert, Émilie Hudon, Fatoumata Diadiou, Danielle Bouliane
PURPOSE: This study aimed to evaluate the effects of the V1SAGES case management intervention (Vulnerable Patients in Primary Care: Nurse Case Management and Self-management Support) for frequent users of health care services with chronic disease and complex care needs on psychological distress and patient activation. METHODS: We used a 2-phase sequential mixed methods design. The first phase was a pragmatic randomized controlled trial with intention-to-treat analysis that measured the effects of the intervention compared with usual care on psychological distress and patient activation before and after 6 months...
May 2018: Annals of Family Medicine
Rebecca Judd, Helen Guy, Ruth A Howard
OBJECTIVE: Caring for someone close who is dying, such as a spouse, is an emotive experience; however, there is little research examining the phenomenon of caregiving for a spouse at the end of life and of men's experiences specifically. Existing literature suggests that men who are providing care are less likely to seek help than women, especially psychological and emotional support for themselves. The aim of the current study was to explore the lived experiences of men caring for a dying spouse or partner and their help-seeking for themselves during this time...
January 1, 2018: Journal of Palliative Care
Helen C Kales, Laura N Gitlin, Barbara Stanislawski, H Myra Kim, Katherine Marx, Molly Turnwald, Claire Chiang, Constantine G Lyketsos
BACKGROUND: Behavioral and psychological symptoms of dementia (BPSD) are universal and associated with multiple negative outcomes. This pilot randomized controlled trial (RCT) evaluated the effect of using the WeCareAdvisor, an innovative web-based tool developed to enable family caregivers to assess, manage, and track BPSD. METHODS: This RCT enrolled 57 dementia family caregivers from community and clinical settings in Ann Arbor, Michigan and Baltimore, Maryland...
May 10, 2018: BMC Geriatrics
Malathi G Nayak, Anice George, M S Vidyasagar
Introduction: Caring for patients with advanced disease involves many concerns for caregivers. All aspects of health of the caregiver is compromised in the process of caring for the cancer patients. Usually, most of the terminally ill cancer patients live with their caregivers at home. Objectives: The aims of the present study was to identify the barriers to symptom management among caregivers of cancer patients and to find the association between perceived barriers to symptom management of caregivers' with their demographic variables and their patients' disease-related variables...
April 2018: Indian Journal of Palliative Care
Sujata Chodankar Walke, Varalakshmi Chandrasekaran, Shreemathi S Mayya
Background: During a given year, almost 30% of the people around the world are affected by mentally ill health. In India, it accounts for about 20%. Caregivers face a lot of strain, ill health, and disrupted family life, with literature suggesting an increasing concern about their ability to cope up. The needs of caregivers of the mentally ill are given low priority in the current health-care setting in India. Aim: The aim of the study was to assess the burden of caregivers of mentally ill individuals and their coping mechanisms...
April 2018: Journal of Neurosciences in Rural Practice
Sahar Mohabbat Bahar, Imanollah Bigdeli
Introduction Dementia is considered as a serious threat for over 65years old population, because of its high prevalence rates. Dementia with a complex and multifaceted nature has negative effects on patients, family members, and their caregivers' psychological health and socioeconomic status. The current qualitative study is designed to investigate the stigma phenomenon to dementia in Iranian population. Methods This qualitative research was conducted by the descriptive phenomenological method. In order to analyze the data, the Colaizzi's descriptive phenomenological method was used...
January 1, 2018: Dementia
Keiko Kurita, Mark S Lachs, Ronald D Adelman, Eugenia L Siegler, M Cary Reid, Holly G Prigerson
Little is known about the association between cognitive dysfunction among informal caregivers and patients' plans and preferences for patients' end of life care. We report on the frequency of cognitive dysfunction among both patients and caregivers and examine associations between caregivers' cognitive screening scores and end of life plans and preferences of patients with advanced cancer. The current sample was derived from a National Cancer Institute- and National Institute of Mental Health-funded study of patients with distant metastasis who had disease progression on at least first-line chemotherapy, and their informal caregivers (n = 550 pairs)...
2018: PloS One
Rosarin Sruamsiri, Yasuhiro Mori, Jörg Mahlich
BACKGROUND: When a family member is diagnosed with schizophrenia, it causes stress to the caregiver that can eventually result in missed work days and lower work performance. AIM: This study aims at revealing productivity costs for caregivers of schizophrenia patients in Japan. METHOD: A cross-sectional survey of caregivers was conducted and resulted in 171 respondents. The assessment of work productivity included calculating the costs of absenteeism, presenteeism and total productivity costs...
April 27, 2018: Journal of Mental Health
Yu-Hsia Tsai, Meei-Fang Lou, Tsui-Hsia Feng, Tsung-Lan Chu, Ying-Jen Chen, Hsueh-Erh Liu
BACKGROUND: Caregiver burden may be either a predictor or an outcome of caregiver quality of life (QoL). Patient or caregiver factors that directly affect caregiver QoL, predictors that are simultaneously shared with caregiver burden and QoL, and factors that affect caregiver QoL through caregiver burden are not well understood. This study explored predictors of caregiver QoL and identified whether caregiver burden is a mediator for caregivers of first-time stroke patients. METHODS: This is a cross-sectional study...
April 25, 2018: BMC Neurology
Yu Yu, Bing-Wei Tang, Zi-Wei Liu, Yu-Mei Chen, Xing-Yu Zhang, Shuiyuan Xiao
OBJECTIVE: The present study aims to provide a comprehensive profile of the primary family caregivers of schizophrenia individuals in rural China. METHOD: A cross-sectional study was conducted with a sample of 327 primary family caregivers of schizophrenia individuals recruited through a one-stage cluster sampling in Ningxiang County of Hunan province, China. The social demographic and psychological profiles of primary caregivers were measured using standard scales and self-designed scales...
April 11, 2018: Comprehensive Psychiatry
Emilie Wawrziczny, Clotilde Larochette, David Papo, Emilie Constant, Francine Ducharme, Marie-Jeanne Kergoat, Florence Pasquier, Pascal Antoine
OBJECTIVE: The aim of this study is to test the effects of a customized intervention on distress among caregivers of persons with dementia (PWD) using a quasi-experimental design. METHOD: Fifty-one spouse caregivers in the experimental group and 51 in the control group participated in the study. The effects of the intervention were examined by comparing caregivers' responses with questionnaires at pre-intervention baseline (T0) and immediately after intervention (T1)...
April 1, 2018: Journal of Aging and Health
Sasson Menahem, Tali Samson, Pesach Shvartzman
BACKGROUND: There are no published studies on notification of death by a next of kin to the treating medical staff. AIM: To explore the content and circumstances of death notifications by next of kin to the treating medical staff in a palliative home care unit. DESIGN: A cross-sectional study that combines qualitative and quantitative analysis. SETTING: Assessment of 153 telephone death notifications by a next of kin to the treating medical staff...
January 1, 2018: American Journal of Hospice & Palliative Care
Susan A LaValley, Elizabeth A Gage-Bouchard
Caregivers of terminally ill patients are at risk for anxiety, depression, and social isolation. Social support from friends, family members, neighbors, and health care professionals can potentially prevent or mitigate caregiver strain. While previous research documents the importance of social support in helping end-of-life caregivers cope with caregiving demands, little is known about differences in social support experiences among caregivers at different life course stages. Using life course theory, this study analyzes data from in-depth interviews with 50 caregivers of patients enrolled in hospice services to compare barriers to mobilizing social support among caregivers at two life course stages: midlife caregivers caring for parents and older adult caregivers caring for spouses/partners...
April 1, 2018: Journal of Applied Gerontology: the Official Journal of the Southern Gerontological Society
Ruijie Li, Mei Sian Chong, Peng Chew Mark Chan, Bee Gek Laura Tay, Noorhazlina Binte Ali, Wee Shiong Lim
Recent studies on the Zarit Burden Interview (ZBI) support the existence of a unique factor, worry about caregiving performance (WaP), beyond role and personal strain. Our current study aims to confirm the existence of WaP within the multidimensionality of ZBI and to determine if predictors of WaP differ from the role and personal strain. We performed confirmatory factor analysis (CFA) on 466 caregiver-patient dyads to compare between one-factor (total score), two-factor (role/personal strain), three-factor (role/personal strain and WaP), and four-factor models (role strain split into two factors)...
2018: Frontiers in Medicine
Sabina Vatter, Kathryn R McDonald, Emma Stanmore, Linda Clare, Sheree A McCormick, Iracema Leroi
Background: the complex and progressive nature of Parkinson's disease (PD) and cognitive impairment may necessitate a care provider, a role which is frequently undertaken by a spouse. Providing and receiving care related to dementia impacts on a couple's partnership and may result in decreased intimacy and relationship satisfaction. Objective: to explore the changes in long-term intimate relationships in Parkinson's-related dementia, as perceived by spouses providing care to their partners...
April 3, 2018: Age and Ageing
Fidel López-Espuela, Teresa González-Gil, Javier Amarilla-Donoso, Sergio Cordovilla-Guardia, Juan Carlos Portilla-Cuenca, Ignacio Casado-Naranjo
AIMS: To explore and document the experiences and values of spouse caregivers of stroke survivors. To gain more in-depth knowledge of how the act of caring and the adaption process affects caregiving spouses. MATERIALS AND METHODS: Phenomenological, qualitative study. This study included spouses of stroke survivors who also served as primary caregivers. Individual, semi-structured, in-depth interviews were conducted, transcribed, and analysed using a thematic content analysis as proposed by Giorgi...
2018: PloS One
Daniel Lüdecke, Barbara Bien, Kevin McKee, Barbro Krevers, Elizabeth Mestheneos, Mirko Di Rosa, Olaf von dem Knesebeck, Christopher Kofahl
OBJECTIVES: Demographic change has led to an increase of older people in need of long-term care in nearly all European countries. Informal carers primarily provide the care and support needed by dependent people. The supply and willingness of individuals to act as carers are critical to sustain informal care resources as part of the home health care provision. This paper describes a longitudinal study of informal care in six European countries and reports analyses that determine those factors predicting the outcomes of family care over a one-year period...
2018: PloS One
Yoko Moriyama, Nanako Tamiya, Nobuyuki Kawachi, Maya Miyairi
This study aimed to examine multiple factors associated with happiness from the perspective of gender difference among a middle-aged Japanese population. A total of 865 participants (male = 344, female = 521) aged 40-64 years were divided into two groups (high and low) by their self-reported level of happiness. Logistic regression analysis by gender was carried out. In men, high levels of happiness were significantly correlated with living with spouse, occupation, enough sleep, leading a normal life, and regular checkups; while low levels of happiness were significantly correlated with smoking and having two or more diseases...
March 2018: World Medical & Health Policy
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